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Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016 Joshua C. Rubin, JD, MBA, MPH, MPP [email protected] @JoshCRubin

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Page 1: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

Hunt for Collaboration: Realizing a Learning Health System

Together to Democratize Health

Tuesday, June 14, 2016

Joshua C. Rubin, JD, MBA, MPH, MPP

[email protected]

@JoshCRubin

Page 2: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

http://www.healthcareitnews.com/blog/memoraim-hunt-blair

Page 3: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

A Learning Health System (LHS)…A System of Health Learners…

•Every Human Health Experience…

•Every Decision Affecting Health…

•Every Person…

Page 4: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016
Page 5: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

5

Patient Groups

GovernanceEngagementData AggregationAnalysisDissemination

Insurers

Pharma

Universities

Government/Public Health

Healthcare Delivery Networks

ResearchInstitutes

Tech Industry

All-Inclusive Decentralized ReciprocalTrusted

Page 6: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

www.LearningHealth.org

Page 7: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

https://lillypad.lilly.com/entry.php?e=8284www.LearningHealth.org

Page 8: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

104 Endorsements of the LHS Core Values*(As of 5/16/2016)

The Center for Learning Health Care

Siemens Health Services

GE Healthcare IT

*To be included on the www.LearningHealth.org website.

SecureHealthHub, LLC

Department of Primary Careand Public Health

Program in HealthInformatics, SONHP

Veterans Health AdministrationOffice of Informatics & Analytics

Division of Health and Social Care Research

Page 9: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

www.LearningHealth.org

Page 10: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

“… for those of us who have battled against the weariness and ennui most change agents face in the institutions of government and the healthcare industrial complex, we know that this change has been a long time coming, and it’s too late to stop now.”– Hunt Blair, 2015

http://collaborationforlhs.blogspot.com/2015/07/somethings-happening-here.html

Page 11: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

Michelle Garber, USAC

Vice President, Lifeline

Lifeline Program

Page 12: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

What is it?

The program is undergoing modernization

• 13 million households

• $9.25 / mo. voice discount ($34.25 tribal)

• Eligible through varied social service programs or income

• Carriers confirm eligibility

Page 13: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

Consumers are eligible for a Lifeline benefit if enrolled in1:

• Medicaid

• Supplemental Nutrition Assistance Program

• Supplemental Security Income

• Federal Public Housing Assistance

• Veterans Pension and Survivors Benefit

• Income-based eligibility

Who can get it?

Reside on Tribal lands and participate in a federal or state assistance program such as:

• Bureau of Indian Affairs General Assistance

• Head Start• Tribal Temporary Assistance for

Needy Families• Food Distribution Program on

Indian Reservations

OR

1List reflects criteria effective on the later of December 1, 2016 or 60 days after PRA approval

Page 14: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

What services are discounted?

Subscribers may receive a discount on either:

Current State Future State1

Fixed voice (home phone) Fixed voice (home phone)

Mobile voice (cell phone) Mobile voice (cell phone)

Fixed broadband

Mobile broadband

Bundled voice + broadband

1Inclusion of broadband is effective on the later of December 1, 2016 or 60 days after PRA approval

Page 15: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

Carrier verifies consumer eligibility

Begins delivering discounted services on a monthly basis

Carrier reimbursed by USAC based on

self-reported subscribers

How does it work?

Current State: Carrier Verifies Eligibility

National Verifier verifies consumer

eligibility

Consumer selects Lifeline carrier and begins receiving

discounted service

Carrier reimbursed by USAC based on National Verifier

records

Future State1: National Verifier

1First phase of National Verifier will be implemented December 31, 2017.

Page 16: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

Enabling Responsible Information

Sharing and Interoperability

Common Data Taxonomy – Core Semanticshttps://m.youtube.com/watch?v=gmOTpIVxji8

Normative Interoperability Framework– Context Neutral Packaging (ICIF)

Applied Reuse – Context Specific Instantiation(s)

…No One Size Fits All

Page 17: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

SCC Membership

IJIS InstitutePrograms

&Initiatives

National Practice Associations

Standards Development Organizations

Academic&

Research

Technology/Engineering

Organizations

Industry Associations

Technology Incubators

Page 18: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

SCCProject

Interoperability

Mission Centric – IS&S Strategic• Policy Automation (ICAM)• Info Security/Safeguarding• Services Adaptability• Standards-based

Acquisition• Viability and Sustainability

Enablement Centric – ICIF• Common Taxonomy• Common Profile (SIP’s)• Crosscutting Capabilities• Standards Normalization –

Project Prototyping (Pipe)• Reference Implementation• IS&S Products

http://www.standardscoordination.org/

Business Working Group

Technical Working Group

Architecture Working Group

Outreach and Communications Working Group

Performance Measurement

Working Group

Information Sharingand Access Interagency

Policy Committee (Government)

Security Working Group

Privacy Working Group

Information

Sharing Council

(ISC)

Page 19: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

Adaptability to Technological Change

Human Adaptation

Organizational

Adaptation

Pace of

Technological

Change

Data Use

PolicyInfoSec/

Safeguarding

Digital

Integrity

Page 20: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

This is

NOT

a

Phone!

Page 21: Hunt for Collaboration: Realizing a Learning Health System ... · Hunt for Collaboration: Realizing a Learning Health System Together to Democratize Health Tuesday, June 14, 2016

Thank You

Steven Ambrosini

Executive Director

IJIS Institute, USA

[email protected]