#Empowerlution

Ingrid Brindle

Chair of Haughton Thornley PPG

Locality PPG Chair, Tameside & Glossop CCG

Member of NHS Patient Online Programme

Patient Experience board, Greater Manchester Academic Science Health Network

@IngridBrindle

Dr Amir Hannan

Full-time General Practitioner

Haughton Thornley Medical Centres

www.htmc.co.uk

Director, Orbit healthcare Ltd, GP Federation

Chair, Association of Greater Manchester

Local Medical Committees

Member of Equality Diversity Council, NHS England

Chairman, World Health Innovation Summit

@AmirHannan

Hello! My name is Ingrid Brindle

Chair of Haughton Thornley Patient Group Hyde

Chair of Neighbourhood Patient Group

Member of Patient Experience Group GM AHSN

Member of NHS Patient Online Programme

Member of Integrated Services Steering Group

Founder of Healthpledge

@ingridbrindle

ingridbrindle44@gmail.com

You are already your own doctor!Tom Ferguson MD 1985

• Our interactions with the healthcare system are just the tip of the iceberg

• Self Care is and has always been our predominant form of health care

Would you like to see your medical records?

• Not really, why would I want to do that?

• Sell the sizzle not the sausage!

Would you like to be able to………?

• Read what the doctor has written about you

• Order repeat prescriptions

• Have a list of what happened & when

• Get more information about your condition

• Read consultants’ letters

• See your test results

• Check referrals

• etc.

Click here to see more information

about the problems you

suffer with

Test results

• All test results available

• Blood tests

• If regularly tested, can monitor trends

• Understandable, value, graphic, Normal / Abnormal

• Labtests Online

• Comment by doctor

• Can avoid repeating tests

• No need to contact practice

Summary of significant events

• Form filling, insurance & benefits etc.

• Useful when you are asked the same thing over and over again!

• Good to be a reminded of progress

• Links to trusted sites where information is available

Letters, referrals etc

• All communications that go in & out of the practice

• Gives the patient confidence, knows what has been done

• No need to contact practice

• Letters from consultants……supposed to send but often don’t

• Can check understanding and roles in what happens next

• Can use the letters to inform others who don’t communicate

• Examples…..France, Grandson, Yvonne, Margaret

Consultations etc.

• Patient retention of information can be as low as 10%

• Can check understanding & what happens next

• Can get family or friends / carers help

• Language difficulties …… Australia………. Nursing homes

• Elderly man in A&E

• Safe medicine

• No need to contact practice

Mobile Phone app

• Have information available anywhere home and abroad with just 2 passwords! How cool is that?

• A large percentage of the population have a suitable mobile phone

• Information about passwords can be stored under ICE or using an ICE app on the lockscreen

• ICE app is next to the Patient Access records access app

• If someone steals the phone, passwords can be changed

Having access to my medical information has given me………

• More confidence

• Better understanding of my conditions

• More productive conversations leading to shared decision making

• More control

• More independence

• More convenience

• I’m very lucky!

Challenges for Patient Engagement

• Digital Divide

• No interest / lack of interest in their health

• Think it’s too complicated can’t be bothered

• Don’t know about it

• Needs support from practice / staff / clinicians

• Want to be cared for and told

• Worries about external pressures

• Don’t want it…it’s scary, can get hacked

• Lack of understanding of what is possible

• Nothing to see…….Wonderful!

www.healthpledge.co.uk

Margaret Rickson – R.I.P.

www.htmc.co.uk

Information, advice, talks , signposting, access

EXPLICIT CONSENT IS KEY

Type of patient How many have signed up %

Asthma 1090/1808 60%

COPD 178/372 47%

Diabetes 484/861 56%

Cancer 177/323 54%

Depression / Anxiety 1411/1567 90%

Rheumatoid Arthritis 47/75 62%

Heart disease 244/474 51%

Pregnant 68/91 74%

Learning disability 13/49 26%

Bengali patients 815/1498 54%

Medications ordered online 1422/11980 11%

Total patients 6377/11980 53%

Trust Quotient

Trust Quotient = credibility x reliability x intimacy

Self-orientation

Partnership of Trust

Challenges for Practice Engagement• Who has the time ?

• Where will the funding come from ?

• Will this just build higher expectations that we cannot deliver on?

• What about those who can't do it ?

• If staff themselves don't have it, why should patients ?

• What if patients ask questions about errors, info that is missing etc ?

• Why should practices prioritise this over others ?

• Our notes are not fit to be shared because…..

• I don't mind as long as I do not have to do it….

• This does not fit in with the wider engagement of others….

• It's just too difficult so why bother ?

• I know other practices don't do questionnaires, why should we ?

My motivation• My patients and their carers

• My staff

• My family, my values, my work ethic

• Emotional intelligence

• Puzzles – how can we make things better?

• Always wanted to do the best

• It’s getting tough but it’s about to get a whole lot tougher

• Listening

• Locus of control – internal vs external

• Shared decision making

• Servant leadership

• Success breeds success – 7 habits of highly effective people

• Passion

What can we do to bring more people in?• Get some outcomes from today’s meeting

• Inspire, Believe, feel, Do

• Work with the willing and create the opportunities

• We need to develop leaders and followers from amongst you

• Develop a united patient voice for the “top table”

• Start with one patient, one clinician and one manager in one practice

• Fund them and get out of the way – let them innovate

• Who are the representatives from the system supplier?

• Who are the payer?

• Manage expectations

• Build on what you have, small steps – not giant leaps of faith

• Prepare to fail many times to get to success

• Awareness + Commitment + Passion + Delivery + Place of Work

• Our commitment is to support you

The (7) Ps for Success

•Patients and the Public

•Partnership of Trust

•Paradigm Shift in Healthcare

•Practice makes Perfect

#TogetherWeInsPire

Evolution

Revolution

#Empowerlution