health care reform and what it means for people living with hiv/aids duke aids policy project

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HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

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Page 1: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

HEALTH CARE REFORMAND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS

Duke AIDS Policy Project

Page 2: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

BARRIERS TO COVERAGE FOR PLWHA

1. Many can’t access employer based insurance

2. Pre-existing condition limitations

3. High cost

4. Can’t qualify for Medicaid because of income, assets, or inability to establish disability

5. Undocumented

Obamacare (the Affordable Care Act) solves everything but # 5

Page 3: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

Americans want guaranteed coverage for pre-existing conditions

• Insurance market can’t add pre-existing conditions, getting most or all of the healthy people in the pool

• Getting most people in the pool means there has to be a requirement or very strong incentive

• If everyone has to be in the pool, there has to be financial aid to lower-income to pay premiums

• How the ACA does it:

• Elimination of medical discrimination• Mandated coverage• Premium Subsidies

COVERING THE SICK MEANS EVERYONE MUST BE IN THE POOL

Page 4: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

THE LONG, TORTURED ROAD TO REFORM

1. ACA signed into law March 2010 – NO Republican voted for it

2. Immediate legal challenges – “individual mandate,” Medicaid

3. States and Federal Government engaged in frenzied implementation planning

4. March 2012 - Supreme Court upholds almost all of the law

5. Election 2012 & other threats to health care

Page 5: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

OVERVIEW OF ACA CONSUMER PROTECTIONS

• Pre-existing conditions (effective 2014):

• Can’t be rejected• Health status can’t be considered in pricing

• Eliminates insurance caps

• Annual limits (effective 2014)• Lifetime limits (effective now)

• Can’t be dropped from insurance for getting sick

• Insurance can be terminated only for fraud

Page 6: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

OVERVIEW OF INSURANCE EXPANSION

• Everyone who has adequate coverage already – employer, Medicaid, Medicare, etc -- stays the same

• People with inadequate or no coverage

• Over 133% of FPL State Insurance Exchange• State insurance exchanges with subsidies for

people 100 – 400% of poverty• Premiums, cost sharing, and maximum out of

pocket

• Under 133% of FPL Medicaid Expansion

• Temporary “Bridge” insurance: Federal Pre-existing Condition Insurance plan – available now through 2014

Page 7: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

BENEFITS FOR NEWLY INSUREDBoth New Medicaid & Insurance Exchange require coverage of:

“Essential Health Benefits”• Specific benefits for

Medicaid and Insurance Exchange to be determined independently

• Specific benefits wont’ be the same between insurance plans or Medicaid

ESSENTIAL HEALTH BENEFIT CATEGORIES:

• Ambulatory Services• Hospitalization• Maternity & Newborn Care• Mental Health/Substance

Abuse• Prescription Drugs• Emergency Services• Rehabilitative/Habilitative • Lab Services• Preventative & Wellness

Services & Chronic Disease Management

• Pediatric services

Page 8: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

SUPREME COURT DECISION• Upheld the

“individual mandate”

• ACA left standing, so consumer protections, etc remain in place, except….

• Limited the Medicaid Expansion• Feds can’t coerce

state to participate through withholding other Medicaid funds

• Left the public health fund intact.

Page 9: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

IF MEDICAID IS NOT EXPANDEDOver 133% of FPL:

• Can buy insurance on Exchange

• Can get subsidies if under 400% of FPL

Under 133% of FPL

• No Medicaid Expansion unless State opts in

• Can buy insurance on exchange, BUT

• Subsidies not available to persons at or below 100% FPL

Page 10: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

REFORM & HIV/AIDS: BREAKING IT DOWN

Page 11: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

2014

Old Medicaid

New Medicaid

Employer Insurance

Insurance Exchange

with Subsidies

Uninsured

PCIP

VA, Tricare

Medicare

Page 12: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

2014

Old Medicaid

New Medicaid

Employer Insurance

Insurance Exchange

with Subsidies

Uninsured

VA, Tricare

Medicare

PCIP

No change

Page 13: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

2014

Old Medicaid New

Medicaid

Employer Insurance

Insurance Exchange

with Subsidies

Uninsured

VA, Tricare

Medicare

PCIPNew Program

Page 14: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

“NEW MEDICAID”

2014

New Medicaid

• Income up to 138% FPL (133% + 5% income disregard)

• No assets test• No disability requirement• Different benefits - based

on “benchmark” insurance plan

• Must cover “Essential Health Benefits”

(About 5000 PLWHA gain coverage)

Page 15: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

NEW MEDICAID:ESSENTIAL HEALTH BENEFITS

2014

New Medicaid

• Ambulatory Services• Hospitalization• Maternity & Newborn Care• Mental Health/Substance

Abuse• Prescription Drugs• Emergency Services• Rehabilitative/Habilitative • Lab Services• Preventative & Wellness

Services & Chronic Disease Management

• Pediatric services

Page 16: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

NEW MEDICAID:ESSENTIAL HEALTH BENEFITS

2014

New Medicaid

Potentially Missing:• Case Management• Oral Health• Vision• Long Term Care• Private Duty Nursing• Hospice• Personal Care

Page 17: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

NEW MEDICAID:PRESCRIPTION DRUGS

2014

New Medicaid

• The ACA doesn’t specify how expansive (or not) the drug formulary will be.

• One early statement from HHS – one drug per class

• Lots of advocacy on this nationally

Page 18: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

2014

Old Medicaid New

Medicaid

Employer Insurance

Insurance Exchange

with Subsidies

Uninsured

PCIP

VA, Tricare

Medicare

Improvements

Page 19: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

NOW

Medicare

• Free Preventative care

• Free annual wellness visit

• Medicare Part D:

• “Donut Hole” discounts to help pay for prescriptions.

• Donut Hole phased out by 2020

• ADAP counts as client’s out-of-pocket for Medicare Part D

Page 20: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

2014

Old Medicaid New

Medicaid

Employer Insurance

Insurance Exchange

Uninsured

PCIP

VA, Tricare

Medicare

No Disc

rimin

atio

n

Page 21: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

• Lifetime limits to insurance coverage eliminated.

• Insurance companies can’t cancel coverage just because you get sick.

• Children can’t be denied coverage due to a pre-existing condition.

• Free coverage for preventative care, like mammograms and colonoscopies.

EMPLOYER/PRIVATE INSURANCE

NOW

Employer/Private Insurance

Page 22: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

2014

Old Medicaid New

Medicaid

Employer Insurance

Insurance Exchange with

Subsidies

Uninsured

PCIP

VA, Tricare

Medicare

New Insurance Marketplace

Page 23: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

• Limited to those without adequate or affordable insurance

• State-based consumer-friendly insurance “marketplace”

• Subsidies on premiums and cost sharing to make health care more affordable only for those eligible to purchase on the exchange

• If state doesn’t take the lead, the federal government will operate the exchange & choose a default plan

• NC legislature has not adopted an exchange, but work has been done on plan evaluation, provider networks, etc.2014

Insurance Exchange

with Subsidies

INSURANCE EXCHANGE

About 1000 PLWHA

Page 24: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

Same as for Medicaid – but specific covered services can be different• Ambulatory Services• Hospitalization• Maternity & Newborn Care• Mental Health/Substance Abuse• Prescription Drugs• Emergency Services• Rehabilitative/Habilitative • Lab Services• Preventative & Wellness Services &

Chronic Disease Management• Pediatric services

INSURANCE EXCHANGE – ESSENTIAL HEALTH BENEFITS

2014

Insurance Exchange

with Subsidies

Page 25: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

• Like Medicaid – based on a “Benchmark Plan”

• Same issues around prescription drugs

• The likely NC benchmark plan has open formulary

INSURANCE EXCHANGE – ESSENTIAL HEALTH BENEFITS

2014

Insurance Exchange

with Subsidies

Page 26: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

INSURANCE EXCHANGE PROVIDER NETWORKS• Network adequacy: State must assure enough providers

to permit adequate access

• Essential Community Providers:

• Plans offered in the Exchange must include “essential community providers” in networks

• ECPs = providers that serve predominantly low-income, medically underserved communities

• This includes FQHCs, Ryan White grantees, STD/TB clinics, family planning clinics disproportionate share hospitals, etc.

• Network Adequacy

• Insurance plans don’t need to contract with ALL ECPs

Page 27: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

INSURANCE/MEDICAID ENROLLMENT

Diagram from NC Institute of Medicine, Examining the Impact of the Patient Protection and Affordable Care Act in North Carolina: Draft Final Report Pending US Supreme Court Decision, p. 64, May 2012

Page 28: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

HEALTH CARE NAVIGATORS

Becoming a navigator:

• Entities that have expertise working with low-income, or other at-risk groups.

• Must have existing, or easily established, relationships with employers, employees, consumers (including the un- or under-insured)

• Must give fair, accurate and impartial information

Page 29: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

2014

Old Medicaid New

Medicaid

Employer Insurance

Insurance Exchange

Uninsured

PCIP

VA, Tricare

Medicare

Gaps remain

Page 30: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

• Immigrants• Undocumented, or• In US less than 5 years

• Some will be exempt from mandate because insurance still not affordable

• Some will choose not to sign up for insurance

SOME STILL UNINSURED

2014

Uninsured

Page 31: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

• There will still be gaps to fill• Oral Health• Support services • Case management• Transportation• Cost sharing help• Uninsured

• Reauthorization in 2013 –What will Ryan White look like after health reform?

RYAN WHITE & REFORM

Page 32: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

THREE SCENARIOS

A LOOK AT WHAT HEALTH CARE REFORM WILL MEAN FOR LOW-INCOME CONSUMERS WHO DON’T QUALIFY FOR MEDICAID

Page 33: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

• Jane Smith earns $16,433 a year. In 2012, she will be at 149% of the Federal Poverty Level.

• Currently, she is uninsured and gets her care through Ryan White & ADAP.

• In 2014, she will be required to purchase health insurance for herself.

• What does Health Reform mean for Jane?

JANE SMITH

Page 34: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

JANE SMITH & INSURANCE SUBSIDIESJane will be eligible for cost-sharing subsidies, premium credits, and reduced out-of-pocket limit

  Without Subsidies With Subsidies

Premium $5700 $670/year (4% of income)$56/month

Cost sharing (deductible, copay, co-insurance)

Plan pay 70% of costs

Reduced so plan pays 96% of costs

Out of pocket $5950 $1984

Page 35: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

• Mr. and Mrs. Diaz are undocumented immigrants. Their daughter, Maria, was born in the United States.

• Mr. Diaz has HIV, and currently gets care through Ryan White.

• Mr. and Mrs. Diaz pay taxes, and earn $25,390 a year, putting them at 133% of the Federal Poverty Limit.

• What happens to the Diaz family in 2014?

THE DIAZ FAMILY

Page 36: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

THE DIAZ FAMILY & REFORM

• Because Mr. and Mrs. Diaz are undocumented, they will not qualify for Medicaid, or for any other protections under the ACA.

• The Diaz’ family can apply for Health Choice on behalf of Maria. (They will not have to provide any information on their immigration status).

• Mr. Diaz still needs Ryan White and ADAP to cover his care.

Page 37: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

• Richard Doe is 30 years old and lives with his partner.

• Richard makes $46,021 a year, so he is at 400% of the estimated 2014 Federal Poverty Level.

• Richard’s employer – a small, local company, does not currently offer insurance. But, in 2014, they will begin providing insurance to their employees.

• Richard does not want his company to find out about his HIV status.

• What does reform mean for Richard?

RICHARD DOE

Page 38: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

RICHARD, REFORM & CONFIDENTIALITY• Richard may not have to purchase his employer’s

insurance, if it costs more than 9.5% of his income ($4372/year or $364/month).

• Because insurers can no longer deny coverage based on pre-existing conditions, there is no reason for Richard’s employer to ask him about his health status.

• If the employer doesn’t offer insurance, Richard can buy on the Exchange. Richard will qualify a reduced premium: about $3440/year or $287/month

Page 39: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

IS NC ON TRACK TO IMPLEMENTATION?• State leadership taking a “wait and see” approach (governor candidates,

legislative leaders)

• Looking to see what elections hold, chances of repeal• Federal government is moving forward at full speed – but that could

change with election outcome

• Health Benefit Exchange:

• State has not passed a bill to create its own Exchange & time is running short

• Feds may run exchange in 2014• Department of Insurance doing some planning• Because NC has not picked a benchmark plan, default plan will be the

largest insurance plan among the small-market plans, i.e. Blue Options.• Medicaid Expansion:

• Will require legislative action• Governor, candidates, and legislative leaders taking a “wait and see”

attitude• DMA (Medicaid) is planning, running numbers

Page 40: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

THREATS TO REFORM ON NATIONAL LEVEL

• Depending on election outcome:

• “Obamacare waivers”?• Repeal

• Senate requires 3/5 majority if filibustered

• Repeal & Replace• Budget Reconciliation

• Takes time• Limited subject matter permitted

• Refusal of new administration to enforce ACA?• More litigation likely to compel

Page 41: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

THREATS ON NATIONAL LEVEL BEYOND THE ACA

Sequestration

• Would cut 8.2% of non-exempt non-defense discretionary budget

• $659 million from domestic HIV/AIDS & viral hep

Medicare – Romney/Ryan plan for vouchers

• fixed dollar amount to buy coverage

Medicaid –

• Romney/Ryan: Block grant with growth limited to rate of inflation plus 1% annually (way less than current growth)

• 1.2 trillion drop in federal funding from 2014 to 2022• 14-27 million beneficiaries could lose coverage

• Per Capita funding – being discussed by both parties

Page 42: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

GOP PLAN FOR MEDICAID

Page 43: HEALTH CARE REFORM AND WHAT IT MEANS FOR PEOPLE LIVING WITH HIV/AIDS Duke AIDS Policy Project

FOR MORE INFO

Allison Rice

Duke Legal Project

(919) 613-7135

[email protected]