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THE JOHNS HOPKINS HOSPITAL PATIENT AND FAMILY ADVISORY COUNCILS ANNUAL REPORT 2019

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Page 1: HE JOHNS HOPKINS HOSPITAL€¦ · The Patient and Family Advisory Councils (PFACs) are dedicated to the improvement of quality in patient and family centered care at The Johns Hopkins

THE JOHNS HOPKINS HOSPITAL

PATIENT AND FAMILY ADVISORY COUNCILS

ANNUAL REPORT

2019

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The Patient and Family Advisory Councils (PFACs) are dedicated to the improvement

of quality in patient and family centered care at The Johns Hopkins Hospital. The

Advisory Councils are comprised of past and present patients, family members,

community members/leaders, and Johns Hopkins staff members.

Patients and their families are often the most knowledgeable members of the care

team, and can offer unique perspectives and valuable feedback regarding the care they

receive. Patient advisors represent the views of a diverse patient population, with

members providing insight from a wide variety of perspectives including: gender, age,

income, geographic location, personal inpatient and/or outpatient experience, etc.

Johns Hopkins staff advisors provide insight from their varying staff perspectives and

medical disciplines. Staff membership includes physicians, nurses, safety and service

specialists and managers.

This shared relationship enables the Advisory Council, which meets on a monthly

basis, to:

Identify patient and family needs and concerns

Provide feedback on current and proposed policies, procedures, and systems

Generate new ideas to improve care delivery and processes

Act as catalysts and advocates to integrate patient-centered care across the

institution

ABOUT PATIENT AND FAMILY ADVISORY COUNCILS

PFAC members serve on committees throughout the institution, such as:

JHH Board of Trustees Patient Safety & Quality Committee

Children's Center Nursing Quality and Safety Committee

Ethics Committee

JHM Clinical Community

Surgical Quality Improvement Committees

Patient Experience Committees

Pediatric Safety & Infection Control Committee

The six Patient and Family Advisory

Councils are comprised of 226

members: 126 Volunteers and 100

Staff members.

1

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FY 2019 PATIENT- & FAMILY– CENTERED CARE GOAL

2

In fiscal year 2019, The Johns Hopkins Hospital held four Patient and Family Café events.

The goal of the Patient and Family Café model is to ensure inclusion of under-represented

populations on our Patient and Family Advisory Councils. Patient and Family Advisory

Councils are collaborative committees comprised of patients, family members, caregivers

and staff, working together to improve the patient experience within our health system.

In FY19, we held a Patient and Family Café for patients served by the Harriet Lane Clinic,

the Center for Transgender Health, the Pediatric Emergency Department, and the Sidney

Kimmel Comprehensive Cancer Center. In each Café, we solicited feedback from attendees

regarding their experience of care, how we might better meet their health care needs, and

what they wish their providers knew in order to care for them. Each departmental area was

responsible for creating process improvement plans based on the feedback at the Café. A

common theme in all Café feedback was the availability of resources, above and beyond the

excellent clinical care folks say they received. For example, parents at the Harriet Lane

Clinic Café expressed a desire to have nutrition classes or extracurricular activities for their

children to attend. At the Sidney Kimmel Comprehensive Cancer Center Café, the

participants asked for more support groups and yoga classes. This feedback speaks to a

desire from our patients and families for the hospital to provide wraparound services and

partner with our community members.

The Café model will continue in FY20, with a focus on health equity and how we might how

to reduce readmissions from patients who utilize the emergency department frequently. The

model will be used both for qualitative data gathering and recruitment for our Patient and

Family Advisory Councils.

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Patient and Family Advisory Councils

FY 2019 Report

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The Johns Hopkins Hospital Patient and Family Advisory Councils

Annual Report 2019

Page 2 of 15

Adult PFAC

Council Responsibilities

The Patient & Family Advisory Council advocates on behalf of patients and families of the Johns Hopkins Hospital for the provision of the highest quality of patient- and family-centered care. The Council infuses the voice of the patient into every aspect of the Hospital so that all patients receive optimum patient-centered care.

Council Membership Membership consists of 46 total members: 22 patient and family advisors and 24 staff members. Recruitment efforts continue to increase membership and diversity.

Council Meetings Council meets monthly on the first Wednesday of the month.

Adult PFAC FY 2019 Accomplishments Domain Activities

Committee Involvement

Representation on the following Johns Hopkins Hospital committees/workgroups:

o JHH Board of Trustees Patient and Safety and Quality Improvement Committee

o JHH Board of Trustees Patient and Safety and Quality Improvement Subcommittee

o The Ethics Committee o JHH Surgical Quality Improvement Committee o HSCRC Care Redesign Program Leadership

Committee o Opioid Patient Education Workgroup o JHH Service Quality Improvement o Patient – Family Centered Design Team o JHH Antimicrobial Stewardship Committee o Patient Education Review Team o Patient Advisors to Patient Education and

Engagement Team o Workplace Violence Committee o ED Palliative Care Research Project

Representation on the following Johns Hopkins Medicine committees/workgroups:

o PFAC Clinical Community o Patient Engagement Program Leadership

Committee o Johns Hopkins Home Health Group PFAC o JHHS Opioid Stewardship Clinical Community

JHM Single Billing Statement: with the collaboration of PFAC members and Johns Hopkins Billing Staff, a single bill has been created and rolled out on July 23, 2019.

Provided feedback for new Environmental Care Department uniforms

Community Participation/Engagement

Participated in the Annual Proactive Risk Assessment by submitting 8 proposals to the Proactive Risk Assessment Team

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The Johns Hopkins Hospital Patient and Family Advisory Councils

Annual Report 2019

Page 3 of 15

Provided feedback for the next Five Year Strategic Plan A PFAC member joined an Employee Search Committee

when filling the JHHS Vice President for Care Coordination position.

Planned and executed 4 Patient and Family Cafés on the East Baltimore Campus for the purpose of ensuring inclusion of patients, family members, and caregivers from under-represented populations:

o JHH Harriet Lane Clinic: 11/10/2018 o JH Center for Transgender Health: 11/19/2018 o JHH Children’s Center Emergency Department:

5/9/2019 o JH Sidney Kimmel Comprehensive Cancer Center:

6/17/2019 2 PFAC staff members joined the Johns Hopkins Medicine

Virtual Advisors team. We created and sent a survey out to the E-Advisor community to gage PFAC knowledge and interest. This will be used for a recruitment effort.

Created PFAC plasma screen signage for recruitment efforts

Provided feedback on the JHH Drug Takeback Program

Complementary Therapies

Provided feedback on the updated Service Animal policy An Emotional Support Menu for patients with long lengths

of stay was created by a PFAC member. This menu includes a visit from a Peabody Institute musician also known as the Sound Rounds program (formally titled “Musicians-on-Call”)

o In FY19, we have had a total of 4 Peabody musicians in this program. Each play different instruments on two piloted inpatient units (Maternity Inpatient on Zayed 8W and Comprehensive Transplant on Zayed 9W).

Healing Environments

Provided feedback on the Workplace Violence Prevention initiative: signage, written policies and contracts

The PFAC suggested to the Security Department that they increase security advertisement to tell visitors that security escorts are available. This lead to the creation of plasma screen signage.

Provided feedback for the Artificial Airways and Nurse Airway Alert Call System to improve patient safety for patients with artificial airways

Provided feedback for the Department of Medicine’s Quiet Hours signage

Provided feedback on the Zayed 8 Labor and Delivery Perinatal “Thank You” Cards. The card has now been

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The Johns Hopkins Hospital Patient and Family Advisory Councils

Annual Report 2019

Page 4 of 15

changed to a generic statement and will be signed by unit staff.

Patient-Centered Communication

Continued to provide medical education training sessions to:

o First year medical students to inform them on the patient’s use of MyChart

o The Nursing Residency program students to inform them on patient and family-centered care

Collaborated with the Pediatric FAC to develop and host the first Storytelling Workshop on June 8, 2019. The purpose being to help participants craft their own patient/caregiver story and feel comfortable telling it.

A PFAC member – alongside the JHH Surgical Quality Improvement team – presented a breakout session at the October 2018 Planetree International Conference on Person-Centered Care in Boston, MA.

Provided feedback for the JHM Innovation 2023 Strategic Plan

Patient Education

Provided feedback for the acute care patient-facing teaching plans

Provided feedback for the Skilled Nursing Facility (SNF) Collaborative video that was created to educate patients about a SNF discharge

Research

Suggested best methods to engage patients as partners in the PCORI grant, PARTNERED (Patients Aligned with Research Teams, Nurses, and ER Providers to Enhance Diagnosis)

Provided feedback on a Patient-Centered ED Palliative Care project

Adult PFAC FY 2020 Goals

Navigation: o Build infrastructure around patient advocates/peer support: identify areas in

need, write a proposal, identify the proper training, etc. PFAC recruitment and education:

o Develop a recruitment committee that visits hospital units & goes into the community

o Create an internal education group that is staff-facing to inform about PFAC and what a PFAC is

o Increase diversity on the PFAC Encourage patient and family engagement:

o Increase the percentage of PFAC members on hospitals committees and/or workgroups in collaboration with the JHM FY2020 Shared PFCC initiative

Continue to hold Cafés as a way of engaging the patient community. Continue to engage with the JHM Virtual Advisors platform

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The Johns Hopkins Hospital Patient and Family Advisory Councils

Annual Report 2019

Page 5 of 15

Expansion of the Sound Rounds (Peabody Institute and JHH) program to additional areas of the hospital.

A PFAC member will be in the Armstrong Institute for Patient Safety and Quality External Transparency Website video

Pediatric PFAC

Council Responsibilities

The Pediatric FAC believes in its mission: Promoting a culture of patient and family centered care at JHCC. The Council provides resources and guidance to strengthen collaboration, communication, and mutual respect between the healthcare team, patients and families to achieve the highest quality outcomes and care possible.

Council Membership

An interdisciplinary, diverse council consisting of families and staff. Over 50 council members; 31 of which are family advisors. Family advisors represent experiences from inpatient, outpatient, ambulatory and specialty clinics. Staff advisors include representation from leadership within the Children’s Center, frontline staff and 3 Nursing and 3 Medical Students. Recruitment of new council members is ongoing.

Council Meetings Council meetings are held on the third Wednesday of each month, with the exception of August and December. The March meeting is just for Parent Advisors.

Pediatric PFAC FY 2019 Accomplishments

Domain Activities

Committee Involvement

The following Volunteer Opportunities were fulfilled: 21 Parent Advisors on 51 different hospital committees CUSP XT I-PASS FCR MyChart Proxy PCORI Grant in Oncology JHH Diversity Council Subcommittee Complex Care Multidisciplinary Retreat 3 Family Advisories participated in a Complex Care panel

during Pediatric Grand Rounds

Community Participation/Engagement

Continued participation in Family Centered Rounds Simulation training for rising senior residents and interns; providing input on implementation of I-PASS Family Centered Rounds.

Parent on Staff audits medical team rounds once a month to provide Residents PFCC feedback on Family Centered Rounds.

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The Johns Hopkins Hospital Patient and Family Advisory Councils

Annual Report 2019

Page 6 of 15

Recruited 4 new FAC advisors. Participated in the annual Proactive Risk Assessment. Hosted 2 Patient and Family Café’s: Harriet Lane Clinic and

Pediatric ED Parent Advisor participating in national advisory board for I-

PASS initiatives. Five Parent Advisors participated in the PAS Baltimore

Conference as part of a design think session on transitioning the complex medical child home from the hospital.

Complementary Therapies

Continued support of Parents Supporting Parents Program in Pediatric Cardiology and expanded to obtain mentors in oncology and the CDH population.

Parent advisor once again volunteered to organize a drive for Comfort Care Items for patients and families through JHU (approximately 300 Comfort Bags were collected)

Funded weighted blankets, cordless head phones and sensory fidgets for the Psych ED.

Funded items for sensation kids program in Pediatric ED Monthly Pizza Lunches for PICU parents and Oncology

parents, led by Parent-on-Staff

Food and Nutrition

Promoting resilience and reducing stress by: o Continued Family Meal Program. Monthly meals are

provided to all units for families. o Secured private funding to have dinner served to

pediatric patients and their families in the JHCC Atrium on Thanksgiving and Christmas (both events staffed by FAC volunteers).

o Received an innovation grant for $44,000 to launch Family Support Programming in the Children’s and Family Resource Library. Weekly Yoga, art therapy, massage and family dinner are offered. Over 900 meals served to grateful families.

o Business center with a computer, printer/copier added to the library.

Healing Environments

Advisors on the Healthy Environment Workgroup PFAC members donated time to help with Snowflake

Station in December

Patient-Centered Communication

CDH Diagnosis Binder completed Pediatric Grand Rounds held on the Transition from

Pediatrics to Adults

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The Johns Hopkins Hospital Patient and Family Advisory Councils

Annual Report 2019

Page 7 of 15

Educated several medical groups other countries, including South Africa, on Patient and Family Centered Care and how to start an FAC

Worked with Pediatric Emergency Medicine Department Leadership team on strategies to promote patient and family-centered care

Provided feedback on messaging options for OR team when providing parents with surgical updates

Provided feedback to Leadership on visitor signage, visitation and photography guidelines

Patient Education

17 Parent advisors in 29 staff education trainings across JHH

Such educational venues include: o Core 2 Adult and Pediatric Nursing o Pediatric Intern Orientation o Fuld’s Scholars Lecture o Nursing school Panels in collaboration with PIG

group o CCSC and CCSR new employee training o SON-Death & Dying panel o Medical Student technology/my chart training-First

year o 1 parent invited to attend and participate in JHU

School of Nursing Retreat Provided feedback on General Pediatric Surgical handbook

Research

Parent advisor presented on PCORI grant in oncology Parent advisor working with JHU School of Engineering on

an orthopedic boot redesign project

Pediatric Standing Goals & Initiatives

Parent Presence on Hospital Committees o Represented on 16 new committees

Enriching Faculty & Staff by Sharing Parent/Patient Stories o Added 10 new educational speaking opportunities

Diversity in Recruiting FAC Members o Added 4 new parent advisors

Family Centered Rounds (FCR) o Parent advisor conducts monthly audit of FCR o Parent advisor involved in I-PASS FCR training and implementation

Continued involvement with HR and HR initiatives/practices o Parent Advisor Interviewed candidates for the Chief Diversity Officer o Parent Advisor participated in Joint Commission Opening and Closing Leadership

sessions

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The Johns Hopkins Hospital Patient and Family Advisory Councils

Annual Report 2019

Page 8 of 15

Pediatric PFAC FY 2020 – 2022 Goals

Continue to create and increase programming, resources, and support for inpatient families.

Communication: Work to create seamless, transparent, and collaborative communication throughout JHCC to provide comprehensive patient and family centered care.

Identity opportunities to create standardization to streamline the patient experience from the beginning to the end of their inpatient stay or clinic visit.

Teen & Children’s Council

Council Responsibilities

The Teen and Children’s Council provides a way for adolescents who receive care at Johns Hopkins Children’s Center to provide insight and feedback on their hospital experiences. This provides an opportunity for the healthcare team to listen to their perspectives and incorporate this into the care that the Johns Hopkins Children’s Center provides. The Teen and Children’s Council also strives to give back to patients of the Children’s Center through fundraising and hosting special events, such as Prom.

Council Membership Membership consists of 33 members: 25 teen volunteers between the ages of 12 and 21; 8 staff members.

Council Meetings Council meets monthly on the second Tuesday of every month.

Teen & Children’s Council FY 2019 Accomplishments Domain Activities

Committee Involvement Participated in the White Coat Ceremony for JHM Medical Students

Community Participation/Engagement

Involved in Conversation about MyChart Involved in conversation about initiation of a Teen Group Involved in giving feedback for the proactive risk

assessment Gave input on possible quotes to be put on walls

throughout the children’s center Gave input to MICA on how teens want to be questioned

about their gender/identity Gave input on Shapeland incorporation to make sure we

were being teen friendly

Complementary Therapies

The money raised from the Dance Marathon supported the following initiatives:

o Funded for the Beads of Courage Program Including the addition of palliative care to the

areas that participate and are funded o Healing Arts Program

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The Johns Hopkins Hospital Patient and Family Advisory Councils

Annual Report 2019

Page 9 of 15

o Supported the purchase of a Vecta machine

Healing Environments

Planned a Dance Marathon (the first to occur in a hospital setting) named The Baltimore Boogie with 97 participants and over $40,000 raised.

Hosted a Prom for 65 adolescent patients, all of which was planned and coordinated by our TACC members.

Volunteered and participated in SnowFlake Station with our Child Life colleagues

Patient-Centered Communication

Gave input on My Chart Bedside and Proxy Access

Patient Education We continue to share our stories when appropriate

o Participated in article about Resiliency in Children’s Center yearly magazine

Teen & Children’s Council Standing Goals

Continue to host Baltimore Boogie o Execute a successful 3rd year of Baltimore Boogie and reach our goal of $25,000

(without including corporate donations) Continue to host Prom for adolescent patients of the Children’s Center enabling those

who miss their own school’s dance, due to sickness and illness, to have a sense of normalcy and a special event to celebrate!

Teen & Children’s Council FY 2020 Goals

Provide feedback as it relates to communication o How to give information o How to give patient’s their own voice o Public speaking o Explain things in a way kids understand o Communicating to patients, parents and staff

Support long term pediatric patients o Engagement in activities in the children’s center o Organize and host a quarterly event in great room for teens

Continue hosting Baltimore Boogie o Execute a successful 3rd year of Baltimore Boogie and reach our goal of $25,000

(without including corporate donations) Continue to host Prom for adolescent patients of the Children’s Center enabling those

who miss their own school’s dance, due to sickness and illness, to have a sense of normalcy and a special event to celebrate!

Develop a recruitment strategy around onboarding new members

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The Johns Hopkins Hospital Patient and Family Advisory Councils

Annual Report 2019

Page 10 of 15

Sidney Kimmel Cancer Center Council

Council Responsibilities

The Sidney Kimmel Comprehensive Cancer Center’s Patient and Family Advisory Council (PFAC) promotes a culture of patient and family centered care. The Council collaborates with patients, their caregivers and healthcare staff to provide a personal and positive experience for every patient and the caregivers who support them.

Council Membership Membership consists of 52 members: 30 patients and caregivers, 22 staff.

Council Meetings Council meets monthly on the first Thursday of the month.

Sidney Kimmel Cancer Center Council FY 2019 Accomplishments Domain Activities

Committee Involvement

Representation on the following Johns Hopkins Hospital committees/workgroups:

o JHH Cancer Committee o SKCCC Patient Experience Committee o JHH Adult PFAC o Pediatric Oncology PFAC o Pediatric Oncology PFAC Subcommittee o JHM PFAC Clinical Community o JHH PFAC Collaborative Committee o Friends of Nursing Awards Committee for 2019 o Care Redesign Program Leadership o Health Equity Steering Committee o Diversity Committee-Subcommittee on Health

Disparities/Equity o Diversity Committee-Subcommittee for Cultural,

Linguistic and Spiritual Competency o Antimicrobial Stewardship Committee o Surgical Quality Improvement Committee o Patient Messaging RFP Committee o Advance Directives/MyChart o Armstrong Institute for Patient Safety and Quality-

External Transparency Website Video o JHHS Smoking Cessation Patient Education

Committee o Cancer-Related Fatigue among Older Adults

advisory and interview groups

Community Participation/Engagement

Stepped-up recruiting efforts by adding more than a dozen new PFAC members

Held recruitment tables at: o Head and Neck Survivor Day: 5/2019 o Cancer Survivor Day: 6/2019 o Survivorship Conference: 10/2018

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The Johns Hopkins Hospital Patient and Family Advisory Councils

Annual Report 2019

Page 11 of 15

o PFAC member also a panelist at Head and Neck Day.

Assisted the Patient Relations and Patient and Family Centered Care Department in hosting an Oncology Patient and Family Café: 6/13/2019

Administrative improvements include: o Moved meeting room to Weinberg to provide better

accessibility, easier parking, and better audio/visual capability--including microphone, more meeting space and better lighting.

o Changed group name to Patient and Family Advisory Council (PFAC) to align with other councils throughout Johns Hopkins Medicine.

o Clarified process for following up on new member referrals

Healing Environments

PFAC members provided SKCCC Patient Experience Committee with ideas for Weinberg Welcome Center

PFAC members provided patient/family perspective on: o Workplace Violence signage o Fall prevention signage

Patient-Centered Communication

Held annual PFAC conversation (January 2019) with Dr. William Nelson, Director of SKCCC

Provided ideas for the JHM Innovation 2023 Strategic Plan Scheduled patient stories for all monthly meetings PFAC members provided patient/family perspective on:

o MyChart Bedside o RTLS badges and check-in at Viragh o Pharmacy medication take-back program publicity

and signage Created Facebook page for PFAC members PFAC has been involved in the development of Oncology

Mobile Apps to Improve Transparency in Quality and Effectiveness for Patients and Providers created by Dr. Simon Mathews and his team.

Provided feedback on a grant submission focused on supporting clinicians to make appropriate breast cancer screening recommendations and promoting informed decision-making, specifically in older adults.

Patient Education

Provided feedback on patient-facing education tools Presentations at PFAC meetings included a variety of

topics including: new Breast Center at Greenspring Station, Maryland reimbursement model, cancer treatment disparities, SKCCC security, new Proton Center, new Integrative Medicine Center at Sibley, Called to Care

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The Johns Hopkins Hospital Patient and Family Advisory Councils

Annual Report 2019

Page 12 of 15

program, Hopkins Virtual Advisors program, cancer-related fatigue, central line blood draws, cancer survivorship program in radiation oncology.

PFAC members evaluated SKCCC website in general, providing feedback to SKCCC Marketing

Provided feedback for the Skilled Nursing Facility (SNF) Collaborative video that was created to educate patients about a discharge to a SNF

Research

SKCCC Caregiver Project: PFAC members evaluated online caregiver resources at other cancer centers to provide feedback to SKCCC Marketing. This effort was to expand the amount of resources provided on our website.

Sidney Kimmel Cancer Center Council FY 2020 Goals

Committee Involvement: o Develop master list of SKCCC committees (with a focus on quality, safety and

service groups) in partnership with JHM leadership and the FY2020 Shared PFCC initiative

o Recruit PFAC members to serve on SKCCC committees; matching their experience at SKCCC and skills and interests with mission of the committee as much as possible

o Create a committee of PFAC members to visit with SKCCC staff and medical/nursing schools to present about the PFAC, invite them to suggest new members and projects

Continue PFAC recruiting efforts with attention to diversity Work to develop community relationships:

o Investigate partnership with Community Advisory Boards o Partner with the Patient Relations and Patient- and Family- Centered Care

Department for another Oncology Patient and Family Café to gather feedback from patients/caregivers outside of the PFAC

Work to increase support for caregivers: o Continue to look at ways of getting information on resources out to caregivers o Find out how the PFAC can offer more support/publicity to SKCCC Caregiver Café

Look for opportunities in areas of interest identified by PFAC members such as: navigational support for patients and caregivers, integrative medicine, psycho-social support, MyChart, needs of younger patients

Ambulatory PFAC

Council Responsibilities

The primary focus of the Ambulatory PFAC is centered on the four components of an outpatient visit (pre-visit/scheduling, arrival/check-in, visit/treatment/check-out, post visit follow). The

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The Johns Hopkins Hospital Patient and Family Advisory Councils

Annual Report 2019

Page 13 of 15

council’s goal is to create an ideal patient experience at the Johns Hopkins Outpatient Center.

Council Membership Membership consists of 18 members, which includes 10 Johns Hopkins staff and 8 patient volunteers.

Council Meetings Council meets monthly on the third Thursday of the month.

Ambulatory PFAC FY 2019 Accomplishments Domain Activities

Community Participation/Engagement

A PFAC member attended the Storytelling Workshop on June 8, 2019. The purpose was to help participants craft their own patient/caregiver story and feel comfortable telling it.

Healing Environments

Advised Service Excellence on no wrist banding in JHOC which has caused the building to stop providing wristbands to visitors

Submitted a work order to replace opaque glass panels in JHOC revolving door

Advised on elevator floor voice over system Advised on Wayfinding with Floor Directors at each elevator

bank Advised Service Excellence on greeter on JHOC 1st floor

Patient-Centered Communication

Advised on Televox appointment reminder calls Advised on SmartSource letter to create a cleaner version

of the letter Completed a Gap Analysis on making the registration

processed more harmonized Aligned our improvement initiatives with the JHM PFCC

Strategic Goals

Patient education Advised on Johns Hopkins Drug Takeback Day

signage/communication and locations of collection sites

Ambulatory PFAC FY 2020 Goals

Define wait time standards Ancillary tests prior to the patient appointment Medication costs to patients

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The Johns Hopkins Hospital Patient and Family Advisory Councils

Annual Report 2019

Page 14 of 15

Emergency PFCAC

Council Responsibilities

The Johns Hopkins Emergency Department Patient, Family, and Community Advisory Councill – in partnership with the community, patients, caregivers, departmental leadership, clinicians, faculty, and staff – will provide the voice of the patient when making operational and day to day decisions. The PFCAC aims to provide the highest quality patient- and family-centered care to the visitors of our Emergency Department.

Council Membership Membership consists of 22 people: 8 patient, family, or community members and 14 staff members

Council Meetings Council meets monthly on the second Wednesday of the month.

Emergency PFCAC FY 2019 Accomplishments

Domain Activities Committee Involvement A PFAC member participated in the December Service Star

Breakfast by reading nomination letters and presenting the Service Star awards to the recipient.

Representation on the following Johns Hopkins committees/workgroups:

o JHM Patient and Family Education PFAC o JHM Renal Patient Education Workgroup o Patients Aligned with Research Teams, Nurses and

ER Providers to Enhance Diagnosis (PARTNERED/PCORI Grant)

Community Participation/Engagement

Two PFAC members – one staff and one volunteer – attended the 2018 Sisters Together and Reaching Community Health Festival

Food and Nutrition

The PFAC sampled and voted on three meals that will serve as frozen options patients in the ED during nightshift hours.

Healing Environments

Provided suggestions on the ED upfront redesign i.e. panel colors and designs, traffic flow from the waiting room to the back area, the furniture, etc.

Provided feedback on Security Department plasma signage. The security advertisement is to let visitors know that security escorts are available.

PFAC toured the ED and was able to visualize areas that will be under construction for the upfront redesign; educational for the group to become familiar with the area the PFAC serves.

Patient-Centered Communication

Provided feedback on a PFAC plasma screen image used for recruitment efforts

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The Johns Hopkins Hospital Patient and Family Advisory Councils

Annual Report 2019

Page 15 of 15

Collaboratively worked to provide edits and feedback on triage nursing scripting that will be used for provider to patient communication

Gave suggestions for handouts given to low-acuity patients upon discharge: “Where should you go for medical care?”

Provided feedback for the JHM Innovation 2023 Strategic Plan

PFAC member presented on the importance of patient- and family- centered care and PFACs to Zayed 12E (Neurosciences) CUSP team.

Patient Education

Provided Tom Bauer with feedback on his Patient and Family Centered Education and Engagement teaching plans.

Research PFAC members provided feedback on overdose response

simulations that will take place in the ED waiting room.

Emergency PFCAC FY 2020 Goals

Form an Executive Committee for our PFAC Continue to address the needs of patient and families that come to the ED Continue to recruit new members for the council via invitations based on ED interactions

o Make the monthly meeting accessible by web and/or phone in an effort to make joining the PFAC easier for volunteers.

Participate in at least one event outside of the hospital and within our immediate community.

Partner with ED physicians on compassionate training for new residents Continue to be involved with the ED upfront redesign