global genes patient advocacy summit: the power of information in the hands of the patient
DESCRIPTION
Information is power, and when you're managing a rare or chronic health condition, having access to all of your health information in a way that is easy to understand and share becomes critical. In this presentation, we cover: • The reasons why you want to have access to your health information • Using the Power of HIPAA to get copies of your medical records • How technology has advanced (and continues to advance) making it easier to access and share records • The high-tech and high-touch approach to connecting people and data • The results of connecting people and data to redefine the role of the patient and improve the healthcare experience for everyone.TRANSCRIPT
Connecting People, Connecting Data
Patients Need to be the Center of Care
Healthcare Data is Fragmented
Patient Portals are Limited
• Data is fragmented among various health systems that don’t communicate with each other
• They are not family or collaboration-focused• They’re only as good as what is in them – it’s
typically just pieces of a health record• People aren’t using them!
Inefficient Visits & Unnecessary Tests
• 70% of referral/specialist appointments lack any information from the referring provider
• 80% of diagnoses can be made with an accurate health story
• People lack effective ways to share “between visit” data from vitals trackers and wearable devices
Healthcare Can Be Better
Connecting Patients with Data
Getting Medical Records
Because of HIPAA, you have a right to get a copy of your medical records.
• Who can request records?• How long will it take?• What will it cost?• What do I do if my provider doesn’t comply?
You got your medical records...now what?
Organized Records
Paper Records & Binders
1st Generation Personal Health Records
Patient Portals
Mobile Personal Health Record
mHealth Apps
Getting to Connected People & Data
Better Visits, Better Care
Visits become more meaningful when people and data are connected
Connecting People, Connecting Data
The CareSync mission is to connect people and data to redefine the role of the patient and to
create a better healthcare experience for everyone.
CareSync: What We Do
CareSync: How We Do It
Health Timeline
Each past medical visit is summarized into a Health Timeline that is filtered by health condition, medication, date range, allergies, provider, and more.
It’s easily shared with family, providers, researchers in a meaningful format, directly from the app.
CareSync Pro
CareSync Pro is the communication layer that connects organizations with the people they serve.
The organization gets dashboards to monitor a patient population, reports to track trends, and the ability to equip members with tools and services to manage care.
CareSync Pro for Rare Disease
Why this matters:• Track patient population• Help coordinate care• Aggregate de-identified
data for clinical and pharma research and clinical registries
• Communicate with members
• Connect people and data to improve medical visits
CareSync: Proven Results
Empowering Patients Improves Outcomes and Creates a Better Healthcare Experience
for Everyone
Health Timeline
PRIVATE & CONFIDENTIAL