Outline

• Headline findings from the Infant Death Audit

• Schools work

Background

Features of Local Deaths: MothersNorth Kirklees South

Age < 18 yrs 4% 3%

> 35 yrs 13% 21%

SC 4-6 54% 54%

Ethnicity White 45% 50%

Pakistani 42% 31%

Previous Pregnancy – not A+W White 57% 55%

Pakistani 76% 46%

Screening Genetic White 70% 48%

Pakistani 87% 100%

Non Genetic White 85% 100%

Pakistani 100% 86%

Consanguinity Pakistani 74% 67%

Features of Local Deaths: Mothers 2

North Kirklees South

Smoking at Booking White 55% 36%

Baby born prem 34% -

Baby born at term 15% -

Alcohol at Booking White 21% 24%

BMI Obese White 17% *

Pakistani 32% *

At least Overweight White 50% 26%

Pakistani 53% 69%

Diabetes 10% 7%

Delivery by emergency section 37% 30%

Features of Local Deaths: Infants

North Kirklees South

Boys 62% 51%

Premature Birth (<37/40) White 65% 58%

Pakistani 42% 53%

Multiple Births White 16% 18%

Pakistani 6% 3%

Cause of death

Prematurity White 43%

Pakistani 25%

Congenital abnormality White 25%

Pakistani 52%

FH cong abn + cong abn cause of death 76% 52%

Deaths due to congenital abnormality

• Family history of congenital abnormality

– Assoc with cong abn as cause of infant deaths

– + consanguinity often linked, esp.

intergenerational

• Consanguinity 3 in 4 Pakistanis

– Congenital abnormality - cause of death in 59%

• In Pakistanis, even when consanguinity

absent, congenital abnormalities greater %

cause of death than White

All Kirk

lees

Work so far

• ESOL Classes

• Training for Professionals/community leaders

• Outreach work with local community leaders

• Awareness raising with

public/community/voluntary groups

• Auntie Pam’s signposting service

• Work with local schools

The commissioning cycle

Year 9-10

You and Your Genes

• Lesson 6: Predicting inheritance

• Lesson 7: Decision making – genetic testing

of fetuses

• Lesson 8: Decision making – more genetic

testing

• Lesson 9: Using genetic testing

What are dominant and recessive

genes?

Recessive Inheritance

Moving the Lesson away from the

local area

Giving the Lesson a local context

Outcomes

• Group discussion to talk about who should

talk about this issue and the role of genetic

counselling/testing

• Prematurity main cause for white babies

• Genetic abnormality main cause in Pakistani

babies

• Most genetic disorders are often rare

• To promote awareness of genetic

screening/counselling

What Next?

Thank you