FY2018 Q1 GOALPROGRESS REPORT FY2016–2018 STRATEGIC PLAN

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FY18 Q1

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FY18 Target

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RelapsingMS ProgressiveMS Wellness/Symptoms

RESEARCH ANSWERS QUESTIONS TO ADDRESS UNMET NEEDS

Highlights & Notations• FDA approved two new generic forms of Copaxone (glatiramer acetate), offering the potential to increase

affordability of MS therapies

• Society co-funded phase 2 trial of ibudilast suggests it reduces brain atrophy in progressive MS

• Barancik Prize for Innovation in MS Research awarded to Cambridge University scientist Robin Franklin, PhD for his groundbreaking work in myelin repair

• Updated McDonald Criteria to speed MS diagnosis and reduce misdiagnosis

• FDA-granted Gilenya (fingolimod) “Breakthrough Therapy Designation” for pediatric MS

• Study linked healthier diets/lifestyles with less disability in adults with MS, and another study of kids with MS linked eating more fatty foods with higher relapse risk and eating more vegetables to lower relapse risk

Research Investment

Q1 Progress

$18 MILLIONActive Clinical Trials

FY18 target: $34 millionThis represents funds distributed in 2018; many grants are funded for multi-years. We have commitments through 2025.

CARLOSDIAGNOSED IN 2001

GOAL I: People have effective treatment choices and solutions to the challenges of living with MS

It’s been amazing for me to see the research community focus on progressive MS – ways to stop it and reverse the damage."– Douglas Landsman, MS Connection Blog

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FY18 Q1

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GOAL I: People have effective treatment choices and solutions to the challenges of living with MS

The National MS Society has been instrumental in providing educational resources, helping our patients navigate an ever changing landscape of symptoms management, changing therapy choices, and psychosocial issues impacting their quality of life. I ask my patients to turn to the National MS Society for solid, scientifically sound information to compliment discussions in the clinic."

– Virginia Simnad, MD, Partner in MS Care, MS Center at Evergreen Health3

ADVOCACY RESULTS IN NEW AND EXPANDED RESOURCESQ1 Progress

64,000 308Exceeding FY18 target

Professional Education Programs

ARE YOU AN MS ACTIVIST?

VISIT NATIONALMSSOCIETY.ORG

Join the MS Activist Network to receive updates and action opportunities on federal, state and local policy affecting the MS community.

Federal Programs• Preserved the MS Research Program within the Congressionally Directed

Medical Research Programs, which has funded over $40 million in MS research to date

• Succeeded in preserving and temporarily expanding the medical expense deduction on federal taxes for people with high health costs

• Successfully advocated for passage of the bipartisan RAISE Family Caregivers Act, which will establish a national strategy to recognize and better support family caregivers

HEALTHCARE MEETS INDIVIDUAL NEEDSQ1 Progress

6792277%

89%

83%

1,908

Healthcare Providers

Engaged MS Activists District Activist Leaders

Healthcare Provider Educational Events

Referrals

received in-person outreach and provided Plan to apply something they learned to their practice

Target: 75%

Report increased knowledge about MSTarget: 75%

Reported improved attitude about caring for people with MSTarget: 75%

to the Society

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GOAL II: People affected by MS connect to the individuals, information and resources they need to move their lives forward

PEOPLE AFFECTED BY MS ARE CONNECTING TO THE SOCIETY FOR WHAT THEY NEED, WHEN THEY NEED IT

NICOLE, DIAGNOSED IN 1995; MELANIE, DIAGNOSED IN 1997; AUTUMN, DIAGNOSED IN 2013

MS Navigator

PEOPLE FEEL BETTER EQUIPPED TO MOVE THEIR LIVES FORWARDQ1 Progress

Agree / Somewhat agree

Disagree / Somewhat disagree

Neutral

Target: 75% agree / somewhat agree

Did you or do you plan to take action based on the information we provided?

Yes

No

Other

Target: 90% yes

I have a place for support where I can find solutions.

Top 5 Actions Taken / Planned

82%

5% 13%

Didyouordoyouplan totakeactionbasedonthe informationweprovided?

Yes

No

Other

12%7%

81%79%

12% 9%

Ihaveaplaceforsupport whereIcanfindsolutions.

Agree / Somewhat Agree

Neutral

Disagree / Somewhat Disagree

6%

11%

83%

4Share information with someone affected by MS

1Contact a referral

5Connect to others with similar experiences

3Share information with a family member or friend

2Make a plan to change a particular situation

Program Participants

73%Plan to make a changeTarget: 85%

*Includes Live Fully Live Well, Everyday Matters, Impact Series, General Education and General Wellness in-person programs

91%Made new connectionsTarget: 85%

86%Feel better able to cope with the challenges of MSTarget: 85%

PEOPLE FIND THE CONNECTIONS THEY NEED TO LIVE THEIR BEST LIVES

Q1 Progress

MSconnection.org Community Members

FY17 year end: 48,880Q1: 49,428

FY18 target: 53,768

I’m fighting as hard as I can to live on my own.

Whatever problems I had, Jeta made them her problems. She fought right along with me.”

– Mary Beth K., regarding MS Navigator

I'm excited about creating this nationwide network of self-help group leaders. I'm able to go beyond the boundaries of my chapter to connect with and learn from other self-help group leaders across the country."

– Mike, Self-Help Group Leader in New York

4,267 77People participated in

Community Programs*

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Revenue Expenses

$38.4

$52.7 $51

$40.2

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Millions

BikeMS WalkMS* IndividualGiving***

Events** Bequests CorporateSponsorship

GOAL III: Individuals and organizations are mobilized to generate resources that accelerate progress and maximize impact

WE BUILD CAPACITY AND EFFECTIVELY GENERATE AND DEPLOY RESOURCESQ1 Progress

BIKE MS TEAM CARMICHAEL TRAINING SYSTEMS

Revenue Sources

Revenue & Expenses

* Includes Challenge Walk MS ** Includes leadership events, MuckFest MS, Finish MS, DIY Fundraising MS and other events*** Includes Direct Marketing

Highlights & Notations• Our largest Fall Bike MS rides — New York City, San Antonio, San Diego

and North Florida — met or exceeded budget

• Our largest ride, Houston to Austin is tracking behind FY17 for revenue, registrations, largely due to the change in the operational plan launch timing and recruitment strategies — trends in recruitment and fundraising are improving; corporate team recruitment has also been impacted by hurricane recovery. Our second largest ride, City to Shore is tracking up in both revenue and registrations.

• Walk MS 6+ team recruitment is down largely due to the change in the operational plan launch timing and recruitment strategies — an outreach effort is underway, focusing on all FY16 and FY17 team captains who have not yet registered

• Individual Giving had a groundbreaking quarter securing two multi-million gifts — $3 million dollar gift from Jim and Kathleen Skinner to fund MS Navigator and $1.5 million gift from Richard and Roz Slifka to fund programs and research

• Dinner of Champions in Los Angeles raised $1 million, 27% over budget

• Sanofi Genzyme has committed $750,000 ($150,000 increase over FY17), Genentech $550,000 (flat to FY17), AbbVie is not returning ($250,000 loss); pharmaceutical company sponsorship is down $100K to date

649

499

1,416

Bike MS Teams with 10+ Members

Walk MS Teams with 6+ Members

$1,000+ Donors

Q1 target: 696FY18 target: 1,503

Q1 target: 733FY18 target: 11,276

Q1 target: 1,226FY18 target: 3,029

Q1 Budget Q1 Actuals

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Q1 Year-To-Date Budget Q1 Year-To-Date Actuals

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WE HAVE ENDURING RELATIONSHIPS THAT EXCEED EXPECTATIONS

STAFF AND VOLUNTEERS ARE SUPPORTED SO THEY ARE MOBILIZED, FULLY ENGAGED, POWERFUL AND EFFECTIVE LEADERS

Highlights & Notations• The Washington Post interviewed MS activist

Diane Whitcraft on the cost of MS medication for people on Medicare

• The LA Times interviewed Bari Talente, Society Executive Vice President, Advocacy and MS activist Steven Trattner on how elimination of the medical expense tax deduction would have impacted people with MS

• USA Today recognized FDA approval of the first treatment for primary progressive MS as one of the top 10 medical advancements of 2017

Q1 Progress

Chapters Chapters35 1232

Social MediaEngagement by ChannelFollowers Total Engagement

Media Mentions

Total Mentions of the Society7,200 in MS-related stories

Community Engagement Committees in

Community Councils in

14% 918,398 followers

Engagement = actions taken in response to Society posts (e.g. likes, comments, retweets), divided by total number of social media followers

Facebook

137,489 followers 4% Twitter

43,798 follower

Q1 target: 36 Chapters FY18 target: 56 Community Councils in 36 Chapters

35% Instagram

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GOAL III: Individuals and organizations are mobilized to generate resources that accelerate progress and maximize impact

Removing the itemized medical deductions would spell financial disaster for me."– Stephen Trattner, LA Times article about the medical expense tax deduction 6

MS Organization Media Mentions

Target: 80%

78%

9%

5% 3% 3%

2%

National MS Society

MS Foundation

Consortium of MS Centers

MS Association of America

MS International Federation

Other MS Organizations

76%

7%

7%

6%

2% 2%

National MS Society

Consortium of MS Centers

MS Association of America

MS Foundation

MS International Federation

Other MS Organizations

76%

7%

7%6%

2% 2%

FY18 target: 1,259,739

FY17 year end: 1,095,426Q1: 1,099,685

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30%

14%

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