front cover gr dec 17 .qxp cvr ideas infant 13/12/2017 11 ... · of the nursing team to specialise...
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infantgrapevine
D E C E M B E R 2 0 1 7
Unit news: St Peter’s goes purple forWorld Prematurity Day Page 8-10
Conference report: NNA celebrates 40 years of caringfor sick newborn infantsPages 12-14
Perinatal nurse receivestop nursing award Forget Me Not Children’s Hospice’s perinatal teamleader Emma Bleasdale has been named ‘Nurse ofthe year’ in the Nursing Times Awards 2017.The award was announced at a ceremony at theGrosvenor House Hotel, London, on 2 November.More than 137 organisations, primarily largehospital trusts, competed for awards across 21categories.
Emma joined Forget Me Not, based inHuddersfield, in 2013 and was the first memberof the nursing team to specialise in perinatal care.
She leads a team of seven perinatal nursing andcare staff, including Europe’s first hospice-basedmidwife, which is in turn part of a broader teamof 50 nurses, therapists and care assistants at thechildren’s hospice.
Nurse of the year Emma Bleasdale (centre).
Staff from the special care baby unit at Glan Clwyd Hospital, including Healthcare Support WorkerJulia Davies (holding iPad) who set up the new group.
A support network to help families of children on neonatal units in North Wales has been
launched by neonatal nurses.
Neomates North Wales is a new group for parents of babies receiving care in one of the
region’s three neonatal units.
The support network, which is open to all parents of children currently receiving care or
who have previously had care on a unit, will initially launch as a Facebook group.
Group meetings will follow in 2018 once the new SuRNICC (Sub Regional Neonatal
Intensive Care Centre) unit opens at Glan Clwyd Hospital, Bodelwyddan.
The group has been inspired by the work of neonatal unit staff at Arrowe Park Hospital
on the Wirral, which set up the original Neomates group in 2013.
The Facebook page will be administered by neonatal staff from Wrexham Maelor, Ysbyty
Gwynedd and Glan Clwyd Hospital, and will offer a private space for parents and families to
share their experiences of a child receiving care on a neonatal unit. It will also contain
information on how to seek medical care if needed.
North Wales neonatal nurses launch newsupport network
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UKI/201/17-0041 (UK) October 2017 This material is intended for Healthcare Professionals only.
Baxter Healthcare Ltd:
Wallingford Road, Compton, Newbury, Berkshire RG20 7QW.
Tel: 0800 0289 881 Fax: 08708 507075 email: [email protected]
Adverse events should be reported. Reporting forms and information can be found at www.mhra.gov.uk/yellowcard.
Any adverse events relating to Baxter products can also be reported direct to Baxter Pharmacovigilance
on 01635 206360, or by email to [email protected].
NUMETA G13%E PRETERM
Innovative parenteral nutrition that has them covered
NUMETA G13%E PRETERM is the first and only triple-chamber bag system
designed and licensed specifically for parenteral nutrition in preterm neonates.
It provides a solution that is:1
Supportive1,2 Ready1
Flexible1Secure3-7
NUMETA RANGE PRESCRIBING INFORMATION – UKName and composition: Numeta G13% Preterm, Numeta G16%E , Numeta G19%E.Active Substance: Reconstituted triple chamber bag contains:
Active Ingredients
Numeta G13% Preterm
Numeta G16%
Numeta G19%
Amino Acid ChamberAlanine 0.75g 1.03g 1.83gArginine 0.78g 1.08g 1.92gAspartic acid 0.56g 0.77g 1.37gCysteine 0.18g 0.24g 0.43gGlutamic acid 0.93g 1.29g 2.29gGlycine 0.37g 0.51g 0.91gHistidine 0.35g 0.49g 0.87gIsoleucine 0.62g 0.86g 1.53gLeucine 0.93g 1.29g 2.29gLysine monohydrate (equivalent to Lysine)
1.15g (1.03g)
1.59g (1.42g)
2.82g (2.51g)
Methionine 0.22g 0.31g 0.55gOrnithine hydrochloride (equivalent to ornithine)
0.30g (0.23g)
0.41g (0.32g)
0.73g (0.57g)
Phenylalanine 0.39g 0.54g 0.96gProline 0.28g 0.39g 0.69gSerine 0.37g 0.51g 0.91gTaurine 0.06g 0.08g 0.14gThreonine 0.35g 0.48g 0.85gTryptophan 0.19g 0.26g 0.46gTyrosine 0.07g 0.10g 0.18gValine 0.71g 0.98g 1.74gSodium chloride 0g 0.30g 1.79gPotassium acetate 0.61g 1.12g 3.14gCalcium chloride dihydrate 0.55g 0.46g 0.56gMagnesium acetate tetrahydrate 0.10g 0.33g 0.55gSodium glycerophosphate hydrated 0.98g 0.98g 2.21gGlucose ChamberGlucose Anhydrous (equivalent to glucose monohydrate)
44.00g (40.00g)
85.25g (77.50g)
210.65g (191.50g)
Lipid ChamberRefined olive oil (~80%) + refined soya oil (~20%) 7.5g 15.5g 28.1g
If lipids not required, bag design allows activation of peel seals between amino acids/electrolytes and glucose chambers only. Indications: Parenteral Nutrition when oral or enteral nutrition is not possible, insufficient or contraindicated: Numeta: G13%E Preterm – preterm newborn infants, G16%E - term newborn infants and children up to 2years, G19%E – Children older than 2 years and adolescents 16-18 years. Dosage and Route: Dependant on clinical condition and metabolism. Continue for as long as clinically required. Administer via central vein or dilute with sufficient water for injection for peripheral infusion. Adjust administration rate gradually, according to formulation used, dosage, daily volume intake and duration of infusion. Side effects: see Summary of Product Characteristics (SPC) for detail. Common: Hypophosphataemia, Hyperglycaemia, Hypercalcaemia, Hypertriglyceridaemia, and Hyponatraemia. Uncommon: Pulmonary vascular precipitates, cholestasis, Hyperlipidaemia and fat overload syndrome (reversible when lipid infusion stopped). Precautions: Stop infusion immediately if signs or symptoms of allergic reaction develop (fever, sweating, shivering, headache, skin rashes or dyspnoea). Ceftriaxone must not be mixed or administered with intravenous calcium-containing solutions, including Numeta. In patients older than 28 days ceftriaxone and calcium-containing solutions may be administered sequentially. See SPC for further guidance. Pulmonary vascular precipitates causing pulmonary vascular embolism and respiratory distress have been reported in patients receiving parenteral nutrition. Excessive addition of calcium and phosphate increases risk of formation of calcium phosphate precipitates. The solution, infusion set and catheter should periodically be checked for precipitates. If there are signs of respiratory distress stop infusion and initiate medical evaluation. Refeeding syndrome (characterised by shift in intracellular electrolytes), thiamine deficiency and fluid retention may also develop. Correct fluid, electrolyte and metabolic disorders before use. Lipids, vitamins, electrolytes and trace elements should be administered as required. Follow aseptic procedures for catheter placement, maintenance and nutritional formula preparation since patients requiring parenteral nutrition are often predisposed to infectious complications. Check compatibility of additions – risk of occlusion from precipitate formation. With additions the final osmolarity must be measured before administration via peripheral vein to avoid vein irritation. Routinely monitor water and electrolyte balance (particularly magnesium, as signs of hypermagnesaemia may not be detected), serum osmolarity, triglycerides, acid/base balance, blood glucose, hepatic and renal function, blood count and coagulation parameters throughout treatment. Adjust administration to meet clinical needs in unstable conditions (e.g. following severe post-traumatic conditions). Caution in pulmonary oedema, heart failure, hepatic insufficiency, renal insufficiency and severe blood coagulation disorders. Monitor for endocrine and metabolic complications. Fat overload syndrome may develop. Contraindications: As activated 2 chamber bag - hypersensitivity to egg, soy or peanut proteins, or any active substances, excipients, or components of the container; congenital abnormality of amino acid metabolism; Pathologically elevated plasma concentrations of sodium, potassium, magnesium, calcium and/or phosphorus; severe hyperglycaemia. As above for the activated 3 chamber bag (with lipids) also, severe hyperlipidaemia or severe disorders of lipid metabolism characterized by hypertriglyceridemia. G13%E and G16%E:
concomitant treatment with ceftriaxone in preterm newborn and in term newborn infants (≤28 days of age), even if separate infusion lines are used (risk of fatal ceftriaxone calcium salt precipitation in the neonate´s bloodstream). Interactions: Do not administer simultaneously with blood through same infusion tubing due to risk of pseudoagglutination. Do not mix or co-administer with ceftriaxone, take special care with coumarins & their derivatives, potassium sparing diruretics, ACE Inhibitors, angiotensin II receptor antagonists, tacrolimus and cyclosporine. Lipids may interfere with certain laboratory tests if the sample is taken before they have cleared. Overdose: In the event of incorrect administration, overdose and/or infusion rate higher than recommended, signs of hypervolaemia and acidosis, hyperglycaemia, glycosuria and a hyperosmolar syndrome may occur. Nausea, vomiting, shivering and electrolyte disturbances may develop. Reduced /limited ability to metabolize lipids may result in fat overload syndrome. Stop infusion immediately. Emergency procedures should be general supportive measures, particular attention to respiratory and cardiovascular systems. Legal Category: POM Marketing Authorisation Holder: Baxter Healthcare Limited, Caxton Way, Thetford, Norfolk IP24 3SE
Product NameMarketing Authorisation Code
Basic NHS Price
Numeta G13%E Preterm
PL 00116/0659 FDB9601 £62.08
Numeta G16%E PL 00116/0648 FDB9612 £71.70
Numeta G19%E PL 00116/0649 FDB9623 £107.55
Date of preparation: July 2017
References: 1. NUMETA G13E PRETERM Summary of Product Characteristics. July 2016. 2. British Association of Perinatal Medicine. The Provision of Parenteral Nutrition within Neonatal Services – A Framework for Practice. April 2016. 3. Crill CM, et al. Am J Health Syst Pharm 2010;67:914–918. 4. Ybarra JV, et al. JPEN J Parenter Enteral Nutr 2011;35:391–394. 5. Zingg W, et al. Nutrients 2012;4:1490–1503. 6. Rigo J, et al. J Pediatr Gastroenterol Nutr 2012;54:210–217. 7. Simmer K, et al. Nutrients 2013;5:1058–1070.
16982 - 10443 NUMETA A4 AD AW.indd 1 06/12/2017 12:27
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DECEMBER 2017 3
IN THE NEWS
infant grapevine
Season’s Greetings!
This issue is not only the last issue of 2017,
it is also the last printed issue of Infant
Grapevine to be produced. The new year
will see a new look for us as we upgrade to
an online format. You can sign up for our
new, free email newsletter on our website, if
you haven’t already!
On behalf of the whole team here at
Infant, I would like to extend warm wishes
to all of our readers this festive season and
wish you all the very best for a happy 2018.
Katherine Robinson,
Assistant Editor
December 2017
© Stansted News Ltd 2017
All rights reserved. No part of this publication may bereproduced or transmitted in any form, by any means,electronic or mechanical, including photocopying, recording orany information storage or retrieval system, without permissionin writing from the publisher.
ContactsEditor
Lisa Leonard01279 714508
Assistant EditorKatherine Robinson
01279 [email protected]
Display and recruitment advertising Bradley Wright01279 714521
DesignerKate Woods
ProductionIan Christmas
Printed bySterling, Kettering
Publishing DirectorDavid Wright
Published byStansted News Ltd, 134 South StreetBishop’s Stortford, Herts CM23 3BQ
Tel: +44 (0)1279 714511Fax: +44 (0)1279 [email protected]
Infant Grapevine believes that whenever possible, breast-feeding is always best for babies, but that mothers are entitledto choice together with information and support regardingalternative methods of feeding.
Medela UK’s second National Breastfeeding Symposium took place in Manchester in
October and the team was out in force to make this a special educational opportunity.
Delegates heard from four world-class speakers – Paula Meier (USA), Kathy Dewhurst (UK),
Annie Aloysius (UK) and Donna Geddes (Australia) – who provided insightful and thought-
provoking presentations of their current research, ranging from the value of human milk in
the NICU to the dynamicity of human milk composition and what this means to the infant.
The event was an ideal platform for those with a common interest in breastfeeding and
lactation to meet and share thoughts and experiences to stimulate new ideas and future
research activities.
There will be a full write-up of the event in the January 2018 issue of Infant journal.
Medela breastfeeding symposium providesinsight into research
The Infant team is sad to report that this will be the last printed Grapevine that we will be
producing, but delighted to announce that the title has made way for a faster and expanded
news service – still available free of charge – by email in 2018.
This upgrade to a digital format will enable us to report news and events in real-time via our
new-look website and social media channels, in addition to sending a free monthly newsletter to
all subscribers.
Please do continue to send us your news as we love to hear from you. Be sure to subscribe for
the free email newsletter on our website www.infantjournal.co.uk and follow us on Facebook at
www.facebook.com/infantjournal.
Infant Grapevine has been published bi-monthly since 2005 and we look forward to welcoming
you to our email newsletter in the new year. Infant journal will remain unaffected by these
changes.
We are bringing you faster news in 2018
The government has announced a maternity
strategy to reduce the number of stillbirths
as part of plans to make the NHS the safest
place in the world to give birth.
Families who suffer stillbirth or life-
changing injuries to their babies will be
offered an independent investigation to find
out what went wrong and why, and full-
term stillbirths will be investigated by
coroners.
Under the plans, hundreds of stillbirth,
early neonatal death and severe brain injury
cases each year will be referred to the
Healthcare Safety Investigation Branch, the
new NHS safety investigator led by experts.
This will standardise investigations of cases
so that the NHS learns as quickly as possible
from what went wrong and shares the
learning to prevent future tragedies.
The government is also bringing forward
from 2030 to 2025 the ambition to halve
rates of stillbirths, neonatal and maternal
deaths, and brain injuries occurring during or
soon after birth.
New maternity strategy aims to reduce thenumber of stillbirths
Perfect hosts: the Medela UK team.
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4 DECEMBER 2017
IN THE NEWS
infant grapevine
CYRIL provides information on babies’ brainfunction at the cotside A research team at University College London called MetaboLight and led by Dr Ilias Tachtsidis
has designed CYRIL, a compact broadband near-infrared spectroscopy system, to monitor brain
tissue physiology non-invasively in newborn babies.
A portable system small enough for use in the NICU and A&E rooms, CYRIL is currently being
used in preclinical studies looking for future neuroprotective therapies and in clinical studies in
the neonatal unit in University College London Hospital.
During birth, disruptions in blood and oxygen supply to baby’s brain can stop it from working
properly. This can lead to an acute injury to the developing brain and could potentially lead to
significant disability or death.
CYRIL offers a safe, non-invasive way of shining light through the brain tissue of a newborn
baby and detecting its function with a sensitive digital camera. This reveals detailed information
about oxygen and metabolism levels, providing vital and potentially life-saving information for
doctors.
Bliss offers research funding Bliss has launched a fund for UKneonatal research focused on the mosteffective ways of judging whether apremature or sick baby is feeling pain,the impact of developmental caresupport on neurodevelopmentaloutcomes, and emotional or otherpractical support to improve attachmentand bonding of premature or sick babiesand their families.
Bliss has worked closely with a panelof parents, health professionals and anadult who was born prematurely, as wellas experts in the field, to identify thesekey research questions.
For more information, visitbliss.org.uk/research-funding
Atain e-learning programmesets out ways to reduceavoidable harmAn e-learning programme has beenlaunched by the Atain (avoiding termadmissions into neonatal units) initiativeto help healthcare professionals improveoutcomes for babies, mothers andfamilies. Atain aims to reduce avoidablecauses of harm that can lead to infantsborn at term (ie ≥37 weeks’ gestation)being admitted to a neonatal unit. The learning modules, developed by e-Learning for Healthcare, NHSImprovement and a range of experts,focus on four clinical areas: respiratoryconditions, hypoglycaemia, jaundice andasphyxia (perinatal hypoxia-ischaemia).An additional module raises awarenessof the importance of keeping motherand baby together. For information visit www.e-lfh.org.uk/programmes/avoiding-term-admissions-into-neonatal-units
PATH urges equal access tobreast milk in policy briefInternational health organisation PATHhas launched the policy brief Ensuringequitable access to human milk for allinfants – a comprehensive approach tonewborn care in partnership with theGlobal Breastfeeding Collective.
It highlights the need to increaseawareness, establish policies and takeaction to ensure equitable access tohuman milk for those sick andvulnerable newborns at greatest risk ofillness and death.
The document can be accessed at www.healthynewbornnetwork.org/hnn-content/uploads/EquitableAccesstoHumanMilk_PolicyBrief_16Nov17-1.pdf
In the NICU, medical engineers Isabel de Roever and Dr Gemma Bale work with neonatologist Dr Subha Mitra (right) to monitor a baby with the optical instrument CYRIL.
Pictured here on the left, CYRIL is an important addition atUCLH that allows doctors to directly measure changes inbrain activity in a simple, non-invasive way.
Medical physicist Dr Paola Pintiengages with the public on theMetaboLight stand at NorwichScience Festival.
We want your newsHave you got news to share? Contact Katherine Robinson,
Assistant Editor. Email [email protected] or call 01279 714514
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DECEMBER 2017 5
IN THE NEWS
infant grapevine
According to the newly-published third Perinatal Confidential Enquiry report issued by the
MBRRACE-UK collaboration, stillbirth and neonatal deaths have more than halved in the UK
from 0.62 to 0.28 per 1,000 total births since 1993, representing a fall of around 220
intrapartum deaths per year.
Led by the National Perinatal Epidemiology Unit at the University of Oxford, the report
looked at the quality of care for stillbirths and neonatal
deaths of babies born at term, who were alive at the onset of
labour and who were not affected by a major congenital
anomaly.
The analysis aimed to identify potentially avoidable
failures of care during labour, birth and any resuscitation,
which may have led to the death.
A key finding was that in over a quarter of the cases
capacity issues were a problem. The majority of staffing and
capacity problems were related to the delivery suite with
the remaining issues relating to neonatal care provision.
Heavy workload contributed to delays in induction in one
third of women being induced.
In 80% of the stillbirths and neonatal deaths analysed,
improvements in care were identified that may have made a difference to the outcome
of the baby.
Another finding was that overall the quality of bereavement care was variable, with a lack of
joint midwifery, obstetric and neonatal input.
The full report is available at www.npeu.ox.ac.uk/mbrrace-uk/reports
MBRRACE-UK publishes perinatal report
Articles comingup in the
January 2018issue of Infant
journal
Don’t miss out!
Subscribe online atwww.infantjournal.co.uk
■ SIGNEC UK FifthInternational Conferenceon Necrotising Enterocolitis
■ Neonatal and infant organdonation
■ Developmentally accuratenewborn body posture
■ Blood warming devices forneonatal exchangetransfusion
■ A neonatal surgicaloutreach service
■ Congenital laryngotrachealstenosis
■ Simulation and self-efficacy in neonatalnursing
Baxter partnered with leading charity Bliss to raise awareness of World Prematurity Day
(WPD), which was held on Friday 17 November. WPD is a global movement and was
established to raise awareness of premature birth, the needs of babies who are born early or
born needing specialist care and the impact this can have on families.
To recognise the day, Baxter’s employees across three of its UK and Ireland sites including
the head office in Compton, Newbury, undertook many different activities to raise £1,000 for
Bliss and increase awareness of premature birth. Fun activities included a baby themed Bake
Off style competition and a guess the baby competition. The events culminated in a “Little
Lights Walk” through the village where the office is based, attended by employees, family
members and local residents.
Baxter Healthcare helped raise awareness ofWorld Prematurity Day
Baxter employees taking part in the Bliss Little Lights Walk.
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6 DECEMBER 2017
IN THE NEWS
infant grapevine
Armstrong Medical hosts neonatal eventArmstrong Medical hosted a two-day event focused on neonates at its facilities in Coleraine,
Northern Ireland on 29-30 November. Sixteen hospitals from across the UK and Ireland were
represented, along with doctors and nursing staff from Norway and Romania.
The NeoFlow Workshop gave neonatal healthcare professionals the opportunity to meet the
Armstrong Medical team, tour the facilities and share feedback on products and best practices.
Day one, entitled ‘Understanding respiratory care challenges’, provided the Armstrong Medical
team with the opportunity to better understand the needs and challenges healthcare
professionals face in delivering neonatal care.
Day two was dedicated to the delivery of advanced communication skills training: an
interactive skills workshop focused on supporting professionals to develop communication
strategies for the effective delivery of difficult and emotional information in stressful situations.
The training was facilitated by Dr Lisa Kauffman, Consultant Community Paediatrician with a
special interest in palliative care, along with Nicola Fitzmaurice, Deputy Head of Nursing,
Corporate Nursing at Birmingham Women and Children’s Hospital, and actor Hayley Fairclough.
Hospitals represented at the event included Liverpool Women’s Hospital, QMC Nottingham
University Hospital, The Coombe Women and Infants University Hospital, Altnagelvin Hospital
and Royal Stoke University Hospital.
Draft EU regulation coversproduction of infant formulaFrom February 2017 the maximumpermitted contaminant levels of carcino-genic and genotoxic levels of glycidylfatty esters found in refined vegetableoils used in infant formula manufacturewill be reduced to <75μg/kg until 30June 2019, thereafter it will be furtherreduced to <50μg/kg. Draft regulationcan be found at www.ec.europa.eu/info/law/better-regulation/initiatives/ares-2017-4129615_en
Best Beginnings’ film isnominated for awardBest Beginnings’ maternal mental healthfilm My Mental Health Matters has beennominated for a prestigious CharityMedia Awards. The charity hopes to winthe award to help shine a spotlight onmaternal mental health.
In the film, new mums talk aboutfeeling low in pregnancy or afterwards,and how they got help. Midwife Sheenaand mental health doctor Alain explainhow to look after yourself and howimportant it is to get help if you’re notfeeling right.
The film is endorsed by the RoyalCollege of Midwives and was launchedby the Duchess of Cambridge earlier thisyear. The film can be viewed atweb.bestbeginnings.org.uk/web/video/my-mental-health-matters-10421
Bliss Scotland calls ongovernment to tackle cost ofhaving a baby in NICUBliss Scotland has called upon Holyroodto honour its pledge to urgently reviewits approach to expenses for families ofbabies in neonatal care in order to tacklethe hefty price tag that Scottish parentsare paying every week while their child isin hospital.
Research published by Bliss Scotlandrevealed that the average weekly cost ofhaving a baby in neonatal care is £218across Scotland. While the health servicein Scotland has minimum requirementsfor units to provide support withaccommodation, food and drink, thesestandards are still not being met, and are well below those seen across the restof the UK.
Bliss Scotland is calling for theimplementation of urgent, immediatesolutions, as well as the delivery oflonger-term recommendations made bythe government’s The Best Start reviewand Bliss Scotland Baby Report.
vCreate introduces festiveeffects to help specialmoments last foreverThis Christmas on the neonatal unit, vCreate has added special festive effects to videos captured using its technology. For existing vCreate users, it is easy toadd a festive touch by choosing the effect from thebackground list when adding text to the video. Nurses can choose from a snow effect and a Christmas stocking effect.
See an example of a video made using the festive effects feature at www.whyvcreate.com/wb3p9t23ra.
Alternative neonatal pacifiers areavailable from Delta MedicalFollowing global reports of a supply issue with some brands of pacifier
products, Delta Medical International is promoting an alternative product.
The JollyPop pacifier was designed by the creator of the GumDrop and Soothie
pacifiers, using new materials and manufacturing techniques.
The JollyPop is available in three sizes, preterm, newborn and three months plus.
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DECEMBER 2017 7
IN THE NEWS
infant grapevine
Bliss donates Christmasparcels to every baby inneonatal care in WalesBliss, the UK’s leading premature andsick baby charity, has donated Christmasparcels to every neonatal unit in Walesto make sure that babies and theirparents know that they are not alone thisfestive season.
The parcels, which also include giftsfor parents, contain a Bliss teddy bear,dungarees, photo frame, children’s book,snacks and toiletries. They also includeadditional information about thesupport parents can receive from Bliss.The majority of these gifts have beendonated by Bliss’ corporate partners.
vCreate wins technologyawardvCreate has been announced the HealthTech News ‘Winner of the Year 2017’ forits secure video messaging technology.
Editor Sean White says: “I amdelighted to announce vCreate is ourwinner for the significant impact thetechnology makes to the parents andfamilies of premature babies.”
BAPM welcomes newpresidentSeptember marked the end of Dr AlanFenton’s tenure as President of theBritish Association of Perinatal Medicine(BAPM). After 14 years on BAPM’sExecutive Committee, Alan is steppingdown and handing over the reins toDr Gopi Menon.
Unicef issues updated childmortality report The 2017 UnicefChild Mortality reportpresents the latestestimates of under-five, infant andneonatal mortality upto 2016, and assessesprogress at the country,regional and global levels. For the firsttime, the report also provides mortalityestimates for children aged 5 to 14.
The full report can be accessed atwww.unicef.org/publications/files/Child_Mortality_Report_2017.pdf
Necrotising enterocolitis conference is a huge successThe fifth SIGNEC (Special Interest Group in Necrotising Enterocolitis) International Conference was
held in London on 16-17 October. A wide spectrum of topics related to NEC was discussed including,
for the first time, a focus on genetic aspects and a poster session. Representatives of NEC advocacy
and support organisations also attended the meeting, including the NEC Society in the USA,
members of NEC UK and the Instituto PGG in Brazil. To coincide with the meeting, SIGNEC founder
Professor Minesh Khashu and parent Joanne Ferguson set up a website for the group. The aim of
signec.org is to provide professionals and parents with information on NEC and to share some of the
research that has been presented at SIGNEC conferences.
Inspiration Healthcare introduces Inspire rPAPInspiration Healthcare has announced the release of the Inspire rPAP,
a non-invasive device for the initial stabilisation and resuscitation of
infants. It is said to be the first system of its kind to introduce low
imposed work of breathing into a resuscitation device.
The two-part system consists of a generator and a driver, which
were developed by a dedicated in-house team and received CE marks
in March 2016 and October 2017 respectively.
The Inspire rPAP’s design works in harmony with the infants’ own
respiratory efforts to ensure they do not tire so quickly and preserve
valuable energy. It can enable clinicians to quickly and seamlessly transition the infant onto nCPAP
which, partnered with the additional capability to add supplementary inflation breaths, means more
infants can be successfully maintained on nCPAP therapy and avoid intubation.
Speakers and delegates at the SIGNEC meeting held at Chelsea Football Club, London.
Children’s Wales AirAmbulance touchesdown in CardiffThe Wales Air Ambulance Charity has
permanently relocated its paediatric and
neonatal operation to a new base in the Welsh
capital. Children’s Wales Air Ambulance is a
specialist division of Wales Air Ambulance,
which is dedicated to the specialist care needed
to transfer vulnerable paediatric and neonatal
patients to hospitals across Wales and further
afield. It had been based at Wales Air
Ambulance’s headquarters in Dafen, Llanelli,
while the crews prepared a new, permanent
base at Cardiff City Heliport.
The helicopter charity launched a seven-day
transfer service with its fourth aircraft earlier
this year, making it the largest air ambulance
operation in the UK. The new operation is
claimed to be the most advanced air
ambulance service for paediatric and neonatal
transfers in the UK, with a pioneering flight
incubator system and Britain’s only dedicated
helicopter transfer practitioners (HTPs).
HTPs Steffan Simpson and Jeremy James withPilots James Grenfell and Jay Curtis alongsidethe Children’s Wales Air Ambulance helicopter
Inspire rPAPTM Generator.
Masthead and News Dec 2017.qxp_layout 13/12/2017 12:31 Page 7
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UNIT NEWS
infant grapevine8 DECEMBER 2017
£2.1m Lincoln neonatal unit opensA newly-refurbished neonatal unit at LincolnCounty Hospital is open following a £2.1 million refurbishment. It provides oneintensive care, two high dependency and 12special care cots. Two further cots areavailable for babies requiring isolation.
The unit provides a more comfortable andmodern space for parents to use during theirbaby’s stay, with three parent bedrooms (twoen suite), a kitchen, sitting room and babychanging facilities and a play area for siblings.
On 2 November, the unit was blessed byReverend Alison Amelia and babies werewelcomed onto the new unit two days later.
Cathy Franklin, matron for neonatalservices, says: “This is a really exciting timefor women’s and children’s services, and afantastic investment in maternity for familiesin Lincolnshire. These improvements willprovide an up-to-date environment in whichour staff can deliver better quality care tothose babies who need it.”
Poole Hospital consultantdevelops resource for dads ofbabies on neonatal unitsA consultant at Poole Hospital has developeda new information pack specifically forfathers of babies admitted to neonatal units.
DadPad Neonatal was conceived byconsultant neonatologist Professor MineshKhashu and complements the existingDadPad guide for new dads. It’s thought to bethe first resource of its kind aimed at fathersof babies on neonatal units.
The pack of laminated cards containspractical information including what dadscan do to support themselves and theirpartners, the range of feelings and emotionsthey may experience and how to find support,as well as more practical advice on holdingand handling a premature baby.
Fathers of babies on the neonatal unit atPoole Hospital will be the first in the countryto benefit from the resource, developed withthe makers of the original DadPad, InspireCornwall Community Interest Company. It will be free initially, thanks to charitablefunding.
“DadPad is such a good idea for new dads,bringing together a range of information in ahandy and convenient pack,” says ProfessorKhashu. Visit www.thedadpad.co.uk/neonatal
This regular feature gives unitsacross the UK the chance to sharenews and events. Send yoursubmissions to Katherine Robinson,[email protected]
One hundred families have benefited fromvideo messaging at RHC GlasgowThe neonatal unit at the Royal Hospital for Children, Glasgow, invited parents of premature
babies to join nursing staff at a special event to celebrate the 100th family using Secure
Video Messaging application vCreate. Parents of babies being cared for in the NICU, who
are currently registered to receive video updates recorded by nurses on the unit, or have
previously benefited from the service, attended the celebration event.
Consultant Neonatologist and event organiser Dr Neil Patel explains why the unit felt it
was important to mark this
milestone: “Today is a
momentous day because 100
families are now benefiting from
the service. Parents tell us that
they love receiving videos of their
baby when they are not able to be
in the unit. And to have 100
families register in six months is
more than we could have ever
hoped for.”
November was the first ever maternity
support worker month, launched by the
Royal College of Midwives (RCM) to
celebrate all those people who help
support midwives as well as mothers and
families across the UK.
Southend University Hospital has been
celebrating those who help make a real
difference to everyone in the maternity
unit and SCBU at the trust, whether they
are on the front line or working in the
background.
The trust welcomed Jacque Gerrard,
RCM Director for England, to help in the
celebration of coffee, cake and a chat,
something that Southend midwives have
dubbed ‘the 3Cs’.
Jacque was impressed by the
camaraderie she witnessed at the hospital.
She says: “I think ‘the 3Cs’ is a brilliant idea
of packaging the thanks we all want to give
to those dedicated people who help us day
in and day out. Midwives couldn’t do what
they do without such a fantastic support
system behind them and it was great to
join in the celebrations and speak to
midwives and maternity support workers
in Southend.”
RCM director delivers thanks tomaternity support workers
Jacque Gerrard (third back on the left) with midwives and maternity support workers.
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DECEMBER 2017 9
UNIT NEWS
infant grapevine
The NICU team at St Peter’s Hospital was out
in force on 17 November to raise awareness of
prematurity and money for their Little Roo
Neonatal Fund on World Prematurity Day.
It is estimated that one in every 13 babies is
born before 37 weeks in the UK and last Friday
staff, babies, parents and even the building at
St Peter’s went purple as a striking reminder of
the impact it has on families when babies are
born too soon.
Joining the team on the day was Mayor of
Runnymede, Cllr Iftikhar Chaudhri, who has
personal connections to Ashford and St Peter’s
Hospitals and is a great supporter of the NICU
and the Little Roo Neonatal Fund. He spent
time chatting to staff before moving to NICU
to meet some of the babies and parents on
the unit.
St Peter’s goes purple forWorld Prematurity Day
Top right: Representative from charity BLISSMegan, Staff Nurses Emily Davies and EmmaBlack, baby Marshall Thorp-Lee held by Mayorof Runnymede Cllr Iftikhar Chaudhri and JoThorp-Lee.
Right: Abbey Wing, which houses maternityservices and NICU at St Peter’s Hospital, lit inbright purple.
Conference attendees were encouraged to inspire, innovate and imagine.
Nurses and midwives from across Essex and aspiring health and
social care students from Anglia Ruskin University (ARU) were
brought together at the first Nursing and Midwifery Conference.
Jointly organised by the Mid and South Essex Sustainability and
Transformation Partnership (STP) and ARU, the event was hosted in
the lecture theatre of the Michael Salmon building at the university.
The aim of the event was to inspire nurses and midwives to be
leaders and to share the vision for the three hospitals (Mid Essex,
Southend and Basildon) that make up the Mid and South Essex STP.
Guest speakers included Jane Cummings, Chief Nursing Officer,
NHS England; Ruth May, Executive Director of Nursing, NHS
Improvement; Clare Panniker, CEO, Mid and South Essex Hospitals;
and Professor Ruth Taylor, Pro Vice Chancellor and Dean of the
Faculty of Health, Social Care and Education at ARU.
Professor Cummings spoke about the importance of nurses being
willing to lead and share ideas. Clare and a range of speakers covered
topics from innovation in healthcare to resilience and leadership.
Recent graduates from Anglia Ruskin shared their experience of
practice and spoke about their own innovative projects covering
students as leaders; behaviours and values in children’s nursing; and
enhanced sepsis screening.
Conference embraces partnershipworking and inspires nurses andmidwives to lead and innovate
Alongside staff from the hospitals, spoken word artist, writer and
registered nurse Molly Case gave her unique insight into the
profession, while sepsis survivor Tom Ray and his wife Nicola gave an
emotional account of their experience of the NHS, life-threatening
illness and simply surviving.
Unit news Dec.qxp_layout 13/12/2017 11:54 Page 9
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UNIT NEWS
infant grapevine10 DECEMBER 2017
An intimate photography exhibition showing the lives of
premature babies and their parents on a neonatal unit was
developed with help from staff at Kingston University and St
George’s, University of London.
The exhibition, held to commemorate World Prematurity Day,
gave a window onto the world of parents and
staff at the neonatal unit at St George’s Hospital
in Tooting and was put together in partnership
with First Touch – the hospital’s neonatal baby
charity. It showed images that captured very
personal moments between parents and their
newborns. The aim was to increase parental
involvement in discussions about family-
centred care and highlight the challenging
environment in which support is delivered.
Mr Mandeep Singh, Fetal Maternal MedicineConsultant.
NathalyaKennedy fromSands, JakeHildred withbaby Leila-Mai,Keira Pooler,ANNP FranWootton andAndrea Genner,sister in theNeonatalBereavementTeam.
The mum of a stillborn baby has donated a special CuddleCot to a Birmingham hospital
to help other grieving parents. Kiera Pooler of Brierley Hill, Dudley, raised enough cash to
pay for the £1,600 device, which she kindly handed over to the neonatal department at
City Hospital.
The CuddleCot is a portable device that circulates cold air around babies who are stillborn
or die before they have a chance to go home, to allow parents precious time to be with their
baby before leaving the hospital.
Kiera was 27 weeks pregnant, when she found out her son, who she named Rogan-Lee,
had died. Both Kiera and her partner Jake Hildred, aged 22, got to spend time with their
baby after he was born at Russells Hall Hospital, in Dudley, because it had a CuddleCot.
Keira says: “Jake and I were able to have that extra time with Rogan-Lee after he was born
and it meant so much to us. However, at the time, there was only one device there and
there were five other parents who had babies that were born sleeping that day. It meant
that they didn’t have that special time with their baby like we did. So I decided to fundraise
for a CuddleCot.”
Since the tragedy, which happened more than two years ago, Kiera has carried out
various activities to raise the money and sold badges and tops with Rogan-Lee’s Charity
on them.
She adds: “Once I had raised enough money I found out that Russells Hall didn’t need a
CuddleCot, so Sands (Stillbirth and neonatal death charity) found out which hospitals were
in need of the cot. City Hospital came forward and so I was delighted to make the donation
to them.”
Caring couple donate CuddleCot toBirmingham hospital neonatal unit
Southend Hospital has played a leading role in
a new study into the effectiveness of aspirin
in reducing the chances of pregnant women
developing pre-eclampsia.
Results, published in the New England
Journal of Medicine, revealed a daily 150mg
aspirin dose reduces the pre-eclampsia risk by
82% in deliveries before 34 weeks’ gestation.
Pre-eclampsia occurs in nearly one in 10
pregnancies in the UK and it can lead to
significant harm to mothers and babies. There
is no treatment so the main aim is to manage
blood pressure and deliver babies at the right
time.
Fetal Maternal Medicine Consultant Mr
Mandeep Singh said: “Southend Hospital was
one of the few centres in UK that participated
in the study. We screened almost 91% of the
pregnancy population in Southend, which was
the highest in any centre taking part in the
study across the world.”
Southend Hospital playskey role in pre-eclampsiastudy
The early lives of premature babies are capturedin poignant photography exhibition
Unit news Dec.qxp_layout 13/12/2017 11:59 Page 10
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12 DECEMBER 2017
CONFERENCE REPORT
infant grapevine
Above: At the exhibition Susannah Cooper, Jo Crossley and SumayaTicknerand of BD with the Alaris IV System.
Below: Question time: Speakers Gaynor McGuiness, Claire Campbell,Patrick Turton and Sarah Stephenson discuss exchange transfusion,perinatal loss and neonatal transport.
This year’s Neonatal Nurses Association (NNA) annualconference, which celebrated 40 years of the NNA, took place on17 November, coinciding with World Prematurity Day.
Delegates were treated to a variety of presentations along thetheme of ‘My world, my journey – tales of the unexpected’. Topicsincluded an update on Atain (avoiding term admissions intoneonatal units), hypoxic-ischaemic encephalopathy, hypoplasticleft heart syndrome, gut problems in newborn infants,hyperbilirubinaemia exchange transfusion, the Butterfly Project(improving support for parents who have lost a baby in amultiple pregnancy) and neonatal transport. There was a posterdisplay with prizes for the best posters, an exhibition and thehighly regarded Neonatal Nurse of the Year award.
The NNA has brought together nurses working in neonatologysince it was founded in 1977 and its overall aims have remainedlargely unchanged; a national organisation representingneonatal nurses, steered by neonatal nurses to promote neonatalnursing for the benefit of sick newborn infants and their families.
NNA celebrates 40 years of caring forsick newborn infants and their families
Top: The National Perinatal Epidemiology Unit (NPEU) Clinical Trials Unit: Elfin Trial LeadResearch Nurse Paula Jenkins and Baby Oscar Trial Coordinator Marketa Laube.
Above: The NNA executive board are (from left) Sara Harris, Pamela Boyd, Denise Evans,Róisín McKeon-Carter, Claire O'Mara, Julia Petty, Liz Crathern, Cath Holder and PatrickTurton.
Right: Denise Evans with Claire O'Mara: Denise is stepping down as NNA Chairman andwill be replaced by Claire.
NNA conference report .qxp_layout 13/12/2017 12:00 Page 12
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DECEMBER 2017 13
CONFERENCE REPORT
infant grapevine
Above: Sophie Pantry and Anna Ioannou of Nutricia.
Left: Owen Wainwright of Inspiration Healthcare.
Below left: Luke Bourdillion of Dräger demonstrates the BabyleoIncuwarmer.
Below: Jeremy Billet and Robert Stone of SLE.
Above left: In her presentation, Michele Upton of NHS Improvement spoke about the Atainprogramme, which aims to provide safer neonatal care and reduce the number of full-term babiesadmitted to neonatal units.
Above centre: Celebrating 40 years: the Neonatal Nurses Association 1977-2017.
Above right: Erica Everett explained why hypoxic-ischaemic encephalopathy is an important cause ofperinatal mortality and morbidity, and how multidisciplinary teams can work together to improveoutcomes for babies.
Left: Gillian Weaver of Hearts Milk Bank, the UK’s newest milk bank, which aims to offer equity ofaccess to safe and assured supplies of donor human milk across London and the southeast of England.
NNA conference report .qxp_layout 13/12/2017 12:52 Page 13
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14 DECEMBER 2017
CONFERENCE REPORT
infant grapevine
Left: The winner of the Neonatal Nurseof the Year award: NNA Chair DeniseEvans presents Colm Darby with hisprize.
Right: Melanie Mears at the NeoSavestand – the neonatal stabilisation, airand land transport, ventilation andemergency care course.
Below left: Katie Bradly-Russell andHelen Shelley presented an interestingcase of a baby born with hypoplastic leftheart syndrome: ‘When the unexpectedbecomes the unexpected’.
Below right: Richard Rhodes of WaltersMedical.
Keep up-to-date withadvances in neonatal care
Sign up for our free email newsletter at infantjournal.co.uk
Follow us on Facebook and Twitter
facebook.com/infantjournal
twitter.com/InfantJournal
infant
NNA conference report .qxp_layout 13/12/2017 12:01 Page 14
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The importance of two-year follow-up assessments in neonatal trials: overcoming the challenges ofobtaining dataKaren Willoughby, Beatriz Lopez Santamaria
Two-year follow-up assessments are important but locating and
obtaining the information is rarely easy. This article considers the
experiences gained during a randomised controlled trial and offers tips
on how to enhance the availability and quality of follow-up data.
Helping Babies Breathe in Madagascar: neonatalresuscitation training in the era of sustainabledevelopment goalsAlison Leaf, Emily Clark, Vik Mohan
This article describes the approach taken by two British paediatricians
who benefited from the infrastructure and communication networks
built up by a well-established conservation organisation to improve
awareness and resuscitation capacity for babies born in remote rural
areas of Madagascar.
Rainbow Trust neonatal care: caring for families whohave a child with a life threatening or terminal illnessAnne Harris, Joanne Dunckley
Anne Harris, Director of Care at Rainbow Trust Children’s Charity,
discusses how Rainbow Trust can help families while Joanne Dunckley
describes her role as a neonatal support worker.
BAPM annual conference: excellence in perinatalpracticeThe British Association of Perinatal Medicine’s (BAPM) annual scientific
meeting included lively debates, workshops and presentations from
internationally renowned speakers.
Infusing TPN in babies too rapidly poses risk of severeharm and deathMichele Upton
A Patient Safety Alert was issued warning of the risk of severe harm
and death from infusing total parenteral nutrition (TPN) too rapidly in
babies. This article discusses the background to the alert and the
required actions.
Shared data may lead to better neonatal practice butvariation in key measures shows improvement isstill needed Sam Oddie
A review of the tenth annual National Neonatal Audit Programme
(NNAP) report that was published in September.
Each Baby Counts: lessons learned from babiesborn in 2015 Each Baby Counts Project Team
Each Baby Counts aims to halve the number of babies who die or are
left severely disabled as a result of preventable incidents during term
labour. A detailed analysis has identified key clinical actions needed to
improve the quality of care and prevent future cases.
Improving the early detection of cleft palate in the UKHelen McElroy, Alex Habel, Mervi Jokinen, Cathy Marsh,
Giselle Murphy, Wendy Tuohy
The new eLearning module, Cleft Palate: Examination in the Newborn,
aims to improve early identification of cleft palate. This article
highlights the importance of a proper examination to visualise the
entire length of the palate using a torch and tongue depressor.
The use of ECMO to treat infection in paediatricpatientsOtilia Osmulikevici, Donna Kelly, Judit Llevadias
The use of extracorporeal membrane oxygenation (ECMO) in term
babies with severe but potentially reversible respiratory failure results
in significantly improved survival without increased risk of severe
disability. This article describes a case series of children referred for
ECMO treatment for sepsis.
Congenital hepatic arteriovenous malformationwith persistent pulmonary hypertension: anunusual presentation Yogen Singh, Hannah Shore
Congenital hepatic arteriovenous malformations (HAVMs) are rare
anomalies, which typically present in infancy with congestive heart
failure, anaemia and hepatomegaly. This case study reports a
unique premature infant who developed persistent pulmonary
hypertension of the newborn soon after birth and was diagnosed with
congenital HAVM.
S U B S C R I B E N O W A T W W W . I N F A N T J O U R N A L . C O . U K
Don’t miss the November 2017 issue of Infant journal,
available now and featuring the following articles:
infant SUBSCRIBETODAY!
Nov 17 journal ad p15.qxp_layout 13/12/2017 12:03 Page 15
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