free independent health records - digital health @ harvard
TRANSCRIPT
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Free Independent Health Records
Adrian Gropper, MDBerkman Klein Center
January 26, 2017
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Great-Grandma is 91● Healthy, but demented● In her condo with a live-in caregiver● I’m 200 miles away● I need to monitor her health encounters● A new doctor...● … where’s the active medication list?
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Agenda
● Fairness● Person-centered Solution● Self-sovereign Tech● Policy Questions● Next Steps
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Free Independent Health Records
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http://thedatamap.org
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Baran, Paul. “On Distributed communications: I. Introduction to distributed communications netowrks” http://www.rand.org/content/dam/rand/pubs/research_memoranda/2006/RM3420.pdf
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● Distribute access tokens, not policies
● Self-sovereign nodes for self-sovereign persons
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● Router○ Authorization Server / Policy Store○ FreedomBox○ Personal Data Store○ Blockchain Node
● Mobile Client○ Browser ○ Secure Element○ Biometrics○ Blockchain Client
● Things○ Implants○ Wearables○ IoT
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Free Independent Health Records● Aggregated● Curated● Authoritative● Legal
○ Non-repudiable signatures○ (Blockchain) Timestamps○ Retention
● Mandated Registries○ Prescription Drug Monitoring Programs○ Infectious Disease○ All Insurance Claims○ Research and Quality
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Build on top of APIs from the startSarah Inteman/John Kiehl Physics meets Metaphysics
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Self-sovereign Tech Policy
● Fairness to the individual
● Curation
● Independent decision support at the point of care
● Digital Divide
○ Hardware (Smartphone, Router)
○ Identity (Undocumented)
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Call to Action
● Educate Professions○ Legal: Sedona Conference○ Medical: Self-sovereign Identity○ Medical Society: Physician Directory
● Self-Sovereign Technology○ Add Authorization Server to FreedomBox○ Support Communities○ Business Model
● Visit hieofone.org
Thank You!
June 1-2 at Georgetown Law Center - Free and open to the public.