family secrets problem based learning. family secrets part 1: a family disease part 2: the test part...
TRANSCRIPT
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Family Secrets Problem Based Learning
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Family Secrets
• Part 1: A Family Disease
• Part 2: The Test
• Part 3: A Difficult Choice
• Part 4: Testing for the HD Gene
• Part 5: Making Decisions
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Team Roles
Secretary RecorderSpokesperso
n
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In Part I, you will
Learn about a family with a history of a genetic disease.
Listen to a short reading.Make lists of Facts and Questions .Practice brainstorming rules.
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Class read aloud Part 1:“A Family Disease”
• Listen to reading
• On the sheet provided write Factsthat you know from the reading
• Develop Questions that you have
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Family Secrets Part 2, you will
Read another short narrative
List new Facts and Questions
Categorize Questions
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Family Secrets
• Groups have 1 minute to go over the case of the Lanahan Family
• What is the dilemma?
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Categorize Questions
Risks and
Cause
(RC)
Symptoms
and
Prognosis
(SP)
Diagnosis and
Treatment
(DT)
Family Issues
(not
researchable)
(FI)
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Topical Barometer
• If you were Jenny, would you have genetic testing for Huntington’s disease?
• Put your dot on the Topical Barometer continuum.
________________________________________________Definitely Maybe Not Sure Maybe Definitely
Yes Yes No No
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Teams organize for research
• Assign each team member a different category of Questions
• Each team member will become a “Category Specialist”
• Write the heading of your category on the Individual Research Log
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Jigsaw 1 Category Specialists meet in groups to share
research
Specials go back to their groups and share information
DiagnosisAnd Treatment
FamilyIssuesRisks and Cause
SymptomsAnd
Prognosis
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Huntington Gene on chromosome 4
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Family SecretsFamily Secrets Part 3 Part 3 A Difficult ChoiceA Difficult Choice
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Class read aloud Part 3:Class read aloud Part 3: A Difficult ChoiceA Difficult Choice
Listen to readingListen to reading
Make a List of the FactsMake a List of the Facts
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An Ethical Issue An Ethical Issue or Dilemmaor Dilemma
… …..a situation that requires a a situation that requires a decision or decision or anan action that action that involves involves competingcompeting ethicalethical principlesprinciples and and valuesvalues..
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Rank each principle in Rank each principle in order of importance to youorder of importance to you
Right to decideRight to decide (Autonomy)(Autonomy)
Do what is bestDo what is best (Beneficence) (Beneficence)
Do no harmDo no harm (Nonmaleficence)(Nonmaleficence)
Do what is fairDo what is fair (Justice) (Justice)
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Rank your Rank your “top 3” values“top 3” values
Actions to relieve the suffering of others Actions to relieve the suffering of others CompassionCompassion Keeping a secret Keeping a secret ConfidentialityConfidentiality Keeping a promise; fulfilling an obligation Keeping a promise; fulfilling an obligation FidelityFidelity
Treating others as you would like to beTreating others as you would like to be treated treated Golden RuleGolden Rule
Telling the truthTelling the truth Honesty Honesty Conforming to your own ethical principles/moral values Conforming to your own ethical principles/moral values IntegrityIntegrity
Keeping from public viewKeeping from public view Privacy Privacy Preserving the dignity of self and others Preserving the dignity of self and others Respect Respect
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Ethical Decision-Making Process:Ethical Decision-Making Process:By yourselfBy yourself….….
Based on the chart and the Based on the chart and the ethical principles and values ethical principles and values that are important to you….that are important to you….What do What do youyou think is the best think is the best
course of action? course of action?
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Modified Topical BarometerModified Topical Barometer#2#2
If you were Jenny, would you have genetic If you were Jenny, would you have genetic testing for Huntington’s disease?testing for Huntington’s disease?
________________________________________________________________________________________________
DefinitelyDefinitely DefinitelyDefinitely Yes NoYes No
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Reflection QuestionsReflection Questions
Barometer Conclusions and Conversation:Barometer Conclusions and Conversation:
What conclusions would you make after What conclusions would you make after seeing both Huntington Disease: What is it seeing both Huntington Disease: What is it
Topical Barometers?Topical Barometers?
If you shifted your position on the Topical If you shifted your position on the Topical Barometer, explain why.Barometer, explain why.
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HomeworkHomework
Have students read and fill out Have students read and fill out the the Informed Consent FormInformed Consent Form
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Part 4: Lab PowerpointPart 4: Lab PowerpointGel ElectrophoresisGel Electrophoresis
Family SecretsFamily Secrets
Copyright © 2004, University of Rochester
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Agarose Gel
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DNA
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DNA and Electrical Current
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-DNA and Electrical Current
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Part 5 The FuturePart 5 The Future
Fill out the Genetic Testing Laboratory Fill out the Genetic Testing Laboratory Report – discuss resultsReport – discuss results
Read Part 5 ScenarioRead Part 5 Scenario
Discuss the future for the Lanahan FamilyDiscuss the future for the Lanahan Family