Enhancing Lives, Connecting Communities

Continued on page 2

4 Colorado ExerciseClasses

11

Parkinson Voice

5

A Conversation with DementiaBy Yvonne Meyers, Columbine Health Systems

As someone who talks all of the time, with my hands moving as quickly as my lips, I would struggle if I felt like I was not communicating with others. I cannot imagine how frustrated I would be if, after talking constantly, rapidly and with my hands orchestrating and emphasizing my meaning, I was not understood.

Dementia can impact communication; whether it is finding the correct words to convey meaning or being able to stay on task. There are some strategies I have learned which may help you when trying to communicate with those living with dementia.

Own Your HalfFrom the initial point of communication, I own 50% of this interaction. I employ this philosophy with everyone I come in contact with: a fellow shopper at the grocery store, my daughter when she was a child, a client with dementia. When acting as a caregiver, we often minimize how we need to honor those we are caring for with adequate communication. We are busy with so many tasks and things to manage. We feel like we don’t have time for chitchat; especially when we feel we have to work a little harder at it.

To own your 50%, you need to listen well. Really listen. Maybe the words are not in the order you expect them to be. If you really listen, you can hear what they are saying. If you know this person well, you know their favorite phrases and sayings. You know what is important to them. You know what makes them laugh and what makes them cry. Use your history and knowledge from past interactions for communicating. You will be surprised how quickly what they are trying to say to you

becomes crystal clear – or clear enough to get the gist. Often, the gist is really all you need.

When you own your 50%, you will be surprised how much more you will hear and understand.

How vs. WhatSometimes communication is more about how they are speaking, not what they are saying. The feelings they are using when speaking to you can often be more important than the words.

What are their feelings telling you? Do they seem happy, sad, mad, disappointed or are they trying to tell you a joke?

For example, I once had a client with dementia speak to me in complete sentences with words put together without meaning. Have you had this experience? The way she spoke, her wide sparkly eyes, her slanted smile, her extremely big laugh and her quick words all showed me she was telling me a very racy joke. We laughed and laughed and hugged until tears streamed down our faces. She then said, “You are a great friend.”

Mark your calendars for Tuesday, December 5th as a reminder to support our community through Colorado Gives Day!

It’s more than just a day. It’s an annual statewide movement to celebrate and increase philanthropy in Colorado through online giving.

WHEN: 24 hours starting at 12:00am on Tuesday, December 5th

HOW: Donate online at ColoradoGives.org

WHY: To strengthen Colorado nonprofits through online donations! Plus, during this 24 hours of online giving, the value of your contribution will be increased by the one million dollar incentive fund, provided by Community First Foundation & FirstBank.

With your help we can reach our goal of raising $30,000 in just 24 hours!

Worried you’ll forget? Preschedule your gift now! All charges will be processed on December 5th to “GIVE WHERE YOU LIVE!”

THIS ISSUE SPONSORED BY

GIVE where you

LIVE

Fall 2017Volume 9, Issue 3

Colorado Support Groups

8 Give Your Expectations a Voice

Understanding Parkinson's Disease Psychosis

02

A Conversation with Dementia from page 1

I have no idea what she said – only how she said it! I will always treasure that time of deep connection with her.

Non-verbal communication is your friend. From having worked with clients for 34 years, I am certain I use non-verbal communication more than words when I am “listening” to others. Maybe my hearing loss also adds to my need to use this skill. Either way, if words don’t match how something is said, we are not speaking in harmony. Non-verbal communication is ALWAYS right. Hone your skills of watching and observing. You will begin to notice patterns people have when they talk. What if the person always winked when they were done talking? If you picked this up – you could use the wink to end a conversation in a way they would understand. Voila! You are communicating in their style, something familiar and personal. Something that honors them!

Embrace the NowYou have to reroute your communications and expectations. Your theme song should be “let it be” or “go with the flow”. To maintain and enhance your relationship, you will need to try the path of least resistance. If cussing is now part of a sentence and it would have never been before – let it go.

Give up being right! It seems like we are always correcting each other when we communicate incorrectly, especially with pronunciation. What if we let that go? What if an incorrect pronunciation became the new word, the new way to communicate? How much more fun would that be?

Lighten the Load with LaughterUltimately, communication is our way of connecting with each other. The best way to connect is through humor. Humor is a great friend when used sincerely. Really listening to someone, watching their body language and other cues shows the other person they matter and that you care about what they are saying. When they feel “heard”, you can then move the conversation to a lighter tone and infuse some humor. There is no deeper connection then to laugh with one another. Communication does not always have to be a struggle. Your goal is to connect with respect and kindness and then sprinkle in some humor and wait... the magic will begin!

Caring for people with dementia makes communication difficult, but remember to make this easier – use your eyes and your heart, not just your ears.

Help us continue to connect and empower people with Parkinson’s to thrive by joining our newly created Legacy Society. The Legacy Society honors those donors who have included the Parkinson Association of the Rockies in their estate planning which may include: naming the Parkinson Association in your will, creating a charitable gift annuity or naming the Parkinson Association as a beneficiary of a life insurance policy or retirement plan. Legacy gifts can be given in many different forms including cash, publicly traded securities, collections, cars and other assets of value.

All legacy gifts have one thing in common– they give a leg up to the future and represent a deep desire to pay it forward. Legacy gifts to the Parkinson Association support the growth of new programs and services and ensures a future of hope for those individuals and their families who will face the challenges of living with Parkinson’s.

While benefitting the Parkinson Association, your gift can also be made in tribute to others. Consider restricting your gift for a special purpose; such as exercise programs or home visits. We will carry out your wishes and personalize the way your gift is recognized.

We request each member of the Legacy Society allow us to list their name in our newsletter. This allows us to acknowledge your support of individuals and their families living with Parkinson’s, while also setting an example to other individuals in our community. Your leadership will inspire others to become members. While we understand some individuals will want to remain anonymous, we do ask that you let us know that you have included the Association in your estate planning. We will respect your privacy. Join the Legacy Society by calling (303) 830-1839 or emailing Info@ParkinsonRockies.org.

It Is NEVER Too Early to GiveAs the season of giving is upon us, please consider making a year-end donation to the Parkinson Association of the Rockies. Your donation delivers a strong message of hope to those living with Parkinson’s. Your gift also ensures that the Parkinson Association of the Rockies can keep expanding critical programs and services throughout our community. Consider making your cash donation on December 5th for Colorado Gives Day at www.ColoradoGives.org. You can also make a donation online at www.ParkinsonRockies.org. If donating a car, stock or other item of value, please call (303) 830-1839 for additional information. Every donation large or small, cash or non-cash, connects communities and empowers people with Parkinson’s to thrive. We sincerely appreciate your support.

Thank you!

Cheryl Siefert, MNM, Executive Director

A Leg Up for the Future

03

DonationsYour thoughtfulness helps the Parkinson Association continue to provide services & support. The following gifts were received between July 1 – October 31, 2017

MEMORIALSGregg Abell

Isabelle BurchfieldDonald Barker

Sally A. BarkerDennis Bicknell

Marcella BicknellDonald Blincow

Thelma BlincowLadonna & Tom Stonerook

Paul Browne Shirley AndersonJames & Paulette ArtherholtGinger BarrJoyce BogradHelen BrowneEd CarpenterA.M. CurtisArlene DevoreDonald & Kathleen EwingMargaret FindleyJoanne & Wesley JohnsonKaren LatskoSharon McClew Linda MealmanValerie MooreBeth OrnsteinAngela & George RamelStan & Luann Waldrep-ZemlerRich Wildau

Jerry Carr Barbara Carr

Clifford L. Cryer Mary C. Cryer

Frank James DiSanti Cicero FamilyChuck & Patti DionisioCarol & Sam GenovaMarge GenovaDustin & Karla Rippe

Carol Drew Anne Kotch

John Dyni Leah J. BohorTwig ErtlSandra FranciseJoanne H. HiteDiane KarashEileen Paradeis BedellJennifer Wallace

Sue Feingold Richard GlucksmanWilliam Glucksman Michael & Elena Haykin

Nathan Ryan Flanagan Mike Fordyce

Linda Fligg Kendall Fligg

Doug Ford Carol Ford

Gordon Friednash Leland Huttner

Robert Glickman Keri EcksteinSteve & Sandy BerkowitzBetty & Norman CohenCarol & Larry DiamondJeri & Roger DubeAnnette & Harvey FeldmanDr. Joel & Carol GoldbergEvan & Kim GreenBarb & Ned IsaacsJack & Marilyn KinerBobette & Henry RobinsonIrene & Robert RusselJoyce & Victory SamuelBarbara & David SchwartzEsther ShaperaBeth ShavitzAmy SolomonIris & Jeffery Stine

Stuart Gunckel Judith BrandtBerwyn & Gail DaviesFrance MahanJohn & Nancy NelsonIngeborg & Ralph RatcliffSue S. SchulzCara SlutterSusan A. SoderGail & George Young

Elaine Halford Elaine S. AndersonNancy L. BallantyneJane A. DarlingSharel DavisRhonda HalfordRichard LandyMartha LassenElise ShervaElizabeth & Peter WhitmoreDee WisorSherman & Howard, LLC

VJ Higgins Esther GlickmanDr. Joel & Carol Goldberg

Wade Huffman Marie Huffman

Robert Hull, Sr. Bob & Donna Hull

John Humphreys Janet C. LoughryEmily Oldak & Nick Peterson

Dr. Alex Kotch Anne Kotch

William H. Lamphere Darla & Dave Wiley

James Lee Barbara & Jack Schaefer

Paul C. London Carole London

Michael McGill Molly McGill

Ray Meunier Edward & Patricia AmorosoFeona & Ken AttawayJean EsserDiane M. FuscoElizabeth & John MeunierKaren MeunierGeorgine MeyerMarcella M. Whiteside

Shirley Moratta Jack & Sue Rayburn

Harold W. Olsen Jerome Michel

Bernie Phillippi Nancy Frankum

Donna Rae Polk Jane Pemberton

Clifford B. Rullman Laurel Rullman

Art Schellinger Don & Jan Bowen

Paul Schlegel Jim Barron

Barbara Siefert Dr. Jack Siefert & Family

John Shotton Spotswood M. Shotton

Albert E. Steinkirchner Ethel Steinkirchner

Devera Thorn Bernard Thorn

Shirley Tracy Richard & Ivalene BorchersBob Tracy

Gil Wagner Lanette & Robert Wagner

John Williams Karla Williams

HONORSBrett Burke

Candace FlynnLynda Cavanaugh

Patrick CavanaughLewis Cohen’s 80th Birthday

Mari LurieJoan Gardner

Jonathan J. MuellerAnne Green

Kelsey GreenVerle Guthrie

Barbara K. SmithKathy Hein

Katie D. HeinDavid Howard

Homer L. HowardEssie B. Hunter

Patricia A. Bevel

Irene Ibarra Dora Gomez

John Jacquinot Pamela BridgeRobert MillardElizabeth RandolphJackie Wolf

Laura Karpinski Joyce & Richard Anthony

Lela Kathka Rebecca Olmstead

Jack & Arly Kruse Peter DillonDoug IngleeDillon Foundation

Cindy Kuykendall Connie G. Bailey

Kennard Lubbs Patrick Wilson

The Difference YourDonation Makes

$100 subsidizes the cost of an exercise

class to empower people with Parkinson’s to thrive.

$200 provides a one-hour

educational class. A powerful tool to learn how

to manage their disease.

$500 purchases a U-Step Walker

for our free equipment loan program, providing the precious

gift of mobility.

Limited Funds? Every donation – in ANY

amount – is deeply appreciated. Our hope is that you contribute

a gift which is meaningful to you. But, gifts are not just made in the form of cash – your time can be a powerful donation. The Association’s

programs and services could not happen without the help of our volunteers in the community.

Volunteer Opportunities• Editing or Admin Work

• Social Media Assistance• Event Support

• Fix U-step Walkers• Join a Committee

• Host a Support Group

Double the DifferenceDo you work for, or are retired

from, a company which provides matching gifts for

charitable contributions? Make sure to apply every contribution

to double the impact. Some companies “pay” for your

volunteer time. Make sure to check out what benefits you’re

not taking advantage of.

Lee Mendel Brenda Crain

Michele Pruitt Marshall & Jean Pruitt

Steve Savig Beverly & Glen Franklin

Herm Schempp Joan Schempp

Rick SchwartzMary L. Cleverdon John McDonaldSuzanne Schuelke

Karen Shanno Bob & Donna Hull

Ray Shelmire Joseph NollyWendy O’Rourke

Dan Starishevsky George Sparks

Interested in volunteering? Contact Leesah Barbieri at

(303) 830-1839 LBarbieri@ParkinsonRockies.org

Marilyn Stengel Lanney Marshall

Lynn Taussig Bei-Lee Gold

William “Bill” Vollbracht Rande Yeager

Anne Watson Monica & Ted Wendelin

Sharon Wehner Deborah Clendenning

Gayle Weinstein Melvin & Myrna Engbar

04

ARVADA3rd Thursday • 1:00pmCommunity Recreation Center of Apex6842 Wadsworth Blvd.

AURORA2nd Tuesday • 1:00pmHeather Gardens 2888 S. Heather Gardens Way

BOULDER4th Tuesday • 10:00am Frasier Meadows Retirement350 Ponca Pl.

BRUSHQuarterly MeetingsContact Parkinson AssociationEben Ezer Lutheran Care Center122 Hospital Rd.

BROOMFIELD1st Tuesday • 10:30amBroomfield Community Center280 Spader Way

BUENA VISTA1st Saturday (ODD months) 10:00am127 Hill St.

CEDAREDGE1st Wednesday • 9:30amCedaredge Assembly of God1596 SW 9th St.

CENTENNIALYoung Onset GroupContact Parkinson Association

2nd Thursday • 10:30amHolly Creek Retirement Community5500 E. Peakview Ave., Fellowship Hall

CHERRY HILLS VILLAGE2nd Wednesday • 11:00amBethany Lutheran Church4500 E. Hampden Ave., Room 315

2nd Thursday • 6:30pmBethany Lutheran Church4500 E. Hampden Ave., Room 315

COLORADO SPRINGS/MONUMENTProvided by Colorado Parkinson Foundation - Jeanne Taylor Parkinson’s Support Group www.co-parkinson.org The Young MINDset Parkinson’s2nd Wednesday • 5:00pmVisit www.co-parkinson.org

2nd Saturday • 10:00amFirst Presbyterian Church105 N. Weber St.

3rd Saturday • 10:00am Woodland Park Library218 E. Midland Ave., 3rd floor

3rd Saturday • 10:00amTri-Lakes Senior Center(Across from the Tri-Lakes YMCA)17250 Jackson Creek Pkwy., Monument

DENVERRecently Diagnosed (1-3 years)4th Tuesday • 11:30amNo meetings in DecemberChrist Episcopal Church, Barnes Hall2950 S. University Blvd.

3rd Thursday • 6:00pmDahlia Campus for Health & Well-Being3401 Eudora St.

DURANGO3rd Thursday • 1:00pm First United Methodist Church2917 Aspen Dr.

EAGLE VALLEY/EDWARDS4th Thursday • 5:00pmTrinity Church, 90 Lariat Loop

ENGLEWOOD MSA/PSP/CBD2nd Friday • 10:00am Johnson Adult Day Center3444 S. Emerson St.

ESTES PARK3rd Tuesday • 2:00pm US Bank Building363 E. Elkhorn Ave.

EVERGREEN1st Friday • 1:00pm Evergreen Christian Church 27772 Iris Dr.

FORT COLLINSRecently Diagnosed/Young Onset4th Monday • 6:30pmCouncil Tree Library2733 Council Tree Ave.

1st Wednesday • 10:30amFt. Collins Senior Center1200 Raintree Dr.

GRAND JUNCTION1st Wednesday • 3:30pmFirst Christian Church1326 North 1st St.

GREELEY4th Thursday • 10:00amHope Pool & Physical Therapy Center2780 28th Ave.

HIGHLANDS RANCH4th Tuesday • 10:00amHighlands Ranch Library9292 Ridgeline Blvd.

3rd Friday • 10:00amWind Crest Community3235 Mill Vista Rd. LAFAYETTE4th Tuesday • 2:30pmExempla Good Samaritan Med. Center200 Exempla Cir. LITTLETON3rd Saturday • 3:00pmMorning Star Senior Living5344 S. Kipling Pkwy.

LONGMONT2nd Wednesday • 10:00amLongs Peak United Methodist Church1421 Elmhurst Dr.

1st Monday after 2nd Wednesday6:00pmLongmont Senior Center910 Longs Peak Ave.

LOUISVILLELast Tuesday • 2:00pmBalfour Retirement Community 1855 Plaza Dr., Wellshire Unit

LOVELAND/JOHNSTOWN3rd Friday • 10:15amGood Samaritan - Loveland VillageMajestic View Private Dining Room2101 S. Garfield St.

MSA/PSP/CBD 2nd Friday • 1:00pmNorthern Colorado Rehab Hospital4401 Union St.

MONTROSELast Monday • 2:00pmMontrose Memorial Hospital800 S. Third St., Class Room B

PARKER2nd Tuesday • 10:00am Life Care Center of Stonegate 15720 Garden Plaza Dr.

PUEBLO 2nd Tuesday • 11:15am YMCA Campus3200 E. Spaulding Ave., Room B SALIDA1st Saturday (EVEN months) 10:00am205 G St.

STEAMBOAT SPRINGS2nd Monday • 5:00pmCasey’s Pond2855 Owl Hoot Trail

SUMMIT COUNTY3rd Friday • 10:00amContact Parkinson Association

WESTMINSTER1st Monday • 1:15pm Covenant Village Retirement 9153 Yarrow St., Evergreen Room

WHEAT RIDGE3rd Wednesday • 10:00amApplewood Baptist Church11200 W. 32nd Ave.

Support GroupsFor Care Partner specific Support Groups, please visit page 6. For more information on support groups and contact information for support group leaders, please contact the Parkinson Association of the Rockies at (303) 830-1839 or Info@ParkinsonRockies.org.

Parkinson Association Classes

Power Punch Parkinson’s Non-Contact BoxingTuesdays • 3:00 - 4:00pm UFC Highlands Ranch7824 Park Meadows Dr., Lone Tree

Tuesdays • 4:30 - 5:45pmOld School Boxing2112 E. Platte Ave., Colorado Springs

Wednesdays • 10:00 - 11:00amDenver Red Shield2915 High St., Denver

Wednesdays • 10:30 - 11:30amHybrid Nation Martial Arts 150 Beaver Creek Blvd., Avon Wednesdays • 10:45am - Noon TITLE Boxing Club4360 S. College Ave., Fort Collins

Thursdays • 4:30 - 5:45pm Old School Boxing2112 E. Platte Ave., Colorado Springs

Fridays • 10:30 - 11:30amHybrid Nation Martial Arts 150 Beaver Creek Blvd., Avon Fridays • 10:45am - NoonTITLE Boxing Club4360 S. College Ave., Fort Collins

Saturdays • 9:00 - 10:15amOld School Boxing2112 E. Platte Ave., Colorado Springs

Saturdays • 9:00 - 10:30amDenver Red Shield2915 High St., Denver

Saturdays • 11:30am - 12:30pmOld Town Hot Springs136 S. Lincoln Ave., Steamboat Springs

Tai Chi2nd Thursday • 11:00am - NoonYoga Center of Steamboat701 Yampa Ave., Steamboat Springs

Circuit Training for Parkinson’sMondays • 10:00 - 11:00amTriple Threat Gym5739 Observation Ct., #120, Colorado Springs

Tuesdays • 11:00am - NoonKelly Performance and Wellness10835 Dover St., Ste. 1300, Westminster

Yoga for Parkinson’sTuesdays • 9:30 - 10:30amHealthSouth Rehabilitation Hospital of Littleton1001 W. Mineral Ave., Littleton Wednesdays • 8:00 - 9:00amHigher Intensity YogaYoga Pod Southglenn6870 S. University Blvd., Centennial

Wednesdays11:00am - Noon12:30 - 1:45pmScheitler Recreation Center5031 W. 46th Ave., Denver

1st, 3rd, 4th Thursdays 11:00am - NoonYoga Center of Steamboat701 Yampa Ave., Steamboat Springs

Thursdays • 11:30am - 12:30pmThe Center for Integrative Medicine University of Colorado Hospital3055 Roslyn St., Ste. 250, Denver

Thursdays • 1:00 - 2:00pmChair Yoga ClassLife Care Center of Stonegate15720 Garden Plaza Dr., Parker

PAFit HIIT Class Thursdays • 10:45 - 11:45amFit36 Studios 9370 S. Colorado Blvd., Ste. A-2, Highlands Ranch

Essentrics ClassMondays • 8:30 - 9:30amUnited Methodist Church 736 Oak St., Steamboat Springs

Fridays • 9:00 - 10:15amUnited Methodist Church 736 Oak St., Steamboat Springs

Exercise Class Mondays • 1:00 - 2:00pmThe Haven Assisted Living Center300 S. Shelton St., Hayden

Wednesdays • 11:00am - 12:15pmUnited Methodist Church 736 Oak St., Steamboat Springs

PAR for the Course ExerciseMondays • 11:00am - NoonHighlands United Methodist Church3131 Osceola St., Fellowship Hall, Denver

Tuesdays11:30am - 12:30pm, High12:45 - 1:45pm, LowSchlessman YMCA3901 E. Yale Ave., Denver

Wednesdays • 1:45 - 2:45pm, Low Southwest YMCA5181 W. Kenyon Ave., Denver

Thursdays • Noon - 1:00pm, Low Schlessman YMCA3901 E. Yale Ave., Denver

Fridays • Noon - 1:00pm, HighSchlessman YMCA3901 E. Yale Ave., Denver

High Intensity: for individuals early inthe diagnosis of Parkinson’s diseaseLow Intensity: for individuals who needassistance with mobility

B.E.A.T. High Intensity ExerciseThursdays • 12:15 - 1:15pm5700 W. 25th Ave., Edgewater

PWR! ClassMondays • 1:45 - 2:45pmTherapies of the Rockies300 E. Hampden Ave., Ste. 100, Englewood

Wednesdays • 11:00am - NoonGarden Plaza of Aurora14221 E. Evans Ave., Aurora

Tremble ClefsWednesdays • 11:00am - NoonValmont Community Church3262 61st St., Boulder

Rhythm and Grace:Dance for PD® Mondays • Noon - 1:15pmColorado Ballet1075 Santa Fe Dr., Denver

Tango Dance Class Tuesdays • 2:00 - 3:00pmSt. Barnabas Episcopal Church1280 Vine St., Denver

Good VibrationsThursdays • 1:00 - 2:00pmRehabilitative Rhythms Music Therapy 2222 S. Fraser St., #2, Aurora

LOUD for LifeMondays • 2:00 - 3:00pmOur Father Lutheran Church6335 S. Holly St., Rm. 300-301, Centennial Registration Required.

Aquatic AerobicsSundays • 10:00 - 11:00amOld Town Hot Springs Pool136 Lincoln Ave., Steamboat Springs

SkiingContact Parkinson AssociationHaymaker Nordic Center34855 E. US Hwy. 40, Steamboat Springs

Parkinson Association ClassesThe Parkinson Association is pleased to offer the following exercise classes. A liability waiver from your doctor is required. There is a fee associated with most of the classes. Scholarships are available. Not all classes meet every week. For more information, please contact the Parkinson Association of the Rockies at (303) 830-1839 or Info@ParkinsonRockies.org.

05

06

Care Partner Support GroupsFor more information on Support Groups and contact information for support group leaders, please contact the Parkinson Association of the Rockies at (303) 830-1839 or Info@ParkinsonRockies.org.

We care about Care Partners!For tips for the care partner and respite care resources, contact Cari Friedman, LCSW at (303) 861-1810 or CFriedman@ParkinsonRockies.org

ARVADA2nd Friday • 1:30pmCommunity Recreation Center of Apex6842 Wadsworth Blvd.

BOULDER3rd Monday • 10:30am Frasier Meadows Retirement CommunityMountain Vista Room, 2nd floor350 Ponca Pl.

BROOMFIELD Friday after 1st Tuesday • 10:30amBroomfield Community Center280 Spader Way

COLORADO SPRINGS3rd Friday • 1:30pm Care & Share Building2605 Preamble Pt. Provided by the Colorado Parkinson Foundation - Jeanne Taylor Parkinson’s Support Group.

DENVER4th Wednesday • 6:30pmScheitler Recreation Center5031 W. 46th Ave.

ENGLEWOODMSA/PSP/CBD4th Friday • 10:00amJohnson Adult Day Center3444 S. Emerson St.

EVERGREENThursday before 1st Friday • 3:00pmLariat Lodge Brewery 27618 Fireweed Dr.

LONGMONT1st Tuesday • 11:30amPerkins Restaurant2051 Main St.

STEAMBOAT SPRINGSContact Parkinson Association

We also want to give special thanks to the e3 Conference Sponsors:

Energize Sponsor: Educate Sponsors: Empower Sponsors:

Presenting Sponsor: Lunch Sponsor:

Exhibitor+Sponsors: Exhibitors:

®

e3 Conference educate • empower • energize

On Saturday, September 16th our 5th Annual e3 Educate, Empower, Energize Conference was full of laughter, creativity, movement and a can-do attitude!

Parkinson patients, care partners, family members and community partners gathered to be educated, empowered and energized through a number of topics that ranged from cognitive issues to self-efficacy.

This year the crowd was captivated by Linda Olson, MD, a triple amputee whowas recently diagnosed with Parkinson’s disease. Linda had people laughing, crying and left everyone with the reminder that Parkinson’s does not have to limit you; you just have to find a new way of doing things WITH Parkinson’s disease.

Every participant felt uplifted and inspired by the reminder that humor can, and should, be part of their treatment plan; as well as self-efficacy. They felt energized and ready to express ourselves through dance and the power of poetry. And, they left knowing they had the education that would ensure they lived a fuller day tomorrow and the next day.

We are deeply grateful to our e3 presenters, who donated their time and knowledge to provide our community with helpful tips and tricks to thrive with Parkinson’s. Thank you also to the day-of volunteers who ensured the conference ran smoothly; and especially to those on the e3 Committee: Kitsi Atkinson, John Dean, Linda Hall and Meredith Roberts; who dedicated many hours in developing and creating a powerful conference.

“It is useless to talk about what we can’t do, but what we can do!”

- Linda Olson, MD

Fort Collins Punch-a-thon 13

PARTICIPATED$8,323

TOTAL NET RAISEDSAVE THE DATE

April 2018

Redneck Ride for Parkinson’s 86

PARTICIPATED$6,729

TOTAL NET RAISEDSAVE THE DATE

August 26th 2018

Gary Bass Memorial Golf Tournament72

PARTICIPATED$8,000

TOTAL NET RAISEDSAVE THE DATEJuly 21st 2018

We are fortunate to have many friends in our community who utilize their creativity, talents and passion to generate awareness of Parkinson’s and raise significant funds for our programs and services. We are in awe of their dedication to annually host these events; and we know their commitment has inspired

others to help raise awareness for those living with Parkinson’s in their neighborhoods. In 2017, we welcomed many new events and we look forward to these newly established events continuing in 2018; and also hope to build even more partnerships with organizations, companies, clubs, support groups,

exercise classes and YOU to expand the events offered by our community in the coming years. We also want to share our gratitude to all of you who supported the events hosted this year. Because of you, over $31,394 was raised to fund programs and services!

AND A HUGE SHOUT OUT TO OUR LAST THIRD PARTY FUNDRAISER FOR THE YEAR - NOVEMBER 18TH 2017Crowfoot Valley Coffee Castle Rock Starlighting Event

Interested in supporting these events or hosting your own? Contact Erica Wright at (303) 830-1839 | EWright@ParkinsonRockies.org. 07

“Knowledge is like a garden; if it is not cultivated,

it cannot be harvested.” - Proverb

They say that knowledge is power; and we couldn’t agree more. At the end of each calendar year a significant amount of time is spent on developing the programs and services we plan to offer the following year. We spend time reflecting on the current year’s programs to help determine what we want to continue, what areas need to be changed or revamped and what gaps we have yet to fill. These reflection are based on what YOU have told us; through program evaluations, emails, phone calls and comments stated in friendly conversations at events – we hear it all, we hear you, and we do our best to make sure your wishes and comments become the changes in the services we offer in the next year.

Here’s a little of what we heard this year:

“I’d like to thank you for your newsletter that I just received. It was very helpful to me and was the highlight of my day!”

“Very uplifting and really embraced the e3 concepts of education, empowerment and energizing. It was an absolutely fantastic conference. Thank you so much. ”

“We love the Chat with the Parkinson’s Pros and are always grateful to see them expanding into new areas. We were thrilled to see you bring the program to Fort Collins and wish more people knew about these free educational events. It’s like having time with a doctor, but without having to set up an appointment or pay for it!”

But, we know you have so much more to say! Like the Parkinson Association, we know you are evolving and growing in your knowledge of how to skillfully manage living with or caring for someone with Parkinson’s. We want to make sure we grow alongside you and provide the best education possible for others in our Parkinson’s community.

We want to know: • What topics are of most interest to you? • How you want to receive education: printed, emailed, large conference, intimate settings, webinars, etc.?• Where (in what locations), are we needing to provide more education? • What would help you best access the programs we do offer?

So, here’s another opportunity for you to tell us and help us shape the programs and services we are working to offer next year. Please take the time to fill out our survey to let us know more about your needs for education, visit http://bit.ly/2gPxiRj to take the survey. We also welcome your phone calls and emails; contact the Parkinson Association of the Rockies at (303) 830-1839 or Info@ParkinsonRockies.org.

Knowledge is Power

08

Learning to care for someone with Parkinson's disease is challenging. We’re all aware of the common symptoms of Parkinson’s; moving slowly, experiencing rigidity, losing his or her balance easily or shaking uncontrollably while resting. But, there are many other symptoms that begin to occur.

Hallucinations and delusions are symptoms of Parkinson's disease psychosis, which occurs in about 50% of people with Parkinson’s at some point during their illness.

Sometimes described as "tricks" played by the brain, hallucinations can cause a person to see, hear, feel, smell or even taste something that isn't real. A person with hallucinations may say they see people or animals that aren't there. As their hallucinations become more frequent, they may not be able to tell what's real or what's imagined. They may react to things that aren't real, or think that someone is watching them. Which in reality, no one is there. They may start asking why the kids are in the car, but your kids have grown up and moved away.

Delusions occur less frequently than hallucinations and are generally more difficult to treat. Delusions are fixed, false beliefs not supported by evidence and often have paranoid themes. A common delusion that occurs in people with Parkinson's is that their partner is having an affair, even if they have been married for decades and their spouse is with them most of the time.

When a loved one is experiencing hallucinations and delusions, it can add more frustration to the already challenging physical limitations of Parkinson's. Research has found that hallucinations and delusions can lead to increased distress, greater responsibility for caregivers and even

nursing home placement. Yet, as difficult and distressing as these hallucinations and delusions may be, only about 10 to 20% of patients who have hallucinations or delusions associated with Parkinson’s disease proactively report the symptoms to their health care providers.

That may be because they don't understand that these symptoms are associated with Parkinson’s, or are embarrassed to report that they are experiencing visions and false beliefs. Sometimes these "invisible" symptoms can cause more problems than the motor issues - especially if people with Parkinson's don't seek help.

Hallucinations and delusions usually appear later in the disease's progression and often catch caregivers by surprise if they and the doctor are focused on motor symptoms; which are easier to identify.

Causes of Parkinson’s Disease Psychosis The cause of hallucinations and delusions associated with Parkinson's is not clearly understood. The drugs commonly used to treat Parkinson’s disease, which raise dopamine levels to improve motor control, can cause physical and chemical changes in the brain that may lead to hallucinations and delusions. In addition, the natural progression of Parkinson's disease may cause brain changes that trigger symptoms.

Treatment for Parkinson's Disease PsychosisA health care provider can help to identify hallucinations and delusions associated with Parkinson's, monitor signs that symptoms may be progressing and offer ways to help manage any related challenges.

The first step is for the physician to confirm that the hallucinations and delusions are caused by Parkinson's disease by eliminating other possible causes. Once the diagnosis is made, the health care provider will decide how to treat the symptoms. Treatment may involve adjusting or switching Parkinson’s disease medications. Antipsychotic medications also may be used, including an FDA-approved treatment option specifically for hallucinations and delusions associated with Parkinson's disease that may be appropriate for some people.

Please visit www.ParkinsonRockies.org/Blog for the full article with text and references.

Understanding Parkinson's Disease PsychosisMedically reviewed by Karen Elta Anderson, MD, Neuropsychiatrist, MedStar Georgetown University Hospital

How do people describe their hallucinations or delusions?

Seeing ThingsSuch as people, either living

or deceased, animals or objects

Out of Touch with RealityNot being able to tell what’s

real or imagined

False BeliefsFears of loved ones stealing from

them or being unfaithful

Paranoia Believing people are

talking about you

Many patients are living full lives after receiving treatments for their hallucinations and delusions. There are several patients the Association can put you in contact with if you’d like to have a patient present at your support group or even just talk with you about their treatment plan and how they manage their condition in their day-to-day life. For more information, contact the Parkinson Association of the Rockies at (303) 830-1839 or Info@ParkinsonRockies.org.

Party for Parkinson’s - Party in the CityOn Thursday, October 26th, our community came together to Party in the City. The energetic event at Mile High Station

celebrated the peaks we’ve reached and gave gratitude for the continued support so we can climb higher.

This event is more than just cocktails, festive food and an auction. Prior to dinner, event guests engaged in games and activities like throwing darts to win gift cards at Pick-a-Palooza, beating the odds at Give-a-Guess, entering

to win the Bucket-a-Booze and bidding on fabulous silent auction baskets and prizes. We are so thankful to all our friends in the medical community for providing so many of these items. Guests also enjoyed

music from the live band while having fun in our photo booth.

During dinner, while feasting on a delicious and festively fall themed meal and dessert, guests participated in Heads & Tails followed by the Live Auction. Again our community provided some incredible packages to bid on; the sporting event tickets,

autographed memorabilia and incredible Colorado getaways were a huge hit!

The party concluded with us celebrating all the peaks we’ve climbed and the valleys we’ve successfully navigated because of all the continued support and generosity our community provides. Because of our community’s commitment,

we’ve been able to summit so many peaks, and these gifts also help us to prepare for those yet to come.

Event attendees, plus the additional contributions we received from those who were unable to attend, are preparing us to begin our next climb; ensuring the Association can continue to push boundaries and invest

in life-changing programs which connect and empower people with Parkinson’s to thrive. This event exceeded our fundraising expectations and we’re thrilled to announce that, due to your support, we have the funds to keep

expanding our programs throughout Colorado for the remainder of 2017 and into the coming year.

We are thankful to all those who joined us for this lively celebration; as well as the auction committee members and volunteers who dedicated their time to make this event a success. We are especially thankful to Byron Starishevsky, Carson

and Dani Hall and Lane Feingold, who shared the peaks and valleys they and their families have navigated and how the Parkinson Association has helped them in their journey. Visit our YouTube channel at Youtube.com/ParkinsonRockies to view these incredible testimonials!

Join Us for the Next Party!Cardel Homes & US Mortgages present Party for Parkinson’s - Party with a House. Join us to welcome the holiday season & spread some cheer by participating in a competition for the best decorated gingerbread house while raising awareness of Parkinson’s.

The Studios at Overland Crossing | 2205 S. Delaware St., Denver

Friday, December 8th | 4:30 - 6:30pm VIP Reception & Talent Division Judging$75/Reception GuestSaturday, December 9th | 9:00 - 10:00am & 11:00am - NoonGingerbread House Decorating Contest $25/House to DecorateSpace is Limited - Register Today!

More Info & Register: www.ParkinsonRockies.org/HouseParty I (303) 830-1839

SPECIAL THANKS TO OUR PARTY SPONSORS!Party Partner

Table Sponsors

Celebration Sponsors P A R T N E R S • C O L O R A D O

TM

®

Auction & BidPaddle Sponsors

Celebration Sponsor: Presented By:

Event Sponsor: Neighborhood Sponsor:

Party Partners: Cleaning Crew:

SPONSORSHIP OPPORTUNITIES AVAILABLE Contact KBuchanan@ParkinsonRockies.org | (303) 830-1839 09

Lee & BarbaraMENDEL

10

Due to our improved understanding of the progression of Parkinson’s disease, there are many research studies exploring new medications to slow this disease. Scientists believe that alpha synuclein, a normal brain protein, misfolds in Parkinson’s rendering it toxic to neurons in the brain. This misfolded protein then spreads from cell to cell. Immune therapy with vaccinations that induce the immune system to create antibodies directed against alpha synuclein is a promising avenue of clinical research. Urate is a natural product of metabolism and is also an antioxidant. Higher levels of urate are associated with slowing the progression of Parkinson’s disease. Currently, a study called SURE-PD examines whether boosting serum urate will slow the disease progression. As we know, dopamine cells have high energy requirements and blocking calcium channels with certain blood pressure medications can reduce their energy requirements. This result is associated with a lower risk of Parkinson’s and protects dopamine cells in animal models of Parkinson’s. The STEADY-PD study examines whether isradipine, a blood pressure medication, will slow the progression of Parkinson’s disease.

While levodopa improves Parkinson’s symptoms, many patients develop a wearing off of the beneficial effects of levodopa between doses. Administering levodopa and other short acting Parkinson’s medications such as apomorphine via a small pump to deliver the medication just under skin is a novel method of overcoming this problem and is currently being studied. Several other oral medications acting on other chemical systems which interact with the dopamine system in the brain are being studied in large clinical trials with patients. These trials aim to improve wearing off between doses of levodopa.

Please contact Emily Moyers at (303) 357-5455 or EMoyers@KumarNeuro.com: • If you have recently been diagnosed with Parkinson’s disease and are not on levodopa, and wish to learn more about studies to slow the progression of

the disease. • If you have more advanced Parkinson’s disease and experience wearing off of levodopa between doses, and would like to learn about alternative

treatments.

Exploring New Mechanisms in Treatments By Dr. Rajeev Kumar, Medical Director of the Rocky Mountain Movement Disorders Center

6 Healthy Habits of Parkie’sBy Allison Smith, The Perky Parkie, www.perkyparkie.comIs it possible to be a healthy Parkie? I have seen that some people with Parkinson’s do not always do what is in their best interest. They don’t take the steps to slow the progression of their illness. In many cases, they just feel overwhelmed and don’t know where to begin. Below are 6 healthy habits I’ve noticed in Parkie’s.

1. They don’t treat exercise as an optionWhat if I told you about a new pill just approved by the FDA that will help your mobility, increase your strength, stabilize your mood, sharpen your mind, the list goes on! Have I gotten your attention yet? What if I told you that this pill has been scientifically proven to slow the progression of your Parkinson’s? I have a feeling that you would be sprinting for the closest pharmacy faster than a herd of snails.

This pill does exist, but it’s not taken orally, and it’s not a patch you place on your arm; you can only get this medication when you get up and exercise. Yes, exercise is medicine. Healthy Parkies don’t view exercise as optional, they know it’s a requirement to stay healthy. So slap on those leg-warmers and dust off those sneakers because it’s time to exercise.

2. They follow through with their neurologist’s recommendationsWe are all guilty of occasionally not doing what we are told... But remember, although we may think that we’re smarter than a dolphin, we don’t have the extensive education and training that our doctors have. Healthy Parkies do what their neurologists recommend. They keep regular appointments, and communicate any new symptoms or possible side effects they are experiencing from Parkinson’s medications.

3. They don’t see themselves as weak or a burdenThinking that you have become a burden or have become inadequate since your diagnosis is just as useful as a pogo stick in quicksand. Don’t let Parkinson’s define you! You are not your illness. Healthy Parkies understand that they can still do the things that they used to do, but they might have to modify it. Your loved ones are choosing to be by your side, regardless of Parkinson’s.

4. Regardless of diagnosis, they remain gratefulYes, Parkinson’s sucks. Yes, it can rob you of many things. But healthy Parkies are grateful for many things that Parkinson’s has brought into their world. Besides being able to do a spot-on imitation of a sloth… a great party trick… they are grateful of how Parkinson’s has strengthened their relationships with friends and family.

So if you are really struggling with the emotional pain of having a degenerative disease and you feel alone, grab a piece of paper and a pen. Then, begin to jot down things in your life that make you feel grateful and before you know it, that paper will be full. Sometimes we take things for granted without acknowledging how blessed we truly are.

5. They are their own advocatesA healthy Parkie gets involved in their own treatment. They don’t just sit back and let Parkinson’s take over. They fight it. How? They educate themselves on the disease. They learn about the treatment options and the programs available which provide support to Parkies.

If a healthy Parkie doesn’t feel that they are getting the best care, they get a second opinion. If they need a medication that is too expensive, they investigate patient programs that they could qualify for to help with the cost. If insurance doesn’t cover a name brand medication, they find the generic form if available. A healthy Parkie is willing to jump through the hoops of managed care to get the best treatment.

6. They give themselves permission not to be perfectThis one is a tough one! Healthy Parkies recognize that their Parkinson’s can make daily activities seem daunting. Healthy Parkies give themselves a break if they’re having a difficult day. Maybe that heaping load of laundry won’t get done, or will that trip to Costco to purchase a gallon of mayonnaise; but they don’t beat themselves up about it. They don’t view their lack of efficiency as negative, or the need to take an afternoon nap as lazy. They don’t compare themselves to their pre-Parkinson’s self. They accept that they might not be able to complete all the tasks that they attempted to do but in turn they celebrate what they did get done that day!

Hindsight is an amazing teacher. It is also a mirror that can be difficult to look into and see the reflections of past mistakes. When I take time to review my years as a care partner, I recognize the self inflicted challenges that I endured due to my, albeit unintentional, mistakes. The difficult part is realizing that my choices not only made caring for my parents more difficult but it also took away some of the joy in the experience.

Thinking back I realize how quickly I fell into the false notion that I could do it alone. This unrealistic self expectation allowed those around me to fall away or slip into the role of voyeur - watching from a distance, waiting to be told how to help. As the years of caregiving went on, I became more bitter towards family and friends feeling they should somehow understand my exhaustion and “STEP UP” to help.

This was an extremely unrealistic expectation; especially given that I was excellent at making it all look okay. I had a care plan that was written down to the minute, part-time help so I could work outside the home and even take time for an occasional dinner with friends; and yet, something was missing. I was falling a part, feeling exhausted physically and emotionally. Inside I was almost always feeling overwhelmed by the burden of caring for my parents and fearful about my future when the care partnering journey ended. But on the outside I presented the image of someone who had it all together and needed nothing from anyone.

Somewhere in my mind I had expectations that made my journey more emotionally difficult than it needed to be. Looking back, I realize that those expectations did not need to be unmet had I given them a voice. Expectations like:

Family SHOULD… or at least I thought they WOULD…

Friends for sure COULD…

These were all unrealistic and unattainable because the expectations were never given a voice. In fact, at the time I’m not even sure I recognized that these expectations existed. What I now know is, these unspoken expectations created challenges and feelings that have affected my relationships with family and friends that continue even today.

How can care partners avoid some of the same pitfalls? First and foremost you have to recognize that those expectations exist. Take a moment and think about your caregiving experience. Are you harboring feelings of resentment towards someone or a group of people because you feel they are not helping you care for your loved one? Maybe you have felt the resentment grow but haven't really understood why it exists. Is there distance between you and someone with whom you had a close relationship prior to becoming a care partner? It’s easy to understand how this can happen. Life goes on for family and friends who move effortlessly back into their normal routines while your “normal” continues to change and the caregiving needs grow. Personal expectations become a burden and the unspoken expectations develop into isolation and depression.

If you, like many care partners, are struggling with these feelings, today can be the beginning of new more positive habits. Begin by making a list of all the things you do in a day. I know this could take the whole day, but it is an important exercise. First, it helps you recognize that expecting to do this alone is really unrealistic. Secondly, it allows others to have a visual realization of what you are doing daily as a care partner.

Asking for help is never easy. For those caring for a loved one it seems to be exceptionally difficult especially when you have turned down help in the past, so I recognize that what I am proposing is the hardest part of all, but in order to give your expectations a voice it is necessary.

Reach out to family, friends, neighbors or your church group and explain that things have changed. Perhaps your loved one’s health has declined or maybe you have received an injury as part of your responsibilities; whatever the reason, let them know you would welcome their help. If speaking with them in person or by phone is too hard, write an email or use an online service like “Lotsa Helping Hands” or “Meal Train”. When communicating include the list of your daily “To Do’s” and allow them to self identify how they wish to lend a hand. This allows them to help in ways that are comfortable so they are more likely to opt-in and continue helping.

Giving your expectations a voice can turn resentment into appreciation making for a more positive journey.

Give your Expectations a VoiceBy Lori Ramos Lemasters, Care Partners Resource

November is National Caregiver Month and in honor of that, AARP and Dementia Friendly Denver created a robust roundtable video discussion on caregiving, Care-FULL Conversations Round Table Three-Part Discussion.

In this three-part series, co-hosted by Lori Ramos Lemaster, you will hear from several featured guests, including our own Cheryl Siefert, MNM, Executive Director, discussing caregiving, dementia and hospice. To view the entire series, visit http://bit.ly/2xVuzMM.

ADDITIONAL RESOURCES

11

1325 S. Colorado Blvd., Suite 204B Denver, CO 80222(303) 830-1839

Non-ProfitOrganizationU.S. Postage

PAIDDenver, CO

Permit No. 2866

MissionThe Parkinson Association of the Rockies connects and empowers people with Parkinson’s to thrive.

Connect with us...Facebook.com/PARockies

Twitter.com/PARockies

Youtube.com/ParkinsonRockies

Instagram.com/PARockies

Linkedin.com

www.ParkinsonRockies.orgInfo@ParkinsonRockies.org

SKI COMPETITIONS, GAMES, MUSIC, FOOD, PRIZES & FUN FOR ALL!

SUNDAY, JANUARY 28TH 2018Haymaker Nordic Center, Steamboat Springs

JOIN US for the 4th annual Ski for Parkinson’s event to raise awareness of Parkinson’s and critical funding for the programs and services provided by the Parkinson Association’s Yampa Valley Parkinson Support Network.

LESSONS AVAILABLE AT: 9:00am, 10:30am or 11:30am | LUNCH AVAILABLE AT: 11:00am, 12:15pm or 1:30pmSKI & LUNCH: $75/person (children 6 & under: FREE - supervised activities for kids included) | SKI OR LUNCH ONLY: $50/person Admission Includes: All-day (Cross Country Ski, Skate Ski or Snowshoe) Trail Pass, Nordic Cross Country Ski Lesson, Discounted Rate for Nordic Ski or Snowshoe Rental Equipment, Delicious Buffet Lunch & More!DRAWING TICKETS: $10 for 1, $25 for 3, $50 for 7, $75 for 10 or $100 for 15

REGISTRATION BEGINS: November 15th | FOR MORE INFO & TO REGISTER: www.ParkinsonRockies.org/Ski4PD or (303) 830-1839

SPONSORSHIP OPPORTUNITIES AVAILABLE: For more information contact Carolyn Klingener, Ski for Parkinson’s Coordinator, CarolynKlingener@Gmail.com

LET THE GAMES BEGIN!