eurobioforum 2013 - day 2 | jami taylor
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EuroBioForum 2013 2nd Annual Conference 27-28 May 2013 - Hilton Munich City, Munich, Germany http://www.eurobioforum.eu/2013 ======================================= # KEYNOTE PRESENTATION # Personalised medicine education & training Macro challenges and the path forward Jami Taylor Senior Director, Global Access Policy at Janssen, the Pharmaceutical Companies of Johnson & Johnson Vice-chair of the Education Committee of EPEMED ======================================= http://www.eurobioforum.euTRANSCRIPT
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Personalised medicine education & training
Macro challenges and the path forward
Jami Taylor EuroBioForum Annual Conference Munich, Germany ▪ May 2013
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www.janssendiagnostics.com
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www.epemed.org
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Macro challenges: An overview
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Knowledge gaps are not clearly identified
The guiding lexicon is not yet standardised
The technology is advancing rapidly
Three challenges that complicate personalised medicine education & training today
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Identifying stakeholder knowledge gaps
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Meeting the challenges of personalised medicine education and training in Europe will first require a clearer understanding of where the gaps in knowledge lie, the extent of those gaps and their associated implications.
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The evolving lexicon
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Personalised medicine
Precision medicine
P4 medicine
Individualized medicine
Stratified medicine
Targeted therapy
Terms used to describe this trend in medicine have yet to be standardised or fully clarified
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Personalised medicine confounds familiar categories, and as such will continue to drive a new vocabulary in medicine aiming to capture the phenomena it enables
therapeutics diagnostics theranostics? +
e.g.,
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Rapidly advancing technology
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“One could argue that these technologies are advancing so rapidly that what we teach today will be obsolete by the time personalised medicine is in common practice.” - Kenneth Cornetta, MD & Candy Gunther Brown, PhD
Academic Medicine. 2013;88(3):309-313.
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The path forward
Starting options for consideration
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Assessing the knowledge gaps
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• Using a range of tools, conduct a series of personalised medicine knowledge audits among key stakeholders
• Analyze information collected, identify needs
• Develop personalised medicine education strategy according to the audit’s findings; refine continually based on built-in feedback mechanisms, new information and insights
Recommendations for managing knowledge gaps:
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Personalised medicine knowledge audits among key stakeholders
Patients & patient advocacy groups
.
Medical school students
Medical societies & guideline committees
Practicing clinicians
Surveys
Interviews
focus groups
social listening
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Managing a lexicon in flux
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• Allow for a multiplicity of terms while striving for some standardisation
• Be open to introducing new terms as the technology evolves and as older terms prove inadequate
• As a community, push for clarity as new terms are introduced; test new terms vigorously within and beyond the community to determine which best illuminate the concepts at hand
Recommendations for managing the lexicon:
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Keeping pace with the technology
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Recommendations for educating amid rapid change:
• More powerfully and consistently convey the larger vision of personalised medicine and its transformative potential
• Create resources to help stakeholders keep pace with advances in personalised medicine technology
And more fundamentally:
• Draw from best practices used in other high-tech fields
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Creating resources to inform stakeholders of new advances in real-time
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Drawing on best practices in other high-tech fields
- Steve Jobs Co-founder, Apple 1955-2011
Simple can be harder than complex: You have to work hard to get your thinking clean to make it simple. But it’s worth it in the end because once you get there, you can move mountains.
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Conveying the larger vision
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A vision for all patients, everywhere…
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Thank you