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Ensuring Parents Understand Their Rights 2013 IDEA Leadership Conference Presenters: Terry Harrison, NJ Vanessa Winborne, MI Tamela Griffin , TX Joicey Hurth, Judy Swett & Sharon Walsh

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Page 1: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

Ensuring Parents Understand Their Rights

2013 IDEA Leadership Conference

Presenters:

Terry Harrison, NJ

Vanessa Winborne, MI

Tamela Griffin , TX

Joicey Hurth, Judy Swett & Sharon Walsh

Page 2: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

What strategies are you using to assure that parents understand their rights and safeguards?

Who are you training?

What are your training methods?

What materials, resources are you using?

Page 3: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010
Page 4: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

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Terry Harrison, Part C Coordinator

Page 5: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

SICC – State

Interagency

Coordinating Council

NJDOH Department of Health

Terry Harrison

PART C Coordinator

REICs

SPOE Referral

TTA

Family Support

Data

SCUs EIPs

TETs

Directly funds and/or oversees

Advises and assists

NJ Early Intervention System

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PSO - Procedural Safeguards

Office

Page 6: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

Helpful Hands REIC

Bergen

Hudson

Passaic

Family Link REIC

Essex

Morris

Sussex

Union

Warren

Mid-Jersey CARES REIC

Hunterdon

Mercer

Middlesex

Monmouth

Ocean

Somerset

Southern REIC

Atlantic

Burlington

Camden

Cape May

Cumberland

Gloucester

Salem

Regional Early Intervention Collaboratives

(REICs)

6

Page 7: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

7

4A 4B 4C 4A 4B 4C 4A 4B 4C

SFY 2009-2010 SFY 2010-2011 SFY 2011-2012

State Target 71.00% 67.50% 75.50% 73.01% 69.88% 76.96% 73.01% 69.88% 83.80%

State Performance 66.80% 63.90% 83.40% 69.60% 65.20% 82.70% 70.90% 68.90% 81.80%

0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

New Jersey Family Outcome Trend Data

Page 8: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010
Page 9: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010
Page 10: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

Michigan Part C

Vanessa Winborne, Part C Coordinator

Page 11: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

Michigan Part C known as Early On®

Lead Agency is the Michigan Department of Education

Partner Agencies Departments of Community Health and Human Services

Page 12: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

Competitive Contracts with Wayne State University (Family and Child Outcomes data collection and analyses)

Comprehensive System of Personnel Development with Clinton County Regional Educational Services Agency

Michigan Alliance for Families (PTI)

Page 13: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

Michigan Trend Data on Family Outcomes

Year Target/Actual Data 4A

Target/Actual Data 4B

Target/Actual Data 4C

2005 (Baseline)

56% 51% 73%

2006 56% / 58% 51% / 54% 73% / 75%

2007 60% / 56% 55% / 51% 78% / 72%

2008 65% / 58% 60% / 54% 83% / 75%

2009 70% / 58% 67% / 53% 89% / 77%

2010 58% / 59% 53% / 54% 77% / 78%

2011 58.2% / 62% 53.2% / 56% 77.2% / 78%

Page 14: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

Reason for Video Low Family Outcomes Data – Did not meet targets

Wanted to provide families information outside of local program to provide consistency

Worked with PTI to develop informational video for families.

Accessible via DVD and YouTube

Page 15: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

C-4 Connection Links to C-4 - provides families with the basic

overview of Part C and resources to connect to for additional support.

Page 16: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

Procedural Safeguards Links http://www.youtube.com/watch?v=NJ36DtI45vs&list=

PL0ee8m5Q2n7DV13Y6GkZiRxv2L0rEByrD

Page 17: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

Texas Part C

Tamela Griffin, Director of Policy and Support Texas ECI

Page 18: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

Texas Part C Organization Texas Part C lead agency is Texas Department of

Assistive and Rehabilitative Services (DARS)

Early Childhood Intervention (ECI) is a Division of DARS

Part C in Texas is known as Texas ECI

FY 12, Texas ECI served 49,198 children and families

Page 19: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

Texas ECI System 51 contractors 27 community /state MHMR Centers 5 regional Education Service Centers (ESC) 2 local Independent School Districts (ISD) 15 private non-profit organizations 2 other

Page 20: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010
Page 21: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

Procedural Safeguards Training “Making It Work” Online Training Modules

Infused in all eight modules on the ECI process One detailed module: Procedural Safeguards

“Family Centered Case Management” Training Modules Infused throughout eight modules

Publications ECI Parent Handbook

Video Parent to Parent: Knowing Your Rights

Page 22: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

Reasons for Creating Video Parents Rights Handbook was no longer meeting needs of

ECI Needed more family-friendly method to explain rights Wanted a format that was easy to access Wanted a way to relate information to family Received input from families

Video

Describe parents rights in easier to understand format and helped providers better explain rights

Provide examples and related information to families Delivery by parent made it more family-friendly Provided easy access on website and on DVD

Page 24: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

2007-2008 2008-2009 2009-2010 2010-2011 2011-2012

Target C 80.0% 82.5% 82.5% 82.5% 85.0%

Actual C 91.0% 91.1% 84.7% 86.5% 83.7%

50.0%

55.0%

60.0%

65.0%

70.0%

75.0%

80.0%

85.0%

90.0%

95.0%

100.0%

Texas Family Outcomes Item C Trend Data

Page 25: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

Explaining Safeguards to Parents: A Step by Step Model

TA tool developed by NECTAC

Developed to help providers recognize the many opportunities to explain Rights and Safeguards throughout the flow of the Early Intervention Process

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Page 26: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

Understanding and Explaining Rights and Safeguards to Families

Procedural Safeguards are much more than “paper work”

Rights and Safeguards represent the values and professional ethics underlying Part C Early Intervention Services

TA tool for simple, family friendly explanations of rights and safeguards

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Page 27: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

Resources Part C Resources for Parents and Training Materials: A

sampling of materials from State websites

Implementing procedural Safeguards: A Step by Step Model

Understanding Procedural Safeguards:

Examples of Explanations and Implications for Families

Page 28: Ensuring Parents Understand Their Rights · Camden Cape May Cumberland Gloucester Salem Regional Early Intervention Collaboratives (REICs) 6 . 7 4A 4B 4C 4A 4B 4C 4A 4B 4C SFY 2009-2010

Next Steps? Considering the strategies

and materials discussed, what ideas or plans are you going to take home?

What TA is needed?

What resources and materials are needed?