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NGOCBM, MITHRA
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SUCCESS STORY
Mr. N. Ilango, M.A, M.Phil, PGDTE.,Managing Director,ACE Panacea Soft Skills Pvt. Ltd.
March 2011 ♦ Enabled
Today’s Chennai is a fast growing city. Amongst the life living in chennai, a person named Mr.Ilango, who doesn•ft know how the day and night looks in chennai, training the budding students toget a job. Yes, he is a visually challenged person.
He is a different person among the differently abled people. From his childhood he faced manyhurdles in life. His mother gave the vision of how to lead his life. She trained him to do his work byhimself.
He is a good speaker. Many people awaits to heed his speech in many colleges, Industries. Hemade exposures in Media,News,Television.He got graduated in English Literature. The way hespeaks in English make others admire. He acts as a backbone of ACE Panacea soft skills Pvt.. ltd.,Director. He trains the budding students in 19 colleges through his company.
The gift within him is “ Good Singer”, from 1995. He sings in Tamil, Malayalam, Telugu and Hindi.He mesmerized the people of Dubai, Malaysia, Singapore, Thailand through his voice. He createdalbums of “Pookalin Mozhi” , “Kasada Thabara” .In addition to this, he gives voice over toadvertisements. Through his company,15000 students,3000 Teachers and more than 2000 corporateemployee get trained in English.
Differently abled people should express their talents and should grow high to reach the heights inthe world. Yes,Mr.Illango lives as an example for the differently abled people. Even though, he livesin dark,he gives light to the other people.
Visually Challenged gives Vision
Think twice, work hard and be the success yours.
A Living InspirationAs a SingerAs a Trainer
As a Voice over Artist
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MR. DINAKAR, IRPS.,SOUTHERAN RAILWAYS,CHENNAI.
“ Presently, the blind candidates can take the exam in six centres in thecountry. But, until 2002, blind candidates had to necessarily take theirexams in New Delhi only. Shri. Dinakar, therefore, had to travel at least fivetimes to Delhi for the exams. ”
Shri. T.D. Dinakar was born on 5th February 1969 in Coimbatore. During the last semester of his graduationand immediately soon after, while he was pursuing his I.C.W.A. I course, he witnessed difficulty in reading books.It was diagnosed by doctors that he suffering from a rare eye disease called “Macular Degeneration” and there isno scope of recovery or prevention of further degeneration. From the very first year of his joining the insurancecompany, he competed for promotion to the post of Stenographer on equal terms with his sighted colleagues.Whereas his colleagues would take the stenography skill test in Pitman•fs shorthand, Shri. Dinakar would take thesame in Braille shorthand. Though he would pass the skill test every time, he would not be able to get promotion,as he would b the junior most among the employees, who were successful in the skill test. After his fourthsuccessful attempt in the skill test, Shri. Dinakar was promoted as Stenographer in Oct. 1999.
SUCCESS STORY
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Photograph by
Sathasivamwww.enabled.in
Being now aware that the visually impaired can appear for the CivilServices examination, Shri. Dinakar started preparing for the exams in Aug. 1999.Since Brailling or recording of the voluminous books was impossible, all his familymembers and friends would read out the books and Shri. Dinakar would listen tothem and assimilate the subjects. He made his first Civil Services attempt in May2000, but was unsuccessful. He made his second attempt in May 2001, clearedboth the preliminary and main examinations and appeared for the Interview in May2002. Even though he was the only visually handicapped candidate among the1200 or so candidates, who appeared for the interview, Shri. Dinakar found himselfnot recommended by UPSC for posting.
He represented before The Chief Commissioner for Persons withDisabilities, but in vain. He, therefore, filed a civil writ petition before the DelhiHigh Court in July 2003 and after a long drawn-out legal battle with UPSC andUnion of India, Shri. Dinakar was offered Group A posting in the Indian RailwayPersonnel Service. He joined the Railway Staff College, Vadodara in March 2007 asProbationary Officer and after successful completion of his training, he was postedin Southern Railway Headquarters, Chennai as Asst. Personnel Officer/System in-charge of computerisation of Personnel Department. Recently, he was promoted asDivisional Personnel Officer and has been posted to Chennai Division, SouthernRailway.
The special mention about Shri. Dinakar Civil Service attempt lies in thefollowing three different situations faced by him and the blind of today face:
1. The blind candidates today are given a separate question paper in thepreliminary without questions containing graphs or pictures. But, Shri.Dinakar had to answer the same question paper as the sighted candidateswould do.
2. Unlike today, there was no reservation for the blind in Civil Services in 2001.
3. Presently, the blind candidates can take the exam in six centres in thecountry. But, until 2002, blind candidates had to necessarily take theirexams in New Delhi only. Shri. Dinakar, therefore, had to travel at least fivetimes to Delhi for the exams.
In addition to his pursuit in academics and career, he was also passionatelyinvolved in the developmental and welfare activities for the blind in Coimbatore.He was an active member of the National Federation of the Blind for the periodfrom 1993 and 2005. He raised funds and materials for the Braille Library and Notebook unit of NFB, Coimbatore. He also personally approached the ophthalmologistsand eye hospitals in Coimbatore in a desire to rehabilitate the newly blind. Heplayed a very active role in the 18th All-India Conference of NFB, which was held inCoimbatore in Oct. 2003, where more than 1500 members participated.
Until he joined Railway Staff College, Vadodara in March 2007, he was anadviser of Parasparam Public Trust, a charitable institution in Coimbatore and aTrustee of UDIS Foundation founded under the Managing Trusteeship of Dr. M.N.G.Mani, the Secretary General of International Council for Education of the VisuallyImpaired. He is presently a member of Association for the Rights of the VisuallyChallenged (ARVIC), Coimbatore. Further, he and his colleagues in the insurancecompany would collect money from their colleagues on monthly basis and carry outwelfare activities every year.
Never Give up Mr. Dinakar, IRPS.,
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How to Educate Blind and Deaf People
Deaf and blind people fall into a broader category known as sensory impaired persons. Sensory impairmentsof this type actually fall into three different typologies, those who have blindness, those who havedeafness, and those who have both blindness and deafness known as the deaf-blind. For each of thesecategories of visual impairment, the individuals have differing learning needs; however, some facets ofeducating blind and deaf people remain the same across all of these types of sensory impairment
Instructions (Baseline)1. Identify the condition of blindness, deafness, or the combination deaf-blindness early on to provide abaseline for educational opportunities that can best serve the needs of the individual who has a sensoryimpairment as indicated at the Division on Visual Impairments website.
2. Identify the principles of education that pertain to the form of sensory impairment of the student youplan to procure education for. Educating blind individuals, for example, under the broader category ofvision-impaired persons, as well as educating deaf-blind persons both have a set of principles thatplaces a value on professional partnerships between educators and families. Educating both blind anddeaf-blind persons also operates under a set of principles that involve individual assessment and achoice of different forms of learning as mentioned both at the Division on Visual Impairments and theEbility websites.
3. Acquire the necessary skills to enable you to communicate with the individual who has a sensoryimpairment. Family members as well as educators need to learn such communication techniques asfinger spelling and an appropriate form of sign language in the case of deaf of deaf-blind persons becausethese individuals must communicate in a tactile way rather through auditory communication. Blindindividuals who have no hearing impairment can, however, learn through audio communication but mustuse another communication method to learn from written materials such as Braille or the use of recordedreading of texts. Educate the blind, deaf, or deaf-blind person, if a child, in the home as well as througha qualified educational program (refs 1 and 2).
4. Investigate the available programs locally to the sensory impaired individual and assess which programor programs best suit the way in which the individual blind, deaf, or deaf-blind person prefers to learn. Alleducators working with sensory-impaired individuals must have qualifications in the kinds ofcommunication necessary to teach sensory-impaired individuals as well as having the qualificationsrequired for any teaching position as mentioned at the Division on Visual Impairments, the Ebility, andthe Baylor university website.
5. Determine the enrollment criteria for the educational program you have identified as the best fit forthe deaf-blind person you are procuring education for. Obtain any registration or application forms andprovide the completed forms to the program. Also obtain from the program’s support personnel, such asregistration personnel, at this same time information about any financial support programs available toassist in the payment of any tuition involved.
6. Continue to provide support of the sensory impaired individual’s education through a formal educationalprogram by providing ongoing work in the home with educational materials. Blind individuals with nohearing impairment may also have access later in their educational progression to individuals who canread to them in person from textbooks through state-funded programs.
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How to Use Crutches, Canes, and Walkers
If you ever break a bone in your leg or foot, have a surgical procedure on your lower limb, or suffer astroke, you may need to use crutches, a cane, or a walker. In the beginning, everything you do may seemdifficult. But, with a few tips and some practice, you will gain confidence and learn to use your walking aidsafely.
General Guidelines :
• Remove scatter rugs, electrical cords, spills, and anything else that may cause you to fall.
• In the bathroom, use nonslip bath mats, grab bars, a raised toilet seat, and a shower tub seat.
• Simplify your household to keep the items you need handy and everything else out of the way.
• Use a backpack, fanny pack, apron, or briefcase to help you carry things around.
CRUTCHES:If an injury or surgical procedure requires you to keep your weight offyour leg or foot, you may have to use crutches. Proper Positioning: The topof your crutches should reach between 1 and 1.5 inches below your armpitswhile you stand up straight. The handgrips of the crutches should be evenwith the top of your hip line. Your elbows should bend a bit when you use thehandgrips. Hold the top of the crutches tightly to your sides, and use yourhands to absorb the weight. Don•ft let the tops of the crutches press into yourarmpits.
Walking: Lean forward slightly and put your crutches about one footahead of you. Begin your step as if you were going to use the injuredfoot or leg, but shift your weight to the crutches instead of the injuredfoot. Your body swings forward between the crutches. Finish the stepnormally with your non-injured leg. When the non-injured leg is on theground, move your crutches ahead in preparation for the next step.Keep focused on where you are walking, not on your feet.
Sitting: Back up to a sturdy chair. Put your injured foot in front of youand both crutches in one hand. Use the other hand to feel for the seatof your chair. Slowly lower yourself into it. Lean your crutches upsidedown in a handy location. (Crutches tend to fall over when they arestood on their tips.) To stand up, inch yourself to the front of the chair.Hold both crutches in the hand on your good leg side. Push yourself upand stand on the good leg.
Stairs :To walk up and down stairs with crutches, you need to be both strong and flexible. Facing thestairway, hold the handrail with one hand and tuck both crutches under your armpit on the other side. Whenyou•fre going up, lead with your good foot, keeping the injured foot raised behind you. When you•fre goingdown, hold your injured foot up in front, and hop down each stair on your good foot. Take it one step at atime. You may want someone to help you, at least at first. If you•fre facing a stairway with no handrails,use the crutches under both arms and hop up or down each step on your good leg, using more strength. Aneasier way is to sit on the stairs and inch yourself up and down each step. Start by sitting on the loweststair with your injured leg out in front. Hold both crutches flat against the stairs in your opposite hand.Scoot your bottom up to the next step, using your free hand and good leg for support. Face the samedirection when you go down the stairs this way.
ENABLED HOW
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WALKERS :
If you have had total knee or hip joint replacement surgery, or you have another significant problem, youmay need more help with balance and walking than you can get with crutches or a cane. A pickup walkerwith four solid prongs on the bottom may give you the most stability. The walker lets you keep all orsome of your weight off of your lower body as you take your steps. You use your arms to support someof the weight. The top of your walker should match the crease in your wrist when you stand up straight.Do not hurry when you use a walker. As your strength and endurance get better, you may gradually beable to carry more weight in your legs.
You may find it helpful to use a cane if you have a small problem with balance or instability,some weakness in your leg or trunk, an injury, or pain. If you are elderly, a single pointcane may also help you to keep living independently.
Proper Positioning : The top of your cane should reach to the crease in your wristwhen you stand up straight. Your elbow should bend a bit when you hold yourcane. Hold the cane in the hand opposite the side that needs support.
Walking : When you walk, the cane and your injured leg swing and strike theground at the same time. To start, position your cane about one small stride aheadand step off on your injured leg. Finish the step with your normal leg.
Stairs : To climb stairs, grasp the handrail (if possible) and step up on your good legfirst, with your cane in the hand opposite the injured leg. Then step up on theinjured leg. To come down stairs, put your cane on the step first, then your injuredleg, and finally the good leg, which carries your body weight.
CANES:
Walking : First, put your walker about one step ahead of you, making surethe legs of your walker are level to the ground. With both hands, grip thetop of the walker for support and walk into it, stepping off on your injuredleg. Touch the heel of this foot to the ground first, then flatten the foot andfinally lift the toes off the ground as you complete your step with yourgood leg. Dont step all the way to the front bar of your walker. Take smallsteps when you turn.
Sitting : To sit, back up until your legs touch the chair. Reach back to feel theseat before you sit. To get up from a chair, push yourself up and grasp thewalkers grips. Make sure the rubber tips on your walkerfs legs stay in goodshape.
Stairs: Never try to climb stairs or use an escalator with your walker.
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Though blind people in India, just like most Indians, have been alwaysinterested in the game of cricket, it wasn•ft until a few years back that cricketfor the blind got attention, and was also documented and widely reported.
Blind people were initiated to the game of cricket primarily through radiocommentaries. They soon found a way of playing the game by replacing theball with an empty tin and using a stick as a bat. Using an empty tin in placeof ball was necessary because of the need for audio clues to play the game.A usual cricket ball wouldn•ft make the amount of noise necessary for a visuallyimpaired person to make out the whereabouts of the ball and play the game.This was the beginning of the audio game of cricket in its most primitive formin India.
Over the years, the empty tin was replaced by audio balls, and bats wereused in place of sticks. National Institute for the Visually Handicapped (NIVH),Dehradun, developed the audio ball that is now accepted as the internationalstandard. This ball is made of hard plastic with ball bearings inside.
Some of the aspects of the game have been modified to make it suitable forthe visually impaired. The modifications are:
* The ball is made of hard plastic and filled with ball bearings so that itmakes noise when it moves. * The wickets are screwed together to ensure they are aligned. * The boundaries are 45 yards from the pitch. * Bowling is underarm and the ball has to pitch once before the mid pitch. * The bowler gives an audio clue before bowling and the batsmen gives anaudio clue when he is ready.
Cricket for the blind is a direct result of blind people•fs love for this game.They also play the game well, with complete devotion and sportsmanship. Itnot only helps them in their all round development, but is also a tool to remindthe society of their skills and abilities.
SPORTS BLIND CRICKET
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South zone cricket tou held on 27th to 30th December 2010 at chennai, in collaborationwith Cheran Region Christian Society(CRCS) for the disabled and Department of Social Work,Madras Christian College,chennai. Persons with Visual impairment from Tamil Nadu, Kerala,Karnataka, Andhra Pradesh will be participated in the event.
Sports and recreation has value in everyone’s life and it is even more imporatant in the lifeof persons with disablility, as sports develop confidence and independency in individuals, helps indeveloping the self-esteem and boosts up individual’s ability to overcome difficulties.
Its also a place where different people come together, know each other, get accustomed todifferent situations and develop their personnality skills.A platform for development amongpersons with visual impairment is created by TCAB and getting different persons with visualimpairment from the the Southern States will be good platform for the players to exhibit theirtalents, be recognised and also be able to participate in National Level sports events.
Tamil nadu blind cricket team - Runner
SPORTS BLIND CRICKET
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Andhra blind cricket team - Winner
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Photograph by
Sathasivamwww.enabled.in
Photograph by
Sathasivamwww.enabled.in
SPORTS WHEELCHAIR TENNIS
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Photograph by
Sathasivamwww.enabled.in
Indian Ranking in Singles : 01
Wheelchair Tennis - S. Balachandar
Current ITF Ranking in Singles : 419Current ITF Ranking in Doubles : 412
Tournament Singles ( Main Draw) Doubles (Main Draw)
RCMIC President’s Cup Winner Winner
Asian Para Games Participated Participated
2nd AITA-TNTA NationalChampionship Winner Winner
3rd Srilankan Open 2010 First Round Quarter Finalist
1st Paralympic NationalWheelchair Tennis Tournament Winner Winner
10th Malaysian Open 2009 Runner Semi Finalist(Bronze Medal)
2nd Srilankan Open 2009 Quarter Finalist Semi Finalist(Bronze Medal)
2nd Chennai Open WheelchairTennis Championship Winner Winner
9th Malaysian Open 2008 2nd Round Semi Finalist(Bronze Medal)
8th Malaysian Open 2007 2nd Round 2nd Round
9th FESPIC GAMES 1st Round 1st Round
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SPORTS WHEELCHAIR TENNIS
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Photograph by
Sathasivamwww.enabled.in
Indian Ranking in Singles : 02
Wheelchair Tennis - D.Mariappan
Current ITF Ranking in Singles : 419Current ITF Ranking in Doubles : 412
Tournament Singles ( Main Draw) Doubles (MainDraw)Tournament Singles ( Main Draw) Doubles (MainDraw)Tournament Singles ( Main Draw) Doubles
RCMIC President’s Cup Runner Winner
Asian Para Games Participated Participated
2nd AITA-TNTA National Championship Runner Winner
3rd Srilankan Open 2010 Participated QuarterFinalist
1st Paralympic NationalWheelchair Tennis Tournament Runner Winner
10th Malaysian Open 2009 Quarter Finalist Semi Finalist(Bronze Medal)
2nd Srilankan Open 2009 Quarter Finalist SemiFinalist(Bronze Medal)
2nd Chennai OpenWheelchair Tennis Championship Runner Winner
9th Malaysian Open 2008 2nd Round Semi Finalist(Bronze Medal)
Coaching Venue : SDAT Tennis Ground
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Working with persons with disabilities, CBM advocates for their inclusion in all aspects of society. CBMsupports around One thousand projects in 113 countries in Africa, Asia, Latin America, and EasternEurope. Through its partner organisations, CBM currently reaches 18 million people and aims to reachmany more in the coming years.
Fields of Work:
CBM uses comprehensive, sustainable, and community-focused approaches, which contribute to povertyalleviation and self-reliance. CBM partners develop high-quality preventive, curative, educational,rehabilitative, livelihood, and advocacy programmes, which are designed to maximise the quality of life ofpersons with disabilities.
Alliance Partners and Global Programmes:
CBM cooperates with UN agencies, global organisations, and “disabled people organisations” topromote and develop international alliances and programmes with and for persons with disabilities. CBMis recognised as a Collaborating Organisation by the World Health Organisation and has consultativestatus with the United Nations Economic and Social Council (ECOSOC). In cooperation with the WorldHealth Organisation (WHO) and as a member of the International Agency for the Prevention of Blindness(IAPB), CBM founded and launched “Vision 2020: The Right to Sight”. The goal of Vision 2020 is toeliminate avoidable blindness by the year 2020. CBM is also working with WHO and other stakeholders tocreate an international initiative for the provision of affordable hearing aids for hearing-impaired peoplein low-income countries - “WWHearing” (World-Wide Hearing Care for Developing Countries). CBM ispromoting and funding “Vision 2030” Sound hearing project, aiming to eliminate avoidable hearing lossby the year 2030.
CBM in India...
In 1967 CBM started its work in India through its regional office. The Regional Offices support and workwith local NGO associates in areas of medical, educational and vocational rehabilitation of persons withdisabilities thereby improving the quality of life. Medical rehabilitation is presently focused in preventionand cure of Blindness and Deafness, whereas corrective surgeries are done and aids and appliances areprovided to persons with physical disability. Integrated/inclusive education is given prominence whenrelated to educational rehabilitation. These activities are conducted through Institution based as well asCommunity based rehabilitation.
Currently, the South regional office is working on 113 different projects in India in Tamilnadu , Kerala,Andhra Pradesh, Karnataka, Maharashtra and 13 projects in Sri Lanka.
CBM is an International Organisation, whose vision is “Aninclusive world in which all persons with disabilities enjoy theirhuman rights and achieve their full potential”. CBM works withpartner organisations in low-income countries to ensure thatpersons with disabilities and their families have ready accessto:Affordable and comprehensive health care and rehabilitationprogrammes, Quality education programs, and Livelihoodopportunities.
NGO CBM INTERNATIONAL
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1908-2008, 100 years of commitment and expertise
CBM, together with its partners has addressed the most urgent needs and initiated new means ofservice delivery and inclusion for their target group.
Mainstreaming disability:
Inclusive Education ©CBM / Argum / Einberger
Low vision boy Karthik standing with girl by blackboard
CBM helps mainstream disability:
* By supporting, guiding, monitoring, evaluating and providing counsel to over 173 Partner NGOs.These comprise of ophthalmologists, paramedics, hospital administrators, teachers, trainers, resourcepersons, grass root level field workers and others, in the areas of medical, educational and vocationalrehabilitation of persons with disabilities thereby improving the quality of life.
* By networking with other INGO and the Government policy-making bodies.
* In consultation with the regional office national and international cadre of advisers/consultants/trainers who come recommended with a high sense of professional expertise in their respective fields.
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Madras Institute To Habilitate Retarded Afficted,MITHRA-as it is popularly know asans referred to is celebrating its 25th year in the service to young and old citizens ofMadras. MITHRA in ancient Sanskrit means friendship. MITHRA in chennai is a place oflaughter and friendship-a place of devoted workers and happy children.
Founded by Sr.Mary Theodore,OAM ,an Australian missionary in 1977,MITHRA hasmatured from humble beginnings, through the sheer determination,compassion for theunfortunate ,and able assistance of dedicated band of service -minded persons,into aninstitution that today has the ability to leave an indelible impression about devotion to thecause of nurturing the basic abilities of children and young peoples who are afflicted bydisabilities that are not of their own making,and yet relegate them to a position in theireffort to be normal.
The out-patient department equipped with a lab,ECG and X-ray is open to externalpatients who can avail of all test and treatment facilities that are available. The team ofconsultant doctors that offers, to both inmates as well as external patients includespecialists in psychiatry,child diseases, orthopedics, paediatrics, dentistry besides generalpractitioners. Simulated exercises through play methods,and various other trainingsystems for eye-hand coordination,gait training,balance,development of delayedmilestones.
The physiotherapy department includes facilities fro Hydrotherapy, Short warediathermy-heat therapy,traction, interference therapy,ultrasound,and wax bath. Theschool offers facilities for varied types of institution depending upon the ability of the childand absorption levels. Each child is personally attended to by a teacher and groups arekept small so that singular attention can be afforded to each child. MITHRA play library hasbeen in operation to provide the children of MITHRA with the opportunity to play within aleast restrictive environment.
Mithra conducts an eighteen month multipurpose Rehabilitation Workers diplomacourse (MRW) in recognition with RCI Delhi. Vocational training is given to older children inthe areas of carpentry,needle work,block printing, greeting card making, candle makingans envelope making. Encouragement is always at hand, each child is examined forsuitability to a craft and also potential of the field to provide some income sustenancewhen the child moves into the outside work ambiance.
The institute has an in- house manufacturing facility fro production of calipers /crutches and other aids and appliances like standing frames,walkers, wheelchairs, cornerseats, tailored to suit each and every child. Inmates are provided all meals on campus.Diets are carefully worked out to ensure that balance foods aid the child both physicallyand mentally. All medical administration required by the children are administered bytrained nurses at the prescribed times. The dormitory facilities for resident children arewell-aired , maintained clean and always attended to by watchful helpers who assist thechildren in many ways, from daily routines to conversation and entertainment.
NGO MITHRA FOUNDATION
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Sister Mary Theodore•fs •gdream•h started 28 years ago and much has been achievedby her since. Amongst other recognitions, she was awarded, in October 1991, the Medal ofthe Order of Australia for the service to international relations, particularity to children withdisabilities in chennai. Sister Mary Theodore is ever looking for financial assistance formevery quarter that is willing to contribute its might to the cause of the needy. Today ,MITHRAcan offer medical assistance and counsel of an advanced level,be it fundamental orthodonticservices,or treatment of minor ailments, or other more serious afflictions like Polio,Cerebral
Palsy,Speech Deficiency,and Spastic treatment.
MITHRA, is an NGO in Anna Nagar working towards the total rehabilitation ofmentally and physically challenged children for 32 years.It has recently expanded itsservices by providing “Remedial Education” to children with learning disabilities,Autism,ADHD,mental retardation in our campus from 8.00 a.m to 8.00 p.m. This programis an extension of the OCCUPATIONAL THERAPY Unit at MITHRA.The therapist use variousadvanced technique like cognitive therapy, behaviour, modification,sensory integrationapproach etc. The AIM is to maximize the abilities of these children and minimize theirdisability and also depending on the individual to make them as independent as possible.
I asked God for Strength, that I might achieve
I was made weak, that I might learn humbly to obey.
I asked for health, that I might do greater things
I was given infirmity, that 1 might do better things.
I asked for riches, that I might be happy
I was given poverty, that I might be wise.
I asked for power, that I might have the praise of men
I was given weakness, that I might feel the need of God.
I asked for all things, that I might enjoy life
I was given life, that I might enjoy all things,
I got nothing that I asked for-but everything I had hoped for
Almost despite myself, my unspoken prayers were answered.
I am among all people,
most richly blessed.
For futher details Contact:
MITHRA CHALLENGE TO CONQUER(Madras Institute to Habilitate Retarded Afflicted)D 171, R.V Nagar, Anna Nagar, Chennai - 25“0ö25“� 600 102.Phone : 2663 3967 / 2663 3708 Fax : 2663 2368
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CENSUS 2011 9TH QUESTION
Photograph by
Sathasivamwww.enabled.in
CENSUS 2011 9TH QUESTION
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The Silent Speaker
Abhinaya, theSilent Speaker inkollywood broke thesilence barrier throughher carrier in Nadadigal.
This silent Speaker,born in Kadalur. By born,she is deaf and dumb butgods gifted gift is herinborn talent. She wasinterested in Modeling.Her parents encouragedher for modeling and thismade first stepping stoneto explore herself to theoutside world.
By seeing her expressive photos, Samudrakanni made her to act as aheroine in Naadodigal. He trained herto act and made an impressive role inthe film. She broke the fact thatcommunication is not a barrier to actin the films. Yes, the proverb Wherethere is a way, there is a will suitsAbhinaya well.
She is challenging role model for thephysically challenged people. The
willpower in her will reach heights without any boundaries in her life.
Yes,Where there is a wil, there is a way
- Sathasivam from www.enabled.in
Information on manufactures, suppliers and distributors of aids and appliances requiredby persons with disabilities
TextHelpThe International Society for Alternative andAugmentative Communication. The worldwideleader of literacy software solutions. Developinnovative, assistive software to supportindividuals with their reading, writing and researchskills in Education, the Workplace and at Home.The software supports struggling readers, thosewith literacy difficulties, dyslexia and whereEnglish is a second language.
WebSite:http://www.texthelp.com/
IntelliTools
IntelliTools has been a leading provider of hardwareand software giving students with special needscomprehensive access to learning. A pioneer inlearning solutions for the diverse classroom, hasbeen producing award-winning classroom tools forpreK-8 education for over 25 years. Early on,IntelliTools designed products for students who facechallenges ranging from learning disabilities tosignificant physical disabilities
WebSite:http://intellitools.com/
Closing The Gap
Computers are tools that can provide solutions tomany problems facing people with disabilities today.Closing The Gap, Inc. is an organization that focuseson assistive technology for people with specialneeds through its bimonthly magazine, annualinternational conference and extensive Web site.
WebSite:http://www.closingthegap.com/
RESOURCE ASSISTIVE TECHNOLOGY
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Disability India
A great site with a centralized index (searchdatabase) of disability organizations in India. Hasa Message Board and a Discussion Thread, aforum where parents and organizations can sharetheir information and experiences
WebSite:http://www.disabilityindia.org/
W3C
The Web Accessibility Initiative (WAI) workswith organizations around the world to developstrategies, guidelines, and resources to helpmake the Web accessible to people withdisabilities..
WebSite:http://www.w3.org/WAI
Natural Soft
NaturalReader is a Text to Speech software withnatural sounding voices. This easy to usesoftware can convert any written text such as MSWord, Webpage, PDF files, and Emails into spokenwords. NaturalReader can also convert anywritten text into audio files such as MP3 or WAVfor your CD player or iPod.
WebSite:http://www.naturalreaders.com/
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RIGHT TO LIVE?A barrier is an inaccessible or inhospitable physical or social
environment which prevents full and effective participation of aperson with disability in society.
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Photograph by
Sathasivamwww.enabled.in
ADVO
Explanatory Note to the Working Draft of the Rights of Persons
with Disabilities Act
In view of the fact that the legislation is too large to have
a section by section commentary in this explanatory note a prose
description of the legislation with some analysis is being provided
in order to give a bird’s eye view of the working draft.
A barrier is construed differently in different situations and
by different people. A barrier is an or inhospitable physical or
social environment which prevents full and effective participation
of a person with disability in society. It could also be stated as
those factors in the complete social and physical context or
environment in which that person lives his everyday life, which
restrict such person from full participation.
These barriers may be in the spheres of architecture, economics,
politics, culture, social norms, aesthetic values, and
assumptions about ability. could be cultural attitudes and social
behavior, institutionalized rules, practices, procedures of public
organizations and private entities. It could be considered the
political, economic and material forces structured to serve an able-ist society that exclude persons
with disabilities in every sphere. The barriers could be related to accessibility, attitude,
transportation, support, or infrastructure.
March 2011 ♦ Enabled 33
PRINCIPLES OF INTERPRETATION
AND IMPLEMENTATION
First part: Equality, Dignity and
Legal capacity are the fundamental
principles that anyone interpreting
any provision
under this Act
must be cognizant
of. The statue
being a rights-
based one, it is
crucial that rights
must be given the
widest amplitude
and the restriction
be construed in
strict terms. The
benefit of the
doubt must
therefore operate in the favour of
the person with disability. While
we are in the process of effecting a
diametric change, it is prudent that
the benefits of the past must be
salvaged and not abandoned. The
fact of new legislation must not be
understood to have eliminated or
extinguished any existing rights,
benefits or privilege enjoyed by the
persons with disability.
Second Part: This idea of this part
is to elucidate the legal materials
that the adjudicative body should use
while deciding upon any dispute
under this Act. Since, the statement
of purpose and the preamble of this
Act express the philosophy,
motivations and objects behind this
Statute, it was thus considered
important that these should be borne
in mind while adjudicating to so that
the statute is given effect in both
letter and spirit.
LIFTING THE BARRIERS:
Awareness Rising:
The Awareness Raising Chapter is
primarily speaking about why it is
required; who should be doing it;
who needs it and how should it be
done.
Accessibility: is amongst the longest
chapters of the draft it has adopted a
comprehensive approach. It begins
with stating how accessibility is an
essential pre-condition to enable
persons with disabilities to live
independently and participate fully in
all aspects of life. Consequently
persons with disabilities shall be
provided such
accessibility on an
equal basis with
others to the
p h y s i c a l
e n v i r o n m e n t ;
t r a n s p o r t a t i o n ;
information and
communications,
i n c l u d i n g
information and
communications
technologies and
systems, and other
facilities and services open or
provided to the public, both in urban
and in rural areas. The chapter then
mandates the Disability Rights
Authority to sets up standards and
accessibility guidelines for a range of
premises. These premises included:
all buildings and facilities used by the
public; temporary or emergency
conditions as well as permanent
conditions; all new community
residential places and private
residences; road based transport;
aviation; railways; pedestrian
infrastructure and rural public
transport system.
March 2011 ♦ Enabled 34
Women withDisabilities:
Like the CRPD, the
legislation has adopted the twin
track approach to address the
concerns of women with disabilities.
This dedicated provision has been
provided to address the concerns of
disabled women generally and to
reaffirm the guarantee of equality
and non-discrimination.
Children with Disabilities:
Keeping in view the vulnerability, and
the multiple forms of
discrimination faced by
the children with
disabilities, it is required
that a double-twin track
approach be adopted in
the Act. This entails that
children with disabilities be included
in general provisions throughout the
Act, there be a specific chapter
dedicated to children with
disabilities and simultaneous
amendments be made in legislations
which affect them. This approach not
only mandates provision of specific
rights and programmes for CDs but
also ensures their inclusion in
general implementation of rights.
LEGAL CAPACITY AND CIVILPOLITICAL RIGHTS:
This part begins with the
recognition of legal capacity of
persons with disabilities and then
proceeds to legislate on the various
civil political rights guaranteed both
by the Indian Constitution and the
CRPD. What is important to note in
the manner in which these rights
have been addressed that the State
is not being asked to leave the
person with disability alone rather
various kind of positive interventions
are being sought to render the rights
real. Also a constant connection
between the right to a meaningful
life and right to education,
rehabilitation, social security has
been made.
Right to Life:
KEEPING IN MIND THE ABOVE, CLAUSE 1 HAS
BEEN DRAFTED TO CONTAIN A GENERAL
ENUMERATION OF THE RIGHT TO LIFE, WHEREAS
CLAUSE 2 DRAWS THE CONNECTION BETWEEN LIFE
AND DIGNITY AND THEREBY EXPANDING THE
MEANING OF LIFE.
The right to life
conceptualization for persons with
disabilities must reflect upon the
value of a disabled life and its quality.
It must cut across prejudicial notions
about disabled life when viewed
through a medicalised lens. At the
same time, any formulation must be
in consonance with the UNCRPD
mandate which obligates state
parties to ensure the actual use of
this right. Thus the guarantee of right
to life must operationalize the right
in fact by
helping createa n
environment
w h i c h
s u p p o r t s ,
protects and
provides for a thriving disabled life.
For this aim, it is useful to turn to
Article 21 of the Constitution and its
jurisprudence developed by the
Supreme Court of India. An effective
enunciation of right to life can be by
drafting or using the evocative
language that has been used by the
Supreme Court of India and extending
it to persons with disabilities. It is
plausible to use the Francis Coralie
Mullin language since it has been
invoked in other disability
judgements of the Apex Court.
“EFFICIENT IMPLEMENTATION” &“PROTECTION OF INTERESTS OFMOST MARGINALISED”
Explanatory Note to the Woking Draft of the RP with Disabilities
March 2011 ♦ Enabled 35
Right to liberty:
Article 14 of the UNCRPD mandates
that: first, state parties shall ensure
that persons with disabilities enjoy
the right to liberty and
security of person;
secondly, they are not
deprived of their liberty
unlawfully or arbitrarily,
and that any deprivation
of liberty is in conformity
with the law, and; lastly,
that the existence of a
disability shall in no case
justify a deprivation of
liberty. Article 21
jurisprudence on right to
personal liberty is
expansive and allows for
a broad enunciation for
persons with disabilities.
In this light, any right to
liberty formulation must
grapple with two main
issues in relation to persons with
disabilities, first, criminal justice
system (preventive or punitive);
secondly, forcaed institutionalisation
(for providing shelter). Whilst it
involves a close scrutiny of domestic
legislations including inter alia,
Code of Criminal Procedure and the
Mental Health Act, it is clear that the
prevailing UNCRPD standards as
well as Article 21 jurisprudence
demands: first, outlawing forced
institutionalisation since there
cannot be any exceptions to right to
liberty and no deprivation of liberty
is permissible on the basis of
disability; secondly, state•fs
obligation to create a non-restrictive,
non-coercive accessible
environment to guarantee the de
facto realisation of right to liberty
and security for persons with
disabilities. The new law has thus
been framed to unequivocally make
these guarantees identifiable in the
text of right to liberty and security.
Right to Integrity:
Although right to integrity has been
understood as one which is subsumed
within freedom against torture,
exploitation and right
to dignity, it may not
fairly encompass the
entire wherewithal of
“ integrity”. This is
clear from the
distinctive space and
formulation accorded
to Article 17 in the
UNCRPD. Right to
integrity allows
persons with
disabilities to live and
affirm comfortably
their personal
identity, something
which does not
necessarily find
resonance in other
rights and freedoms.
Right to integrity means to be able to
assert or express oneself as a whole
person. The guarantee of integrity
undercuts notions of disabled as
incomplete, abnormal, or deficient; it
commands individuality and respect
for bodies dissimilar to your own.
Integrity would thus require breaking
through the prismatic vision of
normal. To put simply, right to
integrity would mean the right to be
March 2011 ♦ Enabled 36
you as you are.
Recognising the
broadness and somewhat
abstractness of the term integrity, it
has been drafted in a way so that
the general provision is
complemented with illustrations to
give an idea of the terms in which
integrity has to be understood. The
illustrations are necessary and
purposeful to create an environment
which respects the bodily and physic
integrity of
persons with
d i s a b i l i t i e s .
However, their
s p e c i f i c
e n u n c i a t i o n
should be
carefully worded
and cautiously
legislated so as
not to repeat the
objectif ication
problem as faced
in the implementation of the SCST
Atrocities Act.
Right to Privacy:
The section on privacy tries to
incorporate Article 22, UNCRPD which
is also the latest enumeration on
privacy in the international law arena.
Some sub-sections have been added
to ensure that right is realised. Privacy
is broad based and includes within its
ambit informational privacy, bodily
privacy, communication privacy,
sexual privacy etc.
Informational Privacy
The disability of the person is usually
represented as the sole characteristic
of the person, whereas other
individual aspects such as personal,
emotional, intellectual, gender,
sexuality, religion, abilities, potential
and other physical features, are often
undermined if not ignored completely.
Thus it is significant that the PWD
must have the right to control the
information that is disseminated
about them so as to avoid any further
discrimination/ branding/
stereotyping that might have
occurred and also to provide a certain
sense of protection and relief to the
PWD.
Concerns for informational privacy
can arise in various areas such as
media, health (medical records),
employment pre-employment
screening as well as post-
employment screening, websites,
courts etc.
However,
since the
fields are
in no way
l i m i t e d ,
the best
approach
in a
legislation
would be
to state
the basic
principle
on privacy
and mention the other sectors in
illustrations under the main section.
Bodily Privacy/ Physical Privacy
It is essential to understand privacy
as a notion of space and physical
integrity to an individual. This aspect
underplays at various levels in
different areas such as home,
Explanatory Note to the Woking Draft of the RP with Disabilities
March 2011 ♦ Enabled 37
employment, health sector, airports,
security checks etc.
For instance in relation to
residential settings, it is pertinent to
note that in countries where there are
large numbers of people in
institutional care and large numbers
of individuals in wards, it is
necessary to move towards privacy
objectives and measure progressive
realisation of these rights. A broad
legislation on disability might not be
able to cover such a topic in detail
therefore a plausible solution could
be to mention that the government is
mandated to include privacy concerns
in a national housing strategy which
should reflect extensive and genuine
consultation with and participation of
the PWD. To give it an even stronger
footing in the law, a provision for
privacy can also be made in the
chapter for accessibility. Similarly in
medical treatment privacy concerns
arise at every step. These concerns
have been incorporated into the Act
in the illustrations, so that it ensures
that the government can in no way
ignore those measures to be taken.
Sexual Privacy
Persons with disability have been
generally considered asexual brings.
Mainstream society has rarely ever
taken into account the sexual and
reproductive rights of the PWD.
Organisations such as WHO, ECHR
and many Privacy advocates
recognise sexuality as a central
aspect of being human. However, is
not a right which can be legislated
upon. That being said, there is still a
need to guarantee PWD space for
expression of this aspect of privacy
as a person•fs sexual life is an
inherent part of a person•fs life.
A mention of sexual
privacy in the general provision
when drafting the section
achieves two things �
n t i o n “ � f i r s t ,
give a person a right to relief in
case there is any violation and
second, a mention of it would
in turn make it an element to be
taken on board when
constructing houses and
institutions.
An additional provision must be
made for awareness raising and sex
education for PWDs, care givers
and familiesin the Awareness
Raising Chapter of the Act. This
would help bring in a more rooted
change than any other provision.
CAPABILITY DEVELOPMENT:
Education:
The term •gneighbourhood school•h
has been used in the Chapter to refer
to all schools. The term has been
defined in a broad manner to include
all schools in a three kilometer
radius which are equipped to cater
to CWD and also includes which
primarily or exclusively cater to
CWD. The definition has been drafted
broadly in order to give the parents
of the child to the choice to opt either
for inclusive education in any
March 2011 ♦ Enabled 38
neighbourhood
school or for a
school which caters to
CWDs. This element of
choice is aimed at
eliminating the conflict
between special and
inclusive education
since the child has a
right be educated in
either aspecial or an
inclusive school, as
chosen by his parents in
his best interests.
It may be assumed that
the parent is
adequately informed
about the child•fs
disability to choose a
school which is most
appropriate for him or
her.
Employment Work andOccupation
Reservations in employment
Article 16(1) of the Constitution of
India grants its citizens “equality of
opportunity for all citizens in matters
relating to employment under the
State”. Such equality, needless to
mention, is derived from Article 14 of
the Constitution, which provides for
both “formal” and “substantive
equality”. While formal equality
ensures consistency of treatment,
thereby ensuring that no person is
subject to any special disadvantage,
substantive equality recognizes that
“disability results from interaction
between persons with impairments
and attitudinal and environmental
factors.”
Hence, substantive equality seeks to
mitigate “prejudice, discrimination
and disadvantage”
that have resulted in
barriers being placed
to full enjoyment of
human capabilities.
In such a
s i t u a t i o n ,
substantive equality
would allow for both
affirmative action
measures that are
consistent with the
spirit of the
legislation, along
with any reasonable
d i s t i n c t i o n ,
exclusion or
preference on
grounds of an
i n h e r e n t
requirement of the
job. Nationally and
i n t e r n a t i o n a l l y,
provisions that are
made for groups requiring assistance
have been held not to come within
the ambit of “discrimination’. The first
section of this part of the bill thus
provides for both substantive and
formal equality. It allows for 6%
reservation, does away with job
identification and does not permit any
department etc to seek exemption
from the purview of the section.
Explanatory Note to the Woking Draft of the RP with Disabilities
March 2011 ♦ Enabled 39
The first draft brought out by the new law committee has a code and one parent act (PWD
Act) and other acts such as National trust act, Mental health act and RCI ACT are brought
under the code.
1. Now the question is is it practically possible to enact all 5 acts simultaneously and how
effective it would be to operate under 5 different acts. Though the demand of the sector is one
comprehensive law, on what basis did the committee come up with 5 different legislations?
2. The chapters given in the draft don’t give any direction but is yet another general document.
With 4 different ACTs and a code, how much is the powers of one statute binding on the
other?
3. Lots of questions like this emerge on reading the draft. It is necessary that more and more
people read this draft and come up with their rights based comments - rather demands. It is
our law and being the stake holders, we should not let the passage of our legislation without a
proper direction given towards the realization of all human rights and wholistic development
of disabled people.
Smitha.S.S.Assistant CoordinatorDisability Legislation Unit South,Vidya Sagar
March 2011 ♦ Enabled 40
Photograph by
Sathasivamwww.enabled.in
The question
posed to the
Committee in the Explanatory Note to
the Working Draft of the Rights of
Persons with Disabilities Act dated
20.11.2010 (the “Pending Question”)
was as follows
The issue of the induction of the
National Trust and the Rehabilitation
Council as separate chapters could
not be attempted primarily because
there was no time left to undertake a
coherent and systematic exercise. It
may also be noted that as the length
of the statute expanded we felt a
constraint of space in even
incorporating all the provisions of
power and accountability in the
chapter on the Disability Rights
Authority. It may also be noted that
all significant authorities in the
country have dedicated legislations
around them. In this view of the
matter the Committee would need to
consider whether it would wish to suggest the creation of One Disability Law Code and within
which have legislations on: Disability Rights; the Disability Authority; the National Trust; and the
Rehabilitation Council. Or whether it would also wish to induct the National Trust and the
Rehabilitation Council into this legislation?
Opinion: Inadequate time - Time this is an issue of a practical constraint and is something that has
to be worked out within the Committee. I would just state that even if the proposal for a •gCode•h
with multiple legislations is taken up by the Committee, the rights of disabled persons will not be
fully realized till each relevant legislation comprising the “Code” is enacted and/or amended. Timing
wise, therefore, it would seem to make no difference which of the two proposals (a comprehensive
statute or a code) is adopted by the Committee.
- Justice Ajit Prakash Shah
View of Justice Ajit Prakash Shah
March 2011 ♦ Enabled 41