empowering patients to manage their own health data

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Joris van Dam Novartis Institutes for BioMedical Research Empowering patients to manage their own health data 1

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Lightning talk at the 2012 Indivo X User's Conference: using Indivo to back Livestrong's cancer management apps can give patients true control over their health data.By Joris van Dam, Novartis Institutes for BioMedical Research

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Page 1: Empowering patients to manage their own health data

Joris van DamNovartis Institutes for BioMedical Research

Empowering patients to manage their own health data

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Page 2: Empowering patients to manage their own health data

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• Where I can add to that information with my personal experiences, how I feel – so that next time the doctor asks me how I have been, I can actually give a pretty accurate answer.

• Where I can actually use that information to track my own progression, to manage my own health.

• Where I can share that information over and over and over again, with my family doctor, my clinician, the lab technician, my nurse – so I can spare myself the wait for untimely faxes to come through, the effort of providing the same information over and over and over again, the discomfort of having to run painful tests multiple times.

• Where I can access all information about my personal health, no matter who happens to have measured it – whether it comes from my family doctor, the clinician, the lab, ...

Imagine a world...

| LIVESTRONG – SMART – DFCI – NIBR pilot |Indivo X Annual Users’ Conference | June 2012 | Business Use Only

...where I am in full control of my personal Health Data

Page 3: Empowering patients to manage their own health data

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But that is not the world we live in today:

| LIVESTRONG – SMART – DFCI – NIBR pilot |Indivo X Annual Users’ Conference | June 2012 | Business Use Only

Page 4: Empowering patients to manage their own health data

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Such world also holds tremendous promise for facilitating research and advancing science

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| LIVESTRONG – SMART – DFCI – NIBR pilot |Indivo X Annual Users’ Conference | June 2012 | Business Use Only

Page 5: Empowering patients to manage their own health data

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The LIVESTRONG – SMART – DFCI – NIBR pilot

Doing well by doing good.

| LIVESTRONG – SMART – DFCI – NIBR pilot |Indivo X Annual Users’ Conference | June 2012 | Business Use Only