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Kevin E. Vowles, Ph.D. Associate Professor Department of Psychology June 2014 Emerging Psychological Perspectives on Disability & Rehabilitation in Chronic Pain

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Page 1: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Kevin E. Vowles, Ph.D.

Associate Professor Departmentof Psychology

June 2014

Emerging PsychologicalPerspectives on

Disability & Rehabilitationin Chronic Pain

Page 2: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Radical Idea?

• or many with chronic pain, pain intensity may be viewed as an untreatable symptom.

Page 3: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Consider this:

• Chronic pain is frequent.e.g., Breivik et al., 2005, Eur J Pain

• For approx 85% of chronic pain sufferers, pain appears permanent.

e.g., Andersson, 2004, Eur J Pain; Elliott et al., 2002, Pain

• There are no medical interventionsavailable that reliably reduce the severity of pain (or improve functioning).

e.g., . . .

Page 4: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Opioids

• No supportive evidence for long-term painreduction (i.e., > 15 weeks).

• No more effective than placebo or non-opioidalternative.

• Up to 25% of patients engage in behavioursthat may “be interpreted as signs of(substance) abuse (p. 123)”*

*Martell et al., 2007 – Ann. of Internal Medicine – Systematic Review Chou et al., 2007 - Ann. of Internal Medicine – Clinical Guidelines

Page 5: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Surgery• Even in carefully selected cases, continuing pain and

disability are common.Hoffman et al., 1993; Turner et al., 1992

• 20% (or less) of all lumbar surgery patients return to work. Fewer than 31% of spinal cord stimulator patients return to work.

Franklin et al., 1994; Turk, 2002; Turner et al., 1995

• In comparison to physio alone, spinal cord stimulation+ physio was not associated with any improvements infunctioning or quality of life. Differences in pain levelswere absent 3, 4, & 5 years post-SCS placement

Kemler et al., 2000 NEJM; 2002 J Neurosurgery; 2006 NEJM;2008 J Neurosurgery

Page 6: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Epidural Steroid Injections

• Lumbar Pain• Possibly effective for short-term (2-6 weeks) pain

reduction.• Small effects (Mean improvement: 15 mm on a 100 mm

VAS)

• Probably not effective for:• Long-term pain relief, Functioning, Need for surgery

• Cervical Pain• No evidence available upon which to base a conclusion

Armon et al., 2007 – Neurology – Systematic Review &Clinical Guidelines commissioned by the Amer. Acad. of Neurology

Page 7: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Is Pain Relief Necessary?

• Strongest predictors of satisfaction withtreatment through an Anaesthesiology-basedservice:

• Perceiving evaluation as complete.• Feeling they received explanation for treatment.• Believing that treatment improved daily activity.

(McCracken et al. 2002)

Page 8: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Pain and Functioning

• Studies show no evidence for a positive relationship between reported pain intensity and direct measures of:

• daily activity, medication use, health careuse or observed behavior.Fordyce et al., 1981, 1984

Page 9: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

A question then . . .

• What are we treating?

Page 10: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

“My Migraine”

Page 11: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Excerpts from patientletter:

Page 12: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

“trying to do more to take load off of husband/daughter”

“If there are no carers and I’m bad, I don’t wash, eat, etc.”

“(Pain is) ok, but neck hurts, tight chest and cough, startsin spine, pins/needles in arms/hands”

“I can cope with the pain . . . but clumsiness and weaknessis dangerous!”

“the house is a mess, (husband) is stressed/depressed,(daughter) stays away”

“I’m very positive and cheery (driven) and I think it doesme no favours as I think people think I am ok”

Page 13: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

“The Nature of Suffering andthe Goals of Medicine”

Eric J. Cassell“…people in pain often report suffering

from pain when they feel out of control, when the pain is overwhelming, when the source of the pain is unknown, when the meaning of pain is dire, or when the pain isapparently without end.” (2004, p. 35)

Page 14: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Willingness

will·ing (adj.)• Disposed or inclined; prepared: I am willing to

overlook your mistakes.• Done, given, accepted, or borne voluntarily or

ungrudgingly. See Synonyms at voluntary.• Of or relating to exercise of the will; volitional.

Will (noun)• The mental faculty by which one deliberately

chooses or decides upon a course of action: championed freedom of will against a doctrineof predetermination.

•The American Heritage® Dictionary of the English Language, FourthEdition. Ret 05 Feb 2008, from:

http://dictionary.reference.com/browse/willing

Page 15: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Pain and Suffering

Pain Suffering

Page 16: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

The Natural Response toPain

• “Its important to keep fighting thispain.”

• Endorsed as “Always True” or “AlmostAlways True” by 92% of patients

McCracken, Vowles, & Eccleston, 2004, Pain

Page 17: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

The Impact of FrequentStruggling

Single best predictor of:•Worse Pain•Poorer Activity•Greater Disability•Worse Depression•Greater Avoidance

This seems to be true cross-sectionally, prospectively, and over the course of treatment.

McCracken, Eccleston & Bell, 2005, Eur J Pain;McCracken, Vowles, & Gauntlett-Gilbert, 2007, J Behav Med;Vowles & McCracken, 2010, Beh Res & TherVowles et al., Clinical J Pain, 2014

Page 18: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Pain and Suffering18

Pain Suffering

Page 19: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Pain and Suffering19

Strugglingwith Pain

Failure

SufferingMultiplied

Lost Freedom &Opportunity

Pain

Page 20: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Pain and Suffering20

Strugglingwith Pain

Failure

SufferingMultiplied

Lost Freedom &Opportunity

Pain

Page 21: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Pain and Suffering21

Strugglingwith Pain

Failure

Lost Freedom &Opportunity

SufferingMultiplied

Pain

Page 22: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Pain and Suffering22

Maintained Life Direction

Failure

SufferingMultiplied

Lost Freedom &Opportunity

Pain

Page 23: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Pain and Suffering23

MaintainedLife Direction

Success

Lost Freedom &Opportunity

SufferingMultiplied

Pain

Page 24: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Pain and Suffering24

SufferingMultiplied

MaintainedLife Direction

Success

Pain

Freedom &Opportunity

Page 25: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Pain and Suffering25

MaintainedLife Direction

Success

Freedom &Opportunity

SufferingReduced

Pain

Page 26: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Within this,• there can be an augmentation of willingness to have unpleasant

and aversive experiences . . .

• in the service of what we hold to be important . . . and a behavioral

commitment to move towards

• what we value with ongoing unwanted• experiences.

• This is what is referred to by the name “Acceptance

and Commitment Therapy”

Page 27: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Data on the treatment approach

Page 28: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

ACT Treatment Outcomes

• 14 published studies, which showimprovements in:• Pain• Disability• Distress (i.e. Depression, Anxiety)• Healthcare Utilization• Physical Performance• Work & School Attendance

• Acceptance (Willingness and Awareness)• Values-based action

• In comparison to “treatment as usual” or waitlists.• Gains persist (usually 3-9 months; longest f/u is 3 years);

e.g., Dahl et al., 2004; McCracken et al., 2005; 2007; 2011;Vowles et al., 2007a; 2007b; 2008; 2009;2010; 2014;Wicksell et al., 2007, 2008, 2009.

Page 29: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

Summary

• In at least some patients, at least some of the time, pain nolonger appears to be the paramount problem.

• In responding normally to pain, behaviour often is directed towards pain control and away from areas that bring meaning and importance to living.

• Treatment methods can:• directly target these losses and restrictions in living.• work towards willingness to have the thoughts and feelings

associated with them in the service of improving living.• measure outcomes in terms of successful living, not severity of

symptoms.

Page 30: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

“People who have something better to do don’t suffer as much.”

- Wilbert Fordyce (1988)

“Friendship in adversity”,Ray Bne,

Page 31: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

General ACT References

Hayes, Strosahl, & Wilson. (1999). Acceptance and Commitment Therapy: An experiential approach to behaviour change. Guilford Press. New York.

Harris (2008). The Happiness Trap. RobinsonPublishing.

Luoma, Hayes, & Walser. (2007). Learning ACT: AnAcceptance and Commitment Therapy skills training manual for therapists. New Harbinger. Oakland, CA.

Page 32: Emerging Psychological Perspectives on Disability ... · “The Nature of Suffering and. the Goals of Medicine” Eric J. Cassell “…people in pain often report suffering from

ACT & Chronic PainReferences

McCracken, L. M. (2005). Contextual cognitive-behavioral therapy for chronic pain. Seattle,WA: IASP Press.

Vowles, K. E., & Thompson, M. (2011).Acceptance and Commitment Therapy forchronic pain. In L M McCracken (Ed.) Mindfulness and Acceptance in behavioral medicine: Current theory and practice.Oakland: New Harbinger Press.