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Elderly People’s Use of and Attitudes towards Assistive Devices Hui-Ching (Anita) Yeh BBE(ID) GDID n4405277 BN71 Masters of Applied Science (Research) Principal Supervisor: Professor Vesna Popovic Associate Supervisor: Dr Alethea Blackler

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Page 1: Elderly People’s Use of and Attitudes towards Assistive ... · how to best accommodate and assist them in maintaining quality of life and independence as well as easing human resources

Elderly People’s Use of and Attitudes towards

Assistive Devices

Hui-Ching (Anita) Yeh BBE(ID) GDID

n4405277

BN71 Masters of Applied Science (Research)

Principal Supervisor:

Professor Vesna Popovic

Associate Supervisor:

Dr Alethea Blackler

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Keywords

Elderly people, activities of daily living, quality of life, assistive devices, attitudes,

performance, frequency of use, effectiveness, sensory devices, bathroom devices,

mobility devices.

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Abstract

People in developed countries are living longer with the help of medical

advances. Literature has shown that older people prefer to stay independent

and live at home for as long as possible. Therefore, it is important to find out

how to best accommodate and assist them in maintaining quality of life and

independence as well as easing human resources. Researchers have claimed

that assistive devices assist in older people’s independence, however, only a

small number of studies regarding the efficiency of assistive devices have been

undertaken of which several have stated that devices are not being used.

The overall aim of this research was to identify whether the disuse and

ineffectiveness of assistive devices are related to change in abilities or related

to the design of the devices. The objective was to gather information from the

elderly; to identify what assistive devices are being used or not used and to

gain an understanding on their attitudes towards assistive devices.

Research was conducted in two phases. The initial phase of the research was

conducted with the distribution of questionnaires to people over the age of

fifty that asked general questions and specific questions on type of devices

being used. Phase One was followed on by Phase Two, where participants from

Phase One who had come in contact with assistive devices were invited to

participate in a semi-structured interview. Questions were put forth to the

interviewee on their use of and attitudes towards assistive devices.

Findings indicated that the reasons for the disuse in assistive devices were

mostly design related; bulkiness, reliability, performance of the device,

difficulty of use. The other main reason for disuse was socially related; elderly

people preferred to undertake activities on their own and only use a device as a

precaution or when absolutely necessary. They would prefer not having to rely

on the devices. Living situation and difference in gender did not affect the

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preference for the use of assistive devices over personal assistance. The

majority strongly supported the idea of remaining independent for as long as

possible.

In conclusion, this study proposes that through these findings, product

designers will have a better understanding of the requirements of an elderly

user. This will enable the designers to produce assistive devices that are more

practical, personalised, reliable, easy to use and tie in with the older people’s

environments. Additional research with different variables is recommended to

further justify these findings.

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Table of Contents

Keywords ............................................................................................................. i Abstract............................................................................................................... ii Table of Contents.................................................................................................iv Statement of Original Authorship ........................................................................vi Acknowledgements ............................................................................................vii

Chapter 1 Introduction .................................................................................. 1 1.1 Problem ................................................................................................ 2

1.2 Research Question................................................................................ 6

1.3 Thesis Structure .................................................................................... 7

Chapter 2 Life for Older People ...................................................................... 9

2.1 Activities of Daily Living ...................................................................... 10

2.2 Instrumental Activities of Daily Living ................................................ 13

2.3 Personal Activities of Daily Living ....................................................... 20

2.4 Quality of Life...................................................................................... 21

2.5 Differences in Quality of Life in Various Environments...................... 27

2.6 Informal Caregivers ............................................................................ 29

2.7 Summary............................................................................................. 31

Chapter 3 Assistive Devices...........................................................................33

3.1 Ownership and Use of Devices ........................................................... 35

3.2 Factors Affecting Use of Assistive Devices ......................................... 49

3.3 Summary............................................................................................. 55

Chapter 4 Research Plan ...............................................................................57

4.1 Phase One........................................................................................... 58

4.2 Phase Two........................................................................................... 60

4.3 Coding of Data .................................................................................... 62

4.4 Summary............................................................................................. 64

Chapter 5 Phase One – Questionnaires .........................................................65

5.1 Results................................................................................................. 66

5.2 Discussion ........................................................................................... 71

5.3 Summary............................................................................................. 72

Chapter 6 Phase Two – Interviews ................................................................75

6.1 Participants ......................................................................................... 76

6.2 Methodology ...................................................................................... 77

6.3 Findings............................................................................................... 77

6.4 Summary............................................................................................. 97

Chapter 7 Conclusion and Future Directions..................................................99 7.1 Recommendations............................................................................ 101

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7.2 Future Directions.............................................................................. 102

References ….. ..................................................................................................105

Appendices …. ..................................................................................................113

Appendix 1 – Phase One Questionnaire (Sample) ..............................................114 Appendix 2 – Covering Letter (Sample)..............................................................116 Appendix 3 – Participant Information Sheet......................................................117 Appendix 4 – Aged Care Living Establishments ..................................................119 Appendix 5 – Consent Form ..............................................................................120 Appendix 6 – Interview Questions (Sample) ......................................................121 Appendix 7 – Definition of Codes ......................................................................122 Appendix 8 – Analysis (Sample).........................................................................127 Appendix 8 – Assistive Devices..........................................................................130

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Statement of Original Authorship

“The work contained in this thesis has not been previously submitted for a degree

or diploma at any other higher education institution. To the best of my knowledge

and belief, the thesis contains no material previously published or written by

another person except where due reference is made.”

Signature: ____________________________________

Date: ________________________________________

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Acknowledgements

I would like to thank first and foremost my principle supervisor, Professor Vesna

Popovic, and associate supervisor Dr Alethea Blackler, for their guidance, support

and patience throughout my research. Thank you also to my fellow research

colleagues and staff at QUT, for their support, advice and encouragement.

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Chapter 1 Introduction

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1.0 Introduction Developed countries like America, Sweden, Japan and Australia are faced with an

issue of an increase in the ageing population. With improved health and technology,

people will have a longer life expectancy than in previous generations. For example,

Australia’s ageing population is ever increasing, along with life expectancy. “In 1976,

9% of the population was aged 65 years and over. By 2002, this proportion had

increased 13% and is expected to increase to 16% by 2016” (Lim & Taylor, 2005

p.34). Hobbs & Damon (1996, in Crist, 2005) suggest that in the USA alone, the

percentage of the population which includes people aged 65 years old and above

will increase from 12.5% to 20% between the years 1990 and 2030.

According to statistics published by the Australian Bureau of Statistics (2005),

Australia’s population of people 65 years and over was 13.1%. There was a 2.4%

increase from 2004 to 2005. The proportion of people aged 85 years and over was

1.5% and the people in this population have increased by 6.6% (19,400 people)

between 2004 and 2005. The gender ratio for people aged 65 years and older in

Australia was 23% higher in females than males, presenting a gender ratio (number

of males per 100 females) of 81.6. As age increases to 85 years and older the gender

ratio becomes 47.8. This means there are 2.09 females to every male; twice as

many females than males. It can be said that women have a greater life expectancy

than men (Australian Bureau of Statistics, 2005).

1.1 Problem

There are also, as Quine & Carter (2006) state, 5.5 million baby boomers (born

1946-1965) in Australia. By 2011 the first will reach 65 and by 2021 they will be 75

years of age and yet there is limited published research on what the baby boomers

in Australia expect from their old age. The majority of the published works are

“speculative rather than evidence based” (Quine & Carter, 2006 p.3). Quine &

Carter (2006) state that “in retirement, boomers may refuse to accept that they are

‘old’, may be more ethnically heterogeneous, more selfish, socially polarised,

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demanding and belligerent, and less accepting, trusting and conforming than their

parents’ generation” (p.4). There is also a growth in Australians above 65 years of

age wishing to live alone in their homes. It is predicted that the ageing population

will increase to 17.3% by 2021 (Fricke & Unsworth, 2001).

In relation to health “it is predicted that Australian baby boomers will not want to

move into the new ‘aged care’ phase of their lives, instead striving to continue their

current lifestyle into retirement” (Quine & Carter, 2006 p.4). A qualitative study was

conducted by Quine, Bernard & Kendig (2006) on Australian baby boomers

expectations and plans for their retirement. This was carried out with focus groups

with cross-sectional participants. However, the paper only presented findings with

topics related to planning, finances, health insurance and responsibility. The most

alarming key finding was that many baby boomers had not planned for their

retirement. Also, low socioeconomic status baby boomers were the least likely to

have planned for their old age due to limited resources and hold the government

responsible for future finances as they do not have sufficient superannuation

(Quine et al., 2006). Apart from these findings there does not seem to be any

further research on Australian baby boomers expectations and ideas for old age.

Consumer products and marketing are already targeting the baby boomers, from

household products to automobiles. However, the key to prospering is to avoid

mentioning that the product is designed for the aged or ageing market (Hamilton,

1999). The Ford Focus was developed and researched to cater for the needs of

older drivers, it was developed “for the first time to ensure the car would be

comfortable and usable by all sections of the community” (Wilks, 1999). Many

professions and businesses are now shifting design to cater for the older market;

the growing ageing population. Professionals in engineering, gerontology,

ergonomics and architecture are supporting universal design to enhance

independence, lifestyle and choice (Demirbilek & Demirkan, 2004).

It is known that the environment can enhance or decline the independence, quality

of life and well being of the elderly. Therefore, it is important that designers should

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involve the elderly in the design process, as they are the users and have greater

knowledge and experience. Although they may all have different criteria and needs

older people together share a common interest, which is “living life with dignity”

(Demirbilek & Demirkan, 2004 p.369).

In the USA, Hobbs & Damon (1996, in Crist, 2005) estimate “the percentage of

elders needing help with at least one activity of daily living (ADL), for example,

walking, getting outside, bathing or showering, transferring, dressing or toileting,

now ranges from 10% for those 65-74 years to 50% for those 85 and older” (p.485).

It is suggested that basis activities of daily living (BADL) and instrumental activities

of daily living (IADL) measurements determine how well older people perform in

everyday activities and an ergonomic approach combined with gernotechnology will

improve the balance of the user and the environment. Gernotechnology solutions

can assist in visual impairments in elderly people, which may reduce the number of

falls (Pinto et al., 2000). For example, an age related effect on the human body is

the decline in muscular strength and posture. Prolonged sitting and standing

creates mechanical stress on joints and muscles. A solution to this problem is the

recommendation of an adjustable chair, which can relieve strains and stress placed

on the neck and back. Placement of handle bars and grab rails can support elderly

during prolonged standing while they are performing an activity (Pinto et al., 2000).

In summary, it is using a similar concept as child proofing an environment. Instead

of child proofing, it is elderly proofing the environment with an ergonomic and

gernotechnological approach which also allows the environment to adapt to change

over time (Pinto et al., 2000).

Demirbilek & Demirkan (2004) suggests that a usability, safety, attractiveness

participatory (USAP) model could be used to assist in design for the elderly. Babyak

(2004) recommended also that knowledge of “ageing, cognition and attention” is

needed by professions, to enable them to design for the elderly, to enhance their

safety, quality of life and assist in activities of daily living (p.27). However, there are

difficulties in designing for the elderly. For instance, it is important to involve older

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people in the design process, to understand their needs and wants. Professions can

only help those that reveal their real concerns and problems. Borglin et al. (2006)

comment that older people do not always address their issues when meeting with

health or social care professionals, to enable the professions to effectively or

correctly assist the elderly in need. The care could therefore be hindered.

Another design issue is poor design. Products may be difficult to use as the targeted

market was not addressed. Another common fault among products is degree of

difficulty in instruction manuals provided by the manufacturers. They are difficult to

follow (Babyak, 2004). A study conducted in association with the Atlanta Diabetes

Association tested the use of blood glucose monitors, to observe the problems

encountered by novice and experienced users (Babyak, 2004). The results showed

that "75% of older adults committed errors on their first attempt to use the device

and 25% of younger adults committed errors on the first try" (Babyak, 2004 p.29).

This is an example of poor or incorrect design.

Blood glucose monitors would be a good and effective tool to use by individuals in

the home. However, this medical device was originally designed to be used in

medical practices with trained staff with knowledge in how to use the equipment.

When the product was transferred into the home, as Babyak (2004) states,

“knowledge needed to properly use them has not always migrated with them”

(p.27). To prove the degree of difficulty in using the home blood glucose monitors a

study was conducted, which showed that 60% of experienced users made clinically

significant errors. “A clinically significant error is defined as something that leads

the diabetic user to improperly adjust medication, diet or exertion levels” due to

incorrect use and misinterpretation (Babyak, 2004 p.29). This may be a reason for

the non-use of products by older people.

Therefore, it is important to involve the users into the design. As Demirbilek &

Demirkan (2004) suggest, the mixing of these two approaches; design by users and

design for users, “gives better results with higher success rates” (p.362). Although it

may be a difficult process as it is not a design for a homogenous group, the outcome

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of enhancing quality of life and independency in older people is beneficial, as the

ageing population is increasing by the year and it will be greater for all people and

the environment.

Older people can be classified into “young-old”, “old-old” or “oldest-old”. Young-old

refers to people aged between 60-69. Old-old describes people aged between 70-79

and the oldest-old are people that are above 80 years of age (Garfein & Herzog,

1995). The term “elderly” has been defined as people aged 65 or older. “Early

elderly” are people aged from 65 through to 74 years and people aged over 75

years are referred to as “late elderly” (Orimo et al., 2006). However, the definitions

for the classification of older people vary and are inconsistent. It is also

inappropriate to define older people in chronological terms alone (Lloyd-Sherlock,

2000; Zajicek, 2004). There is diversity within older people as they experience the

effects of ageing at different rates (Zajicek, 2004). Older people can also be

categorised in many other ways; physical appearance, key life events and social

roles. However, there is no universally appropriate alternate approach in defining

and classifying older people (Lloyd-Sherlock, 2000). Therefore, in this instance

people aged 65 years or older will be referred to as either elderly or older people,

unless otherwise specified.

1.2 Research Question

As the elderly often wish to remain in their current homes and are less inclined to

live with their children or be institutionalised, professionals need to learn and study

how to better cater for older peoples’ needs and assist them in going about

activities of daily living (ADL) independently and with dignity. Hence, the research

question is:

What are elderly people’s use and attitudes towards assistive devices?

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Aim

The aim of this research is to investigate whether the use and non-use of assistive

devices by the elderly are related to their abilities or in the design of the product.

Objectives

The objectives for this study are to:

• identify which assistive devices are being used and not used,

• gain an understanding of their attitudes towards the assistive devices, and

• inform designers on areas that needs improvement and attention.

1.3 Thesis Structure

This thesis will firstly investigate through literature review the activities of daily

living and the quality of life for older people. Followed by literature on assistive

devices; ownership, use and non-use of assistive devices and their effectiveness. A

research plan was drawn up in preparation for the research. The research study was

conducted with participants carried out in two stages, with a questionnaire data

collection followed by interview data collection. The data were analysed, compared

against the literature review and discussed, to investigate whether assistive devices

are effective and efficient in assisting the elderly and whether the cause of disuse in

assistive devices is related to change in abilities or to the design of the product.

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Chapter 2 Life for Older People

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2.0 Life of Older People

It is important to understand and gain an insight into the activities of older people

and to investigate what activities older people engage in throughout their everyday

living. It is believed that for older people to continue living safely in the community,

they need to be independent in personal and instrumental activities of daily living

(Fricke & Unsworth, 2001). Also, it has been suggested that in the United States

three quarters of elderly people live with a chronic condition and one half of the

elderly population suffer from a chronic condition that limits their activities (Blake,

1981 & US Department of Health and Human Services, 1986, in Bowling & Grundy,

1997). Therefore, this chapter will aim to identify what activities older people

engage in, have difficulty with and need assistance with, to enable them to go about

their daily lives. This chapter will also identify factors that influence older peoples’

quality of life, in the terms of social, environmental, physical and psychological

factors.

2.1 Activities of Daily Living

Throughout the years, researchers have been measuring activities of daily living

(ADL) in various contexts and settings. They have built on Katz’s original ADL scale,

which included six activities; dressing, bathing, eating, getting to and from the

bathroom, transferring from bed to chair and continence (Jagger, Arthur, Spiers, &

Clarke, 2001). Depending upon the researcher, these tasks and activities have been

excluded, further expanded and classified. Continence is no longer measured in ADL

estimates as it is seen as a function that can exist with or without a physical

disability (Jagger et al., 2001).

Activities of daily living can be categorised into instrumental activities of daily living

(IADL), personal activities of daily living (PADL) and basic activities of daily living

(BADL). Spector & Fleishman (1998, in Roe, Whattam, Young, & Dimond, 2001)

identified activities of daily living as “instrumental activities, which includes using a

telephone, shopping, meal preparation, housekeeping, laundry, taking medication,

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travel away from home and managing finances; and personal activities, such as

bathing or showering, dressing, moving or transferring, going to the toilet and

feeding” (p.390). In summary, PADL usually refers to tasks that involve personal

hygiene, feeding and dressing (Ekwall, Sivberg, & Hallberg, 2004). BADL are tasks or

activities that target the essentials necessary for daily living, such as bathing,

dressing, feeding, grooming, transferring and mobility in and around the house

(Pinto et al., 2000). A majority of these activities tie in with PADL. Instrumental

activities of daily living are tasks that are more complicated to complete or

undertake, which involve domestic and community participation (Fricke &

Unsworth, 2001).

A study was conducted by Hayase, Mosenteen & Thimmaiah (2004) to examine the

relationships between ADL ability and age amongst people aged 3 to 93 years. Its

aim was to uncover when motor ability and ADL process ability peaks in a person’s

lifespan and when it deteriorates or slows down. The participants consisted of

males and females from around the world; North America, United Kingdom, Nordic

countries, other European, Australasia, Asia and other. There were a total of 4398

participants. They were placed into groups depending on age, with each group

consisting of more than 60 people.

The participants were tested on 16 ADL motor and 20 ADL process skills. The

findings showed that ADL ability increased dramatically from age three to six years.

It increased again from 6 to 15 and then again from 15 to 50. From the age of 50

ADL ability began to decline. Both ADL motor and ADL process ability presented

similar readings. The only finding that did not follow the pattern was the age group

80 - 82. This group’s ADL motor ability produced a higher score than 70-79 age

brackets. According to Hayase, Mosenteen & Thimmaiah (2004) from further

review, their instruments and testing were accurate. Therefore, the reason for the

irregularity was from the testing sample, as there were less than 100 people in that

age bracket. This may have affected the results. Another reason could be that the

ability of the elderly people stabilizes for a brief period in the group that survives to

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this age. Therefore, further research with a higher number of participants in the

oldest age groups is needed to further justify their findings.

It seems clear that a person’s ADL ability begins to deteriorate at around 50 years of

age. The next step is to identify which activities deteriorate first and in what

sequence. A study was conducted by Jagger, Arthur, Spiers & Clarke (2001) in the

UK to investigate the order in which older people become restricted in ADL, to see if

different genders and age groups altered the order. There were a total of 1,684

subjects (aged 75 years and above) in the study; they were independent and did not

have difficulties in all ADL at first assessment (Jagger et al., 2001). The study showed

that “lower-extremity disability (bathing, mobility, toileting) precedes upper-

extremity disability (feeding), with difficulty in dressing being either upper-

extremity disability (through loss of manual dexterity for example) or lower-

extremity (through hip fracture)” (Jagger et al., 2001 p.408). The order of

deterioration did not differ between sexes or age group. However, one alarming

factor which arose in the study was the dramatic increase in risk for older people of

becoming disabled.

While Jagger et al. (2001) looked into the patterns of onset, Bowling and Grundy

(1997) conducted a study with the aim of assessing health and well-being, social

and domestic circumstances and need for health and social services among the

elderly and very elderly in three sample areas. Elderly people were referred to as

being 65 – 84 years of age and the very elderly were classed as 85 years and above.

The three sample areas consisted of two different areas in England; East London

(City of London and Hackney) and Braintree in Essex.

The findings showed that decreasing levels of physical ability were associated with

poor mental health and people that had problems with feet, muscle and joint

movement. There were also no associations “between changes in level of physical

functioning and social network or support” (Bowling & Grundy, 1997 p.113). In fact,

carer relief services, social workers, occupational therapy, physiotherapy or contact

with general practitioner were only used by some of the participants in all three

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sampled areas. The use or non-use of these preventative or rehabilitation services

also had no association with the participants’ level of physical functioning.

This section identified that there are different categorisations for activities of daily

living. The main sub-classifications for activities of daily living are instrumental

activities of daily living and personal activities of daily living, which will be further

explained in Sections 2.2 and 2.3. People begin to deteriorate after 50 years of age.

Lower-extremity disability precedes upper-extremity disability. Furthermore,

decreasing levels of physical ability are associated with people with poor mental

health and those that have difficulty in movement. Further investigation is needed

into the reason behind the non-use of preventative services to assist in the delay in

becoming disabled and whilst undertaking activities of daily living.

2.2 Instrumental Activities of Daily Living

As people get older they spend more time doing IADL tasks and their competence in

this area diminishes over time. Domestic activities increase in both males and

females during retirement. In particular, Australian women after retirement spend

double their time doing chores, such as laundry, cleaning and ironing (Fricke &

Unsworth, 2001). Bierman & Clancy, (1998, in Roe et al., 2001) claims that “women

were more likely than men (after adjusting for age) to have limitations with their

instrumental activities of daily living and personal activities of daily living, and to

require help” (p.396). Therefore, this section aims to highlight the issues that arise

in instrumental activities of daily living for the elderly using examples from two case

studies.

2.2.1 Case Study 1

A study was conducted by Roe et al. (2001) to investigate older people’s

“experiences of receiving formal and informal care for their activities of living in

home and institutional settings” (p.390). The tasks investigated were shopping,

meal preparation, housework, washing clothes, transportation, taking medication

and finances. This qualitative study was conducted in Southeast Washington, USA,

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interviewing 20 elders. The participants stated that shopping was a task that was

mainly provided by a family member. Assistance was also given by friends or care

providers. However, it was found that there was one person who managed her own

shopping and was the most disabled. This participant had multiple sclerosis but had

adapted her life and home to suit (Roe et al., 2001).

Meal preparation provided mixed views from the participants. Some missed cooking

and others preferred dinning out, gathering in the dining room for meals, seizing

the opportunity to socialise with new people (Roe et al., 2001). Participants that

gathered in dining rooms were elderly people who lived in assisted living or nursing

homes. Those that missed cooking, either receiving formal or informal care,

commented that they used to enjoy cooking for the family and adult children when

they visited. One of the participants still cooked, however, she claimed it is difficult

to cook for one. What was surprising in the research was to find one woman

comment on there “being too much food readily available in the nursing home as

some were becoming overweight" (Roe et al., 2001 p.392).

In relation to housework a major portion of the participants needed assistance with

chores such as cleaning, changing of bed linen and throwing out refuse (Roe et al.,

2001). Those participants receiving home care had care providers to clean their

homes. However, one participant felt that “they did not do the work as she would

like it or how she would have done it herself. " (Roe et al., 2001 p.392). This view

was also reinforced amongst the women. Some frustration was felt when the care

providers could not do work that the seniors could not do either, such as cleaning

windows or only cleaning places where they can reach without the use of a ladder.

One elderly person rejected the initial help as she lived alone and did not want

people entering her house invading her privacy (Roe et al., 2001).

Doing the laundry was an activity that most of the participants did themselves as it

provided them with something to do (Roe et al., 2001). "Continuing to undertake

their own laundry not only gave these women something to do but also provided a

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social activity.... this gave them an opportunity for social connectedness as well as

independence" (Roe et al., 2001 p.396).

Taking medication was seen to be done with no assistance amongst the elderly,

unless they were in a nursing home and it was a requirement for care providers to

oversee the medication process. Little information is given in relation to handling of

finances. However, the overall consensus was that the participants received support

from their children, friend or spouse (Roe et al., 2001).

The ADL of travel away from home produced a varied response. There were some

participants who still drove long distances. Those that were no longer able to drive

took it as a great loss and this affected their quality of life. However, some

participants utilised Dial-A-Ride service. The majority of the “seniors restricted their

travel to stay within local destinations” (Roe et al., 2001 p.393). Older people who

wished to travel away from home also relied on family and friends (Roe et al.,

2001).

It seems that participants in this case study all receive assistance with ADL, either

formally or informally. Those that were less satisfied with their current situation

were those that had to give up an ADL that they previously enjoyed doing, such as

cooking or driving.

2.2.2 Case Study 2

Another study was conducted by Fricke & Unsworth (2001) to investigate what IADL

tasks older people performed and how important the tasks were to the elderly

participants and occupational therapists (OTs).

The study group involved people aged between 66-95 years, which comprised seven

males and 26 females (n=33) with a mean age of 78.4 years. Subjects chosen also

had to be English speaking and living at home. This did not include people that lived

in a supported or institutional environment. Data collection was via time diaries and

questionnaires with follow up interviews.

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Occupational therapists are professionals who assess, treat and prevent disability in

older people. There is currently a shift towards client centered practice among

occupational therapists, where the therapist uses their skills and knowledge to

expose their clients to a range of possibilities that the clients had not previously

known. This is different from when occupational therapist forces their value system

onto the client (Fricke & Unsworth, 2001).

Fricke and Unsworth (2001) included reading, leisure activities, bank and postal

activities, writing notes, garden maintenance and filling in forms as part of activities

undertaken in IADL. The results from Fricke and Unsworth’s (2001) study showed

that the most common illness amongst the elderly was arthritis (30.3%). 39.4%

claimed they did not suffer from a major illness. Falls and hip replacements were

not regarded as a major illness. In this study all of the participants underwent

occupational therapy (OT) whereas, in Roe et al., (2001), the use of occupational

therapy was minimal.

69.7% of participants used an assistive mobility device and 45.5% of this portion

used a single point stick (cane). 60.6% of the total number of mobility users

reported limitations in mobility (Fricke & Unsworth, 2001). In relation to living

arrangements the majority of participants lived either alone or with a spouse, only a

few lived with family as illustrated in Figure 1 (Fricke & Unsworth, 2001).

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Participants' Living Situations

48.20%42.20%

9.10%

0%

10%

20%

30%

40%

50%

60%

Lived Alone Lived with Spouse Lived with Family

Living Situation

Perc

enta

ge (

%)

i

Figure 1. Participants’ living situations (Fricke & Unsworth, 2001)

Community support (Table 1) was mostly received in form of home help, followed

by meals on wheels and care from community or district nurse. In terms of

transportation, 13 subjects reported they still drove cars. However, the study does

not state the use of public transportation or how frequently help was given (Fricke

& Unsworth, 2001).

Table 1. Most common community support received amongst participants (Fricke &

Unsworth, 2001)

Community Support Percentage

Home Help 63.36%

Meals on Wheels 24.4%

District Nurse or Community Carer 15.2%

The three important tasks that elderly considered vital for independent living in the

community were the use of the telephone as most important, then driving or use of

transportation and reading, leisure and medication management (Fricke &

Unsworth, 2001). An interesting finding came from the male participants, as they

valued driving, shopping, handling of money and meal preparation more than their

female counterparts. Whereas, when it came to IADL required to live independently

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in the community, for females it was reading, leisure activities, use of

transportation and medication management (Fricke & Unsworth, 2001). However,

transportation is important to maintain mobility, independence and social contact.

Therefore, further investigation is needed as there were only seven males

participating in the study.

Occupational therapists rated use of the telephone, medication management, meal

preparation and snack preparation as the most important IADL tasks for elderly to

maintain independence in the community. Use of transportation was rather low in

the agenda. "These results may have occurred because the occupational therapists

interpreted the question by considering what is needed to live in the community

rather than what is enjoyed and meaningful while living in the community. For the

older person, leisure activities are essential for a rewarding and contented lifestyle"

creating an even balance to their daily activities (Fricke & Unsworth, 2001 p.126).

Activities that were disliked were housework, inability to sleep, having to get up

during the night and undertaking activities that may bring pain or discomfort. In

relation to time usage the majority was spent on IADL (46.92% or 11.9hours) out of

the 24 hour period. IADL activities are a combination of various activities, such as

passive leisure, housework, travel and purchasing of goods. The rest of the time

spent in the 24 hour period was sleeping (32% or 7.6 hours), personal care and rest

(Fricke & Unsworth, 2001). The distribution of activities over a 24 hour period can

be better evaluated in Figure 2.

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Mean percentage of Time Spent in a 24 Hour Period

15.07%

10.81%

21.04%

14.69%

31.85%

6.46%

0%

5%

10%

15%

20%

25%

30%

35%

Passive Leisure Housework Other IDAL Personal Care Sleep Rest

Activity

Perc

enta

ge (

%)

i

Figure 2. Mean percentage of activities in a 24 hour period for elderly people (Fricke

& Unsworth, 2001)

Living in a community may be considered as a positive as all subjects in this study

were living in the community. However, subjects in this study were all "volunteers

currently attending a community facility" (Fricke & Unsworth, 2001 p.127). This may

limit the variables in the data collection, as the participants that volunteered to

participate may be the ones that are more active and willing to travel to a

community gathering. Out of the participants, there were gender activity

differences. Women spent more time doing housework, purchasing goods and

services, resting and using the telephone. Men spent more time doing domestic

tasks such as gardening, they devoted time to passive leisure and travelling (Fricke

& Unsworth, 2001). However, since there were only seven males in the study, the

data collected to identify gender activity differences may be subjective. There are

too few male participants to support the findings.

There are different interpretations of importance between older people and

occupational therapists (OT). Older people regard important as doing something

meaningful, whereas occupational therapists define it as tasks necessary to stay

independent in the home (Fricke & Unsworth, 2001). Both values from older people

and OTs need to be taken into account to provide and promote health and well-

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being. Further research is needed to confirm the differences in female and male

desired IADL.

2.3 Personal Activities of Daily Living

In a study conducted by Roe et al. (2001), in relation to personal activities of daily

living (PADL), a majority of subjects needed assistance in bathing or showering and

only a limited number required help with dressing, moving and transferring, going

to the toilet and feeding. This study was conducted in Southeast Washington, USA,

with 20 older participants who were living in community or institutional settings.

This is similar study as case study 1 in Section 2.2.1.

There were two forms of assistance given for bathing or showering. One was “direct

assistance such as help getting in and out of the shower, or supervision whereby the

care provider was around in the home while the senior had their shower" (Roe et

al., 2001 p.395). Those that needed assistance in PADL, such as moving and

transferring, also needed help going to the toilet. This is due to their limited physical

ability and fear of falling. However, “some seniors managed to go to the bathroom

using aids and equipment” (Roe et al., 2001 p.396).

In a study conducted by Borg, Hallberg & Blomqvist (2006), results showed women

were having more difficulty with PADL compared to men as shown in Table 2.

Table 2. Gender comparisons with difficulties in activities (Borg et al., 2006)

Activity Female Male

Walking by themselves 48.5% 16.1%

Taking a bath 26.5% 8.2%

Getting to toilet on time 25% 9.9%

Similar statements were made by Bierman & Clancy (1998, in Roe et al., 2001),

where women were more likely than men to have limitations with all activities of

daily living and to require assistance. Men had the same difficulties but at a lower

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rate. The majority of older people need assistance with PADL, whether directly or

indirectly. Men have the same difficulties as women at a lower rate but they still

require some form of assistance.

2.4 Quality of Life

There is a need to address quality of life (QoL) issues that arise amongst older

people and as Borglin, Jakobsson, Edberg & Hallberg (2006) state “this is especially

important in the care of older people, where cure or complete relief is not always

possible” (p.137). This importance is also seconded by Godfrey (2001) and Holmes

(2005), and “promoting and improving people’s quality of life is seen as one of

health and social care’s most important goals” (Borglin et al., 2006 p.137). Just as

quality of life is regarded of great importance amongst researchers and health

professionals, it is also regarded of great importance by older people. Older people

themselves value quality of life more than their health. Browne et al. (1994) found

that people (mean 73.7 years) considered leisure and social activities to be the most

important contributing factor to quality of life. The second most important factor

was health (Borglin et al., 2006).

Longitudinal studies show that “regular physical activity improves survival and

functional ability, and can improve quality of life” (Lim & Taylor, 2005 p.33). At least

thirty minutes of moderate intensity work-out should be prescribed to each

individual to maintain a healthy lifestyle (Levine, 2004; Lim & Taylor, 2005). A study

was conducted in various languages; English, Arabic, Chinese, Greek and Italian, to

examine the factors associated with physical activity within the New South Wales

older population (Lim & Taylor, 2005). The study consisted of participants aged 65

or older. It was concluded from the research that improved independence in travel

and maintaining independence as people age can assist in their physical activity

levels and mental well-being (Lim & Taylor, 2005). Another interesting finding was

from Browne et al. (1994), who found that life satisfaction, psychological and

subjective well-being levels were higher in the old-old than the young-old.

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Components that affect the quality of life of older people are mainly social,

environmental, psychological and physical (Borglin et al., 2006; Hellstrom, Persson,

& Hallberg, 2004). However, the majority are more usually psychological and social

than physical. Bowling et al. (2003, in Borglin et al., 2006), state that “there is more

to older people’s QoL than health. Social and environmental factors may influence

their quality of life, and social support and participation have been shown to be

associated with how they rate quality of life” (p.137). Therefore, this section will

look into the factors that influence older peoples’ quality of life.

2.4.1 Social and Environmental Factors

It has been reported that a majority of women present a lower quality of life as they

are often older, widowed and live alone (Borglin et al., 2006 p.143). This leads to

the issue of social support and participation. As Farguhar & Bowling (1993, in

Borglin et al., 2006), state “as friends and family die, support shrinks and so may

their possibilities to participate and engage in activities and even if a majority are

able to maintain independent living some may have difficulties affecting their ability

to participate in activities” (p.137). Mann, Hurren & Tomita (1995) commented that

there were subjects that missed doing activities that they once were able to do

actively and to enjoy in their leisure time. This is an important factor to consider as

occupational therapists provide services that regard activities of daily living as

higher than leisure pursuits.

These contributing factors of quality of life, as outlined by Borglin et al. (2006), were

also addressed by Grewal et al.(2006). Five attributes were identified towards

quality of life. They were attachment, role, enjoyment, security and control. Within

these five attributes the most important factors were relationships; either with

family or others, health; of their own or close others, independence, emotional and

psychological health, religion and spirituality, finances, standards of living and

finally social and leisure activities. The loss of a family member or friend can lead to

negative quality of life as this impacts on older people’s sense of security and

attachment experience. However, it can be argued that those who present a higher

quality of life are those that can more easily adapt to a new environmental and

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social setting. Wenger (1991) and Antonovsky (1996) commented in Borglin et al.

(2006), that "personal and external resources in terms of a high sense of coherence

(SOC) and social support suggest that this group had better coping resources and

sufficient emotional and practical support compared to those with low present

quality of life" (p.143).

Home and surroundings, along with family and other relationships, are just as

important to the elderly informants. Home and surroundings created a sense of

security and attachment as well as pleasure. Relationships were considered rather

important to the participants. Relationships included members of the family, close

friends, work colleagues, neighbours, pets, and other people in the community; via

church, rotary club and school governing body (Grewal et al., 2006). The transition

from living independently to receiving assistance from others is suggested to

contribute to change of values and attitudes in life (Hellstrom et al., 2004).

However, when the values and attitudes are not positive this may lead to low

quality of life. Hellstrom et al. (2004) mention that psychological factors (depressed

mood, loneliness) along with physical factors (fatigue, pain) result in low quality of

life, especially amongst those who are receiving help.

Standard of health was considered important amongst informants as good health

makes the ability to undertake activities possible (Grewal et al., 2006).

Consequently, the activity undertaken gives the informants a sense of role and

enjoyment. It is also important as it allows elderly people to maintain their

independence, giving them a sense of control in life (Grewal et al., 2006). A similar

conclusion was made by Borg, Hallberg & Blomqvist (2006), as they found the key

factors that lead to low life satisfaction among older people were poor overall

health with reduced self-care capacities, financial issues, impaired abilities to

perform ADL, loneliness and feeling worried. Religion, faith and spirituality received

mixed responses in the study in terms of rate of importance because it depended

on whether or not the informants believed in religion or not (Grewal et al., 2006).

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Poor health reduces the ability to experience forms of enjoyment, previous roles

and sense of control, creating a negative influence on quality of life (Grewal et al.,

2006). Poor finances and surroundings also place negative influences on security,

enjoyment and control. However, if the elderly have a better transition from living

independently to receiving assistance from others it can improve their quality of life.

2.4.2 Psychological and Physical Factors

Older people who are more active or have a positive outlook have a higher quality

of life satisfaction. Those that are depressed, lonely and often fatigued are more

prone to having a lower quality of life. Hellstrom et al. (2004) commented that “the

more restricted a person’s ability to manage by themselves, the lower their quality

of life” (p.591). "Those with high present quality of life stood out as those being

more active in light exercising and time outdoors, indicating more external activities

" (Borglin et al., 2006 p.144). Fatigue as a contributing factor to a lower quality of

life was also supported by Steen et al. (2001, in Hellstrom et al., 2004), who found

that mobility and fatigue can lead to ADL dependence for the old-old that are living

in the community or special accommodation. Abdominal pain was also found to be

a contributing factor.

Undergoing activities or simply the action of doing something was an important

factor for older people. These activities included travelling, politics, a bridge game,

continuing work and doing things for others (Grewal et al., 2006). Maintaining

independence and control in life was also another important factor for informants

in a study conducted by Grewal et al. (2006).

Sense of coherence (SOC) was defined by Antonovsky (1987, in Larsson &

Kallenberg, 1996) as a “global orientation that expresses the extent to which one

has a pervasive, enduring though dynamic feeling of confidence that i) the stimuli

deriving from one’s internal and external environments in the course of living are

structured, predictable, and explicable; ii) the resources are available to one to

meet the demands posed by these stimuli; and iii) these demands are challenges,

worthy of investment and engagement” (p. 175). Greyer (1997) summarises sense

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of coherence to be the theoretical construct that is used to explain why some

people fall ill after a stress related incident and how some do not.

It is understood that social support and sense of coherence are related to high

quality of life. However, little is known about how these factors change in the

ageing process (Borglin et al., 2006). It can be suggested that there are various

stages which a person experiences in feeling old and ageing. People in their earlier

phases of transition have an increased negative quality of life. Transition has been

categorised into four stages: “beginning to feel old, fear of being helpless,

recognising one’s former self and feeling different from others” (Hellstrom et al.,

2004 p.591).

Dignity is also a contributing factor to quality of life. Dignity is defined as “an

inherent characteristic of being human, it can be subjectively felt as an attribute of

the self, and is made manifest through behaviours that demonstrate respect for the

self and others” (Jacelon, Connelly, Brown, Proulx, & Vo, 2004 p.82). Dignity can be

categorised into four themes; philosophical, behavioural, attribution and

developmental. Loss of dignity depends upon ones own values and social influences.

2.4.3 Fear of Falling

It is known that older people can limit their physical activity and mobility due to

psychological influences such as fear of falling and anxiety. This effects the quality

of life of older people and especially females as they have higher chance of falling

and of injury compared to males (Suzuki, Ohyama, Yamada, & Kanamori, 2002). Also

it has been reported that half the people who claim to have a fear of falling have

not had a fall (Lach, 2005).

In a study conducted by Suzuki et al. (2002), 19.5% of females had a fear of falling

compared to 9.3% of males. Also, of females in the study aged 60-69, 66% of them

expressed a fear of falling. Elderly that were self-selected housebound (people who

choose to remain indoors, in the house), had immobility disorders or suffered from

post-fall syndrome have a greater possibility of falling. Post-fall syndrome refers to

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when an ambulatory person develops an intense fear of walking after a fall.

Becoming house bound or bed ridden from previous falling incidents creates fear of

falling. This can lead to a downward trend of fall and increased frequency of falling

(Suzuki et al., 2002). Lach (2005) also suggests that fear of falling is common

amongst community dwelling older adults and is associated with poor physical and

mental health.

No research was found on the relationship between fear of falling and ADL in males,

however, there is in females, especially in walking and bathing. In general,

participants who required assistance with dressing and toileting were significantly

associated with fear of falling (Suzuki et al., 2002). Fear of falling can affect their self

image and self-confidence. Even if it does not effect them physically it may effect

them mentally, contributing to low quality of life and shorter life expectancy and

causing depression (Roe et al., 2008; Suzuki et al., 2002). Therefore, it is suggested

that older people in this category should seek help in psychological and physical

care to cope with changes in the ability to complete tasks in ADL (Suzuki et al.,

2002). Assessments and interventions need to be made in order to prevent fear of

falling in elderly people.

Roe et al. (2008) also adds findings from a qualitative study on older people’s

experience of falls, indicating that participants with a mean age of 87 years

experienced falls that were more injurious than participants with a mean age of 81

years. Although both groups experienced falls, participants with the mean age of 81

years had more frequent falls. This indicated older people’s deterioration in medical

co-morbidity (Roe et al., 2008). Falls were related to suddenness and feeling alone.

Loss of confidence and fear of falls were related to the severity of injuries received

from falls. Also, participants that did not reflect on their fall or tried to understand

the reason behind the fall restricted their lives. This was a minority amongst the

participants. On a positive note, the majority of participants that reflected on their

falls, confronted their fears and took steps to maintain control, choice and

autonomy. Older people took steps to minimise falls and accepted the risks (Roe et

al., 2008). It was also concluded that assisting older people in understanding the

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reasons behind the fall lessens the fear of falling, helps prevent future falls, assists

in retaining confidence and aid rehabilitation in activities of daily living (Roe et al.,

2008).

2.4.4 Summary

It can be concluded that the old-old have a higher quality of life than the young-old.

The more active and positive the elderly person is, the better their quality of life.

Having a sense of attachment, role, enjoyment, security and control are important

to older people to have a good quality of life, as well as dignity. However, dignity

can be rated differently depending on the person’s values and social influences.

Fear of falling, loneliness and loss of a physical ability contribute to a lower quality

of life. Women are found to have a lower quality of life, due to the decrease in

social support, being widowed and living alone. Older people need support in social

and environmental settings, as well as psychological and physical assistance and

encouragement in reflecting and facing fears. The combination of these factors can

improve the quality of life in older people.

2.5 Differences in Quality of Life in Various Environments

Elders in Western societies had viewed receiving family care negatively, as many

held values of “individualism, productivity, autonomy, competence, stoicism, and

privacy, even within kinship relationships” (Bellah et al. 1986, in Crist, 2005 p.490).

Crist (2005) comments that previous research findings have shown that elders

perceive themselves as failures or feel indebted to family members for providing

care when they can no longer conform to accepted norms.

However, more recent findings show that this is not often the case. Four key issues

arose in a study conducted by Crist (2005) on the views of older people receiving

family care. These findings were: a) elders had a more positive attitude towards

incorporating family care whilst still considering themselves autonomous; b)

positive relationships with family carers; c) acceptance in receiving family care was

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the result of positive relationships between the elderly and the carers; d) most

elders believed that even though they received more help than necessary, they

could still strike the balance of receiving care and maintaining their own autonomy

if desired.

The findings suggest that not only do elderly people value autonomy highly, they

also regard receiving family care as a sense of validation for a strong, positive

relationship with family members (Crist, 2005). "The interpretation that most of the

elders still viewed themselves as leading autonomous lives, even when receiving

various levels of family care, has important implications for nurses because it

challenges conventional assumptions that elders in Western society view receiving

family care negatively" (Crist, 2005 p.490). However, elderly people receiving help

from a family carer to do an activity that they can perform themselves, from a

rehabilitation-orientated professional perspective is viewed as negative and

dysfunctional (Crist, 2005 p.491).

In terms of quality of life for elderly people in a nursing home setting a study was

conducted in Turkey by Luleci, Hey & Subasi (2007), with 107 participants to

determine the relationship between socio-demographic factors, health related

behaviours, satisfaction and functional disability levels. Findings conclude that there

is an importance in encouraging nursing home residents to undertake regular

physical or leisure time activities. Also, as commented by Rojo Perez et al. (2001, in

Luleci et al., 2007), resident satisfaction in relation to psychological well-being is a

key factor in successful ageing.

It can be concluded that personal resources (high sense of coherence) and external

resources (social support) offset losses in failing health and other limitations. It can

also be suggested that social resources and personal resources are susceptible to

decline in functional ability (Borglin et al., 2006). Therefore, it does not matter

where the elderly person is situated, whether in a home or community

environment. Quality of life depends upon how well an elderly person can adapt to

change and ease themselves into the transition of ageing. However, further

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research needs to be conducted on how to more effectively provide for this diverse

group of older people to be able to cater for their various levels of abilities, and to

assist in informing nurses and professionals on how to implement rules and

procedures for the elderly (Borglin et al., 2006; Hellstrom et al., 2004).

2.6 Informal Caregivers

Informal caregivers are carers who are usually family members of the person

acquiring the services. They are presumably a spouse, an adult child or relative.

Studies conducted in Sweden have shown that 14% of persons over 75 years of age

were involved in informal care of an elderly person (Ekwall et al., 2004). Caregiving

can be defines as “help with personal activities for daily living and/or instrumental

activities of daily living, although it is likely to include other aspects as well” (Ekwall

et al., 2004 p.239). Section 2.6 illustrates that older people do not mind and some

welcome help from informal caregivers. However, it has been shown to contribute

to a negative quality of life for the informal caregiver (Ekwall et al., 2004; Grewal et

al., 2006). This creates a negative influence upon attachment, enjoyment and

security.

According to Bower’s typology there are five levels of caregiving; anticipatory,

preventive, supervisory, instrumental and protective (Ekwall et al., 2004).

Anticipatory caregiving involves decisions and behaviours on the persons’ possible

needs, usually conducted from a distance and invisible to the cared person.

Preventive caregiving involves more active monitoring than the first stage, it

consists of preventing illness, injury, physical and mental deterioration. Supervisory

caregiving requires the carer to keep a close watch and arrange things for the

person in care as well as trying to maintain the carers’ own self-esteem and dignity.

Instrumental caregiving has more of a physical involvement. This stage is mostly

recognised as caregiving. Finally, protective caregiving is to protect from

consequences which cannot be avoided, such as cognitive decline and depression

(Ekwall et al., 2004).

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Ekwall et al. (2004) conducted a study in Sweden to investigate the dimensions of

informal caregiving of elderly people that was provided by another elderly person

with impaired health. The results showed that there were different effects on male

and female caregivers. Women carried heavy burdens as caregiving decreased their

quality of life. Studies conducted in the UK, Brazil and Sweden have shown that

women have a lower satisfaction in life than men. Full time caregivers also had a

lower quality of life than part time caregivers (Ekwall et al., 2004).

A low socio-economic factor also contributed to lower satisfaction in life as well as

the carers themselves needing assistance with IADL (Ekwall et al., 2004). Women

provided more assistance with PADL. Men provided more assistance in IADL. This

may be due to the fact that Instrumental activities of daily living better physical

ability to perform. Therefore, men could be more physically able. Another reason is

that physical activities improve quality of life (Ekwall et al., 2004).

A reason for the lower quality of life in informal caregivers can be due to the fact

that the caregivers and person cared for are going through a transition and the

personal resources are exceeding the environmental demands. As they adapt the

balance will be reinstated. Low quality of life for caregivers is common amongst

those that are providing care in the early stages, such as anticipatory and

preventative care (Ekwall et al., 2004).

Informal caregivers are important as they provide care and assistance to their family

members. However, when informal caregivers provide constant care, the longer the

duration the lower quality of life the caregiver has, especially during the transition

period of anticipatory and preventative care. Therefore, it is important to provide

informal caregivers with assistance, which may be in the form of assistive devices.

This assists the elderly in care with personal activities of daily living, which are

activities that place more strain on caregivers than instrumental activities of daily

living. Assistive devices will be discussed in Chapter 3.0.

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2.7 Summary

It is known that for the elderly, deterioration of lower-extremities precedes upper-

extremities. Decreasing levels of physical ability is associated with poor mental

health. The elderly regard transportation as an important activity, which maintains

mobility independence and social contact. Whereas, Occupational Therapists regard

more importantly telephoning, meal preparation and medicine management over

transportation, for elderly to maintain independence in the community. Elderly

people prefer to undertake leisure activities, activities which are meaningful and

rewarding to maintain independence in the community.

The majority of elderly people presented in the case studies need assistance with

PADL and IADL. More women than men need assistance in activities of daily living,

either formally or informally. However, some do not welcome the assistance or are

not satisfied with the assistance, such as house keeping. However, some

participants welcomed the assistance, such as meal preparation, as it gave them

more time to socialise. Elderly people who had to give up an activity that they

enjoyed, such as driving, and had not adapted had a poorer quality of life.

Quality of life is important to older people, caregivers and health professionals. It is

the most important factor, followed by health. A persons’ quality of life can be

affected by social and environmental factors, as well as physical and psychological

influences. It does not matter where older people live; either in independent living

or in a community facility. Quality of life depends upon whether elderly people have

a sense of attachment, role, enjoyment, security and control. Women have a

reported lower quality of life, along with informal caregivers. Therefore, more

assistance is needed in activities of daily living to help maintain elderly people’s

quality of life.

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Chapter 3 Assistive Devices

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3.0 Assistive Devices

Edwards & Jones (1998) believe that “assistive devices can potentially compensate

for disability and lessen handicap and thus increase independence and improve

quality of life” (p.463). Therefore, this chapter addresses the ownership and use of

assistive devices and contributing factors towards the disuse of assistive devices

and their effectiveness.

“Assistive devices are defined as mechanical implements specifically designed to aid

people with disabilities to accomplish what they need and want to do” (Brooks,

1991 p.1417). Assistive devices in this situation are products or devices which assist

the elderly in their activities of daily living in and around the home. Walking sticks,

walking frames, wheelchairs, crutches, commodes, lavatory rails, raised lavatory

seats, bathroom rails, non-slip bath mats, bath seats, bath boards, hearing aids,

spectacles, stair rails and bed hoists can be classified as assistive devices. Roelands,

Oost, Depoorter & Buysee (2002) also classify shower seats and sock aids as

assistive devices. Assistive devices are sometimes referred to in various literature as

technological assistance or assistive technology (Hoenig, Taylor Jr, & Sloan, 2003;

Tinker & Lansley, 2005).

"The relationship between symptoms, diseases and activities of daily living is not

fully understood" (Hellstrom et al., 2004 p.585). However, some studies have

suggested that assistive devices may assist to maintain and preserve the amount of

physical activity the older person does and to also allow a task to be more

efficiently performed (Hoenig et al., 2003). Avorn and Langer and Penrod et al.

commented, in Hoenig et al. (2003), that the greater the level of disability the

greater the level of informal and formal assistance is needed.

Metz (2000) concludes that “there is an important relationship between mobility

and quality of life of older people,” however, the “lack of an established

relationship between mobility and quality of life” makes the enhancement of

mobility difficult to evaluate (p.149). It is believed that the enhancement of mobility

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in older people is the key to improving their quality of life and in turn assisting them

in living in their own homes independently (Metz, 2000).

3.1 Ownership and Use of Devices

In order to investigate the reasons behind the attitudes towards the use of assistive

devices in elderly people, it is necessary to first identify the rate of ownership and

use of assistive devices. "In the age group of 65 to 74 years old, 22% of the US

population use mobility assistive devices (ADs), which increases in the age group of

75 years old and older to 43%" (Roelands et al., 2002 p.39). A study was conducted

on a random sample of 1405 older people aged 65 years and over who lived at

home, to investigate the ownership and use of various assistive devices (Edwards &

Jones, 1998). The results showed that the ownership of assistive devices depended

upon the age, gender, living arrangements and degree of disability of the user. This

study showed that users who owned assistive devices used them. Another

interesting fact with regards to ownership of assistive devices was that the study

revealed devices such as walking frames and bathroom rails are used by more

women than men (Edwards & Jones, 1998). It is also believed that elderly people

who live alone are more likely to substitute human assistance with assistive devices

(Resnik & Allen, 2006). This section will look into the ownership and use of assistive

devices.

3.1.1 Case Study 3

Ivanoff & Sonn (2005) conducted a longitudinal study on the old-old population in

Goteborg, Sweden, to identify the changes in use of assistive devices over a five

year period. There were a total of 195 longitudinal participants. These participants

had to be living at home and not in institutions, hospitals, independent living areas

or in nursing homes. The results showed there were 50 participants who did not use

assistive devices at the beginning of the study. By the time the participants reached

90 years of age, 37 of these 50 participants were using assistive devices. Only 13

participants at the end of the five year study still did not use assistive devices. After

the five year study, 73% (n=143) of the total participants were permanent users of

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assistive devices. Only 1% (n=2) of the total participants that were using devices had

stopped using them when they reached the age of 90.

The assistive devices were categorised into four major groups; bathing, mobility,

toileting and personal care. Results showed the use of bathing, mobility, personal

care and toileting devices all increased with age, except the use of bathtub seats

and eating assistive devices. Bathing devices had an increase in use over the five

year period of 53 and toileting a total of 76. Out of these two device categories the

grab rail (n=28) was a device that had the greatest difference in use between ages

85 and 90. Grab rails for bathing were already used by a high number of people

(n=64) at the age of 85 compared to grab rails for toileting (n=9) (Ivanoff & Sonn,

2005). It can be suggested that elderly people start using bathing devices at a

younger age and toileting devices are needed at a later stage. This may be due to

increasing chronic health problems, weakness in upper body strength and the

slipperiness caused by wet floor surfaces.

Ivanoff & Sonn (2005), also found that the participants possession and use of

bathing and mobility devices were used at a younger age and more readily, which

was then followed by toileting and personal care products. Although mobility

devices are used first and more readily, there were also a growing number of

elderly people using mobility devices at 90 years of age. The total difference in use

between ages 85 and 90 was 88. This study showed that the majority of the

participants used assistive devices. However, this study was conducted with people

living at home, therefore, it is not understood whether a similar result would occur

to people that live in aged care facilities (eg. if more assistive devices are used due

to regular professional intervention or less assistive devices are used due to the

combination of personal and device assistance).

3.1.2 Case Study 4

Another longitudinal study was conducted by Haggblom-Kronlof & Sonn (2007) to

study elderly people’s use of and experience with assistive devices in daily

occupations over a duration of ten years. The study was also conducted in Goteborg,

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Sweden, with participants (n=199) at 76 years of age and still living at home. The

approach to the data collection was by the use of structured and open-ended

interviews with the participants during home visits, as Hoggblom-Kronlof & Sonn

(2007) state “the only way to understand the advantage, meaning and value, of

assistive device and their impact on a person’s daily life is to ask the users” (p.336).

The longitudinal study showed 69% of the elderly people used assistive devices at

86 years of age, compared to 43% using devices at the age of 76. New users of

assistive devices at the age of 86 was 34% and permanent users 35%. Permanent

users are referred to participants that have been using assistive devices for the ten

year duration, from 76 to 86 years of age. 23% of the total participants were non

users of assistive devices. Haggblom-Kronlof & Sonn (2007) found that out of the

participants that were dependent (needing assistance) in activities of daily living

there were 19% that were non-users of assistive devices at the age of 86 years. 81%

of dependent in daily activities participants were users of assistive devices. Among

participants that were independent in activities of daily living, there was a higher

number (45%) of non-users of assistive devices.

When data was analysed for percentage of persons that use assistive devices in

certain activity domains at the age of 86 years with reference to gender, it was

discovered that the majority of assistive devices were used for mobility. 66% of

them were women and 52% of them were men. The other activity domains were

hygiene, transfer bed and chair and lastly, grip and reach activity (Haggblom-Kronlof

& Sonn, 2007). Women were found to use assistive devices slightly more than men

in all domain activities. The only exception is in the hygiene activity domain where

62% of the females used assistive devices compared to 37% of males (Haggblom-

Kronlof & Sonn, 2007).

Usage rates for the assistive devices in hygiene, mobility and transfer chair and bed

were quite high. Hygiene (93%) and transfer chair and bed (98%) devices were

regularly used. The most readily owned assistive devices were the cane, tub boards,

raised toilet seats and rollators for outdoor use. However, the usage rates for non-

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use of assistive devices resulted in 18% in mobility and 26% in grip and reach

activities. The devices that were not used were canes and rollators for outside use

in the mobility domain and tub boards and shower stools in the hygiene domain

(Haggblom-Kronlof & Sonn, 2007). The main reason given for the non-use of

assistive devices was the lack of need for a device, due to recovery or deterioration

in abilities. This applied to canes and rollators for outside use. Devices that were

difficult to use was another reason for disuse as well as the device being broken.

This applied to assistive devices in the grip and reach domain. There were some

participants that did not use assistive devices as they preferred personal assistance.

This applied to hygiene and mobility devices. One positive aspect from the non-use

category is that none of the participants blamed not knowing how to use the device

as a reason for disuse (Haggblom-Kronlof & Sonn, 2007). This can suggest that the

participants were knowledgeable in the assistive devices that they owned.

Attractiveness of an assistive device was also not mentioned in the non-use of

assistive devices. It may be assumed that practicality of an assistive device comes

before the aesthetics of a product, as this issue was not brought up by Haggblom-

Kronlof & Sonn (2007).

In relation to the usefulness of assistive devices Haggblom-Kronlof & Sonn (2007)

discovered that the most common response amongst the participants was that they

felt ‘more secure’. The other reasons to usefulness are ‘less effort’ and ‘absolute

necessary to use’. When Haggblom-Kronlof & Sonn (2007) analysed the experience

of being a user of assistive devices amongst 86 year olds, they summarised the

findings into three key aspects; personal, practical and social. Haggblom-Kronlof &

Sonn (2007) placed the experiences on a continuum as illustrated in Table 3 .

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Table 3. Experience of being a user of assistive devices (Haggblom-Kronlof & Sonn,

2007)

Personal Aspects

Normal Mark of old age

Pleasant Unpleasant

Safe Unsafe

Practical Aspects

Usable Inappropriate

Essential Cumbersome

Social Aspects

Feel Respect Afraid

Do not mind Embarrassing

Personal aspects referred to users of assistive devices’ inner feelings and attitudes.

The feelings ranged from positive to negative. Overall, the responses from the users

showed that the personal aspects were feeling more normal, pleasant and safe.

There was one participant who referred to his cane as his ‘companion’. There were

others that had unsatisfied feeling towards devices. They were seen as a ‘mark of

age’, as they made them feel old. One participant remarked “It doesn’t feel good.

Now, I’ve become old” (Haggblom-Kronlof & Sonn, 2007 p.341). Pleasant

experiences were expressed with positive words such as happy, wonderful, lucky,

good and grateful. On the other continuum of feeling safe and pleasant, one

woman expressed unpleasant feelings towards the use of having a free standing

toilet chair in her bedroom. The woman replied, “simply the thought of having it

standing in my bedroom is unaesthetic and inconceivable” (Haggblom-Kronlof &

Sonn, 2007 p.341).

In terms of practicality, the users of assistive devices found them generally usable

for daily living activities. When assistive devices were regarded as inappropriate and

impractical is when the assistive devices did not adapt to various environments,

they became obstacles. The example used was the use of rollators outdoors or on a

slope or getting through a doorway where the door is difficult to open. Assistive

devices being cumbersome was also expressed. One woman explained that her

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cane was cumbersome as she would forget it, drop it and it was in the way

(Haggblom-Kronlof & Sonn, 2007).

Social aspects refer to the use of assistive devices amongst other people and in the

community environment. The general response to the use of assistive devices was a

sense of respect. Participants that felt afraid of their environment avoided using the

assistive devices. One participant did not want to show that he had visual

impairment and used a white cane. His response was: “I have a foldable white cane

that I do not use because then I become a victim of my surroundings”. Another

feeling was embarrassment. Some participants were ashamed of using assistive

devices and some users felt their company were embarrassed by their using of

assistive devices (Haggblom-Kronlof & Sonn, 2007). This is a distressing finding as it

shows that assistive devices are necessary for some users and yet they do not use

them due to embarrassment and being afraid of becoming victims of their

surrounding environment.

Overall, the population in the ten year longitudinal study showed that the majority

of users did use assistive devices for activities of daily living. Use of assistive devices

was seen as a positive experience by most participants. However, there were still

responses on the continuum from the negative end, which were especially evident

in relation to assistive devices that were used outdoors, in a social context.

Haggblom-Kronlof & Sonn (2007) gave a good insight into the users’ experience of

assistive devices among 86 year olds through the data collection of interviews with

the users. Further research can be conducted in this manner for elderly people in

other ages and locations to see if these findings are consistent.

3.1.3 Case Study 5

Roeland, Van Oost, Depoorter & Buysse (2002) studied the use and non-use of

assistive devices to identify the contribution of psychological variables. The study

was conducted in Flanders with Dutch speaking elderly people (70 to 89 years old)

from community based dwellings. Community based or community-dwelling, refers

to individuals who reside independently in the community in their own private

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home. It does not refer to individuals who live in aged care complexes, nursing

homes or any dwelling that provides aged assisted living (Grayson, Lubin, & Van

Whitlock, 1995).

The mean number of assistive devices owned by the participants was 3.11 and

there was a high percentage (80.6%) of elderly people that used at least one

assistive device that they owned (Roelands et al., 2002). However, the mean non-

use of assistive devices from the respondents was 51%. The highest ownership of

non-use devices were the cane (22.2%), toilet seat (15.9%) and the long shoehorn

(15.6%) (Roelands et al., 2002). The non-use of canes is consistent with findings

from Haggblom-Kronlof & Sonn (2007) as described in Section 3.1.2. Other than the

cane, the findings did not show any other similarities in terms of ownership and

usage of assistive devices. It was also difficult to compare the two studies

(Haggblom-Kronlof & Sonn, 2007; Roelands et al., 2002) as the information

provided on assistive devices varied. Haggblom-Kronlof & Sonn (2007) provided

information on the usage rates of assistive devices and gave an overall percentage

rate for each domain. They did not detail the usage rate of each type of assistive

device. Roelands et al. (2002) on the other hand did provide information on the

awareness, possession, use and non-use on each type of assistive device. However,

they did not test on the participants’ usage rate of assistive devices, resulting in

difficulty comparing the two sets of data.

In relation to the intention to use assistive devices, the respondents’ mean score

was 12.54, the maximum is 15. The intention to use assistive devices refers to the

respondent being unable to perform an activity on their own, would they use an

assistive device to complete the task even if it is tiring and difficult (Roelands et al.,

2002). The respondents’ attitudes towards the use of assistive devices will be

discussed in Section 3.2. However, it can be quickly summarised that the

community dwelling older people had a positive attitude toward assistive device

use (Roelands et al., 2002). The elderly people also believed that the use of assistive

devices would increase autonomy and decrease the need for personal care. They

valued the ability to maintain their own homes and lives through the use of assistive

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devices. There was also agreement amongst the respondents that assistive devices

cannot exclude personal care.

3.1.4 Bathroom Devices

A sample study of community based (living at home) older people in the United

Kingdom conducted by Edwards & Jones (1998), found that participants who owned

a bathroom rail were usually people that lived alone. This accounted for 32% of the

total respondents. Within the 32%, 21% owned a bathroom rail and lived with a

spouse, 11% lived with spouse and others (Edwards & Jones, 1998). In terms of

ownership and use of assistive devices for bathroom aids there was a low

percentage of respondents who did not use the assistive devices that they owned.

5% was the highest non-use rate which attributed to non-slip bath mats. This was

followed by commodes (3%), bath seats (3%), rail in lavatory (2%), rail in bathroom

(2%) and raised lavatory seat (1%) (Edwards & Jones, 1998).

The usage rate was also high from participants in the study conducted by Clemson

& Martin (1996). This study investigated the usage and effectiveness of rails,

bathing and toileting aids for elderly people who lived at home. Participants that

were selected had an association with a large Sydney teaching hospital. The study

was conducted through the medium of a questionnaire with specific questions

about each rail and aid with yes and no and multiple choice responses and

questions towards attitudes that could be answered on Likert scales (Clemson &

Martin, 1996). The usage rates of bathroom aids (86%) and rails (76%) were high.

However, there was still disuse in the assistive devices. There was 4% of equipment

that was never used. The disuse rate was calculated over the duration of

approximately two years; from when the assistive devices were in use at time of

survey to a two year period. The disuse rate of rails ranged from 6% to 20%, the

20% attributing to shower rails. The disuse rate of aids ranged from 12% in

bathmats, 24% in shower chairs to 56% from raised toilet seats. Raised toilets seats

were quickly discarded in less than three months (Clemson & Martin, 1996).

Compared to the study conducted by Edwards & Jones (1998) the disuse of

bathroom devices in terms of type varied. Raised toilet seats received a 1% disuse

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rate and the highest disuse came from bath mats(5%), whereas Clemson & Martin

(1996) claim a disuse rate of 56% from raised toilet seats and 12% from bath mats,

which was one of the lowest non-use rates. These are conflicting results which need

to be explored further.

The main reason for non-use of rails and aids was due to the participants’

improvement in abilities. Other reasons included the worsening in their condition,

incorrect aid prescription and items seen as unsafe. Items considered unsafe were

shower chair, front step rail and shower hose. There were no evident relationships

on the usage rate between bathroom devices and gender, age or marital status

(Clemson & Martin, 1996).

In terms of satisfaction with the bathroom devices, participants were questioned on

the ease of use, fit, ease of cleaning and the quality of the product. Raised toilets

seats received the least satisfaction. The overall satisfaction for rail placement was

high. Dissatisfaction came from the positioning of rails; being out of reach, just

within reach or undesirable vertical positioning. Vertical positioning rails may not be

able to aid in leverage and weight bearing as well as oblique and horizontal

positioned rails (Clemson & Martin, 1996). Other dissatisfaction of bathroom

devices was attributed to the incorrect assessment in rail placement, issues with aid

prescription and design of equipment. However, further research is needed to

identify whether the satisfaction or dissatisfaction of bathroom aids and rails is

related to the characteristics of the user (Clemson & Martin, 1996).

3.1.5 Mobility Devices

Edwards & Jones (1998) found the most commonly owned mobility device to be the

walking stick. 30% of the respondents owned one and 3% owned two. Edwards &

Jones (1998) state that the ownership of assistive devices increases in number with

age. 67% of elderly people 75 years of age and under had one or more assistive

devices, compared with 83% of elderly people over the age of 75 years. The aids

that were most common among the elderly of 75 years of age and above were

walking sticks, walking frames and wheelchairs (Edwards & Jones, 1998). Sonn &

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Grimby (1994) also share the same views as they state that “assistive devices

increase with age among the elderly, and that hygiene and mobility devices are the

ones most frequently used” (p.91).

The type of ownership of assistive devises depended upon the persons’ living

arrangements (Edwards & Jones, 1998). Ownership of wheelchairs, walking frames

and commodes were compared to the participants’ living arrangements. Out of the

participants that owned a wheelchair, 12% lived with others, 3% lived with their

spouse, 2% lived alone and another 2% lived with their spouse and other people.

Similar figures were shown for the comparison with ownership of walking frames

and commodes (Edwards & Jones, 1998).

The use of mobility devices also varied depending on race and ethnicity. In the

United States, the Black population have been reported to use more mobility

devices than Whites and Hispanics for elderly people over the age of 65 (Kaye et al.,

2000 in Resnik & Allen, 2006). The differences in usage of assistive devices between

the various ethnicities are unknown. Resnik & Allen (2006) investigated the

difference in use of mobility devices by participants with varying race and ethnicity

and also sought to identify if the effects changed based upon age. Results showed

Blacks were more likely to use mobility devices at a younger age, however, is not

evident in the older age group. The reason may be that Blacks have a lower

prevalence of disabling chronic diseases and diabetes when they reach the older

age groups. Hispanics and Whites use of mobility devices share the same pattern at

younger ages, however, at an older age from 65 years and over the use increases

with the Whites (Resnik & Allen, 2006). It is suggested that the Hispanic culture

encourages informal caregiving from family, neighbours and friends. Therefore,

informal caregiving is not replaced with the use of assistive devices (Resnik & Allen,

2006). There do not seem to be longitudinal studies conducted in Australia that look

into assistive device use amongst elderly people with various race and ethnicity.

In the United States alone there are four million people that use canes and 1.5

million that use walkers (Bateni & Maki, 2005). Most of the users are older people,

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65 years of age or older. Older people living in low care residential settings were

found to be the most common users of gait aids. The approximate usage was four in

every five subjects (Watson, Chipchase, & Mackintosh, 2004). Canes and walkers

can be classified as gait aids. The term gait aid can be used to classify assistive

devices that are used for ambulation.

A pilot study was conducted by Watson et al. (2004) in Adelaide, South Australia.

Participants were living in residential care facilities that only required low level care.

The 31 participants had a mean age of 86 years. The study aimed to investigate the

influences of balance, fear of falling and pain on the use of gait aids among the

users. It was concluded that users who maintained a good sense of balance, less

fear of falling and suffered from less pain relied less on gait aids. Participants who

had poorer balance, greater fear of falling and pain resorted more to gait aids for

support and stability.

Gait aids assist the users by reducing their lower-limb loading. This alleviates pain

by reducing the pressure that is placed on the joints. The use of these aids also

improves balance by “providing mechanical advantages as well as somatosensory

feedback” as weight can be distributed to the stick or frame (Bateni & Maki, 2005

p.134). It can be proposed that a gait aid that provides the most support in stability,

redistributes loads and alters weight bearing patterns would be one that has the

greater number or points of contact to increase the area of base of support (BOS).

For example, the frame is the most stable as it has four points of contact and has a

wide BOS, whereas a stick only has one point of contact (Watson et al., 2004). A loss

of balance happens when the “centre of mass (COM) is displaced in relation to the

BOS” due to external influences such as slips, trips or pushes. The use of gait aids

increases the BOS and therefore, allows for a greater movement in the centre of

mass without the user losing balance and stability (Bateni & Maki, 2005 p.136).

There are four types of gait aid users. There are cane users, walker users, those that

alternate between the cane and walker and finally non-users. The types of gait aids

prescribed to people are generally influenced by the evaluation of the persons’

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balance. Sticks or canes are usually prescribed to people who have a mild to

medium impairment. Walkers or frames are recommended to people who have a

higher level of difficulty in lower-limb weight bearing, have poor balance, general

weakness or weakening conditions (Bateni & Maki, 2005). However, research

conducted by Charron, Kirby & Macleod, 1995, and Simpson & Pirrie, (1991, in

Watson et al., 2004), has suggested that inappropriate use or incorrect

prescriptions of these gait aids can lead to negative effects on the users, increasing

the risk factor for falls. It has been reported that over a period of 12 months, 50% of

the older people in residential care facilities have taken a fall (Watson et al., 2004).

As well as placing the elderly in risk of falling the use of gait aids has been reported

to contribute to upper-limb stress. Bateni & Maki (2005) have reported that

excessive stress on the upper portion of the body can lead to bone fractures.

Incorrect use of the aids and repetitive strain on the joints in the upper-limb can

lead to the development of further disabilities and pathologies such as tendonitis,

osteoarthritis and carpal tunnel syndrome. Another negative effect in the use of gait

aids is the ability for elderly to maintain or recover balance. Bateni & Maki (2005)

suggests that the response rate in older people in relation to a postural disturbance

is impaired. They are less able to switch from one task to another quickly, unlike

younger people. The elderly need to concentrate the majority of their attention to

one main task. Therefore, when there is a disturbance or interruption to their

current postural position it would be difficult for them to recover from it. The use of

gait aids may hinder the ability for older people to maintain or recover balance

(Bateni & Maki, 2005).

Even when gait aids are used correctly and they are of benefit to the users, they are

often abandoned and not used. Bateni & Maki (2005) commented that results from

clinical observations and empirical evidence indicate that the non-use rate of gait

aids is between 30 and 50 percent. This data was collated soon after patients

received their assistive devices. Responses to the non-use of the devices were that

the gait aids were either too difficult or risky to use.

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Watson et al. (2004) aimed to investigate the non-use or use of gait aids in older

people with a hypothesis that fear of falling and pain contributed to the type of aid

used or not used. It was concluded that fear of falling dictated the type of gait aid

that was used and there may be a psychological influence which needs to be further

researched. Investigation is needed to understand the relationship of the older

peoples’ true balance ability and fear of falling. Pain, however, was not found to

influence the type of gait aids used or not used.

3.1.6 Other Devices

A study was conducted in Taiwan to identify the feasibility of hip protectors for

older people. This was conducted by Huang, Lee & Wu (2006) with ten elderly

women. They were required to wear a hip protector for the duration of six months.

It is believed that hip protectors prevent hip fractures and are cost effective and

assist in maintaining the quality of life of older people. “Hip protectors work by

directing the force of a fall away from the hip joint and towards the surrounding

soft tissue”(Swerissen & DenneKamp, 2006 p.9). However, from the results of this

study and existing studies it was found that compliance and correct wearing of the

hip protector was low (Huang et al., 2006). The reasons for low compliance were

discomfort, worn only during the day, lack of family or carer assistance and

unaccustomed to use. Participants were more comfortable and familiar with

undergarments that were loose fitting and not tight around the abdomen. Another

hip protector study was conducted in Victoria, Australia, in twelve public sector

residential aged care facilities (Swerissen & DenneKamp, 2006). In that study the

compliance rate for hip protectors was on average 64% and the most common

comment of non-use was the discomfort and the lack of perceived benefits. Some

other reasons were cognitive impairment, incontinence and protector loss or

unavailability. Van Schoor et al., (2002, in Swerissen & DenneKamp, 2006) state that

from various researchers the compliance rate for hip protectors varies from 37 to

72%, with a median rate of 56%.

Stathakis et al., (2002, in Swerissen & DenneKamp, 2006), state that there has been

a steady increase in the number of admissions to hospitals in Victoria, Australia

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from fall related injuries, most commonly amongst people aged 65 and over, from

1995 to 2001. Most patients admitted to hospital with a hip fracture had to stay for

an average of 16.3 days. Hip Protectors can limit the severity of a fall. Falls can be

prevented through exercise, psychotropic medication withdrawal, through careful

home assessments by trained staff and medication (Swerissen & DenneKamp,

2006).

However, Tavener-Smith & De Vet (2006) explored hip protector adherence in high-

risk older people and discovered that not only did the respondents describe the hip

protector as being uncomfortable and expensive, some acknowledged the benefits

but chose a fatalistic approach which resulted in disuse. These frail elderly people

chose to risk a hip fracture as they had a philosophical view about their life stage.

The most prevalent issue in Tavener-Smith & De Vet’s (2006) study was that

participants regarded hip protectors as an item of clothing, therefore, it would be

worn during the normal process of dressing and undressing. The hip protector was

not worn when the elderly people dressed following a shower or during the night,

as there were general discomforts and inconvenience during night toileting.

Therefore, there are hours when the user is unprotected from a hip fracture. Carer

support was also an issue in the adherence (constant wearing) of hip protectors.

The more encouragement and support given the more the participant adhered to

hip protectors and continued their use. Family support was shown to be an

important motivation to continue use and also assisting in the cost of hip protectors.

Participants that had upper limb weakness described the great physical effort to

wear the hip protectors. There was also loss of independence and problems with

incontinence through the usage, as the firm fit and bulkiness resulted in discomfort

in undertaking daily activities (Tavener-Smith & De Vet, 2006). Some participants

also saw the introduction to hip protectors as a threat, as it disrupted the comfort

and familiarity of lifelong routines (Tavener-Smith & De Vet, 2006). Therefore,

further research into the design of hip protectors to ensure safety and comfort,

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along with encouragement and support from peers, family members and carers is

needed in order to insure maximum adherence to hip protectors.

3.1.7 Summary

It is understood that assistive devices can assist older people, even the frail, in

maintaining independence and having the ability to undertake activities of daily

living. Mobility and bathing devices are used first and most readily. Assistive devices

such as hip protectors, shoe horns, wheel chairs, raised toilet seats, canes and

rollators are some of the devices that are not always used by elderly people but do

assist them with safety and mobility. Case studies three (Ivanoff & Sonn, 2005), four

(Haggblom-Kronlof & Sonn, 2007) and five (Roelands et al., 2002) were conducted

in community-dwelling settings. Therefore, it is uncertain whether similar results on

the ownership and usage of assistive devices will occur for elderly people in assisted

living and nursing home settings. Some of the reasons of disuse were due to

personal, practical and social factors surrounding the usage of assistive devices.

There were also expressions of assistive devices being unaffordable for users on the

pension. Further factors affecting the usage of assistive devices will be explored in

Section 3.2.

3.2 Factors Affecting Use of Assistive Devices

Ownership of assistive devices such as mobility, bathroom and personal care

devices varies depending on the degree of disability of the elderly people. It is

found that the rates of ownership and use of assistive devices by the minimally

impaired and frail are high (Edwards & Jones, 1998; Haggblom-Kronlof & Sonn, 2007;

Ivanoff & Sonn, 2005; Mann, Goodall, Justiss, & Tomita, 2002; Mann, Hurren, &

Tomita, 1993). On the other hand, there was a number of elderly people, some with

high degrees of disability, that lacked the necessary assistive devices (Edwards &

Jones, 1998; Mann et al., 1993). Edwards & Jones (1998) reported out of the very

frail elderly people, 80% had no raised lavatory seats, 68% had no lavatory rails,

62% had no bathroom rails and 46% had no non-slip bath mats. However, the

reasons behind the lack of assistive devices were not reported. Mann et al., (1993)

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& Mann et al., (1995) suggested that some of the reasons were affordability of

assistive devices and also uncertainty; if the device will function properly and if it is

really needed.

Non-use of assistive devices was not limited to the frail elderly; there was still non-

use amongst the general aged population. Some of the reasons for disuse were due

to the device not being suited to the person, the assistive device not adequately

meeting all the needs that the person required or, although the assistive device did

benefit the user, it drew unnecessary attention (Mann et al., 1993). Brooks (1991)

states that the acceptance scale on assistive devices varies according to research.

The scale can go from high utilisation of assistive device to rejection. One reason for

rejection was due to the lack of personal touch and communication in the assistive

devices (Rush, 1983 in Brooks, 1991). Therefore, Sections 3.2.1 to 3.2.4 will further

investigate the reasons affecting the use of assistive devices amongst elderly people,

such as awareness, cost, social implications and dissatisfaction.

3.2.1 Awareness

There may be some issues with public awareness of assistive devices. Findings from

the Consumer Assessments Study indicate that subjects do not have current

information on available assistive devices and stresses the importance of assisting

elderly people in identifying appropriate assistive devices (Mann et al., 1995 p.817).

Roelands et al. (2002) reported that respondents had an awareness mean of 20.51

assistive devices out of 32. Recently developed assistive devices such as personal

alarm systems and devices that assist in pulling up socks are tools which can benefit

the elderly in living independently and increase efficiency in undertaking activities

of daily living. However, they are not owned by the elderly people due to their lack

of awareness of the new products. This is more evident in elderly that are aged

between 70 and 90 years (Roelands et al., 2002).

Although there is non-use in recent products there is also non-use of typical well

known products such as the cane, toilet seat and shoehorns. They are easy to

obtain and inexpensive to buy. Roelands et al. (2002) suggest that the non-use of

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these products may be due to the fact that they may be hand me downs. They are

devices that are passed on from one generation to another. They are stored until

there is a need for a person to use them. However, it is also suggested that

expensive products are not being used, which is a waste of resources. Expensive

assistive devices include, hydraulic hospital beds, wheelchairs, walking frames and

chair lifts. To better understand this trend “a socio-cognitive model of human

behaviour” should be conducted to understand the use of assistive devices

(Roelands et al., 2002). At present there does not seem to be a socio-cognitive

model of human behaviour conducted by Roelands or by another author.

Bathing and mobility are the most common areas where the elderly would use an

assistive device (Mann et al., 2002; Roelands et al., 2002). What is of concern in the

use of assistive devices within the elderly is that if a task required the use of an

assistive device all the time to complete the activity it would be used, even if the

assistive device caused tiredness and difficulty in use and also, there are elderly

people that need them but do not use them (Mann et al., 2002). To better

introduce elderly people to assistive devices and influence them, Mann et al., (2002)

suggest understanding the users environment, creating a positive atmosphere, and

assurance about the use of the assistive device during introduction. This should

then be followed with on-going assessment of the users’ needs.

General practitioners, the users’ children and partner would be the most persuasive

people in introducing and encouraging the use of assistive devices. General

practitioners (63.4%) were reported to be regarded as the most valued and

persuasive people in the use of assistive devices. This is then followed by children

(53.8%), partner (47.2%), nurses (21.3%) and lastly friends (12.3%). 4.1% of the

respondents said they would not value anyone’s opinion on the use of assistive

devices (Roelands et al., 2002).

3.2.2 Cost

The use of assistive devices also benefits the elderly as it reduces the amount of

time spent on each activity. It also relieves some strain placed on caregivers.

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Technological assistance may not replace personal assistance. Furthermore, the use

of assistive devices has been reported to reduce personal assistance or care-giving

by four hours per week (Hoenig et al., 2003). The use of canes and crutches has

been shown to reduce personal assistance hours, but not wheelchairs or walkers.

Hoenig et al. (2003) also comments that there are social and medical factors that

vary the way elderly cope with their impairments. These variations need to be taken

into consideration when designing for the elderly. However, prescription of assistive

devices to elderly users will not be beneficial if the users are not able to purchase

devices due to costs.

Sonn, Davegardh, Lindskog & Steen (1996) found 16% of participants (70 years and

over in community-based dwellings) had un-met needs of assistive devices. The

devices related to mobility, balance and safety. The reason for disuse is not known.

Mann et al., (1993) also stated there were elderly people who needed devices that

assisted in safety to prevent falls that did not own them. The reasons the

respondents gave were due to the required assistive devices being too expensive to

purchase from their own pockets or that the devices were not reimbursable under

the third-party payment system in the United States. This was seconded by

Tavener-Smith & De Vet (2006) in that some assistive devices like the hip protector

were too expensive for people on a pension and the high expense would outweigh

the benefits of the device.

Nonetheless, there were respondents who were willing to purchase assistive

devices that were necessary and cost was not an issue. This result was found to be

supported by most of the respondents (Roelands et al., 2002). The respondents

disagreed with the idea of not paying for an assistive device that they needed

themselves in the study conducted by Roelands et al., (2002) described in Section

3.1.3. However, some assistive devices are inexpensive to purchase and when cost

is not an issue there is still hesitation in the purchasing of a device. The delay in

purchasing is due to uncertainty (Mann et al., 1993). Users are unsure whether the

device is really needed, how useful it will be or if the device will function properly

(Mann et al., 2002; Mann et al., 1993). Mann et al. (1993) suggest that users should

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be given the opportunity to try before buying and encourage professional

assistance in the assessing and recommending of assistive devices.

3.2.3 Social Influences upon Device Use

From a survey conducted with participants from the Resource Group of disabled

scientists and engineers, it was shown that they were most likely to use assistive

devices for mobility, transportation and employment. They were least likely to use

assistive devices for housekeeping and child care purposes (Brooks, 1991).

Culture and historical periods can influence the meaning of the devices and affect

social interaction (Brooks, 1991). The World Health Organisation, (1980, in Roelands

et al., 2002) have stated that a person’s attitude towards assistive device use, the

self-efficacy and the subjective norm are the variables that decide a person’s

intention to use assistive devices. The subjective norm refers to a person’s

perception of the value of significant others’ expectations to use assistive devices

and willingness to conform to expectations. In this case, the most influential people

to elderly people, their subjective norms, are medical practitioners, when proposing

assistive devices and seeking advise, as explained in Section 3.2.1 (Roelands et al.,

2002).

Brooks (1991) states that there are ways in which assistive devices play a social role

when related to disability. Assistive devices can alter the social appearance by

causing a disability to become public or by placing a social strain on the general

public due to devices that are unfamiliar. Safilios-Rothschild (1970 in Brooks, 1991)

commented that “people with disabilities have been collectively stereotyped with

numerous negative characteristics, including the frequent assumption that a

disabled body is associated with lower intelligence and poor judgment” (p.1418).

“The existing distribution systems exercise strong social control over assistive

devices. Making changes to add user involvement will challenge the minority

placement and evaluation of people with disabilities” (Brooks, 1991 p.1423).

Aminzadeh & Edwards (2000) suggest also that to ensure safety and older people’s

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needs, health professionals need to improve training and assessment approaches. It

is recommended that there should be social marketing strategies that market the

use of assistive devices such as canes with a more positive message; assistive

devices are tools for safety and independent living. Furthermore, to design more

attractive and convenient canes to improve the image of assistive devices

(Aminzadeh & Edwards, 2000). Edwards and Jones (1998) states that with the use of

assistive devices, users will continue to be independent individuals in the home.

Through the use of aids this may reduce the strain on resources such as informal

care-givers, social services and health care professionals.

Brooks (1991) found with regards to age that there was little relationship with the

devise use, disability type, or even the social context. However, it was found that

older people tended to disclose their use of aids in a working environment more

than younger people. Gender is another contributing factor to aid use. Walking

frames and bathroom rails were used more used by women than men (Edwards &

Jones, 1998). However, there is belief amongst some elderly people that assistive

devices foster loneliness. Nonetheless, nearly as many disagreed with statement of

loneliness (Roelands et al., 2002). Care substitution and stigmatisation were the

least expected from the use of assistive devices. The respondents expected

autonomy, speed of performance, safety and efficiency as the outcome of using

assistive devices (Roelands et al., 2002).

There is also conflict between assistive device researchers on the use and non-use

of assistive devices. Some state that in some studies it has been shown that older

people have a need and desire for assistive devices (Mann, Marchant, Tomita,

Fraas, & Stanton, 2002; Schweitzer, Man, Nochajski & Tomita, 1999), other studies

have stated that “elders choose not to use some assistive devices available to

them” (Mann et al., 2002 p.131).

3.2.4 Safety and Dissatisfaction

Assistive devices that elderly were less inclined to use or were dissatisfied with

were mobility devices. These mobility devices are canes, walkers and wheel chairs.

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In particular to wheelchairs, there seemed to be a poor relationship between the

device and the user. Other assistive devices older people were displeased with were

sensory devices; hearing aids and magnifiers (Mann et al., 2002). One contributing

factor to dissatisfaction is the inappropriateness of the assistive devices in certain

environments. There may be a lack of fit between the assistive device and the user’s

environment, producing undesirable effects and characteristics (Kraskowsky &

Finlayson, 2001).

Participants were dissatisfied with hearing aids. Almost half of Mann et al.s’ (2002)

study participants were unhappy with the hearing aids they owned. It was found

that participants had the lowest satisfaction rate (72.5%) from hearing aids (Mann

et al., 2002). Some of the reasons for dissatisfaction were not receiving enough

assistance from the hearing aids, they did not work, had problems with sound

control, not being able to filter out background noise and being uncomfortable

(Mann et al., 2002). There were similar responses toward magnifiers. The reasons

behind the dissatisfaction with magnifiers were more powerful magnifying device

was needed to enable the user to view items, the device was too small or did not

help at all (Mann et al., 2002). In relation to mobility devices, participants were least

satisfied with the wheel chairs. They were said to be uncomfortable, unable to

travel through various terrain and need repair (Mann et al., 2002). Therefore,

suitability, design and the maintenance of assistive devices need to be better

monitored and assessed in reducing dissatisfaction amongst elderly users.

3.3 Summary

It is known that there is a high level of ownership and use of assistive devices

amongst elderly people, even in the frail elderly. Assistive device use increases with

age and mobility and bathroom devices are most readily used. However, there is

also disuse of assistive devices amongst elderly people. Some of the reasons are due

to improvement or decline in abilities, awareness, cost, negative social influences,

incorrect prescription and placement. There are still some inconsistencies within

the studies on usage rates and the effectiveness of assistive devices. The

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relationships between the usage and attitudes towards assistive devices are still

unclear.

It is necessary to conduct research in order to find out how effective assistive

devices are to older people. This will assist researchers and health professionals in

recommending the appropriate assistive devices to the elderly. Investigation is also

needed to identify whether the non-use of assistive devices is related to the abilities

of the elderly or to the design of the product or social influence. This will allow

researchers to recommend how the design of assistive devices can be improved for

the heterogeneous group of older people in an Australian community or similar.

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Chapter 4 Research Plan

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4.0 Research Plan

To obtain the most suitable information to achieve the research objectives as

outlined in Section 1.2 within the given timeframe a research plan was devised. This

research plan consisted of two phases, which allowed for qualitative and

quantitative data collection.

4.1 Phase One

The first phase of the research was to gather quantitative data to gain an

understanding on the types of people that use and disuse assistive devices and

identify which to interview later on in the research. This was conducted in the form

of a recruitment questionnaire. A recruitment questionnaire is ideal in identifying

which participants may be eligible for further research (Brace, 2004). The benefit of

using a paper questionnaire is it allows the respondent time to answer each

question to enable them to write lengthy full answers, ability to give an honest

answer to sensitive questions and removes any bias. The disadvantages in

conducting a self-completion survey in paper form is the inability to prevent

respondents from reading the entire questionnaire before answering (Brace, 2004).

This can be a problem if the researcher wishes to have questions revealed in a

certain sequence. The other disadvantage is the security of material sent to

respondents. The material sent may be commercially sensitive material.

For this research, there were no commercially sensitive material and the questions

in the questionnaire could be browsed through before answering. There is one

disadvantage in using a questionnaire as some questions asked are on memory

regarding behaviour. Retrieval of information that happened in the past can be

unreliable depending on the data required. A participant will most likely not be able

to remember which brand of bread they bought three weeks ago, however, will be

more likely to remember which bank they bank with (Brace, 2004). This

questionnaire (Appendix 1) has some questions that ask the participant to recall

and name the assistive devices they have used. In this case because assistive

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devices are devices one would use for certain duration, like the bank example, the

participants will be able to complete the questions in the questionnaire.

The questionnaire consists of ten questions. The first three questions are closed

questions, which ask the participant about his or her age, gender and living

situation. The next four questions are questions relating to the persons’ health,

physical abilities and quality of life. This is answered on a Likert scale from zero to

ten; poor to excellent. The Likert scale assists in understanding attitudinal

dimensions within the research group (Brace, 2004). The last three questions are

also closed questions which ask participants if they have ever used assistive devices

before. These questions have a list of pre-coded prompts that aid the respondent in

simply ticking which assistive devices they have previously used and if they are not

in the pre-coded answers there are spaces to fill in other devices. The pre-coded

prompts act as an example for the respondents to gain a better understanding to

the meaning of assistive devices, to save energy in ticking boxes that are applicable

rather than writing down each answer, and this method can be easily recorded.

The questionnaires and interview questions were approved by the QUT ethics

committee and ready for commencement of research. Independent living homes

and aged care facilities were contacted to see if their residents would be interested

to participate in the project. Formal letters (Appendix 2) were addressed to the

managers and head nurses with a Participant information sheet (Appendix 3) and

questionnaire for perusal. The researcher contacted numerous establishments

throughout Brisbane (Appendix 4).

There were five establishments that agreed to participate in the research. These

were:

� Marycrest Retirement Centre (Hostel) – Kangaroo Point

� Garden City Retirement Home – Upper Mount Gravatt

� The Plains Retirement Village – Eight Mile Plains

� Sunny Cove – Sunnybank Hills

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Residents at Aveo Carindale were introduced to the research through the

establishments’ manager. Those that wished to participate filled out the

questionnaire through self completion. Residents at Garden City Retirement Home

were introduced to the research by a member of the staff. Those that wished to

participate had the assistance of the staff to fill out the questionnaire on their

behalf. Residents at The Plains Retirement Village and Marycrest Retirement

Centre received a different approach. The residents were introduced to the

research by the researcher and they responded to the questionnaire.

The face to face interviewing allows for clarification in questions, correction in

misunderstood questions, the ability to gather deeper responses to open questions

and the ability to present stimulus material (Brace, 2004). The disadvantages of this

method may be biases introduced from the interviewer; inaccurately recorded

responses, questions asked inaccurately and mistakes made in the interview

through fatigue and boredom (Brace, 2004). There is no cause for concern as the

questionnaire constructed for this exercise was designed with the aim that the

questions could be answered within five to ten minute duration. The questions

were all closed questions and stimulus material in the form of diagrams was at hand

if respondents needed clarification on the names of assistive devices. The

questionnaire also had an explanation of the term assistive devices with examples

for participants who chose to complete the questionnaires themselves. Participants

that self-administered their questionnaires had access to stimulus material. The

questionnaires were then collected for analysis. An in depth analysis of the findings

from the questionnaires are presented in chapter 5.0. The results from Phase one

assisted with the selection process for Phase two.

4.2 Phase Two

As the aim of the research is to identify whether elderly people’s non-use in

assistive devices are related to change in abilities or from the product itself it was

important to interview participants that had experience with an assistive device;

either currently using or previously used. Therefore, participants from phase one

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that had not used an assistive device were eliminated from phase two. Participants

that had declined to proceed with phase two were also left out. The rest of the

participants were invited to participate in phase two of the research.

Participants from Sunny Cove, Aveo Carindale and The Plains Retirement Village

were contacted by the researcher via telephone to see if they wished to participate

in the exercise. A time was then arranged with the participant for an interview.

Participants from Marycrest Retirement Centre were approached in person by the

researcher.

Again, the participants were reintroduced to the study verbally by the interviewer

and formally through the Participant Information Sheet. If they wished to proceed

they consented through signing the consent form (Appendix 5). Participants were

interviewed individually with a semi-structured interview format (Appendix 6) and

also recorded audibly for accuracy in data collection.

A semi-structured interview is ideal for these interviews as it allows the participants

to feel more relaxed and at ease. Furthermore, as Haggblom-Kronlof & Sonn (2007)

comment, “the only way to understand the advantage, meaning and value, of

assistive device and their impact on a person’s daily life is to ask the users” (p.336).

Dialogue could flow between the interviewee and interviewer more freely. Some

participants give answers to several questions all at once before it is asked.

Therefore, some questions are skipped and the format of the interview has to be

changed (Bailey, 2007). The series of questions that were already prepared for the

interview aids the interviewer to keep the interviewee on track when needed and

aids as a checklist to see if all the major questions are addressed. This not only

ensures the interviewer does not do most of the talking or get side tracked, it also

allows for flexibility in the interviewee to address any issues she or he has or tell

stories of events that were slightly related to assistive devices (Bailey, 2007). This

additional information given may or may not be relevant to the study. However, in

some cases there may be some interesting points towards attitudes or behaviours

that arise during analysis that were not picked up before.

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4.3 Coding of Data

Once the data collection is completed from phase two, the data is then transcribed

and coded for analysis. The analysis software used was ATLAS.ti. It is software that

assists in data interpretation. ATLAS.ti processes text, images, graphics and sound

by affixing codes. Codes can be represented in categories in a conceptual network

format. Text can be categories and super categories and then retrieved through the

allocated codes or through combinations of codes (Flick, 2006).

Table 4 illustrates the categorisation and coding process undertaken for phase two.

The coding scheme is to be read from ‘start’ on the right, following the arrow to the

left. Each interview was first coded with a gender, either male or female. Then it

was coded against the participants’ living situation; low care or independent living.

Once that was completed, the responses to the interviews were coded into the

family of assistive devices. The assistive device categories are sensory, mobility,

bathroom and other devices. Definitions of these categories are explained in

Appendix 7, (Table 2, p.116). From the four main device categories, they were

further categorised into the actual assistive devices. The responses made towards

the assistive devices were then coded into eight domains (eg. use, disuse, assist and

feel). Each domain represents the various responses (eg. bulky, unreliable, don’t

want to use) made within the domain. Explanations of the response domains and

responses are in Appendix 7, (Tables 4 and 5, p.118). The responses within the

domains were introduced to code the common responses received from the

interviews. This was formed by the initial analysis of the participants’ responses. In

Table 4, some codes are highlighted. They are coded as shown in the legend in three

different shades. The yellow shade represents codes that are related to the design

of the product. The green shade represents codes that are related to the design of

the product and the abilities of the user. The orange shade represents codes that

are related to the abilities of the user. This in turn assists with the analysis, whether

the disuse or use of assistive devices are related to the users’ abilities or in the

design of the product, or a combination of the two.

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Table 4. Coding scheme for phase two

Start

The definitions of the codes used are explained in Appendix 1. These codes were

applied to the textual data transcribed from the interviews. Interview data were

coded with the assistance of Atlas.ti software. This is illustrated in Appendix 8.

Occasionally Hearing aid

Sometimes Use

Frequently

Sen

sory

Magnifying Glass Bulky

Unreliable Cane

Unattractive

Don’t want to use Rollator

Replaced

Difficult

Ma

le

Stick Chair Got Better

Disuse

No Need Mobility Scooter

Balance

Confidence Wheelchair

Assist

Everything

Safe

Mo

bili

ty

Quad Stick Don’t Like

Alright Toilet surround

High Satisfaction

Ge

nd

er

Fem

ale

Feel

Neutral Grab rails

Get Up

Indoors Ba

thro

om

Shower chair Reach

Relieve Pressure Reacher

Help

Outdoors

Independence

Low

Ca

re

Hip Protector Combination

Personal Assistance

vs. ADs Assistance Lift & Recline Chair

Excellent

Very Good Shoe Horn

Good

Need Improvement

Livi

ng

Sit

ua

tio

n

Ind

ep

en

de

nt

Livi

ng

Ass

isti

ve D

evi

ces

Oth

er

Bed stick Need

Performance

Can go without

Yes

Legend

Design Design & Abilities Abilities

Re

spo

nse

s to

wa

rds

ass

isti

ve d

evi

ces

Ease of Use No

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64

4.4 Summary

To research the objectives outlined in Section 1.2, a research plan was devised. The

design of the research plan consisted of two phases, which allowed for qualitative

and quantitative data collection. Phase one consisted of a questionnaire that was

sent out to elderly people. The questionnaire asked participants on general

questions and what types of assistive devices they had previously owned or used.

Respondents from phase one who previously owned or used an assistive device

were the criteria for phase two. Interviewing of participants in phase two allowed

for qualitative and quantitative collection. These results were then analysed using a

coding scheme, which was applied to the textual data using analysis software

(Atlas.ti). The design of this research plan with the combination of questionnaire

and interview data gathering provided accurate and sufficient results for this

research. Results from the findings gathered from this research plan are discussed

in Chapter 5 and 6.

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65

Chapter 5 Phase One – Questionnaires

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5.0 Phase One - Questionnaires In order to investigate the use or non-use of assistive devices in the elderly, the

researcher created a data collection instrument; a questionnaire (Appendix 1)

consisting of ten questions. The questions were in relation to the participants’

health, overall physical abilities, age, gender, assistive devices owned, previously

used and currently used. The questionnaire was termed phase 1 of the research.

During phase 1, questionnaires were sent out to potential participants who were

over 50 years of age. 64 (30.5%) out of the 210 questionnaires were completed and

returned. The participants included people who lived at home, in independent

living/serviced apartments or aged care facilities with low-medium care. The results

from the questionnaires are analysed in Section 5.1.

5.1 Results

The average age of the respondents was 81.7 years. The youngest age was aged 59

and the oldest was 100. 72% of the participants were female, with only 18 males in

the initial study. The distribution of the ages can be seen in Figure 4. It can be noted

that the bulk of the participants were aged between 80 to 94 years. There is a

steady climb from 50 years of age, peaking at the 85-89 year bracket with a sharp

decline at 95 years of age.

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Age & Gender of Participants in Phase One

0

2

4

6

8

10

12

14

16

50-54 55-59 60-64 65-69 70-74 75-79 80-84 85-89 90-94 95-100

Age Groups (Years)

Num

ber

of

People

i

Female Male

Figure 4. Age of participants in Phase one.

The majority of the respondents lived alone either in independent serviced

apartments or in an aged care facility (low care). Nine participants lived with their

spouses mostly in private homes or in one case, the couple lived together in low

care. When relating the participants back to their age, it was found that the

majority in the living with spouse category were less than 64 years of age.

Therefore, it could be suggested that once elderly people reach 65 and is without a

spouse, they are more likely to move into independent serviced apartments and

other aged care facilities.

When participants were questioned about their overall health, they were asked to

give a rating from 1-10, 10 being excellent. The average rating for overall health was

6.84, which is just above good (Figure 5). Participants were also asked to rate their

upper and lower body abilities. This is movement from the waist up and waist

down. On a scale from one to ten, results showed participants had slightly better

upper body abilities compared to lower. The upper body scored a 6.98 average

while the lower body scored 6.08. This is consistent with findings from Jagger et al.,

(2001), as explained in Section 2.1; lower-extremity disability precedes upper-

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68

extremity disability. Differences in gender and age cannot be compared as there are

not enough participants in each category to make an accurate comparison.

Although participants rated their overall health and physical abilities slightly above

average on the scale, they rated their quality of life (QoL) higher on the same scale.

The average quality of life amongst the participants was 7.31. This can suggest that

people suffering from illnesses, deteriorated health and restricted body movements

can perceive that they have a more than average quality of life. Browne et al. (1994)

made a similar comment that older people themselves valued quality of life more

than their health.

Averages

7.31

6.08

6.986.84

1

2

3

4

5

6

7

8

9

10

Overall Health Upper Body Abilities Lower Body Abilities Quality of Life

Categories

Scale

(1-1

0)

i

Figure 5. Response averages to questionnaire categories.

The final questions in the questionnaire were regarding the use or non-use of

assistive devices. Out of the 64 participants, nine people reported that they had not

used an assistive device. There were 26 people who had previously used or owned

but did not use certain assistive devices. The ownership of assistive devices ranged

from one to eight devices per person. On average participants owned 3.5 assistive

devices.

The various types of assistive devices owned and/or currently used can be seen in

Figure 6. The greatest difference between previously owned and currently use for

an assistive device was the cane. Over 40% of the participants had owned a cane

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69

and at time of study fewer than 20% of the elderly have continued use. This concurs

with many other studies (Bateni & Maki, 2005; Haggblom-Kronlof & Sonn, 2007;

Roelands et al., 2002).

Usage of Assistive Devices (ADs)

0

10

20

30

40

50

60

70

80

Mob

ility

Sco

oter

Hearin

g Aid

Mag

nify

ing Gla

ss

Sock

/Sto

ckin

g Aid

Rollato

r

Crutc

hes

Cane

Qua

d St

ick

Wal

king

Fra

me

Mob

ile C

omm

ode

Tran

sfer

Ben

ch

Bath

Ste

p

Bath

Seat

Show

er C

hair

Grab R

ails

Hip P

rote

ctor

Lift a

nd R

eclin

e Cha

ir

Stair L

ift

Toile

t Sur

roun

d

Oth

er

Type of Assistive Devices (ADs)

Perc

enta

ge (

%)

i

Previously Owned Currently Use

Figure 6. Percentage of assistive device ownership.

It can be seen that over 50% of participants have access to grab rails and a shower

chair (Appendix 9). A number of participants have owned and used a hearing aid,

magnifying glass and cane. Assistive devices in the “other” column were shoe horns,

massage and elevated head and foot beds, bed sticks, reachers, chair sticks,

speaking clocks, wheelchairs and a Daisy; device that tells stories through a CD. The

bedstick and reacher (Appendix 9) are two products that were used by several

Sensory

Mobility

Bathroom

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70

people in the survey. The bedstick was only associated with participants in low care.

Whereas the reacher (a device that acts as an extended arm assists in picking

objects up from the ground without the need to bend down) can be seen in

independent living apartments through to low care.

Figure 6 shows evidence of three distinct groups of assistive devices being used.

They were bathroom, mobility and senses. Bathroom devices consist of toilet

surrounds, shower chairs and grab rails. The mobility group has quad stick, cane,

stick chair, rollator and walkers. Hearing aids and magnifying glasses are classified

under senses. Figure 7 illustrates the assistive devise in the three described

categories.

Usage of Assistive Devices within the Categories

23% 23%

50%

14% 16%

46%

0%

10%

20%

30%

40%

50%

60%

Senses Mobility Bathroom

Categories

Perc

enta

ge (

%)

I

Previously Owned Currently Use

Figure 7. Usage of assistive devices within the categories.

The sense and mobility categories each show that 23% of the users have owned or

have previously used devices in those categories, however, over time some stopped

using the devices. All three categories showed continued use of assistive devices by

a percentage of their participants. The decline in usage ranged from four to nine

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71

percent. The highest uptake and continued use of assistive devices were devices in

the bathroom category.

5.2 Discussion

Phase One results showed that a number of assistive devices were being used;

among the highest were the grab rails, shower chairs and rollators. This

corresponds with findings from Edwards and Jones (1998) that they are the most

commonly used devices, with the exception that the majority of current users have

upgraded and opted for walking frames with wheels (rollators), instead of the

walking frame itself.

Although literature (Huang et al., 2006) shows that hip protectors are ideal in the

prevention of a hip fracture during a fall, none of the participants in Phase One

owned one of these devices. Participants that had poor lower body abilities and

owned rollators should have hip protectors. However, they were never owned.

Some of the reasons for disuse of the sensory aids may be that participants have

gone blind and a magnifying glass would be deemed useless or have undergone

laser eye surgery to correct their vision. The disuse of hearing aids may be due to

dissatisfaction in the poor quality of the sound received or the discomfort or

appearance of the product. Again, this corresponds with the statements of Mann et

al. (2002) that there was dissatisfaction with magnifiers and hearing aids. However,

these are assumptions and needed to be verified with further research in Phase

Two.

The reason behind the decline in use of mobility devices may be due to the decline

in cane use, as illustrated in Figure 6. It can be hypothesised that participants have

opted for rollators or walkers, which offer more stability while walking due to the

decline of lower body abilities. Informants in Mann et al.’s (2002) study also showed

non-use in mobility devices, they were canes and walkers. Another reason that

contributes to the higher rate of use in mobility devices compared to Mann et al.

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72

(2002) may be that wheelchairs were not included in the questionnaire. Social

influences, as mentioned by Haggblom-Kronlof & Sonn (2007), Resnik & Allen (2006),

Brooks (1991), Roelands et al. (2002), need to be further investigated.

Disuse of bathroom or hygiene devices was quite minimal. This may lead to the

conclusion that the devices in this area are effective and efficient to the user.

Edwards and Jones (1998) along with Sonn and Grimby (1994), shared the view that

the ownership on the number of assistive devices increased with age and hygiene

and mobility devices are more readily used. Findings in the data collection share

their views as the average age of participants was 81.7 years of age. Also, some

bathroom and hygiene devices such as the grab rails and toilet surround are fitted

into the area, hence, they are always there and as a result will be used more.

Findings from Phase One presented some positive results. It showed that assistive

devices were being used by participants, meaning they are staying independent and

active. They are still maintaining a good quality of life even though they have poorer

upper and lower body abilities. However, there are assistive devices owned by

participants that are not being used. Further research in the form of interviews was

conducted in Phase Two, which aimed to verify the assumptions made, to identify

the disuse of assistive devices; whether the devices are inefficient, inappropriate or

if the participants no longer have a need for them.

5.3 Summary

The findings from Phase One supported the concept of older people using assistive

devices to help them maintain living at home, independently and with good quality

of life is very feasible (Edwards & Jones, 1998; Haggblom-Kronlof & Sonn, 2007;

Roelands et al., 2002). Also, elderly suffering from illnesses, deteriorated health and

restricted body movements can perceive that they have a more than average

quality of life (Browne et al., 1994). The continued use of bathroom aids and

mobility devices indicates that they are efficient and aid in elderly people’s

independence. Further investigation was undertaken into the reason behind the

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73

disuse of assistive devices such as hearing aids, magnifying glasses, canes and hip

protectors by the participants in Phase One, in order to further identify if they are

related to change in abilities or in the design of the product. These results and

findings are presented in Chapter 6.0.

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Chapter 6 Phase Two – Interviews

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6.0 Phase Two – Interviews

After the analysis of the questionnaires in the first phase of data collection,

interview questions were drawn up (Appendix 6). The questions aimed to

investigate whether the disuse or use of assistive devices were related to the older

people’s change in abilities or to the design of the product. Some of the questions

devised asked the participants when they used each of their assistive devices, how

the devices assisted them, how useful they were, what their feelings were towards

the devices, the reason for disuse and also their preference between assistive

devices and personal assistance. An example of the type of questions asked by the

interviewer can be found in Appendix 6. These questions formed the basis of the

interview. Since it was a semi-structured interview there were several follow-on

questions, which depended on relevance or if further information was needed.

6.1 Participants

Participants for the interview were required to have the prerequisites of having

previously owned or used an assistive device and participated in phase one of the

research. The ideal scenario for phase two was to have an equal number of

participants from independent living and low care environments, including a mix of

female and male participants. This however, was not realised. For phase two, 27

participants were available for interviewing. They consisted of four females and five

males from independent living arrangements and sixteen females and two males

from aged care facilities (low care). Participants interviewed were from the

following places:

• Sunny Cove – Sunnybank Hills

• Marycrest Retirement Centre – Kangaroo Point

• The Plains Retirement Village – Eight Mile Plains

• Garden City Retirement Home – Upper Mt Gravatt

The locations were suburbs in the region from inner Brisbane to Brisbane’s south

side.

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6.2 Methodology

The interviews were conducted at the participants’ residence. Interviews were one

on one; the interviewer and interviewee. The environment where the interviews

were conducted was usually in the rooms belonging to the interviewee or in a

private environment, away from other residents. This allowed the interviewee to be

more open about the questions that were asked and since it was in an environment

chosen by the interviewee, they were more comfortable.

A digital hand held recorder was used to record each interview. Consent was given

by the participants prior to the interviews. The interviewer was also equipped with

data from phase one to confirm the assistive devices they previously owned and

used or were currently using and a phase two interview questions sheet to record

observations and make notes during the interview. The length of the interviews

depended on the assistive devices used by the participant. The higher the number

of assistive devices used the longer the duration of the interview. The approximate

duration of the interviews ranged from three and a half minutes to sixteen minutes.

6.3 Findings

Once the interviews were completed, they were then transcribed and inserted into

a program named ATLAS ti., for analysis. The coding scheme used to attach the

quotes to the specific codes is as outlined in Section 4.3. Analysis sample of the

coding applied to textual data is shown in Appendix 8.

Participants were asked how often they used their assistive devices. Their responses

were then categorised into frequently, sometimes and occasionally. For example if

the reply for use of a grab rail was “all the time”, then it would be categorised under

frequently. If the reply for use of grab rail was “not often”, it would be placed under

occasionally.

The most commonly used assistive devices at a high frequency were the grab rails

and rollators. The majority of participants frequently used their assistive devices;

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78

there were a portion that used their assistive devices occasionally. This is illustrated

in Figure 8.

Frequency of Use on Assistive Devices amongst Participants

0

2

4

6

8

10

12

14

16

Grab Ra

ils

Show

er C

hair

Toile

t Sur

roun

d

Rolla

tor

Cane

Scoo

ter

Stick Ch

air

Hearin

g Aid

Mag

nify

ing Gla

ss

Lift

& Rec

line Ch

air

Shoe

Hor

n

Reac

her

Bed St

ick

Hip Pro

tect

or

Assistive Devices

Num

ber

of

People

i

Frequently Sometimes Occassionally

Figure 8. Frequency of Use on Assistive Devices.

Figure 8 indicates that grab rails, shower chairs and rollators have a higher number

of frequent use by people. This corresponds with findings from Haggblom-Kronlof &

Sonn (2007) that usage rates for assistive devices in hygiene, mobility and transfer

chair and beds were quite high. However, transfer chair and beds were not included

in this research (Phase Two) as none of the participants during phase one had

owned one. In phase two assistive devices that were used by participants on an

occasional basis were magnifying glasses and canes. The frequency and usage rate

on types of assistive devices that were sometimes used were not listed in

Haggblom-Kronlof & Sonns’ (2007) study. It only indicated that there were a

percentage of participants that sometimes used mobility and grip and reach devices.

Magnifying glasses were not included in the study either. There does not seem to

be other studies conducted with the frequency and usage rate of assistive devices.

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79

Disuse

To gain an understanding of the disuse of assistive devices, participants were asked

the reason for not using the assistive device that they were given. Their answers

were categorised into eight responses. Table 5 shows the results of the participants’

responses to the disuse of certain assistive devices. There were 19 responses of

disuse that were regarded as “no need”, 12 people disused products because they

did not want to use them and 13 people stopped using certain products because

the assistive device was replaced with another. Nine of the superseded products

were canes. Some of the responses for “no need” did not necessarily mean the

respondent had improved in ability so as to not require an assistive device. Some of

the reasons attributed to deterioration in health, therefore, had to change to a

different assistive device. For example, on most occasions it was the cane being

replaced with the rollator. Haggblom-Kronlof & Sonn (2007) had participants that

expressed lack of need for a device due to recovery or deterioration in abilities, in

the mobility domain. Nonetheless, there were respondents who did not deteriorate

or improve in health, however, answered “no need” towards the use of certain

assistive devices. This may be due to the participants’ feelings towards assistive

devices, which will be discussed in Section 6.3.

Mobility devices in particular seemed to be unreliable to some participants. The

most unreliable device was the cane followed by the rollator, mobility scooter and

hearing aid. This is consistent with findings from Mann et al. (2002). Haggblom-

Kronlof & Sonn (2007) did express that the non-use of assistive devices were in

mobility and grip and reach devices. In their study, mobility devices were not seen

as unreliable, only grip and reach devices were. Bulkiness and difficulty in use were

less of an issue for respondents in Phase two, however, they were still evident for

mobility and sensory devices. There were only three participants that stopped using

their devices due to improvement in physical ability.

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80

Table 5. Responses to disuse of assistive devices.

Responses

De

sig

n

De

sig

n &

Ab

iliti

es

Ab

iliti

es

D

on

't w

an

t

to u

se

Un

relia

ble

Bu

lky

Dif

ficu

lt

Re

pla

ced

No

Ne

ed

Go

t B

ett

er

To

tal

Cane 1 3 1 1 9 2 1 18

Rollator 0 2 1 1 0 2 0 6

Scooter 1 1 0 0 0 0 0 2

Quad stick 0 0 0 0 1 0 0 1

Mobility

Stick Chair 0 0 1 0 1 0 0 2

Hearing Aid 3 1 0 1 0 2 0 7 Sensory Magnifying

Glass 0 0 0 0 1 1 1 3

Grab Rails 1 0 0 0 1 2 0 4 Bathroom Shower Chair 4 0 0 0 0 7 0 11

Lift & Recline

Chair 1 0 0 0 0 2 0 3

Bed Stick 1 0 0 0 0 0 0 1

Ass

isti

ve

De

vic

es

Other

Reacher 0 0 0 0 0 1 1 2

Total 12 7 3 3 13 19 3 60

From Table 5, an alarming result has arisen with over half of the responses for

disuse being related to the design of the assistive device (n=38). This is excluding

the responses from assistive devices being replaced by another. The responses

related to “Don’t want to use” is of concern, as this means that the participants

have owned a particular device and not used it for reasons other than the lack of

need. It meant that participants have chosen not to use the assistive device that

would help them in some way. Another interesting finding is that, when asked for

the reason for disuse of an assistive device, no one used “unattractiveness” as an

explanation. It can be suggested that for the elderly practicality comes before

aesthetics.

The general comments made by participants for not wanting to use assistive devices

that they owned was nicely summed up by one participant as saying “I can get away

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with it”. These participants still have the physical ability to undertake an activity

without reliance on the assistive devices. Therefore, the participants try to

complete tasks unassisted until absolutely necessary.

The responses to the disuse of assistive devices other than those being replaced

with another product that is more reliable and fitting to their needs is the response

of ‘don’t want to use’. This means that the use of assistive devices still comes

attached with a social stigma. To some participants the use of assistive devices is

seen as a burden and is the beginning of a down hill trend in physical abilities. A

participant from Haggblom-Kronlof & Sonn (2007) explained that he did not want to

use his cane because then he would become a victim of his surroundings.

As for hearing aids, participants that no longer wish to use the devices had related it

to being unnecessary in certain situations. One participant states it is only needed

when going to places where there is a crowd. However, another participant adds

that it is “pretty useless”, commenting that hearing aids do not block noise and

therefore, is unclear and nothing can be heard. The majority felt they could “get by”

without the hearing aid and that their hearing wasn’t bad enough to warrant it. One

participant has resorted to lip reading when conversing. Respondents from Mann et

al. (2002) also expressed similar problems with hearing aids, stating they were

uncomfortable. It was not reported if their participants thought they could ‘get by’

without the hearing aid.

Four participants commented that they do not want to use shower chairs. The

reason was they preferred to stand when showering. Two participants commented

that they prefer to use grab rails when showering. One participant said it is only

there for emergencies and another commented that “there may come a day when I

do”.

There was a high number of respondents that did not use the cane (n=18), the

highest assistive device disuse amongst all the devices recorded. The responses to

the disuse of canes were mostly unreliable, replaced with another device or no

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need. The cane was deemed difficult and unreliable when the respondent had

difficulty with balance. Respondents were then advised to use rollators after falls

and loss of balance from the use of canes and after strokes. Respondents also had

difficulty balancing with a cane on uneven surfaces and holding onto objects in their

hands whilst grasping a cane. If the cane had been replaced by a rollator, the cane

then becomes a backup, or used only when participants go to places where it is

inconvenient to use rollators. However, in relation to rollators, one participant

found it hard to manoeuvre outdoors on gravel surfaces and another chose to

disuse it due to its’ bulkiness on public transportation. Haggblom-Kronlof & Sonn

(2007) and Kraskowsky & Finlayson (2001) commented on the inappropriateness of

assistive devices in certain environments; the lack of fit leads to undesirable effects

and characteristics.

One participant did not use the cane that he owned, claiming there was no need for

one. Through observation, the participant was very mobile without the use of a

cane. However, the participant did explain that he walks to his local shopping centre.

The route he takes consists of level ground with a few steep hills mid-way. The

participant claims to use a bush-stick:

“because after I walk up the long hill I hide the stick alongside

of a tree and then leave it, go and do my business at the

shopping centre then on the way back I pick up that stick. Why

I use the stick is going up the steep hill. I don’t use any stick

walking level.”

The explanation for the preference of using a bush stick compared to a

normal cane was that it was cheaper than a cane, and if lost or stolen it

would not matter. When asked further why the user does not carry

around a cane, the reply was:

“Well I could, I could. (Pause…) I suppose I’m keeping it for

when I really need it”.

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83

Performance

When participants were questioned on the performance of their assistive devices,

the majority of the responses were good, very good or excellent. Hence, they were

positive responses to the assistive devices used and owned. However, there were

ten responses that suggested that certain assistive devices need to be improved.

The main devices that needed improvement were hearing aids followed by grab

rails. Assistive devices that were deemed excellent were rollators, magnifying

glasses, grab rails, shower chairs and shoe horns. This can be seen in Table 6.

There were 18 responses to the need for an assistive device. This was related to

abilities. The participant cannot perform an activity without the assistive device.

There were 14 responses of “can go without”, which meant that even though the

participant can perform an activity without a device; they prefer to use it, to aid in

their performance of the activity. The most common assistive device needed was

the rollator. Assistive devices that participants could go without but preferred to

use were both bathroom devices; grab rails and shower chairs.

Table 6. Response to performance in assistive devices.

Design Abilities

Assistive Devices Excellent

Very

Good Good

Need

Improvement Need

Can go

without

Cane 0 3 1 0 2 2

Rollator 4 4 2 1 13 3

Mobility Scooter 0 1 0 1 0 0

Wheel Chair 0 0 0 1 0 0

Hearing Aid 0 0 3 5 0 0

Magnifying Glass 1 1 1 0 0 0

Grab Rails 4 3 3 2 0 5

Shower Chair 1 0 2 0 1 3

Toilet Surround 0 0 2 0 0 0

Lift & Recline

Chair 0 1 0 0 0 0

Bed Stick 0 0 0 0 0 1

Reacher 0 0 0 0 2 0

Shoe Horn 1 0 0 0 0 0

Hip Protector 0 1 0 0 0 0

Total 11 14 14 10 18 14

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84

The overall consensus on grab rails for participants was that they were a “wonderful

assistance”, agree with the “whole set-up” and are handy, firm and secure.

However, when they are located at a place that is not ideal for the user, the grab

rail is categorised negatively in performance; needing improvement. Complaint was

made about a single vertical grab rail situated too far forward along the toilet wall.

Clemson & Martin (1996) also found dissatisfaction of grab rails placed vertically.

For mobility devices, the rollators and canes were regarded as positively performing

assistive devices. They were also products that the elderly depended upon to stay

mobile. From the findings, rollators are seen as the most essential mobility item.

They allow the user to push the frame along with ease, brake when necessary, offer

a seat, a basket to carry parcels and are also collapsible for transportation in a car.

They have been described as “marvellous”, “hate to be without it”, “wonderful” and

“with the walker I’m right”. It was also found that some participants use both the

rollator and cane, due to the fact that the rollator is bulkier in size and the user can

not enter dining rooms or some spaces with them. The cane is used in these

situations.

The hearing aid, a sensory device, was categorised mostly in the “good” and “need

improvement” columns. Participants were not excited or happy with the product.

Respondents that were in the “good” category said their hearing aids were an

improvement to their hearing. However, one respondent replied to how well the

hearing aid works as “well I guess it would, hmm”. Participants also commented

that the hearing aid “could work better” or wished they “could get something done

that would be able to hear quite well”. One participant that owned one did not use

the one he owned because he said:

“It’s only partly successful. I (pause…) I wasn’t prepared to

purchase an appliance which may be, only satisfactory for (my)

needs”

The participant claimed that to purchase a decent hearing aid that would cater for

the various environments would be around $10,000 and the normal hearing aid

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which he owned is around $2,000. Also, another comment was made by a

respondent who said people living in the aged care facility that owned hearing aids

would still tell the person to speak up because they could not hear what was being

said.

There were not enough respondents who had devices that fall into the ‘other

devices’ category to gain quantitative data. However, it seemed that if assistive

devices were owned in the ‘other’ category, the feedback was positive in terms of

product performance. One interesting comment was made in relation to hip

protectors. During phase two, the researcher visited a participant for interviewing.

While in conversation, the participant commented on her hip protector and

explained how it was recommended to her and how a number of people living at

her aged care facility owned one and did not use them:

“Yes, well they, yes (pause…) and they’re very good. And I lie

down with them and they seem to (pause…) they do hurt a bit

in a way. But I find that they’re worth it. I wear them all the

time. A lot of them have got them and haven’t worn them but I

wear them because I find that I’ve got osteo bad……… But it’s

protection. You know, if I fell and broke my hip”.

According to the data collected in phase one, the questionnaire that was completed

for this participant did not mention that she owned and used a hip protector.

During phase one, participants were asked what assistive devices they previously

owned and used. A list of pre-coded assistive devices were listed on the

questionnaire that the respondents could read through and tick off or be read out

to by the interviewer. Images of assistive devices could be shown to participants by

the researcher during the interviewer-administered survey if they were unsure

about an assistive device. During phase two, the use of assistive devices were

reconfirmed and hip protectors were not mentioned. Therefore, it can be

hypothesised that some elderly people have difficulty in identifying what is

regarded as an assistive device, or have forgotten or do not wish to mention which

assistive devices they had previously owned and currently use.

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Feelings about Devices

Participants were also asked about how they felt about the devices they had used.

The results are represented in Table 7. They have been categorised into two

positive responses, one neutral and two negative responses. The “alright” category

is classified as a neutral response, as there is no expression of dislike neither a keen

liking for an assistive device. “Have to use” is classified as a negative response

rather than neutral as respondents did not comment that they felt alright with the

device, it was a straight “Have to use”.

Table 7. Participants feelings towards assistive devices.

Design

Design

&

Abilities Assistive

Devices High

Satisfaction (D) Safe (D) Alright (D) Don't Like (D)

Have to

Use (A)

Cane 1 5 6 2 0

Rollator 5 7 5 1 3

Mobility

Scooter 0 0 0 1 0

Stick Chair 0 0 1 0 0

Hearing Aid 1 0 1 1 1

Magnifying

Glass 0 0 1 1 0

Grab Rails 1 5 6 0 0

Shower Chair 0 1 3 0 1

Toilet Surround 0 0 2 0 0

Lift & Recline

Chair 0 0 1 0 0

Bed Stick 0 0 2 0 0

Total 8 18 28 6 5

<------------ Positive --------------Neutral ------------ Negative -------->

There are a high number of responses to assistive devices being just “alright”. From

the responses given by the participants there seems to be an association with

feeling safe and feeling alright towards an assistive device. One reason that one

participant gave for feeling alright towards the rollator was:

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“Well I don’t worry about that, but nearing everyone has a

walker here. When we go down to the dining room we take it

and they bring it to us to use it. They’re very good”.

It may be due to the fact that the people the participants are surrounded with all

use rollators, or that they are a common sight, which leads to more acceptance of

assistive devices. The environment (assistive living and aged care facility) that these

elderly people are in are encouraged by staff and carers to use assistive devices,

which therefore blend in with the environment. Haggblom-Kronlof & Sonn (2007)

had participants who expressed the use of assistive devices as feeling normal,

pleasant and safe.

Another perspective on how participants felt towards their assistive devices can be

illustrated through this respondent. She commented on how she has been using her

cane for a while and did not like to use it at first. However, due to the security it

provided and the feeling of safety, she has accepted the cane and now does not

“mind at all”. Her reason for not liking the cane initially was due to pride.

Another respondent mentioned that he knew a lady friend of his that was reluctant

to use a cane, whereas he felt comfortable using his cane and did not mind having

to use it. The respondent goes on, saying:

“I don’t’ feel uncomfortable with the walking stick, not at all.

As a matter of fact every time ah, ah, that I used to go out with

the walking stick someone would admire it. (laughter) They’d

say what a lovely stick you know (laughter)”.

The reason that people stop to admire this respondent’s cane is because it is not

the common cane that can be purchased at a pharmacy. It was described as a cane

that was passed down from his father from Ireland. The cane is wooden with a dark

brown finish, decorated with knots from the tree it was made from (Figure 9). The

cane had a story of its own. However, the respondent at the time did recently

purchase a collapsible cane for travelling. He has not yet used it, however, he states

that he would not mind having to use a metal cane.

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Figure 9. Irish wooden cane.

When participants were asked how they felt about using their rollator there were

three respondents who responded with “have to use”. One participant said, “Well I

have to use it so I just (pause…), you know”. Another participant responded with,

“Well I wouldn’t go without it. There’s a terrible lot of people here (that) do though”,

and lastly another respondent stated:

“Oh I find (pause…) I mean I know It’s secure but I wish I didn’t

have to. I suppose it’s only in the last 12 months that I’ve been

using the walker, prior to that I was just using the stick”.

This shows that the respondents have a slightly negative feeling towards the

rollator they had to use. This may be attributed to the loss of control (Grewal et al.,

2006) participants once had and now need to rely on assistive devices to maintain

their independence. Participants did not express that the use of assistive devices

gave them a sense of “respect” or on the other side of the scale were

“embarrassed” by its’ use, as mentioned by Haggblom-Kronlof & Sonn (2007).

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Therefore, it may be suggested that the relationship between social stigma and the

use of assistive devices for participants in this study was minimal. Social stigma was

also least expected from participants in Roelands et al. (2002).

In relation to sensory devices, respondents had a neutral to negative feeling

towards them. One respondent commented on hearing aids that “some people sort

of feel embarrassed about it but it’s a small one. Half of them say they don’t’ know

I’ve got it on”. This respondent is not worried about wearing a hearing aid and can

hide it under her hair. However, she stated that some people will not use it due to

embarrassment. Again, another reason for disliking the hearing aid is due to the

outside noise that can be heard using the device.

One participant felt alright with using a magnifying glass as she mentions she is

usually on her own when using the device. From the results of how participants felt

towards their sensory devices, the overall consensus was that some have adjusted

to using the assistive device and some still hold a negative feeling towards the

devices as they could not simply undertake an activity easily without the use of an

aid. Hellstrom et al. (2004) comments that the transition from living independently

to receiving assistance from others contributes to change of values and attitudes in

life and if the elderly person remains negative it may lead to low quality of life.

Assistance Preference

The participants were asked to state whether they preferred personal assistance

over assistive devices. Findings indicate (Table 8) that the majority of the

participants preferred their own independence and they would rather use the

assistive devices than obtain help from others.

Table 8. Participants Assistance preference in relation to living situation.

Independence Combination Assistance

Independent Living 9 1 0

Low Care 17 1 1

Total 26 2 1

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This was evident in both low care and independent living participants. Overall,

people living in independent homes expressed that they would rather use their

assistive devices to assist them with their activities for as long as possible. They are

happy with their current arrangement. One participant summed up the participants

thoughts on assistance preference with:

“It all depend how bad you are too isn’t it. I mean if you are

really bad well you’d like some of your family to be with you

rather than be on your own. But if it’s not… um… if it’s not too

bad, um, well the devices I’d just rely on those, you know”.

Another participant stated he would only use a rollator if it was deemed necessary.

This participant wants to resist using assistive devices for as long as possible. He

stated:

“I suppose I’d use it, but, but, ah, but I’d want to be a bad case

to use it, you know”.

Participants that lived in low care had the same responses as people in living in

independent living areas. They all preferred the freedom and independence that

the assistive devices offer. There was only one participant who had to have personal

assistance and the use of assistive devices. This was due to the fact that the

participant was physically unable to undertake daily activities on his own. Again,

participants expressed a want for personal assistance only when necessary. As

mentioned in Section 3.1.3, elderly people value the ability to maintain their own

homes and lives through the use of assistive devices and also agree that assistive

devices cannot exclude personal assistance (Roelands et al., 2002).

The use of assistive devices for independence was preferred in both genders (Table

9). There did not seem to be a difference in either gender or in living situation.

There were only two participants that commented on desiring a combination of

assistance; personal assistance and assistive devices and one participant that

preferred personal assistance.

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Table 9. Assistance Preference amongst genders.

Independence Combination Assistance

Female 18 1 1

Male 6 1 0

Total 24 2 1

When asked whether personal assistance was preferred over assistive devices, one

participant replied:

“I suppose I could, like when my daughter comes and we go out

anywhere I just hold onto her arm. I don’t take either of them”.

She continues: “I just hold onto my daughter’s arm when we go,

you know, if we’re going out for dinner or anything like that”.

Not all of the participants preferred the use of assistive devices, as indicated. Some

choose not to use the device until really necessary and when some were offered

assistance, for example from a family member, assistance was preferred over

assistive devices. However, there were a handful of participants who found the loss

of independence quite hard to deal with, as some have stated:

“I’m very independent. I like to do things myself”,

“I hate personal assistance. I’m hopelessly independent”,

“Just because I’m so independent. I like to do it myself. I know

and I dread the day that I’m going to have to have people

shower me and all those things” and

“Well I’d like to do it myself, whatever it is, yes, rather than

having assistance”.

Attractiveness and Personalisation

Although attractiveness was not an issue to participants when using an assistive

device, it is the opinion of the researcher that the design and attractiveness of an

assistive device does play a minor role in the usage and does slightly affect the

users’ attitude towards it. As Brooks (1991) mentioned the rejection of assistive

devices is attributed to the fact that the devices lack the capacity for “meaningful

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personal touch and communication” (p.1419). The ability to personalise or

customise assistive devices may enhance ownership and usage rate. Designs should

allow for personalisation as it contributes to the end-user experience (Kramer,

Noronha, & Vergo, 2000). “Personalisation is a toolbox of technologies and

application features used in the design of an end-user experience” (Kramer et al.,

2000 p.45).

When participants were asked if they would change anything about the devices

they were using, such as the rollator, the majority said no. They liked how it worked,

functioned and thought it contributed to their independence. When participants

were asked if they liked the look of their rollator, one lady commented she liked the

look of the new rollators and would like her next rollator to have a basket

underneath the seat so it would be easier to access. She also commented in relation

to her rollator:

“So see that’s all scratched. Well you go out somewhere,

they’re all thrown in and they get scratched”.

Therefore, making rollators more durable and scratch resistant so they retain their

colour coating may be an area that could be improved. When asked if she had an

option in choosing a colour for her new rollator what it would be, she replied that

she thought they only came in two colours and would pick green again because that

is the colour of her current rollator and she was too old for bright sparkly colours.

One participant responded to the question of change and the look of her rollator as:

“Well, no, it’s nice and light. I just find that that’s

good. ……Well, it’s functional isn’t it. You know, and I’m 87

and what I wanted is for it to be helpful to me, not the

appearance you know”.

Another respondent replied “not really, no” to changing her rollator and “yes, yes”

to the appearance.

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Respondents generally did not have an opinion on the aesthetics of their assistive

devices. What mattered most was that it be safe and practical. However, from

observation there were elderly people who decorated or personalised their

rollators or had canes with a floral pattern (Figure 10). Figure 11 is an example of an

elderly persons’ rollator, decorated with several ribbons affixed to the front of the

rollator with a soft toy; teddy bear. There was a participant who had artificial

flowers wrapped around the front of her rollator. The participant commented that

her friend from the same aged care facility as her decorated it for her. Her friend

does the same thing to her own rollator. She also adds that they decorate their

rollators on special occasions such as Christmas. The decorating also makes

identifying their rollators easier when they are placed outside the dining room,

during meal times or in similar circumstances where many rollators are placed

together during an event where rollators are not admissible in certain spaces.

Figure 10. Floral patterned cane.

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Figure 11. Decoration on a rollator.

Although personalisation was not addressed by the participants, it does not mean

that it is not an important factor to the disuse of assistive devices. Kramer et al.

(2000) points out that designers often create the error of designing a product with

new features and tools and forget the initial focus of designing for the end user. The

design approach of personalisation in the form of mass customisation would be

suitable in the design of assistive devices for elderly people, (as mass customisation

is a form of personalisation on a large scale). It is the assembly of components and

judicious componentisation which reduces costs and produces personalised

products at a reasonable price (Duray, 2002; Kramer et al., 2000).

Other Factors

One male participant did not want to be recorded onto digital media as he

commented that the council had access to information and nothing remained

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private anymore. When the interviewer explained that she wanted to ask questions

relating to the assistive devices that he has used and was using, such as the rollator

and the mobility scooter, the male participant replied immediately that he did not

want to be asked about the rollator that was sitting outside this room. He said he

did not need it anymore, had recovered from his injury and would be returning it

soon, therefore he did not want to talk about the mobility scooter. It seemed the

participant did not want to be associated with any assistive devices. Maybe, in some

elderly people, there are still some negative social influences attached to the use of

assistive devices. As Brooks (1991) mentioned there are ways in which assistive

devices play a social role when related to disability. It makes the disability public

and places a social strain to the public as it is unfamiliar and people with disability

have been stereotyped with negative characteristics, such as lower intelligence and

poor judgment (Brooks, 1991).

Summary

It can be concluded from the findings that participants prefer to use assistive

devices to assist in their everyday activities. Living situation and difference in

gender did not effect in the preference of elderly people preferring the use of

assistive devices over personal assistance. Independence was very important to the

quality of life of the participants. Participants that had used assistive devices and

realised the security and safety they offered were more accepting and had a neutral

to positive feel towards the devices. However, initial use of the assistive device and

“have to use” has resulted in a negative feel towards devices.

When it came to the performance of the assistive devices, the majority of

respondents rated them from good to excellent. There were only ten respondents

that suggested the devices needed improvement. This was aimed towards the

design of the assistive devices. When studying the respondents performance

abilities in relation to the products there were a high number of users that needed

rollators. Grab rails and shower chairs and canes were some of the devices that

respondents could go without but chose to use. Hearing aids were regarded as

needing improvement by five respondents. The major cause was to do with the

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design of the product and cost. The average hearing aid could not block out

unwanted outside noise, which was undesirable to participants.

Reasons for the disuse of assistive devices were mostly due to the design of the

product and social stigma. A dozen respondents did not want to use the devices

that were given. The comment made was they preferred to undertake activities on

their own and only use assistive devices as a precaution or when absolutely

necessary. They would prefer not having to rely on the devices. Unreliable,

bulkiness and difficulty of use were the other factors for disuse in assistive devices.

There were thirteen respondents that claimed the disuse was a result of replacing

the device with another. The most popular device replaced was the cane. It was

often replaced by the rollator which provided more security, balance, and a place to

sit and store things while mobile. In relation to participants’ abilities, the reason for

disuse was due having no further need for the assistive device or having recovered

from a disability to no longer warrant the need for the device. In terms of

ownership and the use of the assistive devices, the rollator and grab rail were the

devices that most participants interviewed owned and used. Also, bathroom and

mobility aids are the devices that are used most frequently.

6.3.1 Limitations

The ideal aim in phase two was to interview an equal number of male and female

participants and with a fairly equal amount of participants from independent living

and low care, to obtain a fair result that covered the desired demographic.

However, when approaching the existing participants from phase one to do an

interview for phase two, a number of participants were discouraged by the idea of

being recorded on digital media and having to sign a consent form for the recording

of the interview.

Some of the participants were contacted via telephone by the interviewer and

declined to be interviewed as they did not remember participating in the initial

questionnaire stage, thought the interviewer was a telemarketer or were hard of

hearing and did not want to participate. A number of participants who had agreed

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to an interview during phase one declined due to the reasons above, or they were

feeling under the weather, in hospital or on holiday during the duration of the

interview stage of the research.

Another factor that may have influenced the results on the ownership of assistive

devices may be due to miscommunication. Participants were asked to identify and

name all the assistive devices they have previously used and owned. However,

participants may not have understood the full meaning of what an assistive device

is. The definition given was: “Assistive devices are implements or products that aid a

person in completing activities they need or wish to do, eg. walking sticks,

commodes and bath mats”. Another reason may be that elderly people have

difficulty in remembering what assistive devices they have owned and used in the

past and cannot recall all the devices they use in a short period of time. As Brace

(2004) explains, there is a disadvantage in using a questionnaire to ask questions on

memories regarding behaviour. Although, the questionnaire did not ask when they

used the assistive device, it did ask what types. It is still regarded as some form of

information retrieval.

6.4 Summary

From Phase Two, there were some interesting findings on the attitudes and use

towards assistive devices amongst elderly people. From the interviews, results

showed the majority of elderly people had a neutral to positive attitude towards the

use of assistive devices. Findings showed there was desire to maintain

independence and rely less on personal assistance. There was no significant

association between the use of assistive devices and living situations, as described

by Edwards & Jones (1998).

Social influences were present in the use of assistive devices, however they were

minimal. Negative attitudes tended to be during the initial use of an assistive device

and over time, elderly people accepted and came to enjoy their assistive devices

using words to express them such as “wonderful” and “my other half”.

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The major issue that designers could address is the issue of “don’t want to use”.

There was still some resistance in the use of assistive devices as participants wanted

to undergo activities of daily living on their own and only have their assistive device

as a precaution. Recommendations and future research directions to further

investigate and explore the usage of assistive devices in elderly people are explored

in Chapter 7.

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Chapter 7 Conclusion and Future Directions

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7.0 Conclusion and Future Directions

It can be concluded that this research has given an insight into the needs and

desires of elderly people in relation to activities of daily living, quality of life and

assistive device use. This research has also investigated through means of

questionnaires and interviews the attitudes of elderly people towards assistive

devices in assisted living and aged care settings. It has investigated what types of

devices are used amongst the elderly, the least used, most commonly owned and

non-used. Through research the reasons behind non-use and attitudes were

explored.

Overall, it can be suggested that the use and non-use of assistive devices amongst

elderly people are related to change in abilities and in the design of the product. It

is also driven by elderly people’s desire to stay mobile and active for as long as

possible. They will use assistive devices to assist them in staying independent in

undertaking activities of daily living. Disuse of the devices was related to the dislike

in the product, reliability, bulkiness, performance and ease of use.

The most important issue designers need to address is the issue of “don’t want to

use”. The reason behind participants not wanting to use their assistive devices

might be due to the design of the product and social stigma. It is important for

elderly people who may require assistive devices to use them. However, some

elderly people have opted to go without. Assistive devices have been designed

without the capacity for meaningful personal touch and communication. They can

be seen as a burden and a catalyst to old age and decline in abilities. Once a person

starts using an assistive device, it will be difficult for them to relinquish their

dependence on it. It is seen as a negative social outlook for elderly people to use

assistive devices, especially if the device is for outdoor environments. The

personalisation or customisation of assistive devices is not offered as an option to

the current end-user (elderly people). The ability for elderly people to personalise

their assistive devices is just as important and of equal value to the use of devices

being safe, reliable, easy to use and perform.

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7.1 Recommendations

Based on the outcomes of the literature review and research conducted, listed

below are recommendations for designers, researchers and health-care

professionals to consider. They are categorised into design and general

recommendations.

Design

� To design assistive devices that ease the user into the use of devices. The

literature review and findings from this research have suggested that

assistance is needed in the transition from non-use of assistive devices to initial

use.

� Assistive devices should blend in more with the surrounding environments;

both in and out of the community setting. Therefore, users will not feel that

they have become victims to their surroundings (Haggblom-Kronlof & Sonn,

2007).

� Reliability should be carefully addressed in the design of assistive devices. For

example, the rollator should be able to be used outdoors and be used on

varying terrains (eg. sealed and unsealed surfaces, coarse surfaces and

surfaces with inclines and declines).

� Hearing aids should be improved to block out background noise, to improve

effectiveness and usage rate.

� To design assistive devices that offer personalisation through mass

customisation, to enhance the capacity of personal touch and communication

between the product and the user and to enhance the end-user experience.

� Improve the practicality of assistive devices, especially rollators to make them

less cumbersome (ie. walking through doors and public transportation).

� Rollators to have the ability to carry canes and other items (eg. bags, laundry)

for when necessary.

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General

� Hearing aids and hip protectors should be more affordable for people on the

pension.

� Ongoing assessment of assistive device suitability with user is needed.

� Further encouragement is needed by general practitioners, carers, and spouse

and family members to improve the usage rate of assistive devices and to

reduce negative social implications.

7.2 Future Directions

Further research is required to better justify the findings from this research. A larger

sample of participants could assist. An equal number of male and female

participants can help identify if there are differences in the usage of assistive

devices between genders.

When evaluating the number and types of assistive devices participants use, it

would be ideal to gather this information from the spouse, family or carer to obtain

more accurate data and to ensure validity.

A longitudinal study over a period of five or ten years with participants from

community-dwellings and assisted living settings is the future direction. Other

studies have used these timeframes in undertaking research of elderly people

(Haggblom-Kronlof & Sonn, 2007; Ivanoff & Sonn, 2005; Kraskowsky & Finlayson,

2001). This could further investigate qualitatively and quantitatively the use and

attitudes towards assistive devices amongst older people with detailed

investigations into certain types of devices for the practical, social and personal

aspects of use. Also, a case study could be conducted to examine the design of an

assistive device in order to get feedback from the users. The introduction of focus

groups may be beneficial in the design phase, to obtain feedback and gain an

understanding on what elderly people desire and need in an assistive device.

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This research has contributed to knowledge through the investigation into the

relationship of elderly people and their use of and attitudes towards assistive

devices for designers, researchers and the general community. This work is

significant as it has identified areas for further understanding and development of

assistive devices for use by elderly people.

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References

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Appendices

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Appendix 1 – Phase One Questionnaire (Sample)

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Appendix 2 – Covering Letter (Sample)

D Block, Level 4, Room 401

QUT Gardens Point Campus

2 George Street, Brisbane QLD 4000 Australia

Garden City Retirement Home

33 Tryon Street

UPPER MT GRAVATT QLD 4122

11 March 2008

Dear Sir/Madam,

Re: QUT Masters Research Project on Older People and Assistive Devices

I am a Masters student at Queensland University of Technology (QUT). My current

project is on older people and assistive devices. I am trying to investigate whether

or not assistive devices are being used and which items are preferred. To also gain

an understanding to the reasons behind older peoples decision to use or not use

assistive devices.

Assistive devices are implements or products that aid a person in completing

activities they need or wish to do, eg. walking sticks, commodes walking frames and

bath mats.

If you are interested in this project all you need to do is to fill out the Questionnaire

provided and if you answered yes in some of the questions you will be contacted for

an Interview. The questions in the interview will be similar to the Questionnaire

with some going more in depth.

A copy of the Participant Information Sheet and Ethics Approval is attached. If you

have any queries or require any further information please do not hesitate to

contact myself on 0413 258 515. I look forward to hearing from you.

Kindest regards,

Anita Yeh

e: [email protected]

mob: 0413 258 515

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Appendix 3 – Participant Information Sheet

PARTICIPANT INFORMATION for QUT RESEARCH PROJECT

“How useful are assistive devices to the elderly? Are they even used?”

Research Team Contacts

Anita Yeh

(Researcher)

Prof. Vesna Popovic

(Principal Supervisor)

Dr Alethea Blackler

(Associate Supervisor)

0413 258 515 (07) 3138 2669 (07) 3138 7030

[email protected].

au [email protected] [email protected]

Description

This project is being undertaken as part of a Masters Project for Anita Yeh.

The purpose of this project is to investigate whether or not assistive devices are

being used and which items are preferred, and to gain an understanding to the

reasons behind older peoples decision to use or not use assistive devices. Assistive

devices are implements or products that aid a person in completing activities they

need or wish to do, eg. walking sticks, commodes and bath mats.

The research team requests your assistance in identifying the above concepts by

your participation through a questionnaire and in the second phase an interview.

Participation

Your participation in this project is voluntary. If you do agree to participate, you can

withdraw from participation at any time during the project without comment or

penalty. Your decision to participate will in no way impact upon your current or future

relationship with QUT.

Your participation will involve a questionnaire which consists of 10 quick answering

questions that can be filled out in your own time and mailed back to QUT. If you fit

the criteria of answering yes to questions 9 or 10 you will be contacted for an

interview. The interview will be recorded by hand by the chief investigator and

through audio-visual equipment. The interview will consist of 17 questions similar

to the questionnaire, which will take approximately 15 to 45 minutes to answer.

The data collected will be recorded and analysed at a later date.

The interview will be conducted in the Human-Centred Design Research and

Usability Laboratory located in Level 4, D Block, QUT, Gardens Point Campus.

Key findings from the questionnaire and interviews will be published in my thesis, as

well as any published research papers or conferences.

Expected benefits

It is expected that this project will benefit the broader design community and older

people in the future through its contribution to knowledge.

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Risks

There are no risks beyond normal day-to-day living associated with your participation in

this project. You will be in a constant air-conditioned environment and seated

throughout the interview. The questionnaire and interview will not consist of any

physical activity.

Confidentiality

Only the research team will be able to connect you with your personal information. All

comments and responses are anonymous and will be treated confidentially. All audio-

visual recordings will be kept after being transcribed as backup and stored securely in a

lockable space within the Human-Centred Research Laboratory, which can only be

accessed by the research team.

Comments made during the questionnaire and interview will be published without

verification of the participants. Your anonymity and confidentiality will be safeguarded

in any publication of the results of this research through the use of pseudonyms.

Consent to Participate

We would like to ask you to sign a written consent form (enclosed) to confirm your

agreement to participate.

Questions / further information about the project

Please contact the researcher team members named above to have any questions

answered or if you require further information about the project.

Concerns / complaints regarding the conduct of the project

QUT is committed to researcher integrity and the ethical conduct of research projects.

However, if you do have any concerns or complaints about the ethical conduct of the

project you may contact the QUT Research Ethics Officer on (07) 3138 2340 or

[email protected]. The Research Ethics Officer is not connected with the

research project and can facilitate a resolution to your concern in an impartial manner.

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Appendix 4 – Aged Care Living Establishments

Inner Brisbane Area

Marycrest Retirement Centre (Hostel) – Kangaroo Point

Nazareth Residential Aged Care – Woolloongabba

Georgina Aged Persons Hostel – Morningside

St Nicholas Hostel – Highgate Hill

North Brisbane Area

Aveo Clayfield – Albion

South Brisbane Area

Garden City Retirement Home – Upper Mt Gravatt

Mt Gravatt Private Hostel – Mt Gravatt

Wishart Village Hostel – Wishart

The White House – Eight Mile Plains

The Plains Retirement Village – Eight Mile Plains

Tall Trees Rochedale – Rochedale South

Aveo Sunnybank Green – Sunnybank

Sunny Cove – Sunnybank Hills

East Brisbane Area

Village Life Wynnum 2 – Wynnum

Aveo Carindale – Carindale

Blue Care Salvin Park Hostel – Carina Heights

West Brisbane Area

St John’s Home - Toowong

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Appendix 5 – Consent Form

CONSENT FORM for QUT RESEARCH PROJECT

Are disuse and ineffectiveness of assistive devices related to change

in abilities or product design related?

Statement of consent

By signing below, you are indicating that you:

• have read and understood the information document regarding this project

• have had any questions answered to your satisfaction

• understand that if you have any additional questions you can contact the

research team

• understand that you are free to withdraw at any time, without comment or

penalty

• understand that you can contact the Research Ethics Officer on 3138 2340 or

[email protected] if you have concerns about the ethical conduct of

the project

• agree to participate in the project

• understand that the project will include audio and/or video recording

Tick box if you:

□ Do not wish your image or the direct recording of your voice to be used for

publication

Name

Signature

Date / /

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Appendix 6 – Interview Questions (Sample)

When did/ do you use it? (For each assistive device)

How did/ does it help you? (For each assistive device)

What are your reasons for not using each of the devices?

How does the assistive device/s work for you?

Are you able to perform the activity/activities without using the assistive device/s?

Are the assistive devices easy to use for you?

How do you feel about using the assistive devices?

Do you prefer personal assistance over assistive devices?

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Appendix 7 – Definition of Codes

Table 1. Definition of codes applied to textual data

Code Definition of the Code

Male Participant is male Gender

Female Participant is female

Low Care Living arrangement that classifies as assisted

living in a nursing home or retirement hostel

Living Situation

Independent

Living

Living arrangement that classifies as assisted

living in a unit with communal facilities and

minimal care.

Table 2. Definition of assistive device category codes applied to textual data

Code Definition of the Code

Assistive devices Implements or products that aid a person in completing

activities they need or wish to do

Sensory Implements or products that are used by a person to

enhance and assist in a sensory impairment

Mobility Implements or products that are used by a person to

enhance and assist in a mobility impairment

Bathroom Implements or products that are used by a person to

assist in activities in the bathroom

Ass

isti

ve

De

vic

e C

ate

go

rie

s

Other

Implements or products that are used by a person that

assists in activities of daily living that are not classified

as sensory, mobility or bathroom devices

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Table 3. Definition of assistive device codes applied to textual data

Code Definition of the Code

Magnifying Glass Product that provides magnification of articles

Hearing aid Electronic device that is placed in the ear to magnify

hearing

Cane A stick with a single point that is manufactured to

provide support to the user

Rollator A walking frame that is one wheels and has brakes. Also

includes rollators that have arm support.

Stick Chair A cane that doubles as a seat when folded out

Mobility Scooter An electrical ride on device that needs to be registered

Wheelchair Electrical or manual ride on device

Quad Stick A stick with four point contact to the ground that is

manufactured to provide support to the user

Toilet surround Grab rails that fit around the toilet for support. May or

may not have a raised toilet seat attached

Grab rails Bars that are fixed on to walls for support, either

vertically, horizontally or diagonally

Shower chair A water resistant chair, usually plastic that is used in

the shower

Reacher Hand held device with an extended arm to pick things

up from the ground or hard to reach places

Hip Protector An undergarment with padding at specified areas that

is worn to support the hips

Lift & Recline Chair

An electronic single sofa that reclines and elevates the

users legs, as well as tilting the chair forwards and

upwards to provide easy manoeuvrability in and out of

the chair

Shoe Horn Long or short stick that is contoured to the heel to

assist with slipping the foot into the shoe

Ass

isti

ve

De

vic

es

Bed stick Protruding stick from either side of the bed to assist

the user in pulling themselves up from the bed

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Table 4. Definition and examples of participant response category codes applied to

textual data

Code Definition of the Code Examples

Use Frequency of use on

assistive devices

Use all the time

Disuse Non use of assistive

devices

Do not use them

Feel How users feel about the

use of assistive devices

Feel safe

Assist How the assistive device

assists the user

It assists with my balance

Makes me feel confident

Help How the assistive device

helps the user

Helps me to get up

Help to relieve pressure

Performance

How well the assistive

device aids the user and

the users reliance on the

assistive device

The grab rails are wonderful

I need my cane

The rollator is excellent and

I can’t go anywhere without

it.

Personal Assistance

vs. Assistive

Devices

Users preference over

personal assistance or

the use of assistive

devices

I like my independence

I choose devices

Re

spo

nse

s to

wa

rds

ass

isti

ve

de

vic

e w

ith

in c

ate

go

rie

s

Ease of Use How easy the assistive

device is to use

Yes, very easy to use

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Table 5. Definition and examples of response codes applied to textual data

Code Definition of the Code

Examples

Occasionally

Occasional or sporadic use

of an assistive device

I don’t use it so much…

Just occasionally to check

something

Sometimes More than sporadic use of

an assistive device

Oh sometimes

Frequently Regular or constant use of

an assistive device

All the time

Bulky

Assistive device is

cumbersome and bulky to

use

It was too bulky to use…

Unreliable Assistive device is unreliable

to the user

You get all tangled up

Don’t want to

use

User or owner does not

want to use assistive device

Well I can still stand up and

shower (laughter) and I’d

rather do that

Replaced

User replaced assistive

device with another kind of

assistive device

Up until they gave me the

walker

Difficult Assistive device is difficult to

use

I find it um (pause…) a lot to

sort of manage

Got Better

Improvement in users’

physical abilities which no

longer warrants the use of

an assistive device

The cataract operation

improved my eyesight

No Need

When user states there is no

need to use an assistive

device

I don’t need to use it…

Balance When assistive device assists

the user in balance

If my leg’s a little bit out it’s

good support

Confidence When assistive device assists

the user in confidence

It gives me confidence

Everything

When assistive device assists

the user with every activity

of daily living

I need it all the time

Safe User feels safe from the use

of the assistive device

I feel more secure with it

Don’t Like User does not like the use of

the assistive device

Reluctant to use a cane

I didn’t like to use it…

Alright

User feels alright or gives a

neutral response to the use

of the assistive device

It’s alright…

I don’t mind having to use…

Re

spo

nse

s to

wa

rds

ass

isti

ve

de

vic

e u

se

High

Satisfaction

User feels a high satisfaction

from the use of the assistive

I’d hate to be without it

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device

Get Up Assistive device helps the

user to get up

To get up

Indoors

Assistive device helps the

user to move around

indoors

In the house

Reach Assistive device helps the

user to reach objects

Picks things up

Relieve

Pressure

Assistive device helps the

user in relieving pressure

Helps to relieve pressure

Outdoors

Assistive device helps the

user to move around

outdoors

Can’t go outside without

them

Independence User prefers to use assistive

devices and be independent

I’m so independent. I like to

do it myself

Combination

User prefers the assistance

of assistive devices and

personal assistance

I got to have the two

Assistance User prefers the assistance

from a person

I just hold onto my

daughter’s arm…

Excellent

User rated performance

from the use of the assistive

device as excellent

Oh it’s wonderful

Oh marvellous

Very Good

User rated performance

from the use of the assistive

device as very good

Mighty handy

Very good

Good

User rated performance

from the use of the assistive

device as good

Good, they’re handy

Oh I found it good

Need

Improvement

User rated performance

from the use of the assistive

device as needing

improvement

I feel as thought it’s not in

the right place

Need

User can not perform

activity without the use of

assistive device

I’d be in trouble without

them now

Can go without

User can perform activity

without the use of assistive

device

Oh I suppose I could…

Oh yes, I think so

Yes Assistive device is easy to

use

Yes

No Assistive device is not easy

to use

No

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Appendix 8 – Analysis (Sample)

Figure 1. Extract from Atlas.ti

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To explain how the coding scheme was applied to the textual data, the coding of

Appendix 8, (Figure 1, p.122) will be explained. First a recorded interview is

transcribed into a rich text format and then inserted into Atlast.ti. Each transcript is

coded individually. Appendix 8, (Figure 1, p.122) shows an extract of interview 15.

Each quote where applicable is coded against one or several codes as listed in Table

4.

Participant 15 was asked about ability to shower without the assistance of the grab

rails. She replied:

“Well I should, I, I, I could I suppose if I had to but I like to have

the hand rail.”

This quote was then affixed with the codes bathroom, grab rails, performance and

can go without. It was coded bathroom, because the participant was talking about a

device in the bathroom category. Grab rails were affixed to the quote because the

participant was talking about the grab rails she uses. Participant 15 was also saying

how she could shower without using the hand rails (grab rails) and this is related to

the performance of a product. Hence, the quote is also coded under the

performance domain and under the sub-category of ‘can go without’.

The next question asked by the interviewer was if participant 15 could go about

daily activities without the use of her walking stick (cane). Her response to the

question was:

“Oh I wouldn’t go out without it”.

Due to the fact participant 15 was referring to her walking stick and how she would

not go places without it, the quote is coded with mobility, cane, performance and

need. It is coded under mobility and canes because that is what the quote is

referring to. It is coded in the performance domain because the quote is in response

to her ability and the extent of reliance on the assistive device. If the respondent

replies that she can conduct activities of daily living without the use of her assistive

device, then it is coded under ‘can go without’. If she cannot go without her

assistive device to conduct activities, then it is coded under ‘need’.

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The interviewer asked participant 15 if she found the assistive devices easy to use.

Her response was that they were easy to use. Therefore, the quote is coded with

assistive devices, ease of use and yes. The quote is not coded under any sub-

categories of assistive devices, because the participant was referring to all the

assistive devices she had used. There was no mention of a specific assistive device.

Participant 15’s response was also coded under the ‘ease of use’ domain and within

the ‘yes’ sub-category. If the response for the ease of use of devices were hard or

difficult to use, the quote would be coded under ‘no’ in the ease of use domain.

Lastly, in Figure 3, the participant was asked about how she felt about using her

walking stick (cane). Her response was:

“How do I feel about using the walking stick, well I’ve used one

for quite a while but I mean I didn’t like to use it at first. But

then when I, for security, I felt so much safer”.

The question followed on with why she did not like to use her walking stick at the

beginning of use. Her response was:

“Oh pride”.

For the two quotes, because they were a response to the same question, they were

coded identically. The codes that were affixed to the quotes were mobility, cane,

feel, safe and don’t like. They were coded under mobility devices and cane because

the device in question was a walking stick, which is in the mobility category. Her

response to how she felt about the use of her cane was at first negative and had a

dislike to the product and sense of pride. Therefore, it was coded with ‘don’t like’.

As how she felt about the use of the cane changed and felt safer using it. The quote

was also coded under ‘feel’ and ‘safe’. This is how each transcript (textual data) was

coded, according to the participants’ responses against the coding scheme (Table 4).

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Appendix 8 – Assistive Devices

Reacher

Stick Chair

Note: The researcher, Hui-Ching (Anita) Yeh has copyright on all images.

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Rollators/ Wheelie Walkers

Note: The researcher, Hui-Ching (Anita) Yeh has copyright on all images.

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Grab Rails

Shower Chair

Note: The researcher, Hui-Ching (Anita) Yeh has copyright on all images.

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Toilet Surround

Bed Stick

Note: The researcher, Hui-Ching (Anita) Yeh has copyright on all images.