e-NewsNovember 2016

Highlights from recent PCRN e ts

PCRN Pre-Colloquium Workshop – Thursday 27th October 2016

Fifty three multi-disciplinary delegates from across Australia came together at the recent PCRN Workshop entitled ‘Analyse This!’. The Workshop was part of the 4th Australian Palliative Care Research Colloquium and was sponsored and facilitated by the PCRN. The Workshop was well received by delegates and provided insights from experienced researchers on the best strategies for collecting, organizing and analyzing both quantitative and qualitative datasets as well as a networking opportunity with senior palliative care clinicians and researchers.

The Workshop was opened by Soula Ganiatsas, the PCRN Program Manager. Highlights of the event included the following topics and presenters:

Call for Suggestions for 2017 PCRN Forum Topics & PresentersWe are currently planning for PCRN Forums in 2017. If you have any suggestions on topics that you would like to be presented at the forums and/or speakers that you would like to hear from, please email your suggestions by 8 December 2016 to pcrnv@svha.org.au with the subject ‘2017 PCRN Forum Topic Suggestion’.

Introduction to Quantitative Data AnalysisPresented by A/Prof Karla Gough (Head of Applied Statistics, Department of Cancer Experiences Research, Peter MacCallum Cancer Centre, VIC) & Allison Drosdowsky (Researcher, Department of Cancer Experiences Research, Peter MacCallum Cancer Centre, VIC)

Introduction to Qualitative Data AnalysisPresented by A/Prof Jennifer Philip (Co-Deputy Director, Centre for Palliative Care, St Vincent’s Hospital Melbourne, VIC)

PCRN Pre-Colloquium Workshop 2016

This was followed by an ‘Early Career Researcher SOS’ session where three early career researchers took to the stage and presented their research ideas and questions and received advice from our expert panel. Topics and speakers included:

I want to develop a research idea: 'Requests for medical assistance in dying from palliative care patients'Presented by Dr Danielle Ko (Palliative Care Registrar, Barwon Health & Honorary Palliative Care Fellow, Melbourne Health, VIC)

I want to develop an analysis plan/analyse my data: 'An exploration of health determinants and emergency department utilisation by ambulatory cancer patients'Presented by Ms Polly Dufton (PhD Candidate, The University of Melbourne & Registered Nurse, Olivia Newton John Cancer, Research and Wellness Centre, VIC)

PCRN Pre-Colloquium Workshop

I want to write a paper: 'Living with Lung Transplantation: patient and carer reported outcomes and needs'Presented by Dr Chi Li (Palliative Care Physician, Alfred Health and Ballarat Health Services, VIC)

The breakfast session wrapped up with a panel discussion/Q&A session with all of the speakers alongside A/Prof Clare O’Callaghan (Caritas Christi Hospice, St Vincent’s Hospital Melbourne & Cabrini Health, VIC).

PCRN Pre-Colloquium Workshop 2016

Continued...

- providing the Network with research advice and/or consultation as required;- reviewing applications for scholarships, travel grants and small project grants;- providing mentorship to early career researchers;- involvement in PCRN Workshops and Forums;- providing advice on key PCRN decisions and strategic direction;- collaborating on grants with other PCRN members.

Call for Expressions of Interest to join the PCRN Research Advisory Group in 2017

The Palliative Care Research Network (PCRN) is calling for expressions of interest to join the PCRN Research Advisory Group (RAG). The primary function of the RAG is to assist the Network in its research endeavours, and may include, although not necessarily be limited to, involvement with the following activities:

The Group is envisaged to comprise between 12-20 individuals from various disciplines, with varying skill sets and research experience.

Being a member of the PCRN RAG would allow you to expand your research network and collaborative ties. Your involvement with the RAG would be called upon only when required based on your expertise. Members of the RAG will convene annually over networking drinks and will be provided with an official letter of membership for their CV. This call for expressions of interest is currently only open to PCRN members in the first instance (after which it will be made open to the wider community).

If you are interested in being considered as a future member of the PCRN RAG, please submit a brief CV, and a brief cover letter outlining how your skillset would benefit PCRN activities, to pcrnv@svha.org.au by 23 January 2017.

Useful Resources in Palliative Care Research

Please find below a sample list of useful resources which you can subscribe to in order to keep up with the latest palliative care news and publications on evidence-based palliative care research.

- Media Watch, created and distributed by Barry R. Ashpole – to subscribe email: barryashpole@bell.net

- E-Hospice – to subscribe to e-newsletter go to the website.

- Briefings in Palliative, Hospice, and Pain Medicine & Management – to subscribe to table of contents go to the website.

- CareSearch palliative care knowledge network – to subscribe to e-newsletter go to the website.

- All Ireland Institute of Hospice and Palliative Care (AIIHPC) – to subscribe to mailing list go to the website.

om g Fu d g ortu t es 2016 / 2017

Australian Research Council (ARC) Early Career Researcher Award

website 22 March 2017

James N Kirby Foundation – Small Grants

28 February 2017

Melbourne University Engagement Grants (various grant opportunities)For more information visit the website Closing Date: 8 March 2017

PCRN mall Pro ect rants 2017

Australian Research Council (ARC) Discovery Grants

1 March 2017

Cancer Australia: Supporting People With Cancer Grant Initiative

16 November 2016

Department of Health: Dementia and Aged Care Services Research & Innovation Funding

20 December 2016

Hitachi Social Innovation Awards

16 November 2016

John T Reid Charitable Trust

January 2017 (TBC)

Melbourne Clinical & Translational Sciences (MCATS)For more information visit the website Closing Date: 1 December 2016

National Health & Medical Research Council (NHMRC) – Practitioner FellowshipsFor more information visit the website Closing Date: 1 February 2017

National Health & Medical Research Council (NHMRC) – Early Career FellowshipsFor more information visit the website Closing Date: 1 March 2017

Perpetual Trustees – IMPACT GrantsFor more information visit the website Closing Date: 2 December 2016

Sir Edward Dunlop FoundationFor more information visit the website Closing Date: 3rd week in January 2017 (TBC)

Recent Publications Relevant to PCRN MembersIn each edition we will feature some recently published articles relevant to PCRN members. If you have published in a peer reviewed journal recently and the subject matter is relevant to the PCRN community, or if you come across key publications that foster evidence based palliative care, please email pcrnv@svha.org.au with the subject ‘PCRN Newsletter’ and we will feature the publications in an upcoming edition.

Ferrell BR, Temel JS, Temin S, Alesi ER, Balboni TA, Basch EM, Firn JI, Paice JA, Peppercorn JM, Phillips T, Stovall EL, Zimmermann C & Smit TJ (2016) Integration of Palliative Care Into Standard Oncology Care: American Society of Clinical Oncology Clinical Practice Guideline Update. J Clin Oncol. doi: 10.1200/JCO.2016.70.1474 [Epub ahead of print].

Forbat L, Haraldsdottir E, Lewis M & Hepburn K (2016) Supporting the provision of palliative care in the home environment: a proof-of-concept single-arm trial of a PalliativE Carers Education Package (PrECEPt). BMJ Open 6(10):e012681.

Hayman S & Tieman J (2016) Finding evidence about the costs of palliative care: CareSearch’s suite of search tools. Palliat Med. doi: 10.1177/0269216316673551 [Epub ahead of print].

Hughes-Morley A, Young B, Hempel RJ, Russell IT, Waheed W & Bower P (2016) What can we learn from trial decliners about improving recruitment? Qualitative study. Trials 17: 494.

Leroy T, Fournier E, Penel N & Christophe V (2016) Crossed views of burden and emotional distress of cancer patients and family caregivers during palliative care. Psychooncology 25(11):1278-1285.

Lewis E, Cardona-Morrell M, Ong KY, Trankle SA & Hillman K (2016) Evidence still insufficient that advance care documentation leads to engagement of healthcare professionals in end-of-life discussions: A systematic review. Palliat Med 30(9):807-24.

Luckett T, Phillips J, Lintzeris N, Allsop D, Lee J, Solowij N, Martin J, Lam L, Aggarwal R, McCaffrey N, Currow D, Chye R, Lovell M, McGregor I & Agar M (2016) Clinical trials of medicinal cannabis for appetite-related symptoms from advanced cancer: a survey of preferences, attitudes and beliefs among patients willing to consider participation. Intern Med J. 46(11):1269-1275.

Ouchi K, Block SD, Schonberg MA, Jamieson ES, Aaronson EL, Pallin DJ, Tulsky JA & Schuur JD (2016) Feasibility Testing of an Emergency Department Screening Tool to Identify Older Adults Appropriate for Palliative Care Consultation. J Palliat Med. doi: 10.1089/jpm.2016.0213 [Epub ahead of print].

Singer AE, Goebel JR, Kim YS, Dy SM, Ahluwalia SC, Clifford M, Dzeng E, O'Hanlon CE, Motala A, Walling AM, Goldberg J, Meeker D, Ochotorena C, Shanman R, Cui M & Lorenz KA (2016) Populations and Interventions for Palliative and End-of-Life Care: A Systematic Review. J Palliat Med. 19(9):995-1008.

Wheelwright SJ, Hopkinson JB, Darlington AS, Fitzsimmons DF, Fayers P, Balstad TR, Bredart A, Hammerlid E, Kaasa S, Nicolatou-Galitis O, Pinto M, Schmidt H, Solheim TS, Strasser F, Tomaszewska IM, Johnson CD; EORTC Quality of Life Group (2016) Development of the EORTC QLQ-CAX24, a questionnaire for cancer patients with cachexia. J Pain Symptom Manage. doi: 10.1016/j.jpainsymman.2016.09.010. [Epub ahead of print]

Upcoming Conferences

nternational National

16th entre for Palliative Care Research and Education (CPCRE) Annual Research Conference

March 24, 2017 Brisbane , Australia

tate C

3rd V n Integrated Cancer Services (VICS)

May 11-12, 2017 VIC, Australia

8th Annual Palliative Care Clinical Studies Collaborative (PaCCSC) Research Forum

March 2, 2017 Sydney, Australia

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s

24th Conference of the Indian Association of Palliative Care (IAPCON)

s February 10-12, 2017 Coimbatore, Tamil Nadu, India

2017 Compassionate Communities Symposium s February 20-21, 2017

Sydney, Australia

2017 Annual Assembly - American Academy of Hospice and Palliative Medicine (AAHPM) & Hospice and Palliative Nurses Association (HPNA)

s February 22-25, 2017 Phoenix, Arizona, USA

MembershipThe PCRN now has 236 registered members from around Australia and other countries such as Hong Kong, India, Malawi, Norway, the UK and USA. Individuals with a genuine interest in palliative care research may become individual members of the PCRN. Membership is free and some of the *key benefits* of membership include:

An opportunity to network and collaborate with other palliative care researchers through PCRN seminars and forums;Apply for a range of PCRN funding including: PhD scholarship, proect and travel grants; Assistance in developing your research idea into a grant proposal via attendance at PCRN Concept Development s;

pportunities to provide mentorship to unior researchers.

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* as no ha v n hough rsh p s op n o v r on some r sourc s an un ng a r stri t d to i torian r sid nts only

To formalise your membership, please complete the online form on the PCRN website.

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For ard e e s to a r e dPlease forward this newsletter to friends or colleagues interested in palliative care

research. They can also sign up for free membership .

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