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Good Practice Handbook Helping practitioners to plan, organise, and deliver services for people with co-existing mental health and substance use needs DUAL DIAGNOSIS

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Page 1: DUAL DIAGNOSIS - proceduresonline.com€¦ · 2 Dual Diagnosis: Good Practice GuideHelping practitioners to plan, organise and deliver services for people with co-existing mental

Good Practice HandbookHelping practitioners to plan, organise, anddeliver services for people with co-existingmental health and substance use needs

DUALDIAGNOSIS

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Acknowledgements

This handbook was written by Stuart Watson and Caroline Hawkings, and was edited by Liz Aram.

We are grateful to everyone who has given informationfor case studies and snapshots and who has commentedon the handbook. Particular thanks go to the ProjectSteering Group:

Karen Althorpe – Service user, Turning PointClare Buckmaster – Service Manager, Turning Point

Support LinkCarmel Clancy – Principal Lecturer in Mental Health and

Addictions, Middlesex UniversityPatrick Coyne – Nurse Consultant, Dual Diagnosis,

Principal Investigator Job Rotation, Max Glatt Unit, Central and North West London NHS Foundation Trust

Tom Dodd – Joint National Dual Diagnosis Programme Lead and National Primary Care Programme Lead,Care Services Improvement Partnership

Dr Emily Finch – Consultant Addiction Psychiatrist, South London and Maudsley NHS Foundation Trust,Blackfriars Community Drug and Alcohol Team

Ann Gorry – Joint National Dual Diagnosis Programme Lead and National Primary Care Lead, Care ServicesImprovement Partnership

Caroline Hawkings (Chair) – Senior Policy and Public Affairs Advisor for Mental Health, Turning Point

Cheryl Kipping – Consultant Nurse, Dual Diagnosis, South London and Maudsley NHS Foundation Trustand Joint Programme Lead, Dual Diagnosis, LondonDevelopment Centre

Tabitha Lewis – Senior Lecturer (Dual Diagnosis), Middlesex University

Peter Scott-Blackman – Chief Executive Officer for the Afiya Trust

Stuart Watson – Consultant and Project Manager

We would like to thank the Care Services ImprovementPartnership Regional Dual Diagnosis Leads, the SteeringGroup of London Development Centre Dual DiagnosisNetwork, the National Treatment Agency Regional Co-ordinators, and all the participants in the CSIPChanging Habits regional seminars. We would also like to acknowledge the input of the following:

Fiona Adamson – Borough of Telford and WrekinDr Dave Armstrong – Humber Mental Health Teaching

TrustSue Andrews – Berkshire NHS TrustBill Baker – Croydon Dual Diagnosis teamMandy Barrett – County Durham and Darlington

Multi-Agency Dual Diagnosis ProjectHayley Barlow – London Development CentreKirsteen Bogle – Lewisham Primary Care TrustAlison Cameron – Dual Recovery Anonymous John Claire – Avon and Wilts Mental Health Partnership

NHS TrustSamantha Clark – Hartlepool Dual Diagnosis ServiceRay Codner – African Caribbean Community InitiativeDavid Crawford – Northumberland, Tyne and Wear

NHS TrustDurand Darougar – Southwark Dual Diagnosis ServiceLois Dugmore – Leicestershire Partnership NHS Trust Richard Edwards – Avon and Wilts Mental Health

Partnership NHS TrustJanet Feigenbaum – North East London Mental Health

Trust Davina Firth – Westminster City CouncilBob Fletcher – Northamptonshire Primary Care TrustBrendan Georgeson – Walsingham HouseChristopher Gill – Cambridge Mental Health Trust Ian Hamilton – York University

Catherine Hennessey – South London and Maudsley NHS Trust

Margaret Heraghty – The Friday GroupMark Holland – Manchester Mental Health and Social

Care TrustBelinda Hollows – Amber ProjectCliff Hoyle – St James Priory ProjectDr Ian James – Newcastle, North Tyneside and

Northumberland Mental Health TrustDavid Manley – Nottinghamshire Dual Diagnosis ServiceCheryl Moulton – Antenna Maggie Page – Cambridgeshire and Peterborough

Mental Health and Social Care Partnership NHS TrustMatt Paterson – Bolton, Salford and Trafford Mental

Health NHS TrustJocelyn Pike – Norwich Primary Care TrustStephen Radley – Haringey Primary Care TrustKen Rayner – Turning Point Gwydir and Huntingdon

ProjectNeil Robertson – Lewisham Dual Diagnosis ServiceAlicia Spence – African Caribbean Community InitiativeRuth Stebbens – Humber Mental Health Teaching Trust Susan Sheer – South Downs NHS TrustGlen Thomas – Rampton HospitalJustine Trippier – Westminster Primary Care TrustDerek Tobin – The COMPASS ProgrammeSarah Young – Dudley Beacon and Castle Primary

Care TrustEmma Wadey – HMP High Down, SurreyMarcel Vige – Diverse Minds

We would also like to give particular thanks to RichardKramer, Director of Policy, Turning Point for editorialadvice.

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Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs 1

Contents

Foreword 2

Part A: good practice components, key policies and commentary

Section one: introduction

■ What’s in the handbook? 4■ Who is this handbook for? 4■ What the handbook offers 4

Section two: the components of good practice

■ Working with service users, carers and families 6■ Planning and commissioning of services 6■ Service delivery 6■ Locally agreed definitions of dual diagnosis 6■ Inter-agency working 7■ Assessment 7■ Treatment and co-ordination of care 7■ Experience and skills 8■ Monitoring, evaluation and research 8

Section three: key guidance and policydocuments for dual diagnosis

■ Dual Diagnosis Good Practice Guide 9■ Dual Diagnosis in Mental Health Inpatient

and Day Hospital Settings 9■ Closing the Gap 9■ The Care Programme Approach 9■ Models of Care for the Treatment of Drug Misusers 9 ■ The National Service Framework

for Mental Health 9

Section four: commentary

■ Strategic issues: planning and commissioningof services 10

■ Operational issues: delivering servicesand building partnerships 11

■ Providing assessment and treatment 13■ Working with service users and carers 14■ Providing services for black and minority

ethnic (BME) communities 16■ Developing the dual diagnosis workforce 16 ■ Monitoring and evaluating services 18

Part B: case studies

1: County Durham and Darlington Multi-Agency Dual Diagnosis Project 23

2: Nottinghamshire Dual Diagnosis Service 263: Humber Mental Health Teaching Trust

Dual Diagnosis Liaison Service (DDLS) 284: Dual diagnosis course, York University,

Department of Health Sciences 305: The COMPASS Programme 326: The Friday Group 347: Turning Point Support Link 378: The Amber Project 39 9: St Jude’s Hostel, part of The African

Caribbean Community Initiative (ACCI) and Omari Housing Consortium 42

10: Grafton Ward, Manchester Mental Health and Social Care Trust 44

11: The Rampton Hospital Substance Misuse Treatment Programme 46

12: Lewisham Dual Diagnosis Service 4813: The Westminster Dual Diagnosis Project 5114: Intensive Management of Personality

Disorder: Assessment and Recovery Team(IMPART) 54

15: Croydon Dual Diagnosis Service 57

Conclusion 60

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2 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

The Dual Diagnosis Good Practice Guide,published by the Department of Health in 2002,provided a framework in which to consider thecomplex needs of people with mental healthissues and problematic substance use. TurningPoint is actively engaged at the frontline tounderstand the issues involved in developingand implementing services to meet those needs.

This handbook brings together the practical lessons thatTurning Point has gathered from its own experienceand from talking candidly to a range of voluntary andstatutory sector professionals about what has workedand, equally importantly, what has not.

There is now broad consensus about many of theunderlying principles for a quality service. Theseinclude the importance of incorporating a values baseto support constructive relationships and recovery;involving service users and carers; having locallyagreed definitions of dual diagnosis; and working inpartnership with a wide range of agencies to provideco-ordinated health and social care.

It is encouraging that services are genuinely listening towhat is needed in their area rather than adopting a ‘onesize fits all’ approach. However, the extent of this varietyunderlines the importance of drawing together learningand good practice. It is vital that both frontline staffand commissioners are able to draw on the evidence ofwhat has worked and have a realistic understandingof the process and costs of implementation.

It is clear that there is a long way to go to genuinelymeet the complex and changing needs of people withco-existing issues. But we commend this handbook asa valuable step on the road to achieving high qualityservices and real quality of life improvements forservice users and their families.

Tom DoddJoint National Dual Diagnosis Programme Lead Care Services Improvement Partnership

Ann GorryJoint National Dual Diagnosis Programme Lead Care Services Improvement Partnership

Foreword

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Part A:good practicecomponents, key policies andcommentary

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2

3

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4 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

What’s in the handbook?

This handbook has been written to support thedevelopment of services for people with co-existingmental health and substance use problems.

At the heart of the handbook is a series of casestudies showing how particular services haveimplemented good practice. Based on extensivediscussions with both professionals and service users,we also discuss the key issues and learning points andpropose components of good practice.

The key aims of the good practice guide are to:

■ Build on current dual diagnosis guidance anddemonstrate its application in a range of settingsand services

■ Promote dialogue between professionals so thatexperiences, knowledge, skills and resources areshared

■ Provide case studies, demonstrating how goodpractice can be replicated elsewhere and includingcontact details and resources to share

■ Through the sharing of learning, to enable services toimprove care pathways and provide quality support.

The development of the handbook has been fundedby the Department of Health (DH) and supported by asteering group, which brings together the expertise ofservice users, practitioners and providers. The CareServices Improvement Partnership (CSIP) and theNational Treatment Agency (NTA) are key partners.

Although the handbook only covers services in England,much of the material will be applicable elsewhere.

The handbook can also be downloaded from thepublications area of the Turning Point website(www.turning-point.co.uk).

This handbook can be read in conjunction with theDual Diagnosis Toolkit: Mental Health and SubstanceMisuse (Turning Point and Rethink, 2004), whichprovides an introduction and overview of dualdiagnosis and includes information about specificmental health and substance use problems. This toolkitis also available through the Turning Point website.

Who is this handbook for?

The dual diagnosis handbook is a practical manualprimarily for staff involved in the development anddelivery of services for people who have co-existingmental health and substance use problems. It will beuseful for those working in specialist dual diagnosisservices and more generic teams. There are also somekey messages for commissioners and those in otherstrategic roles.

What the handbook offers

The handbook contains practical information designedto help you to learn from, and apply, good practice inyour services. It is divided into five sections.

1. Introduction2. The components of good practice3. Key guidance and policy documents 4. Commentary5. Case studies

After this introduction, there is a section describingthe components of good practice. These wereidentified at the initial stages of the project and usedas a framework to gather information from services.In developing the components, we consulted oursteering group and reviewed literature andgovernment policy relating to dual diagnosis.

The key guidance and policy documents sectiongives a very brief summary of the relevant policyframework.

We then include a commentary which examinessome of the main themes from interviews withorganisations featured in case studies, and feedbackthat we received from a whole range of servicesworking in the field of dual diagnosis. ‘Snapshots’ ofgood practice help to illustrate some of these points.

The key part of the handbook contains the casestudies from services working with people with a dualdiagnosis in a range of settings and localities. Theseinclude advice that practitioners would like to shareand offers practical help for anyone seeking todevelop dual diagnosis work.

Section one: introduction1

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A note on languageWe recognise that there is a range of terminology inthis field and we have tried to keep jargon to aminimum. Acronyms have been spelt out in full whenfirst used, and a list of abbreviations can be found onthe inside back cover. We are aware of the differentterms used around substance use and misuse. In thishandbook we have generally used 'substance use'when referring to individuals, but retained 'substancemisuse' when describing service provision. In the casestudies, we have, as far as possible, retained thelanguage used by the services themselves.

How we gathered the informationWe gathered information from 40 services and heldin-depth conversations with 15 of these to establishtheir areas of strength and the challenges faced indeveloping their work. We also received valuablefeedback from four dual diagnosis workshops.

Section one: introduction

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6 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

These components represent the best availableconsensus on the elements of good practice. They aredrawn from the practical experience of professionalsand service users as well as from research and policyguidance.

Working with service users, carers and families

People providing dual diagnosis services do best whenthey take time to listen and when service users aretreated with respect. Working with people who havedirect experience of using services, as well as theircarers and families, is vitally important at all stages ofgood practice.

We have also mentioned working with service usersand carers in the other components where it isespecially relevant.

Good practice standards■ Information about services should be accurate, in

straight-forward language, in accessible formats andin a language that people can understand

■ There should be openness, dialogue and goodcollaboration with service users, carers and familiesto ensure that everyone is well informed about theservices on offer, and that they have clearexpectations about the working relationshipsbetween service users and staff

■ Services and staff should take account of differentvalues and perspectives

■ Services should be culturally sensitive and takegender, race and sexuality issues into account

■ Service users, carers and families (as appropriate)should be consulted and actively involved at allstages of service development, from planning toservice delivery and evaluation.

Planning and commissioning of services

The main focus of this project is on practitioners anddelivery of care. However, we recognise that goodservice delivery is improved with good commissioning.

Good practice standards■ Commissioners and providers should be aware of

the nature and scale of the issue (informed by localaudits and service mapping). This enables appropriateplanning and targeting of services and mitigatesrisks to the health and wellbeing of individuals.

■ There should be a co-ordinated approach tocommissioning mental health and substance useservices to ensure that funding of treatment forpeople with co-existing conditions is adequate,secure and long-term, although funding may comefrom different streams.

■ Planners and identified joint commissioners ofservices should be working with local implementationteams (LITs) and drug and alcohol action teams(DAATs) to ensure a co-ordinated approach.

■ Contracts with providers and service specificationsshould explicitly address co-existing mental health

and substance use problems.■ The services that are commissioned should connect

to both national and local policies on dual diagnosis.■ Commissioners should develop strong partnerships

with providers and engage service users inunderstanding needs.

Service delivery

The Dual Diagnosis Good Practice Guide (DH, 2002)recommends ‘mainstreaming services’ to ensure that,as far as possible, all service users with severe mentalhealth issues and problematic substance misuse aretreated within mainstream mental health services.

Good practice standard■ Service delivery protocols should be agreed between

mental health and substance use teams.

Locally agreed definition of dualdiagnosis

The Dual Diagnosis Good Practice Guide (DH, 2002)advises services to “generate focused definitionswhich reflect the target group for whom their serviceis intended.”

Good practice standards■ There should be a locally agreed definition of dual

diagnosis shared within an agency and acrossagencies

Section two: the components of good practice

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■ There should be adequate referral mechanisms forpeople who fall outside this definition so that theycan access the support they need.

Inter-agency working

Defining target client groups and agreements onprovision, as described above, should be achievedthrough inter-agency collaboration across mentalhealth and substance use services from all sectors.There may be different models of effective inter-agency working including dedicated dual diagnosisteams, assertive outreach teams specialising in dualdiagnosis and networks of expert local clinicians.Agencies should have a shared and consistentapproach to working with an individual with a dualdiagnosis to ensure that their work is complementary.

Good practice standards■ There should be a local strategy for working with

people with co-existing needs. This needs to beadopted by all relevant agencies.

■ Explicit local protocols on multi-disciplinary andmulti-agency working should be developed.

■ There should be systems and protocols in place onconfidentiality and sharing information betweenagencies. This includes clarifying what informationcan be shared, and in what circumstances.

■ There should be mechanisms for liaison betweendifferent mental health and substance use services,regardless of what model of service exists locally.

■ Practical ways to improve integration at service

delivery level should be promoted; eg through alocal dual diagnosis network.

■ When agencies work together, each agency shouldbe clear about their individual roles and takeresponsibility for fulfilling them.

■ Agencies should know when it is appropriate toseek help from other agencies.

Assessment

Assessment is a crucial part of the process as it affectsan individual and influences their subsequenttreatment and care pathways. Substance use amongpeople with mental health problems is common andaffects treatment outcomes. Assessment of substanceuse should therefore form a routine part of mentalhealth assessments and vice versa.

Good practice standards■ Assessment should be multi-disciplinary and multi-

agency, given the complex needs of people with adual diagnosis.

■ Every service user should be asked basic screeninginformation about their mental health andsubstance use.

■ Any comprehensive assessment should include adetailed mental health history and a detailedsubstance use history, a physical health assessmentand an assessment of a client’s motivation to change.

■ Assessment should include a risk assessment. Thisshould include discussion about management of riskswith service users who are partners in the process.

Treatment and co-ordination of care

These components do not look at individual clinicalinterventions or make judgments about the relativeeffectiveness of different types of intervention. Ourfocus is on the process and organisation of care. Weare interested in how guidance has been applied toimprove care pathways and to support individuals witha dual diagnosis and the staff working with them.

Treatment needs to focus on the ‘long haul’. Servicesshould tolerate and continue to work with serviceusers who have poor attendance records and who donot comply with their medication.

Effective treatment needs to be evidence-based andprovide an integrated response with good brokeragearrangements to address multiple needs.

It is important that time is spent engaging with serviceusers with a dual diagnosis before treatment plans aremade. For a variety of reasons, service users oftenhave difficulty in approaching mainstream services. Itis therefore vital to engage with them in a meaningfuland positive way to work towards long term recovery.

Good practice standardsTreatment should include:■ Engagement■ Enhancing motivation for change■ Active treatment ■ Relapse prevention■ Access to a full range of substance use services and

Section two: the components of good practice

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mental health services, as appropriate■ Availability of a range of pharmacological,

psychological and social interventions.

Experience and skills

There are different approaches to training (eg trainingindividuals or training whole teams). Training does notneed to be purchased from outside the organisationand training from local providers should be encouraged.

Good practice standards■ A training strategy should identify the needs of all

staff and professional groups working in statutoryand voluntary organisations, including both Truststaff and stakeholder groups.

■ Training should take note of the service user‘sexperience; ideally, service users should take part indelivering it.

■ There should be adequate, supportive supervisionstructures and mechanisms which are consistentlyapplied to ensure that training is influencing practice.

■ There should be mechanisms for informationexchange, sharing skills and inter-agency training.

■ Education and training partnerships should bedeveloped to ensure that service users, carers,families and professionals have access to up to dateinformation and advice.

■ Skill acquisition should be both formal and informal;creative approaches such as job shadowing shouldalso be considered. It is also important to recognisetransferable skills.

■ Training should include ethical and legal issues,medication and interaction with other substances,relapse prevention, care co-ordination and anunderstanding of the impact of race, culture andreligion.

Monitoring, evaluation and research

It is important that systems are in place for monitoringand evaluation so that lessons learnt can improveservice delivery. Service providers should aim to researchand develop new treatment approaches and re-examinethe needs of service users who have previously beenconsidered difficult to engage and treat.

Good practice standards■ Explicit monitoring requirements should be agreed

with providers. These should be included in serviceagreements and specifications.

■ There should be agreement around key indicators,data collection, measurement of outcomes and howthis information is used. Outcomes should reflectthe needs of the service user.

■ There should be specific measurable objectives andagreed timescales which are regularly reviewed.

■ There should be a multi-agency approach todeveloping clinical audits. The audit shouldspecifically address dual diagnosis work.

■ There should be an audit cycle covering all aspectsof the service where feedback from all stakeholdersshould be fed into service provision, staff awarenessand practice.

Section two: the components of good practice

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This section highlights the main policies and guidanceinfluencing care provision for people with a dualdiagnosis. Some of the policy documents from themental health or substance misuse field that arerelevant to dual diagnosis are listed below. Some ofthese documents are due for updates in the nearfuture. For a comprehensive listing see: www.eastmidlands.csip.org.uk/dd/dd.zip

Dual Diagnosis Good Practice Guide(DH, 2002)

The Dual Diagnosis Good Practice Guide provides aframework to help strengthen services and advocatesa move towards an integrated system of care delivery.It focuses on bringing the care of people with severemental health problems and problematic substanceuse into the mainstream, through mental healthservices taking the primary responsibility for theirtreatment.

Substance misuse agencies (both alcohol and drugs)should provide specialist support, consultancy andtraining to mental health teams. Where service usershave less severe mental health problems, mentalhealth services should provide similar support tosubstance misuse agencies.

It stresses the importance of clear care pathways ofjoint working and treatment, with both LITs andDAATs taking the lead.

Dual Diagnosis in Mental HealthInpatient and Day Hospital Settings(DH, 2006)

This guidance covers the assessment and clinicalmanagement of patients with mental illness who arebeing cared for in psychiatric inpatient or day caresettings and who also use or misuse alcohol and/orillicit or other drugs. It also covers organisational andmanagement issues to help mental health servicesmanage these patients effectively.

Closing the Gap (DH, 2006)

Closing the Gap: A Capability Framework for WorkingEffectively with People with a Combined MentalHealth and Substance Use Problems draws on existingnational occupational standards in mental health,substance misuse and other fields to bring togetherone set of competencies for working with people witha dual diagnosis. There are three levels: core,generalist and specialist.

The Care Programme Approach (DH, 2001)

The Care Programme Approach (CPA) is theframework which all services, including drug andalcohol providers, are advised to use for people withsevere mental health and substance misuse problems.CPA guidance is under review with the possibility of

one level of care replacing the two current categoriesof ‘standard and enhanced’. However people with adual diagnosis are highlighted as a key group for whomservices should make provision1.

Models of Care for the Treatment of Drug Misusers (NTA, 2002)

Parts of Models of Care for the Adult Treatment ofDrug Misusers has been replaced by Models of Care:Update 2006 (NTA, 2006) and Models of Care forAlcohol Misusers (DH, 2006).

Models of care are two national frameworks for thecommissioning of adult drug misuse and alcoholmisuse treatments that are expected to be available in every part of England to meet the needs of diverselocal communities.

The National Service Framework for Mental Health (DH, 1999)

The framework sets out how services should beplanned, delivered and monitored. It states that “theneeds of people with a dual diagnosis should be metwithin existing mental health and drugs and alcoholservices”.

Section three: key guidance and policydocuments for dual diagnosis

1 New guidance is due in 2007 for implementation from April 2008.

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The components of good practice (see section two)represent the ideal benchmarks for developing dualdiagnosis practice and provision. This commentaryoutlines what people working in this field have told usabout their experiences of delivering services andhighlights common themes identified over the courseof the project. It also draws on the written materialwe have received from the workshops held at each ofthe four ‘Reaching out, Changing Habits’ dualdiagnosis conferences2 as well as comments from oursteering group.

The aim is to summarise the main points raised; toindicate the changing horizon of service delivery andpractice as identified by service users and providersthemselves; and to suggest some key learning forfuture practice and service development. We havereferred to the wider policy context briefly whererelevant (see section three).

Strategic issues: planning andcommissioning of services

Complex health and social needs requiring a range of inputsThe provision of high quality services to people with adual diagnosis of mental illness, substance and/oralcohol use remains a major challenge for policy makers,commissioners and providers. The Dual Diagnosis GoodPractice Guide (DH, 2002) advocates mainstreamingthe care of people with “severe mental healthproblems and problematic substance misuse” so that

mental health services take the lead responsibility. Thisapproach aims to avoid service users being shiftedbetween services and falling through the net of care.However, despite the above definitions and efforts toprovide a framework, individuals who do not meetthese criteria can continue to fall through the gapbetween services.

In addition, when compared with a mental healthdiagnosis alone, both literature and our experienceindicate that people with a dual diagnosis are likely to have:

■ More severe mental health problems■ An increased risk of suicide, victimisation or being

violent■ Less compliance with medication and other

treatment■ More contact with the criminal justice system■ Family problems and/or a history of sexual/physical

childhood abuse.

As highlighted by the Social Exclusion Unit’s reportMental Health and Social Exclusion (2004), servicesneed to reach beyond their own boundaries andrecognise that people’s difficulties are not purelyhealth-related, but are compounded and influencedby a range of other factors, such as housing,employment or social isolation. In short, individualswith a dual diagnosis are an extremely heterogeneouspopulation, requiring a range of interventions suitedto their needs which no one treatment service oragency can meet.

Lack of designated dual diagnosis fundingWhile it is widely recognised that co-ordinationbetween agencies is key to meeting these complexneeds, in practice this has often proved difficult. Onereason for this is the way in which different policiesand accountabilities drive separate sectors andservices. Funding is also provided through a variety ofroutes that have, since 2002, focused primarily onsubstance use and criminal justice. Where dualdiagnosis services are funded through Primary CareTrusts (PCTs), the levels of funding can vary dependingon individual PCT priorities and budgets.

Although not unique to the dual diagnosis field, severalservices stated that the mismatch between availableresources and individual service user preferences forparticular types of treatment and care, forms anotherbarrier to developing service provision. When financesare limited, dual diagnosis posts can be vulnerable tocuts as they do not directly contribute to current NTAtreatment targets. Some services have pointed to theoverload of central government initiatives and thesubsequent impact on staff morale, turnover andtraining. Restructuring also affects service delivery as ahigh turnover of staff is unsettling for service users.

Services felt that there is sometimes another dangerthat people with more straightforward needs do notreceive appropriate services. Substance misuse serviceusers who have anxiety and depression may find thatnot all services can meet their mental health needs: eg because they lack the resources to providepsychological interventions for depression.

Section four: commentary

2 These were run by the DH, CSIP and Home Office between October 2006 – January 2007.

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Key learning points■ For a combined response to meet some of the health

and social care needs of people with a dual diagnosis,commissioners might want to explore concurrentfunding streams – (eg for mental health supportservices and substance misuse) – or look to sharebudgets to provide social care for vulnerable groups.

■ Co-ordinating services and working in partnership iscrucial to help achieve value for money and improvethe effectiveness of outcomes, which areincreasingly important to commissioners.

■ While trying to cater for people with a range ofneeds, services should not neglect those whoseneeds are more straightforward.

■ Service provision must be based on a local needsassessment of how frequently service users accessboth mental health and substance misuse services.The voluntary sector can play a key role in workingwith commissioners to understand the local marketand to design and develop services.

Getting Trust commitment and working with partners

Northumberland, Tyne and Wear NHS Trust The Trust has identified a directorate lead for dualdiagnosis and a dual diagnosis strategy has beengiven priority status within the current Trustbusiness plan. Service users are offered specialistassessment and treatment from a broad range of mental health and care services within the Trust in

line with their identified needs.

Working in partnership with the University ofNorthumbria at Newcastle, a regional dualdiagnosis interest group has been establishedsince 2001. Some of the aims of this forum aresharing good practice between agencies, buildingin service user and carer experiences, anddeveloping a shared understanding of the mosteffective care packages.

Contact: David CrawfordSenior Nurse Specialist in Dual DiagnosisEmail: [email protected]: 07770 704 802

Operational issues: delivering servicesand building partnerships

Defining the task is the first stepIn order to work together, local agencies need todefine what they mean by ‘dual diagnosis’. Inpractice, this can be a complex task not only in termsof language but also of underlying philosophy eg theextent to which health or social models are adopted.

There is no universally agreed definition of dualdiagnosis but, when planning and delivering provision,it is important that services adopt a local definition,relevant to local needs. It should include major mental

health and mood disorders, personality disorders andsubstance use.

We are aware that dual diagnosis is a contested termpartly because of the differing needs of people withmultiple diagnoses and health problems. Dualdiagnosis may not be the most appropriate languagein all circumstances, and terms like ‘enhanced care’and ‘complex needs’ are also commonly used.

Historically, services have not addressed the uniqueproblems of those struggling with dual diagnosis;instead, they have treated the mental health problemsand substance use as separate problems. However,more services are now being developed to treat bothissues together. Among the services we contacted,multi-disciplinary approaches are widely seen as beingmore effective. The core of success in any setting isthe availability of empathetic, hopeful relationshipsthat provide integrated and co-ordinated service.

Developing integrated models of careThere are several issues that make integratedtreatment difficult to implement. These include:

■ Funding streams that are separate and can rarely becombined

■ Agency turf issues that may not be able to beresolved

■ Legitimate differences of professional philosophyregarding the best possible treatment

■ Staff who lack the minimum degree of cross-training required for them to work together and

SNAPSHOT

Section four: commentary

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12 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

understand each other’s vocabulary, treatmentphilosophies and care approaches

■ Multiple, pressing needs for housing, medical care,vocational training that may need to be addressedbefore treatment for co-occurring disorders can besuccessful.

These themes are acknowledged in the substancemisuse field in Models of Care (NTA, 2006) and onintegrated care pathways in Models of Care forAlcohol Misusers (DH, 2006).

The CPA (see section three) is effective when it isreviewed regularly and when teams work welltogether. However, co-ordinating care betweendifferent agencies and professionals can still bedifficult because of time and other pressures.

Developing effective partnershipsAlthough we found that some services are developingeffective partnerships, these are often the exceptionrather than the rule and many people felt that thereneeds to be ‘more action and less talk’. However,services also need to recognise that partnerships taketime to develop.

Common barriers to partnership working includedperceived hierarchies within professions, differentprofessional values (eg the medical model versus socialinterventions) and competing priorities betweenservices. Effective teamwork also depends onindividual personalities and a culture where staff canfeel free to air their views and be innovative. Service

providers highlighted that many dual diagnosisworkers often feel ‘burned out’ and disempowered todevelop effective partnerships and others felt thatfrontline workers are not listened to.

Key learning points■ Inter-agency working should include statutory and

voluntary services along with agencies workingwithin the criminal justice system.

■ Developing partnerships needs support from seniormanagement. This should to be spelled out inbusiness planning and in an organisation’s strategicframeworks.

■ Successful partnership working depends on goodcommunication. This needs to be formalised withpathways agreed and responsibilities and rolesidentified for each team.

■ Better co-ordination and collaboration of servicesfor individuals with a dual diagnosis is neededwithin and between mental health and substancemisuse services and others.

■ Multi-agency approaches need to be developed withthe extensive involvement of service users and carers.

■ There should be a locally agreed definition of dualdiagnosis but flexibility should be built in to reflectlocal variations.

■ Confidentiality should not be used as a barrier toworking together. Inter-agency arrangements shouldbe made in ways which are consistent with the rightto confidentiality. There should be a process to explorehow confidentiality can best be managed for theservice user, their family, and the workers involved.

Strong partnerships across agencies and with services

Leicestershire Partnership NHS TrustThe Trust has established links with a wide varietyof local partnership agencies including localDAATs, the strategic health authority (via the localimplementation group), statutory and voluntaryservices and CSIP.

These partnerships will enable all teams withinthe Trust to access dual diagnosis services. Eachservice group will have a member of staff whohas received in-house training in dual diagnosis.For complex needs, referrals are made to thenurse consultant for dual diagnosis.

Mental health and drug service staff work jointlywith specific clients in meeting both their drugand mental health needs. Services currentlyprovided within joint working include:

■ Inpatient detoxification■ A daycare programme■ Individual counselling based on motivational

interviewing techniques■ Community prescribing ■ Group work ■ Access to drug rehabilitation centres.

The Trust hosts a yearly conference to bringtogether clinicians, service users, carers, statutory

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and non-statutory staff and commissioners toconsider current issues for this client group.

Contact: Lois DugmoreNurse Consultant for Dual DiagnosisTel: 0116 295 2449

Providing assessment and treatment

Importance of early and shared assessmentService providers emphasised that there should beawareness-raising programmes that encourage earlierdetection of substance use and mental health issuesfor individuals with a dual diagnosis. A non-judgmentalservice user centred approach is needed to connectwith service users who are often vulnerable, chaoticand too poorly motivated to receive help. Some serviceproviders also argued that information gained from ajoint assessment by all agencies involved in the care ofpeople with a dual diagnosis, whether they are public,private or voluntary sector, should be used effectively.

Assessment to consider a range of health and social factorsThe services that we contacted considered thatimportant areas for a comprehensive assessment include:

■ Current, recent and past substance use■ Mental health■ Physical health (including sexual health)

■ Social circumstances (including accommodation andfamily situation – especially children, employment orfinances)

■ Legal situation■ Personal and family history■ Service users’ perception of their situation, their

reasons for using and their motivation for change.

Treatment that draws on a range of approachesThere is currently no standardised treatment for dualdiagnosis, largely because it ranges across such a largenumber of problems and involves both substancemisuse services and mental health services. Servicesare increasingly using motivational interviewing andCBT approaches, particularly in conjunction withpharmacology.

Although support, encouragement and the belief in thepossibility of change is essential, treatment of peoplewith a dual diagnosis can be challenging because theirneeds are typically complex and often long-term.There are also social factors to take into account, suchas lack of housing or difficulty in accessing benefitswhich can also hinder successful treatment.

Key learning points■ Assessment should ascertain how an individual’s life

is directly or indirectly influenced by mental illnessand substance use. It should include the serviceuser’s perspective on how they would like to benefitfrom intervention and what areas they would like toprioritise.

■ Services need to develop, and adhere to, clear policies

on joint assessments. They should also ensure that allagencies or services involved in providing care andtreatment participate in the joint assessments and arefully aware of the outcomes. The result should be tointegrate assessments so that they go beyond separatemental health and substance use assessments.

■ Effective services recognise that recovery tends tooccur over months, even years and they need totake a long-term perspective.

■ Services need to be flexible enough to be able torespond to people’s presenting needs and thereshould be realistic timeframes.

An integrated approach addressing health and social needs

Walsingham House, part of St James PrioryProject, BristolThe St James Priory Project is a registered charity.It has operated in Bristol city centre for 10 years,offering comprehensive support to people with ahistory of homelessness and substancedependency. Walsingham House has grown outof this work and is an evidence-based dualdiagnosis service to meet the needs of peoplewho have historically bounced between servicesand received poor service outcomes.

The service is a residential treatment programmefor people with co-existing mental health and substance misuse problems, including personality

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14 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

disorders. It offers an integrated approach totreatment which is provided by one team withskills in both mental health and substance misuse.The team advocates a biopsychosocial model3

underpinned by cognitive behavioural therapy (CBT).

Through partnership working with statutory andvoluntary providers, the service addresses carepathways for service users once treatment iscompleted. Referrals are accepted from statutoryand non-statutory agencies, as well as from self-funders.

Services include a mix of: group therapy,workshops, one-to-one counselling, mental statemonitoring, psychiatric review (includingmedication), community skills, nutrition and dietaryinformation, budgeting skills, progression toindependent living skills, and exercise programmes.The service also provides specialist input foraddictions, crisis and risk management planning,including access to Mental Health Act assessment.There is limited detoxification monitoring (forBristol service referrers). Out of area clients musthave already undergone detoxification.

Contact: Brendan Georgeson / Cliff HoyleTreatment Co-ordinator / Dual Diagnosis SpecialistTel: 0117 929 9100Email: [email protected]@stjamesprioryproject.org.uk Web: www.stjamesprioryproject.org.uk

Working with service users and carers

Many agencies may be involvedIndividuals with substance use and mental healthproblems are directed, or present themselves, to awide variety of different agencies. These include healthand social services, voluntary organisations, probationservices, housing departments and the police. However,service users may still fail to receive appropriate help.

Service users have a vast range of experiences, skills,strengths and vulnerabilities and will therefore engagewith services at different levels. Supporting people witha dual diagnosis and their families is a long and slowprocess and continued engagement is essential. Manypeople have lives that are too ‘chaotic’ to attend setappointments and may need an outreach approach toenable them to maintain contact with services.

Offering continuity of careWhen they are in contact with services, service usersand carers often feel unsupported and under-valued.Service users value face-to-face contact and‘continuity of care’ with key workers. Frequentchanges of staff can work against this but, if serviceusers meet other members of a team, engagementcan continue if a worker is absent or leaves.

Involving families and carersInvolving carers is a relatively recent phenomenon.Many carers feel that professionals do not trust themwith information and that, consequently, they need tobe very assertive to extract it. The extent of a carer’s

involvement can be dependent on the personalities ofthe workers within a service and on the extent towhich carers see themselves as carers. They are oftenanxious about identifying themselves as users ofservices, even though they may need to access someof the support offered by dual diagnosis services andother social and health services.

Carers have a wealth of knowledge and personalexperiences through living with and/or caring forsomeone with a dual diagnosis. Families are the mostcommon primary care-givers and consistently reportdifficulties in accessing the support they need, whenthey need it. In addition, many people with a dualdiagnosis have no contact with their family and arevery socially isolated. For these people, holistic supportfrom a professional can be pivotal.

Individuals with a dual diagnosis may also beconcerned that they are perceived to be poor parents.This can prevent them from engaging with services forfear of their child/children being taken into care.

Key learning points■ Service users and carers often know what

interventions work best for them, so should beinvolved with the development, delivery andmonitoring of all dual diagnosis services and othergeneral services.

■ Services need to establish realistic expectations aroundservice user and carer involvement. It is importantthat they are involved in an ongoing programme,and not just occasionally or in a tokenistic way.

3 The ‘bio’ or biological – understanding the process of illness and the treatment required, such as medication; the ‘psycho’ or psychological – offering appropriate talking therapies; and the ‘social’ –offering accommodation, income and meaningful daytime activity.

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■ Services should be careful not to use jargon andacronyms that exclude service users and carers.

■ Services should develop a trusting, supportive andconsistent working relationship with service users.This will make it easier for their needs to be moreregularly reviewed and therefore will help servicesto be more responsive.

■ Workers supporting carers should be included oncare plans where appropriate.

■ Service users who do not have an identified carershould be provided with community support toprevent isolation. Families should be offered supportand education.

■ Services should recognise the needs of younger carers.■ Carers should be fully involved and informed about

care plans by services. but at the same timerecognising that some users can have tensionsabout carer/family involvement.

Working with service users: facilitating self-help

Dual Recovery Anonymous (DRA) Dual Recovery Anonymous (DRA) is a London-based, non-profit making, self-help programmefor people recovering from drug and/or alcoholuse and co-existing mental, emotional, personalityand mood disorders. DRA members meetregularly to share experiences and provide mutualsupport. There are two meetings each week andmembership is open to anyone with a dual

diagnosis who has a desire to achieve andmaintain abstinence from alcohol and non-prescribed drugs. It is based on the 12 stepprogramme of Alcoholics Anonymous.

The programme aims to help people with a dualdiagnosis to achieve recovery from chemicaldependence and emotional or psychiatric illnessby focusing on relapse prevention and activelyimproving the quality of its members’ lives.

The programme is funded by the voluntarycontributions of the members although outsideassistance (eg a venue for meetings) may beaccepted. All members are, or have been, users ofsubstance use and/or mental health services.Meetings are closed to professionals so that theyprovide a truly safe space to discuss any matterconcerning dual diagnosis and recovery.

DRA does not require a diagnosis or referral froma professional or service provider. However,professionals can have a key role in promotingDRA to their clients.

Some DRA members undertake outreach workaimed at increasing awareness of the programmeand its principles. Members of the group havegiven talks to patients on psychiatric wards(including forensic units), therapy groups (in boththe mental health and substance use sectors), andat conferences, seminars and training events.

Contact: Alison CameronTel: 07731 390708

For meetings informationContact: Adam or RobinTel: 07804 630285 / 07973 318287Web: www.draonline.org

A service with strong user input

Hartlepool Dual Diagnosis ServiceAs part of the Tees, Esk and Wear Valleys NHSTrust’s development of the dual diagnosis service, asteering group was formed in October 2004. Thisincluded representatives from service user groups,mental health professionals, community supportworkers, commissioners and other key stakeholders.The steering group was instrumental in designingthe way the service would be delivered anddeveloping relevant policies and procedures.

The steering group agreed that the service wouldoperate as a virtual team and would be inclusivein its approach by supporting individuals whetherthey were receiving care in the mainstream mentalhealth service or the substance misuse service.

Service users have been actively involvedthroughout the development and implementation

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4 Bashford J., Buffin J., Patel K. Department of Health’s Black and Minority Ethnic Drug Misuse Needs Assessment Project., University of Central Lancashire Centre for Ethnicity and Health. Preston, Lancashire: University of Central Lancashire Centre for Ethnicity and Health, 2003.

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of this service by participating in the steeringgroup, as well as in the development, consultationand piloting of intervention booklets andinformation leaflets, and by evaluating the service.

Team members attend service user-led forums ona regular basis and links have been establishedwith the Hartlepool user forum (substance misuseservice user forum) and mental health service userand carer involvement groups.

Contact: Samantha ClarkClinical Team LeadTees, Esk and Wear Valleys NHS TrustTel: 01429 285000

Providing services for black andminority ethnic (BME) communities

The main policy relating to developing services withBME communities is Delivering Race Equality in MentalHealth Care (DH, 2005). This is a comprehensiveaction plan for eliminating discrimination andachieving equality in mental health care for allindividuals from BME groups.

The Department of Health’s black and minority ethniccommunity drug misuse needs assessment project,carried out by the University of Central Lancashire4,has amassed a great deal of information about the

pattern of substance use by different ethnic groups.Improvements in assessment and management ofsubstance use for BME groups should be delivered inthe context of Delivering Race Equality in MentalHealth Care.

Recognising the needs of different populationsBlack and minority ethnic groups are extremelyheterogeneous. Among those with co-existing mentalhealth and substance use needs, some minorities areover represented (eg African-Caribbean groups) whileothers are under-represented (eg Asian groups).Services frequently mentioned this as an area ofconcern, although few of them were actively engagedin ‘reaching out’ proactively to these communities.Several services reported an increase in the number ofservice users from Eastern Europe.

Increasingly, it is also the case that many BME serviceusers are born in the UK and have English as theirmother tongue and so come from the same or asimilar culture to white British users, but still have verydifferent experiences of dual diagnosis services. This isbecause service providers may still hold unintentionalsubconscious stereotypes about BME communitiesthat can affect the range and delivery of thetreatment offered to these service users.

The reality on the groundMost service providers involved with this project didnot offer BME specific services. The service providerswe contacted felt that there were recurring barriers toworking with BME groups, including misunderstanding

rather than stigma and language issues. Some serviceusers felt that hiring staff from the same cultural grouphelped to address these issues: others felt that havingstaff who are racially and culturally competent (butwho may be from a different ethnic background) wasmore important than a cultural match. Other serviceusers believed that getting a service at all or a goodservice was more important.

Key learning points■ Healthcare professionals need to be aware of the

make up of BME groups within the community theyserve

■ Incorporate racial and cultural awareness into theassessment and treatment of each service user

■ Reach out to religious and community organisationsto encourage referrals into services or as anothernetwork of support

■ Offer cultural and racial awareness training to staffto increase their awareness of their own racial andcultural attitudes and their subconscious beliefsregarding race and culture

■ Understand that some behaviour that one cultureconsiders to be signs of mental illness may beacceptable in a different culture

■ Be aware that a service user from another culture ora BME background may hold different beliefs aboutcauses and treatment of their dual diagnosis.

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Developing the dual diagnosisworkforce

Training and development challengesAs in other areas, staff development in the dualdiagnosis sector is vital and many providers areaddressing this issue. The most frequently citedchallenges include: gaps in formal training; lack ofongoing professional development programmes; and insome organisations, low salary levels. Services felt that,generally, dual diagnosis is poorly understood and thatthere has been a lack of adequate and ongoing training.Services also felt that training can be variable inquality and not necessarily reflect their training needs.

Accessing training can also be difficult as most dualdiagnosis training is not mandatory. Servicesrecommended that training on dual diagnosis shouldbe built into staff inductions and also identified aneed for rolling programmes to enable staff to opt inand out of training as appropriate. Service providersfelt that staff should not have to wait more than sixmonths to access training.

Applying skills in practiceServices stressed the importance of ensuring that practicedevelopment and supervision was embedded intopractice and highlighted the need for change inorganisational cultures. Services also recognised that it isimportant to capitalise on existing skills, which need tobe differentiated between core and specialist skills. Someservice providers felt that dual diagnosis has too muchof a mystique about it and staff do not realise that some

of their existing skills are transferable and very relevant.Closing the Gap (see section three) draws on existingoccupational standards to bring the competenciesneeded to work with people with mental health andsubstance use needs into one framework and is helpfulin addressing many of the issues outlined above.

In addition to formal training, some service providersfelt that the reality of time and resource constraintsmeant that staff themselves should take a pro-activerole in their own learning and development.

Key learning points■ Mental health staff require drug and alcohol

awareness training and vice versa. Awarenesstraining should also reach out to relevantprofessionals in related services.

■ Multi-disciplinary and multi-agency training (ie crosstraining) needs to be in place to ensure a sharedphilosophy and knowledge base.

■ Dual diagnosis training needs to be part of coretraining and made part of the process of mappingcare pathways.

■ Any training programme should explicitly statewhich staff need training and ensure that thecontent meets their specific needs.

■ Skills development needs to take account ofchanging situations, including new policyframeworks and changing patterns of drug use.

■ Training and development can also be offered ininnovative ways that make the most of newtechnologies, such as the internet and interactiveDVDs, as well as on the job training.

Partnership working: multi-agency training and peer supervision

Intensive Support Team, Cambridgeshire and Peterborough Mental Health and SocialCare Partnership NHS TrustThe Intensive Support Team is an assertiveoutreach team based in Huntingdon and is a partof Cambridgeshire and Peterborough MentalHealth and Social Care Partnership Trust.

The team has a high proportion of service userswith a dual diagnosis and recognised the need forlocal, inter-agency training. The team accessed aneight-day training course entitled ‘working withclients with substance use and mental healthproblems’. This was run by a senior counsellorfrom a non statutory agency, Dialdruglink, and aclinical psychologist specialising in substancemisuse. The course was attended by a range ofprofessionals across different services.

Following the training, the team set up a peersupervision group which is facilitated by the samespecialist clinical psychologist. The team use thisgroup as a flexible forum to discuss challenges andopportunities around particular clients, have furthertraining, bring in other substance use workersand develop a comprehensive resource file.

Team members feel that the group has made themmore confident and better equipped to do their job.

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18 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

Contact: Maggie PageTeam Leader, Intensive Support Team,Cambridgeshire and Peterborough Mental Healthand Social Care Partnership NHS TrustTel: 01480 415377

Delivering dual diagnosis training to mental health staff across London

Pan-London dual diagnosis trainingThe pan-London dual diagnosis training is a fiveday course primarily designed to meet the needsof mental health staff who lack competence inworking with substance use issues. However, itcan be adapted to meet the needs of a variety ofgroups. Issues addressed include the nature ofdual diagnosis, prevalence, policy guidance, drugand alcohol awareness, assessment and treatmentoptions.

Training is usually delivered one day a week overfive weeks and participants are expected topractice the skills they have learned betweentraining days. The course can be adapted toincorporate locally focused content, such as theuse of assessment tools, information about localservices and care pathways.

A variety of strategies are put in place to support the application of learning in practice and topromote further learning. These include recalldays, joint work with a specialist dual diagnosisworker, individual and group supervision, andfacilitating time in other services; eg mentalhealth staff working in substance misuse services.

The trainers are usually staff working in dualdiagnosis roles that have training as a core part of their job description. Pan-London trainers’networks are held three times a year and aresupported by the London Development Centre.

Evaluation of the training indicated thatparticipants thought the content was relevant totheir clinical work: 99% reported gaining a betterunderstanding of dual diagnosis issues and 93%thought they would be able to incorporate thetraining into practice.

Contact: Cheryl KippingJoint Programme Lead, Dual Diagnosis,London Development CentreEmail: [email protected]: www.londondevelopmentcentre.org

Monitoring and evaluating services

Variety of approaches in practiceThe way in which health and social care iscommissioned and provided has changed over recentyears with a stronger focus on evidence and deliveryof quantifiable outcomes. Evaluation may be imposedfor particular organisational reasons rather thangrowing organically as a service develops. We foundthat the application of evidence-based practice variedand the quality of monitoring and evaluation was notconsistent between services.

Services recognised the importance of evaluation toimprove service provision, but argued that it should bequalitative and service user-focused, rather thancommissioner-driven and quantitative. Some serviceproviders felt that evaluation focused on numbers ofpeople seen, as opposed to exploring whether theneeds of service users are being met.

Services were very much aware that there is a differencebetween performance management and evaluation,and also highlighted the fact that there are no nationalperformance management targets for people with adual diagnosis.

There are many variables to take into considerationwhen planning an evaluation and some services felt thatsometimes it was just not possible to carry out more thana process evaluation. Outcomes for service users (egsatisfaction, quality of life and recovery) are multi-facetedand were felt to be difficult to measure objectively.

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Skills and time constraintsService providers felt that there was a presumption thatstaff had the skills to carry out evaluation but that mostpeople had not been trained to do this. Evaluation isalso often omitted because of the time it requires;time that is not accounted for in job descriptions or inbusiness plans for new services. As an evaluation andmonitoring system develops, it needs to be built intoday-to-day routines and to provide tangible evidenceof the use and value of services and therefore becomea basis for decision-making and supervision.

Key learning points■ Dual diagnosis services should be evaluated to

create a stronger evidence base. It is particularlyimportant to identify innovative and emerging goodpractice.

■ Outcomes against which services are evaluatedshould be clear and agreed.

■ It is helpful to agree milestones against whichprogress can be monitored.

■ Good evaluation should involve service users andcarers and all service contracts should specifymonitoring and evaluation arrangements.

■ Services need time to embed their work beforeresults can be properly analysed.

■ If there are lots of demands on practitioners it maybe best to start with a simple system of monitoringand evaluation and make the system practical, easyto maintain and immediately useful.

■ Ensure that feedback from evaluation iscommunicated to a range of stakeholders includingservice users, practitioners and commissioners.

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Part B:case studies

Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs 21

1: County Durham and Darlington Multi-AgencyDual Diagnosis Project

2: Nottinghamshire Dual Diagnosis Service3: Humber Mental Health Teaching Trust Dual

Diagnosis Liaison Service (DDLS)4: Dual diagnosis course, York University,

Department of Health Sciences5: The COMPASS Programme6: The Friday Group7: Turning Point Support Link8: The Amber Project

9: St Jude’s Hostel, part of The African CaribbeanCommunity Initiative (ACCI) and OmariHousing Consortium

10: Grafton Ward, Manchester Mental Health and Social Care Trust

11: The Rampton Hospital Substance Misuse Treatment Programme

12: Lewisham Dual Diagnosis Service13: The Westminster Dual Diagnosis Project14: Intensive Management of Personality Disorder:

Assessment and Recovery Team (IMPART)15: Croydon Dual Diagnosis Service

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These case studies provide examples of good practicefrom service providers across the country. They wereselected by assessing how their services met the criteriaoutlined in our ‘components of good practice’ (seesection two). This information was supplemented usinginformation from questionnaires, site visits and/or in-depth interviews, after which the case studies weresubject to approval by the steering group.

They are intended to be broadly representative of therange of approaches taken by the services from whichwe gathered information. We recognise that there areother services that are providing good practice thatwe have not been able to include.

The terminology used in each case study is that of theservice providers themselves and the views expressedare those of the services. However, these studiesdescribe a range of service provision, including bothdirect work with individuals who have a dual diagnosis,whom we have called ‘service users’, and also workwith other professionals, whom we have called ‘clients’.

In each case study, ‘insights from the service’ outlinelearning points that are specific to the individualservice providers and give details of the challengesand lessons learned by the service in developing theirwork. ‘Key good practice points’ are more generallyapplicable in any setting and are the service provider’sviews on what constitutes good practice in developingdual diagnosis services.

Part B: case studies

A key feature of the previous snapshots, andthe following case studies, is the inclusion ofcontact details to enable practitioners toshare best practice and resources, as well asinformation and experiences. Although everyeffort was made to guarantee the accuracyof the contact details at the time of going topress, as time passes, it is likely that thesedetails will change over time.

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This case study describes the development and implementation of a strategy for managingdual diagnosis across a range of agencies. It demonstrates partnership working acrossservices and commissioning structures and use of team leaders to cascade skills and information.

Overall purposeTo develop a strategic plan for dual diagnosis servicesacross County Durham and Darlington.

The strategy is to support staff working with serviceusers with concurrent needs including mental health,substance use and learning disabilities.

A key element of the strategy is to provide specialistdual diagnosis team leaders in mental health andsubstance misuse services. These people providesupport, information, training and supervision to theirown services.

The County Durham and Darlington dual diagnosisstrategy is now being developed Trust-wide.

Service summaryThe County Durham and Darlington Multi-Agency DualDiagnosis Project was established following publicationof the Dual Diagnosis Good Practice Guide (DH, 2002).The work of the project has culminated in developmentof a multi-agency dual diagnosis strategy. This focusesin meeting service users’ dual needs through acollaborative model of working.

The aim is to respond to the full range of mentalhealth, substance use and learning disability issues byhaving a needs-led definition of dual diagnosis. A keyelement of the strategy is to encourage greatercollaboration between services to deliver a single careplan with clear care co-ordination arrangements andto minimise multiple assessments. This is seen as atransitional stage towards an integrated model inwhich all aspects of an individual’s care are managedfrom within mental health services (mainstreaming).

A range of training, development and supportopportunities is provided, including:

■ A practitioner network accessible to all staff. Thisprovides an important forum for sharing experienceand good practice.

■ Clinical supervision for dual diagnosis leads and staffworking in priority areas. This is delivered on anindividual or peer group basis as required bypractitioners.

■ Dual diagnosis leads within mental health andsubstance misuse teams that provide ongoingsupport, information, training and supervision totheir own services.

Dual diagnosis leads are identified by team managerstaking account of local prevalence and the severity ofthe local dual diagnosis need. The lead is required tohave a relevant professional qualification withexperience working with dual diagnosis and possessrelevant attributes and capabilities. The role of thelead is not to deliver clinical work but to provide

support and guidance to staff within their own teams,enabling them to develop dual diagnosis capabilities.Review of the role is underway to determine whetherformal arrangements are needed to ensure protectedtime. A tiered training programme is in place whichincludes awareness and enhanced level training.

StaffingOne dual diagnosis project manager for dual diagnosiswas appointed for one year commencing March 2004;this was extended and now the post is funded withring-fenced money until January 2008.

FundingJoint funding by Durham County Council Adult andCommunity Services, Durham DAAT, Darlington DAAT,six local PCTs and Co Durham and Darlington PriorityServices NHS Trust (now Tees, Esk and Wear ValleysNHS Trust). The annual budget is in the region of£60,000 and the funding for this project has nowbeen agreed on a recurring basis.

Service user and carer involvementService users, carers and families have been involvedin the development of the strategy from needsanalysis (during which service user groups wereconsulted on the gaps and barriers experienced inaccessing effective services) to involvement in devisingand contributing to the strategy implementation plan.

Partnership workingThe dual diagnosis work is jointly funded by 11agencies. The steering group for this project includes

1: County Durham and Darlington Multi-Agency Dual Diagnosis Project

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representatives from providers and commissionersworking with dual diagnosis; service users, DAATs, socialcare agencies, the mental health trust, the strategichealth authority and PCTs, with clear links to LITs.

The practitioner network has over 200 members,several meetings have taken place and there are over60 nominated leads. Networks have included dualdiagnosis project updates, case presentations,speakers and workshops addressing the currentevidence base on the use of cannabis and the onsetof psychosis, alcohol use and dual diagnosis,medicines management and dual diagnosis.

Key outcomes■ The needs led, collaborative approach for service

users means that exclusion or passing betweenservices is minimised.

■ Since the project was established in 2004, over 600staff in mental health and substance misuse serviceshave been trained to awareness level and theenhanced level training module for dual diagnosisleads has run three times. The 44 participantsevaluated it positively.

■ The practitioner network and dual diagnosis leadsprovide accessible support for staff to embed theirlearning into practice.

■ To date 57 mental health and statutory substancemisuse services have nominated dual diagnosisleads.

Key good practice points■ A local definition of dual diagnosis must be agreed

and signed up to by all partners.■ Value the contribution of the local dual diagnosis

network members by involving them in planningand presenting at events. Circulate members’queries to promote sharing of experience andpractice.

■ A tiered training and support structure from thedual diagnosis leads ensures that staff from allprofessional backgrounds in statutory and non-statutory mental health and substance misuseservices have the core knowledge and skills theyrequire, and can access information anddevelopment opportunities.

■ Equip staff to work with dual diagnosis throughongoing, rolling training programmes, professionaldevelopment and support.

■ Promote the service widely both internally andexternally.

■ A collaborative approach is the most effective inbringing about cultural change, as staff and servicesaccept that they all have a role working with peoplewho have dual needs.

Insights from the service■ Make consultation on your strategy as broad as

possible to promote wide ownership and make surethat strategic and frontline staff are involved.

■ Get the strategic health authority on board throughinvolvement in strategy development and listeningevents. Engage a wide range of stakeholders and‘sell’ the positives of joint commissioning.

■ Build a dual diagnosis intranet and internet site topromote the work of the service.

■ Get as many organisations as possible to contributeto the funding of dual diagnosis work: there can bebig gains from small funds.

■ Needs assessment can provide evidence regardinggaps in current service provision which can helpcommissioners.

■ A specialist team is not necessarily needed, as oneidentified post taking a lead can build sustainability.

■ Employ a full time project lead and ensure that thepost holder has the right skills match for the job; thatthey are enthusiastic, knowledgeable and a goodnetworker and also that they have clinical credibility.

■ Make sure that you have good communication withyour partners: this should be open, regular andfrequent.

■ Reinforce existing services. Adopt the philosophythat ‘dual diagnosis is all of our business’.

■ Training and staff support is vital and must bestructured around training needs assessment, basedupon achieving dual diagnosis capabilities,objectively evaluated, and revised as policy and theevidence base changes.

Evaluation and monitoring■ Steering group consisting of commissioners and

stakeholders■ Clinical governance structures, through planning

and dissemination of audit and data collection■ Clinical audits; eg dual diagnosis leads activity and

support needs■ Service user surveys

11: County Durham and Darlington Multi-Agency Dual Diagnosis Project

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Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs 25

■ Training evaluation■ The impact of the lead dual diagnosis role is being

evaluated in spring 2007 by measuring outcomes ofthe role.

ContactMandy BarrettProject Manager – Dual DiagnosisTel: 01325 318141 Secretary: extension 217Fax: 01325 320211Email: [email protected]

Pioneering Care CentreCarers WayOff Burn LaneCobblers HallNewton AycliffeCo. DurhamDL5 4SE

Resources to share■ Dual diagnosis strategy http://cddps.tewv.nhs.uk/

dualdiagnosis/MultiAgencyStrategy.pdf■ Further information about the dual diagnosis project

www.cddps.nhs.uk ■ Further information is available from Mandy Barrett,

including dual diagnosis project planning, dualdiagnosis needs assessment, strategy development,strategy implementation, establishing a local dualdiagnosis network, developing tiered trainingpackages and evaluation reports and clinical auditof dual diagnosis lead activity and support needs.

1: County Durham and Darlington Multi-Agency Dual Diagnosis Project

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26 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

This case study illustrates how a central dualdiagnosis service provides consultancy, liaisonand training at a county level to support localfrontline teams. This helps to drive moreintegrated working and reach into a wide rangeof settings across sectors.

Overall purposeThe service offers a consultancy role to mental healthservices to promote liaison between substance misuseand mental health services. The aim is to developmore effective relationships and promote moreseamless patient care.

Service summaryThe Nottinghamshire Dual Diagnosis Service is county-wide and offers support to services (both statutoryand non-statutory) throughout Nottinghamshire. Theteam existed in the city from 2001 and becameoperational across the county from June 2006.

The team acts in a consultancy and liaison role, takingreferrals from agencies across the county. It undertakes:

■ Face-to-face work with service users to help themtackle their complex needs

■ Liaison and support to services (mental health andsubstance misuse) to facilitate development ofappropriate care pathways for this service usergroup

■ Staff supervision – individually or in groups■ Training and teaching of students and other

healthcare and related professionals.

The service works across all Trust mental health teamsand other non-statutory sector agencies in a widerange of settings including GP practices, forensicwards, drug and mental health services, and statutorysubstance misuse services. Criminal justice servicesand prisons are becoming an increasing priority. Workis prioritised depending on the level of service users’needs and the prevalence of dual diagnosis in thecaseloads of service providers.

Staffing■ One nurse consultant and eight clinicians. Currently

all psychiatric nurses although posts are open toother qualified professionals and individuals withsignificant experience in dual diagnosis.

■ One session of an addiction consultant psychiatristand occasional input from specialist psychiatricregistrars.

■ Administrative support.

FundingThe service is funded entirely through the city andcounty DAATs. Funded until March 2008, when thepooled treatment budgets will probably bemainstreamed. The budget is £450,000 (this excludesprescribing costs which are largely met by the PCT).

Service user and carer involvementService users are involved in service developmentthrough participation in steering group meetings.Service users have been involved in interviews forteam appointments. Two service users and a carerhave been involved in delivering a dual diagnosis

course at Nottingham University. They are also regularattendees at a regional dual diagnosis forum.

There is some concern that the service users whoregularly involve themselves are not necessarilyrepresentative of other users who may have chaoticlifestyles and be more vulnerable.

Partnership workingA wide range of partners includes: ■ Partners internally within the Trust such as Community

Mental Health Teams (CMHT) staff and inpatient staff■ General practitioners■ Forensic psychiatric services and criminal justice

partners, such as criminal justice integrated teams(CJITs), the police and magistrates

■ Social services■ Non-statutory mental health and substance misuse

agencies.

Key outcomes■ An increase in confidence of mental health staff

when working with this service user group.■ Positive changes in attitudes of staff, carers and

service users towards others with drug/alcoholproblems.

■ Assessment of service users for the possibility of thecomplicating effects of substance use.

■ Increased understanding amongst non-statutoryagencies of the issues posed by combined mentalhealth and substance use problems. Staff have abetter understanding of the part they can play inworking with this client group.

2: Nottinghamshire Dual Diagnosis Service

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Key good practice points■ Staff who work in the team need to be have a high

level of expert knowledge and skills in relation tomental health, substance misuse and dual diagnosis.

■ The direct clinical work of the dual diagnosisclinicians enhances their ability to adapt mentalhealth and substance misuse interventions to meetthe needs of service users. This also gives themcredibility with partner agencies, especially whentraining.

■ Service users are involved in training and groupwork and this reaps enormous benefits for otherservice users in terms of peer support andmodelling.

Insights from the service■ Take a long term view based on therapeutic

optimism when working with service users. ■ Dual diagnosis teams should be proactive rather

than reactive and engage service providers andservice users assertively; eg through liaison clinics,home visits (or seeing people in a place of theirchoice), spending time on inpatient units and withcommunity teams.

■ Develop a specialist team which has clearly definedresponsibilities, otherwise highly skilled staff end upgetting pulled into doing routine tasks.

■ All partners need to feel ownership of the project –match funding is a good way to achieve this.

Evaluation and monitoring■ Internal audits and a review by the Healthcare

Commission.■ Two service improvement reviews. ■ Reports to the local DAATs (City and County).■ NIMHE Positive Practice Award (2004) highly

commended.

ContactDavid ManleyNurse Consultant (Dual Diagnosis) Tel: 0115 9555435Email: [email protected]

Nottinghamshire Dual Diagnosis TeamNottinghamshire Healthcare TrustWells Road CentreMapperleyNottinghamNG3 3AA

Resources to share■ Annual report■ Service audit■ Intervention tools and brief assessment forms

(Substance Misuse and Mental Health BriefAssessment Tool).

2

2: Nottinghamshire Dual Diagnosis Service

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3: Humber Mental Health Teaching Trust Dual Diagnosis Liaison Service (DDLS)

28 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

This case study shows how a central team ofspecialist dual diagnosis workers is providingsupport to frontline staff. This promotesmainstreaming of dual diagnosis within mentalhealth services.

Overall purposeThe aim is to support mainstream mental health staffin assessing and delivering interventions to serviceusers who have a dual diagnosis. This is achievedthrough a ‘practice development model’ of informaland formal training sessions and also by providing aninformation resource, modelling interventions,providing guidance on good clinical practice, advice,supervision and co-working and liaising betweensubstance misuse and mental health services.

Service summaryThe DDLS evolved from a Trust-wide strategy producedin response to the Dual Diagnosis Good Practice Guide(DH, 2002) and was led by a multi-disciplinary projectmanagement team. Current developments aredirected and supported by a Trust dual diagnosissteering group, comprising representatives from theaddictions service and a broad range of mental healthservices. The initial pilot has recently been substantiallyenhanced to deliver services across all four PCT areaswithin the Hull and East Riding area.

The DDLS ‘clients’ are other professionals rather thanservice users themselves. Workers offer advice andsupport to a wide range of practitioners includinginpatient units, CMHTs and specialist services such as

assertive outreach, forensic services and the youngperson’s psychosis service. The DDLS nurses do notoffer advice to service users except in the context ofjoint assessments or modelling interventions with aCMHT worker.

The DDLS workers help to establish appropriatescreening and assessment, undertake short pieces ofwork jointly with the patient’s key worker, andsupervise direct work with the key worker. None ofthe team has key worker or care co-ordinatorresponsibility.

Change is assessed through audit, monitoring staffattitudes pre- and post-placement, case note auditsand by interviewing senior clinical and operationalstaff at the end of each placement.

The DDLS is involved in postgraduate teaching andplans to participate in pre-registration nurse training.

StaffingThe current DDLS team comprises four whole timeequivalent staff (three addiction nurses and a nursingteam leader). A member of the team is allocated toeach PCT area.

One DDLS worker is sited within each PCT area for aperiod of six months on placement. At the end of thesix month placement the DDLS nurses rotate toanother CMHT whilst maintaining links with previousplacements.

FundingThe service is funded partly by mental health incomefrom two PCTs (Hull and the East Riding of Yorkshire).The devolved budget is £50,000 and the shortfall inincome to support the team is provided throughreconfiguration of existing mental health posts.

Service user and carer involvementThe Trust has a strategic approach to service userinvolvement and service users are invited to contributeto service development plans. The original impetus todevelop the service arose from service user feedbackregarding gaps in service delivery for patients with adual diagnosis

Feedback from service users and other professionals isused to shape service developments. Individual patientsare directly involved in the care planning process.

Partnership workingPartnership working takes place with mental healthservices, social services, and mainstream substancemisuse services. The DDLS nurses develop close linkswith the integrated CMHTs and their associatedinpatient units. The nurses sit within the Trust’ssubstance misuse service governance structure andwork closely with the senior management team. A weekly multi-disciplinary meeting (including theclinical director and clinical nurse specialist fromsubstance misuse services) provides an opportunity for DDLS nurses and community and inpatient staff to discuss complex cases.

3

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Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs 29

Partnership agreements cover arrangements withother services.

Key outcomes■ Increased confidence and skills of front line mental

health staff ■ Improved screening, detection and assessment of

substance misuse by community and inpatientmental health staff

■ Improved patient outcomes as a result of theimplementation of appropriate care planning andevidence based interventions

■ Dual diagnosis is becoming part of the ‘corebusiness’ of adult mental health services.

Key good practice points■ Provide tools and skills (eg assessment tools,

modelling motivational and brief interventions) thatare consistent and backed up by good quality,evidenced-based research

■ Address existing practice and emphasise the needfor change where appropriate

■ Value and encourage the efforts and good practiceof mental health staff

■ Do not elevate people’s expectations too early andthen not be able to meet them

■ Encourage ownership and stimulate others toproblem solve, develop their own structures andtackle obstacles to implementation

■ Target resources where they will have the biggestimpact

■ Educate mental health staff on the importance ofthe ‘mainstreaming’ agenda

■ Provide greater understanding of the complex needsand relationships between substance misuse andmental health; eg by joint working, peer supervisionor educational events

■ Check that service developments and positivechanges in practice are sustained.

Insights from the service■ The strategy must be approved by the Trust’s Board

and have the support of senior clinical andmanagerial staff

■ Develop informal as well as formal networks early on■ A service such as this needs qualified and

experienced staff working within a formalgovernance structure

■ The service advocates the adoption of a practicedevelopment model.

Evaluation and monitoringThe impact of the DDLS is audited at the beginningand end of each placement. Mental health staffcomplete questionnaires evaluating attitudes andcompetencies in dual diagnosis and case notes areaudited to assess changes in assessment and screeningfor substance misuse problems. The Trust addictionservice is responsible for continued monitoring.

ContactDr Dave ArmstrongClinical Director and Consultant PsychiatristTel: 01482 336 790Email: [email protected]

Trust Addiction Service7 Baker StreetHullHU2 8HP

Resources to share■ DDLS service delivery plan■ Policy and guidance on the clinical management of

drug and alcohol users (inpatient setting)■ Management of Alcohol Problems On Psychiatric

Wards’ (Trust Policy, January 2007)■ Staff attitudes questionnaire.

3

3: Humber Mental Health Teaching Trust Dual Diagnosis Liaison Service (DDLS)

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4: Dual diagnosis course, York University, Department of Health Sciences

30 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

This case study shows how training coursesoffered by an academic institution can betailored to meet the specific work-related needsof dual diagnosis professionals. It also describeshow training can be best embedded in practice.

Overall purposeThis training aims to look at the complex relationshipbetween substance use and mental health, examiningthe implications for service users, carers, workers andservices. It is open to anyone working with peoplewho have a mental health problem, regardless of theseverity.

The training draws on the emerging evidence base forworking with this service user group to examine howparticipants can work more effectively with theseindividuals. The course encourages inter-professionallearning and collaboration.

Service summaryEach course attracts a variety of practitioners includingdrugs workers, probation officers, accident andemergency staff, general practitioners, walk in centrestaff, practice nurses, health visitors, midwives, prisonhealth care staff and those working in mental health.The training provides a blend of skills training andtheoretical evidence.

The training covers the following areas:

■ Risks and effects of substances■ Prevalence of dual diagnosis

■ Assessment and engagement■ Formulation■ Pharmacology■ Interventions; motivational techniques, cognitive

behavioural techniques and cognitive behaviouralintegrated treatment

■ The evidence base■ Advocacy■ Pan-European research.

The course length is one day a week for six weeks, or is run over 12 weeks at a half-day a week.

StaffingThere are five contributors to the training:■ A service user who facilitates a session and is a

member of the course management group■ A nurse specialist who facilitates a session on the

physical needs of this client group■ A professor who has expertise in this field■ Clinicians with credibility and up to date experience

with the client group■ A senior researcher who has expertise in the

evidence base for dual diagnosis.

FundingThe service is jointly funded by the WorkforceDevelopment Confederation and the NTA. Funding isongoing with no defined time limit set on current levels.

Service user and carer involvementA service user facilitates a session, giving their ownexperience of the services they encountered. Video

material provided by service users is also used in thetraining sessions.

Partnership workingPartners include the local DAAT, the voluntary sector(such as Compass), the Yorkshire and HumberRegional NTA, local authorities, PCTs and acute Trusts.

Key outcomesBy the end of the training participants should be ableto:■ Discuss the concept of addiction and how this

relates to mental health■ Demonstrate an understanding of the commonly

used illicit drugs and misused prescription drugs■ Describe the relationship between mental illness and

substance use■ Understand the skills and tools used with this client

group■ Describe different models of treatment and service

delivery.

This is measured in two ways: essay, and group andindividual supervision provided by the coursefacilitators.

Key good practice points■ It is important to make dual diagnosis training

relevant to people in whatever context they areworking, ie not just those working with severemental illness.

■ Try to tailor each course to the needs of the peopleattending.

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Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs 31

■ Involve service users in the planning, delivery andevaluation.

■ Involve facilitators who have either clinical orresearch credibility; this is important if the most upto date and objective information is provided.

■ Running a course over several weeks gives peopleopportunities to practice what has been taughtbetween sessions.

■ It is more effective to have supervision andmodelling of practical issues during, or soon after, acourse so that learning is not lost.

■ Funding for training should include both thestatutory and independent sector. This ensures agood mix of professionals attend the training.

Insights from the service■ A mixture of delivery methods is used including

information giving (lectures), journal clubs andhomework, which includes practising the skillstaught in the work place and feeding back thefollowing week (good and bad!)

■ Shorter courses do not work as well as there isinsufficient time to challenge entrenched attitudes

■ Extra effort has been made to ensure open accessto staff from the independent sector as they providethe majority of substance misuse services within ourregion.

Evaluation and monitoring■ Course evaluations.■ External bodies – Quality Assurance Agency.■ Peer observation; a lecturer from the university

observes facilitation of part of the course to ensurethe teaching methods and delivery are of a goodquality.

■ Summaries of evaluation are sent to the WorkforceDevelopment Confederation and the NTA.

■ Students and training managers evaluate howattending the course has made a difference to theirwork practices. The main differences reported areimproved confidence and knowledge when dealingwith the client group. Staff have also suggestedways their service could be improved to meet theneeds of the client group. This ranges fromchanging assessment methods to reorganising teamstructures and roles.

■ We are able to evaluate the effectiveness of trainingin part by offering ongoing supervision to teamswho predominantly work with a dual diagnosisclients. We are not able to offer this service to allteams.

■ Comments and evaluations help shape the futurecontent and delivery of training. We do this mainlyby discussing specific changes within the coursemanagement team.

ContactIan HamiltonLecturer in Mental HealthTel: 01904 321673Email: [email protected]

Department of Health SciencesUniversity of YorkYorkYO10 5DD

Resources to share■ Teaching materials, including powerpoint

presentations, academic work■ Contact lists■ Literature and booklists■ Evaluation data and tools.

4

4: Dual diagnosis course, York University, Department of Health Sciences

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5: The COMPASS Programme

32 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

This case study profiles a team that offers bothclinical work and training/practice developmentsupport. It illustrates how a team based withinsubstance misuse services is helping mentalhealth services to provide integrated care.

Overall purposeThe COMPASS Programme in Birmingham provides aservice to people who experience severe mental healthproblems and use drugs and/or alcohol problematically.The team also provides training and clinical input tomental health teams to promote a model ofintegrated treatment.

The service aims to:

■ Ensure that service users with a dual diagnosisreceive support and interventions to meet theirneeds

■ Support staff to work with service users who maybe difficult to engage and who present withcomplex needs.

Service summaryThe service works directly with service users and ispart of the substance misuse directorate. The servicealso provides support, training and clinical input tomental health and substance use services to promotea high quality of care.

The service takes a harm reduction approach tominimise the risks of problematic substance use forindividuals with a dual diagnosis. It operates in an

urban environment, with a very diverse multiculturalpopulation and high levels of social deprivation.

Key elements of the service include:

■ Ensuring that Cognitive Behavioural IntegratedTreatment (C-BIT) interventions5, based on the C-BITmanual, are delivered within mainstream mentalhealth services

■ A variety of training for staff of different disciplines,including:■ A two session group programme for inpatient

units: this supports clients to discuss substanceuse, its impact on their mental health andstrategies for change

■ Training in assessment, formulation, treatment planning and engagement for ward staff, primarycare, rehabilitation and recovery and hometreatment teams

■ Drug and alcohol awareness sessions across the Trust.

StaffingA team manager, one clinical nurse specialist, onecommunity psychiatric nurse, one occupationaltherapist, one clinical psychologist, one session perweek from a psychiatrist and a team secretary.

FundingFunding was initially from the Mental Health ChallengeFund. It is now from the three PCTs covering NorthBirmingham. Plans to expand the COMPASSProgramme to a city-wide service are being discussed

as part of a city-wide dual diagnosis strategy. Theannual budget is currently £233,000 per annum.

Service user and carer involvementService users were consulted during the developmentof the C-BIT training and accompanying manual. Thiswas also an opportunity for service users and theteams working with them to build engagement in adifferent context.

Ethical approval is being sought to formally assess theviews of service users, carers and staff on currenttreatment approaches and the ongoing developmentof our services.

Partnership workingIn addition to users and practitioners in mental healthand substance misuse services, the service works withhousing, employment and training providers and localuniversities.

Key outcomes■ The achievement of an integrated treatment approach

within assertive outreach, early intervention servicesand the homeless mental health team

■ Ongoing improvement in confidence and skills ofstaff to work with service users with combinedproblems

■ Enhanced assessment skills have resulted inclinicians being more able to develop formulationsand individualised treatment plans with service users

■ Successful engagement and retention of serviceusers in treatment

5

5 The COMPASS Programme takes a shared care integrated approach and has developed a model of Cognitive Behavioural Integrated Treatment (C-BIT),which was evaluated through a treatment trial in five of the Trust’s assertive outreach teams.

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■ Comprehensive training package in place for staffbased on a researched and evaluated model ofintervention (C-BIT)

■ Ongoing development of evidence basedinterventions through the COMPASS Programmeresearch committee.

Key good practice points■ Ensure that the Trust supports the development of

the service and has a clear dual diagnosis strategy.■ Identify a local definition of dual diagnosis in

conjunction with partner agencies.■ Identify clear and realistic goals with service users

regarding what they want to achieve and take along term optimistic approach.

■ Form good relationships with the teams that theservice works with, and make sure that theyunderstand the service’s philosophy and rationale.

■ Identify care pathways and joint working protocolsbetween mental health and substance misuseservices, including alcohol services.

■ Develop a comprehensive training package basedon local need, and ensure there is a process in placeto follow up training and monitor the impact onservice users and staff.

■ Identify a process for the development of evidence-based interventions within the service.

Insights from the service■ Maintain a clear focus on the development of the

service and appreciate that initially you may not beable to meet the demands of all those involved butthat your service can develop over time.

■ It is important to discuss with service users thepossible positives about using drugs or alcohol andonce rapport has been established to discuss thenegative impact of drugs and alcohol.

■ Partnership working is vital to developing a clearcommon understanding of issues and opportunitiesand getting services to work closely with each other.

■ Undertaking direct clinical work enhances credibilitywhen providing training as trainers can refer to caseexamples and demonstrate the links between theoryand practice.

■ Enhance team skills and build confidence not justthrough training but with individual support anddevelopment of individuals.

■ If possible, train whole teams and also providetraining for new staff joining the team so that thereis consistency in approach.

■ Ensure that there is a process in place to follow upand assess whether training is leading to integratedtreatment.

Evaluation and monitoringThe service was founded on the results of aprevalence and training and support needs survey.This examined where there was greatest need withinthe region for a service for individuals with co-existingsevere mental health and substance use difficulties.The survey also looked at the staffing requirements tofulfil identified needs.

The COMPASS Programme continues to be a researchled service. Academic and medical professionals sit onthe COMPASS Programme research board, which

meets monthly to discuss ongoing development of theservice from a research perspective.

ContactDerek TobinTel: 0121 301 1590Email: [email protected]

12-13 Greenfield CrescentEdgbastonBirminghamB15 3AU

Resources to share■ Prevalence survey questionnaire■ Training and support needs questionnaire■ Published papers related to COMPASS Programme

work with some other useful references ■ Information regarding the development of an

integrated model within mental health services(C-BIT)

■ Information on running groups■ Visitors sessions offered on a regular basis for

clinicians, service managers, commissioners toattend regarding setting up a service and servicedelivery

■ Information regarding the COMPASS Programmesongoing research and development.

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5: The COMPASS Programme

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6: The Friday Group

34 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

This is a facilitated self-help group offering social/recreational activities, a shared meal and adiscussion group. It illustrates how service usersplay an active role in delivering the service andthe positive impact of providing social support.

Overall purposeThe Friday Group was established in May 2003 toaddress the unmet needs of service users with a dualdiagnosis in Redbridge, part of the North East LondonMental Health Trust (NELMHT). It was identified thatthis client group was difficult to engage and did notutilise traditional CMHT services. Hence their multiplehealth and social care needs were not beingadequately addressed.

Service summaryThe philosophy of the project team is that serviceusers are the experts in their own care and hold thekey to appropriate service responses. We thereforewent out and talked to disengaged service users intheir own environments to identify the kind of servicesthey wanted.

The Friday Group was developed as a result and setout to meet the needs identified. It has three maincomponents: social/recreational activities, a shared hotmeal and a discussion group. Cultural outings, guestspeakers and creative workshops are also held. Thereis a weekly planning meeting where members decidemeal choices, discussion topics, future events andchanges to the group structure. All members receive aweekly letter to inform them of the next week’s

activities and update them on events. Members arenot required to stop using substances or worktowards abstinence, however they commit to notusing prior to, or during, the group.

As well as the group activities we have had a widerange of external speakers at the request of groupmembers. These have included benefits advisors, debtcounsellors and vocational projects. We have regularear acupuncture taster sessions that have led to manygroup members accessing the drop-in acupuncturesessions at the drug and alcohol service.

The Friday Group operates an open access system.Group members are never discharged (unless theyexplicitly request it) and continue to receive weeklyupdate letters even if they do not attend for longperiods. Many members who have ‘moved on’subsequently return for brief periods in times of crisisto get back on track.

Although the Friday Group is a small service onlyoperating for two hours per week, members haveshown significant improvements in terms of serviceengagement, mental state, level of substance misuse,housing stability and social/vocational activities.Although the service has no formal systems in place tomeasure outcomes, it closely follows the progress ofboth our current and graduate members.

StaffingThe Friday Group is a joint project between CMHTsand substance misuse services. As such, groupfacilitators are able to provide information on a varietyof services in both areas and facilitate referrals. Groupmembers are also an information source for theirpeers. The Friday Group often acts as a gateway toother services, particularly for peer and self-referrals ofpeople who may be unfamiliar with local services andhow to access them.

FundingThe service was initially funded by a Queens NursingInstitute ‘Innovations and Creative Practice’ award of£6,000. Redbridge DAAT have provided the £4,000yearly running costs for 2006/2007. Staffing costs areborne by the CMHTs and drug and alcohol service.

Funding bids currently have to be submitted to theDAAT/NELMHT on a yearly basis. Funding has beenagreed by Redbridge DAAT for 2007/2008.

Service user and carer involvementGroup members’ opinions continue to shape localservice developments for service users with a dualdiagnosis. This not only includes the ongoing evolutionof the group but also local policy development. Forexample, group members reviewed and provided awritten response to the ‘Substance Misuse in AcuteInpatient Settings’ Policy Consultation and NELMHT’sdual diagnosis strategy. A focus group of Friday Groupmembers contributed to the development ofRedbridge DAAT’s dual diagnosis strategy.

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Although at present the service does not activelyaddress the needs of families/carers in all of itsactivities, members are continually involved in thedevelopment and future of the group.

There is a formal member evaluation every threemonths where feedback is sought via focus groupsand anonymous questionnaires.

Partnership workingThe Friday Group started as a small pilot in one CMHT.Following initial success, interest was shown by otherlocal providers to develop services following the samemodel. Instead of replicating work, the group suggestedthat if all agencies worked together, cross-teamcollaboration would enable the expansion of theFriday Group to a borough-wide service.

The Friday Group is now facilitated by the clinicalspecialist in dual diagnosis, a community mentalhealth nurse from one of the CMHTs and a nurse drugworker from Redbridge Drug and Alcohol Service. Thishas broadened our referral base, improved accessibilityand opened up channels of communication andreferral pathways between services. It has also provedto be cost and time efficient, as there is no unduepressure on any one service. Collaborative workinghas also meant that the group has never beencancelled in its four years of existence as facilitatorsare always available from at least one of the teams.

Key outcomesOver the year April 2005/2006, 39 people attended.Twenty one were referred by mental health services,three by drugs services and 15 were self/peer referrals.As the group is drop-in style, some members attendregularly and others utilise it on an ad hoc basis, oftenin times of need. A further 10 members receiveregular update letters because they have been pastattendees or have recently been referred.

■ Group members are better engaged with other localservices and consequently have made improvementsin their mental health and level of substance use.Where people’s chaotic lifestyles have impacted ontheir ability to access local services, we havebrought services to them by having sessions at theproject (eg housing, substance misuse services,psychological services, physical health monitoring).

■ There has been a significant fall in re-admission ratesfor regular group members, with some sustaining ayear or more out of hospital for the first time.

■ Several group members who had been deniedhousing due to past anti-social behaviour havedemonstrated such sustained change that they havebeen accepted for independent housing. Othershave been able to move from supported housing toindependent accommodation.

■ Three group members are currently hoping to returnto work and have accessed supported employmentopportunities. Another has been employed in avoluntary capacity at the resettlement project.

■ Involvement in the DAATs ‘treatment planning day’has also grown, with three attending in 2004, nine

in 2005 and 10 in 2006. Users’ views have helpedidentify treatment/service priorities for substancemisuse services.

Key good practice points■ The service was developed through outreach to, and

consultation with, users to ensure that it wasappropriate to their needs

■ By engaging with the group, members build up atrust in the ‘system’ and are more likely to accesshelp elsewhere, particularly if other services areadvocated by their peers

■ Group members are always given feedback onservice development initiatives they are involved inso that they can see the value of their participation

■ Treatment needs to be long-term and focused, andservices should be able to tolerate and continue towork with poor attendance and clients who do notcomply with their medication

■ Providing a service around service users’ explicitlystated needs gives them a reason to want toengage with services.

Insights from the service■ It is important that time is spent on engaging with

service users with a dual diagnosis before treatmentplans are made

■ As the service evolves around their changing needsit gives service users a reason to remain engaged

■ People are far more likely to respond to a personalrather than professional recommendation

■ Peer support from group members who are in thelater stages of recovery and who can give real life

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36 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

examples of their own experiences is very useful■ A high level of peer referrals suggests that the

project meets the needs of the local dual diagnosispopulation.

Evaluation and monitoringGroup members were involved in a piece of qualitativeresearch about engagement issues for people with adual diagnosis, with separate focus groups held forservice users, inpatient staff and community staff. Theresults are being used to inform service developmentand staff training initiatives.

Their involvement in a qualitative research project hasalso helped shape the scope of the clinical specialist indual diagnosis.

ContactMog HeraghtyClinical Specialist, Dual DiagnosisTel: 0844 600 1180Email: [email protected]

Redbridge Drug and Alcohol ServiceIlford Chambers11 Chapel Rd IlfordEssexIG1 2DR

Resources to share■ Qualitative research report■ Yearly service report 2004/2005.

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7: Turning Point Support Link

Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs 37

This is an outreach project providing support forpeople with a dual diagnosis living in thecommunity. It illustrates how close partnershipworking enables the service to take a holisticapproach to address a wide range of needs andalso the value of building trust before addressingmental health and substance use issues.

Overall purposeTurning Point Support Link provides intensivecommunity support to people who are experiencingmental health and substance use difficulties and whomay also have a history of offending behaviour.

A key part of the philosophy is to build trust and respectby focusing on issues which service users feel areimportant to them before going on to address some ofthe deeper issues associated with their mental healthand substance use. The aim is for service users to gainconfidence, increase their independence, improvetheir quality of life and reduce hospital re-admissions.

Service summaryBased in West Hertfordshire, the service offerscommunity outreach to some 55 people at any onetime. In addition to mental health and substance useproblems, some service users may have additionalissues such as personality disorders, eating disorders,self-harming behaviour and a forensic history. Staffwork closely with service users and other agencies todevelop individually tailored support plans. The workis underpinned by solution focused therapy whichconcentrates on a person’s strengths.

Services offered include:■ Practical support, such as securing and keeping

tenancies, assistance with benefits and budgeting,and accessing health care.

■ Long-term emotional support.■ An out of hours telephone service which provides a

safety net when other services are closed.■ Advocacy – supporting service users to express their

needs and views. This can cover a wide range ofactivities including support in CPA meetings, courthearings, contacting utility companies, acting as‘appropriate adults’ if service users are arrested andhelp in obtaining specialist legal advice.

■ Supporting service users to link into communityservices; eg education, volunteering, sport andleisure, and signposting to other services.

■ Supporting development of social and life skills. ■ Computer skills training and work experience,

through an IT suite and an online shop selling cardsand gifts made by service users.

■ Various groups including: a women’s group, men’sgroup, art group and housing support group.

All referrals come from the local CMHTs. The caseloadvaries between 6 and 12 depending on the supportneeded. The service can provide one to three hours ofsupport per service user each week for as long theycontinue to have identified needs.

StaffingThe service comprises a service manager, team leaderand six project workers. Each service user has onemain worker, but all service users meet other staff

members to ensure continuity during periods of leaveor absence.

Staff may come from a variety of professionalbackgrounds and have experience of working withpeople who have a dual diagnosis. They also have agood understanding of services in the community.

There is regular supervision and training for all staff inmental health, solution-focused approaches, dualdiagnosis, personality disorder, self-harm andpreventing suicide.

FundingThe service is funded through Hertfordshire’s JointCommissioning Team.

Service user and carer involvementOngoing service user feedback is gained throughreviewing and evaluating their support plans. For theservice as a whole, regular service user events andfeedback questionnaires are used. Service users havealso been involved in fundraising for trips andactivities as these are not core funded.

The service aims to work in a holistic way, involvingfamily and friends as appropriate. Project workers havecontact with family members and friends during homevisits or by telephone calls. Whilst staff do not providedirect support or break confidentiality, they will giveadvice and signposting to other relevant services.

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38 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

Partnership workingClose inter-agency working and referral routes with awhole variety of other services and professionals isvital to the project’s success.

Key outcomes■ Sustained changes in behaviour such as fewer

incidences of self-harm■ Reduced hospital admissions■ Increased confidence and self-esteem amongst

service users■ Greater willingness to engage with other relevant

services■ Interest in self-development through interaction

with mainstream community activities.

Key good practice points■ Ability to provide a holistic service that works with a

wide range of complex needs. ■ Engagement comes first by building a positive,

trusting relationship with the service user beforemeaningful work can be done around their mentalhealth or substance use.

■ Adopting a long-term perspective, recognising thatindividuals may need to work on many areas oftheir life before they are stable enough to reduce/stop their substance use.

■ Maintain clear and consistent boundaries, especiallywhen working with service users with a personalitydisorder.

■ Staff should have a good knowledge of localservices and agencies and build links with them.

■ Transparent risk assessment and risk management.

■ Focus on supporting service users to engage withexisting services ie mainstreaming dual diagnosis.

■ Recruitment and retention of good quality staff. Aswell as training, this involves developinginterpersonal skills which promote engagement; egbeing non-judgmental, flexible, calm in crises,consistent and positive.

Insights from the service■ Service users’ mental health difficulties and their

drug/alcohol use is just part of a much biggerpicture and may not be their most pressing priority.

■ People with a dual diagnosis are often very chaoticand simple things like arriving at an appointment ontime can be difficult to achieve. Offering a trustedperson to accompany them can make it much easierfor them to engage with a new service.

■ Honesty, consistency and good communication withthe service user about what you can, and can’t,offer is important, as is honesty about sharinginformation with other services.

Evaluation and monitoringThe service conducts an annual service review.Support plans are reviewed every three months byservice users and staff. There is outcome monitoringof: engagement rates, hospital admissions, number ofcontacts, number of phone calls to professionals andnumber of appointments that we support serviceusers to attend. Service user and referrerquestionnaires are completed annually.

ContactClare BuckmasterService ManagerTel: 01442 262573Email: [email protected] Web: www.hertsmh-turning-point.co.uk

Turning Point Support LinkCharter CourtMidland RdHemel HempsteadHertsHP2 5GF

Resources to share■ The service’s annual report■ Anglia Polytechnic University (now Anglia Ruskin

University) evaluation by Prof. Shulamit Ramon2003.

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Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs 39

This project provides support for lesbian, gay,bisexual and transgender (LGBT) people who areconcerned about their drug/alcohol use andmental health. It illustrates how a specialist LGBTservice can help people to engage withmainstream services. Satellite services in CMHTshave also improved access and engagement andpromoted greater awareness of the needs ofLGBT service users.

Overall purpose The Amber Project provides information, assessmentand individual and group therapy to LGBT people withmultiple needs or a dual diagnosis.

Service summaryThe Amber Project is a partnership project run byCASA (a charity that provides support for people withdrug and alcohol problems and multiple needs) andPACE (which provides mental health and well-beingservices to LGBT communities).

The service is an extension of a multiple needs/dualdiagnosis service run by CASA. The joint project wasdeveloped from a six month pilot of a support groupfor gay men with a dual diagnosis. This workuncovered high levels of demand from service usersacross London.

The project offers a counselling service for LGBTpeople who fall outside the remit of many statutoryand voluntary services in the area because of theirmultiple needs, or who are reluctant to engage with

mainstream services because of perceivedhomophobia or heterosexism. The majority of serviceusers (87% in the first year of the service) have beensexually or physically abused as children.

The aim is to support users to become more aware oftheir psychological, emotional and interpersonaldifficulties and reduce, control or stabilise theirsubstance use. Users are offered a choice of short,medium or long-term therapy so that there is arealistic time frame to explore complex issues.

Therapists take a holistic approach, focusing on theperson and their relationships rather than theirdiagnosis or their substance misuse issues. Serviceusers are encouraged to define their own needs andgoals. This non-directive approach enables workers toremain open to the full range of issues in anindividual’s life and empowers service users to makedecisions for themselves. Substance use is not seen asan obstacle to therapeutic engagement but as part ofthe way in which the service user relates to the world,self and others. In addition to personal therapy, groupwork is used to explore difficulties in interpersonalrelationships and to enable users to gain support fromother people with similar life experiences.

The service supports access to a range of LGBT-friendlysupport services and, where appropriate and withconsent, workers are able to share information. Serviceusers are also supported to access other mainstreamhealth and social services including housing, advocacysupport and relapse prevention groups.

A feature of the service is that it helps the ‘significantothers’ of service users to access services both forthemselves and to enable them to support the care ofthe primary service user. Carers may also attend a‘family, partners and friends’ service.

Service users self-refer or are referred by third parties.The service is promoted through liaison with mentalhealth, drug and alcohol and LGBT services, and BMEforums. Leaflets have also been distributed in lesbianand gay bars in central London to enable access tothose who may have had no previous access to services.

StaffingTwo part-time staff. Both are qualified psychotherapistswith experience of working with people with longterm mental health difficulties. Both positively identifyas lesbians.

Higher staffing levels could provide a wider range ofservice options eg drop-ins or relapse prevention groups.

FundingSection 64 DH grant (£39,395 per annum for threeyears).

Service user and carer involvementThe service was set up in response to the identifiedneeds of gay men with a dual diagnosis. Feedback isobtained from user evaluations of the service. Effortsare made to enable significant others, carers andfamily to obtain their own support and to support theneeds of the primary service user.

8: The Amber Project

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40 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

Partnership workingThe primary partnership is between PACE and CASA.In addition, CMHTs have set up satellite clinics whichprovide easier access to service users who find itdifficult to travel. This has promoted more integratedworking and better understanding betweenprofessionals. It has also raised the profile of theAmber Project and highlighted the needs of LGBTservice users and difficulties they face in settings suchas residential detoxification units and psychiatric wards.

Key outcomes■ Service user evaluations from the first year of the

service indicate that two thirds of service users hadreduced their substance use. Two thirds stronglyagreed that the service had helped with theirmental health issues.

■ Useful working relationships have been establishedwith a range of services. Service users from acrossLondon are being referred, or are referringthemselves, and engaging with the service.

■ Service demand has been high with waiting times ofup to two months. However this has not resulted indrop-outs, service users seem prepared to wait.

■ This supposedly difficult-to-engage group haveattended sessions regularly and the majority continueto attend for the full length of their contract.

■ Service users move on to use other services fromwhich they continue accessing support; egrehabilitation, self-help, life-coaching or privatetherapy.

■ Awareness of LGBT issues in mental health anddrug and alcohol services has been raised.

Key good practice points■ A LGBT-specific service enables service users to be

open about their sexuality and life experiences.■ Substance use and mental health symptoms are

viewed as matters to be understood not simplymanaged.

■ Allowing service users to define their own goals fortherapy enables them to access services without firsthaving to commit to cutting down or giving up theirdrug use.

■ Giving service users the chance to work with lesbianor gay therapists removes a barrier to working,especially when sexual identity or lifestyle is anissue. However, it is important not to assume thatthe service users’ sexuality is an issue or that theywill be more comfortable with a therapist whoidentifies as LGBT.

■ Offering the service at different locations facilitatesaccess and promotes continuing engagement.

■ Where service users are already engaged with otheragencies but additionally choose to engage with aspecialised LGBT or multiple needs service, wenegotiate confidentiality limits, clinical responsibilityand key working so that complementary and safeintegrated working can take place.

■ Outreach and educational visits to other serviceproviders enhances understanding of the serviceand the advantages of targeted services. It may alsoraise awareness of the difficulties faced by LGBTpeople with complex needs when seeking support.

Insights from the service■ Service users have highlighted their reluctance to

approach generic services or to talk openly in thoseservices. In order to deal with a drug problem,clients need to speak openly about life experiencesand personal issues. This might be difficult for anLGBT person in a generic setting.

■ Service users emphasised the perceived safety ofworking within a project that specifically targets LGBTpeople. They reported that they were able to talk tocounsellors at The Amber Project about things theyhad not been able to talk about elsewhere.

■ Service users are not just helped to manage theirsubstance use or mental health difficulties but areinvited to explore the context and meaning of thesubstance use in their lives and the relationshipbetween substance misuse and emotional/mentalhealth.

■ Service users have been relieved to access a servicewhere they are not required to ‘sort out’ theirsubstance use issues before receiving psychotherapythat addresses their mental health issues andemotional distress.

■ Work with family, partners and friends.

Evaluation and monitoringAlcohol Concern’s ‘alcohol outcomes spider’, alreadyin use by the CASA team, was adopted as theevaluation tool. It is completed near the start of work,after every 12 sessions and at the end of a piece ofwork. Because the spider is designed for use byalcohol agencies, there are several areas ofdissatisfaction with it as measure of change for

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complex cases. It does not satisfactorily describesevere mental health issues or allow for sexualityissues to be considered. It does however provide someway of measuring change over time. It is most suitableto measuring changes in substance use.

User evaluation questionnaires are used to gatherqualitative feedback and service users are asked tocomplete an evaluation at the end of theirengagement. The combination of the spider and usersurvey creates a quantitative and qualitativeassessment of how effectively the service is addressingservice users’ needs and gives users an anonymousvoice for feedback.

The only negative feedback received by the service hasconcerned waiting times and quality of premises.

ContactBelinda Hollows / Deborah KilleenTel: 020 7428 5954Email: [email protected]: [email protected]

CASA75 Fortess RoadLondonNW5 1AG

Resources to share■ Alcohol Concern’s outcomes spider:

www.alcoholconcern.org.ukwww.pacehealth.org.uk

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42 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

This case study focuses on the development andimplementation of a residential dual diagnosisservice for African Caribbean men who have aforensic history, mental health problems andsubstance use issues.

Overall purposeThe African Caribbean Community Initiative (ACCI) isa community-based mental health charity providing arange of services for African Caribbean men andwomen in Wolverhampton who have severe andenduring mental health problems.

The Omari Housing Consortium provides housingservices for African-Caribbean men who have severeand enduring mental health problems and who havebeen detained under the Mental Health Act in prisonor in a long-stay secure or special hospital.

Service summaryThe consortium has a hostel, St Jude’s, for African-Caribbean men between the ages of 25 and 55 whohave complex needs, a forensic history, substance useissues and mental health problems. It is a six-bed unitincluding a shared kitchen, lounge and an activityroom. The staffing, structured and unstructuredactivities and the day-to-day running of the hostel areall provided by ACCI.

In addition to substance use and mental health needs,‘complex needs’ are defined as:

■ Erratic or irrational behaviour which can drawattention, cause a nuisance or be deemed antisocial

■ A range of low level, persistent offending typicallyassociated with trying to obtain money for illicitsubstances

■ An inability to effectively manage money andcontinuous problems of serious debt

■ A poor basic level of education with associated lackof motivation or unrealistic expectations about work

■ A propensity to form unhelpful or inappropriaterelationships which can lead to additional problemsand readmissions

■ Poor self-esteem and confidence and lack of socialcontact and peer support.

The primary aims of Omari are to provide:

■ Secure, safe and independent accommodation■ A service that supports the needs of the individual

and that responds flexibly to changing needs■ An environment that meets the cultural, spiritual

and emotional needs of tenants.

All tenants at St Jude’s have a structured rehabilitationprogramme to assist with harm reduction orabstinence from illicit substances. This consists of:

■ Day-to-day living skills, such as personal hygiene,basic room cleaning, communal cleaning rota,preparation and cooking of a meal

■ Advice on harm reduction■ Safe sex advice, including literature and free condoms■ Daily observation of medication■ Alternative therapies, such as a auricular acupuncture■ Talking therapy and group work■ Recreation activities that are available 24 hours a

day, seven days a week such as: a film night, use ofactivity room with pool table, table tennis, books,computer games and board games

■ An ‘appointeeship scheme’ where, as part of therehabilitation process and accommodation package,service users are helped to manage their finances

■ Life skills, such as debt management, shopping, andsupport with saving schemes

■ Input from a range of services (see below).

StaffingSt Jude’s is staffed 24 hours a day, seven days a weekby a mixture of male and female staff (14 in total).The team are specifically trained in black mentalhealth issues and generic drug use and are aware ofthe importance of providing a service that is culturallyappropriate.

FundingSt Jude’s is funded through the PCT and WolverhamptonCity Council under its Supporting People initiative.

Service user and carer involvementService users are elected as members of managementcommittee.

9: St Jude’s Hostel, part of The African CaribbeanCommunity Initiative (ACCI) and Omari Housing Consortium

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Partnership workingServices were developed in partnership withWolverhampton City Council, local housingassociations and Wolverhampton PCT. Work withother professionals includes the local psychiatrichospital, addictions services, community and forensicpsychiatric nurses, probation, the police andvulnerable adults team.

Key outcomes■ Individuals are kept out of the criminal justice

system■ Greater rehabilitation into the community■ Greater engagement with statutory services and

agencies■ Individuals are enabled to move to supported

independent living■ Increased skill levels■ Enhanced employment opportunities■ Improved engagement with family/carer(s).

Key good practice points■ The model works towards a phased progression to

shared, semi-independent and then independentliving

■ There is an ‘open office’ ethos in which service userscan easily talk to staff (each tenant is allocated amember of staff throughout their time as a tenant)

■ The staff team speak a number of languages anddialects which enables service users to communicateusing their mother tongue.

Insights from the service■ Statutory services often do not recognise the

importance of having a service that is specificallytailored for African-Caribbean people with a dualdiagnosis

■ Service users can be seen as ‘trouble makers’ andtheir real issues are not recognised

■ There is a tendency to medicalise the problems ofthis client group and to fail to offer talkingtherapies.

Evaluation and monitoring■ Support plans are reviewed every two months in

conjunction with service users■ Annual service user survey■ Monthly tenants meeting

ContactAlicia SpenceService ManagerTel: 01902 571231

African Caribbean Community Initiative217 Waterloo TerraceNewhampton Road EastWhitmore ReansWolverhamptonWV1 4BA

Resources to share■ Annual report.

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9: St Jude’s Hostel, part of The African Caribbean Community Initiative (ACCI) and Omari Housing Consortium

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44 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

This case study illustrates how an inner-city acutemental health ward addressed the problem ofillicit substance use. It shows how it is possible tocombine controlling measures with collaborativeengagement and to bring about significantculture change for both staff and service users.

Overall purposeA policy was developed to promote safermanagement of substance use (drugs and alcohol)within inpatient mental health settings.

Service summaryGrafton Ward is an acute mental health ward servingCentral Manchester. Substance use on the ward wasidentified as a major factor contributing to high levelsof tension, mental distress and an increased numberof incidents. A robust solution to tackle the problemwas required.

Initially, staff had concerns that the proposed strategyof zero tolerance for illicit drugs could not becombined with the prevailing culture of empathy,collaboration and ‘rolling with resistance’. However, inpractice, staff found that it was possible to deliver atwo-pronged message. On the one hand zerotolerance was a legal matter to which they could notturn a blind eye. On the other hand, staff couldcontinue to engage patients in therapeutic discussionsabout cutting down or stopping substance use.

The project was delivered in two stages.

■ The development and implementation of asubstance misuse policy to facilitate best practicewithin acute care settings. This was designed to helpstaff prevent substance use on wards and implementapproaches to promote the wellbeing of patients,staff and carers when substance use does occur.

■ A detailed action plan was devised.

StaffingMulti-disciplinary team of nursing, medical andoccupational therapy staff. Use of agency or bankstaff was kept to a minimum.

FundingNHS statutory service.

Service user and carer involvementThe patient liaison service was involved in developingthe substance misuse policy.

Partnership workingWard staff worked with the Greater Manchester Policeand Central Manchester Acute Trust security team.

Key outcomesSuccess was achieved in:■ Reducing use of non-prescribed substances ■ Reducing incidents related to drug use ■ Reducing bullying and harassment between service

users ■ Reducing acuity and promoting a calmer ward

atmosphere ■ Preventing self-harm in vulnerable service users ■ Improved safety for patients and staff ■ Increased patient involvement in ward activities ■ Increased referrals to, and liaison with, alcohol and

drugs services■ Changing the culture to become more open and

encouraging sharing of opinions about non-prescribed drugs between staff and patients.

Key good practice points■ Be honest about reasons for searches and

restrictions. This results in criticisms of staff bypatients being less personal.

■ Offer drug treatment options; eg detoxification,craving management or replacement activities.

■ Explain your drugs policy to service users and talk tothem about their use of non-prescribed substances.Be consistent in giving your messages.

■ Develop a multi-agency approach to tackle the issuesof non-prescribed substance use. This should involvenurses, management, specialist practitioners, medicalstaff, drugs services, hospital security and police.

■ Assertively engage patients in ward-based activities.■ Arrange group support and supervision for frontline

staff to review progress, to troubleshoot and tocoach staff in new approaches and joint workingwith drug and alcohol services.

■ Identify all service users involved in using non-prescribed substance use on the ward.

■ Provide every service user with a copy of the drugspolicy information leaflet.

10: Grafton Ward, Manchester Mental Healthand Social Care Trust

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Insights from the service■ Clear boundaries were established and service users

not detained under the Mental Health Act wererefused entry onto the ward if not agreeable tosearches. Detained service users were refused time outif they would not agree to being searched on return.

■ Bedrooms were searched in line with the substancemisuse policy if the presence of non-prescribedsubstances was suspected.

■ Police and sniffer dogs searched the main wardareas for non-prescribed substances.

■ Having substance misuse staff to consult with,or gain advice from, was useful. It boosted staffconfidence and sense of control.

■ Develop the ward dual diagnosis link worker roleto support staff in using psychological approachesregarding non-prescribed substance use6.

Evaluation and monitoringStaff and service user questionnaires indicated thatstaff morale had improved and service users becamemore involved in social activities and conversations.Overall there was a more positive atmosphere on theward with reduced tension.

ContactAnn McKevittWard ManagerTel: 0161 276 5447

Grafton WardEdale HouseManchester Royal InfirmaryOxford RoadManchester M13 9WL

Mark HollandConsultant Nurse, Manchester Mental Health and Social Care TrustTel: 0161 720 2005

Resources to share■ Dual diagnosis toolbox (A draft manual of

assessments and treatment approaches validated insubstance misuse/mental health/dual diagnosis)

■ The Trust’s substance misuse in inpatient psychiatricsettings policy.

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10: Grafton Ward, Manchester Mental Health and Social Care Trust

6 The dual diagnosis link worker programme allows staff with an interest in dual diagnosis to undertake additional training to resource their ward or unit. They link in with other link workers across the full range of substance misuse and mental health providers, thus promoting greater internal capability whilst improving joint working and appropriate referral practice.

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46 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

This case study looks at how dual diagnosis isbeing tackled in a high security setting, focusingparticularly on the substance misuse treatmentprogramme. It highlights the importance oflooking at the relationships between people’ssubstance use, mental health issues andoffending behaviour in an integrated way.

Overall purposeThe team provides a variety of substance misuseinterventions to several different forensic populationsbased within the high secure services of NottinghamshireHealthcare NHS Trust. While some of these directorateshave catchment areas covering a large part of the eastof England, two are national services and take patientsfrom all over England. The aims of the programme are:

■ To encourage patients to explore and understandthe relationships between their mental disorder,substance use and offending behaviours

■ To enable patients to develop the knowledge,motivation and personal skills to manage theirmental disorder and substance use problems in amore positive and appropriate manner

■ To reduce the overall level of risk patients maypresent to themselves or others by managing theirmental health and substance misuse problems moreeffectively when in the community.

Service summaryThe Rampton Hospital Substance Misuse Treatmentprogramme is a six-module treatment interventioncomprising 63 individual sessions which has been

running for seven years.

In contrast to many other substance use interventions(which specifically focus on substance use as a stand-alone problem), this programme aims to relatesubstance use, mental health issues and offendingbehaviour as a set of integrated difficulties. The materialhas been developed with mentally disorderedoffenders as the prime treatment population, althoughthe components could be used with non-offenderpopulations. The programme has also been used withinthe personality disorder directorates at the hospital anda shortened version is used within two medium secureservices in the Trust. A separate programme for womenand patients with a learning disability is in development.

StaffingAt Rampton the programme is delivered on a weeklybasis over a 15-month period. Each session lasts abouttwo hours and is delivered to a group ofapproximately eight patients. Three staff usuallyfacilitate each group. This minimises disruption to theprogramme due to annual leave or staff sickness.

FundingThe Home Office and Nottingham PCT commissionthe service for other PCTs nationally. All treatment isprovided from the existing budgets for each directorate.

Service user and carer involvementBecause of the nature of the service and the type ofprogramme, the opportunity for service users and carerinvolvement is limited. However, patients participate in

end-of-programme evaluations and the local patientadvocacy group has facilitated an anonymised evaluationof the therapists’ facilitation skills and abilities.

Partnership workingThere are close working links in substance misusetreatment between the high secure and the mediumsecure services within the Trust. The nurse consultantand nurse practitioners within the team act as a point ofcontact for other regional medium secure services. Thisis useful in ensuring continuity of care for individualsmoving from the high secure services to these units.

Key outcomes■ About 170 patients have completed the programme

since it started in 1999. ■ Patients develop a more comprehensive understanding

of the complex relationships that exist between theirmental health, substance use and offending behaviour.Psychometric tools and a case formulation approachare used to evaluate this process.

■ Patients feel empowered to work on their problemsin a positive way.

■ Individuals feel they can make an informed choiceregarding any future use of substances.

■ Each individual develops a comprehensive relapsestrategy to help them maintain their chosentreatment goals.

Key good practice points■ The substance misuse treatment programme was

developed following an extensive literature review andintegrates the epidemiological evidence with evidence-

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based treatment approaches relating to substance use,offending behaviour, and mental disorders.

■ Facilitators focus on the three areas of mentalhealth, substance use and offending as an inter-related and complex set of problems.

■ Facilitators are aware that the treatment needs of eachgroup and the individuals working within it differ. Theyare also conscious of the underlying pathology thatdiffering mentally disordered individuals bring to thegroup and how this is managed.

■ Facilitators have a good understanding of mentaldisorder and substance misuse, which gives themcredibility with their audience. This is especiallyimportant when working with individuals with apersonality disorder.

■ Facilitators are given protected time to enable themto take on a defined therapist role when deliveringtreatment. This is essential, especially for ward-based nurses who frequently encounter role-conflictissues between security and treatment.

■ Facilitators come from a range of professionalbackgrounds.

■ The appointment of a dedicated lead practitionermeant that there was sufficient time, resources, andfunding to establish the service. Maintaining theservice requires long term commitment andinvestment.

Insights from the service■ While links with community drug and alcohol

services are useful, they often fail to understand thecomplex treatment requirements of forensic patients.

■ Staff should receive specific training to deliver the

programme. This includes being sensitive to theneeds of patients, issues related to the patient’sgender, the various patterns and choice ofsubstance used, and their life experiences, such asviolence, trauma and abuse issues.

■ Many senior nurses need to be convinced of thenecessity for treatment. They have cost concernsand are often overloaded with more day-to-dayissues. It is imperative to get them signed up to thevalue of delivering substance misuse treatment atan early stage.

■ Substance misuse can be seen as a peripheral areaand is vulnerable to cost cutting.

■ Clinical services need to own the problem (ie viewsubstance use as a treatment priority).

■ Motivational approaches within a group context arevery powerful.

■ Keep any presentation simple but not patronising. ■ Substance use is a major indicator of risk in forensic

populations. It is also the best predictor of relapse.Being abstinent while in care does not mean thatthe problem has been addressed.

■ Short term interventions do not work with forensicpopulations.

■ Be aware of your own individual limitations.

Evaluation and monitoringCompletion rates are high at over 90%. Patientsevaluate the programme very positively. They reportthat it empowers them to make informed choicesabout their future drug and alcohol use.

Since 2002, a project group of clinicians and

academics from sites across England has been tryingto develop a multi-site evaluation of the programme.The aim is to evaluate the programme across severalforensic services from high security to communityoutreach teams. To date, funding bids have beenunsuccessful. However, we remain optimistic for thefuture and hope to make further bids.

ContactGlen ThomasNurse Consultant, Mental Disorder and Substance UseTel: 01777 247365Email: [email protected]

Rampton HospitalNottinghamshire Healthcare NHS TrustRetfordNotts DN22 OPD

Resources to shareThe programme is presently being revised but it willbe available for other forensic services to purchase inthe near future. The programme will only be availableas part of a wider package which includes a trainingand supervision element. We feel this is essential as itis important that the integrity of the programme ismaintained.

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48 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

The Lewisham Dual Diagnosis Service provides a‘virtual team’ of trained specialist dual diagnosispractitioners. These are based in mental healthand substance misuse teams in a variety ofsettings including community, inpatient andassertive outreach services. The aim is to providean integrated service to clients and to developskills within the services.

The case study also illustrates some of thechallenges of working with service users. Wherethere are separate user forums in substancemisuse and mental health, it may be necessary tobuild links to enable engagement with peoplewith a dual diagnosis.

Overall purposeTo promote an integrated model of care in whichpeople with mental health and substance useproblems have both issues addressed concurrently, inone setting, by one team.

Service summaryDual diagnosis practitioners are based within theSouth London and Maudsley NHS Foundation Trust’sservices (community drug and alcohol, psychiatricinpatient, community mental health and assertiveoutreach) and form a ‘virtual team’.

The team’s main focus is training, practice developmentand supervision. Practitioners also undertake some directclinical work, support dual diagnosis work in partneragencies and facilitate care pathways between services.

Core training is the five day pan-London dual diagnosiscourse. Follow-up learning events are provided everythree months. Learners are also encouraged to spendtime in other services to enhance their skills andunderstanding of wider care provision.

Other training includes:

■ Mental health for substance misuse services ■ Substance use and risk ■ Input to local GP learning sets ■ Additional one-off training as required and as

resources permit.

Clinical inputs include:

■ Supporting staff to put training into practice; egjoint assessments and follow up work

■ Short term management of service users who havetraditionally fallen between services and ‘handholding’ their referral to other services

■ Providing formal and informal supervision to staffmembers and groups

■ Helping service users to access a range of services inthe borough.

StaffingThere are eight posts: a team leader and six dualdiagnosis practitioners. All have capabilities at levelthree in the ‘dual diagnosis capability framework’identified in Closing the Gap (DH, 2006). Theaddictions consultant psychiatrist provides one sessionof consultation per month to the team. The consultant

nurse for dual diagnosis provides a weekly consultationsession and monthly supervision for the team manager.

FundingFunding is primarily from the Drug and AlcoholStrategy Team (DAAST) and PCT pooled treatmentbudget (five posts). The assertive outreach posts (three)are funded 50:50 by the DAAST/PCT and the assertiveoutreach mental health budget. The mental healthbudget funds 20% of the consultant nurse post.

Service user and carer involvementDual diagnosis service user initiatives have existed forover two years. Initially a dual diagnosis specificservice user group was set up. Members were involvedin: development of the dual diagnosis strategy;providing a consultation forum for proposed servicedevelopments and policy initiatives, staff interviewsand induction; running stalls at local stakeholderevents and delivering presentations.

For a variety of reasons, this group then broke down.A key factor was that there are separate user forumswithin substance use and mental health. Efforts arenow being made to co-ordinate user input into dualdiagnosis.

A local carers group is consulted about the dualdiagnosis strategy and policy development. Aworkshop for the mental health carers’ forum isplanned for 2007. This will provide information aboutthe service, explore agencies that can support carersand discuss what future input the service can provide.

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Partnership workingThe team have developed good working relationshipswith a wide range of local services and groups.Collaborative projects include:

■ Running sessions in two of the voluntary sectorsubstance use services to support their staff in workingwith people who have mental health problems

■ Regular input to the drug intervention programme(DIP) team, such as delivering training on mentalhealth issues and developing the team’s riskassessment tool

■ Regular meetings with primary care mental healthand substance misuse leads to promote awarenessof dual diagnosis issues

■ Plans to run a group for cannabis users: participantsinclude representatives from the dual diagnosis team,early intervention service and the community drugproject (voluntary sector substance misuse service).

Key outcomes■ Since April 2004, 124 people have received the five

day pan-London training.■ 36 substance misuse staff have received mental

health training.■ In the period between April 2006 – April 2007, the

total number of referrals was 264.■ All clients taken on by the team are assessed on the

clinician’s drug use scale and/or the clinicians’alcohol use scale at the initial point of contact andwhen referred on. Data suggests that improvementsare made over this period. The service is currentlyreviewing the use of assessment tools.

Key good practice points■ A model for developing local dual diagnosis practice

is in place and is reviewed regularly by the team■ Dual diagnosis practitioners are supported to maintain

their substance misuse capabilities as they are only ofvalue to mental health services if these are up to date

■ In order to enhance skills and promote retention,practitioners have the opportunity to exchange roleswithin the team; eg from assertive outreach toinpatient

■ The team attended a bespoke consultancy skillscourse to enhance their consultancy and changemanagement skills

■ It is important to have dual diagnosis practitioners inboth inpatient and community services to promotecontinuity of care across sectors.

Insights from the service■ Consult widely to promote engagement and

ownership among a range of stakeholders.■ While joint work with colleagues is an ideal it can

be difficult to achieve. It is important to negotiate atthe outset about what is realistic and sufficient toachieve learning and good care.

■ It is a challenge to balance responding to need withbeing realistic about what you can achieve with theavailable resources. Spreading resources too thinlycan result in limited gains and in staff becomingburnt out.

■ It is important that dual diagnosis practitioners’direct clinical work is time limited so that case loadsdon’t become ‘clogged up’. Service users can bereferred back to dual diagnosis practitioners for

further input at a later time.■ Although having practitioners embedded within

local services is essential to promote integrated care,these people can feel isolated. Good support andsupervision is essential.

■ It is important to have practice development andsupervision as well as training.

■ Nurse consultants played an important leadershipand consultancy role in developing strategy andpractice.

■ Measuring outcomes in a robust manner is asignificant challenge.

■ Engaging team managers/leaders and consultantpsychiatrists is crucial. Devoting time and energy tothis is important.

■ Keep positive, be resilient – changes do happen! ■ Regularly review what you are doing and change it

when necessary.

Evaluation and monitoring■ Data from a survey of staff perceptions of the

service suggested that staff have a goodunderstanding of the role of the dual diagnosispractitioners, found them accessible andapproachable, found the five day training helpfuland rated joint work as very helpful.

■ Evaluations of the five day training consistently rateit as well delivered, the content is perceived asextremely relevant and staff feel able to incorporatethe dual diagnosis interventions into their practice.

■ Monthly reports on service user work are submittedthrough the National Drug Treatment MonitoringSystem data entry tool (NDTMS).

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50 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

■ Activity other than client contact is also monitored.This includes: number of training days/sessionsdelivered, individual and group supervision sessionsprovided, joint sessions conducted and inputprovided to clinical meetings.

■ Data summaries are fed back to commissioners in aquarterly monitoring meeting.

■ Audit and evaluation of dual diagnosisdevelopments on one inpatient ward took place in2006 as part of the London Development CentreAcute Care Collaborative.

■ A retrospective audit of alcohol detoxification isbeing carried out on the acute psychiatricadmissions ward.

ContactNeil Robertson Team ManagerTel: 0203 228 1050Email: [email protected]

Central Clinic410 Lewisham High StreetLondon SE13 6LL

Resources to share■ Lewisham dual diagnosis strategy. ■ Data collection tool.■ Staff questionnaire.■ Requests for consultancy skills training can be made

to SLAM partners www.unlockingideas.co.uk.

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As in case study 12, the Westminster DualDiagnosis Project showcases a ‘virtual team’ inwhich dual diagnosis workers are placed withinmental health teams. The project is specificallydesigned to facilitate ‘mainstreaming’.

The project highlights the contribution thatdedicated dual diagnosis workers can make toimproving understanding and shared processesbetween mental health and substance misuseservices. It also looks at some of the difficultiesaround achieving cultural change and engagingservice users.

Overall purposeThis service aims to promote the management ofpeople with a dual diagnosis within adult mentalhealth services in Westminster, in line with themainstreaming message of the Dual Diagnosis GoodPractice Guide (DH, 2002).

The dual diagnosis service operates as a ‘virtual team’,in which dual diagnosis workers are placed in differentCMHTs but meet together, and are managed, as ateam. This is to ensure consistency in care delivery,strategic planning and borough wide training, auditand research.

Service summaryThe role of team members is to: deliver direct clinicalinput, work towards implementation of the Trust andWestminster dual diagnosis strategy, audit the service,teach and conduct research.

Direct clinical work with service users includesundertaking joint assessments (using a modellingapproach) and time-limited treatment with individualswhose care is co-ordinated by other members of theCMHT. This work may address:

■ Drug/alcohol use ■ Harm minimisation/health promotion ■ Motivational interviewing/assessment of readiness

to change ■ Detoxification and rehabilitation ■ Relapse prevention.

In line with the mainstreaming approach, all directclinical work is undertaken jointly with the care co-ordinator. Input is available to any service user whosecare is managed by the CMHT and who wants toaddress any aspect of their drug and/or alcohol use.Advice is provided on onward referral for patientswith a substance use problem who are notappropriate for CMHTs.

Consultation and one-off assessments are offered toother parts of the adult mental health services(inpatient units, crisis resolution teams, earlyintervention service and the joint homelessness team).

The City of Westminster is a central London borough.Of the adult population, 73% is of white ethnicorigin, 9% Asian and 7% black. The under-19population is particularly diverse with white Britishresidents comprising only 37% of this group.

StaffingThe team consists of three specialist worker/nurseposts and one clinical lead. All have mental health andsubstance misuse experience. Each team membercovers two CMHTs ensuring equity of service provisionto both.

Strategic service development and consistency ofapproach is managed by the clinical lead.

FundingTwo posts are funded from the DAAT and two fromthe LIT. The LIT posts are permanent. The DAAT postsare secured for the next two years when they will bereviewed in line with all DAAT expenditure.

Service user and carer involvementIn early 2006 a user forum involving service users,advocacy groups, carers, members of the public andprofessionals was set up. This had a far-reaching remitincluding: developing links with other user forums;developing partnerships with the Patient Liaison service;auditing, evaluating and disseminating good practice;providing training; and supporting user involvement.

However, due to poor uptake, this model is beingrevisited and a two-tier approach to user involvementis being piloted with the following components:

A dual diagnosis service user community group isbeing set up with the aim of engaging peoplethrough acupuncture, drug and alcohol awarenessactivities, and drop in facilities.

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52 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

Representation from the established mental healthservice user groups is being sought on the dualdiagnosis operational group.

We are also approaching the carers of service users fora representative at the operational group. In thefuture we plan to run a relapse preventionprogramme in the inpatient units which will beavailable to staff, service users and carers alike.

Partnership workingThe service works with a number of agenciesincluding:

■ Substance misuse services. Drug and alcohol, bothstatutory and voluntary

■ Substance misuse social services care managementteam

■ Inpatient mental health units■ CMHTs■ Police. We have established formal links to local

police services through police liaison meetings.■ The DAAT and LIT who jointly chair the local

steering group. A constructive partnership with theDAAT and LIT has also resulted in the joint fundingof the dual diagnosis posts.

Key outcomes■ Dual diagnosis leads have been identified in all

inpatient wards and community teams and have allattended the five day pan-London training. Theyassist in ensuring consistent screening of drug andalcohol use.

■ A screening tool has been adopted and carepathway agreed so that all service users assessed byadult mental health services (inpatient orcommunity) are asked about their drug and alcoholuse and directed to appropriate treatment.

■ 52% of drug and alcohol use screens werecompleted on inpatient units between September2005 and February 2006 (where service users wereasked about their drug and/or alcohol use andwhether they wanted help).

Key good practice points■ Allow plenty of time as adopting a mainstreaming

approach can take longer than anticipated.Attempting to change culture within both mentalhealth and substance misuse services is acomplicated task.

■ Devise multi-agency care pathways detailing the dualdiagnosis service user’s possible treatment journey.

■ Strengthen CPA care planning to ensure drug and/oralcohol issues are included.

■ Use a modular approach for training where staff canchose the days they want to attend which isrelevant to their area of work and for which theirservice can release them.

Project insights■ It has been helpful that substance misuse team

leaders have attended the dual diagnosisoperational group. Similarly, members of the dualdiagnosis team have attended substance misuseclinical governance and clinical meetings. This hashelped to bridge the gap between mental health

and substance misuse services.■ It can be difficult to ensure that skills learnt by staff

as a result of training are maintained.■ There has been a lack of understanding within adult

mental health teams about the nature of‘mainstreaming’, its purpose and the policy behind it.

■ Service user involvement has been difficult toestablish. A start is being made to provide a forumthat reflects the unique challenges of dual diagnosisservice users.

■ Modelling has limited effect, possibly due to mentalhealth staff time constraints. This appears to be borneout by the lack of staff attending for supervisionand limited number of clients attending clinics eventhough they are seen as useful and important.

Evaluation and monitoringStudents on the five-day dual diagnosis trainingcomplete an evaluation form at the end of the course.Attitudes are assessed at the start of the course, atthe end, and six months after completion.

A comprehensive service user questionnaire toevaluate the effectiveness of interventions has beendeveloped with service user input. This is sent to allservice users annually. The questionnaire focuses onaccess to the service, understanding of the dualdiagnosis worker’s role, plans and goals set with thedual diagnosis worker, and the extent to whichinterventions have been successful. Yearly audits ofscreening for drug and alcohol use and compliancewith following the dual diagnosis care pathways arealso conducted.

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Other monitoring and evaluation indicators usedinclude:

■ The extent of links with other services■ Inpatient bed occupancy and contacts with crisis

services.

ContactClinical Lead, Dual Diagnosis, Westminster PCTTel: 020 8237 2657Mobile: 07969 918233Fax: 020 8746 8704

Victoria 2 CMHTHopkinson House (basement)6 Osbert StreetLondonSW1P 2QU

Resources to share■ Rough guide to adult mental health services for

substance misuse staff, and rough guide tosubstance misuse for adult mental health staff(these are a guide to services, giving briefinformation on services offered and for whom, aswell as contact information and referral details)

■ Information on care pathways■ Strategy for Dual Diagnosis Service Provision: Joint

CNWL Adult Mental Health Services and CNWLSubstance Misuse Services 2003-2006 (Central andNorth West London Mental Health NHS Trust, 2003)Westminster dual diagnosis service annual report2005-2006

■ Westminster dual diagnosis service operational policy■ Service user questionnaire■ Drug and alcohol screening audit tools.

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54 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

IMPART (formerly DDART and IMPACT) provides a highly targeted service for people withpersonality disorders and substance misuseproblems. There is strong emphasis on bringingusers together to share ideas about recovery andto receive ongoing support after leaving theservice. Carers also receive support and advice.

The case study looks at how the service has beenable to create a better understanding ofpersonality disorder in other services and toencourage more appropriate referrals. It alsoprovides useful lessons about working in teamsand the qualities that are important for staff.

Overall purposeThe IMPART service offers a range of evidence-basedpsychological therapies to people who have a non-forensic personality disorder and co-morbid substancemisuse. The service provides assessment, treatmentand advocacy for service users and their carers, andconsultation to referrers. The overarching aim of theservice is to assist service users in their recovery and tohelp rebuild their lives.

Service summaryIMPART is a dialectical behavioural therapy (DBT)service, with its policies and procedures developedfrom DBT principles7.

Referrals are accepted from mental health services,probation, housing, social services, physical healthservices, drug and alcohol services and GPs. IMPART

does not accept self-referrals.

Individuals are initially screened for the presence orabsence of a personality disorder before fullassessment is undertaken. There are strict criteria foradmission to the service and this includes types ofpersonality disorder where DBT therapy has not beenproved to be effective. People who do not meet thecriteria are returned to their referrer or referred to amore appropriate service.

Assessment: after a comprehensive assessment, acomplex formulation (essentially a narrative of theindividual’s life tracing the origins of currentdifficulties, highlighting the range of currentdifficulties and possible diagnoses) is used to identify atreatment plan. The assessment takes 12 to 16 hoursand includes tools to assess diagnosis, substance use,risk and social functioning.

Treatment options: service users receive treatmentfrom several members of the team. This increases theirattachment to the team as a whole and reducesdifficulties when staff are on leave or leave the service.This is important when working with people withpersonality disorder who have fundamental difficultieswith forming and maintaining healthy attachments to others.

All service users receive three to six weeks ofmotivational enhancement to help them explore thechange process.

IMPART offers three main psychological therapies(DBT, CBT and schema focused therapy), according tothe service user’s needs. The DBT programme involvesindividual sessions, group skills training sessions andtelephone coaching. Its main aim is risk reduction(reducing deliberate self-harm, suicide attempts,violence, substance abuse and self-neglect). The CBTprogramme focuses more on Axis I disorders, whichinclude depression, anxiety disorders, eating disordersand psychotic disorders. The schema focusedprogramme is for individuals assessed as being lowrisk, who wish to address the psychological factorswhich contribute to their difficulties.

Therapy groups such as communication skills, angermanagement, anxiety management, painmanagement and skills strengthening are also run.

IMPART offers an evening group to supporters ofservice users (carers or friends) providing informationon personality disorder, ways to assist service userswith use of skills and improving relationships in thesocial and family network.

A recovery forum is held each month. This forumhelps individuals to understand the concept ofrecovery, in general and for themselves. It also allowsindividuals to raise issues about how to achieverecovery and, to consider with the group as a whole,what the obstacles to recovery might be. Finally, theforum asks individuals for ideas and feedback ondevelopments in the service which would aid theirrecovery or the recovery of others.

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Other services are also provided by IMPART:■ An ‘alumni’ group is for people who have completed

treatment and moved on (eg returned to educationor employment) but want to receive continuingsupport or share their successes and frustrations.

■ A five module training package on working withpersonality disorder and substance misuse for anyservices in the local authority area (statutory andvoluntary, health, mental health and social services).Supervision can also be provided to teams who havereceived training.

■ External consultation, eg to practitioners enhancetheir capacity and skills to work with people withpersonality disorder and substance misuse, and withother service providers to increase theirunderstanding about the needs of service users andto consider with them possible referral pathways.

StaffingThe team is multi-disciplinary but all clinical staffprovide psychological treatment. The team currentlyemploys two nurses, one clinical psychologist, oneCBT psychotherapist, two assistant psychologists, oneoccupational therapist (team leader), one consultantclinical psychologist (head of service) and twoadministrative staff. In addition the team has onespecialist registrar undertaking special interest sessionsto learn DBT and one clinical psychology trainee.

FundingThe IMPART service was originally funded by the DH as apilot project. On April 1 2007, IMPART was devolved tothe PCT and funding is through existing commissioning

structures, with some additional funding from the DAAT.

Service user and carer involvementService users have been involved in development ofthe service, participating on the steering committee,reviewing policies and providing feedback during theevaluation phase. In addition to the recovery forum (seeabove), service users participate in all appointmentspanels and reviews of documentation and procedures.They also deliver conference presentations and training.Service users are sent questionnaires and invited forface-to-face meetings at regular intervals (at leasttwice yearly) to identify concerns and achievements ofthe service. A robust complaints procedure is in place.

The service is developing a website in consultation withservice users and carers (www.nelpd.org). Future plansinclude a bulletin board for questions and answers,including responses to issues of concern raised.

Partnership workingIMPART works in partnership with local mental healthservices, the local DAAT, social services, housing,probation and voluntary sector.

For people not offered psychological treatment withIMPART, staff provide advocacy support and referralsto other services (eg housing or social services).IMPART also provides consultation to referring orother services.

Key outcomesOutcomes are measured with the repeated use of theassessment measures and with a range other scales.These vary according to the needs of the service user,referrer and carers. For most service users the mainoutcomes are:

■ A reduction in suicide attempts■ A reduction in deliberate self-harm■ A reduction in substance abuse■ A reduction in violence■ An increase in social functioning (eg friendships,

relationships or neighbours)■ An increase in positive mood ■ An increase in ability to cope with distress■ An increase in meaningful occupied time.

Key good practice points■ Good and regular communication with all staff (both

within the team and with other teams) is essentialwhen working with personality disorder andsubstance use both for effective risk assessment andmanagement and to encourage staff co-operation.

■ It is important to recognise that if a person has anumber of unmet social and personal needs, theywill have less capacity to engage in intensivepsychological therapy and change.

■ Service users need to feel heard when voicingconcerns/complaints and visible change shouldoccur in response.

■ It is helpful to separate the role of a psychologicaltherapist from the role of care co-ordinator, thoughthis is politically and practically difficult at times. 14

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56 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

■ Training needs to be supported through ongoingsupervision or the learning is lost.

Insights from the service■ Staff retention is difficult when working with

personality disorder and substance use service users■ Key attributes in staff are creativity, flexibility and a

non-judgmental attitude■ Staff must be robust in the face of slow progress in

therapy with, at times, high risk individuals, so theyneed to feel secure and valued

■ Relationships with other teams can be difficult –many services dislike personality disorder serviceusers and attempt to ‘dump’ service users ontopersonality disorder services

■ Recovery is different for every individual.

ContactDr Janet FeigenbaumConsultant Clinical PsychologistTel: 0844 600 123Fax: 020 8970 4051Email: [email protected]

Head of IMPART Personality Disorder ServicesNorth East London Mental Health TrustGoodmayes HospitalBarley LaneGoodmayesIlford IG3 8XJ

Resources to share■ The service offers a number of open days. Contact

Kellie Green ([email protected]) to enquireabout the dates.

■ Our website (www.nelpd.org) will offer furtherinformation about IMPART.

■ Staff from the IMPART team are available to deliverthe training modules on personality disorder andsubstance abuse (contact Kellie Green for moreinformation).

■ Leaflets and some policies/procedures are availablefrom Janet Feigenbaum. Teaching on the recoverymodel as applied to personality disorder andsubstance use is available from Marilyn Wilson([email protected]).

■ Advice on developing a business case is availablefrom Janet Feigenbaum.

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This case study highlights some particularinitiatives to meet local needs, including aproject around khat use in the Somali communityand innovative working with local prisons toensure that people with a dual diagnosis are notreleased as homeless.

Overall purposeThe overall purpose of the service is two-fold:

■ To enable people with a dual diagnosis to receivemainstreamed treatment and support for theirmental health and substance misuse needs from theprimary service provider.

■ To provide training, professional advice, support andconsultation to all service providers in the boroughwho work with people who have a dual diagnosis. Thegoal is to enhance the quality of services and to assistproviders in directing users to appropriate services.

In common with several other case studies, Croydon has moved to mainstreaming by providing dual diagnosis specialists who support mental health and substance misuse teams.

Service summaryThe Croydon Dual Diagnosis Service was set up withthe active involvement of local service user groups andstarted in October 2003. It consists of the dualdiagnosis lead for the borough and two dualdiagnosis practitioners. Team members may beemployed by either the Trust (South London andMaudsley NHS Foundation Trust) or the local authority

(London Borough of Croydon).

The initial focus has been providing training, supportand consultancy to all staff in the borough who workwith people who have a dual diagnosis, and to helpto clarify care pathways.

The team delivers the five day pan-London dualdiagnosis course, which is free to all teams who workwith people with a dual diagnosis in Croydon. Thistraining has been delivered to a wide range of staffincluding substance use, mental health practitioners,housing and rehabilitation providers. The mix ofparticipants promotes development of workingrelationships and scope for initiating jointdevelopments between services.

Other training with which the team is involvedincludes:

■ Drug and alcohol training■ Mental Health Act training to the police■ Trust’s clinical risk assessment training (risks

associated with substance use)■ One-off training as required ■ Delivering the pan-London course to other

boroughs and voluntary agencies.

The team’s extensive knowledge of services in theborough enables it to play an important role inresolving care pathway issues.

The service has also assisted the local Somalicommunity with research into khat use. Thisgroundbreaking initiative resulted in individual sessionsbeing developed for young people, men and women.A poster competition, open to young people, led tothe development of a leaflet in comic strip form. Thepublished research is now being reprinted in Somali. Allmembers of the Croydon Somali group have attendedthe five day pan-London dual diagnosis course. Thedual diagnosis team have been invited to help theSomali community explore the specific mental healthproblems experienced by some users of their service.

StaffingCroydon dual diagnosis lead and two dual diagnosispractitioners.

FundingThe funding streams are twofold; the DH pooledtreatment budget via the DAAT and the LondonBorough of Croydon Adult Social Services.

Service user and carer involvementA representative of one of the local mental healthservice user groups has been a member of the dualdiagnosis steering group since its inception. Severalpeople from local service user groups have attendedthe five day dual diagnosis course.

Partnership workingThe team places a strong emphasis on working withthe full range of services in contact with people with adual diagnosis.

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58 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

The dual diagnosis lead has contributed to a variety ofprojects in the borough. These include:

■ Establishment of the local substance use service usergroup and assisting in providing training andsupport to its members

■ A pilot project to improve communications betweenlocal prisons and agencies in Croydon to ensure thatindividuals with a dual diagnosis are not releasedfrom prison as street homeless

■ A project group for Models of Care (see section three)and the development of a common shared assessmenttool for use in all drug and alcohol agencies

■ Being a member of the DIP operations group■ Being a member of Croydon’s integrated adult

mental health serious untoward incident panel.

Key outcomesDevising an effective method for measuring theoutcome of the work remains a challenge.

■ Since April 2004 more than 350 people across allagencies have received the five day pan-Londontraining.

■ There is a better understanding of mainstreamingand of the role of the dual diagnosis team.Agencies understand that the dual diagnosis teamdoes not provide case management.

■ Improved service experience for users which isevidenced by the number of requests for advice andassistance that the team receives from services.

■ Improved understanding by all teams of the value ofa holistic approach.

■ Training for all staff and teams has facilitated‘mainstreaming’ and reduced the ‘pillar to post’effect.

Key good practice points■ An inclusive definition of dual diagnosis is in place.■ The team have built strong working partnerships

with a wide range of providers. ■ A joint steering group for dual diagnosis, integrated

mental health and substance misuse is in place. Thisincorporates a wide range of perspectives fromstatutory, non-statutory, mental health andaddictions services.

■ As part of the training, participants are encouragedto reflect on cultural differences, and the impactthese have when working with service users.

■ All members of the team attended a consultancyskills course for dual diagnosis workers in the Trust.This enables them to improve their changemanagement and consultancy skills.

Insights from the service■ Acknowledge and encourage the important work

being carried out by voluntary and independentsector providers and include them in planning fromthe outset.

■ Mainstreaming treatment for people with a dualdiagnosis means ‘culture change’ and we were notsurprised at the resistance we encountered in someareas.

■ Take time to identify clear priorities and a realisticworkload for your dual diagnosis team.

■ Bringing together learners from different agencies

promotes inter-agency relationship building andbreaks down barriers.

■ Review where your support lies and push hard inthose areas where most can be achieved as otherareas that are less keen will follow at their own pace.

■ It can be a challenge to get the right balancebetween ‘joint working’ with colleagues and ‘doingit for them’.

■ Maintaining a clear vision about what‘mainstreaming’ means locally helps to clarify whoshould carry out the interventions needed.

■ Embedding staff into teams was not practicable asthere are just too many services.

■ Through training, team members need to enhancetheir skills so that they can provide consultancy,effect change and educate across a broad spectrumof services. They need to be trainers, facilitators anddiplomats with a good knowledge of drug, alcoholand mental health treatments.

■ Where possible, whole team training is preferred asit promotes shared learning and culture changeacross the team.

■ Involving team leaders and practitioner managers inestablishing a system for practice development andsupervision is essential.

Evaluation and monitoringThe five day training is monitored using twoinstruments; one devised by the course developersand a more detailed questionnaire developed inCroydon which is more closely aligned to theindividual sessions presented. Analysis of the datademonstrates consistently high ratings for the course

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Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs 59

and individual comments are also very positive. The dual diagnosis service has been monitored by theCroydon dual diagnosis steering group. This grouplooks at activity, progress on the action plan andconsiders proposals for future initiatives.

ContactSusan HenryTel: 020 3228 0200 ext. 0207Fax: 020 3228 0261Email: [email protected]

Croydon Dual Diagnosis TeamCrosfield House2 Mint WalkCroydonCR0 3JS

Resources to share■ Croydon dual diagnosis strategy■ Terms of reference for the practitioner manager

forum■ Training material for the pan-London five day dual

diagnosis course■ Copies of the research report carried out by the

Croydon Somali Community into khat use■ Report on the training delivered by the Croydon

dual diagnosis team (April 2005 to March 2007)■ Croydon models of care policy – substance misuse

services for adults, guidance for staff on integrated’single’ tools, policies, systems and processes.

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60 Dual Diagnosis: Good Practice Guide Helping practitioners to plan, organise and deliver services for people with co-existing mental health and substance use needs

Although it is hard to summarise such a wealthof experience, several key messages stand outfrom this project.

First, it is clear that dual diagnosis remains a challengingfield. While many teams are making progress indeveloping mainstream services, there are still keyareas of unmet need where it proved difficult to findgood practice and where there is much to be done.These include: services for women, services for youngpeople, services for BME communities; supportprovided through primary care; and services for peopleinvolved in the criminal justice system.

Second, dual diagnosis is an all encompassing cross-sector and cross-agency concern. The sheer breadth andcomplexity of issues makes it essential that people using,commissioning, providing and working in services allwork together. Dual diagnosis needs to become abigger priority at a national, regional and local level.

Finally, it is encouraging that new ways of workingand examples of good practice are emerging all thetime. The wide range of service users and staff whohave informed this handbook, is testament to theinterest in, and commitment to, learning, improvingpractice, and developing provision. We hope thishandbook honours their experiences and serves toinspire and inform others dedicated to improvingservices and quality of life for service users.

Conclusion

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BME Black and minority ethnic

C-BIT Cognitive Behavioural Integrated Treatment

CBT Cognitive Behavioural Therapy

CJIT Criminal Justice Integrated Team

CMHT Community Mental Health Team

CPA Care Programme Approach

CSIP Care Services Improvement Partnership

DAAT Drug and Alcohol Action Team

DBT Dialectical Behavioural Therapy

DAAST Drug and Alcohol Strategy Team

DH Department of Health

LGBT Lesbian, gay, bisexual and transgender

LIT Local Implementation Team

NDTMS National Drug Treatment Monitoring System

NIMHE National Institute for Mental Health in England

NTA National Treatment Agency

PCT Primary Care Trust

List of abbreviations

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About Turning Point

We turn lives around every day, by putting the individual at the heart of what we do.Inspired by those we work with, together we help people build a better life.

Turning Point is the UK’s leading social care organisation. We provide services for peoplewith complex needs, including those affected by drug and alcohol misuse, mental healthproblems and those with a learning disability.

We have particular expertise in working with people who face multiple challenges. Many ofour service users have co-existing substance misuse, mental health and other needs and sowe have a strong commitment to improving provision and delivery of dual diagnosis services.

First published in 2007 byTurning PointStandon House21 Mansell StreetLondon E1 8AA

Tel: 020 7481 7600Email: [email protected]: www.turning-point.co.uk

ISBN: 978-1-906291-03-7

© Turning Point 2007All rights reserved. No part of this publication may be produced or transmitted, in any form or by any means, electronic,mechanical, photocopying, recording or otherwise without the prior permission of Turning Point.

Turning Point is a registered charity, number 234887, a registered social landlord and a company limited by guaranteenumber 793558 (England & Wales).

Registered office: Standon House, 21 Mansell Street, London, E1 8AA T: 020 7481 7600 www.turning-point.co.uk