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National Cancer Survivorship Initiative
Central Hall, WestminsterMonday 21 September 2009
Work and Finance
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National Cancer Survivorship Initiative
Work and finance workstream
NCSI conference, 21 September 2009
Barbara Wilson, Workstream ChairDuleep Allirajah, Workstream Support
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Work and cancer: the scale of the problem
The problem
• 90,000 working age people are diagnosed with cancer in the UK each year
• 774,000 people of working age in the UK have had a cancer diagnosis
The solutions
• We have reviewed the evidence and identified the gaps
• We still do not know enough about the size and scale of the problem
• Macmillan will be commissioning a large scale population study on work and cancer in 2010
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Information and advice about work
The problem
• Less than 50% of patients are advised by cancer doctors about impact of treatment on their work
• Patients aren’t routinely offered information about returning to work by the NHS
The solutions
• We are working with the Cancer Action Team to ensure that information prescriptions help people returning to work
• We will be developing and testing tools to aid more effective assessment and signposting from the point of diagnosis
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Vocational rehabilitationThe problem
• NHS rehabilitation services are focused on hospital discharge
• DWP services are focused on the long-term sick
• Many employees have no access to occupational health services
The solutions
• We have developed a vocational rehabilitation model for cancer
• We plan to run vocational rehabilitation pilots in 2010
• We have also commissioned a study to explore whether DWP programmes work for cancer patients
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Vocational rehabilitation model
1
2
3
4• Case managed approach
• Rehabilitation/living well• Self management
• Post-treatment•Drop-in
• Signposting• Face to face
• Focussed interaction
• Early information and support
• For employers, professionals and
patient
EMPLOYERS
VALUES
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Employer support is variableThe problem
• Only 50% of patients are offered flexible working arrangements
• 80% of employers are unaware that cancer is covered by the DDA
The solutions
• Macmillan’s Working Through Cancer pilot will be testing a toolkit for employers
• We will be developing a strategy to raise employer awareness of information and tools
• We are planning to commission a study to explore the specific challenges faced by small businesses
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Financial hardshipThe problem
• 92% of people with cancer have suffered loss of income and/or higher costs
• Among under 55s, the average fall in income was 50%
• 77% of cancer patients receive no information about welfare benefits
The solutions
• Ensure information prescriptions support people with financial needs
• Test tools to aid assessment of financial need and signposting to advice services
• Develop policy options in light of Macmillan’s study into the drivers of financial hardship
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Questions
• From what you have heard today, what is most important initiative we are undertaking?
• What, if anything, has been left out?
• What will be the difficulties in implementation?
• How can we overcome these difficulties?
• What other points come out of this discussion?