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Update on the UK Renal Data Collaboration (UKRDC)
UK Renal Registry2015 Annual Audit Meeting
Dr Keith SimpsonMedical Adviser, UK Renal Registry
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UK Renal Data Collaboration(UKRDC)
Update on the UK Renal Data collaboration Bristol
05 March 2015
Keith SimpsonMedical advisor to the UK Renal Registry
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RPV
.
Labs
RenalUnits
UKRR
SRR
RaDaR
NHSBT
OtherNational data
BAPN
UK Renal Data
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RPV
.
UK Renal Data Collaboration
Labs
RenalUnits
UKRR
SRR
RaDaR10-20 gps
NHSBT
OtherNational data
Warehouse
BAPN
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Demographic Data
Clinical Contacts
Results
Biometric Data
Transplantation
Haemodialysis
Peritoneal dialysis
Quality Improvement & Audit
Care Plan
Clinical notes and correspondence
Medication
Summaries
Decision support
Links to Registries, RPV, Labs, Patient Admin.
Commissioning
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Who Everybody who legitimately handles data:
PatientsUnit Administrators
SecretariesClerkessNursesDoctors
DieticiansOccupational Therapists
Physiotherapy …
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Real time comprehensive links with 1y care, other units, UKT, Labs, PAS Standardised comms xml, HL7, agreed coding (SNOMED-CT)
Link clinical problems, to do list, decision support, care plan
Built in safety systems – defaults, prompts, warningsImages, statistical analyses, process controlIncorporate emailCost trackingEquipment monitoring and serviceVoice recognitionSupport for research and teaching
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Rules of engagement
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Rules of engagement
FlexibleFast
FunctionalFinanced
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Rules of engagement
FlexibleFast
FunctionalFinanced
(Fun)
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UK Renal Registry UKRR
Scottish Renal Registry SRR
Patient View PV
UK Registry for Rare Kidney Diseases RaDaR
British Association for Paediatric Nephrology BAPN
NHS Blood & Transplant
Northern Ireland Nephrology Forum
Welsh Renal Clinical Network
UK Renal Data Collaboration (UKRDC) Board
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Health Informatics Unit Royal College of Physicians
Royal College of Pathologists
Health and Social care Information Centre
Dept of Health
NHS England
NHS National Services Scotland
ERA-EDTA
International Health Terminology Standards Development Organisation
HL7 UK
UK Renal IT suppliers
UK Renal CD Forum
Lots of help & Support
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UK Renal Data Collaboration
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UK Renal Data Collaboration
Diagnosis SNOMED CTProcedures
Lab data National Lab Med Catalogue NLMCTerminology Committee Dr Afzal Chaudhry Data set group Drs James Medcalf and Jamie Traynor
Data set will be published on webAny data
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UK Renal Data Collaboration
Diagnosis SNOMED CTProcedures
Lab data National Lab Med Catalogue NLMC
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UK Renal Data Collaboration
Diagnosis SNOMED CTProcedures
Lab data National Lab Med Catalogue NLMC
Board Thurs 26 Feb 2015Agreed all main relationships, roles, purpose
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UK Renal Data Collaboration
Diagnosis SNOMED CTProcedures
Lab data National Lab Med Catalogue NLMC
Board Thurs 26 Feb 2015Agreed all main relationships, roles, purposeUKRDC will enable but not force
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UK Renal Data Collaboration
Diagnosis SNOMED CTProcedures
Lab data National Lab Med Catalogue NLMC
Board Thurs 26 Feb 2015Agreed all main relationships, roles, purposeUKRDC will enable but not forceCapitalise on what we have in common
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UK Renal Data Collaboration
Diagnosis SNOMED CTProcedures
Lab data National Lab Med Catalogue NLMC
Board Thurs 26 Feb 2015Agreed all main relationships, roles, purposeUKRDC will enable but not forceCapitalise on what we have in commonDevelop systems that meet the most exacting requirement of any member
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UK Renal Data Collaboration
Diagnosis SNOMED CTProcedures
Lab data National Lab Med Catalogue NLMC
Board Thurs 26 Feb 2015Agreed all main relationships, roles, purposeUKRDC will enable but not forceCapitalise on what we have in commonDevelop systems that meet the most exacting requirement of any memberUse national and international standards if possible
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UK Renal Data Collaboration
Diagnosis SNOMED CTProcedures
Lab data National Lab Med Catalogue NLMC
Board Thurs 26 Feb 2015Agreed all main relationships, roles, purposeUKRDC will enable but not forceCapitalise on what we have in commonDevelop systems that meet the most exacting requirement of any memberUse national and international standards if possibleRetain flexibility
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UK Renal Data Collaboration
Diagnosis SNOMED CTProcedures
Lab data National Lab Med Catalogue NLMC
Board Thurs 26 Feb 2015Agreed all main relationships, roles, purposeUKRDC will enable but not forceCapitalise on what we have in commonDevelop systems that meet the most exacting requirement of any memberUse national and international standards if possibleRetain flexibilityRespond quickly to new requirements
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UK Renal Data Collaboration
Diagnosis SNOMED CTProcedures
Lab data National Lab Med Catalogue NLMC
Board Thurs 26 Feb 2015Agreed all main relationships, roles, purposeUKRDC will enable but not forceCapitalise on what we have in commonDevelop systems that meet the most exacting requirement of any memberUse national and international standards if possibleRetain flexibilityRespond quickly to new requirementsEnable Innovative medical practice (not data comms)
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UK Renal Data Collaboration
Diagnosis SNOMED CTProcedures
Lab data National Lab Med Catalogue NLMC
Board Thurs 26 Feb 2015Agreed all main relationships, roles, purposeUKRDC will enable but not forceCapitalise on what we have in commonDevelop systems that meet the most exacting requirement of any memberUse national and international standards if possibleRetain flexibilityRespond quickly to new requirementsEnable Innovative medical practice (not data comms)Manage the data not the projects
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UK Renal Data Collaboration
Why is it so hard?What could go wrong?
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Interoperability
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UK Renal Data Collaboration
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http://www.theguardian.com/world/2013/sep/05/nsa-gchq-encryption-codes-security
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UK Renal Data Collaboration (UKRDC)
A wee success story
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UK Renal Data Collaboration (UKRDC)
A wee success story
D4D GrantEnable patients to lead in medicines reconciliation
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RPV
.
UK Renal Data Collaboration
Labs
RenalUnits
UKRR
SRR
RaDaR10-20 gps
NHSBT
OtherNational data
Warehouse
BAPN
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Group discussions:What will the UKRDC mean for my renal unit?
UK Renal Registry2015 Annual Audit Meeting
Chair:Ron CullenDirector, UK Renal Registry
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To think about / discuss
1. What will the UKRDC mean for my renal unit?
What do we do about OR how to prevent:2. Change in political climate 3. Standards change4. Doctor No5. Manager’s who don’t get it6. IT who don’t get it7. We can’t afford it8. Patients lose faith