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Taking an active part in Taking an active part in decisions affecting my later decisions affecting my later life…life…
A Personal Journey
by
Lynn Jackson
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“Life is either a daring
adventure…
Or nothing.”
Helen Keller
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The Aricept GenerationI am one of those being helped
by new drugs
Diagnosed with fronto-temporal dementia
An emergency room nurse for 14 years and then…things began to happen
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Making Decisions Now…(not waiting until later)
Come to terms with my illness
Eagerness to learn
Discovered others like me
“Knowledge is power”
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““DASNI Effect”DASNI Effect”
DDementia ementia AAdvocacy and dvocacy and
SSupport upport NNetwork etwork IInternationalnternational
We are autonomous and competent peopleWe are autonomous and competent people
We believe that shared knowledge is We believe that shared knowledge is empowermentempowerment
We believe our strengths provide a We believe our strengths provide a supportive networksupportive network
We are a voice and a helping hand We are a voice and a helping hand
www.dasninternational.org
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Set up a supportnetwork
Family my biggest supporter
Friends
www.dasninternational.org
My Doctor
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Teaching others“Knowledge is power” – a
sloganthat has helped me communicate with family and friends
I passed on information to them…
Now they are knowledgeable
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My biggest fear
I will not be able to tell people what I want as my disease progresses
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Imaging the options
I learnt the lingo…
And found out more than I ever wanted to know
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Representation Agreement
• I choose personal representative
• More than power of attorney
• Can override my wishes if I become irrational
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My representatives know:
What kind of nursing homeLikes & dislikesAware of religious beliefs
And they have power of attorney
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One size does not fit all
Everything written downNo ‘heroic’ efforts
It comes down to this:
“If I have developed into a state where I am not able to indicate to you what I do or do not want, then please follow the written instructions.”
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Stop and smell the roses
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Focus on Strengths
FriendshipsTravelingConnectingSupporting
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Maintaining Relationships
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In summary…
Come to terms with illnessSet up a support systemClarify your optionsMake the necessary decisionsPrepare any legal documentsFocus on your strengthsSet realistic goalsMaintain relationships!Think Positive!!!!
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“I am prepared to meet my Maker. Whether my Maker is prepared for the great ordeal of meeting me is another matter”
Sir Winston Churchill