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EAST ANGLIAN CANCER REGISTRYEAST ANGLIAN CANCER REGISTRY
Problems in moving towards automation
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Automated cancer registration is….
“Where streams of data about an individual case of cancer are received electronically from different sources and are processed by a computer system to:
create a new patient and a new tumour OR
create a new tumour for an existing patient OR
update an existing tumour for an existing patient
without the need for human intervention.”
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Areas of concern:•No electronic data
•Accuracy of data
•Non-hospital data
•Patient identification
•Problem resolution
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JCIS
•Addenbrooke’s, Hinchingbrooke, Peterborough
Dendrite
•Norfolk & Norwich, James Paget
No News From….
•Bedford, Ipswich, West Suffolk, Luton & Dunstable, Papworth, Kings Lynn
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•NCDS - just a summary
•Who records the information in it ?
•Are they trained in cancer coding ?
•The data must be of high quality and consistent
•What about secondaries ?
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Other sources e.g.:
•GP Notes
•Consultants with private patients
Notification
•Death cards
•Patient affairs office
•Pathology reports
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Patient Identification:
•Use of New NHS Number
•Wrongly allocated numbers
•What if they can’t find the number for a patient ?
•Hospital number
•Two numbers for the same patient
•The same number used by two people
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Problem Resolution:
If what we are sent is inadequate for a case and we need to “eye-ball” the notes:
•Will they still exist ?
•Will we be able to get at them ?
•How ?
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Bearing in mind that it is nearly lunchtime…..
Any Questions ?