Download - Access to Care for Prostate Cancer Patients
Access to Care for Access to Care for Prostate Cancer Prostate Cancer
PatientsPatients
A Patient`s PerspectiveA Patient`s Perspective
Some MythsSome Myths Only a few old men are affectedOnly a few old men are affected
No - It affects 190,000 men and kills 75,000 in Europe per year. No - It affects 190,000 men and kills 75,000 in Europe per year. It is not a social problemIt is not a social problem
Yes it is - 80% of the men in their 80s have Prostate Yes it is - 80% of the men in their 80s have Prostate Cancer, the detected incidents are increasing due to PSA-Cancer, the detected incidents are increasing due to PSA-TestsTests
It is only an old men`s diseaseIt is only an old men`s disease No - No - Prostate Cancer has been known to affect men even in the Prostate Cancer has been known to affect men even in the 30 - 40 age group, the death rate is higher among younger men still 30 - 40 age group, the death rate is higher among younger men still productive in the economyproductive in the economy
There are only Surgery, Radiation or Wait and See availableThere are only Surgery, Radiation or Wait and See available No - No - Increasing evidence for hormonal therapy Increasing evidence for hormonal therapy supports a new role in treatment of Prostate Cancer or Active supports a new role in treatment of Prostate Cancer or Active SurveillanceSurveillance
Prostate cancer needs to be curedProstate cancer needs to be cured No - you can live and die with prostate cancer, not from itNo - you can live and die with prostate cancer, not from it
Urologists have a clear perception what to doUrologists have a clear perception what to do No - No real consensus on diagnosis and treatment No - No real consensus on diagnosis and treatment - - until until now…..now…..
SURGERY
OPENLAPAROSCOPIC
RADIATION
EBRXT BRACHY
CHEMODRUGS
HORMONESPHYSICAL AGENTS
CRYOHIFU
W.W.
THE PALETTE OF TREATMENTS HAS THE PALETTE OF TREATMENTS HAS MANY COLOURSMANY COLOURS
The Doctor‘s The Doctor‘s ConsultationConsultation
I can offer you three options, like I can offer you three options, like a manu in a restaurant :a manu in a restaurant :
Radical prostatectomyRadical prostatectomy Radiation Therapy.Radiation Therapy. Watchful WaitingWatchful Waiting
You have to decideYou have to decide
Consequences:Consequences:
Anxiety and InsecurityAnxiety and Insecurity
Doctors !
Audio Visual Media
Congresses
PCa Support Goups
Print Media
Internet
Experimental Therapies
Complementary Therapies
Alternative Therapies
PC-SPES
Savior
Psycho Market
The Patient The Patient in the middle of a in the middle of a field of tensions field of tensions
and stressand stressdue to too many due to too many
andandoverwhelmingoverwhelming information information
sourcessources
How Men Use Tools
The one who has,The one who has,
The one who has The one who has
very often can see only nailsvery often can see only nails..
will…will…
The one who has a linear accelerator
wants to ...
In the middle of an emergency situation the patient becomes a customer, the target of high efficient salesmen!
He realises that there are information und communication problems and that there is an
asymmetric communication with those whom he turned to for help.
The only way out is he has is to become an empowered patient
Reality in Europe Reality in Europe PCa is a European Health Problem PCa is a European Health Problem
and a Social Disgraceand a Social Disgrace
- Low public awareness- Low public awareness- Low government priority- Low government priority
- - Difference outcomes rich vs poor.Difference outcomes rich vs poor. - - Gap between knowledge and real careGap between knowledge and real care - Effective Medication (Hormone Treatment - Effective Medication (Hormone Treatment and/or Chemo) not available in all countries and/or Chemo) not available in all countries
- Potentially curable, but certainly treatable if - Potentially curable, but certainly treatable if diagnosed early enough. diagnosed early enough. - Early detection (PSA-Test) strongly criticised- Early detection (PSA-Test) strongly criticised - - Gap between prevention/treatment.Gap between prevention/treatment.
Partially from OCA, 2003Partially from OCA, 2003
The Expedition into the Future of Urology
I had a dream
The Crew:
Patient
M.D
Clinics, Universities
Cancer Societiest
Research
Health Ins.
Patient – Urologist –Oncologist -Radiation Specialist - General Practicioner - ……
Politics
Interdisciplinary Network
Industry
We, the Patients call on you, We, the Patients call on you, the Politicians the Politicians
Each patient should have the right Each patient should have the right to receive an interdisciplinary consultation in to receive an interdisciplinary consultation in
a centre of competencea centre of competence to have the chance to receive his individually to have the chance to receive his individually
preferenced primary therapy preferenced primary therapy to receive the best therapy without a to receive the best therapy without a
dependency of his personal budgetdependency of his personal budget to be taken care of on a humanitarian basis, to be taken care of on a humanitarian basis,
not by medical sales mennot by medical sales men