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Public Health Data Standards Consortium
Web-Based Resource Center Committee
Vivian Auld National Library of Medicine NIH, HHS
Michelle Williamson Centers for Disease Control and Prevention
National Center for Health Statistics
May 25, 2005
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PHDSC Website
http://www.phdatastandards.info
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WRC Committee Members Noam Arzt, President
HLN Consulting LLC
Robert Davis, Consultant,National Center for Health Statistics (NCHS)Centers for Disease Control and Prevention (CDC)
Tom DoremusIndependent Consultant
Marjorie Greenberg, Chief,Classifications and Public Health Data StandardsNCHS/CDC
Vicki Hohner, Senior Consultant Fox Systems, Inc.
Hetty Khan, Health Informatics Specialist,NCHS/CDC
Katherine Kvale, Epidemiologist,Wisconsin Department of Health and Family Services,Division of Public Health
Denise Love, Executive Director,National Association of Health Data Organizations (NAHDO)
Anna Orlova, PHDSC Consulting Executive Director and Associate Professor,Johns Hopkins School of Public Health
Walter Suarez, President and CEO,Midwest Center for HIPAA Education
Patina Zarcone, Informatics and LIM Systems Manager,Association of Public Health Laboratories
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WRC Committee Goals
Oversee the development and maintenance of the Public Health Data Standards Consortium’s website.
Provide resources and guidance for local, State, and national organizations to participate in standards development activities, encourage adoption and improvement of existing standards, and to facilitate standards implementation.
Develop and maintain a Web-accessible list of existing health data standards
and standards development efforts, providing their context and identifying their relevance to public health.
Disseminate educational materials utilizing various Web-based media to address the needs of public health practitioners and educators as related to health data standardization.
Explore enhancement options for the next generation of the Web-Based Resource Center.
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WRC Committee Activities 2004 – 2005
Launched the Second Generation WRC-May 2004
Developed Principles, Guidelines and Processes for the Review and Maintenance of the Web-Based Resource Center (WRC)
Began Implementing the WRC Short-Term Marketing Plan
Identified potential areas for content development and website improvements - 3rd generation WRC
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WRC Committee Activities 2004 – 2005
Launched the Second Generation WRC * * * * * * * * * May 2004 * * * * * * * * * *
Migrated Organizational Information from NCHS and Expanded Information
Migrated HCSDR Guide Information from NAHDO
Updated PH Tutorials and Annotated Bibliography
Added Educational Materials (papers, case studies, presentations)
Health Care Services Data Reporting Guide
Guidance for Local Health Departments – HIPAA Privacy Rule
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WRC Committee Activities 2004 – 2005
Developed Principles, Guidelines and Processes for the Review and Maintenance of the Web-Based Resource Center.
General Principles for the WRC
Guidelines for Posting, Revising and Updating Information
Principles for Privacy and Confidentiality
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Where is the WRC????
“The WRC is the best kept secret."
Marjorie GreenbergVP Federal Affairs, PHDSCChief, Classifications and Public Health Data StandardsCDC/NCHS
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WRC Committee Activities 2004 – 2005
Began Implementing the WRC Short-Term Marketing Plan Goal1: Increase in awareness and first time use of
the WRC Goal 2: Increase in use of the WRC by new and
returning users Goal 3: Solicitation of contributions and feedback
from WRC users Goal 4: Expansion of PHDSC membership
through the WRC
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WRC Committee Activities 2004 – 2005
Identified potential areas for content development and website improvements - 3rd generation WRC
Redesign Home Page Add Privacy Policy Enhance Committee’s Pages and Hot Topics Educational Materials for PH and Health
Informatics Academic Communities Update Membership Page Conduct Usability Study
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Usability Study
Usability Study
Consulted with Laura Larsson, Cedar Collaboration
Email: [email protected] Usability Test Suggestions Evaluation of the WRC
Feedback from Tom Doremus, past Chair, WRC
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Expert Recommendations
Home Page More Concise Intended Audience Needs to be ClearGlossary Needs to Be More PrevalentSite Needs PersonalizationIncrease Ranking within Public Search
EnginesUsability Study to Guide Future
Development
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Future Activities
Usability Study and Analysis
Prioritize and implement additional strategies in the Short-Term Marketing Plan and evaluate effectiveness of previous marketing efforts
Facilitate the Development of the 3rd Generation WRC
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Financial Support for WRC
National Center for Health Statistics has provided financial support for the WRC for:Technical SupportContent DevelopmentTemporary Webmaster
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QUESTIONS