Down Syndrome Guild of Southeast Michigan

Annual Meeting Fiscal Meeting July 2010- June 2011

OUR MISSION

The mission of the Down Syndrome Association of Greater St. Louis is to benefit the lives of people with Down Syndrome and their families through individual and family support, education, awareness, and advocacy.

THANK YOU TO OUR VOLUNTEERSWE COULDN’T DO IT WITHOUT YOU

OVER 350 VOLUNTEERS GENEROUSLY GAVE OF THEIR TIME IN 2010/2011 IN THE FOLLOWING AREAS

• STEP UP FOR DOWN SYNDROME

• CONFERENCES

• EDUCATIONAL SPECIALIST TRAININGS

• ONE CALL NOW

• SIBSHOPS

• YOUNG ATHLETES PROGRAM

• NEW PARENT SUPPORT– MENTORING– MEDICAL OUTREACH

• FAMILY PICNIC

• HOLIDAY PARTY

• OFFICE SUPPORT

• LENDING LIBRARY

• MICHIGAN MIRACLE LEAGUE

• COMMUNITY GROUPS

IN AWE OF YOUR DEDICATION AND SERVICE TO THE MISSION OF DSGWhat Independent Sector Says About

Volunteer Service HoursIndependent Sector is the leadership forum for charities,

foundations, and corporate giving programs worldwide. It is a nonpartisan consortium of about 600 organizations. Every year, Independent Sector determines the dollar value of a volunteer hour, and this number is used by the majority of charities across the country.

For 2010, a volunteer hour of service was valued at $21.36.

VOLUNTEERINGWhat Does That Mean for the Down Syndrome

Guild of Southeast MichiganOur Board of Directors donated almost 800 hours

during fiscal 2010-2011

This translates to a service contribution = to $17,088

Volunteers participated in multiple areas and contributed over 2,300 hours of service

This translates to a service contribution = to $49,128

Together, this was a conservative estimate of volunteer service hours = to $66,216

Erin and Danny

BOARD ELECTIONS

New Executive Officers

New Board Members

Renewing Board Members

Retiring Board Members

THE BOARD OF DIRECTORS2011 - 2012

Current Board Members (18)David Buckley Paul NobelsJames Hanggi Nancy FarleseLaurie WhellKim ReynoldsKirk AndersonTricia DewerDenise Dunn

ELECTION OF NEW EXECUTIVE OFFICERS

President: David Buckley

Vice President: James Hanggi

Treasurer: Kim Reynolds

Secretary: Laurie Whell

ELECTION OF GENERAL BOARD MEMBERS

Renewing Terms• Megan Layton – 3 year term (2011 – 2014)• Donna Eisenberg – 3 year term (2011 – 2014)

New Board Members• Nancy Farliz(2012 – 2015)• .Paul Nobles(2012 – 2015)

RETIRING BOARD MEMBERS

Thank You for Your Generous Service

Nancy Nelson

Bob Spamen

Laurie Mathes

BELIEVE IN ME

Celebrating 35 years of service to our members…and growing

How We Serve Our MembersFAMILY SUPPORT PROGRAMS• New Parent Support • Medical Outreach• Information & Referral• Community Groups• Family Picnic• Holiday Party

EDUCATION PROGRAMS• Michigan Miracle League• Down Syndrome Education Specialist Training• Conferences• The Learning Program• Speakers Bureau• Resource Library

AWARENESS & ADVOCACY• Step Up For Down Syndrome• Walk in the Park• Calendar• “I’m Down with That”• Bumper stickers, window clings and

bookmarks

MEMBER COMMUNICATIONS• Website• Friday E-Blasts• Facebook & Twitter• Newsletters• Annual Report• Annual Meeting

FAMILY SUPPORT PROGRAMSand

AWARENESS & ADVOCACY

HOLIDAY PARTY AND FAMILY PICNIC 2010 - 2011

FAMILY SUPPORT PROGRAMS

NEW PARENT SUPPORT

&

MEDICAL OUTREACH

NEW PARENT SUPPORTMaking a Difference for our Families

• 60 families were welcomed into our DSG family since July, 2010

• 10 of these families contacted us

with a pre-natal diagnosis

• 50 New Parent packets were distributed since July, 2010

• 24 new Moms (46%) elected to receive New Parent Support Mentoring

• 50 volunteers are actively supporting new families (some continuing from last fiscal year)

• 7 of these volunteers are Dads!

• 250 mentoring hours were provided this fiscal year

• 4 individuals volunteered weekly at the Down Syndrome Center at

Children’s Hospital

• 200 hours of volunteer service were provided at the Down Syndrome Center at Children’s Hospital

• 403 New Parent families have been served since program inception in 2005

SERVING 9 COUNTIES IN SOUTHEAST MICHIGAN

Where Our New Parents LiveAnd Receive Our Services

The DSG serves southeast Michigan; including Wayne, Oakland, Macomb,

Washtenaw, Livingston, Monroe, Lapeer, Genesee, and St. Clair Counties.

SERVING 9 COUNTIES IN SOUTHEAST MICHIGAN

WHERE OUR NEW PARENT SUPPORT VOLUNTEERS LIVE

MEDICAL OUTREACH SERVICESEducating & Increasing Knowledge

for New Families & Medical Professionals

• 100+ hospital packets have been distributed this fiscal year among our 25 hospitals

• 42 medical professional packets have been distributed this fiscal year

• 87 OB/GYNs, Geneticists, Pediatric Nurses, and Counselors received informational materials through our exhibiting at a region 5 ACOG conference.

• Genetic Counseling students at Wayne State University received our Medical Professional Packets

HOSPITALS THAT HAVE OURPACKETS READY TO DISTRIBUTE TO NEW

PARENTS

WAYNE:Oakwood

OAKLAND:Beaumont-Royal OakBeaumont- TroyCrininton RochesterHuron Valley- Sinai HospitalProvidence (South John Hospital)- SouthfieldSt. Joseph MercyBotsford Hospital- Farmington Hills

LIVINGSTON:U of M- Ann Arbor

COMMUNITY GROUPSSustaining Support Groups in 9 Counties

COMMUNITY GROUPS SUPPORTEDBY THE DSG OFFICE

Baby Buddies/ PlaygroupBirmingham, Clarkston, Dearborn, Detroit, Dexter,

Farmington/Farmington Hills, Flint/ Grand Blank, Gross point, Heartland/ Highland, Holly, Lake Orion, Livonia, Macomb,

Mount Clemons, Plymouth/Canton, Rochester/ Rochester Hills, Royal Oak, Southfield, Southgate, South Lion, Taylor, Troy,

Wald Lake/ Commerce Township, Wyandot, Hispanic Families, African American Families.

EDUCATION PROGRAMS

Sibshops Club 21

MAKING A DIFFERENCE FOR OUR FAMILIES AND THE EDUCATIONAL COMMUNITY

DOWN SYNDROME EDUCATION SPECIALIST TRAINING

• 125 teachers, administrators, therapists, and counselors participated in 24 hours of training in 2010-2011

• 13 school districts in Oakland County were represented, a parochial school in Wald Lake, a charter school in Detroit have named a specialist

• 3 community agencies were trained• 125 participants have completed the certification

since the program was implemented in 2009

Down Syndrome Ed Specialist Program2010-2011 PARTICIPATING SCHOOL DISTRICTS AND

COMMUNITY AGENCIESAvondale Public SchoolsBerkely Public Schools

Birmingham Public SchoolsBloomfield Hills Public Schools

Ceasar Shavez Academy- DetroitClarkston Public SchoolsClausen Publics Schools

Farmington Hills Public SchoolsFerndale Public Schools

Lake Orion Public SchoolsLamphere Public Schools

Livonia Public SchoolsNovi Public Schools

Plymouth-Canton Public SchoolsRochester Public Schools

St. Williams Parochial SchoolsTroy Public Schools

Walled Lake Public Schools

CONFERENCE• 128 participants attended the Saturday all-day

session on “Reaching for Opportunity- Educating Students with Down Syndrome” at U of M Dearborn

• 12 volunteers helped create and manage these sessions

• 90 volunteer hours were contributed

“LOSE THE TRAINING WHEELS”MAKING A DIFFERENCE FOR THE KIDS • 40 Riders, ranging in age from 8 to 21, participated

• $150 Gift certificates were given to each rider at the end of the camp

• 28 Riders used their certificate for a bike, which included an individualized fitting to ensure proper size

• 12 Riders used their certificate for bike accessories

• 39 Volunteers participated

• 532 Hours of volunteer service were donated

• This program partnered with the Lydia Faith Cox Memorial Foundation, the Pujols Family Foundation, and Maplewood Bicycle to make this event a success

THE LEARNING PROGRAMA Parent/Child Program

• 62 Families participated in the program in fiscal 2010/2011

• 62 Children were enrolled in 4 different classes: Toddler Time, Pre-K, Level 1 and Level 2

• 45 Total sessions were held for parents & children• 9 Teachers taught during the September – May

school year• 3 Therapists participated (1 Occupational & 2

Speech)• 12 Volunteers participated in the program• 840 Volunteer hours were donated

ADDITIONAL EDUCATIONAL SERVICES

RESOURCE LIBRARY• 400+ Books, DVD’s, and CD’s are available for

check-out by our families

INFORMATION & REFERRAL• 1,250 Calls were received requesting information

about a variety of topics, including community service recommendations, physician refferals, counseling referrals, services we provide, etc.

SPEAKERS BUREAU• 5 Presentations were given to area schools and

community groups• 30 Volunteer hours were donated • 5 Presentations were given by staff

AWARENESS & ADVOCACYLohse’s Little Leaguers Tony’s Troops

STEP UP FOR DOWN SYNDROME (SUDS)

INCREASING COMMUNITY UNDERSTANDING

• 1600+ Members and friends participated in the Walk in the Park on October 9, 2010

• 10 Volunteers donated 20 hours of service to “I’m Down with That”

• 2,000+ Members and friends participated in Step Up For Down Syndrome on October 9, 2011

• 350 Volunteers donated 320 hours of service

• 500 Calendars were purchased

• 3 Volunteer photographers donated 60 hours of service

COMMUNICATIONS• 40 Friday E-blasts were created

• 3,000+ members receive our E-blast

• 6 Bi-monthly “ A Little Something Extra”

• 550+ Facebook fans are signed up

FINANCIALS

INCREASED ACCOUNTABILITY

IMPROVING OUR FINANCES