designing for survival. developing healthcare apps for cancer survivors

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1. DESIGNING FOR SURVIVAL developing healthcare apps for cancer survivors Adrian Iacomi, UX Lead @adrianiacomi 2. photo by ickr.com/emagic 3. This is NOT a persona, but one of my best friends story 23 years old red hair, quite tall student linda-hop dancer, passionate about drawing, surng, pasta, jazz and love cats ELISE illustration by ickr.com/giovana_milanezi 4. ELISE -THE REAL STORY photos by stf-o, pustovit, benswing, denise_rowlands, scubasteveo, agecombahia, lfamily, worldbank, hawaii, brothers-brick.com, lilivc (on ickr.com) Her good life as a student surng friends dancing love Treatment and surviving Cancer discovery tired investigations more investigations tumor surgery chemotherapy getting support surviving 5. same cancer form same treatment same doctor just one survivor, out of ve patients no prior oncology knowledge no special treatment no access to specialists medical student father - doctor photo by ickr.com/pustovit 6. THE NUMBERS 1. 2012: 14.1 mil new cases, 8.2 mil deaths 2. developing world: 1/3 people will develop cancer during their lifetime 3. 1/9 people have a chance of a recurring cancer 4. 5 years time frame for surviving 5. 100+ forms of cancer, anybody can be affected 6. 1/3 of cancer forms can be detected early 7. THERE IS NO SILVER BULLET ! JUSTTHE UX PROCESS image by ickr.com/dangergraphics 8. UX DESIGN PROCESS 1. domain knowledge 2. identify stakeholders - stakeholders meetings 3. contextual interviews 4. create personas 5. user journey map 6. create mockups for internal usage 7. iterate: advanced working prototype [limited users] - usability testing - doctors feedback - design 8. paperwork and politics in parallel - to be able to test the app with patients and doctors 9. mass-market MVP test 9. photo by www.futureatlas.com 10. DOMAIN KNOWLEDGE just understanding chemotherapy it takes a lot of time: patient, nurse and doctors perspective photo by ickr.com/linusekenstam 11. ITS ABOUTTHETEAM WORK photo by ickr.com/brianneudorff Doctors, nurses, other medical staff, Patients, Friends, Family Support groups, NGO 12. John, Doctor STAKEHOLDERS MEETINGS Ana, Nurse Elise, patient Mary, Elise mother Steve, MD Carla, Hospital Manager Jake, Cancer Survivor Kristy, NGO member July, support group member photo by ickr.com/clement127 Understand all your stakeholders 13. LACK OF INFORMATION & COMMUNICATION ISSUES photo by ickr.com/choffee Many times the patient feels left in the dark 14. MAJOR ISSUES 1. no direct access to patients 2. doctors are hard to get 3. no user centred approach in design 4. the patient is not an active part 5. inefcient communication 6. high stress for doctors and patients 7. not enough time photo by ickr.com/denise_rowlands 15. CONTEXTUAL INTERVIEWS doctor patient do you have a good work/life balance? what is the missing communication link? what would you improve in the system? what is the patient not telling you? what is her/his life? what is missing from the treatment? what are the greatest challenges? is there any family support? photo by ickr.com/kbrookes Understand both the doctor and the patient 16. PERSONAS Steve, cancer survivor 32 construction manager iPhone, PM tools i want an efcient tool Elise, patient 23, medicine student HTC M9, Spotify being connected, music lover Mike, family member 57, math teacher Samsung Mini, basic usage I loved my old Nokia Paul, doctor 43, oncology expert AppleTablet, medical tools time is of the essence photo by ickr.com/dangoodwin 17. USER JOURNEY photo by ickr.com/clement127 Where is getting lost vital information? 18. LOW FI PROTOTYPES - INTERNAL USAGE ADVANCED PROTOTYPES SKETCHES USERTESTS The following slides are not available due to condentiality reasons. 19. DESIGN CHALLENGES time is of the essence - iterate fast, many times doctors opposition to change - must provide an easy to integrate solution doctors and patients want to test a real product - advanced prototype design process - lack of domain knowledge - work with an expert/doctor high level of stress in the system - patience and empathy access to patients - collaborating with a medical centre 20. Adrian Iacomi @adrianiacomi Thank you :)