design for care toronto launch 7.10.13

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Copyright © 2013, Peter Jones Design for Care Design Research for Human- Centred Healthcare Peter Jones Redesign Network OCAD University, Toronto

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4. I’m motivated by the possibility that designers can be care professionals, partners in front-lines of care practice, health promotion, and healthy communities. And I want to see the healthcare professions embrace and partner with design professionals in institutional and everyday care practice. The 9 chapters are organized in 3 sectors that today are quite separate by leadership, practice, and design focus: Consumer, Clinical, and Institutional. Technology and information design are subsumed to human needs and work practices. The service approach is both human-centered and system-oriented, so I recognize it looks complex, at first. Key principles - People, not patients. The necessity to embrace and cope with the natural complexity of the field. And for designers in one sector to learn from the others they have no access to, and to integrate experience knowledge across these.

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Page 1: Design for Care Toronto launch 7.10.13

Copyright © 2013, Peter Jones

Design for Care Design Research for Human-Centred Healthcare

Peter Jones Redesign Network

OCAD University, Toronto

Page 2: Design for Care Toronto launch 7.10.13

Copyright © 2013, Peter Jones

Publishing Innovations • Design series, design values • Print + PDF, Kindle, ePub • Images free on Flickr!

• Not about “selling books” • Book as a medium for field &

practice development • Continuous process, not an “end”

designforcare.com Booksite (DFCFRIENDS) caredesignnetwork.com Practice network @designforcare

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Copyright © 2013, Peter Jones

Why this book.

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Copyright © 2013, Peter Jones

Where care lives.

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Copyright © 2013, Peter Jones

“What if Designers were included in the team as care professionals?” Helping Medicine change from the inside. A design capacity for health practice & care organizations. • People not patients. • Systemic, touches every sector • Connects across disciplines • Cases, Methods, Experiences

Rethinking Care 1. Design as Caregiving 2. Co-Creating Care 3. Seeking Health

Rethinking Patients 4. Design for Patient Agency 5. Patient-Centered Care Service Rethinking Care Systems 6. Innovating Points of Care 7. Designing Healthy Information Technology 8. Systemic Design in Healthcare Innovation 9. Futures in Service Innovation

designforcare.com @designforcare

Design for Care: Innovations in Healthcare Experience

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Copyright © 2013, Peter Jones

YET DESIGN HAS MADE A HUGE DIFFERENCE. SHIFTING FOCUS FROM PRODUCTS – DEVICES, SOFTWARE & “THINGS” …

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Copyright © 2013, Peter Jones

Information & Online Services

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Copyright © 2013, Peter Jones

Devices & Medical Products

Zero diabetes armband concept Mauro Amoroso

Timesulin insulin pen

Toshiba CT scanner

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Copyright © 2013, Peter Jones Philips Design, from Coroflot magazine

Experiences

Philips CAT “dollhouse” sim

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Copyright © 2013, Peter Jones

TO SERVICES & CONTEXTS …

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Copyright © 2013, Peter Jones

Yet we are fragmenting Design Thinking

in Healthcare

• User Experience / Interaction Design

• Service Design

• Evidence-Based Design

• Environmental Design

• Participatory Design

• Generative Design

• Radical Innovation

• Bridging discipline: Sociotechnical systems

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Copyright © 2013, Peter Jones

Contexts of Care Design

12

SERVICE

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Copyright © 2013, Peter Jones

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Copyright © 2013, Peter Jones

1. People, not users nor patients. People behave as Health Seekers.

2. Hospitals / Practices, cultural & business. Cultural & business design sustain an enterprise in a community / system.

3. Healthcare is a service system. Service systems are designable.

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Copyright © 2013, Peter Jones

Design Geographies

Each level has a skillset. Complexity increases with each .0 Number of stakeholders > Need for collaboration > But design skills do not transfer up Healthcare may demand all 4. At least > 1 designer And > 1 clinician And > 1 manager

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Copyright © 2013, Peter Jones

We are all Health Seekers

• We do not self-identify as patients

• Can we design for persons?

• We all seek health – not “optimal” or perfect - but a homeostasis adapted to our lives.

• Health seeking journeys are both near-term recovery & full life’s cycle. Including the “healthy death.”

• Design aim is to fulfill care experiences.

1

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1 2

Two points have highest leverage – Primary care & Recovery

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Copyright © 2013, Peter Jones

Health seeking includes information seeking across media. Knowledge acquisition for making sense of health. Make the most of starting points!

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Copyright © 2013, Peter Jones

Health seeking design research

From observing to representing to interpreting to co-creating

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Copyright © 2013, Peter Jones

Design Documentaries by Health Design Lab hdlab.ca

1

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Copyright © 2013, Peter Jones

Care as Clinical Service

• Care “designed” today for efficiency & cost.

• Patient experience is not a standard of design / care.

• Patient-centered is not a new “user-centered” Risk of patient becoming a customer … Service systems include care teams, IT, community

• Design research differs by care context: Sequential, Iterative, Complex, Emergent

2

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Copyright © 2013, Peter Jones

Healthcare AS a design practice

2

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Copyright © 2013, Peter Jones

1.0 Care design for the health seeker in their own world

Fostering self-care & preventive awareness

2.0 Clinical encounter, exam, tests, diagnosis & treatment

3.0 Healthcare team, care planning & practice management

4.0 Care organizations, organizational strategy, business

model design & healthcare policy HIT is not separate - connects to each sociotechnical system.

Clinical Design 1.0 – 4.0

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Copyright © 2013, Peter Jones

Health-seeking in Context of Care

2

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Copyright © 2013, Peter Jones

Atrial Fibrillation Care Many health services treat chronic & complex illness as exceptions. Patients fall between the cracks & are shuttled around, getting fragmented care. By not adapting to the changing reality of the chronic demographic, costs rise as hospitals increase their exception cases.

Morra, et al (2010). Reconnecting the pieces to optimize care in Atrial Fibrillation in Ontario.

CD1 - CD4 1

2

3

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Atrial Fibrillation System Redesign The improvement of individual experience is a product of designed healthcare. Good, but not systemic. Service design must scale.

Redesigned as a service system - coordinated work practices, org protocols, patient communication

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Copyright © 2013, Peter Jones

CD2.0 - Afib Personas & Care Tools

2

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Copyright © 2013, Peter Jones

Healthcare Systems

• (To date) Big Box Healthcare is disrupted by cost & policy, not by innovation …

• Business, cultural & tech innovation. (The system is not just a collection of services)

• How should these social systems be designed for total health outcomes?

3

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Copyright © 2013, Peter Jones

How does a patient fall through the cracks?

3

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IDEO + CHCF Project Synapse

3

Continuity of Care

• Patients feel they are left on their own to figure out next steps.

• Patients with serious health issues work around the system to get the best care.

• Episodic and disjointed care hides valuable connections.

• Both patients and physicians doubt the reliability of (reported) health data.

• Patients feel they are left on their own to figure out next steps.

• Patients with serious health issues work around the system to get the best care.

• Episodic and disjointed care hides valuable connections.

• Both patients and physicians doubt the reliability of (reported) health data.

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Copyright © 2013, Peter Jones

Continuity of Care by IDEO + CHCF Project Synapse

IDEO + California HealthCare Foundation , 2012 3

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Copyright © 2013, Peter Jones IDEO + California HealthCare Foundation, 2012

• Represent what I truly care about

• Present information in a way I can relate to

• Help me cross-check my facts • Help me close communication

loops among my care team • Set me up to have clarifying

and guiding conversations • Clearly lay out the next steps • Show my trajectory over time

Value to Patient expressed as …

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Can we distribute care resources

among different points of connection?

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Copyright © 2013, Peter Jones

Strategic Foresight – Specialized Care

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Copyright © 2013, Peter Jones

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Copyright © 2013, Peter Jones

Peter Jones, Ph.D.

@designforcare

designforcare.com [email protected]`