dementia now the way forward

Scotland and Dementia Research

May, 2014-15Carol Hansen

Judith DeGrootSharon Leitch

What’s Ahead……

The numbers tell the storyScotland has a planSDWG tell it like it isScotland’s Lead

In care and resources In research

Scotland dementia project

Did you Know?Canadian dementia stats:

•747,000 Canadians living with Alzheimer’s or related dementia in 2011•1.4 million Canadians are expected to have the disease in 2031•$33 billion cost of dementia in 2011•$293 billion cost of dementia in 2040

Source: Canadian Institute of health Research


CostCMA President Dr. Louis Francescutti:$2.3 Billion a year could be better usedAccording to the CMA report (2014)$1000 per day for elder in hospital$ 130 per day for care in facility$ 55 for home care

Scottish Dementia Project

Did you know?

Canada’s dementia plan is focused on Research and Treatment.

We do not have a national strategic plan for supporting individuals with dementia!!

……work is starting to be done in BC


Fact

Behind every number and statistic is a PERSON living with dementia


Fact

From a Human Rights approach, Scotland has a

National strategic dementia Plan!!!


Quick look back - Scotland’s National Dementia Strategy 2010

5 Key Challenges

•Fear of dementia means people delay in getting a diagnosis

•Poor post-diagnosis support

•General healthcare services do not always respond well to those with dementia

•People with dementia and their carers are not always treated with dignity and respect

•Families and carers do not always get the help they need to protect their own wellbeing and care well

Alzheimer Scotland


Quick look back - Scotland’s National Dementia Strategy 2010

2 Key areas of Focus

•Post diagnostic support•Acute general health care

Alzheimer Scotland


Person Centered ApproachScotland dementia project

Outcomes - Scotland’s National Dementia Strategy 2010

Achievements

•Post diagnostic support

As of April 1, 2013, every person diagnosed with dementia is entitled to a minimum of one year of post-diagnostic support.

•Acute general health care

The chief Nursing Officer for Scotland is leading a programme of inspections into the care of elders, including those diagnosed with dementia, in acute care settings.

Alzheimer Scotland


Our Voice!The Scottish Dementia Working Group

(SDWG) a national campaigning group, run by people with dementia. “We are the independent voice of people with dementia within Alzheimer Scotland.”

The SDWG campaigns to: 1. improve services for people with dementia 2. improve attitudes towards people with dementia.

Membership is open to people with dementia.

http://www.sdwg.org.uk/


http://www.sdwg.org.uk/home/join-us/



A Human Rights ApproachScotland dementia project

SDWG Tells it like it is


Contribution

Purpose

Achievement

Friendship

Continuity

Community

Home

Belonging

Family

Choice

Significance

Taking risks

Security

“What makes your life worth living?”

Respect

Do not overlook my

skills

SDWG Tells it like it is“What is important in your environment?


Color Contrasts

Soft Furnishings

Bring a larger clock but put in the same place!

We need more light

We need daylight!

Reduce the glare

Open the window

Meaningless noise is confusing

Home EnvironmentsDesign Of Home Environments: interactive webpage

http://dementia.stir.ac.uk/design/virtual-environments/virtual-care-home





Following Scotland’s LeadIn Care and Resources: Iris Murdoch Building



Dementia Friendly StirlingScotland dementia project

Help CardScotland dementia project

Dementia Friendly Communities

Slide presentation provides a comprehensive review of Dementia Friendly Communities; also speaks to Social Movement, Human Rights and Rights of Persons Living with Disabilities.

http://www.slideshare.net/shibley/dementia-friendly-communities-my-talk-this-evening





Dementia Friendly CommunitiesMotherwell Town – Dementia Friendly

“Dementia is Everyone’s Business”Launched in Sept 2012

Award Winning 2013

http://www.careinfo.org/wp-content/uploads/2012/11/Shafii-Crockett.pdf


http://www.careinfo.org/wp-content/uploads/2012/11/Shafii-Crockett.pdf

Dementia Friendly Communities

Alzheimer Scotland

Tips for shops and Businesses

http://www.alzscot.org/assets/0001/2870/Hints_and_Tips_for_Shops_and_Businesses.pdf




The Art of Living with DementiaExpressive SpaceExploration of the use of creativity, art and drama for increasing the quality of life for people with dementia.

Video club; videos made by people living with dementia

http://www.innovationsindementia.org.uk/videos_myclub.htm


http://www.innovationsindementia.org.uk/videos_myclub.htm

Art: Expressive Space

http://www.programsforelderly.com/memory-artz-artists-for-alzheimers.php





Expressive Space

Allotments:http://www.dailyrecord.co.uk/news/local-news/200k-pledged-west-dunbartonshire-initiatives-5473469



ALZSCOT Initiative-Emotional support -Anchoring-Routine and reminders -Social interaction, out and about -Family/carer support-IndependenceIn the news http://www.bbc.com/news/health-23270822

Dementia Dogs: research project

http://www.bbc.com/news/health-23270822




Alzscot involvement

The principles for Research:

Alzscot and the SDWG, in collaboration with the University of Edinburgh, have developed the ground rules for research with the SDWG


Core PrinciplesCore Principle 1: I need hear what happenedCore Principle 2: Knowledge comes from all sorts of placesCore Principle 3: We need to be in a safe and secure environmentCore Principle 4: Keep it simple…….less is bestCore Principle 5: Why should anyone be let loose, who hasn’t had the training…….?Core Principle 6: Keep to “dementia time”



The time has arrived for Canadians to start planning for the care and support of people with dementia!

…..and we can take the lead!!!

It’s Time!


Thank You Kwantlen Polytechnic University

dementia now the way forward

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