middot middot~middot -d Ibullmiddot sab i I l ty

] smiddot t ud Ibull e s Vol 5 No 4

--~bullmiddot1

Fall 1985qmiddotua r te r ly

E d i t o r middot I r v i n 9 middot K e n n e t h Z oI a- M middota n a g i n g E d i middot t o middotr middot J o a n n e middotmiddotSe - i d n

Dear Reader

After -much pond~ring and reader comment we will ohce more change the quart~rly titl~ fr6m DISABILITY AND CHRONIC DISEASE QUARTERLY to DISABILITY STUDIES QUARTERLY This current (Fall) issue will be a gen~ric one as will be the Winter 1986 (deadline Ct~~ 1gt The Spring

_quarterly (deadline M~t~b 1) ~ill be on Women Disability and Gender-Re lated I ssue s Summer (deadline ~lUlt 1) wi 11 f OCUS onmiddot Media Depictions Future issues taking shape will be on Mental Health and Related Right~middotmiddot I ssues--e g middot informed consen t--and one with an international and compa-

rat i v e f 1 av or P 1 ease keep up the f 1ow o f i n format ion s u gge st i on s middotand reviews And please be middotsure you fill out the subscriptionreader surv~y forms Thanks

The Editors

FOCUS Doctors Needs Patients Losses

-bf rrv1ng-Kenneth Zola Socio16-gy Brandeismiddotmiddot-tfo(vemiddotrsity

In his 13th annual report to the Board of Overseers of Harvard Universlty- President Derek Box continues his ptactice of takirig hard look at Harvards pi6fessional schools The result imiddots MNeed~d A New

middot Way to ~rain Doctors reprinted in the May-June 1984 issue of tl~~~t~M~g~~lat~ middotSine~ where Harvard leads others are soon to foll-0w it is important to see what he says and doesnt say about-medical educati-0n He det~ils many of the so-called revolutions in medicine the educa- middot tional responses and the dbstacles to changemiddot To meet these and other challenges of the 21st century a Harvard Medical Faciulty c-0mmittee wasmiddot created and in its wake comes a new experimental curri6ulum Its ne~-nessbull is to this reader questionable At the top of its list of areas of knowledge that a new curriculum will convey was ~an understanding of the central physical chemical and biological principles and mechanism~ that underlie human health and disease including awarenessmiddotof the middot natural history and manifestations of- the diseasesM _While espousing a commitment to the centrality of science in the continuing education of doctors some other goals are also stressed in the report to understand the emotional psycholcigical and cultural underpinnings of human be-havior including the interweaving of mind and 6ody in illness and h~alth to know the financial and organizational aspects of health care to understand the vari6u~ factors which contribute to the prevention-ofmiddot illness But where is the i~cognitlon of the shift from acrite to chrorilc illness and frommiddotin-p~~ient to ambulatory car~ -~here is the acknowledgement of the growing role of ancillary and allied health professionals as well as self-care and middotself-help Where i~ the concern wmiddotith the corporatization of health care the gen~tic fix the middothigh technologt e~plosion thamp womeh and disability right~ movimerits Bok

bewails the fact that irt each class of 165 medic~l- ~tudents only 3 or 4 take courses ln which such topics might be covered Yet to refer to -~

such issues as part of the non-scientific side of medicine may lnad~ ve~tently reinforce the notion that they are of slight importance in the total cu~rlculum as well as their being of specific concern but ---not necessarily integrated into the currlculum--1e a part of gll courses

Perhaps itseems unfair to quarrel with a report which stresses the need for greater humanism in medi-clne and emphasizes the development of prop~r ~ttliudes_ As Bok notes many of the attitu~es are hardt pefen-middotmiddot

middot n i a 1s hone s t y i n t e gr i t y middot de pe n dab i 1 l t y sens i t 1 v 1 t y middot re s pons i b i 1 1 t y But not so with others such as the capacity to be with the sick and suffering and remain open to their needsmiddot recognition of ones own limitations recognition of the_ impact of power on self patients~ and co-workersbull I begin to wonder though what aims are being served wh~n near the end he reiterates why these skills will increase- in importance middot bull communication ls bound to take on greater importance in the future a_s doc_tors sll2i [editors emphasis] their pattemiddotnts to participate more

in deciding what chances to take with different tests and remedies and -as hlgher priority ls placed on motivating [editors emphasls1-patlents to Jo 11 ow treatments consc 1 en t 1 o us 1y and to av o l d var 1 o us k l n d s o f 1 1fe -threatenJng behavior 11

middot _

It ls at this _polrit that all my previous doubts resurface For these re~ommendations sound like the humanistic ag~nda of 25 years ago when 1 flrstventured into medical schools and hospitals But in the ensuing years the civil rights movement the womens movement and most recently the independent living movement have made me aware of the rights that all of us have Im bullpleased to hear that medicine ls -illing to allow what we now feel are bottom-line demands Fifteen years ago social scientists began to decry that non-compliance on th~ part of patients was due less to how doctors tried to mQtivate them

---thmiddotacn-~ -middotmiddotcrrrdegt-nEf~nys1c1-a~-s--mmiddoti-su~namiddotErrmiddotsct-a-nmiddotcrnrg_~-of the contemiddotxt -and meatfirfg ofmiddot alr the treatments they try far too often to impose on us And finally since 1976 many social scientists have fought against the strategy proposed by J-0hn Knowles in Q21ns ~~11tt sn~ Ettllns ~2t~~--namely that the- increased morbidity and unnecessary mortality ls due primarily to_ p~oples indulgences in bad habits or what ls now euphemistlcally called

middot life-style behavior We point instead to the ~ole that social cul-tu r-a 1 and poi 1t i ca 1 force s p1a y 1 n the et i o 1o g y o f many i 1 rne smiddotmiddotse s middot (eg bull pollution occupational hazards)~ in the inequitable treatment that far too many receive inmiddot the possible damage that medicine itself may do to us in gerieral and women in particular and the ever growing medlcallzatlon and thus control over our dally lives

The changes which Bok describes are_ indeed welcome and importan~ ones~ But unle~s we pay great attention to how and why they will be implemented we (the world of present and future patients_) may find ou~sel~es little better off -than before

_COMING EVENTS

A Mak Ing Changes Mal nstream Inc s Fall Conf_erence Sheraton_ Washington Hotel Washington DC Q~t~ 111~ 12~~- Workshops will present lnnovatlve approaches to mainstream disabl~d persons in the workplace--eg a skills training package designed to change attitudes and a computer l_zed job pl ace men t match 1ng program Contact Fritz middot Rumpel Mainstream Inc 1200 15th Stmiddotreet middotN~W bull Washington DC 20005 202833-1136 (Vo leeTDD)middot -

2

B Society for Social Studies of Science 1985 Meetingsj Rensselaer Polytechnic Institute Troy New York Q~~ g1gzL 2~middot Contact Edward Manter Chair omiddotr the Program Committee Program in the Historymiddot and Philosophy of Science 314 Decio Hall Univ~ of Notmiddotre Dame Notre Dame IN 46556 middot

c middot Symposium on New I~sues ln Stroke Diagnosis Treatment and Rehabilitation in the Elderly Case middotWe~tern Reserve Univ Qgt ~1H2l J J2~2middot Contact Ruth middotE Dunkle Directormiddot Center for Aging and Health Case Western Reserve University Cleteland OH 44106 216368-2692

D Clinital and P~ychosoclal Perspectives on G~riat~ic Practice~ 25th Anniversary Sclentlfic Meeting of the Boston Society for Gerontologic Psychiatry Bostonmiddot Park Plaza Hotel Boston Massachusetts HQ lZa J2sect~ Papers on practice and public policy will be presented Contact Mrs Sandra Whi~e_middot Boston Society for middotaerontologic Psychiatry 64 Hancock A~e Newtort Centre MA 02159 617527-5550 middot middot

E- Cardiology in Psychosocial Economic Political and Ethical _ ~erspectlves The Halloran House Hotel New York City New York~ H21 middot~2a J2~~ S~onsored by the NYC Affiliateof the American Heart Asso6 lrimiddotcooperation with the International Society for Humanism lri Cardiology Contact Humanism Conference American Heart Assoc New York City Affiliate 205 East 42nd Street New York NY 10017 202661-5335

P First Intern~tional Symposium on Grief and Bereavement Jerusalem Hilton Hotel Jerusalem Israel H2 1Q1i~ J2sect~ Topics include reactions and responses of the individual family socio-cultural uni-versal_ coping __ techniques Contact The Secretariat-- Firs-t- In-tmiddoternatjonal Symposium on Gri~f andB~reavement PO Box 50006 Tel Aviv 61500 Israemiddotl (03)middot 654 571

Gmiddot Tom_orrow s wmiddotoman A Conference for Di sabled Young Women and Theirmiddotmiddotmiddot Families Omni International Hotel Baltimore Maryland Ng sect1Q 12sect~ The conference will provide the opportunity for_ disabled y6u~g women ages 14 to 20 and themiddotir famll ies to exploremiddot a wide range ofmiddot options for the future as middotwell as to meet adult disabled women who nave successful middotcareers arid family lives Contact The Maryland Commission _for Womenmiddot 1123 N Eutawmiddot Street Room 603 Baltimore MD 21201

H~ Mental Retardation 7th Conference of the Asian Federation for the Mentally Retarded Taipei China li2 1Ql~a 12sect~ Contact Asian Federation for the Memiddotntally Retarded PO Boxmiddot 22-148 Taipei Taiwan (106) China middot

i REHA 85 Inteinatlonal Fair and Forum for the Dis~bled Du~seldorf Federal Republic of G~rmany Hg~ 222~ J~~~- Contact Public Relat1ons Co_uncll BormanWilliams Inc 156 Fifth Ave New York NY 10010

J Aging Through Time The Temporal Dimension 38th Annual Scientific Meeting of the_ Gerontological Society of America New Orlemiddotans Marriott Ne~ Orleans ~o~lsiana li2X~ ZiZimiddot12sect~ Contact The Ger6ntologiqalSocmiddotlety ofmiddot Amer lea 1411 -K Street Suite 300 middot Washington DC 20005- middot 202393-1411

K XI Congress of the Latin American Rehabilitation Me41cine middotAssoci~tiori (AMLAR) San Juan Puerto Rico 12~~ 1sect 12sect2 Contact Drmiddot

3

Arturo Arche-Matta PO Box 634 Cangaus Puerto Rico 00626

L~ -The Asmiddotsociationmiddot for Persons with Severe Haridicaps--TASH Boston Massachusetts C~s 2=1 1~2 The conference promotes educat 1 on andmiddot ihdepen~ent 11festyles of persons who have severely disabling conditlons by addressing such issues as comprehensive services for deafblind persons education for adolescents and young adultsi integrated voca-tl6nal _servic~s and normall~ed community options bontact TASH 7010 R6osevelt Way NE Seattle WA 98115 206523-8446 middot

M Systems-Integration Compounding the Cubes Hyatt Regency Baltimore Sheraton Inner Harbor Hotel Baltimore Maryland Q~~ ljl~ 1~~2-bull Sponsored by the Amer lean Heal th Planning Assoc and the Ve-terans Administration Dept rif Medicine and Surgery this conference brings together the many diverse interests having a stake in and concern for the rational and approptlate integration of acute and long term car~ into a coordinated health care system Discussion will focus on development of integrated systems the interrelationships between acute and long erm care needs and services and ways to resol~e statutory regulatory program and policy barriers to sticcessful systems integration across the country Contact American Health Plannirig Aisociation 1110 Vermont Ave KW Suite 950 Washington DC 20005 202861-1200

N Handex 86 Chinas First National Exhibition of Technology ~nd __ Equipment for the Disabled Beij Ing China ~-amiddotllllsl 1212- Contact China Welfare Fund for the Handicapped No 1 FUjian ~ane~ Dong Cheng bistri~t Beijing Peoples Republic of China

0 ___middot 2-_ri_Q __ 13_1 ~~_n_pga_l _Ast~~P~Qtftg _-~a~ty__ J nt~rven t 1 o~ Sympo~ 1 lm _t_J~ ty~_rs i tyof Guam l~n 2=1Q- 12sect Topi cs include nemiddoteds of parents of sp-ec l al -infantschildren medical and developm~ntal assessment and culturally relevant intervention strategies Contact W June Holstru~ Early Intervention Program College of Education University of Guam~ UOG Station Mariigilao Guam 96913

P - 19th Haw~ii International Conference on SystemSclences Honolulu H~waiij l1Q 1~sectsect Included will b~ a session on computers andmiddot hand- capped persons Contact K R Lucak Center for- Exe cut 1 ve De ve 1 op-men tmiddotmiddot College of Busiriemiddotss Admin Univ of Hawaii 2404 Malle middotway _c ~02 Honolulu HI 96822

Q East Meets West in Rehabliltation 5th World Congress of the Ihter~ n~tional Rehabilitation Medicine Association CIRMAV) Philippine Inter-n~tlonal Convention Center Manila Philippines ft~~ 1sect21~ 12~sect rhere are many general sessions as well as specific ones on Asian Indigenous ~etho~s of Treatment and middotInternational issues in prosthetics and _ middot orthot ics Contact I RHA V 86 Congress Seere tar lat co Ph 111 pp1 rie_ tmiddotong_ress Organ 1 z Ing Center 2 F middotRoyal Bay Terrace Un 1ted Nat1 ons Avenue Ermita Metro Manila~ PO Box 4486 Manila Philippln~s

R Rehabilitatlonstage 1986 an international exhibition of disability a_ids and_ equi_pment Karlsrube Federal Repu-bl ic of Germany tiacb 12sectsect

- Contact ~orgmann G~Bh Republicof Germany

Hohne middot

Strasse 39 D-4900 Dortmund Federal middot

RETROSPECTIVE

4

~

At thj Association for the Behavioral Sciences and Medical Educa- _ tlon Conference held at the Allenberg Inn in Boiking Springs P~nnsyl-vania onOct 14-1-7 1984 ABSAME contlnumiddoted its policy of plenary s~sslons devoted to a single issue The second session Distributiv~ Justice Some Key Concepts was present~d by Dr Artbur Zu6ker profes-sor of medical ethics-at the Milton S Hershey Medical Center and was middotsummarized in the Dec 1984 ABSAME Newsletter (145) middot

~ho should get-~hat and why are two Important questions which cannot be avQided One appioach to placing these questions in a broad ethical context was gi-ven by HT Engelhardt in his All1ocating Scarce Medical Resources 31166 July 5middot 1984 He stres~es two ide~s ( l) Our fate is in largemiddot part the result of two lotteries middotthe n~tural and the social whereby definition ther~ is no casual in-fluence from thesocial to the natural lottery With thJs lotterymiddot distinction in place another distinction becomes apparent some things are unfair and demand rectification whereas other things are merely unfortunat~ and do not demand rectification If the lottery view is combined _with a mix of privamiddotcy as a crucially important value themiddot p9litical and social need for pluralimiddotsm the idea that different mo~al perspeetives are probably very close in quility then the result is a certain picture of a society which sees its allocation decision~ limited primarily_by a need to balance privacy against beneficence

Briefly in our discussion we asked four questions CA) Is it true that the sociallottery does-not affect the natural lottery for if it does then themiddot unfairunfortunate distinction begins to look aftificial CBgt Does pluralism demand more than tolerance Does pluralism require idceptlng all ~iews or merely giving them a resonable hearing (C) middotrs it true that all moral perspectives are equal or close to equal for if pluralism does ~ot r~quire 2~~~~11ns all sorts of views and if some moral perspect~v~s can be ~hown het~e~_than other~ then the pur~orted middot-d fff cul ty rafsed oy a confl let betwen benef lcence amiddotnd privacy may be tesolvable (0) Does the value of private property support the general idea of privacy as a value for if it does not then perhaps the clash between doing good for others and the rlghta to say Leave me oui of

itu lsnot easily settled on the side of privacybull

SOLICITATIONS

A If you have knowledge of data-based ~esearch available (or in progress) on handicapped students and handicapped student service programming in higher education send the information (bibliographic rtotatl~n name of contact p~rson and description of study or reprint of attlcle) to Jane Jarrow PO Box 21192 Columbus OH 43221

B~ The Center for the Study of Attitudes Toward Persons with Disabill- middot ties at Hofstra Univ is attempting to compile a comprehensive listingmiddot of famous Cand infamous) disabled persons Send the names and briet middot descriptions of such persons to HE Yuker PhD Center _fo~ the Study of Attitudes Toward Per~ons with Disabilities Hofstra University Hebullp~tead NY 11550

C The Electronic Industries Foundation Rehabilitation Engineer[ng Center ltEIFRECgt seeks information on programs rendering services to_ help personsmiddotwith disabilities obtain needed commercially available rehab technology These services include but are not limited to the provision of financial assistance fo~ device procurement comparative ~r9duct information training in equipment usei device maintenancere~ Pair used egumiddotipment-exchangemiddotsmiddot and group purchasing opportunities

5

At thj Association for the Behavioral Sciences and Medical Educa- _ tlon Conference held at the Allenberg Inn in Boiking Springs P~nnsyl-vania onOct 14-1-7 1984 ABSAME contlnumiddoted its policy of plenary s~sslons devoted to a single issue The second session Distributiv~ Justice Some Key Concepts was present~d by Dr Artbur Zu6ker profes-sor of medical ethics-at the Milton S Hershey Medical Center and was middotsummarized in the Dec 1984 ABSAME Newsletter (145) middot

~ho should get-~hat and why are two Important questions which cannot be avQided One appioach to placing these questions in a broad ethical context was gi-ven by HT Engelhardt in his All1ocating Scarce Medical Resources 31166 July 5middot 1984 He stres~es two ide~s ( l) Our fate is in largemiddot part the result of two lotteries middotthe n~tural and the social whereby definition ther~ is no casual in-fluence from thesocial to the natural lottery With thJs lotterymiddot distinction in place another distinction becomes apparent some things are unfair and demand rectification whereas other things are merely unfortunat~ and do not demand rectification If the lottery view is combined _with a mix of privamiddotcy as a crucially important value themiddot p9litical and social need for pluralimiddotsm the idea that different mo~al perspeetives are probably very close in quility then the result is a certain picture of a society which sees its allocation decision~ limited primarily_by a need to balance privacy against beneficence

Briefly in our discussion we asked four questions CA) Is it true that the sociallottery does-not affect the natural lottery for if it does then themiddot unfairunfortunate distinction begins to look aftificial CBgt Does pluralism demand more than tolerance Does pluralism require idceptlng all ~iews or merely giving them a resonable hearing (C) middotrs it true that all moral perspectives are equal or close to equal for if pluralism does ~ot r~quire 2~~~~11ns all sorts of views and if some moral perspect~v~s can be ~hown het~e~_than other~ then the pur~orted middot-d fff cul ty rafsed oy a confl let betwen benef lcence amiddotnd privacy may be tesolvable (0) Does the value of private property support the general idea of privacy as a value for if it does not then perhaps the clash between doing good for others and the rlghta to say Leave me oui of

itu lsnot easily settled on the side of privacybull

SOLICITATIONS

A If you have knowledge of data-based ~esearch available (or in progress) on handicapped students and handicapped student service programming in higher education send the information (bibliographic rtotatl~n name of contact p~rson and description of study or reprint of attlcle) to Jane Jarrow PO Box 21192 Columbus OH 43221

B~ The Center for the Study of Attitudes Toward Persons with Disabill- middot ties at Hofstra Univ is attempting to compile a comprehensive listingmiddot of famous Cand infamous) disabled persons Send the names and briet middot descriptions of such persons to HE Yuker PhD Center _fo~ the Study of Attitudes Toward Per~ons with Disabilities Hofstra University Hebullp~tead NY 11550

C The Electronic Industries Foundation Rehabilitation Engineer[ng Center ltEIFRECgt seeks information on programs rendering services to_ help personsmiddotwith disabilities obtain needed commercially available rehab technology These services include but are not limited to the provision of financial assistance fo~ device procurement comparative ~r9duct information training in equipment usei device maintenancere~ Pair used egumiddotipment-exchangemiddotsmiddot and group purchasing opportunities

5

EIFREC a non-profit organliation will be working in cooperation with the Natlonal Institute of Hartdica~ped Research Contact Kenneth Reeb 1901 P~nnsylv~riia Ave NW Suite 700_Washlngton DC 20006 202955-5826

D Diane Driedge~ ls writing a Master~ thesis (Univ of Manito-

b~) on the history of bisabled Peoplesmiddot Internati-0nalmiddot (DPI) ~n interna-tlonal ~lliance of disabled peoples self help organizations in _100 countries She seeks information about disabled peoples organizations that existed nationally before 1980 it is often assumed by disabled peoples ~rdups in Canada that disabled Vietnam War Veterans were the first disabled people to become radicalized andmiddot lobby fo~ thtlr rights in the 1960s-early Os in the US it ls also assumed that their activities inspired other disabled people to begin to lobby for their rights through the Berkeley independent living movement and through organizat1ons of disabled people ~uch as the A~erican Coalitiori of Citizens with Disabilities Please send Information on the connection bet~een vets and the beginning of the self help m~vement in the US as _well as na-es and addresses of disabled people involved in the Vletn~m W~r protest movement to Diane Driedger 249 Simcoe St~ Winriipeg middot Man f tobamiddot R3G 1V9 CanaQa middot middot

CALL FOR PAPERS

A Toward the ~1st Centurymiddot an International Conference in Rehabilita-ti6n seeks papers for its May 28-30 1986 meetings in Ottawa Ontario Canada Specific content are~s are themes and future directions of research perspectives on treatment strategies rehabilitation and the el~erly social and cdmmunity integration issues and national policies alras and reallti~s Tho_ugh submission de~dl i~e _is ~t~t -~Q 12sect~_ check wnetnermiddotmiddotmiddotor middotnof~middotttmiddot-mlght-~6e e--ipoundErifaea - Contact Education cmiddotcfor-dfriatormiddot-Royal Ot~awa middotRegional Rehabilitation Center 505 Smyth Rd Ottawa Ontario Ca~ada -Kl~ 8M2 613737~7350 ext 602~

Bmiddot Theoretical Medicine invites papers for a special issue on The Physicians Influence on Patient Decision-Making Persuasion Manipula-

middottton and middotcoerci~nbull Deadline for final draft H2 1 12~2middot Contact Tom Tomlinson Medical Humanities Program C201 E Fee Hall Michigan State Univ East Lansing MI 48824 517355-7550 middot

C Health Education Quarterly seeks papers that draw implications for th~ practice ofhealth education and the preparation of health educators for its 1~86 thematic issue ~The Business of Health Promotion Ethical Dilemmasbull Topics include lssries resulting from the worksite as a context for practice the selling of health promotion services the assumptlon of free choice underlying risk reduction policy initiatives Deadline li2 12 12sect2 See journal issuesmiddotf9r autho_r instructtons Cqntact Nell H Gottlieb PhD D_ept of Physical amp Heal thmiddot Educationmiddot Univ of T~xas at Austin Austin TX 78712 512471-4405 middot

D The Society for the Study ofChronic Illness Impairment and Disability ltSSCIIDgt pronounced middots1d seeks persons interested in presenting papers and~r organizing or coordinating sessions for its A~ril 29-26 19amp6 meeting in Reno Nevada~ Send abstracts or Ideas tomiddot Daryl Evans Dipt of Soc Univ of Kansas Lawrence KS 66045 DY-H2 ~SL 12sect~ middot Paper abstracts should have a working title and sufficient elaboration for referees to get a sense of the -scope of the worR author name(s) affili~tlo~ a~dr~ss and telephone number~ SSCIID is a multi~middot

6

disclplina~t natlona1 organlz~tion dedicated to the study of isaues bull regarding persons with disabilities or persons with chronic lllnesses

Meeting for the last 5~years concurrently with The Western Social Science Association it provides an middotopportunity to share information about recent developme~ts in public policy advocacy independent llving current medical advances habllitat1ve and rehabilitative p~6-grams middotand techniques media presentations pbout chronic illnesses im-pairing conditions or disabilities etcmiddot as well as share and critique scholarlt works

E Child Develdpment invites papers for a special February 1987 issue focusing on schoolsmiddotand child development Research studies and theo~ retical r~views will deal with the relaton between schooling and devel-opment Cross-cultural ethnographic studies are welcome Deadline is

Jl~ 12sect~ Send to Harold W Stevenson Dept of P~ychology Univ of Michigan Ann Arbor MI _48109

F Papers are sought for the August 1986 American Sociological Association Meetings Deadline l~B~- Some sessions of possible bull fnteremiddotst middot C1) Age Strat 1 f icat ion andmiddot the L 1 fe Course--Dale middot Dannefer Andrus Gerontology Center B~x 77912 University Park Unfv of Southern California Los Angeles CA 90089 and Harriet B Presser D~pt ofSoc Univ of Maryland College Park MD 20742 (3) Bio-~thics--Mlchael ~ Sobel Dept of Soc Univ of Arliona Tucson AZ 85721 (9) Deviance and Social Contr61--Martln Sanchez Jankowski Dept of Soc~Univ middotof California-Berkeley Berkeley CA 94720 (10) Soci-ology of Disabillty--John B Christi~nsen and SharonBarriartt Dept of Soc and Social Wotk Gallaudet College Washington DC 20002 (15) Soctology of Emotions--Francesca Cancian Sch of Social Sciences Univ 6pound Cal ifor~ia Irvne CA 92717 (27) -M~dical Sociology--Ma-ry EW Goss Dept ofPubllc Health A-623 Cornell Medical College 1300 York Ave New York NY 20021 and JudithmiddotLorber Dept of Soc CUNY Graduatemiddot Center 33 West 42nd middotSt New York NY 1middot0036 (37) Sociology of Science and Sc_ientlfic Knowledge-Stephen Cole Deptof Soc State Univ of New York Stony Brook NY 11794 (38) Sociology of Sex and Gender--Margaret L Andersen Dept of Soc U~iv of Delaware Newark DE 19716 and Charles M Bonjean~ Hogg Fo~ndatlon for Mental Health Univ of-Texas Austin TXmiddot 78712 (47) Social -Impact of Technoiogy~-Sherry Turkle Massachusetts Institute of Technology Room E51-210C Cambridge MA 02139 Section organizers lnclude Sociology of Aging--Vern Bengtson Dept of Soc Univ of Southern California Los Angeles CA 90098 Medical Soclology--Wllliam A Rushing D~pt of Soc amp Anthro Vander-bilt Unimiddotv Nashville TN37235 Sociology of Sek and Gender--Myra Marx_ F~rree 30 Ridge Rqad Storrs CT 06268 middot

G The 108th Annual Meeting of the American Ethnological Society held jointly with thesouthern Anthropological Society and the Societyfor Medical Anthropology at Wrightsville Beach North Carolina Ap~ll 24-27middot 1986 will have middotas its theme The Cultu~e and Politics of Human Rep~o-middotduction middotTopics include ideologies of conception and gestation middot transactions in-reproductive rights ahdthe tight~ to children the social context of birth the practice and meaning ot celibacy the politics of new reproductive technologi~s sdcial movements organlz~d around reproductive ~ights and rights to parenthood the state and the control of -reproduction col on ial labor po1middot1cy_ andmiddot reproduct l on the demographic lmpli-cations of changing reproductive patterns middothuman repro-ductions and kin selection theory etc Paper abstracts are due sect~12~i~ Contact Naomi Quinn Councillor AES Board of Directorsmiddot Dept of

7

Anthro Duke University Durham NC 27706 919684-5012

H Professors Gary L Albrecht (Univ of Illinois at Chicago) and Rudimiddot Heredia (St Xaviers College Bombay) are co-chairing a session So~ clology and RehabilitationH at the International Sociological Asso-c i at i on me e t i n gs i n New De 1 h i I n d 1 a August 1 8 - 2 3 1 9 8 6 The y we 1 come any _papers in the area of sociology and rehabilitation including dif-ferent aspects of chronic disease and illness Particular attentionmiddot will be given to chronic illness disability and rehabilitation in third World countries Comparative papers are welcome Contact Prof Gary L llbrecht School of Public Health Univ of Illinois at Chicago PO Box 699a1 Chicago IL 60680 312996-7816 middot

I Other sessions of the Medical Sociology Research Section of the ISAs (see E abov~) 11th World Congress of Sociology t~at seek papers

(send anabstract to the chair) include NContributions ofmiddot Medical Soci-ology to Health and Health Servibes in India and South Asia chaired by Prof Debabar Banerji (Center of Social Medicine and Community Health Nehur Univ New Mehrauli Rd New Delhi-110067~ India) middotTraditionalmiddot and Alternative Healing in Relation to Cosmopolitan Medicihe chaired by-Dr Ste 11 a Q uah ( Dept middot o f Soc N at i ona 1 Un i v o f S i n gapore Ke nmiddott R i d ge 0511 Singapore) degSocio-economic Equity and Health chaired by Prof Raymond Illsley CMRC Medical Sdc Unit Univ of Aberdeen Westburn Rd Aberdeen AB9 2ZE Scotland UK) middotMarxist Medi~al-Health SociologyN chaired by Prof Vicente Navarro (The Johns Hopkins Univq Sch of Hyglene ~nd Public Health De~t of Health Policy and Manage-ent615 N~ Wolfe St Baltimore MD 21205) middotThe Sociology of Woikers HealthH middot ehaired by Prof Hans-Ulrich Deppe CKlinik~m der Goethe-Universitaet Zentrum der Psychosozialen Grundlagen der Medizin Abteilung fuemiddotr Medi-~inische SozJolomiddotgJe_ Th~_odor~_St~rn_-Kai 70 6000 Fra~kfurt am Min 70 Fed Rep~middot of Germany) middotThe Aged and the Medical Car~ Arena--An Uneasy ~eeting chaired by Prof Stan Ingman (Univ of Missouri-Columbia) Sch of Medicine Dept~ of Familyand Community Medicine NW514 Medical

Sciences Columbia MO 65212) middotwomen Poverty and Population ControlH chaired by Prof Heidrun Kaupen-Haas (Universltaet-Krankenhaus Eppen-dorf Medizinimiddotsche Soziolo~ie Martinistrasse 52-42 2 Hamburg 20 Fed Rep of Ge~mapy) bullsociological Research on Tropical Diseases chaired by Patricia L Rosenfield (Special Programme for Research and Tiaining in Tropical Diseases WHO~ TDR 1211 Geneva 27 Switzerland) Compara-

tiv~ Studies of Health Systems in Industrialized middotNationsmiddot chaired by Prof Derek G Gill (Univ of Missouri-Columbia Sch of Medicine Dept of Family and Community Medicine 137 Clark Hall Columbia MO 65211) and HAdvances in Medical-Health Sociologybull chaired by Prof Rance PL Lee (Director Inst of Social Studies The ChineseUniv of Hong Kohg Shatin NT Hong Kong)

J Legal Studie~ Fo~um the journal of the American Legal Studies Ass6ciation seeks manciscripts (no longer than 25 double~spaced pages) that brl~g humanistic critical or interdisciplinary ~erspective to law~related ls~ues Send 3 copies or proposals to Da~id a~ Friedrichsi middot Editor Legal Studie~ Forum Univ of Scranton Scranton PA 18510

K Contemporary Ethnographic Studies a new monograph series-welcomes middot studies representing diverse theoretical perspectives in contemporary ethnographic researeh No mor~ than 2 titles per year will be pub-lished Send inquiries brief synopsis and table of contents (no manu-scripts) to Jaber Gubrium S~ries Editor Dept of Soc amp Anthro Marquett~ Univ Milwa~ke~ WI 53233

8

disclplina~t natlona1 organlz~tion dedicated to the study of isaues bull regarding persons with disabilities or persons with chronic lllnesses

Meeting for the last 5~years concurrently with The Western Social Science Association it provides an middotopportunity to share information about recent developme~ts in public policy advocacy independent llving current medical advances habllitat1ve and rehabilitative p~6-grams middotand techniques media presentations pbout chronic illnesses im-pairing conditions or disabilities etcmiddot as well as share and critique scholarlt works

E Child Develdpment invites papers for a special February 1987 issue focusing on schoolsmiddotand child development Research studies and theo~ retical r~views will deal with the relaton between schooling and devel-opment Cross-cultural ethnographic studies are welcome Deadline is

Jl~ 12sect~ Send to Harold W Stevenson Dept of P~ychology Univ of Michigan Ann Arbor MI _48109

F Papers are sought for the August 1986 American Sociological Association Meetings Deadline l~B~- Some sessions of possible bull fnteremiddotst middot C1) Age Strat 1 f icat ion andmiddot the L 1 fe Course--Dale middot Dannefer Andrus Gerontology Center B~x 77912 University Park Unfv of Southern California Los Angeles CA 90089 and Harriet B Presser D~pt ofSoc Univ of Maryland College Park MD 20742 (3) Bio-~thics--Mlchael ~ Sobel Dept of Soc Univ of Arliona Tucson AZ 85721 (9) Deviance and Social Contr61--Martln Sanchez Jankowski Dept of Soc~Univ middotof California-Berkeley Berkeley CA 94720 (10) Soci-ology of Disabillty--John B Christi~nsen and SharonBarriartt Dept of Soc and Social Wotk Gallaudet College Washington DC 20002 (15) Soctology of Emotions--Francesca Cancian Sch of Social Sciences Univ 6pound Cal ifor~ia Irvne CA 92717 (27) -M~dical Sociology--Ma-ry EW Goss Dept ofPubllc Health A-623 Cornell Medical College 1300 York Ave New York NY 20021 and JudithmiddotLorber Dept of Soc CUNY Graduatemiddot Center 33 West 42nd middotSt New York NY 1middot0036 (37) Sociology of Science and Sc_ientlfic Knowledge-Stephen Cole Deptof Soc State Univ of New York Stony Brook NY 11794 (38) Sociology of Sex and Gender--Margaret L Andersen Dept of Soc U~iv of Delaware Newark DE 19716 and Charles M Bonjean~ Hogg Fo~ndatlon for Mental Health Univ of-Texas Austin TXmiddot 78712 (47) Social -Impact of Technoiogy~-Sherry Turkle Massachusetts Institute of Technology Room E51-210C Cambridge MA 02139 Section organizers lnclude Sociology of Aging--Vern Bengtson Dept of Soc Univ of Southern California Los Angeles CA 90098 Medical Soclology--Wllliam A Rushing D~pt of Soc amp Anthro Vander-bilt Unimiddotv Nashville TN37235 Sociology of Sek and Gender--Myra Marx_ F~rree 30 Ridge Rqad Storrs CT 06268 middot

G The 108th Annual Meeting of the American Ethnological Society held jointly with thesouthern Anthropological Society and the Societyfor Medical Anthropology at Wrightsville Beach North Carolina Ap~ll 24-27middot 1986 will have middotas its theme The Cultu~e and Politics of Human Rep~o-middotduction middotTopics include ideologies of conception and gestation middot transactions in-reproductive rights ahdthe tight~ to children the social context of birth the practice and meaning ot celibacy the politics of new reproductive technologi~s sdcial movements organlz~d around reproductive ~ights and rights to parenthood the state and the control of -reproduction col on ial labor po1middot1cy_ andmiddot reproduct l on the demographic lmpli-cations of changing reproductive patterns middothuman repro-ductions and kin selection theory etc Paper abstracts are due sect~12~i~ Contact Naomi Quinn Councillor AES Board of Directorsmiddot Dept of

7

Anthro Duke University Durham NC 27706 919684-5012

H Professors Gary L Albrecht (Univ of Illinois at Chicago) and Rudimiddot Heredia (St Xaviers College Bombay) are co-chairing a session So~ clology and RehabilitationH at the International Sociological Asso-c i at i on me e t i n gs i n New De 1 h i I n d 1 a August 1 8 - 2 3 1 9 8 6 The y we 1 come any _papers in the area of sociology and rehabilitation including dif-ferent aspects of chronic disease and illness Particular attentionmiddot will be given to chronic illness disability and rehabilitation in third World countries Comparative papers are welcome Contact Prof Gary L llbrecht School of Public Health Univ of Illinois at Chicago PO Box 699a1 Chicago IL 60680 312996-7816 middot

I Other sessions of the Medical Sociology Research Section of the ISAs (see E abov~) 11th World Congress of Sociology t~at seek papers

(send anabstract to the chair) include NContributions ofmiddot Medical Soci-ology to Health and Health Servibes in India and South Asia chaired by Prof Debabar Banerji (Center of Social Medicine and Community Health Nehur Univ New Mehrauli Rd New Delhi-110067~ India) middotTraditionalmiddot and Alternative Healing in Relation to Cosmopolitan Medicihe chaired by-Dr Ste 11 a Q uah ( Dept middot o f Soc N at i ona 1 Un i v o f S i n gapore Ke nmiddott R i d ge 0511 Singapore) degSocio-economic Equity and Health chaired by Prof Raymond Illsley CMRC Medical Sdc Unit Univ of Aberdeen Westburn Rd Aberdeen AB9 2ZE Scotland UK) middotMarxist Medi~al-Health SociologyN chaired by Prof Vicente Navarro (The Johns Hopkins Univq Sch of Hyglene ~nd Public Health De~t of Health Policy and Manage-ent615 N~ Wolfe St Baltimore MD 21205) middotThe Sociology of Woikers HealthH middot ehaired by Prof Hans-Ulrich Deppe CKlinik~m der Goethe-Universitaet Zentrum der Psychosozialen Grundlagen der Medizin Abteilung fuemiddotr Medi-~inische SozJolomiddotgJe_ Th~_odor~_St~rn_-Kai 70 6000 Fra~kfurt am Min 70 Fed Rep~middot of Germany) middotThe Aged and the Medical Car~ Arena--An Uneasy ~eeting chaired by Prof Stan Ingman (Univ of Missouri-Columbia) Sch of Medicine Dept~ of Familyand Community Medicine NW514 Medical

Sciences Columbia MO 65212) middotwomen Poverty and Population ControlH chaired by Prof Heidrun Kaupen-Haas (Universltaet-Krankenhaus Eppen-dorf Medizinimiddotsche Soziolo~ie Martinistrasse 52-42 2 Hamburg 20 Fed Rep of Ge~mapy) bullsociological Research on Tropical Diseases chaired by Patricia L Rosenfield (Special Programme for Research and Tiaining in Tropical Diseases WHO~ TDR 1211 Geneva 27 Switzerland) Compara-

tiv~ Studies of Health Systems in Industrialized middotNationsmiddot chaired by Prof Derek G Gill (Univ of Missouri-Columbia Sch of Medicine Dept of Family and Community Medicine 137 Clark Hall Columbia MO 65211) and HAdvances in Medical-Health Sociologybull chaired by Prof Rance PL Lee (Director Inst of Social Studies The ChineseUniv of Hong Kohg Shatin NT Hong Kong)

J Legal Studie~ Fo~um the journal of the American Legal Studies Ass6ciation seeks manciscripts (no longer than 25 double~spaced pages) that brl~g humanistic critical or interdisciplinary ~erspective to law~related ls~ues Send 3 copies or proposals to Da~id a~ Friedrichsi middot Editor Legal Studie~ Forum Univ of Scranton Scranton PA 18510

K Contemporary Ethnographic Studies a new monograph series-welcomes middot studies representing diverse theoretical perspectives in contemporary ethnographic researeh No mor~ than 2 titles per year will be pub-lished Send inquiries brief synopsis and table of contents (no manu-scripts) to Jaber Gubrium S~ries Editor Dept of Soc amp Anthro Marquett~ Univ Milwa~ke~ WI 53233

8

Anthro Duke University Durham NC 27706 919684-5012

H Professors Gary L Albrecht (Univ of Illinois at Chicago) and Rudimiddot Heredia (St Xaviers College Bombay) are co-chairing a session So~ clology and RehabilitationH at the International Sociological Asso-c i at i on me e t i n gs i n New De 1 h i I n d 1 a August 1 8 - 2 3 1 9 8 6 The y we 1 come any _papers in the area of sociology and rehabilitation including dif-ferent aspects of chronic disease and illness Particular attentionmiddot will be given to chronic illness disability and rehabilitation in third World countries Comparative papers are welcome Contact Prof Gary L llbrecht School of Public Health Univ of Illinois at Chicago PO Box 699a1 Chicago IL 60680 312996-7816 middot

I Other sessions of the Medical Sociology Research Section of the ISAs (see E abov~) 11th World Congress of Sociology t~at seek papers

(send anabstract to the chair) include NContributions ofmiddot Medical Soci-ology to Health and Health Servibes in India and South Asia chaired by Prof Debabar Banerji (Center of Social Medicine and Community Health Nehur Univ New Mehrauli Rd New Delhi-110067~ India) middotTraditionalmiddot and Alternative Healing in Relation to Cosmopolitan Medicihe chaired by-Dr Ste 11 a Q uah ( Dept middot o f Soc N at i ona 1 Un i v o f S i n gapore Ke nmiddott R i d ge 0511 Singapore) degSocio-economic Equity and Health chaired by Prof Raymond Illsley CMRC Medical Sdc Unit Univ of Aberdeen Westburn Rd Aberdeen AB9 2ZE Scotland UK) middotMarxist Medi~al-Health SociologyN chaired by Prof Vicente Navarro (The Johns Hopkins Univq Sch of Hyglene ~nd Public Health De~t of Health Policy and Manage-ent615 N~ Wolfe St Baltimore MD 21205) middotThe Sociology of Woikers HealthH middot ehaired by Prof Hans-Ulrich Deppe CKlinik~m der Goethe-Universitaet Zentrum der Psychosozialen Grundlagen der Medizin Abteilung fuemiddotr Medi-~inische SozJolomiddotgJe_ Th~_odor~_St~rn_-Kai 70 6000 Fra~kfurt am Min 70 Fed Rep~middot of Germany) middotThe Aged and the Medical Car~ Arena--An Uneasy ~eeting chaired by Prof Stan Ingman (Univ of Missouri-Columbia) Sch of Medicine Dept~ of Familyand Community Medicine NW514 Medical

Sciences Columbia MO 65212) middotwomen Poverty and Population ControlH chaired by Prof Heidrun Kaupen-Haas (Universltaet-Krankenhaus Eppen-dorf Medizinimiddotsche Soziolo~ie Martinistrasse 52-42 2 Hamburg 20 Fed Rep of Ge~mapy) bullsociological Research on Tropical Diseases chaired by Patricia L Rosenfield (Special Programme for Research and Tiaining in Tropical Diseases WHO~ TDR 1211 Geneva 27 Switzerland) Compara-

tiv~ Studies of Health Systems in Industrialized middotNationsmiddot chaired by Prof Derek G Gill (Univ of Missouri-Columbia Sch of Medicine Dept of Family and Community Medicine 137 Clark Hall Columbia MO 65211) and HAdvances in Medical-Health Sociologybull chaired by Prof Rance PL Lee (Director Inst of Social Studies The ChineseUniv of Hong Kohg Shatin NT Hong Kong)

J Legal Studie~ Fo~um the journal of the American Legal Studies Ass6ciation seeks manciscripts (no longer than 25 double~spaced pages) that brl~g humanistic critical or interdisciplinary ~erspective to law~related ls~ues Send 3 copies or proposals to Da~id a~ Friedrichsi middot Editor Legal Studie~ Forum Univ of Scranton Scranton PA 18510

K Contemporary Ethnographic Studies a new monograph series-welcomes middot studies representing diverse theoretical perspectives in contemporary ethnographic researeh No mor~ than 2 titles per year will be pub-lished Send inquiries brief synopsis and table of contents (no manu-scripts) to Jaber Gubrium S~ries Editor Dept of Soc amp Anthro Marquett~ Univ Milwa~ke~ WI 53233

8

L The International Visual Sociology Assoclatibn suggests the following publication possibilities for audio-visual work n Humani_ty and Society journal of the Humanist Sociology Ass_oc publishes an audio-visual section Contact Steve Papson Editor Dept of Soc St Lawrence Univ Canton NY 13617 2) Sociologists forWomen in Societys Netwo~k has a new audio-v1sual remiddotvtew section Contact Therese LBaker Dept of Soc DePaul Univ 23Z3 N Seminary Ave C~icago IL 60614 middot

M middot

Adult Foster Care Journal the first professional journal to present a unified view of developmental policy dlinical practice and research on adult fo~ter care~ seeks articles on such topics- as clinical

practice with mentally 111 persons ~entally retarded persons arid dependent elderly people inquiries middotintomiddotthe practice of adult foster care managJrsproviders who are resistive to supervision or whose actions pose ethical questions community resistance to developing pro-gra~s and how to form coalltl-0ns or bases of power that influence poli-ticians and policy makers and _the impact of political ideology on middot administration clinical practice and empirical re~earch Artmiddoticles from the perspectives of social work ~ociology social policy psychology psychiatry public and business administration higher education and other relevant discipliries are welcome Contact John M McCain PhD ASCW Edittir Adult Foster Care Journal 310-B Kiowa St~ Leavenworth KS 66048 The quarterly annual subscription ratmiddote is $29individuals and $69irtstitutlons Subscription in-formation Htiman Sciences Press 72 5th Ave New York NY 10011 middot

OPPORTUNITIES FUNDING CONTESTS PROGRAMS

A United Cerebral Palsy and Services for the Handicapped (UCPSH) and K~l~lg2~~2Q~ announce the third International Kaleidoscope Poetry Fic-tion and Art Awardsi 1985-1986 Open to sll ~riters and artists the competition (in the English language) bas as its th~me the experlenc of disability A RbulladersEntry Fee of $400 USA and $500 International (payment in International money orders) will be charged p~r persori Send checks and requests for con~estmiddot rules and guidelihes to Kaleidoscope ContestUCPSH 326 Locust St Akron OH 44302 Deadline is ~gngsi~ Q~t Z~ 12~2middot There will be 1 AWARD OF EXCELLENCE (cash and certificategt winner in each of the 3 categories of poetry fiction art The 3 MERIT AWARD winners lri each categoiy wil1 receive certificatesmiddot All wirtners will be considered for publication inmiddotKAlt1gg~~2Q~

Q middot PhD students whose dissertations will address critical issue~ ind problems in health servicesdelivery may apply f6r grarits from the N_ational Center for Health Services Research and Health Care Technology ASses~ment ltNCHSR) Each grant is limited to $20000 in total direct costs Deadline l2i 1 12~2 or ~s~b l -2poundisect Contact Chief Review and Advl~ory Servic~s Program ~CHSR 1~52 ParkBuildlng Rockville MD 20857 301443-2345

C Harvard Medical School Dept of Psychiatry offers one-y~ and tw~-yr clinical restarch training fellowships poundor psychiatric r~si~ dents and other MDs a~d PhDs in social psychological and biological sciences starting July 1 1986 Deadline 12~~-=- 12~~ Stipend middot $15996-$30000 middotcontact with area of research interest Karen Lyon~ Box F Clinical Research Training Program 74 Fenwood Rd Boston MAmiddot 02115 617734-0031~

9

Dmiddot The Presidents Committee on Employment of the Handicapped and The middot American Association of Disability Communicators anno~nces its Second Annual Hedla Awards Competition to honor and promote eicellence ln media m~terials concerning disability produced in the US Commercial andmiddotnon-

profit ( including government) producers are el iglble -for awards middotJn 3 categories public serviceannouncements (including radio tv andmiddot print advertisements) public affamiddotirs programs (including news shows

middotnews articles series of news showsarticles radio and t v news specials) public awareness programs (including mixed-media campaigns feature storiesgt Deadline Q~g 12- l~sect2 Contact Juanita Campbell PCEH SuJmiddotte 600 1111-20th St NW Washington DC 20036 202653~5008

E 1 Harvard Law School offers 4-5 1986-87 Liberal Arts Fellowships to aoll~geunlversity teachers in the arts and sciences for a year atmiddotthe school for the purpose of enabling teachers in the social sciences or humanitie~ to study fundamental techniques concepts and aims of law so they wll~ bebetter able to use legal materials and Insights in their t~aching and researchFellows will take at least 2 first~yr law courses in addition to more advanced courses and will participatamp in a joint seminar The grant covers tuition and~ health fee only as well asoffice space Applic~tions should include a biographical resume statement of applimiddotcants planned achievements from the fellowship and 2 letters of recommendation (mailed to the Chair directly fro- referees) Deadline 12~ 121~ for early acceptance otherwise-~~~ 12 1~sectsectContact Chair Committee on Liberal Arts Fellowships Harvardmiddot~aw School Cambridge HA 02138

F The World Rehabilltaton Fund offers middot10 fellowshi~s for 3-5 week study-visi ts_ ~abroadmiddot awarde_cl tn the seco-nd yearmiddot of the NIHR grant for th~ International Exhcnge of Expetts and I~formatiofimiddot 1n Rehabilit~tion CIEEIR) to US rehabilitation experts who successfully complete the application process which includes external peer review IEEIRs overall purpose is to bull1mport 11 knowledge from other countries (including Canada) in order to fill knowledge gaps in the US NIHR priorities are used as guidelines in determining the knowledge areas for which study-visits middot should be planned The application process takes at least 4 months to complete and is often longer if the individual applying does not ~lready have the contacts abroad to arrange the study-visit Contact Diane Emiddot~ Woods Proj~ct Directo~ World Rehabilitation Fund Inc~ 400 East 34 Stmiddot New York NY 10016 212679-2934

G The Institute for Advanced Study announces awards for post-doctoral research fel lowships in the School of Social Science for 1986-87 Contact School-of Social Science Institute for Advanced Study Olden Lane Princeton NJ 08540 middot

CURRENT RESEARCH PROJECTS AND RESOURCES

A Donald E Galvin PhD ltPrincipal Investigator) Denise G Tate PhD (Director) and Rochelle V Habeck PhD (Research A~sociate) of the Unlverslty Center for Internaticinal Rehabilitation (Mibhigan State Univ 513 Erickson Hall Ea~t L~nslng MI 48824 517355-1824) have received funds from the National -Institute for Handicapped Research to conduct a 3-yr research project on disability m-anagement to study incidence and experience of disability costs and outcomes and service ~trategles operational in 3 major Michigan employ~rs They propos~ to investigatemiddot the Impact of__ disability management and rehabil_itation as

10

offered through these employers upon such factors as disability pay~ ments time off the job continued employment and the efficacy of pri-vate and public rehabilitation through 1 sets of data macroeconomic factors Ce g middot genera_l economic trends the extent of demand for labor in the ec-0nomy the amount of labor forcemiddot ejection) organizational fact6rs (eg employer policies service strategies and costs) and employee outcomes (eg healthdisability status job performance time off work) The projects aimmiddot is to prevent an employees passing frommiddot productive activity to dependence on di sab i 1 it y benefits ltor to reduce the amount of time one is receiving disability benefits and workers compensationgt by maintaining hisher working capacity and adjustingwork to hlshir capabilities If_successful this investment may prevent the disability process and thus limit the growth of cost to e~ployers the social suppo~ts system and the chronically ill injuredmiddot or disabled workers They will also conduct a systems analysis of specific pro6es-~es within the workplace of ~ac~ employer participant Based on factors id~ntified as influential to costs and outcobulles the study will offer a set of re~ommendations to improve the effici~ncy and effectivenessmiddot of each employers disability man~gement and rehabilitation program~ and policies

B~ Dr Nicola Robinson ltHonorary Lecturer in Community Medicine The Middlesex H6spital Medical School Horace Joules Hall Ceritral Middlesex Hospital London NWlO 7NS UK) is studyirig the role of ps~ch~s~cial fa-ct ors ( 1 i f e e vents and d 1 f f i cu 1t i es ) i n the ae t i o 1o g y o f i n s u 1 i n dependent (Type 1) diabetes mellitus in newly diagnosed diabetics ~iblings and age matched neighborhood controls Subjecti aged 17-34 tears and diagnosed in the last 18 months were interviewed in their homes using the Life Events and Difficulties Schedule ltLEDS) of Brown middotand Harris Bedford College London~ The LEDS interv lew takes into ~6count various dimensions such as the degree of threat involved in the ~ituation the focus of the event Cie did the event happen to the middot s~bject or someone els~) and the i~dep~ndence (did the subject cause the

middotevent to happen -or was it related to the illnessgt The technique is highly reliable Informatio~ was c6llected over the 3-yr period pre- middot ceding the diagnosis of diabete~ as it is known that islet cell anti-middot bodies can be detected up t6 3-yrs prior to clinical diagnosis of diabetes Diabetics had a higher frequency of~l or more severe life events prior to d iagnomiddots is they al so had a h lgher percentage of 2 or more severe life events prior to diagnosis and their frequency of s~vere difficulties was also higher There was no relationship between the presence of Type A behav_ior mmiddot~asured by the Hunter Wolf rating scale b~tween diabetics ~nd siblings and neighborhood controlsmiddot Prelimiddotminary findings suggest that severe life events and diffic~lties may be in~ valved in the precipitation of insulin dependent diabetes since thete w~re fewer severe life events and difficulties iri siblings sharing the same environment and that stress may play a role in triggering insulin dependent diabetes This research is now continuihg in collaboration with the BartsWindsorMiddlesex Prospective Family Study to clarify the role of stress in g~netically susceptible individuals by investigatingmiddot ~he tempofal relationship between life events and immunological ~vents~ Dr-Robinson is alsb studying the role of psych~social factors in th~ development of diabetic co~plications anddisturbances in diabetic coh-tf~l ltreported by Dr Robinson)

c~ Under a ~rant fromthe National Center for Health Services Res~arch 1NCHSR) r~searchers at the Univ ofRochester developed a new approacho home care f6r the elderly who are ho~~b6~nd and middotch~onlcally 111 a

1 1

team consisting of a physician a geriatric nu~se practitioner and a social ~orke~ providing round-the-clock on-call medical ~are top~-tfents in their homes A randomized controlled trial showed that the ~pproach provided effective less costly care to the terminally ill A~ed patients treated by the team but who died during the course of the smiddottudy received more services at home and were hospitalized about half a~ much during their final 2 we~ks than patients in the c6ntrol groupwh6 received traditional home-care services Though costs of hom~ care pr6vided by the team were higher than costs of traditional home car~ because more services were provided overall costs for the patients treated by the team were about a third less than total costs for the control group owing to decrea~ed h6spitalizations Moreover satisfac-tion with the care was smiddotignificantly greater among team care patients and their family membeis Study results point to at least 1 gro~p that could be effectively middottargetedbull for home health services according to Annemarie Groth-Juncker MD in the ~2~Cll~l Qf 1b~ Am~~1~~ll sect2~1~1Xi April 1984 Details of the project are in middotHome Healthcare Team Randomi~ed Trial of a New Team Approach to Home CareH available from National Techn ical Infor mat i omiddotn Services (Spr i ngf ie ld VA 22161 703487-4650) as PB84-163955 themiddot data tape from the study PB84-163930 and corresponding code book PB84-163948 may ~lso be purchased from NTIS

D In 1980 Lutheran General Hospital beg~n an inquiry into therela-tionship of faith traditions and modern medicine Initially Project T~n middotfocused ~rimarlly on historical and theological research Recently however it has begun to look intomiddot the variety of health-care practices-middot especially in the middotclinic (oncology neonatal and pediatric intensive care units) The study will describe the current realitymiddot faced by pat L~_nts_ fam 11 ies ~Phis le Lans n_micro_rses chaplains social workers and

others who are involved in the critical decisionsmiddot surrounding the middotissue 6f cessation of treatment it will culminate in more formal and long-middot t~rm research-projects on this and otherrelated questions The guiding question for the clinical phase remains What ls the impact of faith traditions middoton decision~ made by health-care professionals patients arid families regarding decisions to forega treatment Thus far 10 scholars have been commmiddoti ss ioned to prepare studies on various_ faith trad It ions tl~a11b sng tf~g1~ln~ 1n 1-b~ ~Y1b~tan Ita9lt12n by Martin E Marty ltFaJ r-fax M Cone Dlstinguished Service Prof of Modern Christiahlty Univ of Chicagogt Fall 1983 tl~altb an~ Mt~1~1n~ 1D tb~ Btf2cm~g Ita91112b byKenneth LVaux (Prof of Ethics Univ of Illinois Medical Center Chicago ILgt Winter 1984 -tl~al1b ang ~~gl~ln~ 1n lb~ B2man ~alb211~ Ir~glll~U by Richard A McCormick (Rose F Kennedy Prof of Christian Ethics Kennedy Institute Georgetown Univ) Fall 1984j tl~~ltb ~ll~

ln lb~ ~~l~b Ic2gltl2n by Rabbi David Feldman (Jewish Theo-logical Seminary _New York NY) Winter 1985 tl~al1b ang 1n lb~ Ansll~all Itag1112n by Davi~ H Smith ltProf of Religious Studies Indiana Universitygt Summer 1985 Htal1b ~ng Mt91~1n~ in tb~ l~lam1~-Ita91112n by Fazlur Rahman (Prof of Near Eastern Languages Univ of Chicagogt Stimmer 1985 Health and Medicine in tht Mormon Iradltlgn by Lester Bush MD (Chief of Clinical Activities Di~ Ofc of Medical Services Central Intelligence Agency Washington DC) Fall 1986 tl~~ltb ang H~g1~1n~ ln 1b~ tllngy Ita91112n by Prakosh Desaimiddot MD (Direc of Psychiatric Services VA Hospital Univ of Chicago Medical Center Chicago IL) Winter 1986 tl~allb ang M~gl~lll~ 1n tb~ ~a~1~tll Ct1b292 Itali12ll by middotStanley S Harakas ltProf of Christian Ethics H6ly Cross Greek Orthodox School of Theology Brookline MA) Winter 1986 andmiddottl~allb ln lbt ~~~YlatLliYmanl~l Ita91l12n by H Tristra~

12

Dmiddot The Presidents Committee on Employment of the Handicapped and The middot American Association of Disability Communicators anno~nces its Second Annual Hedla Awards Competition to honor and promote eicellence ln media m~terials concerning disability produced in the US Commercial andmiddotnon-

profit ( including government) producers are el iglble -for awards middotJn 3 categories public serviceannouncements (including radio tv andmiddot print advertisements) public affamiddotirs programs (including news shows

middotnews articles series of news showsarticles radio and t v news specials) public awareness programs (including mixed-media campaigns feature storiesgt Deadline Q~g 12- l~sect2 Contact Juanita Campbell PCEH SuJmiddotte 600 1111-20th St NW Washington DC 20036 202653~5008

E 1 Harvard Law School offers 4-5 1986-87 Liberal Arts Fellowships to aoll~geunlversity teachers in the arts and sciences for a year atmiddotthe school for the purpose of enabling teachers in the social sciences or humanitie~ to study fundamental techniques concepts and aims of law so they wll~ bebetter able to use legal materials and Insights in their t~aching and researchFellows will take at least 2 first~yr law courses in addition to more advanced courses and will participatamp in a joint seminar The grant covers tuition and~ health fee only as well asoffice space Applic~tions should include a biographical resume statement of applimiddotcants planned achievements from the fellowship and 2 letters of recommendation (mailed to the Chair directly fro- referees) Deadline 12~ 121~ for early acceptance otherwise-~~~ 12 1~sectsectContact Chair Committee on Liberal Arts Fellowships Harvardmiddot~aw School Cambridge HA 02138

F The World Rehabilltaton Fund offers middot10 fellowshi~s for 3-5 week study-visi ts_ ~abroadmiddot awarde_cl tn the seco-nd yearmiddot of the NIHR grant for th~ International Exhcnge of Expetts and I~formatiofimiddot 1n Rehabilit~tion CIEEIR) to US rehabilitation experts who successfully complete the application process which includes external peer review IEEIRs overall purpose is to bull1mport 11 knowledge from other countries (including Canada) in order to fill knowledge gaps in the US NIHR priorities are used as guidelines in determining the knowledge areas for which study-visits middot should be planned The application process takes at least 4 months to complete and is often longer if the individual applying does not ~lready have the contacts abroad to arrange the study-visit Contact Diane Emiddot~ Woods Proj~ct Directo~ World Rehabilitation Fund Inc~ 400 East 34 Stmiddot New York NY 10016 212679-2934

G The Institute for Advanced Study announces awards for post-doctoral research fel lowships in the School of Social Science for 1986-87 Contact School-of Social Science Institute for Advanced Study Olden Lane Princeton NJ 08540 middot

CURRENT RESEARCH PROJECTS AND RESOURCES

A Donald E Galvin PhD ltPrincipal Investigator) Denise G Tate PhD (Director) and Rochelle V Habeck PhD (Research A~sociate) of the Unlverslty Center for Internaticinal Rehabilitation (Mibhigan State Univ 513 Erickson Hall Ea~t L~nslng MI 48824 517355-1824) have received funds from the National -Institute for Handicapped Research to conduct a 3-yr research project on disability m-anagement to study incidence and experience of disability costs and outcomes and service ~trategles operational in 3 major Michigan employ~rs They propos~ to investigatemiddot the Impact of__ disability management and rehabil_itation as

10

offered through these employers upon such factors as disability pay~ ments time off the job continued employment and the efficacy of pri-vate and public rehabilitation through 1 sets of data macroeconomic factors Ce g middot genera_l economic trends the extent of demand for labor in the ec-0nomy the amount of labor forcemiddot ejection) organizational fact6rs (eg employer policies service strategies and costs) and employee outcomes (eg healthdisability status job performance time off work) The projects aimmiddot is to prevent an employees passing frommiddot productive activity to dependence on di sab i 1 it y benefits ltor to reduce the amount of time one is receiving disability benefits and workers compensationgt by maintaining hisher working capacity and adjustingwork to hlshir capabilities If_successful this investment may prevent the disability process and thus limit the growth of cost to e~ployers the social suppo~ts system and the chronically ill injuredmiddot or disabled workers They will also conduct a systems analysis of specific pro6es-~es within the workplace of ~ac~ employer participant Based on factors id~ntified as influential to costs and outcobulles the study will offer a set of re~ommendations to improve the effici~ncy and effectivenessmiddot of each employers disability man~gement and rehabilitation program~ and policies

B~ Dr Nicola Robinson ltHonorary Lecturer in Community Medicine The Middlesex H6spital Medical School Horace Joules Hall Ceritral Middlesex Hospital London NWlO 7NS UK) is studyirig the role of ps~ch~s~cial fa-ct ors ( 1 i f e e vents and d 1 f f i cu 1t i es ) i n the ae t i o 1o g y o f i n s u 1 i n dependent (Type 1) diabetes mellitus in newly diagnosed diabetics ~iblings and age matched neighborhood controls Subjecti aged 17-34 tears and diagnosed in the last 18 months were interviewed in their homes using the Life Events and Difficulties Schedule ltLEDS) of Brown middotand Harris Bedford College London~ The LEDS interv lew takes into ~6count various dimensions such as the degree of threat involved in the ~ituation the focus of the event Cie did the event happen to the middot s~bject or someone els~) and the i~dep~ndence (did the subject cause the

middotevent to happen -or was it related to the illnessgt The technique is highly reliable Informatio~ was c6llected over the 3-yr period pre- middot ceding the diagnosis of diabete~ as it is known that islet cell anti-middot bodies can be detected up t6 3-yrs prior to clinical diagnosis of diabetes Diabetics had a higher frequency of~l or more severe life events prior to d iagnomiddots is they al so had a h lgher percentage of 2 or more severe life events prior to diagnosis and their frequency of s~vere difficulties was also higher There was no relationship between the presence of Type A behav_ior mmiddot~asured by the Hunter Wolf rating scale b~tween diabetics ~nd siblings and neighborhood controlsmiddot Prelimiddotminary findings suggest that severe life events and diffic~lties may be in~ valved in the precipitation of insulin dependent diabetes since thete w~re fewer severe life events and difficulties iri siblings sharing the same environment and that stress may play a role in triggering insulin dependent diabetes This research is now continuihg in collaboration with the BartsWindsorMiddlesex Prospective Family Study to clarify the role of stress in g~netically susceptible individuals by investigatingmiddot ~he tempofal relationship between life events and immunological ~vents~ Dr-Robinson is alsb studying the role of psych~social factors in th~ development of diabetic co~plications anddisturbances in diabetic coh-tf~l ltreported by Dr Robinson)

c~ Under a ~rant fromthe National Center for Health Services Res~arch 1NCHSR) r~searchers at the Univ ofRochester developed a new approacho home care f6r the elderly who are ho~~b6~nd and middotch~onlcally 111 a

1 1

team consisting of a physician a geriatric nu~se practitioner and a social ~orke~ providing round-the-clock on-call medical ~are top~-tfents in their homes A randomized controlled trial showed that the ~pproach provided effective less costly care to the terminally ill A~ed patients treated by the team but who died during the course of the smiddottudy received more services at home and were hospitalized about half a~ much during their final 2 we~ks than patients in the c6ntrol groupwh6 received traditional home-care services Though costs of hom~ care pr6vided by the team were higher than costs of traditional home car~ because more services were provided overall costs for the patients treated by the team were about a third less than total costs for the control group owing to decrea~ed h6spitalizations Moreover satisfac-tion with the care was smiddotignificantly greater among team care patients and their family membeis Study results point to at least 1 gro~p that could be effectively middottargetedbull for home health services according to Annemarie Groth-Juncker MD in the ~2~Cll~l Qf 1b~ Am~~1~~ll sect2~1~1Xi April 1984 Details of the project are in middotHome Healthcare Team Randomi~ed Trial of a New Team Approach to Home CareH available from National Techn ical Infor mat i omiddotn Services (Spr i ngf ie ld VA 22161 703487-4650) as PB84-163955 themiddot data tape from the study PB84-163930 and corresponding code book PB84-163948 may ~lso be purchased from NTIS

D In 1980 Lutheran General Hospital beg~n an inquiry into therela-tionship of faith traditions and modern medicine Initially Project T~n middotfocused ~rimarlly on historical and theological research Recently however it has begun to look intomiddot the variety of health-care practices-middot especially in the middotclinic (oncology neonatal and pediatric intensive care units) The study will describe the current realitymiddot faced by pat L~_nts_ fam 11 ies ~Phis le Lans n_micro_rses chaplains social workers and

others who are involved in the critical decisionsmiddot surrounding the middotissue 6f cessation of treatment it will culminate in more formal and long-middot t~rm research-projects on this and otherrelated questions The guiding question for the clinical phase remains What ls the impact of faith traditions middoton decision~ made by health-care professionals patients arid families regarding decisions to forega treatment Thus far 10 scholars have been commmiddoti ss ioned to prepare studies on various_ faith trad It ions tl~a11b sng tf~g1~ln~ 1n 1-b~ ~Y1b~tan Ita9lt12n by Martin E Marty ltFaJ r-fax M Cone Dlstinguished Service Prof of Modern Christiahlty Univ of Chicagogt Fall 1983 tl~altb an~ Mt~1~1n~ 1D tb~ Btf2cm~g Ita91112b byKenneth LVaux (Prof of Ethics Univ of Illinois Medical Center Chicago ILgt Winter 1984 -tl~al1b ang ~~gl~ln~ 1n lb~ B2man ~alb211~ Ir~glll~U by Richard A McCormick (Rose F Kennedy Prof of Christian Ethics Kennedy Institute Georgetown Univ) Fall 1984j tl~~ltb ~ll~

ln lb~ ~~l~b Ic2gltl2n by Rabbi David Feldman (Jewish Theo-logical Seminary _New York NY) Winter 1985 tl~al1b ang 1n lb~ Ansll~all Itag1112n by Davi~ H Smith ltProf of Religious Studies Indiana Universitygt Summer 1985 Htal1b ~ng Mt91~1n~ in tb~ l~lam1~-Ita91112n by Fazlur Rahman (Prof of Near Eastern Languages Univ of Chicagogt Stimmer 1985 Health and Medicine in tht Mormon Iradltlgn by Lester Bush MD (Chief of Clinical Activities Di~ Ofc of Medical Services Central Intelligence Agency Washington DC) Fall 1986 tl~~ltb ang H~g1~1n~ ln 1b~ tllngy Ita91112n by Prakosh Desaimiddot MD (Direc of Psychiatric Services VA Hospital Univ of Chicago Medical Center Chicago IL) Winter 1986 tl~allb ang M~gl~lll~ 1n tb~ ~a~1~tll Ct1b292 Itali12ll by middotStanley S Harakas ltProf of Christian Ethics H6ly Cross Greek Orthodox School of Theology Brookline MA) Winter 1986 andmiddottl~allb ln lbt ~~~YlatLliYmanl~l Ita91l12n by H Tristra~

12

offered through these employers upon such factors as disability pay~ ments time off the job continued employment and the efficacy of pri-vate and public rehabilitation through 1 sets of data macroeconomic factors Ce g middot genera_l economic trends the extent of demand for labor in the ec-0nomy the amount of labor forcemiddot ejection) organizational fact6rs (eg employer policies service strategies and costs) and employee outcomes (eg healthdisability status job performance time off work) The projects aimmiddot is to prevent an employees passing frommiddot productive activity to dependence on di sab i 1 it y benefits ltor to reduce the amount of time one is receiving disability benefits and workers compensationgt by maintaining hisher working capacity and adjustingwork to hlshir capabilities If_successful this investment may prevent the disability process and thus limit the growth of cost to e~ployers the social suppo~ts system and the chronically ill injuredmiddot or disabled workers They will also conduct a systems analysis of specific pro6es-~es within the workplace of ~ac~ employer participant Based on factors id~ntified as influential to costs and outcobulles the study will offer a set of re~ommendations to improve the effici~ncy and effectivenessmiddot of each employers disability man~gement and rehabilitation program~ and policies

B~ Dr Nicola Robinson ltHonorary Lecturer in Community Medicine The Middlesex H6spital Medical School Horace Joules Hall Ceritral Middlesex Hospital London NWlO 7NS UK) is studyirig the role of ps~ch~s~cial fa-ct ors ( 1 i f e e vents and d 1 f f i cu 1t i es ) i n the ae t i o 1o g y o f i n s u 1 i n dependent (Type 1) diabetes mellitus in newly diagnosed diabetics ~iblings and age matched neighborhood controls Subjecti aged 17-34 tears and diagnosed in the last 18 months were interviewed in their homes using the Life Events and Difficulties Schedule ltLEDS) of Brown middotand Harris Bedford College London~ The LEDS interv lew takes into ~6count various dimensions such as the degree of threat involved in the ~ituation the focus of the event Cie did the event happen to the middot s~bject or someone els~) and the i~dep~ndence (did the subject cause the

middotevent to happen -or was it related to the illnessgt The technique is highly reliable Informatio~ was c6llected over the 3-yr period pre- middot ceding the diagnosis of diabete~ as it is known that islet cell anti-middot bodies can be detected up t6 3-yrs prior to clinical diagnosis of diabetes Diabetics had a higher frequency of~l or more severe life events prior to d iagnomiddots is they al so had a h lgher percentage of 2 or more severe life events prior to diagnosis and their frequency of s~vere difficulties was also higher There was no relationship between the presence of Type A behav_ior mmiddot~asured by the Hunter Wolf rating scale b~tween diabetics ~nd siblings and neighborhood controlsmiddot Prelimiddotminary findings suggest that severe life events and diffic~lties may be in~ valved in the precipitation of insulin dependent diabetes since thete w~re fewer severe life events and difficulties iri siblings sharing the same environment and that stress may play a role in triggering insulin dependent diabetes This research is now continuihg in collaboration with the BartsWindsorMiddlesex Prospective Family Study to clarify the role of stress in g~netically susceptible individuals by investigatingmiddot ~he tempofal relationship between life events and immunological ~vents~ Dr-Robinson is alsb studying the role of psych~social factors in th~ development of diabetic co~plications anddisturbances in diabetic coh-tf~l ltreported by Dr Robinson)

c~ Under a ~rant fromthe National Center for Health Services Res~arch 1NCHSR) r~searchers at the Univ ofRochester developed a new approacho home care f6r the elderly who are ho~~b6~nd and middotch~onlcally 111 a

1 1

team consisting of a physician a geriatric nu~se practitioner and a social ~orke~ providing round-the-clock on-call medical ~are top~-tfents in their homes A randomized controlled trial showed that the ~pproach provided effective less costly care to the terminally ill A~ed patients treated by the team but who died during the course of the smiddottudy received more services at home and were hospitalized about half a~ much during their final 2 we~ks than patients in the c6ntrol groupwh6 received traditional home-care services Though costs of hom~ care pr6vided by the team were higher than costs of traditional home car~ because more services were provided overall costs for the patients treated by the team were about a third less than total costs for the control group owing to decrea~ed h6spitalizations Moreover satisfac-tion with the care was smiddotignificantly greater among team care patients and their family membeis Study results point to at least 1 gro~p that could be effectively middottargetedbull for home health services according to Annemarie Groth-Juncker MD in the ~2~Cll~l Qf 1b~ Am~~1~~ll sect2~1~1Xi April 1984 Details of the project are in middotHome Healthcare Team Randomi~ed Trial of a New Team Approach to Home CareH available from National Techn ical Infor mat i omiddotn Services (Spr i ngf ie ld VA 22161 703487-4650) as PB84-163955 themiddot data tape from the study PB84-163930 and corresponding code book PB84-163948 may ~lso be purchased from NTIS

D In 1980 Lutheran General Hospital beg~n an inquiry into therela-tionship of faith traditions and modern medicine Initially Project T~n middotfocused ~rimarlly on historical and theological research Recently however it has begun to look intomiddot the variety of health-care practices-middot especially in the middotclinic (oncology neonatal and pediatric intensive care units) The study will describe the current realitymiddot faced by pat L~_nts_ fam 11 ies ~Phis le Lans n_micro_rses chaplains social workers and

others who are involved in the critical decisionsmiddot surrounding the middotissue 6f cessation of treatment it will culminate in more formal and long-middot t~rm research-projects on this and otherrelated questions The guiding question for the clinical phase remains What ls the impact of faith traditions middoton decision~ made by health-care professionals patients arid families regarding decisions to forega treatment Thus far 10 scholars have been commmiddoti ss ioned to prepare studies on various_ faith trad It ions tl~a11b sng tf~g1~ln~ 1n 1-b~ ~Y1b~tan Ita9lt12n by Martin E Marty ltFaJ r-fax M Cone Dlstinguished Service Prof of Modern Christiahlty Univ of Chicagogt Fall 1983 tl~altb an~ Mt~1~1n~ 1D tb~ Btf2cm~g Ita91112b byKenneth LVaux (Prof of Ethics Univ of Illinois Medical Center Chicago ILgt Winter 1984 -tl~al1b ang ~~gl~ln~ 1n lb~ B2man ~alb211~ Ir~glll~U by Richard A McCormick (Rose F Kennedy Prof of Christian Ethics Kennedy Institute Georgetown Univ) Fall 1984j tl~~ltb ~ll~

ln lb~ ~~l~b Ic2gltl2n by Rabbi David Feldman (Jewish Theo-logical Seminary _New York NY) Winter 1985 tl~al1b ang 1n lb~ Ansll~all Itag1112n by Davi~ H Smith ltProf of Religious Studies Indiana Universitygt Summer 1985 Htal1b ~ng Mt91~1n~ in tb~ l~lam1~-Ita91112n by Fazlur Rahman (Prof of Near Eastern Languages Univ of Chicagogt Stimmer 1985 Health and Medicine in tht Mormon Iradltlgn by Lester Bush MD (Chief of Clinical Activities Di~ Ofc of Medical Services Central Intelligence Agency Washington DC) Fall 1986 tl~~ltb ang H~g1~1n~ ln 1b~ tllngy Ita91112n by Prakosh Desaimiddot MD (Direc of Psychiatric Services VA Hospital Univ of Chicago Medical Center Chicago IL) Winter 1986 tl~allb ang M~gl~lll~ 1n tb~ ~a~1~tll Ct1b292 Itali12ll by middotStanley S Harakas ltProf of Christian Ethics H6ly Cross Greek Orthodox School of Theology Brookline MA) Winter 1986 andmiddottl~allb ln lbt ~~~YlatLliYmanl~l Ita91l12n by H Tristra~

12

team consisting of a physician a geriatric nu~se practitioner and a social ~orke~ providing round-the-clock on-call medical ~are top~-tfents in their homes A randomized controlled trial showed that the ~pproach provided effective less costly care to the terminally ill A~ed patients treated by the team but who died during the course of the smiddottudy received more services at home and were hospitalized about half a~ much during their final 2 we~ks than patients in the c6ntrol groupwh6 received traditional home-care services Though costs of hom~ care pr6vided by the team were higher than costs of traditional home car~ because more services were provided overall costs for the patients treated by the team were about a third less than total costs for the control group owing to decrea~ed h6spitalizations Moreover satisfac-tion with the care was smiddotignificantly greater among team care patients and their family membeis Study results point to at least 1 gro~p that could be effectively middottargetedbull for home health services according to Annemarie Groth-Juncker MD in the ~2~Cll~l Qf 1b~ Am~~1~~ll sect2~1~1Xi April 1984 Details of the project are in middotHome Healthcare Team Randomi~ed Trial of a New Team Approach to Home CareH available from National Techn ical Infor mat i omiddotn Services (Spr i ngf ie ld VA 22161 703487-4650) as PB84-163955 themiddot data tape from the study PB84-163930 and corresponding code book PB84-163948 may ~lso be purchased from NTIS

D In 1980 Lutheran General Hospital beg~n an inquiry into therela-tionship of faith traditions and modern medicine Initially Project T~n middotfocused ~rimarlly on historical and theological research Recently however it has begun to look intomiddot the variety of health-care practices-middot especially in the middotclinic (oncology neonatal and pediatric intensive care units) The study will describe the current realitymiddot faced by pat L~_nts_ fam 11 ies ~Phis le Lans n_micro_rses chaplains social workers and

others who are involved in the critical decisionsmiddot surrounding the middotissue 6f cessation of treatment it will culminate in more formal and long-middot t~rm research-projects on this and otherrelated questions The guiding question for the clinical phase remains What ls the impact of faith traditions middoton decision~ made by health-care professionals patients arid families regarding decisions to forega treatment Thus far 10 scholars have been commmiddoti ss ioned to prepare studies on various_ faith trad It ions tl~a11b sng tf~g1~ln~ 1n 1-b~ ~Y1b~tan Ita9lt12n by Martin E Marty ltFaJ r-fax M Cone Dlstinguished Service Prof of Modern Christiahlty Univ of Chicagogt Fall 1983 tl~altb an~ Mt~1~1n~ 1D tb~ Btf2cm~g Ita91112b byKenneth LVaux (Prof of Ethics Univ of Illinois Medical Center Chicago ILgt Winter 1984 -tl~al1b ang ~~gl~ln~ 1n lb~ B2man ~alb211~ Ir~glll~U by Richard A McCormick (Rose F Kennedy Prof of Christian Ethics Kennedy Institute Georgetown Univ) Fall 1984j tl~~ltb ~ll~

ln lb~ ~~l~b Ic2gltl2n by Rabbi David Feldman (Jewish Theo-logical Seminary _New York NY) Winter 1985 tl~al1b ang 1n lb~ Ansll~all Itag1112n by Davi~ H Smith ltProf of Religious Studies Indiana Universitygt Summer 1985 Htal1b ~ng Mt91~1n~ in tb~ l~lam1~-Ita91112n by Fazlur Rahman (Prof of Near Eastern Languages Univ of Chicagogt Stimmer 1985 Health and Medicine in tht Mormon Iradltlgn by Lester Bush MD (Chief of Clinical Activities Di~ Ofc of Medical Services Central Intelligence Agency Washington DC) Fall 1986 tl~~ltb ang H~g1~1n~ ln 1b~ tllngy Ita91112n by Prakosh Desaimiddot MD (Direc of Psychiatric Services VA Hospital Univ of Chicago Medical Center Chicago IL) Winter 1986 tl~allb ang M~gl~lll~ 1n tb~ ~a~1~tll Ct1b292 Itali12ll by middotStanley S Harakas ltProf of Christian Ethics H6ly Cross Greek Orthodox School of Theology Brookline MA) Winter 1986 andmiddottl~allb ln lbt ~~~YlatLliYmanl~l Ita91l12n by H Tristra~

12

Engelhardt Jr MD (Dept of Medicine Baylor College of Medicine)middot Spring 1987 Editing this series are Marti~ E Marty and Kenneth L v~ux Books are available from The Crossroad Publishing Co 370

Lexingion Ave New York NY 10017 For info~matlon about Project Ten contact David T Stein PhD Project Ten Administrator Lutheran Gemiddotn-middot

middoteral Ho~pital 1775 Dempster St Park Ridge IL 60068 312696-6399

E Foi middotthose engaged in research a particularly useful document is Statistical Policy Working Paper 10 ampQQCQ~~bt~ 12 Dt1tl2alng Questionnaires of the Federal Committee on Statistical Methodology purchasable from NTIS Document Sales 5285 Port Royal Rd Sprlngfieldj VA 2216L 70$487~4650 Further information on the work of the Committee and its various reports may 6e obtained from the Office of Information and Regulatory Affairs -202395-5870

RECENT DISSERTATION

Kathryn M Taylor (currently at the Dept of Behavioral Science Univmiddot of Torontomiddot _McMirrrich Bldg Toronto Ont Canada M5S 1A8) received her

PhD in Sociology from McGill Univ this _year Her dissertation Deci-sion Difficult Physician Behavior in the Diagnosis and Treatment of Breast Can~e~ was given the 1985 Best Dissertation Award by the Medical Sociology Section of the American Sociological Assocmiddotiation Fromthat w~rk came her paper middotGood Deathbull as Medical Success~ Terminal Care for Breast Cancer in which she describes the final phase of breast cancer care for patients at Garfield General Hospital from 1978-1981 Rede-fining a patients d~ath from the t~aditlonal interpretation of medicalmiddot failure to themiddot new one of medical succe~smiddotrequired major changes formiddot the physician The shlft was from a technical life-prolonging task to one characterized by a team approach to symptom relief with -an acceptance of the inevitability of the patients demise Also changes were needed in

the doctors sources of satisfaction and a strong sense of comraderie often devel~ped with colleagcies who shared an approach to terminal c~r~ New settings were des_igned to accommodate the needs ofmiddot the physicians who attempted to redefine their patl~nts inevitable death These palliative car~ specialists form~d a splinter group distinct from other breast cancer speclallsts who continued to support an aggressive clini-cl approach to patients in earlier stages of their disease bull However this splinte~ grciup itself has begun to fragment into groups of those physicians who support an e~perimental_appr6ach to palliative care and a~therapist -group who contl~ue to encoutage individualized interaction with dying patients middot

FILM CLIPS by Nora Groce ltFa~ily Development The Children~ Hdspitalmiddot Boston) and_Gary Kiger (Sociology Utah St~te University)

middotA ARTHUR LEE videotape color 35 min produced byDowntown Community TV Center 87 Lafayette St New York NY 10013 212966-4510 Sale $100 rental -bull40 _ middot This ls not so much a f_iim asmiddot two television segments which have been spliced together Originally aired on theNBC Today Show this ls abo~t Arthur Lee an_ i~ventor whose soh was horn withmiddotcerebral palsy He ismiddot obsessed with marketing a pulley toy which he belleves hasmiddot helped his son develop far beyond the limits which doctors predicted He quit his job td dev~te allhis time and energy to his invention and with the la~t df his ~aving~ comes toNew York to demonstratemiddothi~ work at a tr~de show for inentors There is certainly amiddot story heremiddot but this brief production allows us to seemiddot vemiddotry little of it The narration over

13

and around the dialogue is so poormiddotas to be inaudible Many scenes seemmiddot to be reenacted Lees wife who works fu11-t i me at the telephone compa ny seems less than enthusiastic about having-a film crew in her home bull

One ~anders moreover what the film crew i~ doing At the close of the inv~ntors conference Leemiddotand his 2 young sons are out of money andmiddot their bus middotaoes not leave for home until morning Severalmiddot dollars short he cannot afford a hotel room and the cameras follow him as he and hls sohs bed down for a few hours in the subway This is certainly cinema verlte but one wonders why a member of the film ere~ could not at least 1 o an h 1 m a few do 11 a rs or be t t er ye t i n v i t e Lee and his boys ho me for

middot the night In the end we learn little about Atthur Leemiddot about his son or his family It is clear that he is a caring man committed to 1

helping his son develop to his full potential but a better rounded picture isneeded here for this film to be recommended to audiences s~eclflcally interested in disabilities (Nora Gr~ce)

B_ CATHY 1982 color 14 min produced by Fran Burst-TerranellaCheryl Gosa distributed by Ideas and Images Boi 5354 Atmiddotl anta GA 3030 7 Sa 1 e 16 mm $ 2 5 0 rental 16 mmmiddot $ 3 0 While watching a football game with her middotbrother Cathy a high school studerit who has cerebral palsy decides sh~ wants to be a schoolmiddot cbeerleader She te 11 s her fr lends and they awkwardly try tomiddot dissuade her without dealing with the issue middotat hand--that spe lacks coordinatlon bull and grace Cathy turns out to watch the cheerleaders practice andmiddot -reveals her dee is ion to the sq_u1ad leader who then d l scusses l t wmiddot 1th anothercheerleader who intones that Cathy is creepy Finally Cathys best friend opens up and says that she doesnt want people to laugh atmiddot Cathy The film ends with Cathy heading off to cheerleader tryouts

-cATHY is a poorly conceived poorly scripted confused and confusing film bull -Lt-Jsmiddot-middotconf-u-sed- in that cheerleading often ass_ociated with anmiddot activity which celebrates the sexual expl~ltation of ~omen~- seemsto be an ill-conceived goal for Cathy to choose whether she is handicapped ormiddot not is a background issue Also cheerleadlng not an activity in whichthe average person could engage might certainly be blocked to a person with a disability The viewer may feel that Cathy ls pathetic for pursing puch a goal yet pity is I think not the emotion the producers intended~ Since the producers insist on Cathy trying out for cheerleading themiddot viewer may wondermiddot albeit half-heartedly what will happen when Cathy auditions Will she be laughed at If so how will she handle it -N6n~ of this is examined Sadly the film ending is a cliche The messag~-seems to be that anyone can achieve anything Ifshe has the will fortitude and tries hard enough But we know this is not true~ Or~ middotth~ message might be that at least Cathy ha~ the courage to try andmiddot perhaps fail Will Cathy be6ome a cheerleader It ls difficult to care She would probably be a better person if ~he a6cepte~ a different challenge (Gary Kigergt

C MOIRA A VISION OF BLINDNESS 1983 color 23 min produceddistributed by De Nonno Pix Inc 7119 Shore Rd Brooklyn NY 11209 Sale and ~ental information available from distributor middot Tony De Nonnas film tak~s_us into the world of Moira Egan an 11-year-old girl Moira is independent intelligent and assertive she middotis middotalso blind She moves fluidly through activities at home in the cpuntry during vacation and at schoomiddotl At home Moira helps her mother bake and we see her choose the 14 teaspoon mea~ure by feeling the relative size of the spoons arrayed on the counter At school she does well ln the regular classroom with the assistance of a brailler an abacus and teachers ~v~ryorie seems to push her toward independence and their

14

and around the dialogue is so poormiddotas to be inaudible Many scenes seemmiddot to be reenacted Lees wife who works fu11-t i me at the telephone compa ny seems less than enthusiastic about having-a film crew in her home bull

One ~anders moreover what the film crew i~ doing At the close of the inv~ntors conference Leemiddotand his 2 young sons are out of money andmiddot their bus middotaoes not leave for home until morning Severalmiddot dollars short he cannot afford a hotel room and the cameras follow him as he and hls sohs bed down for a few hours in the subway This is certainly cinema verlte but one wonders why a member of the film ere~ could not at least 1 o an h 1 m a few do 11 a rs or be t t er ye t i n v i t e Lee and his boys ho me for

middot the night In the end we learn little about Atthur Leemiddot about his son or his family It is clear that he is a caring man committed to 1

helping his son develop to his full potential but a better rounded picture isneeded here for this film to be recommended to audiences s~eclflcally interested in disabilities (Nora Gr~ce)

B_ CATHY 1982 color 14 min produced by Fran Burst-TerranellaCheryl Gosa distributed by Ideas and Images Boi 5354 Atmiddotl anta GA 3030 7 Sa 1 e 16 mm $ 2 5 0 rental 16 mmmiddot $ 3 0 While watching a football game with her middotbrother Cathy a high school studerit who has cerebral palsy decides sh~ wants to be a schoolmiddot cbeerleader She te 11 s her fr lends and they awkwardly try tomiddot dissuade her without dealing with the issue middotat hand--that spe lacks coordinatlon bull and grace Cathy turns out to watch the cheerleaders practice andmiddot -reveals her dee is ion to the sq_u1ad leader who then d l scusses l t wmiddot 1th anothercheerleader who intones that Cathy is creepy Finally Cathys best friend opens up and says that she doesnt want people to laugh atmiddot Cathy The film ends with Cathy heading off to cheerleader tryouts

-cATHY is a poorly conceived poorly scripted confused and confusing film bull -Lt-Jsmiddot-middotconf-u-sed- in that cheerleading often ass_ociated with anmiddot activity which celebrates the sexual expl~ltation of ~omen~- seemsto be an ill-conceived goal for Cathy to choose whether she is handicapped ormiddot not is a background issue Also cheerleadlng not an activity in whichthe average person could engage might certainly be blocked to a person with a disability The viewer may feel that Cathy ls pathetic for pursing puch a goal yet pity is I think not the emotion the producers intended~ Since the producers insist on Cathy trying out for cheerleading themiddot viewer may wondermiddot albeit half-heartedly what will happen when Cathy auditions Will she be laughed at If so how will she handle it -N6n~ of this is examined Sadly the film ending is a cliche The messag~-seems to be that anyone can achieve anything Ifshe has the will fortitude and tries hard enough But we know this is not true~ Or~ middotth~ message might be that at least Cathy ha~ the courage to try andmiddot perhaps fail Will Cathy be6ome a cheerleader It ls difficult to care She would probably be a better person if ~he a6cepte~ a different challenge (Gary Kigergt

C MOIRA A VISION OF BLINDNESS 1983 color 23 min produceddistributed by De Nonno Pix Inc 7119 Shore Rd Brooklyn NY 11209 Sale and ~ental information available from distributor middot Tony De Nonnas film tak~s_us into the world of Moira Egan an 11-year-old girl Moira is independent intelligent and assertive she middotis middotalso blind She moves fluidly through activities at home in the cpuntry during vacation and at schoomiddotl At home Moira helps her mother bake and we see her choose the 14 teaspoon mea~ure by feeling the relative size of the spoons arrayed on the counter At school she does well ln the regular classroom with the assistance of a brailler an abacus and teachers ~v~ryorie seems to push her toward independence and their

14

efforts melding with Moiras pay off~ She writes poetry Drawing on di~t1nctlon between eyesight which she doesmiddot notmiddotbave and brain~

slght ltmentally vlsuallzing a world through exp~rlencesgt of which she has plenty she- can write poetry about the breeze moving through themiddot pines Moira d-iscusses how others respond to her She sets others at ease if they remark uDid you see the TV progr~m last night Other~ afe uncomfortable atmiddot the seeming fsYX g22 but Moira lntones that the words ~re not important Why make exceptions for her she knows the meaning Tbe power of this f11mrestsmiddot in the portrayal of a girl withmiddot a d1~ah111-ty who bas realized a large measure of Independence throug~ her own persevemiddotrance andmiddot the- caring aware efforts of others The messag~ which domLnates here is- we are all middotin this together And it is an important message to share wimiddotth ~dult~ and chlldteri ilike ltGa~y Kiger)

BOOK ETC NOTES

A Burton~ Blatt In sD~ CY ~f -~sQksectl Bl Qlbt fslimlssect 2n ~g~Jal ~gJlitt1Qll~ Baltimore University Park Press 1984 middot How does one review a book which consists of a compilation of hookmiddot middotreviews and observations on the growth and development of special eqlca-tlon during the last 25 years Indeed ho~middotdoes one review a hook which contains a selection by its author on how to review a book As james F Wihschel notes in the forward The essence of ln 21ng QY1 2f ~QQ)S~ ls rtot easily captured Thetext ls at one~ fattual and philo~ophlcal dignified and audacious~ The major framework ls special education middotout 1n spirit ihe structure supports our concern for all ~hat I~ special~~in education in people and in ourselvesbull In 2ng QY1 middotmiddot2f l222ksect consists ~f 6 chapters--the first devoted to Blatts feelings about reviews middotand the middotimportance of taking writers seriously the last the authors philo- sophy of life as I would call 1t Sandw iched between -are chapters ~on perspectives--personal educational clinical and policy Each contains from 7 to 17 previously published reviews co~ments dr int~oducitloni to articles or hooks~ middot InterSp~rsed thr0Ugh-0ut themiddotbook are middotphotographs of authors Blatt has reviewed The reviews ar~ short some runninga page in len~th~ Persons relatively middotnew to th~ field of disabilitymiddotwill ~ind this volume too subtle and too diffuse An understandingmiddot of Blatts contributions and philosophy can he better achieved through a readirig_ of ~is majorpublications Likewise a sense of coherence to the movem~nt a_nd changes that have occurred in our collect Ive thinking about pers~oris ~ith mental disability get lost I~ the mass of comments and reviews The gray hairedbull amongst us I suspect middotwill find ndthing new Pub-lishing pictures middotof authors or middotcollaborators of matemiddotrial reviewed adds a nlce tomiddotuch (reviewed by Richard L Meile Sociology tJniv of Neoraska-Llncolngt middot middot

B_ DeMille Agnes -Bll2~1il~middot Garden City NY Doubleday _1981 middot This Is a rather intriguing story of the travail of one persons ex- p_erience following a stroke Agnes DeMille~ a -world reknown choreogra- middot

middot p~er describes very vividly her feelings bcith during and after her stroke and ensuing Illnesses untllshe was able to ieturn to the thea-ter ltHer descriptions of the causes and explan~tions wer~ rathe~ rabull-middot bling ~t times and were -ore accurately outlinedmiddotby her doct~r) She displays the determmiddotlnation needed to -_overcome the seguelae such as learning to overcome the loss of the abll i ty to feel where the affected arm and leg were Closs of propioceptlon) thus~ making recovery that much

middot m_ore difficult This- is an emiddotxcellent story by a courageous lady who does a good jomiddoth of pa_inting middota picture -of What it is l lke to suffer a-

_stroke andthe problems d~ring r~cov~ry I he~rtily rec6~mbullnd its

15

reading by those who dealwith the persons disabled by a stroke and want to understanding what they go through - It middot1s important to remember howev~r that as each person is truly a unique individual~ so ls each Stroke No two ar~ evei alike each stroke affects each individual diflerently DeMillemiddots stylemiddot is very absorbing and provides an enter~ tainlng as well asan enllghtenirig experience (reviewed by Joseph E Coopermiddot MD Bangor Michigangt

q~ Du~bln Paul T~ A_gy1~~ lg lb~ QyllY~~ Qf It~bnglQ9X1 H~g1~1lltmiddot New York The Free Press 1984 _ _ _ This is a paperbackmiddot re-issu~ ofmiddot a volume published originally in haid-6over in 19middotso middot middotcPurch~se primiddotce includes periodic supplements to middotkeep it up-to-date) The title is ~s titles go quite appropriate though-interested readersmiddotmay wish to know that they are not going to be taken Qn a tour of the culture of the 3 areas of endeavor but rather on a tour of the current state of the academic study of these 3 cultures Chap~ ters 1-6~-not counting the somewhat redundant lntroduction--deal with ihe history middotand philosophy of science technology and medici~e Th~ 7th middotconcerns middotthe sociology of science and technology_middot the 8th tre-ats _the --sociology of medicine and the 9th relates science policy ~tudi~s_The History of Medicine chapt~r by Gert Brieger is not_ only extraordinarily comp~ehensive but makes the reader aware of the kind of history of middot ~edicine that ought to but does not exist-~namelmiddoty the history in which the patient woumiddotld receive some of the attention that is now mono-polized by the phys le ian The Philosophy of Medicine chapter by H Tristam Eng~lhardt a~d Edmund ~rde contains a sprawling panorama of all sorts of conmiddotsiderations pertaining to the experience of illness and themiddot practice ~f ~ediclne Still teaders who might favor leaneraccounts middot will find the narrower concerns with epistemology concept formation ~thics q~d _the __Like_ qutte competept_ly related The Medical Sociology chapter by Linda -Aiken -arid middotHoward -Freemiddotman focumiddotses on the s i-gn-1 ficance _ and the consequences of m-0~t _re6ent technological advances in medicine The relati~ely short shiift that is given to standard materials in th~ Sociology of _Medicine is more than compensated by the treatment of the political and ecomiddotnomic considerations of the problem This chapter incidentally should be read ln conjunction ~1th the chapier on Science P61icy Studies by Diane Crane which even though onlymiddot marginally con-~erned wit~ Medicine reflects in its tone and content the spirit o~ --anaged progiess~ It ls an indication of the nature of this volqme ~that 260 of its 735 pages contain bibliographies and the index It will riot ~~rprlse anyone that the chapters vary in quality and character Mo~e-qver it 1~ quite unlikely that specialist~ in the r~spectl~e areaswill find much new in them or even--regrettabl y perhaps--much that is corit~ove~sial Stmiddotill the accounts are sufficiently detailed soth~t ~venworkers in these vineyards will find the surveys 6f the adjoining plots useful In any case -the several chapters are a_t middottheir worsmiddott reliably ~ompet~nt arid at_ their best_ excellent inde-ed Crevl-ewed by ~gon_Blttner Sociology Brandeis University)

c~ Fre~nd Pet~~ ES ~g~1~1 Qgmln~tign C~n1tgl H~~l1bmiddot Philadelphia Temple University Press 1982 middot middot rhis is an engaging synthesis of workmiddot done in several related but rarely connecte_d areamiddots Bringing together evidence bearing on t_hmiddote ph~siological ~ocial psychological and social structural bases df fllness Freund middotinvestigates some of themiddot ways lnmiddot which society can af feet health He argues that farms of smiddotoc i al contra l in modern c 1 v i1 i-zat ion (particularly do~inationgt place individuals in positions of pow~ ~rlmiddotessness which encourage the deregulation of the body (egmiddot more

16

likelyto experience umore wear and tearmiddotmore disease and trauma ~nd more intense symptoms when illG) With a background in ~adical socl-oiogy and an affinity to neo-Marxlsmbull Freund attempts to move bey~nd the itandard left analy~is of ~he effects of economic domination on h~alth and con~lders the eff~qts of sexism racism ageismmiddot political and ideological systems of domination En route he offers a critiquemiddot of holistic medicine in an effort to dimiddotscover and expand upon its radl-eal elementsmiddot Ib~ ~11l1~t~ ~2~ is ~s the publisher forewarns on the bbokjacket a Hs~~culative essay As speculation it is quite sati~-fying Btit there ar~ some very real drawbacks to such speculation w~ich become apparent and somewhat frustrating should one want to follow Freunds leadoMost needed is further elaboration on _the theoretical roots of his analysis greater development of the relationships among h1s concept~ and ebullpirical research to test the relationships which_ he p~stulates In conclusion Freunds book -1~ well worth reading f~r themiddot conti-ibutiohs it makes within the 1 imited space ofmiddot its 180 pages--the middot middot concept of bodily regulation the critique of holistic and Mmiddotarxist middot theories of middothealthand illness and its ins-ightful iynthesis The pub-lishers do Freund a disservice however by compa~ing his work to that ofIllich and Szasz While it may be written in the manner of Ilich and Szaszbull it will most likely not attain their status Such a com~ari-s6n is unfair for a book that relatively speaking is yet unfinished andincomplete (edited from a longer review by Deborah L Dennis S~ciology Brandeis University~ which appeared In sectQ~l~l M~~l~ln~ 197 1984 pp 767-768gt

E middotGross~ Steven C and Solomon Garb (Edsgt ~sngt[ Ittslmtnl an~ B~~~sc~b in li~msnl~ll~ ~~t~Qi~li~t- New York Springer Publishing 1985 _middot Thls ~olume seeks td underscore the ~ulti-faceted nature of cancer by ~nifying what the literature has traditionally treated as mutually exclusive middotconcerns 1) basic cancer r~~earch 2) clinical cancer tre~t-ment and 3) its human and social aspects As the third category has received comparatively little attention thismiddot book attemptsmiddot to rectny the situation by stressing non-medical issues Its 15 es~ays primarJly overviews which do not draw extensively on empirical data are divided ihto 4 sections 1) bullcancer Research and Humanismbull 2)middot bullcancer Treatment and Humanismbull 3) Cancer and the Health Professional and 4) Cane~r _and the Individualmiddot- The major themes of the book how~ver transcend the~e somewhat artificial designations Its overall statement is th~t cancer patients as individuals seek and deserve personal attention Although this notion is not new it ls one that is often left behind in the coufse of research and clinical practice A concern for patients h~man and soci~l needs by caregivers is seen as a major treatment co~po-n~nt and perceived patient needs such as the need for support net~ ~6rks the need for hope the need not t6 feel abandoned and in man~ c~ses the need fo~ religion are identified The physicians role ii responding to patient needs ls highlighted especially the physicians ability to listen without_ indifference Several articles discuss fab-tors working against researchers and c~reglvers remaining constantly_middot ~ympathetic to p~tients needs such as the often coercive research envlronment~and the problem of painful identification with patients Throughout the book the importance of a focus on the quality of living andmiddotadapt_atioh to lifestyle change rather than coping with dying ls emphasized Although major themes come through clearly not all the articles seem equally suited fbr inclusl~n As a restilt of the uneven-middot ness in conten_t style and tone _the bopk lacks cohemiddotsion--a problemmiddot that could have been mlnmiddotimized with the use_ of editqrs introductions 11 nk i ng each art l cl e to the sect 1on in wh 1ch 1t appears and to the book middot

17

reading by those who dealwith the persons disabled by a stroke and want to understanding what they go through - It middot1s important to remember howev~r that as each person is truly a unique individual~ so ls each Stroke No two ar~ evei alike each stroke affects each individual diflerently DeMillemiddots stylemiddot is very absorbing and provides an enter~ tainlng as well asan enllghtenirig experience (reviewed by Joseph E Coopermiddot MD Bangor Michigangt

q~ Du~bln Paul T~ A_gy1~~ lg lb~ QyllY~~ Qf It~bnglQ9X1 H~g1~1lltmiddot New York The Free Press 1984 _ _ _ This is a paperbackmiddot re-issu~ ofmiddot a volume published originally in haid-6over in 19middotso middot middotcPurch~se primiddotce includes periodic supplements to middotkeep it up-to-date) The title is ~s titles go quite appropriate though-interested readersmiddotmay wish to know that they are not going to be taken Qn a tour of the culture of the 3 areas of endeavor but rather on a tour of the current state of the academic study of these 3 cultures Chap~ ters 1-6~-not counting the somewhat redundant lntroduction--deal with ihe history middotand philosophy of science technology and medici~e Th~ 7th middotconcerns middotthe sociology of science and technology_middot the 8th tre-ats _the --sociology of medicine and the 9th relates science policy ~tudi~s_The History of Medicine chapt~r by Gert Brieger is not_ only extraordinarily comp~ehensive but makes the reader aware of the kind of history of middot ~edicine that ought to but does not exist-~namelmiddoty the history in which the patient woumiddotld receive some of the attention that is now mono-polized by the phys le ian The Philosophy of Medicine chapter by H Tristam Eng~lhardt a~d Edmund ~rde contains a sprawling panorama of all sorts of conmiddotsiderations pertaining to the experience of illness and themiddot practice ~f ~ediclne Still teaders who might favor leaneraccounts middot will find the narrower concerns with epistemology concept formation ~thics q~d _the __Like_ qutte competept_ly related The Medical Sociology chapter by Linda -Aiken -arid middotHoward -Freemiddotman focumiddotses on the s i-gn-1 ficance _ and the consequences of m-0~t _re6ent technological advances in medicine The relati~ely short shiift that is given to standard materials in th~ Sociology of _Medicine is more than compensated by the treatment of the political and ecomiddotnomic considerations of the problem This chapter incidentally should be read ln conjunction ~1th the chapier on Science P61icy Studies by Diane Crane which even though onlymiddot marginally con-~erned wit~ Medicine reflects in its tone and content the spirit o~ --anaged progiess~ It ls an indication of the nature of this volqme ~that 260 of its 735 pages contain bibliographies and the index It will riot ~~rprlse anyone that the chapters vary in quality and character Mo~e-qver it 1~ quite unlikely that specialist~ in the r~spectl~e areaswill find much new in them or even--regrettabl y perhaps--much that is corit~ove~sial Stmiddotill the accounts are sufficiently detailed soth~t ~venworkers in these vineyards will find the surveys 6f the adjoining plots useful In any case -the several chapters are a_t middottheir worsmiddott reliably ~ompet~nt arid at_ their best_ excellent inde-ed Crevl-ewed by ~gon_Blttner Sociology Brandeis University)

c~ Fre~nd Pet~~ ES ~g~1~1 Qgmln~tign C~n1tgl H~~l1bmiddot Philadelphia Temple University Press 1982 middot middot rhis is an engaging synthesis of workmiddot done in several related but rarely connecte_d areamiddots Bringing together evidence bearing on t_hmiddote ph~siological ~ocial psychological and social structural bases df fllness Freund middotinvestigates some of themiddot ways lnmiddot which society can af feet health He argues that farms of smiddotoc i al contra l in modern c 1 v i1 i-zat ion (particularly do~inationgt place individuals in positions of pow~ ~rlmiddotessness which encourage the deregulation of the body (egmiddot more

16

likelyto experience umore wear and tearmiddotmore disease and trauma ~nd more intense symptoms when illG) With a background in ~adical socl-oiogy and an affinity to neo-Marxlsmbull Freund attempts to move bey~nd the itandard left analy~is of ~he effects of economic domination on h~alth and con~lders the eff~qts of sexism racism ageismmiddot political and ideological systems of domination En route he offers a critiquemiddot of holistic medicine in an effort to dimiddotscover and expand upon its radl-eal elementsmiddot Ib~ ~11l1~t~ ~2~ is ~s the publisher forewarns on the bbokjacket a Hs~~culative essay As speculation it is quite sati~-fying Btit there ar~ some very real drawbacks to such speculation w~ich become apparent and somewhat frustrating should one want to follow Freunds leadoMost needed is further elaboration on _the theoretical roots of his analysis greater development of the relationships among h1s concept~ and ebullpirical research to test the relationships which_ he p~stulates In conclusion Freunds book -1~ well worth reading f~r themiddot conti-ibutiohs it makes within the 1 imited space ofmiddot its 180 pages--the middot middot concept of bodily regulation the critique of holistic and Mmiddotarxist middot theories of middothealthand illness and its ins-ightful iynthesis The pub-lishers do Freund a disservice however by compa~ing his work to that ofIllich and Szasz While it may be written in the manner of Ilich and Szaszbull it will most likely not attain their status Such a com~ari-s6n is unfair for a book that relatively speaking is yet unfinished andincomplete (edited from a longer review by Deborah L Dennis S~ciology Brandeis University~ which appeared In sectQ~l~l M~~l~ln~ 197 1984 pp 767-768gt

E middotGross~ Steven C and Solomon Garb (Edsgt ~sngt[ Ittslmtnl an~ B~~~sc~b in li~msnl~ll~ ~~t~Qi~li~t- New York Springer Publishing 1985 _middot Thls ~olume seeks td underscore the ~ulti-faceted nature of cancer by ~nifying what the literature has traditionally treated as mutually exclusive middotconcerns 1) basic cancer r~~earch 2) clinical cancer tre~t-ment and 3) its human and social aspects As the third category has received comparatively little attention thismiddot book attemptsmiddot to rectny the situation by stressing non-medical issues Its 15 es~ays primarJly overviews which do not draw extensively on empirical data are divided ihto 4 sections 1) bullcancer Research and Humanismbull 2)middot bullcancer Treatment and Humanismbull 3) Cancer and the Health Professional and 4) Cane~r _and the Individualmiddot- The major themes of the book how~ver transcend the~e somewhat artificial designations Its overall statement is th~t cancer patients as individuals seek and deserve personal attention Although this notion is not new it ls one that is often left behind in the coufse of research and clinical practice A concern for patients h~man and soci~l needs by caregivers is seen as a major treatment co~po-n~nt and perceived patient needs such as the need for support net~ ~6rks the need for hope the need not t6 feel abandoned and in man~ c~ses the need fo~ religion are identified The physicians role ii responding to patient needs ls highlighted especially the physicians ability to listen without_ indifference Several articles discuss fab-tors working against researchers and c~reglvers remaining constantly_middot ~ympathetic to p~tients needs such as the often coercive research envlronment~and the problem of painful identification with patients Throughout the book the importance of a focus on the quality of living andmiddotadapt_atioh to lifestyle change rather than coping with dying ls emphasized Although major themes come through clearly not all the articles seem equally suited fbr inclusl~n As a restilt of the uneven-middot ness in conten_t style and tone _the bopk lacks cohemiddotsion--a problemmiddot that could have been mlnmiddotimized with the use_ of editqrs introductions 11 nk i ng each art l cl e to the sect 1on in wh 1ch 1t appears and to the book middot

17

likelyto experience umore wear and tearmiddotmore disease and trauma ~nd more intense symptoms when illG) With a background in ~adical socl-oiogy and an affinity to neo-Marxlsmbull Freund attempts to move bey~nd the itandard left analy~is of ~he effects of economic domination on h~alth and con~lders the eff~qts of sexism racism ageismmiddot political and ideological systems of domination En route he offers a critiquemiddot of holistic medicine in an effort to dimiddotscover and expand upon its radl-eal elementsmiddot Ib~ ~11l1~t~ ~2~ is ~s the publisher forewarns on the bbokjacket a Hs~~culative essay As speculation it is quite sati~-fying Btit there ar~ some very real drawbacks to such speculation w~ich become apparent and somewhat frustrating should one want to follow Freunds leadoMost needed is further elaboration on _the theoretical roots of his analysis greater development of the relationships among h1s concept~ and ebullpirical research to test the relationships which_ he p~stulates In conclusion Freunds book -1~ well worth reading f~r themiddot conti-ibutiohs it makes within the 1 imited space ofmiddot its 180 pages--the middot middot concept of bodily regulation the critique of holistic and Mmiddotarxist middot theories of middothealthand illness and its ins-ightful iynthesis The pub-lishers do Freund a disservice however by compa~ing his work to that ofIllich and Szasz While it may be written in the manner of Ilich and Szaszbull it will most likely not attain their status Such a com~ari-s6n is unfair for a book that relatively speaking is yet unfinished andincomplete (edited from a longer review by Deborah L Dennis S~ciology Brandeis University~ which appeared In sectQ~l~l M~~l~ln~ 197 1984 pp 767-768gt

E middotGross~ Steven C and Solomon Garb (Edsgt ~sngt[ Ittslmtnl an~ B~~~sc~b in li~msnl~ll~ ~~t~Qi~li~t- New York Springer Publishing 1985 _middot Thls ~olume seeks td underscore the ~ulti-faceted nature of cancer by ~nifying what the literature has traditionally treated as mutually exclusive middotconcerns 1) basic cancer r~~earch 2) clinical cancer tre~t-ment and 3) its human and social aspects As the third category has received comparatively little attention thismiddot book attemptsmiddot to rectny the situation by stressing non-medical issues Its 15 es~ays primarJly overviews which do not draw extensively on empirical data are divided ihto 4 sections 1) bullcancer Research and Humanismbull 2)middot bullcancer Treatment and Humanismbull 3) Cancer and the Health Professional and 4) Cane~r _and the Individualmiddot- The major themes of the book how~ver transcend the~e somewhat artificial designations Its overall statement is th~t cancer patients as individuals seek and deserve personal attention Although this notion is not new it ls one that is often left behind in the coufse of research and clinical practice A concern for patients h~man and soci~l needs by caregivers is seen as a major treatment co~po-n~nt and perceived patient needs such as the need for support net~ ~6rks the need for hope the need not t6 feel abandoned and in man~ c~ses the need fo~ religion are identified The physicians role ii responding to patient needs ls highlighted especially the physicians ability to listen without_ indifference Several articles discuss fab-tors working against researchers and c~reglvers remaining constantly_middot ~ympathetic to p~tients needs such as the often coercive research envlronment~and the problem of painful identification with patients Throughout the book the importance of a focus on the quality of living andmiddotadapt_atioh to lifestyle change rather than coping with dying ls emphasized Although major themes come through clearly not all the articles seem equally suited fbr inclusl~n As a restilt of the uneven-middot ness in conten_t style and tone _the bopk lacks cohemiddotsion--a problemmiddot that could have been mlnmiddotimized with the use_ of editqrs introductions 11 nk i ng each art l cl e to the sect 1on in wh 1ch 1t appears and to the book middot

17

as a whole (reviewed by Laura E Nathan Sociology Mills College)

~ GrowickBruce Q2m~Y~ltsect ln i2S~112llAl -Btbs~ll11~112n~ QYt~~ll11

It~ngsect ansi fY1Yt= Agmiddotgl1~s11~lllsectmiddot $7 50 payable to Catholic University of America (National Rehabilitation Information Center 4407Eighth St~

NE Washington DC 20017) The author of this state-of-the-art review addresses the uses of com-puters in vocational rehab speclfcally in the counseling process agency management training and education and consumer concern~ Recom-mendations include studying existing computer-ba~ed occupational inf~r- middot mation systems -to determine the relative advantages and disadvantages of each use of desktop computers by vocational rehab agency personnel interaction bet~een developing computer resources and disabled-per~ons to see that the needs of di sabled people are cons ldered at the desmiddot 1gn stage consideration of non-routine placement possibilities within high tecbnologymiddotindustry training rehab personnel in computer scmiddotiencemiddotand lnformation management and continued research todesign adapt and_ deveiop computerized applications of products to aid In rehabl11tati~n and independentmiddotliving with the federal government taking the lead in financing and coordinating these activities Annotated middotreference _list_ includes 88 6ltations (by Bruce Growlck Human Service~middotEducatlon Ohio State University)

Gmiddot middot Halstead Lauro S and Davi-d Wiechers tiats ~lft~ta 2f f2ll2mx~lltlamiddot Symposia Foundation (1480 NE 129th Street PO Boxmiddot 611857 Miami FL 33161) 1985 _

Laurie Gini and Judith Raymond (Eds) ft2Stglnsa gf Btbs~111ts 11~n ~s~tttt~sect 2ng ln1itnst12nsl e2Ate2112 Qsnt~[tnst sng ~xmg~11Ym ~n ~lxlns lng1gtng1n1l i11b ~tXttt C1~sb1l11x 2sect Gazette 1nternationa1- Ne-tworking middotInstitutmiddote _(4502 Maryland Avei St Louis MO ~310e) 19S4 71 pp $15 Conference and videotapes are available~ These 2 books give substance to what has only occasionally been rumored or given short shrift by the media--the late effects of poliomyelitis

-T6 most of the public researchers and certainly its be~rers (like myselfgt polio has usually been considered a stable chronic disease Following its acute onset and a period of rehabilitation most oJ us hadmiddot

_reached a plate~u and expected tri stay there For the majority this may still be true but for at least 14 it is not Some 20-40 years afte~ the original-onset large numbers of people are experiencing new health problems The most common are fatigue weakness in muacles previously affected and _unaffected muscle pain joint pain breathing dlfficul~ ties and cold intolerance In gf es112m~l1t1~ themiddotcllni-cal_presentatlons pathological exams clinical investigations epid~-mlological studies and reports of clinical management in different ~ays wrestle with whether these new health problems are the mere conbomitants

-of aging ihe reemergence of a still lingering virus a long-term middotef1ect of the early damage or something else The report as a whole has other goals to develop a clinital evaluation protocol to o~tline future research and to educate fellow professionals as well as people ~ith 1

polio The Rehabilitation Gazettes 1st International Post~Polio Con-ference i~ 1981 was a convocation which ushered in awareness of the aging problems of polio survivors Two years later the 2nd conference assessed the increase ln our understanding amiddots well-as our political coming of _age Thereports in this proceedings are necessarily brief but they cover very well the broad spectrum of concern-s While the conferees were brought up-to-date on the latest findings and controver-si~s conberning the post-polio syndrome the most -attention was givento

the daily concerns of middotpolio survivors Discussion ratige~ ftom the spedi-

18

fies of health maintenance to the specifics of long~term respiratordependence from the essentials and rewards of living independently to the present and future of the Independent Living middotMovement both in the US and around the world While the proceedings do capture the words of all the experts middotmost of whom are themselves post-polio it cannot capture the spirit of the event It was the 25th anniversary of the Rehabilitation Gazette a tribute to Ginl Lauriet its founder and Joe Laurie her co-publisher and a celebration for all who ~ttended of their survival and living independently As the cliche says You had to be there And as Ginl pointed out on several occasions the lessons we le~rn in rega~d to polio can be transferred to the understanding and strategies we heed in 1 iving independently middotwith any severe dlsabil ity (reviewed by Irving Kenneth middotzola Sociology Brandeis University)

H Levine~ Carol and Robert M -Veatch (Eds) ~asectta in al~ttb1QA revised edition Hastings-on-Hudson NY The Hastings Center 1984 Since its founding in 1969 middotthe Hastings Center middot(Institute of Society Ethics and the Life Sciences) haspromoted the study of moral iss~es in health care and allied professions Their bimonthly H~allng~ middotc~nttc BtQ2Cl routinely provides a case-study for analysis on such subjects as reproductive issues mental health death and dying _allocation of scarce resources and patient~physician relationships S-ome of the middotmost interesting and still difficult middotto resolve cases in this series are ~rought together in this book E~ch case pr~sentatlon ls followed by commentaries by 2 or more practitlon~rs philosophers and other spe-cialists Such troublesome areas as proxy consent respecting family wishes in cases 1nvolvmiddoting terminal patients and publ le pol icy issues such as support for alternative cancer car~ are highlighted Readersmiddot will find many -of the cases involving and useful to contemplate ltreviewed by Terry M Perl in School of Interdisctpl lnary Studies Miami Universty OH) middot

I~ Marinelli Robert P and Arthur E Dell Ort~ Ib~ f~i~bsl2sl~il ag~1~1 lmg~~t gf fbX~g~l Q~A~lllXbull New Yorkmiddot Springer PublishingbullCompany 1984 This is an update of a v6lume that first appeared in 1977 All of the articles in this collecti6n have-been published elsewhere mostly be-tween 1979 and 1982 About two-thirds of the material is new to this edition The readings focus on themiddoteffects of disability on the Indivi-dual and are grouped in topics emphasizing the personal social and

sexual aspects of disability th~ child and family and disabled persons as consumers Several chapters -present ne_w concepts of disability and iis iapact There is also current irifqrmation on intervention strategies arid techniques Some of the chapters that strive for currency In such rapidly dev~loping areas as independent living consumer issues and l~gislation are already sli~htly dated but much of the material_ will h~~e lasting value The ~dit6rs professionals in rehabilitation psy~ chology and vocational rehabilitation have tried to emphasize the pract lcal value of the book and have large ly been successful Cqverage is less complete middotin areas such as Helping Persons with Disabilit1es However that section does include valuable chapters on special needs and strategies for counseling stress management and covert ~ondi-tioning and self management There are also appendices with lists -of important books films and organizations that will be of value to educators rehabilitat_ion pro(esslonals and consumers Thismiddot book ls written mainlymiddot for professionals specialists in any area of rehabilita- tlon will find it a useful addition tomiddot their library It would als6 bemiddotmiddot of value as~ textbook In courses that deal_with the psychologibal-and

-19

social aspects 1f disability and it is quite interesting and readablemiddot for consumers (This revfew by Gary Athelstan (Dept of Physlca~ Medi~ cine and Rehabilitation Univ of Minnesota Medical School) middotoriginally appeared in At~b1~~A gf fhIAl~il H~~1~1D~ B~bib11l1~t2ll Vol 66 January 1985 p 15)

J McLean Sheila A ltEd) ~~9sl 1n litgiglnt Brookfield VT Gower Publishing Company 1981 This slim volume comprising no less than 15 essays on less than 200 pages not counting footnotes is technically up-to-date But the almost complete lack of polemic tension arid partisan acrimony within it of the sort that tends to permeate most of such writing in thii country in the most recent past gives the reader the impression of going back to the more genteel past of forensic medicine It is not the case of cou~se that controversial topics receive no attention out only that matters-such as medical malpractice informed consent artificial in-semination and others are discussed without reference to the political tensions surrounding them Not surprisingly despite the rather wide range of topics addressed by the contributors there are conspicious omlssionso There is for example no essay devoted to problems of terminal illness and the removal of life support systems in cases of brain death But besides the standard problems there are papers on communal responsibilities for health care on the World Health Organiza-tion and on live animal studies that one does not ordinarily find in such collections Practitioners and health activists will not find much immediately useful information in these essays But they will find a quite extraordinarily lucid introduction into the fundamental problems in several important areas of legal-medical studies~ It should also be m~ntioned that virtually all the contributors including the able edi-tor are Scottish jurists teachin~ at Scottish universitieso Scottish law has been pervasively Anglicized of course especially in its statu-tory parts in recent decades and the studies refer extensively to English ~nd American case law statutes and commentary Still Scot-tish academic legal scholarship has retained the air of its civilian origin Indeed it is somewhat surprising that the authors make scant reference to conditions prevailing on continmiddotental Europe All in all a rather pleasant and enlighening addition to ones library at what seems a rather exorbitantly high price (review oy Egon Bitt~er Sociology Brandeis University)

K Rezler Agnes G and Joseph A Flaherty Ib~ ln1~~g~~~snslQ1m1n1l2n lo ~dY~it12llmiddot New York middotSpringer Publishing Company1985

Kushner KP Mayhew HE Rodgers LA andRoL Hermann (Eds)~tlllQal l~sect~t~ l~ f~milx fts~tl~ ~sit~ ang gQmmn~at~~- New York Springer Publishing Company 1982 middot The interpersonal is the theme common to these 2 distinctly different books~-one on medical practice the other on education for lt Rezler and Flahertys volume on medical education covers 5 common topics--students personal qualities and getting admitted decisions and choices of professional work education for and evaluation of interpersonal skills developing proper professional attitudes and interprofessional relations After sketching some issues within each topic the chapters sometimes critically review or sometimes just catalogue the literature ending with prescriptive advice on what to do (recommendations) or withmiddot summaries of the review (conclusionsgt Thus Chapter 3 on teaching interpersonal skills ltIPS) calls for more instruction and evaluation of resdents as well as students more attention to patient education and

20

measuring health outcomes as possible effects of IPS All this is weil bull and good--only if one can cut through the ~aze of medical school-hosp~

tal organiza~1on that prevent such curricular changeo middot Throughout the bookmiddotsuggestsmiddotthat t~e interpersonal gets short shrift everywhere~-whether in admi_iii~n criteria teaching or practice middot In Qr111~2l la2Yii 1l f2mlll fr2~11~~ _t_he interpersonal is of a _ dt-fferent kin~middot Jere practitioners describe 34 cases as critical inci-dents in cl inical-work noting at the end of -each the_ issues raised ~n ubiscussion middotThese are then readdress~d in a Commentaryn by 1 or 2 f~mlly physicianswho reanalyze the issu~ _while offerin~ 9omments and advice on what mighi have been done The wide~ranging cases--from de~th tb refusal of m~4Jcal ~id and from VD in a married couple (the doctors fiiends) to lnteiprofessional communication--are all part of everyday clinical practig~gt~ - middotFor trainees students and practitioners the cases might be used 1nmiddotmiddotmiddotsmall groups to elicit discussion and alternative suggestions as middot1n Bal int groups for other readers the cases are a peek into the irr9 tionalit-ies of medical practice and the gossip of pro fess i o na 1 1 1 f emiddot A_s wi th so much 1 i t erat ure on acu t e i 11 n e s s these 1 -t1-me critical incident accounts suggest that solutions if there are any come only outmiddot of single encounters- Not so Practice middot is not 11 ke ihat Conflicts take ti~e to resolve (reviewed by John D Stoeckle MD Primary Care Program Massachusetts General Hospital~ Boston)-

L Se 1 I gman M ltEdgt Ibt lsm1l~ 11h Iisng1~s1212tsi ~bll9i Y~~tr~l~nglng An~ It~sllng New York Grune and Stratton 1983 This book of readings ls a great one for filling in the gaps that often_ ijiist in texts on dealing with families with exceptional children Some o( themiddot topics covered that are especially noteworthy include legal issues-affecting parents parents journ~ys through the community ser-vice maze the r_oots of mis1mderstandi-ngs between parents amiddotnd profes- middot sionals f~th~rs -~n~ siblings of handl~apped children (yes not jusi mothersgt and interventions with parents including a fine chapter onmiddot blbliotherapy Because of the narrow _scope of several of the chapters this book would m~ke a good supplementaryrather than primary tett for cou~ses in speclal educationmiddot rehabilitation counseling family serv1ces or social work The counseling strategies_given for dealing with ex~ pected parental reactionsmiddot to having a child with a handicap--such asr disbelief~-would need more description to be tisable by a beginning 6bunselor Prof~~sionals already in the field will enjoy the middotsu~marJes provided by t~ese readings of some of the newer areas in work with fa~ilies of the exceptional children (reviewed by Katherine Schn~ider Student Counselin~ Service IowaState University)

M Speedling ~~ward J ~~Atl lttAQ~l Ibt ~AmllX itAg~QA~ At H~m~ AD~1n tb~ tlg~g11~lmiddot middotNew York Tavistock 1982 middot middot middot_ middot Thi$ is a us~ful _9ontributioti to the literature on the social aspects of th~ heart recov~ry process The author carries out ~n intensive ~tudy ofmiddot 8 lower middle class men Cm1d-50s to mid-60s) who had experienced a heart attack and the ~~sponses modes of copiQg _and relationships of familymiddotmembers He seeks tb fill in gaps on the emotions and daily lives of heart patientsmiddotmiddotwho were not treated in any depth in other longitudi~ nal and more extensive heart patient studies One persistent theme is that health G~te prbviders failed to communicate- with family members to m~et their own need~ and to permit them to play a role in the therapeu-tic process of the patient This failure not only deprlved the health care team of valuable informat 1 on that could ce incorporated into the therapeutic regime~ but also led to differefices between patients and 1

middottheir families in ~ssessing what each patient needed his appropriate

21

1eve 1- of performance etc Another major emphasis s the degree -to which fa~ilies with different life styles and interactional patterns coped and_

01related to the recovering heart pat rent Convergence arid divergence 11

characterize different types of interactional patterns of families co--11ping with heart disease Convergence suggests a focus inward a primacy

gmiddotiven to what members of a group may do together rather than separate~1y~~ divetgency implies an outward focus with primacy giv~~ tomem~ b~~s _indiVldu~lized needs and prioritiesmiddot Coping strategies in conve~~ gent households may encourage the patient to prolong the sick role whereas the -di~ergetit household may foster relinquishing the sick role earlier Each type of family may have its respective costs and gains for the patient The important middotpoint is that family structure middotwill middotaffect the patients middotcoping strategies and the rehab experience (by Sol Levmiddotine Soc amp Public Health Boston University reprinted and edited

~from sectsCl~l sectgl~n~~ M~~1g1n~ 1723 1983 pp 1940-1941gt

CLASSICS REVISITED

Wright B~atrice A ebIsectig~l Q1sect~~111IA f~Igbgsectggl~l Aaatg~gb New York-middot Harper and Row 1983 fbIsectlg~l Q1sect~~111IA fsectIgbglgglg~l Agg~g~g~~ New York Harper and Row 1960 middot

by Nancy M Crewe PhD (Dept of_Phtslcal Medicine amp Rehabilitatidn~ middot University of Minnesota)

More than 2 de6ades elapsed between the first and second editions of Wrights book--a span suffi6ient for most volumes to have faded into oblivion- But fbIsectlg~l ~1sect~b111tIA fsectIgbglgglg~l Aggtg~gb was still being used when the ne~ edition was introduced Many of the concepts presentedmiddotmiddot1n bothmiddot are timeless--persons with disabilities as membersmiddot of a ~inority group the phenomenon of spread the requirement of m6urning and the contra-st oetween copi_ng ahd succumbing in response to the onset of dimiddotsqbil ity to name a few Many of the quotations froln auto6iogra-_phies of- individuals with disabilities also remain untouched and still poignant in the new edition_Theory and living_example are brought together to help the reader understandmiddot the process by which-people

middotresportd to and live with disabilities middot Wright also uses these familiar concepts partictilarly Mcoping and

succumbingbull middotin _new ways within this edition She examines the images projected in the ~edia--eg in the course of fundraisirtg--~nd also explores the way that language structure~ our view of reality She makes us_ recognize that labels can obscure ourabili-ty to see the person and insists that we give up our carel~ss shortcuts~ She also presents a section on disacility simulation showing its potential pitfallsand

-d~scribing an approach by which it can serve as an effective teaching technique The subtle change in title identifies perhaps the most important dif- ference between the 2 versions Strongl-y influenced by the work of field theorist Kurt -Lewin Tamara Dembo Roget Barker and othe~s Wright hasmiddotmiddot never -been one to try to understand the individual 1 in isolamiddottion from the so6fal context in which she lives However the new edition gives evenmiddot g~ampater emphasis than the first one to environmental factors A parti-c u 1ar1 y use f u 1 add i t i on i s the ana 1 y s i s o f causa1 at tr i but i on as _app1 i e d to _the proble-ms of disability She presents 4 principles thamiddott clarifymiddot why most people (including rehabilitation prof~ssionals) have tended to focus on the individual as middotthe source of difficulties and as the appro-priate target for corrective measures In doing so the nec~ssity fo~ a balanced approach become~ clear middot middot middot middot middot Another interesting aspect of the new ediiin is the Preface middotvarue-

Laden Be 1 i e f s and Pr i nc i p 1e s bull i n wh i ch Wr i g ht spe 1 l s- ou t 2 O po s tmiddotu rate s

22

that underly he~ ~Qrk (When did you last re~d a text that began with~middot recitation of the authors va lues) Shemiddot 1dentmiddot1fies strongly with the1

individual who has a disability and tries to s~e the world from hishermiddot perspective She stresses the recognition of assets and also the influ-ence of community The princlples are useful not only as they piov~de a basis for undetstanding the book but als6 as they stimulate the reader to examine hisher own beliefs middot

TEACHING ABOUT DISABILITY by Sandra Bertman (Humanities in Medicine Univ of Massachusetts Medical School~ Worc~ster MAgt

The following is Part II of David Pfeiffers report on disability cburses at Suffolk University Boston MA

Rehabilitation Programs is the second of 4 courses relating to disa~ bility in the Masters in Public Administration (MPA) offered by the 1

Dept of Public Management in the School of Management at Suffolk middotUni-versity The program and the first course (bisability and Public P91icy) were discussed in the January 1985 issue of DCDQ This course ~~views the present state of public p~licy in rehabilitation and ex-a~middotines its impact on disabled persons from the viewpoint of the policy analyst the agericy responsible for i~plementing the program and th~ disabled person who is a recipient of the services As in the first course some class sessions ~arly in the semester are spent weaving the tnemes- of attitude socialization and communication together with themiddot concept of stigma The first part spotlights prejudicial attitudes

bulltoward disabled persons and how these can produce bad policy or bad implementation of good policy An introduction is given to rehabilita-tion as a field and a profession Different disabilities--spinal cord injury hearing im~airment cerebral palsy vision impairment head injury--are discussed with their rehab implications Throughout special c~re is t~ken t6 avoid suggesting that particula~ disabilities have 6nly sp~cific vocatiortal possibilities The remainder presents the history of federal rehabilitation programs (eg The Veterans Administration) ahd present policy in the Commonwealth of Massachusetts Two VR agencies ar~ discussed th~ Mass Rehabilitation Commission and the Mass Com~is-sJon for the Blind ~swell ~s mental h~alth programs and programs for persons with mental retardation Comparison is made with public pro~ grams in other states and with private insurers The final part of the course focuses on the _question of a good rehab program leading to discussion of funding and the role of the professional Since some of th~ students w6rk in amiddotrehabagehcy theae sessions are often th~ mo~t lJ~ely of the semester Guest speakers are public omiddotfficials and direc-tors of both public and private rehab programs ~nd lawyers who litigate dJsability policy cases with the state Most persons who appe~r aie e1ther disabled or are the p~rent of a disabled person and in advdcacywork middot middot ~addition to documents harided out in class the texts are B~bsbll11s= ting am~rl~a by Frank Bowe Al1~Clls11~~~ 1n B~bsf21111s11ng lb~ lisngl~sa= Q~~l 8 f2ll~1 Ansl~l~ by Jeffrey Rubin ltEdgt Ib~ sect2~121291 2f Eb1~1~sl Q1~a21lil B~bsbll11s112n by Gary Albrecht ltEd) and the Jan-Feb

middot 198 5 issue of Ib~ Am~r1~sn ~~b21l2rsl sect~1~n11~1 by Har1an Hahn ltEd gt bull An extensive annotited bibliography which students read according tomiddot the it- interests includes Notman Acton ~Employment of Disabled Per-s~ns Where are We Going in ln1~rn~112Ilsl ~2g2yr B~l~ 120 (1981) pp 1-14 Gary Albrecht ltEd~ Qr2~sect ~st12nsl E~bsf21111s112n E211~1~~ Edward Berk6witz ltEdgt Q1~s~1ll1Y E2ll~l~~ sng ~21~rnm~n1 Et29tsmsectmiddotWG Emener RS Luck andSJ Smits ltEdsgt E~bs~1l1ls112Il agm1n1~=

23

t~~112ll ~ll~ ~YQ~~X1~12n and Irving Kenneth Zola ~1~~1ng The course Dis~bil ity Rmiddotights investigates the development- of the rights of disabled persons with in the US legal system Another course Change in Puhl i c Po 1 icybull identifies the major factors--actors institutions events--whlch produce chang~ ln public pol icy relating tmiddoto disabled persons especially those which hav~ come out of the Disabiltiy Rights Movement middot Beginning in the 1985 Fall semester 2 courses--Disabllity and Public Policy and Rehabilitation Programs--wlll be offered (part of the Healih Connection) in the Suffolk MPA curriculum They will be requi~ed for accreditation at amiddotgraduate l~vel as established by themiddot Accrediting Commission on Education foi Health Services Administration Thesemiddot cciurses emphasize the perspective of the disabled person and analyze p~bllc policy to reflect upon the meaning and implications of disability in th~ last quarter of the 20th century

RESOURCES

A- NARIC The National Rehabilitation Information Center can no~ _be called toll free at 1-80034-NARIC to access their comprehensive 4nfor-middotmation on disability-related products research and resources VoiceTDD 202635-5826

B Qualitative Research Consultants Association Inc ((QRCA) a non- profit professional association in New York City formed by independent focus group moderators-and qualitative researchers expects to develop training materials handbooks and guides for professional conduct a~ ~elf as provide a forum In which individual research consultants can discus_s and ac_t u_p_on common concerns Contact QRCA pa Box Q767 909 Third Avemiddot New York NY 10622 or -cal 1 Hy Mir i ampol s)lt i at 21249974690

~ TEE ltTransitional Employm~nt Enterprises) has establishe~ th~ PolleyAction Institute whose role is to develop th~ employmerit policy middotlm1gtlications of TEEs wmiddotork with people dependent on public assistance who seek financial independence It willmiddotconcentrate on exploring issus through original resea~ch a monograph ieries ieminars and new pro~ grams The Chair is SM Miller Professor of Economics and Sociology Boston University Contactmiddot Dr Lee middotFremont-Smith TEE President or Susan Friedman Director of the Institute TEE 184 High Street Boston MA 02110 617482-7430

D~ NORD the National Organi~ation for Rare Disorders formed in response to the concern for individuals with disorders which were con-sidered too rare to be profitable by the pharmaceutical industry acts in as an information disseminator on current research or support groups for particular illnessmiddot A Networking Program links in(lvlduals with similar concerns Their newsletter Orphan Disease Update ls free upon request Membership dues are $10 for individuals $50 for organtza-t f9ns Contact NORD 1182 Brcadway Suite 402 New York NY l 0001

212 686-1057

-E Apple Computer has created the Office of Special E~ucation Programs directedby Dr Alan Brightman to work with keymiddoteducational institutions as well asmiddotwith advocacy and human servi6~ organization~ across the US to identify computer-related needs of person~ with disabilities an~ to assist in the development of responsive prog~ams~ Initiallymiddot the Officesagenda will focus on actlvltle~ desjgned to

middot i_ncreasemiddot a-wareness an-d understanding of computer appl iccit ins -with 1 n

24

s~ecial educationmiddotand to facilitatemiddot professiq~al and consumer access to information ab~ut software and hardware availability~ C6ntact Apple

l _Computer Inc -middot20525 Mariani _Ave Cupertino _CA 9501440899_6-1010

F-__ A Btai B1Eal12gtsabx available free middotand frequently_ up_da ted - _ _ contains 101 citati~ris relating td rural issues with emphasis onmiddotRural _ Health and Rural Rehabllitatiomiddotmiddotn Contact Office of ClinicalDevelopment Medical Center Rehabi 1 i tat ion Hospital Box 8202 University Stat i_on Grandmiddot Forks ND 58202 701760~2494 middot

G Based on results of ILRUs 1984 comprehensive survey of independent l 1 V i n g prOgram s the Ann2ts1tg Bts1~1tl 21 lnslt12tllsltn1 LlYlns ft29tsmli provides such information as kinds of services offered and number ofmiddotmiddot service units provided to each dls~bility group size of budget arid-_ source middotof Income size of both staff and board and breakdown on the number of disabled people involved restrictions to eligibility for -se~vices if any breakd6wn of clients ages population of community in which the program is located date it began operation and other infor- -mation on 180 programs Also available separateiy is ILRUs DlttgQtX gtlng~g~ng~n1 ~l~ins ec2s~sm~ providing names addresses telephone num-bers and TTD numbes and executive directors of overmiddot 275 programs middot1n the US and ~ther countries The Bts1~1tX ($1250) and Qlct~152t ($850) may be ordered from ILRU Project P~o Box 20095 _Houston TX 77225 Send name address check or money order 4~6 weeks delivery

H AHSSPPEs Ann21~1~~ ~1~1152St~QbI 52i lnfQtm~112n ~Qy[g~~ 4~h- Edition now contains more than 200 entries describing books jourri~ls

_media presentations organizations equipment and suppliers of particu-lar interest to the ~ervicie provider dealing with disabled students in higher education Many of the new additions dealmiddot with computertechno-logy or with evaluation and support to the learning disabled populationmiddot If you own an earlier edition serid for the 4th Edition Updates Cl650 members $10 nonmembers plus $1 postage and handling)_ middotFull text is $1250 members $15 nonmemh~rs plus $150 postage and handling~ Cori~ tact AHSSPPE PO Box 21192~ Columbus OH 43221 _614488-4972

I HS~IH 12sect~12sectsect Bt~S2Yt~~ g1ctgt2tI contains an annotated listingof about 100 national organliations providing information or materials of interest to those concern~d with postsecond~ryeducatlon for handi-capped persons brief discussion of relevant legislation the contact data for the 10 usmiddot Dept of Education Regional Technical Assistance Off1ce fot Civil Rights and a toll-free telephone directory for orgahi-zatlons of lriterest to those who work with postsecondary education and training of disabled persons It is suJtable for distribution at- m~etings and workshops middotahd may be ordered in quantities Bulk ord~~s-are free by que_st Contact Health Resource Center One DuPont Circle NW Suite 670 Washington DC 200S6

J The Association for Anthropology an~ Gerontology CAAGE) announces the f o 11 owing puol i cations 1) S 11 verman Phi 1 i p CEdgt ay_ggl~m~Dl tQ

tb~ I2g1gsl ~152StsQQI 52ll 1b~ An1bt52QS12SI gf Aslng free to AAGE mem~ bers $3non-members ~hls_updates Jay Sokolovskys I~~Qblng tb~ An1bt2 12S2l2SI 2t As1ng snsl th~ Ag~g $5 to AAGE members $10non-members and 2gt D1ttgt2t1 2 Antbc2g2l2s1~1~ ~nsl an1bc2122l2slgsl B~li~scgb 1n Agins8th edition This is the most comprehensi_ve compendium to date with 399

entries listing name affiliation and primary research interests as w~ll as a resource indei which lists all research interests entered ~ith the names of ~hose who repormiddotted that interest Contact~ Linda Cool

25

measuring health outcomes as possible effects of IPS All this is weil bull and good--only if one can cut through the ~aze of medical school-hosp~

tal organiza~1on that prevent such curricular changeo middot Throughout the bookmiddotsuggestsmiddotthat t~e interpersonal gets short shrift everywhere~-whether in admi_iii~n criteria teaching or practice middot In Qr111~2l la2Yii 1l f2mlll fr2~11~~ _t_he interpersonal is of a _ dt-fferent kin~middot Jere practitioners describe 34 cases as critical inci-dents in cl inical-work noting at the end of -each the_ issues raised ~n ubiscussion middotThese are then readdress~d in a Commentaryn by 1 or 2 f~mlly physicianswho reanalyze the issu~ _while offerin~ 9omments and advice on what mighi have been done The wide~ranging cases--from de~th tb refusal of m~4Jcal ~id and from VD in a married couple (the doctors fiiends) to lnteiprofessional communication--are all part of everyday clinical practig~gt~ - middotFor trainees students and practitioners the cases might be used 1nmiddotmiddotmiddotsmall groups to elicit discussion and alternative suggestions as middot1n Bal int groups for other readers the cases are a peek into the irr9 tionalit-ies of medical practice and the gossip of pro fess i o na 1 1 1 f emiddot A_s wi th so much 1 i t erat ure on acu t e i 11 n e s s these 1 -t1-me critical incident accounts suggest that solutions if there are any come only outmiddot of single encounters- Not so Practice middot is not 11 ke ihat Conflicts take ti~e to resolve (reviewed by John D Stoeckle MD Primary Care Program Massachusetts General Hospital~ Boston)-

L Se 1 I gman M ltEdgt Ibt lsm1l~ 11h Iisng1~s1212tsi ~bll9i Y~~tr~l~nglng An~ It~sllng New York Grune and Stratton 1983 This book of readings ls a great one for filling in the gaps that often_ ijiist in texts on dealing with families with exceptional children Some o( themiddot topics covered that are especially noteworthy include legal issues-affecting parents parents journ~ys through the community ser-vice maze the r_oots of mis1mderstandi-ngs between parents amiddotnd profes- middot sionals f~th~rs -~n~ siblings of handl~apped children (yes not jusi mothersgt and interventions with parents including a fine chapter onmiddot blbliotherapy Because of the narrow _scope of several of the chapters this book would m~ke a good supplementaryrather than primary tett for cou~ses in speclal educationmiddot rehabilitation counseling family serv1ces or social work The counseling strategies_given for dealing with ex~ pected parental reactionsmiddot to having a child with a handicap--such asr disbelief~-would need more description to be tisable by a beginning 6bunselor Prof~~sionals already in the field will enjoy the middotsu~marJes provided by t~ese readings of some of the newer areas in work with fa~ilies of the exceptional children (reviewed by Katherine Schn~ider Student Counselin~ Service IowaState University)

M Speedling ~~ward J ~~Atl lttAQ~l Ibt ~AmllX itAg~QA~ At H~m~ AD~1n tb~ tlg~g11~lmiddot middotNew York Tavistock 1982 middot middot middot_ middot Thi$ is a us~ful _9ontributioti to the literature on the social aspects of th~ heart recov~ry process The author carries out ~n intensive ~tudy ofmiddot 8 lower middle class men Cm1d-50s to mid-60s) who had experienced a heart attack and the ~~sponses modes of copiQg _and relationships of familymiddotmembers He seeks tb fill in gaps on the emotions and daily lives of heart patientsmiddotmiddotwho were not treated in any depth in other longitudi~ nal and more extensive heart patient studies One persistent theme is that health G~te prbviders failed to communicate- with family members to m~et their own need~ and to permit them to play a role in the therapeu-tic process of the patient This failure not only deprlved the health care team of valuable informat 1 on that could ce incorporated into the therapeutic regime~ but also led to differefices between patients and 1

middottheir families in ~ssessing what each patient needed his appropriate

21

1eve 1- of performance etc Another major emphasis s the degree -to which fa~ilies with different life styles and interactional patterns coped and_

01related to the recovering heart pat rent Convergence arid divergence 11

characterize different types of interactional patterns of families co--11ping with heart disease Convergence suggests a focus inward a primacy

gmiddotiven to what members of a group may do together rather than separate~1y~~ divetgency implies an outward focus with primacy giv~~ tomem~ b~~s _indiVldu~lized needs and prioritiesmiddot Coping strategies in conve~~ gent households may encourage the patient to prolong the sick role whereas the -di~ergetit household may foster relinquishing the sick role earlier Each type of family may have its respective costs and gains for the patient The important middotpoint is that family structure middotwill middotaffect the patients middotcoping strategies and the rehab experience (by Sol Levmiddotine Soc amp Public Health Boston University reprinted and edited

~from sectsCl~l sectgl~n~~ M~~1g1n~ 1723 1983 pp 1940-1941gt

CLASSICS REVISITED

Wright B~atrice A ebIsectig~l Q1sect~~111IA f~Igbgsectggl~l Aaatg~gb New York-middot Harper and Row 1983 fbIsectlg~l Q1sect~~111IA fsectIgbglgglg~l Agg~g~g~~ New York Harper and Row 1960 middot

by Nancy M Crewe PhD (Dept of_Phtslcal Medicine amp Rehabilitatidn~ middot University of Minnesota)

More than 2 de6ades elapsed between the first and second editions of Wrights book--a span suffi6ient for most volumes to have faded into oblivion- But fbIsectlg~l ~1sect~b111tIA fsectIgbglgglg~l Aggtg~gb was still being used when the ne~ edition was introduced Many of the concepts presentedmiddotmiddot1n bothmiddot are timeless--persons with disabilities as membersmiddot of a ~inority group the phenomenon of spread the requirement of m6urning and the contra-st oetween copi_ng ahd succumbing in response to the onset of dimiddotsqbil ity to name a few Many of the quotations froln auto6iogra-_phies of- individuals with disabilities also remain untouched and still poignant in the new edition_Theory and living_example are brought together to help the reader understandmiddot the process by which-people

middotresportd to and live with disabilities middot Wright also uses these familiar concepts partictilarly Mcoping and

succumbingbull middotin _new ways within this edition She examines the images projected in the ~edia--eg in the course of fundraisirtg--~nd also explores the way that language structure~ our view of reality She makes us_ recognize that labels can obscure ourabili-ty to see the person and insists that we give up our carel~ss shortcuts~ She also presents a section on disacility simulation showing its potential pitfallsand

-d~scribing an approach by which it can serve as an effective teaching technique The subtle change in title identifies perhaps the most important dif- ference between the 2 versions Strongl-y influenced by the work of field theorist Kurt -Lewin Tamara Dembo Roget Barker and othe~s Wright hasmiddotmiddot never -been one to try to understand the individual 1 in isolamiddottion from the so6fal context in which she lives However the new edition gives evenmiddot g~ampater emphasis than the first one to environmental factors A parti-c u 1ar1 y use f u 1 add i t i on i s the ana 1 y s i s o f causa1 at tr i but i on as _app1 i e d to _the proble-ms of disability She presents 4 principles thamiddott clarifymiddot why most people (including rehabilitation prof~ssionals) have tended to focus on the individual as middotthe source of difficulties and as the appro-priate target for corrective measures In doing so the nec~ssity fo~ a balanced approach become~ clear middot middot middot middot middot Another interesting aspect of the new ediiin is the Preface middotvarue-

Laden Be 1 i e f s and Pr i nc i p 1e s bull i n wh i ch Wr i g ht spe 1 l s- ou t 2 O po s tmiddotu rate s

22

that underly he~ ~Qrk (When did you last re~d a text that began with~middot recitation of the authors va lues) Shemiddot 1dentmiddot1fies strongly with the1

individual who has a disability and tries to s~e the world from hishermiddot perspective She stresses the recognition of assets and also the influ-ence of community The princlples are useful not only as they piov~de a basis for undetstanding the book but als6 as they stimulate the reader to examine hisher own beliefs middot

TEACHING ABOUT DISABILITY by Sandra Bertman (Humanities in Medicine Univ of Massachusetts Medical School~ Worc~ster MAgt

The following is Part II of David Pfeiffers report on disability cburses at Suffolk University Boston MA

Rehabilitation Programs is the second of 4 courses relating to disa~ bility in the Masters in Public Administration (MPA) offered by the 1

Dept of Public Management in the School of Management at Suffolk middotUni-versity The program and the first course (bisability and Public P91icy) were discussed in the January 1985 issue of DCDQ This course ~~views the present state of public p~licy in rehabilitation and ex-a~middotines its impact on disabled persons from the viewpoint of the policy analyst the agericy responsible for i~plementing the program and th~ disabled person who is a recipient of the services As in the first course some class sessions ~arly in the semester are spent weaving the tnemes- of attitude socialization and communication together with themiddot concept of stigma The first part spotlights prejudicial attitudes

bulltoward disabled persons and how these can produce bad policy or bad implementation of good policy An introduction is given to rehabilita-tion as a field and a profession Different disabilities--spinal cord injury hearing im~airment cerebral palsy vision impairment head injury--are discussed with their rehab implications Throughout special c~re is t~ken t6 avoid suggesting that particula~ disabilities have 6nly sp~cific vocatiortal possibilities The remainder presents the history of federal rehabilitation programs (eg The Veterans Administration) ahd present policy in the Commonwealth of Massachusetts Two VR agencies ar~ discussed th~ Mass Rehabilitation Commission and the Mass Com~is-sJon for the Blind ~swell ~s mental h~alth programs and programs for persons with mental retardation Comparison is made with public pro~ grams in other states and with private insurers The final part of the course focuses on the _question of a good rehab program leading to discussion of funding and the role of the professional Since some of th~ students w6rk in amiddotrehabagehcy theae sessions are often th~ mo~t lJ~ely of the semester Guest speakers are public omiddotfficials and direc-tors of both public and private rehab programs ~nd lawyers who litigate dJsability policy cases with the state Most persons who appe~r aie e1ther disabled or are the p~rent of a disabled person and in advdcacywork middot middot ~addition to documents harided out in class the texts are B~bsbll11s= ting am~rl~a by Frank Bowe Al1~Clls11~~~ 1n B~bsf21111s11ng lb~ lisngl~sa= Q~~l 8 f2ll~1 Ansl~l~ by Jeffrey Rubin ltEdgt Ib~ sect2~121291 2f Eb1~1~sl Q1~a21lil B~bsbll11s112n by Gary Albrecht ltEd) and the Jan-Feb

middot 198 5 issue of Ib~ Am~r1~sn ~~b21l2rsl sect~1~n11~1 by Har1an Hahn ltEd gt bull An extensive annotited bibliography which students read according tomiddot the it- interests includes Notman Acton ~Employment of Disabled Per-s~ns Where are We Going in ln1~rn~112Ilsl ~2g2yr B~l~ 120 (1981) pp 1-14 Gary Albrecht ltEd~ Qr2~sect ~st12nsl E~bsf21111s112n E211~1~~ Edward Berk6witz ltEdgt Q1~s~1ll1Y E2ll~l~~ sng ~21~rnm~n1 Et29tsmsectmiddotWG Emener RS Luck andSJ Smits ltEdsgt E~bs~1l1ls112Il agm1n1~=

23

t~~112ll ~ll~ ~YQ~~X1~12n and Irving Kenneth Zola ~1~~1ng The course Dis~bil ity Rmiddotights investigates the development- of the rights of disabled persons with in the US legal system Another course Change in Puhl i c Po 1 icybull identifies the major factors--actors institutions events--whlch produce chang~ ln public pol icy relating tmiddoto disabled persons especially those which hav~ come out of the Disabiltiy Rights Movement middot Beginning in the 1985 Fall semester 2 courses--Disabllity and Public Policy and Rehabilitation Programs--wlll be offered (part of the Healih Connection) in the Suffolk MPA curriculum They will be requi~ed for accreditation at amiddotgraduate l~vel as established by themiddot Accrediting Commission on Education foi Health Services Administration Thesemiddot cciurses emphasize the perspective of the disabled person and analyze p~bllc policy to reflect upon the meaning and implications of disability in th~ last quarter of the 20th century

RESOURCES

A- NARIC The National Rehabilitation Information Center can no~ _be called toll free at 1-80034-NARIC to access their comprehensive 4nfor-middotmation on disability-related products research and resources VoiceTDD 202635-5826

B Qualitative Research Consultants Association Inc ((QRCA) a non- profit professional association in New York City formed by independent focus group moderators-and qualitative researchers expects to develop training materials handbooks and guides for professional conduct a~ ~elf as provide a forum In which individual research consultants can discus_s and ac_t u_p_on common concerns Contact QRCA pa Box Q767 909 Third Avemiddot New York NY 10622 or -cal 1 Hy Mir i ampol s)lt i at 21249974690

~ TEE ltTransitional Employm~nt Enterprises) has establishe~ th~ PolleyAction Institute whose role is to develop th~ employmerit policy middotlm1gtlications of TEEs wmiddotork with people dependent on public assistance who seek financial independence It willmiddotconcentrate on exploring issus through original resea~ch a monograph ieries ieminars and new pro~ grams The Chair is SM Miller Professor of Economics and Sociology Boston University Contactmiddot Dr Lee middotFremont-Smith TEE President or Susan Friedman Director of the Institute TEE 184 High Street Boston MA 02110 617482-7430

D~ NORD the National Organi~ation for Rare Disorders formed in response to the concern for individuals with disorders which were con-sidered too rare to be profitable by the pharmaceutical industry acts in as an information disseminator on current research or support groups for particular illnessmiddot A Networking Program links in(lvlduals with similar concerns Their newsletter Orphan Disease Update ls free upon request Membership dues are $10 for individuals $50 for organtza-t f9ns Contact NORD 1182 Brcadway Suite 402 New York NY l 0001

212 686-1057

-E Apple Computer has created the Office of Special E~ucation Programs directedby Dr Alan Brightman to work with keymiddoteducational institutions as well asmiddotwith advocacy and human servi6~ organization~ across the US to identify computer-related needs of person~ with disabilities an~ to assist in the development of responsive prog~ams~ Initiallymiddot the Officesagenda will focus on actlvltle~ desjgned to

middot i_ncreasemiddot a-wareness an-d understanding of computer appl iccit ins -with 1 n

24

s~ecial educationmiddotand to facilitatemiddot professiq~al and consumer access to information ab~ut software and hardware availability~ C6ntact Apple

l _Computer Inc -middot20525 Mariani _Ave Cupertino _CA 9501440899_6-1010

F-__ A Btai B1Eal12gtsabx available free middotand frequently_ up_da ted - _ _ contains 101 citati~ris relating td rural issues with emphasis onmiddotRural _ Health and Rural Rehabllitatiomiddotmiddotn Contact Office of ClinicalDevelopment Medical Center Rehabi 1 i tat ion Hospital Box 8202 University Stat i_on Grandmiddot Forks ND 58202 701760~2494 middot

G Based on results of ILRUs 1984 comprehensive survey of independent l 1 V i n g prOgram s the Ann2ts1tg Bts1~1tl 21 lnslt12tllsltn1 LlYlns ft29tsmli provides such information as kinds of services offered and number ofmiddotmiddot service units provided to each dls~bility group size of budget arid-_ source middotof Income size of both staff and board and breakdown on the number of disabled people involved restrictions to eligibility for -se~vices if any breakd6wn of clients ages population of community in which the program is located date it began operation and other infor- -mation on 180 programs Also available separateiy is ILRUs DlttgQtX gtlng~g~ng~n1 ~l~ins ec2s~sm~ providing names addresses telephone num-bers and TTD numbes and executive directors of overmiddot 275 programs middot1n the US and ~ther countries The Bts1~1tX ($1250) and Qlct~152t ($850) may be ordered from ILRU Project P~o Box 20095 _Houston TX 77225 Send name address check or money order 4~6 weeks delivery

H AHSSPPEs Ann21~1~~ ~1~1152St~QbI 52i lnfQtm~112n ~Qy[g~~ 4~h- Edition now contains more than 200 entries describing books jourri~ls

_media presentations organizations equipment and suppliers of particu-lar interest to the ~ervicie provider dealing with disabled students in higher education Many of the new additions dealmiddot with computertechno-logy or with evaluation and support to the learning disabled populationmiddot If you own an earlier edition serid for the 4th Edition Updates Cl650 members $10 nonmembers plus $1 postage and handling)_ middotFull text is $1250 members $15 nonmemh~rs plus $150 postage and handling~ Cori~ tact AHSSPPE PO Box 21192~ Columbus OH 43221 _614488-4972

I HS~IH 12sect~12sectsect Bt~S2Yt~~ g1ctgt2tI contains an annotated listingof about 100 national organliations providing information or materials of interest to those concern~d with postsecond~ryeducatlon for handi-capped persons brief discussion of relevant legislation the contact data for the 10 usmiddot Dept of Education Regional Technical Assistance Off1ce fot Civil Rights and a toll-free telephone directory for orgahi-zatlons of lriterest to those who work with postsecondary education and training of disabled persons It is suJtable for distribution at- m~etings and workshops middotahd may be ordered in quantities Bulk ord~~s-are free by que_st Contact Health Resource Center One DuPont Circle NW Suite 670 Washington DC 200S6

J The Association for Anthropology an~ Gerontology CAAGE) announces the f o 11 owing puol i cations 1) S 11 verman Phi 1 i p CEdgt ay_ggl~m~Dl tQ

tb~ I2g1gsl ~152StsQQI 52ll 1b~ An1bt52QS12SI gf Aslng free to AAGE mem~ bers $3non-members ~hls_updates Jay Sokolovskys I~~Qblng tb~ An1bt2 12S2l2SI 2t As1ng snsl th~ Ag~g $5 to AAGE members $10non-members and 2gt D1ttgt2t1 2 Antbc2g2l2s1~1~ ~nsl an1bc2122l2slgsl B~li~scgb 1n Agins8th edition This is the most comprehensi_ve compendium to date with 399

entries listing name affiliation and primary research interests as w~ll as a resource indei which lists all research interests entered ~ith the names of ~hose who repormiddotted that interest Contact~ Linda Cool

25

1eve 1- of performance etc Another major emphasis s the degree -to which fa~ilies with different life styles and interactional patterns coped and_

01related to the recovering heart pat rent Convergence arid divergence 11

characterize different types of interactional patterns of families co--11ping with heart disease Convergence suggests a focus inward a primacy

gmiddotiven to what members of a group may do together rather than separate~1y~~ divetgency implies an outward focus with primacy giv~~ tomem~ b~~s _indiVldu~lized needs and prioritiesmiddot Coping strategies in conve~~ gent households may encourage the patient to prolong the sick role whereas the -di~ergetit household may foster relinquishing the sick role earlier Each type of family may have its respective costs and gains for the patient The important middotpoint is that family structure middotwill middotaffect the patients middotcoping strategies and the rehab experience (by Sol Levmiddotine Soc amp Public Health Boston University reprinted and edited

~from sectsCl~l sectgl~n~~ M~~1g1n~ 1723 1983 pp 1940-1941gt

CLASSICS REVISITED

Wright B~atrice A ebIsectig~l Q1sect~~111IA f~Igbgsectggl~l Aaatg~gb New York-middot Harper and Row 1983 fbIsectlg~l Q1sect~~111IA fsectIgbglgglg~l Agg~g~g~~ New York Harper and Row 1960 middot

by Nancy M Crewe PhD (Dept of_Phtslcal Medicine amp Rehabilitatidn~ middot University of Minnesota)

More than 2 de6ades elapsed between the first and second editions of Wrights book--a span suffi6ient for most volumes to have faded into oblivion- But fbIsectlg~l ~1sect~b111tIA fsectIgbglgglg~l Aggtg~gb was still being used when the ne~ edition was introduced Many of the concepts presentedmiddotmiddot1n bothmiddot are timeless--persons with disabilities as membersmiddot of a ~inority group the phenomenon of spread the requirement of m6urning and the contra-st oetween copi_ng ahd succumbing in response to the onset of dimiddotsqbil ity to name a few Many of the quotations froln auto6iogra-_phies of- individuals with disabilities also remain untouched and still poignant in the new edition_Theory and living_example are brought together to help the reader understandmiddot the process by which-people

middotresportd to and live with disabilities middot Wright also uses these familiar concepts partictilarly Mcoping and

succumbingbull middotin _new ways within this edition She examines the images projected in the ~edia--eg in the course of fundraisirtg--~nd also explores the way that language structure~ our view of reality She makes us_ recognize that labels can obscure ourabili-ty to see the person and insists that we give up our carel~ss shortcuts~ She also presents a section on disacility simulation showing its potential pitfallsand

-d~scribing an approach by which it can serve as an effective teaching technique The subtle change in title identifies perhaps the most important dif- ference between the 2 versions Strongl-y influenced by the work of field theorist Kurt -Lewin Tamara Dembo Roget Barker and othe~s Wright hasmiddotmiddot never -been one to try to understand the individual 1 in isolamiddottion from the so6fal context in which she lives However the new edition gives evenmiddot g~ampater emphasis than the first one to environmental factors A parti-c u 1ar1 y use f u 1 add i t i on i s the ana 1 y s i s o f causa1 at tr i but i on as _app1 i e d to _the proble-ms of disability She presents 4 principles thamiddott clarifymiddot why most people (including rehabilitation prof~ssionals) have tended to focus on the individual as middotthe source of difficulties and as the appro-priate target for corrective measures In doing so the nec~ssity fo~ a balanced approach become~ clear middot middot middot middot middot Another interesting aspect of the new ediiin is the Preface middotvarue-

Laden Be 1 i e f s and Pr i nc i p 1e s bull i n wh i ch Wr i g ht spe 1 l s- ou t 2 O po s tmiddotu rate s

22

that underly he~ ~Qrk (When did you last re~d a text that began with~middot recitation of the authors va lues) Shemiddot 1dentmiddot1fies strongly with the1

individual who has a disability and tries to s~e the world from hishermiddot perspective She stresses the recognition of assets and also the influ-ence of community The princlples are useful not only as they piov~de a basis for undetstanding the book but als6 as they stimulate the reader to examine hisher own beliefs middot

TEACHING ABOUT DISABILITY by Sandra Bertman (Humanities in Medicine Univ of Massachusetts Medical School~ Worc~ster MAgt

The following is Part II of David Pfeiffers report on disability cburses at Suffolk University Boston MA

Rehabilitation Programs is the second of 4 courses relating to disa~ bility in the Masters in Public Administration (MPA) offered by the 1

Dept of Public Management in the School of Management at Suffolk middotUni-versity The program and the first course (bisability and Public P91icy) were discussed in the January 1985 issue of DCDQ This course ~~views the present state of public p~licy in rehabilitation and ex-a~middotines its impact on disabled persons from the viewpoint of the policy analyst the agericy responsible for i~plementing the program and th~ disabled person who is a recipient of the services As in the first course some class sessions ~arly in the semester are spent weaving the tnemes- of attitude socialization and communication together with themiddot concept of stigma The first part spotlights prejudicial attitudes

bulltoward disabled persons and how these can produce bad policy or bad implementation of good policy An introduction is given to rehabilita-tion as a field and a profession Different disabilities--spinal cord injury hearing im~airment cerebral palsy vision impairment head injury--are discussed with their rehab implications Throughout special c~re is t~ken t6 avoid suggesting that particula~ disabilities have 6nly sp~cific vocatiortal possibilities The remainder presents the history of federal rehabilitation programs (eg The Veterans Administration) ahd present policy in the Commonwealth of Massachusetts Two VR agencies ar~ discussed th~ Mass Rehabilitation Commission and the Mass Com~is-sJon for the Blind ~swell ~s mental h~alth programs and programs for persons with mental retardation Comparison is made with public pro~ grams in other states and with private insurers The final part of the course focuses on the _question of a good rehab program leading to discussion of funding and the role of the professional Since some of th~ students w6rk in amiddotrehabagehcy theae sessions are often th~ mo~t lJ~ely of the semester Guest speakers are public omiddotfficials and direc-tors of both public and private rehab programs ~nd lawyers who litigate dJsability policy cases with the state Most persons who appe~r aie e1ther disabled or are the p~rent of a disabled person and in advdcacywork middot middot ~addition to documents harided out in class the texts are B~bsbll11s= ting am~rl~a by Frank Bowe Al1~Clls11~~~ 1n B~bsf21111s11ng lb~ lisngl~sa= Q~~l 8 f2ll~1 Ansl~l~ by Jeffrey Rubin ltEdgt Ib~ sect2~121291 2f Eb1~1~sl Q1~a21lil B~bsbll11s112n by Gary Albrecht ltEd) and the Jan-Feb

middot 198 5 issue of Ib~ Am~r1~sn ~~b21l2rsl sect~1~n11~1 by Har1an Hahn ltEd gt bull An extensive annotited bibliography which students read according tomiddot the it- interests includes Notman Acton ~Employment of Disabled Per-s~ns Where are We Going in ln1~rn~112Ilsl ~2g2yr B~l~ 120 (1981) pp 1-14 Gary Albrecht ltEd~ Qr2~sect ~st12nsl E~bsf21111s112n E211~1~~ Edward Berk6witz ltEdgt Q1~s~1ll1Y E2ll~l~~ sng ~21~rnm~n1 Et29tsmsectmiddotWG Emener RS Luck andSJ Smits ltEdsgt E~bs~1l1ls112Il agm1n1~=

23

t~~112ll ~ll~ ~YQ~~X1~12n and Irving Kenneth Zola ~1~~1ng The course Dis~bil ity Rmiddotights investigates the development- of the rights of disabled persons with in the US legal system Another course Change in Puhl i c Po 1 icybull identifies the major factors--actors institutions events--whlch produce chang~ ln public pol icy relating tmiddoto disabled persons especially those which hav~ come out of the Disabiltiy Rights Movement middot Beginning in the 1985 Fall semester 2 courses--Disabllity and Public Policy and Rehabilitation Programs--wlll be offered (part of the Healih Connection) in the Suffolk MPA curriculum They will be requi~ed for accreditation at amiddotgraduate l~vel as established by themiddot Accrediting Commission on Education foi Health Services Administration Thesemiddot cciurses emphasize the perspective of the disabled person and analyze p~bllc policy to reflect upon the meaning and implications of disability in th~ last quarter of the 20th century

RESOURCES

A- NARIC The National Rehabilitation Information Center can no~ _be called toll free at 1-80034-NARIC to access their comprehensive 4nfor-middotmation on disability-related products research and resources VoiceTDD 202635-5826

B Qualitative Research Consultants Association Inc ((QRCA) a non- profit professional association in New York City formed by independent focus group moderators-and qualitative researchers expects to develop training materials handbooks and guides for professional conduct a~ ~elf as provide a forum In which individual research consultants can discus_s and ac_t u_p_on common concerns Contact QRCA pa Box Q767 909 Third Avemiddot New York NY 10622 or -cal 1 Hy Mir i ampol s)lt i at 21249974690

~ TEE ltTransitional Employm~nt Enterprises) has establishe~ th~ PolleyAction Institute whose role is to develop th~ employmerit policy middotlm1gtlications of TEEs wmiddotork with people dependent on public assistance who seek financial independence It willmiddotconcentrate on exploring issus through original resea~ch a monograph ieries ieminars and new pro~ grams The Chair is SM Miller Professor of Economics and Sociology Boston University Contactmiddot Dr Lee middotFremont-Smith TEE President or Susan Friedman Director of the Institute TEE 184 High Street Boston MA 02110 617482-7430

D~ NORD the National Organi~ation for Rare Disorders formed in response to the concern for individuals with disorders which were con-sidered too rare to be profitable by the pharmaceutical industry acts in as an information disseminator on current research or support groups for particular illnessmiddot A Networking Program links in(lvlduals with similar concerns Their newsletter Orphan Disease Update ls free upon request Membership dues are $10 for individuals $50 for organtza-t f9ns Contact NORD 1182 Brcadway Suite 402 New York NY l 0001

212 686-1057

-E Apple Computer has created the Office of Special E~ucation Programs directedby Dr Alan Brightman to work with keymiddoteducational institutions as well asmiddotwith advocacy and human servi6~ organization~ across the US to identify computer-related needs of person~ with disabilities an~ to assist in the development of responsive prog~ams~ Initiallymiddot the Officesagenda will focus on actlvltle~ desjgned to

middot i_ncreasemiddot a-wareness an-d understanding of computer appl iccit ins -with 1 n

24

s~ecial educationmiddotand to facilitatemiddot professiq~al and consumer access to information ab~ut software and hardware availability~ C6ntact Apple

l _Computer Inc -middot20525 Mariani _Ave Cupertino _CA 9501440899_6-1010

F-__ A Btai B1Eal12gtsabx available free middotand frequently_ up_da ted - _ _ contains 101 citati~ris relating td rural issues with emphasis onmiddotRural _ Health and Rural Rehabllitatiomiddotmiddotn Contact Office of ClinicalDevelopment Medical Center Rehabi 1 i tat ion Hospital Box 8202 University Stat i_on Grandmiddot Forks ND 58202 701760~2494 middot

G Based on results of ILRUs 1984 comprehensive survey of independent l 1 V i n g prOgram s the Ann2ts1tg Bts1~1tl 21 lnslt12tllsltn1 LlYlns ft29tsmli provides such information as kinds of services offered and number ofmiddotmiddot service units provided to each dls~bility group size of budget arid-_ source middotof Income size of both staff and board and breakdown on the number of disabled people involved restrictions to eligibility for -se~vices if any breakd6wn of clients ages population of community in which the program is located date it began operation and other infor- -mation on 180 programs Also available separateiy is ILRUs DlttgQtX gtlng~g~ng~n1 ~l~ins ec2s~sm~ providing names addresses telephone num-bers and TTD numbes and executive directors of overmiddot 275 programs middot1n the US and ~ther countries The Bts1~1tX ($1250) and Qlct~152t ($850) may be ordered from ILRU Project P~o Box 20095 _Houston TX 77225 Send name address check or money order 4~6 weeks delivery

H AHSSPPEs Ann21~1~~ ~1~1152St~QbI 52i lnfQtm~112n ~Qy[g~~ 4~h- Edition now contains more than 200 entries describing books jourri~ls

_media presentations organizations equipment and suppliers of particu-lar interest to the ~ervicie provider dealing with disabled students in higher education Many of the new additions dealmiddot with computertechno-logy or with evaluation and support to the learning disabled populationmiddot If you own an earlier edition serid for the 4th Edition Updates Cl650 members $10 nonmembers plus $1 postage and handling)_ middotFull text is $1250 members $15 nonmemh~rs plus $150 postage and handling~ Cori~ tact AHSSPPE PO Box 21192~ Columbus OH 43221 _614488-4972

I HS~IH 12sect~12sectsect Bt~S2Yt~~ g1ctgt2tI contains an annotated listingof about 100 national organliations providing information or materials of interest to those concern~d with postsecond~ryeducatlon for handi-capped persons brief discussion of relevant legislation the contact data for the 10 usmiddot Dept of Education Regional Technical Assistance Off1ce fot Civil Rights and a toll-free telephone directory for orgahi-zatlons of lriterest to those who work with postsecondary education and training of disabled persons It is suJtable for distribution at- m~etings and workshops middotahd may be ordered in quantities Bulk ord~~s-are free by que_st Contact Health Resource Center One DuPont Circle NW Suite 670 Washington DC 200S6

J The Association for Anthropology an~ Gerontology CAAGE) announces the f o 11 owing puol i cations 1) S 11 verman Phi 1 i p CEdgt ay_ggl~m~Dl tQ

tb~ I2g1gsl ~152StsQQI 52ll 1b~ An1bt52QS12SI gf Aslng free to AAGE mem~ bers $3non-members ~hls_updates Jay Sokolovskys I~~Qblng tb~ An1bt2 12S2l2SI 2t As1ng snsl th~ Ag~g $5 to AAGE members $10non-members and 2gt D1ttgt2t1 2 Antbc2g2l2s1~1~ ~nsl an1bc2122l2slgsl B~li~scgb 1n Agins8th edition This is the most comprehensi_ve compendium to date with 399

entries listing name affiliation and primary research interests as w~ll as a resource indei which lists all research interests entered ~ith the names of ~hose who repormiddotted that interest Contact~ Linda Cool

25

that underly he~ ~Qrk (When did you last re~d a text that began with~middot recitation of the authors va lues) Shemiddot 1dentmiddot1fies strongly with the1

individual who has a disability and tries to s~e the world from hishermiddot perspective She stresses the recognition of assets and also the influ-ence of community The princlples are useful not only as they piov~de a basis for undetstanding the book but als6 as they stimulate the reader to examine hisher own beliefs middot

TEACHING ABOUT DISABILITY by Sandra Bertman (Humanities in Medicine Univ of Massachusetts Medical School~ Worc~ster MAgt

The following is Part II of David Pfeiffers report on disability cburses at Suffolk University Boston MA

Rehabilitation Programs is the second of 4 courses relating to disa~ bility in the Masters in Public Administration (MPA) offered by the 1

Dept of Public Management in the School of Management at Suffolk middotUni-versity The program and the first course (bisability and Public P91icy) were discussed in the January 1985 issue of DCDQ This course ~~views the present state of public p~licy in rehabilitation and ex-a~middotines its impact on disabled persons from the viewpoint of the policy analyst the agericy responsible for i~plementing the program and th~ disabled person who is a recipient of the services As in the first course some class sessions ~arly in the semester are spent weaving the tnemes- of attitude socialization and communication together with themiddot concept of stigma The first part spotlights prejudicial attitudes

bulltoward disabled persons and how these can produce bad policy or bad implementation of good policy An introduction is given to rehabilita-tion as a field and a profession Different disabilities--spinal cord injury hearing im~airment cerebral palsy vision impairment head injury--are discussed with their rehab implications Throughout special c~re is t~ken t6 avoid suggesting that particula~ disabilities have 6nly sp~cific vocatiortal possibilities The remainder presents the history of federal rehabilitation programs (eg The Veterans Administration) ahd present policy in the Commonwealth of Massachusetts Two VR agencies ar~ discussed th~ Mass Rehabilitation Commission and the Mass Com~is-sJon for the Blind ~swell ~s mental h~alth programs and programs for persons with mental retardation Comparison is made with public pro~ grams in other states and with private insurers The final part of the course focuses on the _question of a good rehab program leading to discussion of funding and the role of the professional Since some of th~ students w6rk in amiddotrehabagehcy theae sessions are often th~ mo~t lJ~ely of the semester Guest speakers are public omiddotfficials and direc-tors of both public and private rehab programs ~nd lawyers who litigate dJsability policy cases with the state Most persons who appe~r aie e1ther disabled or are the p~rent of a disabled person and in advdcacywork middot middot ~addition to documents harided out in class the texts are B~bsbll11s= ting am~rl~a by Frank Bowe Al1~Clls11~~~ 1n B~bsf21111s11ng lb~ lisngl~sa= Q~~l 8 f2ll~1 Ansl~l~ by Jeffrey Rubin ltEdgt Ib~ sect2~121291 2f Eb1~1~sl Q1~a21lil B~bsbll11s112n by Gary Albrecht ltEd) and the Jan-Feb

middot 198 5 issue of Ib~ Am~r1~sn ~~b21l2rsl sect~1~n11~1 by Har1an Hahn ltEd gt bull An extensive annotited bibliography which students read according tomiddot the it- interests includes Notman Acton ~Employment of Disabled Per-s~ns Where are We Going in ln1~rn~112Ilsl ~2g2yr B~l~ 120 (1981) pp 1-14 Gary Albrecht ltEd~ Qr2~sect ~st12nsl E~bsf21111s112n E211~1~~ Edward Berk6witz ltEdgt Q1~s~1ll1Y E2ll~l~~ sng ~21~rnm~n1 Et29tsmsectmiddotWG Emener RS Luck andSJ Smits ltEdsgt E~bs~1l1ls112Il agm1n1~=

23

t~~112ll ~ll~ ~YQ~~X1~12n and Irving Kenneth Zola ~1~~1ng The course Dis~bil ity Rmiddotights investigates the development- of the rights of disabled persons with in the US legal system Another course Change in Puhl i c Po 1 icybull identifies the major factors--actors institutions events--whlch produce chang~ ln public pol icy relating tmiddoto disabled persons especially those which hav~ come out of the Disabiltiy Rights Movement middot Beginning in the 1985 Fall semester 2 courses--Disabllity and Public Policy and Rehabilitation Programs--wlll be offered (part of the Healih Connection) in the Suffolk MPA curriculum They will be requi~ed for accreditation at amiddotgraduate l~vel as established by themiddot Accrediting Commission on Education foi Health Services Administration Thesemiddot cciurses emphasize the perspective of the disabled person and analyze p~bllc policy to reflect upon the meaning and implications of disability in th~ last quarter of the 20th century

RESOURCES

A- NARIC The National Rehabilitation Information Center can no~ _be called toll free at 1-80034-NARIC to access their comprehensive 4nfor-middotmation on disability-related products research and resources VoiceTDD 202635-5826

B Qualitative Research Consultants Association Inc ((QRCA) a non- profit professional association in New York City formed by independent focus group moderators-and qualitative researchers expects to develop training materials handbooks and guides for professional conduct a~ ~elf as provide a forum In which individual research consultants can discus_s and ac_t u_p_on common concerns Contact QRCA pa Box Q767 909 Third Avemiddot New York NY 10622 or -cal 1 Hy Mir i ampol s)lt i at 21249974690

~ TEE ltTransitional Employm~nt Enterprises) has establishe~ th~ PolleyAction Institute whose role is to develop th~ employmerit policy middotlm1gtlications of TEEs wmiddotork with people dependent on public assistance who seek financial independence It willmiddotconcentrate on exploring issus through original resea~ch a monograph ieries ieminars and new pro~ grams The Chair is SM Miller Professor of Economics and Sociology Boston University Contactmiddot Dr Lee middotFremont-Smith TEE President or Susan Friedman Director of the Institute TEE 184 High Street Boston MA 02110 617482-7430

D~ NORD the National Organi~ation for Rare Disorders formed in response to the concern for individuals with disorders which were con-sidered too rare to be profitable by the pharmaceutical industry acts in as an information disseminator on current research or support groups for particular illnessmiddot A Networking Program links in(lvlduals with similar concerns Their newsletter Orphan Disease Update ls free upon request Membership dues are $10 for individuals $50 for organtza-t f9ns Contact NORD 1182 Brcadway Suite 402 New York NY l 0001

212 686-1057

-E Apple Computer has created the Office of Special E~ucation Programs directedby Dr Alan Brightman to work with keymiddoteducational institutions as well asmiddotwith advocacy and human servi6~ organization~ across the US to identify computer-related needs of person~ with disabilities an~ to assist in the development of responsive prog~ams~ Initiallymiddot the Officesagenda will focus on actlvltle~ desjgned to

middot i_ncreasemiddot a-wareness an-d understanding of computer appl iccit ins -with 1 n

24

s~ecial educationmiddotand to facilitatemiddot professiq~al and consumer access to information ab~ut software and hardware availability~ C6ntact Apple

l _Computer Inc -middot20525 Mariani _Ave Cupertino _CA 9501440899_6-1010

F-__ A Btai B1Eal12gtsabx available free middotand frequently_ up_da ted - _ _ contains 101 citati~ris relating td rural issues with emphasis onmiddotRural _ Health and Rural Rehabllitatiomiddotmiddotn Contact Office of ClinicalDevelopment Medical Center Rehabi 1 i tat ion Hospital Box 8202 University Stat i_on Grandmiddot Forks ND 58202 701760~2494 middot

G Based on results of ILRUs 1984 comprehensive survey of independent l 1 V i n g prOgram s the Ann2ts1tg Bts1~1tl 21 lnslt12tllsltn1 LlYlns ft29tsmli provides such information as kinds of services offered and number ofmiddotmiddot service units provided to each dls~bility group size of budget arid-_ source middotof Income size of both staff and board and breakdown on the number of disabled people involved restrictions to eligibility for -se~vices if any breakd6wn of clients ages population of community in which the program is located date it began operation and other infor- -mation on 180 programs Also available separateiy is ILRUs DlttgQtX gtlng~g~ng~n1 ~l~ins ec2s~sm~ providing names addresses telephone num-bers and TTD numbes and executive directors of overmiddot 275 programs middot1n the US and ~ther countries The Bts1~1tX ($1250) and Qlct~152t ($850) may be ordered from ILRU Project P~o Box 20095 _Houston TX 77225 Send name address check or money order 4~6 weeks delivery

H AHSSPPEs Ann21~1~~ ~1~1152St~QbI 52i lnfQtm~112n ~Qy[g~~ 4~h- Edition now contains more than 200 entries describing books jourri~ls

_media presentations organizations equipment and suppliers of particu-lar interest to the ~ervicie provider dealing with disabled students in higher education Many of the new additions dealmiddot with computertechno-logy or with evaluation and support to the learning disabled populationmiddot If you own an earlier edition serid for the 4th Edition Updates Cl650 members $10 nonmembers plus $1 postage and handling)_ middotFull text is $1250 members $15 nonmemh~rs plus $150 postage and handling~ Cori~ tact AHSSPPE PO Box 21192~ Columbus OH 43221 _614488-4972

I HS~IH 12sect~12sectsect Bt~S2Yt~~ g1ctgt2tI contains an annotated listingof about 100 national organliations providing information or materials of interest to those concern~d with postsecond~ryeducatlon for handi-capped persons brief discussion of relevant legislation the contact data for the 10 usmiddot Dept of Education Regional Technical Assistance Off1ce fot Civil Rights and a toll-free telephone directory for orgahi-zatlons of lriterest to those who work with postsecondary education and training of disabled persons It is suJtable for distribution at- m~etings and workshops middotahd may be ordered in quantities Bulk ord~~s-are free by que_st Contact Health Resource Center One DuPont Circle NW Suite 670 Washington DC 200S6

J The Association for Anthropology an~ Gerontology CAAGE) announces the f o 11 owing puol i cations 1) S 11 verman Phi 1 i p CEdgt ay_ggl~m~Dl tQ

tb~ I2g1gsl ~152StsQQI 52ll 1b~ An1bt52QS12SI gf Aslng free to AAGE mem~ bers $3non-members ~hls_updates Jay Sokolovskys I~~Qblng tb~ An1bt2 12S2l2SI 2t As1ng snsl th~ Ag~g $5 to AAGE members $10non-members and 2gt D1ttgt2t1 2 Antbc2g2l2s1~1~ ~nsl an1bc2122l2slgsl B~li~scgb 1n Agins8th edition This is the most comprehensi_ve compendium to date with 399

entries listing name affiliation and primary research interests as w~ll as a resource indei which lists all research interests entered ~ith the names of ~hose who repormiddotted that interest Contact~ Linda Cool

25

t~~112ll ~ll~ ~YQ~~X1~12n and Irving Kenneth Zola ~1~~1ng The course Dis~bil ity Rmiddotights investigates the development- of the rights of disabled persons with in the US legal system Another course Change in Puhl i c Po 1 icybull identifies the major factors--actors institutions events--whlch produce chang~ ln public pol icy relating tmiddoto disabled persons especially those which hav~ come out of the Disabiltiy Rights Movement middot Beginning in the 1985 Fall semester 2 courses--Disabllity and Public Policy and Rehabilitation Programs--wlll be offered (part of the Healih Connection) in the Suffolk MPA curriculum They will be requi~ed for accreditation at amiddotgraduate l~vel as established by themiddot Accrediting Commission on Education foi Health Services Administration Thesemiddot cciurses emphasize the perspective of the disabled person and analyze p~bllc policy to reflect upon the meaning and implications of disability in th~ last quarter of the 20th century

RESOURCES

A- NARIC The National Rehabilitation Information Center can no~ _be called toll free at 1-80034-NARIC to access their comprehensive 4nfor-middotmation on disability-related products research and resources VoiceTDD 202635-5826

B Qualitative Research Consultants Association Inc ((QRCA) a non- profit professional association in New York City formed by independent focus group moderators-and qualitative researchers expects to develop training materials handbooks and guides for professional conduct a~ ~elf as provide a forum In which individual research consultants can discus_s and ac_t u_p_on common concerns Contact QRCA pa Box Q767 909 Third Avemiddot New York NY 10622 or -cal 1 Hy Mir i ampol s)lt i at 21249974690

~ TEE ltTransitional Employm~nt Enterprises) has establishe~ th~ PolleyAction Institute whose role is to develop th~ employmerit policy middotlm1gtlications of TEEs wmiddotork with people dependent on public assistance who seek financial independence It willmiddotconcentrate on exploring issus through original resea~ch a monograph ieries ieminars and new pro~ grams The Chair is SM Miller Professor of Economics and Sociology Boston University Contactmiddot Dr Lee middotFremont-Smith TEE President or Susan Friedman Director of the Institute TEE 184 High Street Boston MA 02110 617482-7430

D~ NORD the National Organi~ation for Rare Disorders formed in response to the concern for individuals with disorders which were con-sidered too rare to be profitable by the pharmaceutical industry acts in as an information disseminator on current research or support groups for particular illnessmiddot A Networking Program links in(lvlduals with similar concerns Their newsletter Orphan Disease Update ls free upon request Membership dues are $10 for individuals $50 for organtza-t f9ns Contact NORD 1182 Brcadway Suite 402 New York NY l 0001

212 686-1057

-E Apple Computer has created the Office of Special E~ucation Programs directedby Dr Alan Brightman to work with keymiddoteducational institutions as well asmiddotwith advocacy and human servi6~ organization~ across the US to identify computer-related needs of person~ with disabilities an~ to assist in the development of responsive prog~ams~ Initiallymiddot the Officesagenda will focus on actlvltle~ desjgned to

middot i_ncreasemiddot a-wareness an-d understanding of computer appl iccit ins -with 1 n

24

s~ecial educationmiddotand to facilitatemiddot professiq~al and consumer access to information ab~ut software and hardware availability~ C6ntact Apple

l _Computer Inc -middot20525 Mariani _Ave Cupertino _CA 9501440899_6-1010

F-__ A Btai B1Eal12gtsabx available free middotand frequently_ up_da ted - _ _ contains 101 citati~ris relating td rural issues with emphasis onmiddotRural _ Health and Rural Rehabllitatiomiddotmiddotn Contact Office of ClinicalDevelopment Medical Center Rehabi 1 i tat ion Hospital Box 8202 University Stat i_on Grandmiddot Forks ND 58202 701760~2494 middot

G Based on results of ILRUs 1984 comprehensive survey of independent l 1 V i n g prOgram s the Ann2ts1tg Bts1~1tl 21 lnslt12tllsltn1 LlYlns ft29tsmli provides such information as kinds of services offered and number ofmiddotmiddot service units provided to each dls~bility group size of budget arid-_ source middotof Income size of both staff and board and breakdown on the number of disabled people involved restrictions to eligibility for -se~vices if any breakd6wn of clients ages population of community in which the program is located date it began operation and other infor- -mation on 180 programs Also available separateiy is ILRUs DlttgQtX gtlng~g~ng~n1 ~l~ins ec2s~sm~ providing names addresses telephone num-bers and TTD numbes and executive directors of overmiddot 275 programs middot1n the US and ~ther countries The Bts1~1tX ($1250) and Qlct~152t ($850) may be ordered from ILRU Project P~o Box 20095 _Houston TX 77225 Send name address check or money order 4~6 weeks delivery

H AHSSPPEs Ann21~1~~ ~1~1152St~QbI 52i lnfQtm~112n ~Qy[g~~ 4~h- Edition now contains more than 200 entries describing books jourri~ls

_media presentations organizations equipment and suppliers of particu-lar interest to the ~ervicie provider dealing with disabled students in higher education Many of the new additions dealmiddot with computertechno-logy or with evaluation and support to the learning disabled populationmiddot If you own an earlier edition serid for the 4th Edition Updates Cl650 members $10 nonmembers plus $1 postage and handling)_ middotFull text is $1250 members $15 nonmemh~rs plus $150 postage and handling~ Cori~ tact AHSSPPE PO Box 21192~ Columbus OH 43221 _614488-4972

I HS~IH 12sect~12sectsect Bt~S2Yt~~ g1ctgt2tI contains an annotated listingof about 100 national organliations providing information or materials of interest to those concern~d with postsecond~ryeducatlon for handi-capped persons brief discussion of relevant legislation the contact data for the 10 usmiddot Dept of Education Regional Technical Assistance Off1ce fot Civil Rights and a toll-free telephone directory for orgahi-zatlons of lriterest to those who work with postsecondary education and training of disabled persons It is suJtable for distribution at- m~etings and workshops middotahd may be ordered in quantities Bulk ord~~s-are free by que_st Contact Health Resource Center One DuPont Circle NW Suite 670 Washington DC 200S6

J The Association for Anthropology an~ Gerontology CAAGE) announces the f o 11 owing puol i cations 1) S 11 verman Phi 1 i p CEdgt ay_ggl~m~Dl tQ

tb~ I2g1gsl ~152StsQQI 52ll 1b~ An1bt52QS12SI gf Aslng free to AAGE mem~ bers $3non-members ~hls_updates Jay Sokolovskys I~~Qblng tb~ An1bt2 12S2l2SI 2t As1ng snsl th~ Ag~g $5 to AAGE members $10non-members and 2gt D1ttgt2t1 2 Antbc2g2l2s1~1~ ~nsl an1bc2122l2slgsl B~li~scgb 1n Agins8th edition This is the most comprehensi_ve compendium to date with 399

entries listing name affiliation and primary research interests as w~ll as a resource indei which lists all research interests entered ~ith the names of ~hose who repormiddotted that interest Contact~ Linda Cool

25

s~ecial educationmiddotand to facilitatemiddot professiq~al and consumer access to information ab~ut software and hardware availability~ C6ntact Apple

l _Computer Inc -middot20525 Mariani _Ave Cupertino _CA 9501440899_6-1010

F-__ A Btai B1Eal12gtsabx available free middotand frequently_ up_da ted - _ _ contains 101 citati~ris relating td rural issues with emphasis onmiddotRural _ Health and Rural Rehabllitatiomiddotmiddotn Contact Office of ClinicalDevelopment Medical Center Rehabi 1 i tat ion Hospital Box 8202 University Stat i_on Grandmiddot Forks ND 58202 701760~2494 middot

G Based on results of ILRUs 1984 comprehensive survey of independent l 1 V i n g prOgram s the Ann2ts1tg Bts1~1tl 21 lnslt12tllsltn1 LlYlns ft29tsmli provides such information as kinds of services offered and number ofmiddotmiddot service units provided to each dls~bility group size of budget arid-_ source middotof Income size of both staff and board and breakdown on the number of disabled people involved restrictions to eligibility for -se~vices if any breakd6wn of clients ages population of community in which the program is located date it began operation and other infor- -mation on 180 programs Also available separateiy is ILRUs DlttgQtX gtlng~g~ng~n1 ~l~ins ec2s~sm~ providing names addresses telephone num-bers and TTD numbes and executive directors of overmiddot 275 programs middot1n the US and ~ther countries The Bts1~1tX ($1250) and Qlct~152t ($850) may be ordered from ILRU Project P~o Box 20095 _Houston TX 77225 Send name address check or money order 4~6 weeks delivery

H AHSSPPEs Ann21~1~~ ~1~1152St~QbI 52i lnfQtm~112n ~Qy[g~~ 4~h- Edition now contains more than 200 entries describing books jourri~ls

_media presentations organizations equipment and suppliers of particu-lar interest to the ~ervicie provider dealing with disabled students in higher education Many of the new additions dealmiddot with computertechno-logy or with evaluation and support to the learning disabled populationmiddot If you own an earlier edition serid for the 4th Edition Updates Cl650 members $10 nonmembers plus $1 postage and handling)_ middotFull text is $1250 members $15 nonmemh~rs plus $150 postage and handling~ Cori~ tact AHSSPPE PO Box 21192~ Columbus OH 43221 _614488-4972

I HS~IH 12sect~12sectsect Bt~S2Yt~~ g1ctgt2tI contains an annotated listingof about 100 national organliations providing information or materials of interest to those concern~d with postsecond~ryeducatlon for handi-capped persons brief discussion of relevant legislation the contact data for the 10 usmiddot Dept of Education Regional Technical Assistance Off1ce fot Civil Rights and a toll-free telephone directory for orgahi-zatlons of lriterest to those who work with postsecondary education and training of disabled persons It is suJtable for distribution at- m~etings and workshops middotahd may be ordered in quantities Bulk ord~~s-are free by que_st Contact Health Resource Center One DuPont Circle NW Suite 670 Washington DC 200S6

J The Association for Anthropology an~ Gerontology CAAGE) announces the f o 11 owing puol i cations 1) S 11 verman Phi 1 i p CEdgt ay_ggl~m~Dl tQ

tb~ I2g1gsl ~152StsQQI 52ll 1b~ An1bt52QS12SI gf Aslng free to AAGE mem~ bers $3non-members ~hls_updates Jay Sokolovskys I~~Qblng tb~ An1bt2 12S2l2SI 2t As1ng snsl th~ Ag~g $5 to AAGE members $10non-members and 2gt D1ttgt2t1 2 Antbc2g2l2s1~1~ ~nsl an1bc2122l2slgsl B~li~scgb 1n Agins8th edition This is the most comprehensi_ve compendium to date with 399

entries listing name affiliation and primary research interests as w~ll as a resource indei which lists all research interests entered ~ith the names of ~hose who repormiddotted that interest Contact~ Linda Cool

25

President AACE Dept ot Soc and AntOro ~~Untv of Santa Clara Santa Clara CA 95053 408984bull4508

bullmiddot K ~llt6~lSllll QJlllllllilll9 bull bullbullI f -advocacy bullbullnual for pbulloplbull with dtsabll lt les describes s tep-by-step how to start self-middotadvocacy groupsorganize successfu l aeettngs recruit uebullbers get publ cty pick Issues and wln fundraise etc In large print or on t ape Prtce 86 f or consumers SIO for agencies (bulk rate availablegt Make checks payab le to ~CCD and se nd order to Massachusetts Coalition of Citizens v tth Ois~bl l it les 18 Wl llt stori Road Brookline MA 02146 617734-7277

-~

Brandels University DepartDent o f SociologyWalthabull KA 02254 USA

DISABILITY STUDIES QUARTERLY Irving Kenneth Zola Ed itor

__ U $ PO$TAGt

PAID Pvrnll No 15731

btofI M9JMChuNttl

PRINTED HATTER

26