Cross CFAR CAB Collaborative Meeting

Philadelphia, PAApril 11-12, 2011

Non-CFAR Family Health International (FHI)

* Indicates Developmental CFAR

CFARs● Baylor/ UT● Case Western Reserve University● Duke University● DC CFAR*● Emory University● Harvard University● New York University● University of Alabama at

Birmingham● University of North Carolina● University of Miami*● University of Rochester*● University of Pennsylvania/ CHOP/

Wistar● University of Washington/FHCRC

40 attendees from 14 institutions

What participants liked most …

“ All of the presentations allowed for questions and answer. Also really appreciate the diversity of the group.”

“The CFAR Survey Discussion and the Breakout group reporting/ discussion”

“The opportunity to hear about and share the stories of the different CFAR experiences and strategies. Very informative especially for

a new CFAR! And lunch was great! ”

“The sessions were structured but loose enough to allow discussion.”

Some of the Expectations….

Learn about CFAR structure and function

Develop newcomers to be leaders

Meet, learn from, network with other CABs for best practices

Engage in dialogue about important issues

Learn more about research review of protocols, etc

40 Attendees (44 registered) from 13 institutions

100 % rated meeting as meeting their expectations

91% would like to continue on-going dialogue with the other CFAR CABs.

8 out of 13 CFAR CABs would like to host a future face-to-face Cross CFAR CAB training/meeting/workshop

Presentations- Monday Sessions - Welcome and Introductions

James Hoxie, MD (Penn CFAR Director)Waheedah Shabazz-El (Penn CFAR, CAB Chair)Kevin T. Jones, MPH, Med (HIV/AIDS Prevention Research Division

- Getting to Know You: History and Infrastructure of CABsCarol Rogers (Penn CFAR CAB, Vice Chair)

- Keeping CFAR CABs Afloat: CAB Coordinators Speak Kate Murray, MPH (University of Washington CFAR CAB Coordinator)

- How to Get a Conference Scholarship: Batting 1000Waheedah Shabazz-El (Penn CFAR CAB Chair)

- For Community Representatives and Other Non-academics: How Do I Develop An Abstract?

Michael Blank, PhD ( Penn CFAR Behavioral and Social Sciences Co-Director)

- Building Effective and Meaningful CFAR Community Advisory/ Action Boards

- What’s Next?

Presentations, Friday Sessions Jonathan Paul Lucas, MPH (FHI)Cheryl Cokley MPH (FHI)

- Review of Training Agenda

- Training Introduction

- CAB Responsibilities

- Clinical Trials Terminology

- Protocol Content

- Protocol Review Questions

- Providing Feedback About the Protocol

- Training Summary

James Hoxie, MD Welcome (right)

Kevin T. Jones, MEd, MPH

Facilitator (left)

Group learning (left), Karen Fishbaugh-Cummings, CWRU (bottom left); Breakout group report back NYU Rep, Lorenzo Penn

(bottom Right)

I couldn’t wait to follow-up with you re: my experience at the CROSS CFAR CAB.  It was absolutely worthwhile and wonderful from beginning to end.  This collective forum gave us an opportunity to establish a network of support with existing and developing CABs across the county.  We quickly realized that we shared many commonalities re: strengths and challenges and our respective differences created stimulating and supportive dialogue among us.  We quickly embraced while there are some fundamental similar tenets embodied by all of the CABs, there isn’t a “one size fits all” model. I’m looking forward to being an active participant in this dynamic exchange as we continue to move forward individually and corporately in advancing the HIV research agenda with a vital emphasis on community support, as evident by our many discussions and activities.Again, thank you, thank you, thank you for extending the honor and privilege to represent the UNC CFAR CAB.  It was truly an amazing experience and I’m grateful. 

There was much that was outstanding about our two days together – the people we met, the discussions we had, etc.  What stood out for me,

however, was how every logistical detail was planned

and executed perfectly. 

Thank each of you for your input, your great ideas, your conversation

and your friendly involvement during our time together this week.

I enjoyed meeting each of you.

As I depart this 'City of Brotherly Love', I reflect that I have met many wonderful new brothers and sisters

during my time here. We are creating a family ~ a family of

CABs bonded together by shared initiative and motivated by the

common dream of changing the landscape of HIV.

Thank you again for your many contributions and your continued

commitment.

Jonathan Paul Lucas, MPH, FHI trainer (top left); Some sunning & movement planning (top right); Penn CFAR CAB members getting

their certificates of completion (bottom right)

Info sharing at its finest, some creative juices were flowing as well. All Attendees before we departed

COMMUNICATION PLAN

- listserv [cross-cfar-cab@googlegroups.com]

- blog

- newsletter

-conference calls [CROSS CAB CALL NUMBER: (712) 338-7506]

SKILL BUILDING

- webinars [AnyMeeting.com/CrossCFARCAB1]- face-to face meetings

- CAB retreat

INFRASTRUCTURE

- create a standardize criteria for CFAR CABs

- create a centralized evaluation process for how CABs can evaluate their own effectiveness ( in reaching goals; fulfilling its missions, etc), evaluate their relationship with investigators and University/ CFAR staff

RESOURCES

- Nurture new groups who want to establish CFAR CABs

- Create a clearinghouse for materials by-laws, committee structures, training

NEXT POSSIBLE HOSTS

- Duke at (CFAR Director’s meeting)

- Univ. of Washington, Harvard, UPenn, UAB, Baylor/UT, NYU, Rochester

Penn CFAR CAB Education & Training Committee Carol Rogers Cynthia Green Roy Hayes Jeffrey Jenne Alison Lin Brenda Hughes Bob Schoenberg Waheedah Shabazz-El

Facilitators and Trainers

Kevin T. Jones, Penn HIV Prevention Research Division

Jonathan Paul Lucas , FHI

Cheryl Cokely , FHI

Penn CFAR Staff James Hoxie David Metzger Michael Blank Tiffany B. Dominique David Nadgeman Evelyn Olivieri

Volunteer Michelle Jones