cpabc roundtable summer 2012
TRANSCRIPT
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7/28/2019 CPABC Roundtable Summer 2012
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summer 2012
2012 Survey SummaryneWs
general
World CP day
RRSP into disability trust
World CP Challenge
CEREBRAL PALSY ASSOCIATION OF BRITISH COLUMBIA
the
I have been enjoying the beauful
sunny weather and some of the many
cultural/summer fesvals and events
that are oered throughout the greater
Vancouver area. I hope that everyone
is having a relaxing and enjoyable sum-
mer.
I am very pleased with the July 11,
2012 announcement by the Translinks
Board of Directors to reverse their orig-
inal decision to eliminate the taxi saverprogram. Taxi savers are vouchers that
people with disabilies and seniors can
use to get a 50% discount on taxi fares.
People rely on taxi savers as an inte-
gral part for them to stay engaged in
the community. Many of us, including
myself, retain a certain amount of taxi
savers at all mes for those moments
when we need an immediate trans-
portaon opon for emergencies. The
eliminaon of the taxi saver program
would have removed a crical safety
opon for people in mes of urgency
- ulmately, people would have been
hurt without taxi savers.
I was part of the community-based
campaign for the connuaon of the
taxi saver program. The focal point of
the campaign and its slogan, `Taxi Sav-
ers are Life Savers`, illustrated perfectly
the importance of taxi savers in peoples
lives. The People with Disabilies and
the Seniors Advisory Commiees for
the city of Vancouver were instrumen-
tal in convincing the Translink board ofdirectors that the eliminaon of the
taxi saver program was a bad decision
- addionally, Vancouver city council
passed a moon unanimously to not
support the eliminaon of the program.
I commend the eorts and me spent
by members of both advisory commit-
tees that led to the retenon of the
program. July 12, 2012 - a day aer the
Translinks announcement, a third pub-
lic forum had already been planned. It
quickly turned into a celebraon of the
victory to save the taxi saver program.
It was at the celebraon that someone
there stated that those involved were
wheelchair warriors. In response, I
stated, I like the sound of that. The
gentleman then responded with, Go
ahead and use it; thus, Wheelchair
Warrior is now incorporated into my
signature line.
At the me of the taxi saver dispute,
I was the vice-chair of the disability
advisory commiee for Translink. On
July 09, 2012, I was forced by Translinkpersonnel to resign from their advisory
commiee due to my public opposion
and concerns regarding the eliminaon
of the program. I did resign proudly as
I knew I was doing the right thing and
I was appropriately represenng the
best interests of people with disabili-
es and seniors. My forced resignaon
was unfortunate. Accessibility on public
transportaon sll remains a high pri-
Presidents
Words
Connued on page 2
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they Want your teeth!
BC dental assoCiation . BCda
CPaBC neWs summer 2012
Back in May the Cerebral Palsy As-
sociaon was approached by the BC
Dental Associaon. They asked that
we provide them with the names
of adult members of our associa-
on - with cerebral palsy - living in
the Lower Mainland area, who may
wish be parcipate in their dental
pilot projects. Word went out via
our webpage, Facebook, Twier and
personal emails.Pilot projects are meant to collect
data on the outcomes of providing
dental care to vulnerable individuals
and to idenfy any gaps in dental
coverage that may exit in govern-
ment plans. Potenal parcipants
are asked to ll out a medical q
onnaire and to have a quick
of their mouth to determine if
are a good t for the project.
accepted into the program the
have a dental examinaon to d
mine what treatment is requ
Parcipants are asked to ll o
evaluaon form before, during
aer the pilot is completed. T
is no cost to paents parcipathis sounds like something you w
be interested in registering for p
email us at wh@bccerebralp
com or call us at 604-408-9484
we will add your name to the lis
It is esmated that 100 children are born, in BC, each year
with cerebral palsy (CP). At the moment there is no one place,
where all children with CP go for treatment; therefore, there
is no one place that is compiling data on this condion. The
Cerebral Palsy Registry of BC hopes to change this, but they
need your help.
On May 9th your CP Associaon met with Diane Wicken
er, the BC Project Coordinator for the Canadian Cerebral Registry. If you have a child with CP, who was born in
and 2010, Diane would like to interview you. She will b
lecng data around such things as the Moms health, del
infecons prenatal risks, the services your child is rece
how oen, and if you are happy with these services. C
denality is respected. A number is assigned to each ch
no personal informaon goes into the date base.
The registry hopes to eventually link into other data b
around the world to look at such things as: if certain typ
CP are more prevalent in one part of the world than an a
er, if links can be found in children who have CP and if ce
types of CP can be traced back to a common denominatGovernments like stascs. It is believed, by your Ass
on, that if we can gather numbers on CP we can lobb
government for services and funding because we will be
to show stascally - the areas in which those service
funds are needed. This may be a huge benet to indivi
with CP.
If you have a child who was born in 2009 or 2010, and w
like to know more about this study, please contact D
Wickenheiser, BC Project Coordinator for the Canadian
bral Palsy Registry, at 604-453-8300 ext. 8482.
a CereBral Palsy
registry for BC
ority for me. I now know I can be more eec-
ve to advance beer accessibility through
community-based collaboraon.
The phrase, It is okay to say NO`, spoken to
me many years ago from a personal mentor,
gave me the strength and courage to speak
out contrary to Translink. This is the message
I want to leave with all of you. It is okay to say
NO and we must say NO when it comes to
bad decisions that will hurt ourselves, other
people with disabilies and seniors. Once we
say NO then we can begin to have a conver-
saon of how to best deliver programs and
services to truly serve the best interests ofpeople with disabilies and seniors through-
out BC and Canada.
Your President,
Craig Langston
Wheelchair Warrior
Connued from page 1
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TO RAISE.TO REACH.TO REALIZE
2012 By Carol Snson, Board of Directors
The Board of Directors would like to
sincerely thank everyone who took
the me to parcipate in our spring
survey. We were looking for some
conrmaon that the road we were
going down was the direcon our
members really wanted go and we
believe we did receive this support.
How w conicat:
The most important nding from
the survey is that our members are
very well connected to social media
and internet resources. Over 90%
of the responses to the survey were
completed on-line even though
there was a mail-out of hundreds
of hard copies of the survey in our
spring newsleer. Most respon-dents want to communicate with
the CPABC through e-mail or social
media such as Facebook or Twier
(86%).
Our newsleer is sll our most ap-
preciated service however the big-
gest reason people did not use our
other programs was because they
were not aware of them (45%). This
will encourage us to work harder on
how we share informaon aboutour bursaries, camp subsidies and
personal supports. We also need to
improve our website so that these
programs are easier to nd on-line.
Our internet resources, printed re-
sources and individual advocacy
and support program have also
been well used and are very much
appreciated by respondents.
We received a great deal of sup-
port for developing a support-style
and informaon-sharing group that
could reach all areas of the prov-
ince using new on-line technologies
(79%).
sytic Advocacy:
We really appreciate the support we
received for our intenon to go for-
ward with more systemic advocacy
(87%). We are aware that Revenue
Canada is watching non-prots fortheir levels of advocacy but we be-
lieve that we can walk this line suc-
cessfully. We received many writ-
ten comments about how we might
move forward and we would like to
thank the people who pointed out
that we need to include employ-
ment opportunies as something
we need to advocate for. Social
isolaon and a lack of recreaonal
opportunies (68%) were also men-
oned many mes in the wriencomments.
There were also many comments
about programs and services for
children and beer access to medi-
cal services (62%) for everyone is an
important issue.
Conclion:
Please watch our newsleer, Fa-
cebook page, Website and Twit-
ter feed for our new programs and
services as we move into the future
and thank you again to everyone
who took me out of their busy lives
to parcipate in our survey! Survey
results will be posted at www.bcce-
rebralpalsy.com
survey summary
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CPaBC neWs summer 2012CPaBC neWs summer 2012
CP ChallengeCollateral form
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TO RAISE.TO REACH.TO REALIZE
World CP Challenge is an exciting 4 week team activity that will getyou active and improve your health and wellbeing. Its also a funway to raise much needed funds to support the Cerebral PalsyAssociation of British Columbias vital work.
Perfect for co-workers, school classes and family friends, itssomething everyone can enjoy!
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CPaBC neWs summer 2012
Connued on pa
We are excited to report that the CPABCS Campership Pro-
gram has just completed its h year nancially assisng
kids aend a special needs BC camp of their choice.
This years nine campers ranged in age from 6 18 years
and parcipated in camps in Mission, Wineld, Squamish
and Coquitlam. Our camp subsidies went towards such
costs as paral camp fees, transportaon costs and care
aendant fees.
Without the help of an aendant, many of these children
could not aend camp; so even though the camping session
itself may be free to the parcipant, the care aendant fee
can be a real barrier to that child being able to aend.
That is where the Campership Program of the CPABC co
in. Thanks to the generous donaons we receive, tow
this program, we can assist members of our associa
with the many costs associated with going to camp.
Seventeen year old Olivia has received funding from us
the past four years and has just returned from a six day
at Camp Wineld. Her parents wrote:
Thank you so much! We really appreciate all you give to
ivia and to so many other deserving kids. Olivia had a g
me at camp and is already looking forward to next y
C.a.m.P. Where Kids Can Be Kids
On June 5, Tammy van der Kamp
and Feri Dehdar were invited to
dinner by the Burnaby Host Lions
Club, where they enjoyed a White Spot
burger. Aer dinner Tammy outlined the
CPABCs accomplishments for the past year, and gave the
club members an idea of some of the funding challenges
facing the CPABC for the upcoming year.
Some of the accomplishments that Tammy menoned were
the 8 CPABC bursaries awarded this past year to students
living with CP to assist with their post-secondary educaon.It costs the CPABC $2,500 per student to be able to maintain
this valuable program. The CPABC also enabled 14 children
and adults with special needs to aend a summer camp
of their choice through the campership subsidy program. It
costs CPABC $ 2,000 per camper to be able to connue to
help send people to camp each year. Another accomplish-
ment The CPABC is proud of this year was their ability to
make a contribuon of $2,000 toward the construcon of
the Agur Lake Camp project. This camp will be unique in BC
and will provide fun, respite and support for children with
special needs and their families.
Like all non-prot charitable organizaons, the CPABC has
had to operate with limited resources due to cutbacks in
funding from the BC Gaming Commission. This m
were becoming ever more creave in our quest for fun
projects, and we must also make each dollar work hard
So we are very excited when groups like the Burnaby
Lions express an interest in our bursary program.
This small but generous club went out of its way to m
us feel welcome. Even PADS dog Breeze enjoyed he
as she had an opportunity to schmooze with an old fri
Aaron the Guide Dog, a beauful black lab.
Just a couple of days later, on June 7, Tammy and CP
President Craig Langston were guests of honour at the
nual Donaon Barbecue hosted by the Burnaby Loug
Lions Club, where they accepted a cheque for $500.00
enjoyed a delicious barbecue dinner.The CPABC is only as eecve as it is because of the
erosity of groups like the Burnaby Lougheed Lions, and
Burnaby Host Lions, who understand the value of our v
to see people who live with cp reach their full pote
With this kind of support behind us, the CPABC cannot
but succeed in its mission.
CPABC would like to thank both the Burnaby Host L
Club and the Burnaby Lougheed Lions Club for their
nued support.
For more informaon about our bursary or camper
subsidy program or if you would like to make a dona
to help us keep these programs available for those aeby cp, please contact our oce at 604-408-9484 or in
bccerebralpalsy.com .
BurnaBy lions
We thanKyou!
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TO RAISE.TO REACH.TO REALIZE
an i role my rrsP intomy disaBility trust?y Halldor K. Bjarnason, Lawyer - Access Law Group. www.Trustlawyers.ca
Registered Rerement Savings Plan,RRSP, is created with pre-tax dol-
rs. As a result, when funds are de-
gistered and paid out of the RRSP,
come taxes must be paid. A dis-
bility trust, on the other hand, is cre-
ed with aer tax dollars and has no
ecial tax-exempt status. As a result,
you wanted to move money from an
RSP to a trust, you would rst have to
thdraw (or de-register) the funds
om the RRSP, pay income tax on these
nds, and then place them into the
sability trust.
ere may be a signicant tax liability
hen funds are withdrawn from the
RSP. However, a person normally
adaPtive
sliPPers
Do you have swollen
feet? Are you unable toslip feet easily into slippers? Silverts
Adapve Footwear has the answer with
their extra wide opening, skid resistant,
easy touch closure slippers. Contact
Silverts today at www.silverts.com or
1-800-387-7088. They are in Canada.
training WithCereBral
Palsy - an e-BooK
his book, Training with Cerebral Pal-
y, Joshua Neufeld, personal trainer,rovides exercises, stretches, acvies
nd nutrional recommendaons that
ssist people with cerebral palsy to live
healthier lifestyle. Check out his web-
te at www.cerebralpalsytraining.com
nd start training today!
are you Claiming all
you Can? revenue Canada
If you dont know about it, you cant
claim it! So educate yourself and startkeeping track. A few of the items listed
on Revenue Canadas website under
allowable medical expenses include:
bathroom and walking aids, specially
trained animals (cost, care and mainte-
nance), vehicle modicaon, stairway
chairs, disposable briefs/diapers, note
taking services, respite care expenses,
laboratory services, renovang, and
construcon expenses that oer great-
er mobility to an individual with a mo-
bility impairment.To speak to a person about an expense
you may be wondering about call 1-800-
959-8281. To view a list of allowable
medical expenses go to www.cra-arc.
gc.ca. Hit the search tab. In the search
for box enter the words list of allowable
medical expenses. Now click on #1
Which medical expenses are eligible?
Presto you are there! This website is
worth a look-see every so oen as al-
lowable expenses do change.
CPaBC general summer 2012
truly is a fabulous place where kids
th special needs can be themselves,
cepted with no boundaries, and given
ery opportunity to feel typical, in-
uded and loved.....
mmer is a me for busng loose, hav-
g fun and feeling free. If you would
e to help towards next years camper-
ip program please contact us at 604-
8-9484 or 1-800-663-0004 to make a
naon. It will make a dierence
nnued from page 6
cant qualify for provincial disability as-sistance when they have an RRSP. Nev-
er-the-less, it may well be worth taking
the tax hit in order to qualify - parcu-
larly if there are high medical costs in-
volved. However, it is always wise to
get legal and accounng advice before
making the decision to liquidate an
RRSP in order to get provincial disability
assistance.
Please note that this column is pro-
vided for general informaon only. As
specic facts aect how the law is ap-
plied to your circumstances, it is always
wise to get the advice of competent le-
gal counsel.
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Cerebral Palsy Associaon of Brish Columbia
801-409 Granville St. Vancouver, BC V6C 1T2
Phone: 604.408.9484
Toll-Free (Enquiry CP): 1.800.663.0004
Fax: 604.408.9489
Email: [email protected]
Office Hrs: 9 AM to 5PM, Monday to Thursday
PLEASE RECYCLE THIS
ROUNDTABLE BY PASSIN
IT ALONG TO SOMEONE E
VOLUNTEER BOARD MEMBERS
CONTRIBUTING WRITERS
STAFF
CRAIG LANGSTON President
TRISH MCKAY Vice President
ANDY YU Treasurer
CAROL STINSON Secretary
RONALD BLACKMORE
TERREANE DERRICK
TONY KRUSE
JONN OLLDYM
FERI DEHDAR
TAMMY VAN DER KAMP
WENDY HAWRYZKI
WENDY HAWRYZKI & TAMMY VAN DER KAMP
Director of Programs &Administraon
Family & IndividualSupport Worker
Administrave Assistant
CPaBC neWs summer 2012
$100 $75 $50 $25
My choice:
Visa #
Expiry Date
Name on Card
Todays Date
Signature
Please mail to:
REALIZE EQUALITY
IN A DIVERSE SOCIETY!
Now, more than ever before your membership will help to :
Become a Member today!
Membership fee: $20
Donaon: I would like to make a donaon to support
the services and programs of the Cerebral Palsy
Associaon of BC. Income tax receipts are only issued
for donaons of $10 or more, unless requested.
Method of Payment: I have enclosed a cheque
payable to the CPABC or:
Cerebral Palsy Associaon of BC801-409 Granville Street Vancouver, BC V6C 1T2(Charitable Registraon Business Number 10690 4204 RR0001)
announCing
the 58th annual
general meeting of the
CereBral Palsy assoCiation of BC
Thursday, Septemmber 13, 2012
6:30pm - 8:30pmBonsor Community Centre
Mul Purpose Room 1, 2nd Floor
6550 Bonsor Avenue
Burnaby, BC V5H 2G8
Date:
Time:Venue:
Members, community partners & new members are all
welcome to aend. Seang is limited. Please RSVP by ca
ing 604.408.9484 or toll free in BC at 1.800.663.0004 to
reserve your seat. www.bccerebralpalsy.com
aCCess 2 entertainment Card
do you have yours?
The Access 2 Entertainment Program was launched in
Dec. 2004 making entertainment more aordable for
those requiring a support person. People with disabili-
es can apply for a personal Access 2 Entertainment
Card which provides free admission, or a substanal
discount, for their support person at movie theatres
and other entertainment venues across Canada. A fee is
required to receive a card which
is valid for 5 years. Appli-
caons are available at
www.access2.ca