coping with a brain tumor - nebraska medicine · brain tips . . . • notebook, organizer or smart...

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Coping with a Brain Tumor Randy LaGrone, PhD Clinical Psychologist Psychology Department Nebraska Medicine

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Page 1: Coping with a Brain Tumor - Nebraska Medicine · Brain tips . . . • Notebook, organizer or smart phone • Checklist, daily routine (1 thing at a time) • Process thinking –say

Coping with a Brain Tumor

Randy LaGrone, PhD

Clinical Psychologist

Psychology Department

Nebraska Medicine

Page 2: Coping with a Brain Tumor - Nebraska Medicine · Brain tips . . . • Notebook, organizer or smart phone • Checklist, daily routine (1 thing at a time) • Process thinking –say

Shock of diagnosis.

“Will I still be me?”

Page 3: Coping with a Brain Tumor - Nebraska Medicine · Brain tips . . . • Notebook, organizer or smart phone • Checklist, daily routine (1 thing at a time) • Process thinking –say

Anxiety

• Most common psychological symptom

• Experienced as dread when faced with uncertainty

• Anticipatory anxiety about the future

• Can escalate into panic attacks

• “Kindling effect” of worrying/stressors

Page 4: Coping with a Brain Tumor - Nebraska Medicine · Brain tips . . . • Notebook, organizer or smart phone • Checklist, daily routine (1 thing at a time) • Process thinking –say

Depression vs. Normal Mood

• Frequency of

Symptoms

• Intensity

• Duration

• Impact on functioning

Page 5: Coping with a Brain Tumor - Nebraska Medicine · Brain tips . . . • Notebook, organizer or smart phone • Checklist, daily routine (1 thing at a time) • Process thinking –say

Symptoms of Depression

• Sadness/tearfulness

• Negativity

• Loss of pleasure

• No motivation

• Withdrawal

• Sleep problems

• Difficulty thinking

Page 6: Coping with a Brain Tumor - Nebraska Medicine · Brain tips . . . • Notebook, organizer or smart phone • Checklist, daily routine (1 thing at a time) • Process thinking –say

Motivation Symptoms

• Avoidance

• Withdrawal

• Increased dependency

• Decreased activity

• Suicidal ideation

Page 7: Coping with a Brain Tumor - Nebraska Medicine · Brain tips . . . • Notebook, organizer or smart phone • Checklist, daily routine (1 thing at a time) • Process thinking –say

Basic Psychology

• We feel the way we think

• Experience is subjective (beliefs, attitudes, expectations, attributions)

• It’s not what happens, but what you think about the situation

• We can learn better ways to think and cope

Page 8: Coping with a Brain Tumor - Nebraska Medicine · Brain tips . . . • Notebook, organizer or smart phone • Checklist, daily routine (1 thing at a time) • Process thinking –say

Winston Churchill Quote

“When I look back on all these worries, I

remember the story of the man who said

on his deathbed that he had a lot of

trouble in his life, most of which never

happened.”

Page 9: Coping with a Brain Tumor - Nebraska Medicine · Brain tips . . . • Notebook, organizer or smart phone • Checklist, daily routine (1 thing at a time) • Process thinking –say

Tumor location and treatment

side effects

• Personality and behavior changes

• Slowed thinking

• Memory loss

• Depression and fatigue

• Confusion and disorientation

• Irritability and outbursts (short fuse)

Page 10: Coping with a Brain Tumor - Nebraska Medicine · Brain tips . . . • Notebook, organizer or smart phone • Checklist, daily routine (1 thing at a time) • Process thinking –say

Faulty Thinking That Maintains

Stress

• Catastrophizing - seeing the worst case

• Personalization – “I’m the only one to feel this”

• All-Or-Nothing Thinking - extremes only

Page 11: Coping with a Brain Tumor - Nebraska Medicine · Brain tips . . . • Notebook, organizer or smart phone • Checklist, daily routine (1 thing at a time) • Process thinking –say

Key Components of Coping

• Information about diagnosis, treatment and prognosis

(meds: anxiety/depression)

• Realistic expectations, goal-setting

• Mood monitoring (taking in the good)

• Pleasant activities (social interaction)

• Assertiveness skills (pacing activity)

• Having a problem solving strategy

• Identifying faulty thinking (emotional reasoning)

• Physician approved exercise

Page 12: Coping with a Brain Tumor - Nebraska Medicine · Brain tips . . . • Notebook, organizer or smart phone • Checklist, daily routine (1 thing at a time) • Process thinking –say

Cancer Considerations

• Problems with body image and self worth

• Societal value that self image (identity) is based on physical appearance

• Public intrusiveness

• Changes in social interaction in public

(staring, questions, silent language, etc.)

• Strains of interaction (overcompensation)

• Emotional cost to cope in public

Page 13: Coping with a Brain Tumor - Nebraska Medicine · Brain tips . . . • Notebook, organizer or smart phone • Checklist, daily routine (1 thing at a time) • Process thinking –say

ACT Strategy for Coping

A = Accept situation (Tip: You don’t have

to like it)

C = Choose to be reasonably happy

anyway

T = Take action to find enjoyment,

meaning and purpose

Page 14: Coping with a Brain Tumor - Nebraska Medicine · Brain tips . . . • Notebook, organizer or smart phone • Checklist, daily routine (1 thing at a time) • Process thinking –say

Brain tips . . .• Notebook, organizer or smart phone

• Checklist, daily routine (1 thing at a time)

• Process thinking – say steps out loud

• Pace activity, avoid overstimulation, be realistic

(sleep and nutrition)

• Discuss challenges with family (plan)

• Support group, psychological help, neuropsychological evaluation

Page 15: Coping with a Brain Tumor - Nebraska Medicine · Brain tips . . . • Notebook, organizer or smart phone • Checklist, daily routine (1 thing at a time) • Process thinking –say

Physician Approved Exercise

• Works rapidly

• 10 minutes a day improves mood

• Affects cellular and molecular levels of the brain, causes positive chemical and structural changes

• Effective as medication for many people

Page 16: Coping with a Brain Tumor - Nebraska Medicine · Brain tips . . . • Notebook, organizer or smart phone • Checklist, daily routine (1 thing at a time) • Process thinking –say

End of presentation

Questions and discussion . . .