contact a family - preparing for adult life and transition (scotland)

8/14/2019 Contact a Family - Preparing for adult life and transition (Scotland)

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Preparing for adult life and transition - Scotland

Information for families

Preparing for adult life and

transition - ScotlandIncorporating TheLady Hoare Trust

Scotland


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Preparing for adult life and transition - Scotland Preparing for adult life and transition - Scotland

Introduction

Leaving school and moving into adulthood is achallenging time for all young people with disabilitiesand their parents. What choices exist and will theyhelp the young person lead a fullling life?

Many parents feel anxious at this time, predictingpoor services or a possible lack of choice for theirchildren. The support they may have enjoyedthrough local parents groups or local childrensservices may seem to be about to fade away.

For these reasons it is vital that parents and theirchildren plan for transition to adult services andadult life as early as possible. This guide aims tohelp by bringing together some of the main issuesthat parents and young people need to think about.It is written for parents with children around the

age of 14 as this is the age when planning for thistransition process should normally begin.


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Freephone helpline: 0808 808 3555Web:www.cafamily.org.uk

Planning for leaving

schoolAlthough you and your child mightalready have discussed plans for theirfuture, formal transition planning usuallybegins at school. Under the Education(Additional Support for Learning)(Scotland) Act 2004, educationauthorities must do certain things to help

all young people with additional supportneeds to make the transition from schoolto post-school life successfully.

Education authorities must requestinformation from agencies likely to beinvolved with the child or young personon leaving school. These agencies couldbe:

a local authority (council)

3Preparing for adult life and transition - Scotland 3

an NHS board Careers Scotland a college or university.

Information is requested so that theeducation authority can think aboutwhether the child is getting the rightsupport at school to prepare them formoving on and make sure there is a goodmatch between this and the support theywill receive once they have left school.This must be completed at least 12months before the child or young personis expected to leave school. Planning,

therefore, should begin far earlier thanthis.

Some pupils may need at least two yearsto prepare for leaving school, for examplethose with complex needs who needco-ordinated support or pupils who needto make a very gradual transition to helpthem get used to a new environment.

Education authorities must also pass oninformation to the other agencies nolater than six months before the child oryoung person is due to leave school. Thiswill include the expected leaving date aswell as any other information relevant tothe support the young person will need,such as telling a university about the

kind of learning support that has been inplace at school or passing on informationabout care needs to the social workdepartment.

Contents

Planning for leaving school......................3Involving parents and young people ...4

How transition planning is managed ...5Further or higher education .....................6Disability discrimination ......................... 8Employment and training ....................... 9Community care services .....................10Direct payments ........................................11Short breaks ............................................... 13Independent Living Funds .................... 13Health services ......................................... 14

Housing ....................................................... 15Leisure .......................................................... 16Benets........................................................16Wills and Trusts ......................................... 17Further reading ..........................................18


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Involving parents andyoung people

Education authorities must ask for, andtake account of, both your and your

childs views about leaving school andpost-school opportunities during thetransition process. This should be anongoing dialogue with both you and yourchild being involved at each stage.

How parents can contribute totransition planningYou have a vital role in collecting relevantinformation because you know all theimportant people and activities in yourchilds life and can help them understandthe choices available.

It is also helpful to think about your inputas a parent and carer. How can youcontribute to your childs personal and

social development? Will your childs careneeds change as he or she gets older?How do you see your childs future?

Once they reach the age of 16 youngpeople assume their own rights underthe Additional Support for Learning Act.Education authorities must seek and takeaccount of their views and young people

have the right to advocacy and the helpof a supporter. However, you shouldcontinue to be involved in the planningprocess so that you can help your child.

How the young person can contributeThe school must make sure that yourchild has all the information theyneed to make decisions about post-

school options such as training or

work placements and further or highereducation.

Some young people nd it helpful totalk to someone they already know andtrust such as a teacher, social worker orcareers ofcer. Some will need help toexpress their views and to make decisionsand the education authority shouldprovide this. Support could be providedin a number of ways depending on achilds needs, for example person centredplanning could be used or a supporteror advocate appointed to help them take

part in meetings.

It is very important that young people,as much as is possible, have a chanceto share their concerns and ideas - bothinside and outside the family. They mightneed to discuss personal concerns suchas:

making friends and having a social life sexual relationships the nancial implications of leaving

home getting enough help at college or

university ageing parents personal care.

It is helpful to start keeping a record ofinterests and achievements, includingleisure ones, in case this comes in handywhen taking up a particular course lateron. Dont forget to include any records ofachievement from school.


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Preparing for adult life and transition - Scotland 5


How transition planning ismanaged

There is no standard format for thetransition process other than thetimescales for an education authorityto ask for and pass on information toother agencies and the requirement toinvolve you and your child. Proceduresmay vary depending on where you liveand on your childs additional supportneeds. The process might involve aseries of discussions between the

lead person and your child, you andothers involved. A meeting might becalled where you, your child and all theprofessionals working with your childmeet together to talk about future plans.The education authority might producea written transition plan but there is norequirement to do so.

Education authorities should provide clearinformation to you and your child about

what will happen, when it should happenand who is responsible. The authoritymight appoint a key worker, usually oneof the professionals working with yourchild, to act as a single point of contact

for you and the other professionals. If yourchild has a co-ordinated support plan(CSP) the co-ordinator will take the leadin transition planning.

Contact a Familys guide AdditionalSupport for Learning Scotland hasfurther information about additionalsupport for learning includingco-ordinated support plans andwhat to do if you disagree with theeducation authority about support foryour child. Copies are available fromthe Contact a Family helpline,Tel: 0808 808 3555.


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The planning process should bemonitored by the lead person andreviewed if there is a change ofcircumstances or the child or youngperson asks for an alteration to be made.If your child has a CSP the educationauthority must review it at least every12 months. The review should includetransition planning as well as assessinghow effective the planning is.

Support for young peopleduring transition

The support your child needs as theyprepare to leave school will vary accordingto their needs, and could include:

more emphasis on life skills andcondence building in the classroom

a work experience placement attending college one or two days per

week while still at school starting to use specialist technology at

school which will be used at work or atcollege.

Information for both parents and youngpeople about all aspects of additionalsupport for learning, including preparingto leave school is available from:

EnquireThe Scottish Advice Service for AdditionalSupport for Learning,Tel: 0845 123 23 03Web: http://www.enquire.org.uk

Further or highereducation

There are various options for youngpeople who want to continue theireducation after school:

further education and training incolleges

independent specialist colleges higher education at either a college or

university open or distance learning.

Successful transition planning will havemade sure that the young person has aclear understanding of what educationalopportunities exist after leaving school.The choice of study will clearly depend

on the type of course the young personwants to take and where the course isbeing run. Individual institutions shouldbe contacted for information aboutcourses and support services.

Every college or university should havea member of staff who advises studentswho need additional support. It is

important for potential students to visitthe college or university they are thinkingof joining so that they can meet staff and

Education authorities must

do certain things to helpall young people withadditional support needsto make the transition fromschool to post-school lifesuccessfully.


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other students and discuss their supportneeds.

Learn DirectTel: 0800 100 900Web: http://www.learndirect.co.ukProvides general advice about coursesanywhere in the UK.

Skill ScotlandTel/Textphone: 0800 328 5050

e-mail: [email protected]: http://www.skill.org.uk

Skill is the National Bureau forStudents with Disabilities. It providesinformation and advice for disabledpeople in post-16 education,training and employment, and thosewho work with them. Scotland:Opportunities at 16 is an excellentsummary of the main issues facingyoung people as they leave school.All Skill leaets are available on theirwebsite.


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Preparing for adult life and transition - Scotland8

Disability discrimination

If your son or daughter has a disabilityand has been discriminated against ineducation, employment or services this

can be challenged. The young persondoes have to have a disability as denedin the Disability Discrimination Act 1995:

A physical or mental impairment, whichhas a substantial and long-term adverseaffect on a persons ability to performnormal day-to-day activities.

More information on how this appliesin schools can be found in our guideAdditional Support for Learning -Scotland. In regard to post-16 educationthis Act applies to:

further and higher education institutions education authorities schools

Part 4 of the Act covers educationincluding:

admissions and enrolments, includingwhen enquiring about and applying fora course

student services, including teachingfacilities, work placement, outings andtrips, examinations, leisure and socialfacilities

qualications exclusions.

If you believe your son or daughter has

been discriminated against for a reasonrelated to their disability contact:

Equality and Human Rights Commission(formerly the Disability Rights Commission)Freepost RRLL-GYLB-UJTAThe Optima Building, 58 Robertson StreetGlasgow G2 8DUTel: 0845 604 5510 (Mon-Fri, 9am-5pm)

Text: 0845 604 5520Fax: 0845 604 5530Web: http://www.equalityhumanrights.com


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Through the Access toWork scheme peoplewith disabilities can

access a communicatorfor interviews, alongside arange of support once inwork.

Employment and training

Not all young people will want to moveon to further or higher education. Theirpreferred option may be to work. In

this case they may need specialistadvice about training and employmentopportunities. There are a numberof agencies and people who can beconsulted:

Jobcentre PlusThey can provide a range of services.A disability employment adviser (DEA)

can provide support to people who arending it difcult to get a job due totheir disability. They can help with anemployment assessment to produce anaction plan for getting a job and providefurther details about WORKSTEP and theJob Introduction Scheme. Through theAccess to Work (AtW) scheme disabledpeople can access a communicator for

interviews, alongside a range of supportonce in work. For more informationcontact your local Jobcentre Plus or seeWeb: http://www.jobcentreplus.gov.uk

Careers ScotlandThis service provides careers andlearning information, advice andguidance to young people and adultsin Scotland. It has information ontraining programmes for young people,which involve work-based learningor placements. Careers Scotland canalso help with student applications tocolleges and universities.Tel: 0845 8502 502 for details of yourlocal service.

Web: http://www.careers-scotland.org.uk

Adult day centresSome young people may need thesupport and training offered by daycentres. These are usually run by socialwork departments, but may be run byvoluntary organisations. Such centresoffer on-going training in areas such asindependent living and work skills. If a

placement is offered it could be shortor long-term depending on a personsneed. Most users are aged 19 or over.Referral for a placement is through asocial worker.

Supported employmentThe Scottish Union of SupportedEmployment works with employers to

provide support which enables disabledpeople to get jobs and stay in longterm employment. It has local points ofcontact throughout Scotland. For furtherinformation Tel: 0131 539 4967 orWeb: http://www.suse.org.uk


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Community care services

Community care legislationUp to the age of 18 the needs of yourson or daughter are assessed under theChildren (Scotland) Act. From the age of16 there is a transfer to adult services.Support for disabled adults is providedfor under a range of community carelegislation. A vital part of this legislationis the right of those who need support

to have a full assessment of need. Thisassessment should look at a personsneeds as a whole and not take eachone separately. This assessment shouldbe linked up with the work alreadyundertaken in the transition plan.

Local authorities are required to identifydisabled school leavers and assess theirneeds for social work services. The carersof the young person, as well as the young

person, should be encouraged to take afull and active part in this process. Localauthorities must take into account acarers ability to continue providing carefor the disabled young person.

Social work must publish details of theservices they provide and inform disabledpeople about support available fromthemselves or appropriate organisations.Assessments of both carers and the caredfor person are the responsibility of yourlocal social work department. For moreinformation refer to our guide, A guide to

assessments and services in Scotland.

Carers assessmentAs a parent of a disabled young personyou are entitled to a carers assessment.This is undertaken by social work andmay be done alongside the youngpersons assessment or separately. Theaim of the carers assessment is to look at

the care you are providing for the youngperson and the type of help social workcan provide to support you. As your childgoes through transition his or her needsmay change, and your role as a carer maychange too.

A parent can ask for an assessment at anytime so long as they are providing care

on a substantial and regular basis. The

As a parent of a disabledyoung person you areentitled to a carersassessment.


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carers assessment specically focuses onyou as a parent and your needs.

Social work should discuss with youvarious issues such as the help your sonor daughter needs and whether thereis anyone else who helps, or if you areproviding all of the care. The assessmentshould also consider your well-being,including health and safety issues,and important commitments such asrelationships and employment. The aimof an assessment is to give you a chanceto tell social work about the things that

could make looking after your son ordaughter easier for you.

For further information on assessmentsring the Contact a Family helpline,Tel: 0808 808 3555.

Carers Scotland also produce a usefulrange of publications for carers.

Carers Scotland91 Mitchell Street,Glasgow G1 3LN.Tel: 0141 221 9141e-mail: [email protected]: http://www.carerscotland.org

What support services are available?

It would be misleading to say that thereis a comprehensive support network ofservices available to individual youngpeople and their carers once a personhas left school. It is important, however,for the plans that are being made throughthe transition period to include not justservices that do exist but also to statewhat other services should exist if theperson is to be properly supported. Thisensures that transition planning for each

young person is focussed on their needsand helps local authorities to plan futureservices more effectively.

Direct payments

Local authorities can give payments,instead of services, to disabled peopleto buy in the services they have beenassessed as needing. Local authoritiesmust offer the choice of a directpayment to anyone who is eligible. Directpayments are seen as a way of increasingchoice and exibility in how your childs

needs are met. If a young person is under16 direct payments will usually be madeto the parent.

When a child becomes 16 she or he canreceive payments in their own right toallow them to buy in the services theyhave been assessed as needing. If a 16 or17 year old lacks the capacity to consentto a direct payment, then a parent cando this on their behalf. In order for adisabled adult aged 18 or over to receive


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direct payments, he or she must have thecapacity to manage them (either aloneor with assistance). Scottish Executiveguidance reminds local authorities thatthey should not exclude whole groups(e.g. people with learning difculties) bysimply assuming they do not have the

competency. Instead local authoritiesshould examine whether a person wouldhave the capacity to manage payments ifsufcient support were provided.

Where a young person aged 18 orover clearly lacks capacity, it is possiblefor a parent who has relevant powersunder the Adults with Incapacity Act tomanage direct payments on their son ordaughters behalf. For more informationabout the Act ring the Contact a Familyhelpline.

A direct payment can only be used topurchase services your child has beenassessed as needing. The amount

given should be enough to meet all thecosts involved. If you decide to employsomeone directly this should include tax

and national insurance as well as the feefor a police check. Social work may askyou to make a contribution towards thepackage of care that your direct paymentsfund. This charge will be calculated inthe same way as if they had arrangedservices for your child.

The general rule is that you cannotnormally use a direct payment to employa close relative. However social work canagree to make an exception to this rule,and allow you to employ a close relativeif they believe that this is necessaryin order to meet your disabled childsneeds. Social work can agree to this evenif that close relative shares your childshousehold. Ring our free Helpline formore information about direct payments.


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Short breaks

Local authorities provide short breakservices, sometimes called respite, forboth disabled children and adults to give

carers a break. Again if it is anticipatedthat such care will be needed intoadulthood then this must be included intransition planning.

Your social worker should be contactedfor details of short break options. Thevoluntary sector is now a major providerof short break services. Your social work

department should have further details.

As well as residential short breaks theremay be a local family link or befriendingscheme linking young people to a familyor volunteer for short breaks.

Shared Care Scotland can give moreinformation about schemes in your area,

Tel: 01383 622462.

Independent Living Funds

This is an independent discretionarytrust fund covering the UK. The Fund(ILF) works in partnership with local

authorities to organise joint care packagesthat are a mixture of services from thelocal authority and cash from the Fundto enable disabled people to buy in extracare. The Fund is open to disabled peopleaged between 16 and 65 who receivethe high rate care component of DisabilityLiving Allowance. There are various otherconditions which must also be met.

To nd out about eligibility, contact yoursocial work department and ask forinformation about ILF. On application, avisiting social worker from the Fund willarrange a joint visit to discuss care needsand agree what is needed. The Fundssocial worker will then make a writtenreport with recommendations to the

Fund.

For more information about the Fund,contact:ILFPO Box 7525Nottingham NG2 4ZTTel: 0845 601 8815e-mail: [email protected]: http://www.ilf.org.uk


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Health services

Family doctors remain the rst point ofcontact as far as providing primary healthcare services to individuals is concerned.

Many paediatricians will continue to seetheir patients into adulthood particularlyif there is a developmental delay or raredisorder.

It is important that a health professionalis involved in transition planning, forexample the school doctor. The GPshould be the rst point of contact after

leaving school if physiotherapy andspeech therapy services are required.This need should have been identied intransition planning so that all the servicesare aware before an individual leavesschool.

For access to occupational therapy areferral can be made by a GP, hospitalor social worker. If a person is attendingsocial work day provision then theyshould have access to health servicesthere.

Help with mobility aids should comevia your GP, community nurse oroccupational therapist.

FAIR Multimedia95 CausewaysideEdinburgh EH9 1QG

Tel: 0131 662 1962e-mail: [email protected]: http://fairadvice.org.uk

FAIR (Family Advice and InformationResource) Multimedia publishes a rangeof health leaets specicially designed forpeople with learning disabilities.

Advice on sexual health may also beavailable through the local GP or clinic.It is also worth contacting a local familyplanning service if one exists in your area.Voluntary organisations may also be ableto help including:

FPA ScotlandUnit 10

Firhill Business Centre76 Firhill RoadGlasgow G20 7BATel: 0141 948 1179e-mail: [email protected]: http://www.fpa.org.uk

Contact a Family has published a seriesof booklets looking at how being disabled

might impact on issues around sex andrelationships for young disabled people.

It is important that ahealth professional isinvolved in transitionplanning, for example theschool doctor. The GPshould be the rst point

of contact after leavingschool if physiotherapyand speech therapy arerequired.


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There are three booklets, (one forparents, one for young people and onefor teachers) which can be obtained fromthe helpline on Tel: 0808 808 3555 ore-mail: [email protected]

Housing

Local authority housing departments areresponsible for drawing up strategies thataddress the full range of housing needsin their area. This includes co-operationwith the private and voluntary housingsectors.

Housing authorities are legally obligedto work with social work departments indrawing up community care plans andpromoting community care through jointpolicies. In practice this should meanthat they address the needs of youngdisabled people through supported

housing, mainstream accessible housingand through services such as homeadaptations and advice. Each localauthority should have a SupportingPeople Team responsible for planningand funding housing support services forpeople who require assistance in livingindependently.

If it is appropriate for the young person tolive away from home once they have leftschool, then it is very important that thishas been included in transition planning.There are several options that can be

considered, in particular a placement ina residential home or an independentliving scheme. Such provision is availablethrough the statutory, voluntary andprivate sectors.

Your rst point of contact should be yoursocial worker although you can contactvoluntary and private organisations

for information and advice. Your localauthority housing department shouldalso have details of specialist housingschemes and housing associations withaccommodation in your area. It is veryimportant to visit potential new housingand to look at all the options before anydecisions are made.

Housing OptionsTel: 0845 456 1497Web: http://www.housingoptions.org.ukProvide advice and information forpeople with learning difculties andtheir carers.

Ownership OptionsTel: 0131 661 3400Web: http://www.oois.org.ukAims to create equal access fordisabled people to mainstream homeownership in Scotland. Produces aseries of leaets on different aspectsof home ownership.

Ring our helpline for details of localhousing advice agencies.


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Leisure

Access to leisure opportunities is animportant part of any individuals life. Itis vital therefore that transition planning

records a young persons leisure interestsand aspirations, and that appropriateplans are then made.

Any given area will have a range of leisureopportunities, for example sports centresand clubs. To nd out more contact yourlocal library. Different voluntary agencieswill also have details of specic activities,

in particular those that are accessiblefor disabled people. Contact your LocalCouncil for Voluntary Services or visitWeb: http://www.youthinformation.comfor details of different organisations. Thelocal authority youth service should alsooffer opportunities - contact your localauthority youth ofce. If you have a localdisability information service, consult

them.

Contact a Family also produces a guideHolidays, play and leisure giving moreinformation.

Benets

When your child reaches 16 they may beable to claim benets in their own rightsuch as Incapacity Benet or IncomeSupport. However, if they do you willlose any benets you receive for them asyour dependant, for example payments

of Child Benet and Child Tax Credit. Ringthe Contact a Family freephone helplineon Tel: 0808 808 3555 (Mon-Fri, 10am-4pm; Mon, 5.30pm-7.30pm) for detailedadvice and copies of our guides Benets,tax credits and other nancial help andMoney when your child reaches 16 yearsof age. Your social worker, local citizensadvice bureau or welfare rights worker

may also be able to offer advice andguidance.

Employment and Support Allowance(ESA)From October 2008 a new benet calledthe Employment and Support Allowance(ESA) will replace Incapacity Benet andIncome Support for people who are unt

to work. For more up to date informationcall our free helpline.

When your child reaches

16 they may be able toclaim benets in their ownright. However, if they doyou will lose any benetsyou receive for them asyour dependant.


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Adults with Incapacity (Scotland) Act2000It is worth noting that when a son ordaughter reaches 16 and becomesan adult, parents usually have nolegalright to decide where he orshe should live or what they shoulddo. However, if your son or daughterhas a disability which prevents themfrom being able to make decisions forthemselves, it is possible to apply forspecic powers under the Adults with

Incapacity (Scotland) Act. This caninclude the authority to make decisionsabout someones personal welfare.Such powers are only granted where aSheriff is convinced they are absolutelynecessary.

Please note that the power to consentto specic forms of medical treatment isnot covered.

For more information about the powersavailable under this Act contact:

Ofce of the Public GuardianTel: 01324 678 300e-mail: [email protected]: http://tinyurl.com/2spjjy

or EnableTel: 0141 226 4541e-mail: [email protected]: http://www.enable.org.uk

Wills and Trusts

Making provision for the future is veryimportant for families with a disabledyoung person. You can set up a Trust

for your child to keep them secure. Thiswill mean seeing a solicitor for expertadvice. However, there is free informationavailable which will help you decide whatarrangements you might like to make.

Enable6th Floor7 Buchanan StreetGlasgow G1 3HLTel: 0141 226 4541e-mail: [email protected]: http://www.enable.org.uk

Have a useful booklet for parents inScotland, Making a will: What to considerwhen leaving money to a person with alearning disability.


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Further reading

The publications and websites listedhere offer a good starting point for moredetailed information.

Transition Information NetworkWeb: http://www.transitioninfonetwork.org.uk

The Transition Information Network(TIN) is an alliance of organisations andindividuals who come together with acommon aim: to improve the experienceof disabled young peoples transition to

adulthood. TIN is a source of informationand good practice for disabled youngpeople, families and professionals.

ProgressThis is a magazine produced by CareChoices. It explores issues faced by manyyoung disabled people and containsinformation, advice and ideas to help with

looking to the future. Call the Contact aFamily helpline for a free copy.

Trans-activeWeb: http://www.trans-active.org.uk

Trans-active is a project by Mencapin which teenagers with and withoutsevere learning disabilities work together.Teenagers with learning disabilitiesneed to make life choices about school,college, work, their social time and wherethey might live. The project enablesdisabled people to work through theiroptions by using multimedia to exploreand communicate choices. The project isabout using and giving support, making

plans, making friends and having fun.

Moving on UpWeb: http://www.movingonup.info

A website designed to be used by youngpeople. Includes advice around learningand working, free-time, health andwellbeing, as well as money, housing,culture, news and events.


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Freephone helpline: 0808 808 3555Web:www.cafamily.org.ukFreephone helpline: 0808 808 3555Web:www.cafamily.org.ukFreephone helpline: 0808 808 3555Web:www.cafamily.org.uk

Contact a Family would like to thank

Department of Children, Schools andFamilies, Children, Young People andFamilies Grant Programme for fundingfor this publication.

Contact a Family is now on Facebook,MySpace, Bebo and has an ofce inSecond Life.

Join us at:

Myspacewww.myspace.com/contactafamily

Bebowww.bebo.com/contactafamily

Facebookwww.facebook.comand search for Contact a Family

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Order code i18

Other information

booklets availableThis guide is one of a seriesproduced for parents and groupsconcerned with the care of disabledchildren. A full list of Contact a Familypublications is available on request orcan be downloaded from our websitewww.cafamily.org.uk

A guide to assessments andservices in Scotland (Scotland)

Dealing with debt (Scotland) Additional support for

learning (Scotland) A parents guide to direct payments

in Scotland (Scotland) Money when your child reaches 16

years of age (UK)

Registered Ofce: 209-211 City Road,London EC1V 1JN

Registered Charity Number: 284912Charity registered in Scotland No. SC039169Company limited by guaranteeRegistered in England and Wales No. 1633333

VAT Registration No. GB 749 3846 82 Contact a Family is a registered trade mark

Although great care has been taken in thecompilation and preparation of this guide toensure accuracy, Contact a Family cannot take anyresponsibility for any errors or omissions.

Getting in contact

with us

www.cafamily.org.ukwww.makingcontact.orgContact a Family Head Ofce:0- City Road, London ECV JNTel 00 08 800Fax 00 08 80Email [email protected]

Free helpline for parents and families

0808 808 3555

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contact a family - preparing for adult life and transition (scotland)

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