collection of posters from the children and young people test and prototype teams
TRANSCRIPT
Cancer
Collection of posters from thechildren and young people testand prototype teamsJanuary 2012
HEART
LUNG
CANCER
DIAGNOSTICS
STROKE
NHSNHS Improvement
National Cancer Survivorship Initiative -Children and Young People Workstream
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The National Cancer Survivorship Initiative (NCSI) evolvedfrom the Cancer Reform Strategy (2007). The NCSI waslaunched in September 2008 and is a partnershipbetween the Department of Health, Macmillan CancerSupport and NHS Improvement.
The Children and Young People (CYP) workstream is oneof seven work streams conducting improvement work aspart of the NCSI. The aim of the national initiative is toimprove models of aftercare provided for those patientssurviving cancer, many of whom will need a range ofclinical and non-clinical services to enable each of themto live a happy, healthy normal life after their initialtreatment for cancer.
The follow up of aftercare services for CYP cancersurvivors varies nationally but it is predominantly clinicianled at a Principal Treatment Centre (PTC). With theexponential increase in the number of young adult cancersurvivors – strategies and a change in the philosophy of asingle model of care to a more holistic model is needed.
The CYP workstream over the past three years has testedand prototyped models of care within both clinical andnon-clinical services.
Ten national test sites have been involved in the CYPworkstream and these are shown below:
• The Leeds Teaching Hospitals NHS Trust• The Christie NHS Foundation Trust• Birmingham Children's Hospital NHS
Foundation Trust• Sheffield Teaching Hospitals NHS Foundation Trust• University Hospitals Bristol NHS Foundation Trust• The Royal Marsden NHS Foundation Trust (RMH)• Great Ormond Street Hospital for Children
NHS Trust (GOSH)• Cambridge University Hospitals NHS
Foundation Trust• Royal Alexandra Children's
Hospital (Brighton)• CLIC Sargent
The progress so far has resulted in the following:
1.Defined CYP interactive patient pathways
2.Four defined models of care:• Clinician led• Professionally led shared care including secondary and
primary care• Nurse led, including telephone and postal follow up• Supported self-management
Introduction
3.Developing a safe risk stratification framework andidentifying those patients at low, medium and high riskas a consequence of late effects following surgery,chemotherapy and radioactive treatment
4.Non-clinical support issues have been identified andaftercare models to support these issues have beentested. These include psychosocial support andsupport for returning to education and employmentthrough a variety of practical issues; websites,survivorship education programmes, fertility educationand the importance of exercise.
This publication represents only some of the learning andthe excellent work from the teams and sites participatingin the NCSI.
Without the hard work, commitment and expertise fromour clinical leads and advisors, our cancer network serviceimprovement colleagues and most importantly our cancerpatient survivors who have worked with us during thisinitiative this publication would not have been possible!
We thank them for their contribution and we hopereaders find the content interesting and informative.
For further information you can access the NCSI websitewww.ncsi.org.uk and the NHS Improvement websitewww.improvement.nhs.uk/cancer
Patricia MorrisDirector - [email protected]
Judi TappNational Improvement [email protected]
January 2012
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NHS Improvement3rd Floor | St John’s House | East Street | Leicester | LE1 6NB
Telephone: 0116 222 5184 | Fax: 0116 222 5101
www.improvement.nhs.uk
NHS Improvement
NHS Improvement’s strength and expertise lies in practical service improvement. It has over adecade of experience in clinical patient pathway redesign in cancer, diagnostics, heart, lung andstroke and demonstrates some of the most leading edge improvement work in England whichsupports improved patient experience and outcomes.
Working closely with the Department of Health, trusts, clinical networks, other health sector
partners, professional bodies and charities, over the past year it has tested, implemented, sustained
and spread quantifiable improvements with over 250 sites across the country as well as providing
an improvement tool to over 1,000 GP practices.
Delivering tomorrow’simprovement agendafor the NHS