club jcc news - 2012/13

Club JCC MetroWestSpecial Needs Services

Issue 10 | 2012–2013

• Toregisterforaprogram,pleasecall973-530-3536oremailusat

[email protected]

Fallprogramregistrationbegins:August9,2012

Fallprogrammingbegins:Wednesday,September19,2012

Winter/Springregistrationbegins:December13,2012

Winter/Springprogrammingbegins:January27,2013

• Anintakeinterviewisrequiredpriortoenrollmentinprograms.

• AllprogramstakeplaceattheLeon&TobyCoopermanJCCinWestOrangeunlessotherwisenoted.

• JCCSpecialNeedsstaffincludesCertifiedTeachersoftheHandicapped,socialworkers,therapists,andfitnessandotherprofessionalswithextensivebackgroundworkingwithindividualswithspecialneeds.

• JCCMembershipisnotrequired.Manyprogramsworkonafee-for-servicebasis.WeofferinclusionopportunitiesinallJCCcourseofferings.One-on-one“shadow”professionalsareavailableforanadditionalfee.

• JCCMetroWestisanapprovedNewJerseyDepartmentofDevelopmentalDisabilities(DDD)RealLifeChoices/Self-DeterminationProvider.

important notes

A Community of Opportunity

“ I love Club JCC because I get to hang out with my friends and go out to lunch sometimes. I get to work out, go swimming, and lift weights. The JCC is the best!“

Leon & Toby Cooperman JCCRoss Family Campus

760 Northfield AvenueWest Orange, NJ 07052973-530-3400

www.jccmetrowest.org

Joyce Goldstein Co-Chair, Board of Trustees JCC MetroWest

Larry Gotfried Co-Chair, Board of Trustees JCC MetroWest

Alan Feldman Chief Executive Officer JCC MetroWest

message from the directorDearParticipants,Caregivers,FamiliesandProfessionals,

AsIreflectuponthepasttwoyearsasDirectorofSpecialNeedsServices,Iamhonoredtosharewithyouthatourdepartmenthasgrowntremendously,both

innumbersandinthevarietyofservicesweoffer.Ourfive-day-per-weekAdultDayProgramboastsincreasedparticipationandtheadditionofmanynewexcitingactivities.Attendanceatourpopular,quarterlyAdultSundayDanceshasincreasedexponentially.Consistently,registrationhasbeenfilledforSaturdayeveningand

Sundayout-of-facilitytrips.Althoughourparticipationhasincreased,groupratiosandsize,alongwithindividualizationofservices,hasremainedintact;westronglybelievethatourparticipantsthriveinasmallersettingandwithlowstaffratios.Noneoftheseaccomplishmentswouldbepossiblewithoutourwonderful,highly-qualified,andspecializedstaff;wearetrulyfortunatetobenefitfromtheirdedication,caring,reliability,andprofessionalism.Inaddition,wearethankfultoourmanyvolunteersandsupporters,whosecontributionsaremostappreciated.

Continued on page 7

inside this issueclub jcc junior ...................................... 2

club jcc teen ........................................ 3

club jcc adult................................... 4–6

Featured article: RandomThoughts…ResourcesThatCanHelp contributed by Cherie Castellano condensed by Rebecca Gallanter ............................... 7

complimentary workshops and lectures ........................................... 8

other programs and events .............. 9

Featured article: ASpecialNeedsParent’sWishListby Terri Mauro ................................................. 10

Featured article: PleaseDon’tSaytoParentsofaChildwithSpecialNeeds .......................................... 11

Featured article: MeetOurProgramAssistant:AmyKoehler .......... 13

Featured article: CaregivingfortheYoungcourtesy of Homewatch CareGivers ......................... 14

why i love the jccby Greg Weinberger ........................................... 16

Early Childhood Programs | ages 2–4 years

One-on-one “shadow” aide/counselor provided for success in a typical preschool classroom and/or camp group, located at the Cooperman JCC. Interview and acceptance into program required. Additional fee.

Forfurtherinformation,pleasecontacttheEarlyChildhoodoffice,[email protected]

Camp Friends Inclusion Program at Camp Deeny Riback, Exploration Camps, and Triple Threat Theater Camp pre-K through 6th gradeOne-on-one “shadow” counselor provided for success in a typical camp group, located at the Cooperman JCC or Camp Deeny Riback in Flanders, NJ. Experienced leadership staff and on-going supervision of shadows. Intake interview required for new participants. Additional fee.

Forfurtherinformation,[email protected]

Club JCC Junior Sunday | ages 5–18 years

Sunday social recreation program including arts & crafts, structured games, music therapy, Jewish education, and swim. Supervised by professionals with extensive experience with individuals with special needs. Snack and beverage included.

Sunday afternoons: 12:30pm–3:00pm

Fall 2012 Session: 9/23, 10/14, 10/28, 11/18, 12/2, 12/9, 1/6

7 Sundays | Member: $245 • Guest: $280

Winter/Spring 2013 Session: 1/27, 2/3, 2/10, 3/3, 3/17, 4/7, 4/21, 5/5

8 Sundays | Member: $280 • Guest: $320

Optional supervised bus transportation from AM Friendship Circle program on coordinating program dates:

Fall Session | Member: $45 • Guest: $50

Winter/Spring Session | Member: $45 • Guest: $50

Club JCC Junior Swim & Yoga | ages 8–12 years

A sports & recreation program targeted to children diagnosed with Asperger’s syndrome and ADD/ADHD. Children participate in a group swim session and yoga. Supervised by professionals with extensive experience with individuals with special needs.

Thursday afternoons: 4:30pm–6:00pm

Fall Session: 9/20, 9/27, 10/4, 10/11, 10/18, 10/25, 11/1, 11/15, 11/29, 12/6, 12/13, 12/20, 1/3, 1/10, 1/17, 1/24

16 Thursdays | Member: $480 • Guest: $560

Winter/Spring Session: 1/31, 2/7, 2/14, 2/28, 3/7, 3/14, 3/21, 4/4, 4/11, 4/18, 4/25, 5/2, 5/9, 5/16


2 | JCC MetroWest Special Needs Services

club jcc juniorages 2–15 years

(973) 810-0110

• Hourlyorlive-insupportinyourhomeorresidence

• Personalizedcare• Longtermorpostsurgicalassistance

• CertifiedcaregiversinEssex,Morris&N.UnionCounties

www.HomewatchCareGivers.com/Essex-County-NJ

Certified, experienced & compassionate caregiving for all ages

Margo Weill, MSW, Dir. of Client Relations Karen Frank, RN, BSN Dir. of Client Care Nursing

Larry Aronson, Owner

We are proud supporters of personal care services to the Club JCC Junior Program

Club JCC Teen Fitness Club | ages 13–18

A fitness program including yoga and swim, targeted to teens with Asperger’s syndrome and ADD/ADHD. Swimsuit/towel required plus comfortable clothing for yoga. Supervised by professionals with extensive experience with individuals with special needs.

Thursday evenings: 6:00pm–8:00pm

Fall Session: 9/20, 9/27, 10/4, 10/11, 10/18, 10/25, 11/1, 11/8, 11/15, 11/29, 12/6, 12/13, 12/20, 1/3, 1/10, 1/17, 1/24


Winter/Spring Session: 1/31, 2/7, 2/14, 2/21, 2/28, 3/7, 3/14, 3/21, 3/28, 4/4, 4/11, 4/18, 4/25, 5/2, 5/9, 5/16, 5/23, 5/30, 6/6, 6/13, 6/20


Club JCC Teen Sunday | ages 13–18 years

An offsite social recreation program that provides teens with special needs the opportunity to learn and practice life skills in the community. Activities take place at local restaurants, theaters, bowling lanes, entertainment centers, etc. Lunch and admissions included in fee. Supervised by professionals with extensive experience with individuals with special needs.

Sunday afternoons, 1:00pm–4:00pm (timesmayvary)

Fall Session: 9/30, 10/14, 10/28, 11/4, 12/16, 1/13


Member: $45 per Sunday • Guest: $50 per Sunday

Club JCC Teen Saturday Night | ages 13–18 years

An offsite social recreation program that provides teens with special needs the opportunity to learn and practice life skills in the community. Activities take place at local theaters and entertainment centers. Admissions and transportation to/from JCC and venue included. Supervised by professionals with extensive experience with individuals with special needs.

Saturday evenings, 6:30pm–9:00pm (timesmayvary)

9/15/12 Red Bulls vs. Columbus Crew, Red Bull Stadium

10/13/12 A Chorus Line at Paper Mill Playhouse, Millburn

12/15/12 JCC Teen Theater Performance Cooperman JCC, West Orange

1/13–5/13 To be announced

Member: $65 per Saturday night Guest: $75 per Saturday night

Teen Tracks Travel Camp | ages 13–21

Daily summer travel program for teens and young adults. Our teens spend their day in the local community as well as many interesting locations in the NJ/NY metropolitan area. Trips include New York City museums and attractions, the Jersey shore, summer fairs, and more. Supervised by certified teachers and special education professionals. Intake interview required for participation.

July 30–August 24

Leon & Toby Cooperman JCC • West Orange4, 3, 2, 1 week options available

2012 fees:

4 weeks | Member: $2650 • Guest: $3050



1 week | Member: $825 • Guest: $925

For2013pricingandadditionalinformation,[email protected]

www.jccmetrowest.org • 973-530-3998 | 3

ages 13–18 yearsclub jcc teen

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YOUR ONE STOP

AUTISMRESOURCE

CENTER

Call to schedule a free consultation

BrainBuildersEnhancing child dEvElopmEnt

Rachel SoRotzkin, MS BcBa761 RiVeR aVenue, lakewood, nJconfidential phone # 732.833.3723 www.BRainBuildeRSnJ.oRg

• Most insurances accepted• Financial aid/grant applications• Individualized case management• Onsite and home services

Club JCC Adult Day Program* | ages 21 and over

This five-day-a-week program for young adults focuses on life skills activities both onsite at the JCC and in the community. Activities include but are not limited to music, yoga, aerobics /strength /cardiovascular training, swimming /swim instruction, nutrition/calorie awareness, health awareness, social skills, food preparation, pre-vocational skills training/volunteerism, money management, community negotiation, current events discussions, and communication. *Approved Real Life Choices/SDDS provider through the NJ Developmental Disabilities Division (DDD)*.Supervised by professionals with extensive experience with individuals with special needs.Chris Sokolewicz, Certified Teacher of the HandicappedProgram Coordinator, Adult Day Program

Five days per week/M–F • 9:00am–2:00pm Ongoing, in session year-round

Member: $80 per day • Guest: $85 per day

*JCC MetroWest is proud to serve as an approved Real Life Choices/Self-Determination provider via the New Jersey Developmental Disabilities Division (DDD).


*JCC MetroWest is an approved New Jersey Department of Developmental Disabilities (DDD) Real Life Choices/Self-Determination Provider. Approved programs include the Adult Day Program along with most weekday and weekend events. club jcc adult

ages 18 and over

MONDAY TUESDAY WEDNESDAY THURSDAY FRIDAY

9:00am–9:30amMeetandGreet/

DailyScheduleReview


DailyScheduleReview


DailyScheduleReview


DailyScheduleReview


DailyScheduleReview

9:30am–10:00amCurrentEventsDiscussion





10:30am–11:15amYoga

10:00am–10:30amCardioWorkout

10:00am–10:30amAerobics&StrengthTraining

11:00am–11:30amGymnasiumSports

10:00am–10:30amCardioWorkout

10:00am–11:30amSwim/SwimInstruction

11:30am–12:00pmAerobics&StrengthTraining

10:30am–12:30pmIntotheCommunity:

ShopRite/LuncheonOut


Volunteer/PrevocationalActivities


Volunteer/PrevocationalActivities

12:00pm–12:45pmSportsMedleyinGymnasium

11:30am–12:00pmNutritionRound-Up

12:00pm–1:00pmLunchatCaféorBringYourOwn/

Self-DirectedActivities

12:30pm–1:00pmSortGroceries/

ChangeforSwim

12:30pm–1:00pmLunchatCaféorBringYourOwn/

Self-DirectedActivities

12:30pm–1:00pmLunchatCaféorBringYourOwn

12:00pm–1:00pmMealPreparation/Lunch/Clean-Up

1:00pm–2:00pmMusic&More

1:00pm–2:00pmSwim/SwimInstruction

1:00pm–2:00pmMusic&More

1:00pm–2:00pmYoga

1:00pm–2:00pmKaraokeFun

Adult Day Program Daily ScheduleDaily schedule subject to change

Mondays:Summer 2012: 6/25, 7/2, 7/9, 7/16, 7/23, 7/30, 8/6, 8/13, 8/20

Fall 2012: 9/10, 9/24, 10/1, 10/8, 10/15, 10/22, 10/29, 11/5, 11/12, 11/19, 11/26, 12/3, 12/10, 12/17, 1/7, 1/14

Winter/Spring 2013: 1/28, 2/4, 2/11, 2/25, 3/4, 3/11, 3/18, 3/25, 4/1, 4/18, 4/15, 4/22, 4/29, 5/6, 5/13, 5/20, 6/3, 6/10, 6/17, 6/24

Tuesdays:Summer 2012: 6/26, 7/3, 7/10, 7/17, 7/24, 7/31, 8/7, 8/14, 8/21

Fall 2012: 9/4, 9/11, 9/25, 10/2, 10/9, 10/16, 10/23, 10/30, 11/6, 11/13, 11/20, 11/27, 12/4, 12/11, 12/18, 1/8, 1/15, 1/22

Winter/Spring 2013: 1/29, 2/5, 2/12, 2/19, 2/26, 3/5, 3/12, 3/19, 4/2, 4/9, 4/16, 4/23, 4/30, 5/7, 5/14, 5/21, 5/28, 6/4, 6/11, 6/18, 6/25

Wednesdays:Summer 2012: 6/27, 7/11, 7/18, 7/25, 8/1, 8/8, 8/15, 8/22

Fall 2012: 9/5, 9/12, 9/19, 10/3, 10/10, 10/17, 10/24, 10/31, 11/7, 11/14, 11/21, 11/28, 12/5, 12/12, 12/19, ½, 1/9, 1/16, 1/23

Winter/Spring 2013: 1/30, 2/6, 2/13, 2/20, 2/27, 3/6, 3/13, 3/20, 3/27, 4/3, 4/10, 4/17, 4/24, 5/1, 5/8, 5/15, 5/22, 5/29, 6/5, 6/12, 6/19, 6/26

Thursdays:Summer 2012: 6/28, 7/5, 7/12, 7/19, 7/26, 8/2, 8/9, 8/16, 8/23

Fall 2012: 9/6, 9/13, 9/20, 9/27, 10/4, 10/11, 10/18, 10/25, 11/1, 11/8, 11/15, 11/29, 12/6, 12/13, 12/20, 1/3, 1/10, 1/17, 1/24

Winter/Spring 2013: 1/31, 2/7, 2/14, 2/21, 2/28, 3/7, 3/14, 3/21, 3/28, 4/4, 4/11, 4/18, 4/25, 5/2, 5/9, 5/16, 5/23, 5/30, 6/6, 6/13, 6/20, 6/27

Fridays: Summer 2012: 6/29, 7/6, 7/13, 7/20, 7/27, 8/3, 8/10, 8/17, 8/24

Fall 2012: 9/7, 9/14, 9/21, 9/28, 10/5, 10/12, 10/19, 10/26, 11/2, 11/9, 11/16, 11/30, 12/7, 12/14, 12/21, 1/4, 1/11, 1/18, 1/25

Winter/Spring 2013: 2/1, 2/8, 2/15, 2/22, 3/1, 3/8, 3/15, 3/22, 3/29, 4/5, 4/12, 4/19, 4/26, 5/3, 5/10, 5/17, 5/24, 5/31, 6/7, 6/14, 6/21, 6/28

Guys Night Out* | men ages 18 and over

Activities focus on life skills development and include daily living skills, current events, nutrition, health, fitness, communication, and interpersonal skills. Supervised by professionals with extensive experience with individuals with special needs. Snack included.

Monday evenings: 6:00pm–8:00pm

Fall Session: 9/24, 10/1, 10/8, 10/15, 10/22, 10/29, 11/5, 11/12, 11/19, 11/26, 12/3, 12/10, 12/17, 1/7, 1/14

15 Mondays | Member: $450 • Guest: $525

Winter/Spring Session: 1/28, 2/4, 2/11, 2/25, 3/4, 3/11, 3/18, 4/1, 4/8, 4/15, 4/22, 4/29, 5/6, 5/13, 5/20, 6/3, 6/10, 6/17

18 Mondays | Member: $540 • Guest: $630

Girls Night Out* | women ages 18 and over

Activities focus on life skills development and include daily living skills, current events, nutrition, health, fitness, communication, and interpersonal skills. Supervised by professionals with extensive experience with individuals with special needs. Snack included.

Tuesday evenings: 6:00pm–8:00pm

Fall Session: 10/2, 10/9, 10/16, 10/23, 10/30, 11/6, 11/13, 11/20, 11/27, 12/4, 12/11, 12/18, 1/8, 1/15, 1/22

15 Tuesdays | Member: $450 • Guest: $525

Winter/Spring Session: 1/29, 2/5, 2/12, 2/19, 2/26, 3/5, 3/12, 3/19, 4/2, 4/9, 4/16, 4/23, 4/30, 5/7, 5/14, 5/21, 5/28, 6/4, 6/11, 6/18

20 Tuesdays | Member: $600 • Guest: $700

Wednesday Blend* | ages 18 and over

Socially appropriate behaviors and interpersonal skills are taught while using recreation and leisure time. This potpourri of activities includes: Game Night (board games, air hockey, video/card games) which focuses on turn-taking, frustration tolerance, and communication skills as well as Music which emphasizes self-expression, movement, and creativity. Other activities include cooking/nutrition, book/literacy exploration, crafts, and holiday-themed celebrations. Supervised by professionals with extensive experience with individuals with special needs. Snack included.

Wednesday evenings: 6:00pm–8:00pm

Fall Session: 10/3, 10/10, 10/17, 10/24, 10/31, 11/7, 11/14, 11/28, 12/5, 12/12, 12/19, 1/2, 1/9, 1/16, 1/23

15 Wednesdays | Member: $450 • Guest: $525

Winter/Spring Session: 1/30, 2/6, 2/13, 2/20, 2/27, 3/6, 3/13, 3/20, 4/3, 4/10, 4/17, 4/24, 5/1, 5/8, 5/15, 5/22, 5/29, 6/5, 6/12, 6/19

20 Wednesdays | Member: $600 • Guest: $700

Fitness Club* | ages 18 and over

A fitness program including yoga and swim, targeted to adults with Asperger’s syndrome and ADD/ADHD. Swimsuit/towel required plus comfortable clothing for yoga. Supervised by professionals with extensive experience with individuals with special needs.

Thursday evenings: 6:00pm–8:00pm

Fall Session: 9/20, 9/27, 10/4, 10/11, 10/18, 10/25, 11/1, 11/8, 11/15, 11/29, 12/6, 12/13, 12/20, 1/3, 1/10, 1/17, 1/24


Winter/Spring Session: 1/31, 2/7, 2/14, 2/21, 2/28, 3/7, 3/14, 3/21, 3/28, 4/4, 4/11, 4/18, 4/25, 5/2, 5/9, 5/16, 5/23, 5/30, 6/6, 6/13, 6/20


Club JCC Adult Sunday* | ages 18 and over

An offsite social recreation program that provides adults with special needs the opportunity to learn and practice life skills in the community. Activities take place at local restaurants, theaters, bowling lanes, entertainment centers, etc. Lunch and admissions included in fee. Supervised by professionals with extensive experience with individuals with special needs.

Sunday afternoons, 1:00pm–4:00pm (timesmayvary)

Fall Session: 9/30, 10/14, 10/28, 11/4, 12/16, 1/13


Member: $45 per Sunday • Guest: $50 per Sunday


club jcc adult continued


Club JCC Adult Saturday Night* | ages 18 and over

An off-site social recreation program that provides adults with special needs the opportunity to learn and practice life skills in the community. Activities take place at local theaters and entertainment centers. Admissions and transportation to/from JCC and venue included. Supervised by professionals with extensive experience with individuals with special needs.

Saturday evenings, 6:30pm–9:00pm (timesmayvary)

9/15/12 Red Bulls vs. Columbus Crew Red Bull Stadium

10/13/12 A Chorus Line at Paper Mill Playhouse Millburn

12/15/12 JCC Teen Theater Performance Cooperman JCC, West Orange

1/13–5/13 To be announced

Member: $65 per Saturday night Guest: $75 per Saturday night

*JCC MetroWest is an approved New Jersey Department of Developmental Disabilities (DDD) Real Life Choices/ Self-Determination Provider

Adult Sunday Evening Dances | ages 18 and over

Live DJ, pizza, snacks, beverages. Dancing, games, and social time. $14 per person admission fee collected at door.** Supervised by professionals with extensive experience with individuals with special needs.

9/23/12 End-of-Summer Beach Party • 6:00pm–8:00pm

12/2/12 Hanukkah Party • 6:00pm–8:00pm

2/2/13 Fourth Annual Dance-A-Thon Fundraiser 2013: New York State of Mind (in New Jersey!) $20 admission fee, includes light dinner and extended hours, 7:00pm–11:00pm. Giveaways, prizes, games. Snow date: 2/9/13.

4/7/13 Welcome Spring Party • 6:00pm–8:00pm

6/9/13 Hawaiian Luau • 6:00pm–8:00pm

**Admissionfeeappliestosupportstaffinattendance;pleasecontactRebeccaGallanter,DirectorofSpecialNeedsServices,forfurtherinformation.

School-to-CareersTransition Services

For Students with Special Needs

For more information contact:Lauren A. Klein

Coordinator of Rehabilitation Services(973) 674-6330 x 237, [email protected]

Jewish Vocational Service of MetroWest111 Prospect Street, East Orange, NJ 07017

www.jvsnj.org

Career Center for Teens & Adultswith autism spectrum disorders

Random Thoughts… Resources That Can Help Information condensed by Rebecca Gallanter, Director, Special Needs Services

Special Moms and Special Needs

According to Erma Bombeck more than 25 years ago, special needschildrenneed“specialmoms”and thematch ismost likelymade inheaven.Statisticsshowthat this“special” journeymaytake its toll

withmomsofspecialneedskids—manywhoexperience:

n higherthantypicaldivorceratesn poorerhealthn additionalworkhoursn financialstress

They experience this in greater numbers than their counterparts with typically developing children. The allconsumingroleofmotherhoodismagnifiedwithaspecialneedschildandmayrequirespecialhelp.

At the Mom 2 Mom helpline program (1-877-914-MOM2), moms report their struggles which include family/parenting issues, depression, anxiety, anger, and struggles with schools and systems that seem to often failthem.Ourgoalistocombatstresswith“mompeers”torelate,normalize,andoffercompassionhaving“walkedamileintheirshoes”onthehelplineandthroughsupportgroups.

Mostmomshavereportedthattheirstrengthisfoundinthespiritoftheirspecialchildrenwhobraveadversityasmodelsofhope.Thesespecialmomsarealsoexamplesinthattheycherishthemomentsinbetweenthetrialsofdisability.

Life “in between” the crisis makes a simple word, hug, normal lab report, tossing of a ball or laughter resonate joy for a special needs mom. “Although the world is full of suffering, it is also full of the overcoming of it.” —Helen Keller

ThiscolumniscontributedbyCherieCastellanoLPC,ProgramDirector,UMDNJ“Mom2MomProgram”1-877-914-MOM2.....MOM!(1-877914-6662).Pleasevisittheirwebsite:www.mom2mom.us.com


RebeccaGallanter,MSW,LSW,Director,SpecialNeedsServices973-530-3478•[email protected]

Message from Director Continued from front cover

TheDepartment’sThirdAnnualDance-A-Thon,UndertheSea,wasverysuccessfulandexceededitsfundraisinggoals;thiseventprovidesacommittedgroupofteenagers,individualswithspecialneeds,familymembers,andprofessionalstheopportunitytoworktogethertocreateanawesomeeveningforallinvolved.Inaddition,areabusinessesandindividualscontinuetosupportthiseventgenerously.Asaresult,participantswithspecialneedsandtheirfamiliesareabletobenefitfromourmanyactivitiesandprogramsatreasonablerates.BeingapartoftheDance-A-Thonplanningprocesswastremendouslyspecialandwelookforwardtoourupcoming2013Dance-A-Thon:NewYorkStateofMind(inNewJersey!)onFebruary2,2013.

TheClubJCCnewsletterincludeslistingsofmostprogramsfortheyear;however,e-mailupdatesalongwithannouncementsofnewactivitiesandeventsareavailabletoyouonaconsistentbasis.Ifyouwouldlikeyournameaddedtooure-maillist,pleaseletusknowbycontactingmedirectly.TheClubJCCNewsletterissupportedbyouradvertisers,whomwewouldliketoacknowledgefortheircontinuoussponsorshipoftheSpecialNeedsDepartment.

ThankyouforyoursupportoftheJCCandforcontributingyourideasandperspectives.Ilookforwardtomanymoresuccessfulyears.

complimentary workshops and lectures

Continuing the JourneyThis series of workshops, co-sponsored by MetroWest ABLE and JCC MetroWest’s Special Needs Department, assists families and caregivers with future planning to support the care of family members with special needs.

October 25, 2012

January 10, 2013

March 21, 2013

ForfurtherinformationandtoRSVP,[email protected]


New Jersey Special Needs Registry for Disasters

“RegisterReady” isafree,voluntary,andconfidentialweb-basedprogramdesignedto identifytheneedsofpeoplewhomayfinditdifficulttogettosafetyintheeventofanemergency.

Peoplewithaccessandfunctionalneeds(orcaregiversontheirbehalf)areencouragedtoregisterelectronically,ifpossible,byaccessingwww.registerready.nj.gov.Alternatively,theycancallNewJersey’stollfree2-1-1telephoneservice.Thisservicewillregisterpeople,offerfreetranslation,andprovideTTYservicesforthehearing-impaired.

Emergencymanagementofficials viewspecialneeds registries fromvaryingperspectives, ranging fromconcernsabouttheneedforconsumerexpectationsmanagementtoan increasedsenseofconfidenceaboutbeingabletotrackindividualsintheircommunitieswhorequirespecificassistanceduringadverseconditions.Registriescanalsobecomeafocalpointforbuildingadialogueaboutemergencypreparednesswithindividualswhohaveaccessandfunctionalneedsorestablishingarapportwithstakeholdergroupswhoworkwithat-riskpopulations.

Registriesareagreattooltohelpemergencymanagementofficialsenhanceservicestocommunitymembers,buttheyarenottheonlytool.Planning,emphasisonpersonalpreparedness,andtheengagementofstakeholdergroupswho work with functional needs populations are also essential tasks aimed at building a program which servesvulnerablepopulations.


FourthAnnual Club JCC Dance-A-Thon 2013: New York State of Mind (in New Jersey!)Join us for this amazing fundraising event supporting Special Needs Services at the JCC! Organized by our Special Needs Committee, a dedicated group of teen volunteers, special needs participants, family members, and professionals. Light dinner, snacks, and beverages will be provided. Prizes, giveaways, games, and raffle.

February 2 • 7:00pm—11:00pm Snow date: February 9

$20 per person or collect donations to reduce admission fee

Moms’ Support Group for Families with Special NeedsAre you interested in a support group for moms of children with special needs? This group will offer: support and guidance, an opportunity to network with other moms, tips for advocating for your child and learning about the services and resources available in our community.

Formoreinformationortoregister,[email protected]

Meets the 2nd Wednesday of the Month 7:30pm–9:00pm

Dates: 6/13, 7/11, 8/8, 9/12, 10/10, 11/14, 12/12, 1/9, 2/13, 3/13, 4/10, 5/8

No fee

Dads’ Support Group for Families with Special NeedsCalling all Dads: Are you interested in forming a support group for fathers of children with special needs? This group will offer support and guidance, an opportunity to network with other fathers, ways to advocate for your child, services and resources available in the community.

Formoreinformationortoregister,[email protected]

Meets the 4th Wednesday of the Month 7:30pm–9:00pm

Dates: 6/27, 7/25, 8/22, 9/26, 10/24, 11/28, 12/26, 1/23, 2/27, 3/27, 4/24, 5/22

No fee

MetroWest ABLE Babysitting Course— Learn to Babysit for Children with Special Needs Teens will be trained by a professional in the field of special needs. The training will include workshops, videos, and meetings with parents and professionals. Students will become certified in CPR and first aid, and learn about topics of rights and responsibilities, child development, behavioral challenges, caring for a child with special needs, handling emergencies, and more. Each participant will walk away from the program with a resource kit of materials/activities to guide them as a babysitter. They will also be required to fulfill 3 hours of practical experience at one of our programs supporting individuals with special needs. Formoreinformation,[email protected]

Adapted AquaticsIntroduction to swimming for individuals with special needs. Swim instructors have background and experience with persons with special needs.ContacttheJCCAquaticsDepartment,973-530-3422,forfurtherinformation.

Dates Ongoing

Personal Training for Individuals with Special NeedsOne-to-one personal training sessions for individuals with special needs ages 10 and over. Certified Personal Trainers and fitness professionals have background and experience with persons with special needs. ContacttheJCCFitnessCenter,973-530-3416,forfurtherinformation.

Jewish Disability Awareness Month ShabbatShalemMetroWest synagogues will be joining other Jewish communities across North America to celebrate National Jewish Disability Awareness Month throughout the entire month of February. Join us and support meaningful inclusion of people with special needs and their families in every aspect of Jewish life, making MetroWest a community made “whole and complete” by all of its members. Formoreinformationaboutspecificprogramsinourarea,pleasevisitwww.metrowestABLE.orgorcontactRebeccaWanatick,CommunityCoordinator,at(973)[email protected].

other programs and events


A Special Needs Parent’s Wish ListSo you’d like to give me a gift? That’s nice. But the things I really need don’t wrap so well. Put away that paper, keep your card, and just give me one of these. All I really want is:

Babysitting: A few nights out this year will do

me a lot more good than another sweater or DVD.

House Cleaning: Oh, yeah. Come clean my house.

Anytime. Do you do windows?

Homework Help: Teach my kid math.

Help her write a paper. Drill him with flashcards.

Give me a break.

Sounding Board: Therapy? Expensive. Someone like

you who I can call and gripe to for hours? Priceless.

Back-up: Come to IEP meetings and doctors’

appointments with me. Bring tissues. And maybe a

baseball bat.

Child’s Play: My child wants to play with me, needs

to play with me all the darn time. You take a few

shifts, okay?

Sleep: Offer to take my kids to school one morning.

Also wake them up, and get them dressed and fed. I’m

sleeping in.Copyright2006byTerriMauro|specialchildren.about.com


8 Please Don’t Say to Parents of a Child with Special Needs…

8 “God only gives us what we can handle; He must think you two are special parents.”

8 Using the word “Autistics” to describe people on the spectrum.

8 “ Remember, you have to take care of yourself, so you can take care of them.”

8 “ He’ll speak when he’s ready to.”

8 When looking at my son using a reverse walker: “Wow, we need to get one of those for my (typical) 10 month old so he/she can walk better!”

8 “ They’ll EAT when they’re ready. They’re not going to starve to death.”

8 “ You are so much stronger than me… I don’t know how you do it.”

8 Pointing out that my non-walker shouldn’t be in a stroller, not knowing he can’t walk.

8 That my child is just playing us.

8 “ They just need discipline.”

8 “You two are amazing for adopting two special-needs children. They are SO LUCKY.”

8 Family and friends that downplay a diagnosis.

8 For a child that has tics, saying, “Do you think she is doing it for attention?”

8 Anything that implies that sensory issues are not real or that we’re playing into their “fear.”

8 When people say they are sorry or offer condolences for a child with disabilities.

8 Any comment that starts with “If you would just…”

8 “What’s wrong with her?”

8 “Don’t worry. She’ll catch up.”

8 “She’ll grow out of it.”

8 “ Is your other son/daughter ‘normal?’” or “Are your other kids ok?” (As if to imply the child with the disability is not?)

4 Yes! Say This! Instead…

4 “ I’ll be over on Saturday to help do laundry/wash dishes/scrub floors!”

4 “ I don’t know what to say to you, but I love you.”

4 “ How are you doing?” (and actually listen to the answer)

4 “How can I help?”

4 “ Just wanted you to know I was thinking about you.”

4 “ I just made an extra dinner when I was cooking for us, can I drop it by now?”

4 “ I know you had an appointment yesterday, how did it go?”

4 “ Want to drop your kids off with us for an hour or so?”

4 “ I’m on my way to the store, want me to grab you some milk or bread?”

4 “Need any help at bedtime with the kids?”

4 “ I’m coming over to watch the kids right now for an hour so you can take a nap.”

4 “ We’re on our way to take care of the yard work.”

4 “Sounds like you’re doing a great job.”

4 “Here are some things that worked for us.”


CAMP—Honesdale, PA. Coed, ages 8-19. 3 week and 2 week Sessions. ACA Accredited.

TRAVEL: ages 15-19. 19 Day trips to destinations like Cali-fornia, Hawaii and Israel. 14 Day trips to destinations like Canada, the colonial south and New England.

WEEKENDER is a monthly weekend youth group like experience designed to foster independence, increase and practice social skills. Participants, ages 11-18, partake in activities that range from hikes and nature to sports, crafts, dance, and talent shows. The pragmatics of peer relationships and interaction are integrated throughout the event. TRAVEL CLUB provides school holiday travel to destinations like the theme parks of Orlando, FL, major cities, dude ranches, and even London, England.

Summit Camp LLC Phone 973 732 3230

[email protected] www.summitcamp.com

Fun...Friends...Success...

Since 1969 Summit is synonymous with excellence in camping, school year programs and special travel. Summit Camp offers structure, support, excellent supervision and social skills development through the challenge of a full range of recreational, social, athletic, and water safety programs.

Club JCC MetroWestSpecial Needs Services

Join us to raise awareness and funds for Club JCC Special Needs Services

Saturday, February 2 • 7:00pm—11:00pm Dancing Begins • 7:15pm

Snowdate:February9

Leon&TobyCoopermanJCC|WestOrange

$20Admission Includesaservingofbakedziti,salad,anddrink.Additionalsnacksavailableforpurchase.

Registration $20/Person or Raise Donations —Ask Us How!To register, visit www.firstgiving.com/jccmetrowest

Formoreinformation,contactRebeccaGallanterat973-530-3998([email protected]).

Real Life Choices Approved Provider State of New Jersey Division of Developmental Disabilities (DDD)

FourthAnnual Dance-A-Thon

New York State of Mind (in New Jersey!)

2 5 5 S O U T H L I V I N G S TO N AV E N U E • L I V I N G S TO N , N J

Where Inspiration Strikes

Come Share Our Love of Food &

twitter.com/kingsfoodmkts

facebook.com/kingsfoodmarketsWe have plenty to inspire you in store...and online!

www.kingsfoodmarkets.com

There is a moment–a time, a place–where it all just comes together. Where the right spice is added at precisely the right time to bring out the unbridled flavor delicately hidden within. At Kings, everything we do is about helping you find this moment. Just take one step inside and you’ll feel it.

Where Inspiration Strikes.

Come Share Our Love of Food &

Facebook.com/KingsFoodMarkets

@KingsFoodMkts

Come experience our newly renovated Kings Livingston Store. With our expanded fresh produce department, high quality meats & seafood, Coffee House with cappuccinos & iced lattes, expanded Kosher selections and our new Wi-Fi Café. Make Kings your destination for all your culinary needs.

www.kingsfoodmarkets.comWe have plenty to inspire you in store…and online!


Whenwethinkofcaregiving,wetypicallyimaginetakingcareofanelderlylovedonewhoisafflictedwithillnessoroldage.Weveryrarelyconsiderthatwecouldfindourselvescaringfora

youngchild—orgrandchild—whoischronicallyill/disabled.Forfamilieslivingwithaspecialneedschild,caregivingcanbecomeafull-timejob.

Facing the Diagnosis“When you’re caring for a child who has functional loss, your initialdreamsforthatchildfeelliketheyhaveslippedawayandmayneedtochange.Withtheelderly,mostcanatleastjustifythatthey’velivedalong lifeandfulfilledtheirdreams,”PatFurlong, founderandCEOofParentProjectMuscularDystrophy,says.“Weallwantthebestforourchildren—forthemtogrowup,growold,andenjoytheirlives.Whenacatastrophicdiagnosisismade,wedon’tknowwhat’sgoingtohappen,andtheplanwehadinourhearthastochange.”

Therearemanytypesofdisablingdiseasesafflictingtheyoung,manyof which have an early onset period—some as early as birth andinfancy, others into childhood, the teen years, and early adulthood.Those that affect children and young adults typically begin withdevelopmental delays in speech and motor skills in toddlers andchildren.Asadiseaseprogresses,fatiguemayalsopresentandmorefrequent use of assistive devices (wheelchairs, walkers, devices toassistbreathing)arenecessary.Inthemostseverecases,theaffectedindividualwillneedpermanentassistancefromaninhomecaregiver.Someyoungsterswillbeconfinedtoawheelchairorelectricscooter.

Caring for the YoungWhencaringfortheyoung,Furlongsuggeststakingadvantageofanyand all resources available in your area, including state assistanceand home care services. “If you’re providing care 24 hours a day,seven days a week, and are the person responsible, it can feel veryoverwhelming.Youhavetosolicithelp.”

Althoughthesameprinciplesapplytobasiccarethroughouttheages,there are some special considerations to keep in mind if you’re thecaregiving parent or family member of a child. “It’s a never-endingprocessofaccommodationandoftenre-accommodationasachildgetsolderand/orifthediseaseprogresses,”Furlongstates.

Creating a Safe HomeParents will need to make sure that home is a safe, healthy placeforthechildaffected.Furlongnotesthatalongwithallof the largeradaptationstherearesomesmallerconsiderationstoremember:Canyour child’s wheelchair fit underneath the dining room table so thatthey can join the family at mealtime? If your child is still walking,are there obstacles in the home that may lead to a fall? Can yourchildaccessthebathroomsink,sos/hecanmaintainindependenceingroomingforaslongaspossible?

Aboveall,Furlongsuggestsplanningahead,astherearemanycosts,insuranceissues,andwaiting listsforequipmentthatyourchildmaynotneednow,butwilleventually.Providingeasymobilitysoyourchildcanmaintain independencewillmost likelybe thebiggestchallenge.Special equipment and additions, such as wider doorways, ramps,wheelchair-accessiblerooms,andliftsmaybeneeded.

Muscle weakness can present sleeping problems, so speaking with aphysical therapist about special beds and mattresses that will helpyourchildsleepcomfortablyisoftenrecommended.

Providing a Strong Support Structure“It’scommonandcertainlyappropriatethatwhenparentshaveachildwho’sbeendiagnosedwithadebilitatingillness,theirinstantreactionisbuildingaprotectivebubble,”Furlongsays.“Parentswanttoprotecttheirchildineverywaypossible,andsometimethiscanleadtoover-protectionanddiscourageindependence.Parentsneedtochangethatmindset.”

According to Furlong, it’s important to prepare children to grow up,grow old, and be independent, regardless of a diagnosis. They needto be encouraged to speak up if they need assistance, do a taskthemselves if they’reable,andfunction inthisworld—tothebestoftheirabilities—justas their siblingsandpeersdo.Providinga familysupport structure that encourages this is imperative. Furlong saysthatsimplethings, like lettingyourchildorderhisorherowndinneratarestaurant,expectingyourchildtoobeyallhouseholdrules,andhavingyourchildparticipatefully inschoolwill takethefocusoffofdisabilities,positivelyrepositioningthemtoabilities.

Coping as a FamilyDisabilitiesaffectthewholefamily,not justtheindividualdiagnosed,and,beforeyouknowit,becomethefamily’smainfocus.It’simportantto know that everyone will deal differently day-to-day with theimplications, and that it’sOK foreach familymember tobeon theirownjourney.

“Parentsneedtobehonestwithchildren.Theydeserveadiagnosis,”Furlong notes. “It’s only fair that symptoms are named.” Finding anhonestandacceptablewayto talkwithchildrenabout theirphysicalexperienceiskeytocopingwith—andaccepting—thecondition.

Havingaunitedandopenhouseholdwillgiveeachfamilymemberthesupportandspacetocopeaccordingly.Furlongadvocates forplentyoffamilytimethatisn’tcenteredaroundthedisability.“Haveafamilymeeting, family movie night, or whatever it is that brings everyonetogetherasafamily.”Shealsosuggestsaweeklygetawayforparentsorthehead(s)ofthehousehold,whetherit’sonehouroroneevening—asfamilyleadershipmustbestrongforthefamilytostaystrong.

Caregiving for the YoungArticle Courtesy of Homewatch CareGivers


Homewatch CareGivers is a premier caregiver agency, providing home care, hospital discharge planning, and daily living assistance to individuals of all ages. Please visit www.homewatchcaregivers.com, where you can read articles related to home health home care news or download PDF home care resources, or contact 973-810-0110 for further information.


Meet Our Program Assistant:

Amy Koehler

That friendly voice on the phone belongs to Amy Koehler, who joined our Special Needs Department in December

2011 as our Program Assistant. Amy, who also supports the JCC’s Department of Jewish Life, is a tremendous asset to our Department. Her background includes many years as an assignment editor for CNN in both Washington, DC and Atlanta, Georgia. Amy has traveled the world and met many well-known individuals, including former Presidents of the United States.

Here at the JCC, Amy assists with administrative oversight of the Special Needs Department, program planning and outreach. The parent of a child with special needs, Amy brings a unique perspective and experience, which results in a perfect fit for our Department!

Amy resides in Maplewood with her husband, Donald; daughter Danielle, 18; and son Ethan, 13. She enjoys observing Danielle as she rides horses and Ethan defending his soccer team’s goal.

Welcome to Club JCC, Amy!

Caregiving for the YoungArticle Courtesy of Homewatch CareGivers

Celebrating 15 years of proudly serving individuals and families whose lives are affected by Autism Spectrum Disorders.

ASPEN of Essex County meets at the Leon & Toby Cooperman JCC

on the 3rd Monday of each month, 7:30 – 9:30 PM.

Contact Anita Finkel (973) 845 -‐2626 for more information

or visit our website www.aspennj.org

ClubJCC MetroWestSpecial Needs Services

JCC MetroWest 760 Northfield Avenue West Orange, NJ 07052

www.jccmetrowest.org

Issue 10 | 2012–2013

JCC MetroWest is a beneficiary agency of United Jewish Communities of MetroWest New Jersey.

“ I love Club JCC because I get to hang out with my friends and go out to lunch sometimes. I get to work out, go swimming, and lift weights. The JCC is the best!“

byGregWeinberger

club jcc news - 2012/13

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