cerebral palsy myths and facts
TRANSCRIPT
Graduate in child neurology-Telaviv uni, Israel
Fellowship in epilepsy-Great Ormond street hospital for children,london
Fellowship in electrophysiology-Japan
Research in galactosemia- gold prize at world child neurology congress, Taiwan
New modality for Opsoclonus myoclonus syndrome, Child neurology congress, Australia
Common relative:Not much fruitful, unnecessary to spend
Child specialistMay or may not improve, needs lots of time to
improve
Fact by neurologist:Good part of brain may start taking the
function andwith therapy u can make functional child
Mental retardation with cerebral palsy
Common terminology to be used in the prescription paper
MISNOMER It is not always so.
Mental retardation may or may not be associated
BECAUSE
Definition: disordered motor function in early infancy which leads to abnormalities in muscle tone, muscle weakness and involuntary movements either alone or in combination.
Delayed Sitting
Walking
Intelligence and cognition are not included
Visual field defect-blindness,squinting
Deafness
Speech problems like, apraxia,dyspraxiadysarhtria
Mental retardation
Dyslexia-difficulty in learning
Behavioral disturbances-ADHD ,Autism
ARE NOT INCLUDED IN CP
Mental stress to mother antenattaly
Fall of mother
Damage to developing brain
Usually ,
Hypoxic ischemic encephalopathy
Hypoglycemia
Hyperbilirubinemia
Intracerebral hemorrages
Maternal infections
Recently increased
Due to survival of low birth weight and premature babies
Awareness of parents
Early recognition
Not so,
CP means altered tone which may be hypotonic/hypertonic or even normal tone in few with delayed normal development
There may be involuntary movements associated with delayed development
ADHD AUTISM
Hyperactive
Short attention span
Good in cognition
Normal or near normal speech
destructive
Poor eye eye contact
Poor communication
Meaningless repeatation of words
Repetitive activity
Keeps things in place
His/her father/mother walked late
Spoke late
Was dull in studies
Wait & watch policy does not help
Child will improve with the advancement in age
Start the investigation and treatment as early as possible
Advantage of plasticity of developing brain
Synaptic connections are yet to develop till 1 ½ year of age
Give more and more stimuli for good part of brain to take over the function
Right from the NICU
What therapy?
We are massaging the child daily
Useful for absorption of Vit. D from the sunlight
Needs stretching and balancing exercises daily for recovery of lost muscle power
Done for weeks/months
Doing for 15 min.
We DO BETTER!!
MOTHER IS ALWAYS THE BEST THERAPIST FOR THEIR OWN CHILD BUT IT HAS TO BE FREQUENT /REPEATATIVE
ALLOW the good part of brain to take over the function of BAD /damaged part
So till the brain takes over the function
What occupational therapy?
ACCUPRESSURE IS EFFECTIVE
Good function of hand and oral muscles are to be taken care of.
Speech therapy
Special education
Regular
Precise
Why medicines?
For control of hurdles in improvement
i.e. epilepsy,spasticity,dystonia,contractures
ADHD,Autism
85% of CP do have epilepsy
Major seizures in severe cases and mild seizures in mild cases need to be controlled for faster normalization of brain activity and allowing the the brain to take over the function
Many are unrecognized
Always feeling that damage is progressive
Could be due to epilepsy
Increased tone which increase in height
NOT A CP
Spasticity and dystonia can be improved with medicines
NO IMPROVEMENT DESPITE OF MEDICINES
medicines are to relax the muscle for effective stretching it does not improve the muscle power directly
So expensive inj. Has been given repeatedly still there is no walking
THESE HAS THE SAME EFFECT AS MEDICINE but it acts precisely on particular muscle NO DIRECT EFFECT ON MUSCLE POWER
SHOULD NEVER BE DONE(Multiple example of spoiled cases)
It is essential
to relieve contracture
To keep the bones in neutral position
To prevent the deformity
Has to be in right person with proper decision
It is a God’s gift to special parents who can take care of special child
It is never the mother’s fault
It is a mishap
Everyone in the family should support morally and by all possible means
Useless to spend a lot
If it is CP
They always improve
Once improved they never regress
Degree of improvement depends upon
underlying brain damage
Defective Parents
Next normal child not possible
Lots of investigation
Purely a damage to the developing brain
Except routine extra precaution, nothing is necessary
Never
They are retarded OR dyslexic
Physically handicapped
Normal OR Extra normal intelligence
Can do better, normal or at least functional
By elective caesarian section
Good fetal monitoring is essential
Skillful gynecologist, careful fetal monitoring and knowledgeable neonatologist reduce the incidence of Cp
CP is a disease of developing brain.
It has to be identified as early as possible.
It has to be treated as early as possible to take the advantage of the plasticity of the brain
Maximum efforts are to be guided for making a functional child
All parents have a right to have one normal child and it has to be encouraged as much as possible