cares registry update - the national association of state ...€¦ · built cares schematron and...

21
Monica Rajdev, MPH Director, Data Integration & State Programs Bryan McNally, MD, MPH Executive Director CARES CARES Registry Update

Upload: doanque

Post on 26-Jun-2018

222 views

Category:

Documents


0 download

TRANSCRIPT

Page 1: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

Monica Rajdev, MPHDirector, Data Integration & State Programs

Bryan McNally, MD, MPHExecutive Director CARES

CARES Registry Update

Page 2: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

CARES Funding Partners

American Red Cross

American Heart Association

Emory University

Medtronic Philanthropy

Zoll Corporation

CDC (2004-2012)

Page 3: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

CARES Mission Statement

To help communities determine standardized

outcome measures for out-of-hospital cardiac

arrest allowing for quality improvement efforts

and benchmarking capability to improve care

and increase survival.

Page 4: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

CARES Vision Statement

To become the standard out-of-hospital

cardiac arrest registry for the United

States allowing for uniform data collection

and quality improvement in each state and

nationally.

Page 5: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

2015 Footprint

Over 100 million

31% US population

> 1,100 EMS Agencies

> 1,500 Hospitals

50 communities in 22 states

15 statewide participants

0

10,000

20,000

30,000

40,000

50,000

60,000

CARES Annual Call Volume

Non-Traumatic Etiology

Presumed Cardiac Etiology

Page 6: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

2016 CARES Participant Map

Page 7: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

2016 CARES Focus States

Page 8: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

State Benchmarking

2015 Oregon State Comparison Data

Page 9: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

Who Initiated CPR?

40.6%

28.2%

31.1%

National

Bystander

FirstResponder

EMS

N=53,826

56.4%

16.6%

27.0%

Oregon

Bystander

FirstResponder

EMS

N=1,925

Page 10: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

First Arrest Rhythm

0%

5%

10%

15%

20%

25%

30%

35%

40%

45%

50%

Vfib/Vtach/UnknownShockable

Asystole Idioventricular/PEA Unknown Unshockable

Oregon

National

Page 11: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

Survival Rates: Overall Survival

0%

5%

10%

15%

20%

25%

30%

35%

Survival to HospitalAdmission

Survival to HospitalDischarge

Good to ModerateCPC

Missing HospitalOutcome

Oregon

National

Page 12: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

0%

5%

10%

15%

20%

25%

30%

35%

40%

45%

Utstein Survival Utstein Bystander Survival

Oregon

National

• Utstein = Witnessed by bystander and found in a shockable rhythm

• Utstein Bystander = Witnessed by bystander, found in shockable rhythm, and received some bystander intervention (CPR by bystander

and/or AED applied by bystander)

Survival Rates: Bystander Witnessed

Shockable Rhythm

Page 13: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

ePCR Extraction

Page 14: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

CARES Vendors

AMR

ESO Solutions

HealthEMS

Image Trend

Intermedix

SafetyPAD

ZOLL

Page 15: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

CARES XML Software Build

Goal: To be more NEMSIS-compliant based on vendor

user group feedback

Transitioned 9 fields away from Custom

– Incident #, First Arrest Rhythm, Mech. CPR Device Used, ITD

Used, Field Hypothermia, Time of 1st CPR, 12 Lead, Incident

City, Ambulance Times

Requires NEMSIS 3.3.4 or 3.4.0 XSD Validation

Built CARES Schematron and Upload Results Report

Go-Live: September 14th

Additional Goal: To move away from customization and

towards standardization

Page 16: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

Summary

Page 17: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

IOM Recommendations

1. Establish a National Cardiac Arrest Registry2. Foster a Culture of Action Through Public Awareness and Training

3. Enhance the Capabilities and Performance of Emergency Medical

Services (EMS) Systems

4. Set National Accreditation Standards Related to Cardiac Arrest for

Hospitals and Health Care Systems

5. Adopt Continuous Quality Improvement Programs.

6. Accelerate Research on Pathophysiology, New Therapies, and

Translation of Science for Cardiac Arrest

7. Accelerate Research on the Evaluation and Adoption of Cardiac

Arrest Therapies

8. Create a National Cardiac Arrest Collaborative

Page 18: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

IOM Recommendation to

Establish a National Registry

“The Centers for Disease Control and Prevention (CDC)—

in collaboration with state and local health departments—

should expand and coordinate cardiac arrest data

collection through a publicly reported and available national

cardiac arrest registry, including both out-of-hospital

cardiac arrest (OHCA) and in-hospital cardiac arrest (IHCA)

data, to help increase federal and state accountability for

current system performance and promote actions to

improve cardiac arrest outcomes.”

Page 19: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

Building a National Registry

Community- Allows stakeholders to identify who, when & where of

OHCA

- Provides measurement tool for quality improvement with

minimal burden to local EMS agencies and hospitals

State- Allows for additional benchmarking opportunities

- Local support from CARES-supported & trained coordinator

National- Increased emphasis on OHCA data collection

- Need for a national registry

Page 20: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

CARES-HeartRescue: US Consortium

HRP-CARES collaboration since 2010

Consortium goals:

– To work with interested communities and states to

improve care and outcomes for out-of-hospital cardiac

arrest through the ‘measure and improve’ strategy.

– To help communities and states measure cardiac

arrest care through the use of CARES (cardiac arrest

registry to enhance survival).

– To help communities and states improve by use of

the Resuscitation Academy model for educating

providers and stakeholders on best practices in

cardiac care.

– To save lives and improve public health

Page 21: CARES Registry Update - The National Association of State ...€¦ · Built CARES Schematron and Upload Results Report Go-Live: September 14th ... IOM Recommendations 1. ... cardiac

Questions?

Contact Information: https://mycares.net

– CARES

Monica Rajdev, MPH

[email protected]

Bryan McNally, MD MPH

[email protected]

– US HeartRescue Consortium

Thomas Rea, MD MPH

[email protected]