caregiving by the numbers: the caregiver
TRANSCRIPT
Caregiving by the numbers:
The Caregiver
The average caregiver
60% female40% male
49 years old
85% care for a relative
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
Informal caregivers spend an
average of 24.4 hours
per week providing care.SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
Number of care recipients
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
82%
care for one adult
3%
care for three or more adults
22%
care for two adults
Distance from care recipient
34% live with their care recipient
40%
live less than 20 minutes away
13%
live 20 minutes to 1 hour away
4%
live 1 to 2 hours away
7%
live more than 2 hours away
* 1% are not sure of the distanceSOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
Frequency of visits
55% visit more than once a week
19%
visit once a week
13%
visit a few times per month
5%
visit once a month
4%
visit a few times per year
4%
visit less than a few times per yearSOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
Types of care providedGetting in and out of beds and chairs. .43%Getting dressed . . . . . . . . . . . . . . . . . .32% Getting to and from the toilet . . . . . . .27% Bathing or showering . . . . . . . . . . . . . .26% Feeding. . . . . . . . . . . . . . . . . . . . . . . . .23% Dealing with incontinence or diapers . .16% SOURCE: Caregiving in the U.S. 2015 Report, conducted by
AARP Public Policy Institute and National Alliance for Caregiving
Other types of care provided
Transportation . . . . . . . . . . . . . . . . . . . . 78%Grocery or other shopping . . . . . . . . . . . 76% Housework . . . . . . . . . . . . . . . . . . . . . . . 72% Preparing meals . . . . . . . . . . . . . . . . . . . 61% Managing finances . . . . . . . . . . . . . . . . . 54% Giving medications, pills or injections . . 46% Arranging outside services . . . . . . . . . . . 31%
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
Other key activitiesMonitoring health of care recipient . . . . . . . . . . . 66% Communicating with healthcare professionals . . . 63% Advocating with providers, services, agencies. . . . 50%
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
Medical/nursing tasksPercentage of caregivers performing medical/nursing tasks such as giving medications, preparing food for
special diets, tube feeding, wound care, monitoring blood pressure or blood sugar, helping with incontinence, or
operating equipment such as hospital beds, wheelchairs, oxygen tanks, nebulizers or suctioning tubes:
57%SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
14% do medical/nursing tasks with training
55% do medical/nursing tasks with no training
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
Level of care provided
40%
high burden
18%
medium burden
41%
low burden
50% of caregivers say they had
no choice in taking on their caregiving responsibilities
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
22% felt their health had
gotten worse as a result of caregiving
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
Caregiver stress
19% report physical stress
38%
report emotional stress
18%
report financial stress
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
60% of caregivers are employed
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
60% report having to make workplace changes as a
result of caregiving
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
Work impacts due to caregiving
Go in late, leave early, take time off . . . . . . . . . . . .49%Leave of absence. . . . . . . . . . . . . . . . . . . . . . . . . . .15% Reduce hours/take less demanding job. . . . . . . . . .14% Receive warning about performance/attendance . . . .7% Give up working entirely . . . . . . . . . . . . . . . . . . . . . .6% Turn down promotion . . . . . . . . . . . . . . . . . . . . . . . .5% Retire early . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .4%Lose job benefits. . . . . . . . . . . . . . . . . . . . . . . . . . . . .3%
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
84% say they could use
more information or help on caregiving topics
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
Caregiving information needsKeeping care recipient safe at home . . . . . . . . . . . . . . . .42%Managing emotional/physical stress . . . . . . . . . . . . . . . .42% Making end-of-life decisions . . . . . . . . . . . . . . . . . . . . .22% Managing care recipient’s challenging behaviors . . . . . .12% Managing care recipient’s incontinence/toileting problems . . . . . . . . . . . . . . . . . . .11% Finding non-English language educational materials . . . .5%
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
Use of services
34% have made modifications
to the care recipient’s home
28%have requested information about
financial help for the recipient
23% have used transportation services
15%have used respite services
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
Affordable assistance(such as delivered meals, transportation
and in-home health services)
25% of caregivers have found it difficult to get
affordable services in their area
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute
and National Alliance for Caregiving
Caregiver support policiesCaregivers felt the following would be helpful:
Include caregiver’s name on recipient medical chart. . . . . . 49%Require facilities to instruct medical/nursing tasks. . . . . . . 43% Require hospitals to inform caregiver of major decisions . . 41% Have respite services available . . . . . . . . . . . . . . . . . . . . . . 33%
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute
and National Alliance for Caregiving
Most preferred financial support policies
Program where caregivers are paid for some hours of care . . 30%Income tax credit . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 30% Partially paid leave from work . . . . . . . . . . . . . . . . . . . . . . . 11%
Expectation of future caregiving roles
Do current caregivers expect to have some responsibility for the care of an adult
in the next five years?
52%
yes
25%
not sure
23%
no
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
Plans for the futureDoes caregiver
have plans in place for his/her future care,
such as instructions for handling financial matters,
healthcare decisions or living arrangements?
SOURCE: Caregiving in the U.S. 2015 Report, conducted by AARP Public Policy Institute and National Alliance for Caregiving
58%
no42%
yes
