cantalk 70 autumn 2014 online wellington · cancer society of new zealand te kāhui matepukupuku o...

CanTalk newsletter

AUTUMN 2014 No. 70

CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa CANTALK 70 AUTUMN 2014

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Contents Editorial

We often speak of the fact that our volunteers are the jewels in the crown of the Cancer Society – our organisation could simply not function in the way it does without the invaluable services and support that our volunteers give.

Many volunteers have gone through a cancer experience themselves, either as a patient or a support person, and consider what they do as a way of ‘giving back’ and ensuring that support is even better for those newly diagnosed and/or coping with cancer. All bring a huge range of skills and goodwill, but it has been the superb diplomacy, professional stance and caring of Ann Hodson over the last 18 years that has melded our Cancer Society Wellington volunteers into a wide range of highly-trained and efficient teams offering many valuable patient services, alongside those that undertake the important work of fundraising in its many guises.

That so many of our volunteers are participants of the Cancer Society’s long-service awards is testimony to her fine leadership and unending drive to ensure volunteers are recognised for the work they do. Ann Hodson is now retiring and we wish her well – but she can leave proudly knowing that she has left a fine legacy.

Our Relay for Life events have been the focus of attention of late - and although Cyclone Lusi put paid to some, the enthusiasm and energy that all have given have meant that once again these events have been a huge success. Not only do we raise money for our services, but friendships are forged and hope is given to many. And always we remember and cherish those lost to cancer. Thank you to all of you who helped us in these events.

I would continue to encourage you to subscribe to your CanTalk by email. Rising postage coming in July and paper costs this month continue to bite. The online edition of CanTalk is larger, at 24 pages, and can be viewed at http://www.ebooksnzonline.com/cantalk/

Sue Corkill

Disclaimer: Many of the articles in the publication are sourced from overseas. The inclusion of these items does not imply that procedures, treatments, or tests reported herein are approved of, or available in NZ. These articles are for discussion purposes only. The views and opinions expressed here are not necessarily those of Cancer Society New Zealand.

Contact: Sue Corkill, Cancer Society Wellington, 52 Riddiford Street, Newtown, or email: [email protected] regarding any information in (or contributions to), the CanTalk newsletter. This CanTalk newsletter is compiled and edited by Cancer Society Wellington and is available online at www.cancernz.org.nz

The Dilemma of PSA Testing 3 Coping with Uncertainty 3 Volunteering at Cancer Society Wellington 4 & 5Questions You Have Asked 5Gynaecological Cancer in the Central Region 6 Life is Short - Eat Dessert First 7 Bird of Paradise 8 Body Art Gift 9 Poem - Ode to Enchanted Light 9 Cancer Society Entertainment Book 9 Advocating for Travel Assistance 9 More in Online CanTalk 10 Out of Nowhere 10 Cancer Upate 2014 - Focus on Brain Tumours 10 Library Update 11 Menopause and Cancer 12 Nutrition and Menopause 12 Living with Cancer 13 The GST Situation on Non-Funded Cancer Drugs 14 NZ Research on Testicular Cancer 14 Embracing Challenge 15 Forum on Workplace Carcingens 16 Carcinogen Classification 16 Solar Radiation 17 Wood Dust 18 Asbestos 19 Silica 19 Support Groups 20 Other Supportive Services Offered 20 Leaving a Bequest - Easy and Fulfilling 21 CanNow - Moving Forward 21 CanSupport Programme 22 & 23 Contacting Cancer Society Back page

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The Dilemma of PSA TestingProstate cancer is a significant burden for men’s health and kills around 600 men every year in New Zealand. As with all cancers, every attempt is made to diagnose prostate cancer early so that the cancer is more likely to be detected at an early stage of its growth and therefore more likely to be cured following treatment.

The PSA blood test forms the basis for the early detection of prostate cancer. This is because PSA is produced in greater amounts in the presence of prostate cancer than in benign, non-cancerous enlargement of the gland. Unfortunately, high levels of PSA can also result from infection of the prostate (prostatitis) and large non-cancerous prostates. This means that if men have a prostate biopsy on the basis of an abnormal PSA blood test it may not necessarily detect prostate cancer. In addition, if there is a small cancer in the gland it could be missed by the biopsy needle and the ‘normal’ biopsy result might lead to a false sense of security. This is why men need to be properly informed about the PSA test so that they are aware of these limitations.

Fortunately, there are some ‘enhancements’ to the use of the PSA test than can increase its utility. These include monitoring the PSA over a period of time in the expectation that if a significant cancer is present then the PSA will steadily increase. This is called the PSA velocity and is often used by urologists as a trigger to going ahead with prostate biopsy rather than relying on a single measurement. Another enhancement relies on the fact that most PSA in the blood is bound to other proteins but some is not protein bound and is called ‘free’. The risk of having prostate cancer increases as the proportion of free PSA is reduced. Used in combination these enhancements can be very helpful in determining the need for prostate biopsy.

The great dilemma of PSA testing is that if a prostate cancer is found does it really need treatment? There is no doubt that, for older men diagnosed with prostate cancer that the pathologists have determined to be ‘low grade’ (not aggressive), these cancers can be safely watched because they are unlikely to progress given the man’s life expectancy. The situation is more precarious for younger men diagnosed with similar cancers.

This is because over a period of many years these low-grade cancers can become aggressive and, if not treated, cause death.

This is why younger men are offered ‘active surveillance’. It is a means of keeping an eye on the cancer but without requiring the man to undergo immediate treatment using either surgery or radiation therapy.

Fortunately, there is a great deal of research about finding a blood test (a biomarker) that is really specific for prostate cancer. This will help the decision whether or not to go ahead with prostate biopsy. This, combined with the option of active surveillance, will greatly improve the management of men with this very important malignancy.

Professor John NaceyDepartment of Surgery & AnaesthesiaUniversity of Otago, Wellington Ed’s note: to read more about the research on this new blood test go to our Get The Tools website: http://www.getthetools.org.nz/news/in-the-news/narrowing-focus-on-prostate-cancer

Coping with UncertaintyMany people struggle when it comes to situations where tests suggest that they possibly have cancer, or their cancer may be growing or returning, but the information is not conclusive enough for doctors to be certain. So they are informed that they will be watched closely and further tests will be conducted in the next weeks or months.

Uncertainty lessens the control and security that many people feel they have, and as a result they can become very anxious, fearful, or irritable, and may find that their sleep and concentration is affected - along with other effects. Other family members may feel they are shut out.

It may be helpful to talk to your doctor or other health professional or ring a Cancer Information Nurse (0800 226237) to find out what resources can help you, as much can be done to support you in managing your uncertainty.

Make sure you read the Cancer Society Coping with Waiting information sheet - http://www.cancernz.org.nz/information/living-with-cancer/


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Volunteering at Cancer Society WellingtonFrom the very beginnings of Cancer Society Wellington volunteering has existed. Those ‘forefathers’ that established the Society in the late 1920s were all volunteers. In the main they fitted into two categories - medical men keen to ensure that funds were raised for New Zealand- based research into cancer and related blood disorders; and family members of those who had (possibly died from) cancer, with some influence in the community. Through ensuing decades volunteering was the engine house of Cancer Society Wellington, with volunteers involved in policy and governance, fundraising, receipting, data entry and administration. There were no particular standards, policies or principles of practice that covered volunteering at that time, and it existed (in the main) on people offering their time to the Society. It remained thus until the late 1980s when a raft of interventions took place as the unit of Supportive Care was constructed.

Twenty-five years ago the work of the area we now know of as Supportive Care was largely focused at end-of-life care, with modern hospice then still in its infancy, and delivered by ad hoc teams of volunteers who had formed themselves into groups providing service delivery to fill the gaps they had identified in their region – true community work in action. These systems (which operated outside the formal structure of the Cancer Society) were the first ever Driving Service, ferrying people to oncology out-patient appointments; Patient and Family Support Visitors, providing local practical support and befriending to families undergoing a cancer experience; and the Breast Cancer Support Service, a peer support model with volunteers (all breast cancer survivors) providing support to women newly diagnosed.

From 1991, Cancer Society Wellington began to harness the goodwill, good sense and generosity of volunteers in the building of practical volunteer-delivered services, with the appointment of a Volunteer Coordinator. Parallel developments began to take place across all categories of our business - health

promotion; fundraising and communications; policy and governance requiring that there be formalisation in our human resources practices.

On 5 February 1996, Ann Hodson was appointed to the role which subsequently became a senior management position with her at the helm.

The cancer public benefits from a range of volunteer-delivered patient support services in this day and age: • Transport to treatment• Patient and Family Support teams• Cancer Connect – peer support• Volunteers who service our accommodation

facility, Margaret Stewart House • Those who are involved in the production of

‘silky pillows’ and other items • Volunteer teams within treatment centres

proving support for patients, family/whanau and staff in the inpatient ward, day therapy unit, and the waiting areas and the provision of our popular patient packs.

The outstanding legacy of Ann Hodson is in the dignity and rigour she has brought to Policy and Standards of Volunteer Management within Cancer Society Wellington. Also her influence has been manifold within the Volunteering sector in New Zealand, providing her wisdom and input nationally for Cancer Society New Zealand and in the allied health sector.

Fiona Pearson

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It has happened twice at least. I had no idea what I was letting myself into when I met Ann with some vague idea of offering some help somewhere. The lady is an expert at sorting our ideas into the channels she needs us in. My first few efforts as part of the patient support in the Wellington Blood and Cancer Centre’s waiting room as the wait person, started with a deep breath and lots of hope that somehow I’d manage to do the right thing ... and so it carried on. Many of these people I consider as my friends and I hope they feel the same. I can’t help wondering what Ann plans to do with this perception and where it will take her next? Leah Haxton

I enjoy compiling the Patient Packs. These are offered to all patients and carers when they get diagnosed and contain a wealth of useful information. The numbers needed keep on growing. I’m 92 years old and have been volunteering for 28 years under the expert guidance of Ann Hodson. I am particularly struck by her ability to match volunteers to their positions – her gift is quite outstanding and so is the nurturing she gives to ensure they a good fit and happy. Marjorie Lee

When I started driving for the Volunteer Driving Service I thought I would give it a couple of years. With Ann’s encouragement I took up the role of driving coordinator as well. Ann is very supportive of all her volunteers and it is of great comfort knowing she is always there with well founded advice and guidance. Hey - some 12 years later I am still performing those roles Ann believed I could. Mal Fyfe

Questions You Have AskedQ: My mother who is a New Zealand citizen is having cancer treatment in Melbourne. I want to bring her back to New Zealand. What are the things I need to know? The first important thing is for your mother to discuss with her oncologist the feasibility of the move and on-going treatment needs. The oncologist will then undertake to transfer your mother’s records and treatment plan to an oncologist in New Zealand. It may be helpful to have a family meeting arranged – either in person or by Skype – to ensure all concerns are covered. As a New Zealand citizen, your mother is eligible for publicly funded health and disability services in New Zealand, regardless of the amount of time she spent away from New Zealand.

She will need medical clearance to fly, which may include needing some-one to accompany her. All travel costs would have to be met by family.

A few other things to be aware of include:• There may be differences in the level and

type of funded health and disability services provided in New Zealand compared to what your mother received in Australia.

• Availability of regular medications, as these may not be funded in New Zealand.

• Enrolling your mother with a GP and arranging transfer of her medical records. The GP is the person who links all the medical care. This is especially important if, for instance, your mother is unlikely to be seeing her new oncologist immediately, but may still require other medical input.

• Linking with the Cancer Society for on-going information and support.

The Oncology Social Worker at your District Health Board is another person who would be able to provide input with the process.

Janice BrownOncology Social WorkerHutt Valley District Health Board

In my role as a Cancer Connect volunteer, I make contact by telephone with people who want to talk to someone who has experienced the type of cancer and treatment that they now face. Our work is not seen by others but Ann is in a class of her own in acknowledging our efforts and providing leadership and encouragement for the work we do. Brian Sheppard


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Gynaecological Oncology in the Central RegionWe extend a warm welcome to Dr Cecile Bergzoll, who is a relatively new Gynaecological Oncologist in the Wellington region. I invited her to comment on the state of Gynaecological Care in New Zealand. (Editor)

There are approximately 240 women diagnosed with a gynaecological cancer every year in the Central Region (covering seven District Health Boards from Wellington to Hawke’s Bay and Taranaki). Uterine cancer is the most common gynaecological cancer in New Zealand (around 40%), followed by ovarian (34%), cervical (18%) and vulval/vaginal (7%). Māori and Pacific Island women have significantly higher occurrence and mortality rates from uterine and cervical cancers than other ethnicities.

Management of women diagnosed with gynaecological cancer is complex because of the diversity of the disease itself and the sensitive issues it affects (fertility, menopause, and body image). Radical surgical and specific radiation therapy procedures are required to treat up to 70% of these women. The remainder of the patients (around a third) need less radical and less specialised treatment, and can be managed by general gynaecologists.

Evidence has shown that, when carried out by specialised teams in expert centres, these specific procedures, which are required for two-thirds of the patients, allow for the best expected outcome. In the last 15 years, doctors managing gynaecological cancers around the world and in New Zealand have been advocating for this centralised approach, especially for ovarian cancer surgery.

In 2010, the Ministry of Health mandated a group of experts (doctors, nurses, managers, patient representatives) to audit gynaecological cancer care services in New Zealand. The audit report, called ‘It Takes a Team’ was submitted in July 2011 by this group, the New Zealand Gynaecological Cancer Group (NZGCG), and is available online: http://www.health.govt.nz/publication/it-takes-team

This document proposes a national service plan for gynaecological cancer services to improve equity, access, and efficiency of services. It describes the preferred model of care, which includes a comprehensive multidisciplinary team in each expert centre, led by a team of two to three gynaecological oncologists. It also recommends the formation of four of these expert centres in New Zealand.

Owing to questions regarding the feasibility of a four-centre model, the Ministry of Health requested more information from the group of experts in 2013. A new report was submitted in February 2014 detailing a three-expert-centre model option.One of the main burning issues is the current staffing of these centres. To deliver optimal care to the seven District Health Boards it covers, the Wellington team should employ three gynaecological oncologists.

Prior to my arrival in February 2013, the service in Wellington was provided by a single Gynaecological Oncologist, working only part time at Wellington Hospital. When I heard that there was a vacant position in Wellington, at the end of my gynaecological oncology training in France, I interviewed with teams in both Auckland

and Christchurch in June 2011. They offered a one year ‘assessment’ position in Christchurch at a more junior level, with the possibility to step up in Wellington afterwards as a consultant. I proceeded and worked in Christchurch from October 2011 to December 2012.

My work in Wellington is extremely busy because of the short staffing. We are currently in a transitional phase, introducing the model of care to deliver optimal treatment for all gynaecological women andand building the regional network.

It gives me an incredible opportunity to make a difference at a higher level, not only by taking care of individual patients but also by developing a sustainable regional system. It is a big challenge, and sometimes feels daunting. I get amazing support from the local Wellington team, as well as from the Auckland and Christchurch groups.

Cecile BergzollGynaecological OncologistCanterbury District Health Board

It Takes a Team…

We heard again and again in the course of developing the plan that it takes a multidisciplinary team to deliver optimal care that makes a difference; hence the short title: ‘It takes a team’.

From http://www.health.govt.nz/publication/it-takes-team

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Life is Short - Eat Dessert First

Life is a rollercoaster full of ups and downs but little did I think that my life would be changed forever by cancer at the age of 36. As a single outgoing, independent woman, being diagnosed with two primary gynaecological cancers – endometrial and ovarian - and then entering early menopause following a hysterectomy was not part of my life plan. Gynaecological cancers strike at the heart of what makes us women, but due to most of my treatments being outwardly invisible I found it difficult to come to terms with my diagnoses. While I look the same outwardly, inwardly my body now functions very differently.

I also had a post-surgical six-month chemotherapy treatment which led to the loss of my shoulder-length hair, and for a while there the woman looking back at me in the mirror was a big disconnect for me. A lot of women I have met through the Cancer Society who have undergone breast cancer treatments shared very similar feelings with me, that the loss of hair, eyebrows, eyelashes, changing body shapes can hit you hard emotionally as well as physically.

Looking back now, seven years on, I can smile and laugh at things that have happened along my cancer journey - being surprised at the door by visitors while not wearing my wig and having a clean out of my tampons and pads and giving them to friends that now needed them more than me and thinking how much money I would save by no longer having to buy these. And having a bottle of wine with friends at the hairdressers as I cut my long hair to a shorter bob so as to make the transition to my similar wig less profound, and the joys of not having to shave my legs every day! The things that got me through were meeting others who had taken this journey before me at the Cancer Society Gynaecological Support Group – I didn’t join this immediately as I’d never been involved in support groups before and, like many people I guess, I thought they might be full of hugging, crying women. These meetings were far from that and I learnt a lot from those women all at different stages of their lives and diagnoses

and I’m glad to now be in the position where I can help the newcomers in ways that the ‘old hands’ once did for me - as sadly there are always new people joining our special club.

One of the outcomes of my diagnosis was the removal of my option to have children of my own following my surgery and I really struggled with this in terms of what would future partners feel about this. How do you even begin to have that conversation with someone new that you’re dating? Even now I can still struggle being around friends and workmates who are pregnant or have new babies - as it only serves to remind me of what I will never get to experience for myself. I wasn’t really knowledgeable in my 30s about the side-effects of menopause - so I had to learn fast.

At the time of my diagnosis I was due to go on a five-week European holiday, so very early on in my treatment I was determined that as soon as my doctors and body would allow it, I wanted to resurrect these plans. The following year I did just that, and really treasured everything I encountered overseas, seeing it as a personal victory that I had made it through everything. I remember someone telling me early on that getting cancer was a bit of a silver-lining in that it made you get on and live your life rather than just drift through it. I thought they were crazy back then, but where I am now I can kind of understand this better. You really get to know yourself inside and out better than most people do, you learn who and what is really important in your life and focus in on those things, and while gynaecological cancer may change you as a woman, it can only change the real you if you let it. I now have a life motto of ‘Life is Short – Eat dessert first’ which I not only apply to actual puddings but in how I view life generally!

Name supplied but with-held (Ed)


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Bird of ParadiseMy hair started falling out the beginning of October last year, about two weeks after I’d started chemo. Standing at the mirror I would gently pull out handfuls of it, thinking how surreal this all was – as though it were happening to someone else in some weird science fiction story.

I remember a kind of sad tenderness, running my hands over my head and wondering when/how it was going to grow back. But I also remember looking myself in the eye, hunching my shoulders and hissing, “My Prrrecioussss!” – and having a good laugh. When I finally had my hairdresser shave off what was left, the exclamations at my ‘beautifully shaped head’ were a total surprise. It made me feel I actually wanted to celebrate the fact that I was still alive. The result was that, (i) I asked a friend to take some dress-up photos of me without hair and (ii) inspired by my crocheted beanie from the donation box at the Cancer Society, I decided to crochet one myself !

Three cool self-crocheted beanies, lots of pottery, a pending second edition of my first novel, Salomé, and nearly six months later, I know that celebrating and ‘keeping creative’ were the best things I could have done. The photos went straight onto my Facebook page and triggered an astounding response – resulting in my contact with Margo who does incredible body-art. The rest is history. Margo came one December afternoon and we had a ball doing me up for a film industry Christmas party (a gorgeous peacock, with sparkles and all!). And in February, when my treatments were finally finished, we celebrated with this stunning Phoenix.

Also, after a fairly long absence, I went back to Vincent’s Art Workshop in Wellington and began to ‘potter around’ again. It’s been incredibly healing and grounding, sitting at the wheel up to my elbows in clay, watching things take shape beneath my hands. My creativity – writing, pottery, crocheting, etc. – has been the saving grace in this difficult and challenging time. Sure, I still hit rough spots: days when I’d rather stay curled up in bed with a teddy bear; days when I think, ‘What’s the point?’ But the support of friends and family has been awesome, the Cancer Society and medical/hospital staff have been phenomenal. And I am still alive and kicking.

Jade Valor

Our ‘Salomé’ website:www.project-salome.com

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Body Art Gift

Margo - (aka Lulu), the wonderful creator of Jade’s stunning head designs, is a body artist, face painter, make-up artist and photographer.

She would love to inject a little bit of special fun to those going through cancer treatment in Wellington, and is offering an incredibly generous one-off free session to those who would like it.

Tap into your creative side and brighten your day with a ‘Lulu Creation’ - on your head, arm or face.

To contact Margo - ph. 0273070772 or email [email protected] or visit her website: www.lulusbodyart.co.nz

Ode to Enchanted LightUnder the trees lighthas dropped from the top of the sky,lightlike a greenlatticework of branches,shiningon every leaf,drifting down like cleanwhite sand.

A cicada sendsits sawing songhigh into the empty air.

The world isa glass overflowingwith water.

Pablo Neruda (translated by Ken Krabbenhoft)

Cancer Society Wellington is excited to be selling Entertainment™ Books and the new Entertainment™ Digital

Memberships in 2014!

Order your new 2014 | 2015 Wellington Entertainment™ Membership from Cancer Society and 20% of your Membership purchase goes towards our fundraising!

Visit www.entertainmentbook.co.nz/orderbooks/10425t1 to order your 2014 | 2015 Membership today.Visit https://www.entertainmentbook.co.nz/orderbooks/10425t1 to order your 2014/2015 membership today.

Advocating for Travel AssistanceThe Cancer Society has become increasingly concerned about the number of cases in which clients have been declined assistance from the Ministry of Health for the cost of travel and accommodation associated with their cancer treatment.

We would like to hear from any patient who has had their application for the National Travel and Accommodation Assistance declined by the Ministry of Health so we can add it to our growing record of complaints that National Office is compiling and assist in our advocacy. The Cancer Society is logging complaints until mid 2014.

Please contact our Cancer Information Nurses on 0800 CANCER (226 237) with the details of your application.


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Cancer Update 2014 - Focus on Brain Tumours

We are delighted to be able to be holding our 14th Cancer Society Cancer Update week where we focus on a specific cancer and offer a wide array of events to educate the public, Cancer Society volunteers and update health professionals. This year our focus is on Brain Tumours.

Our Keynote Speaker is Dr Elizabeth Hovey, who is a Senior Staff Specialist in Medical Oncology at the Prince of Wales Hospital in Sydney. Dr Hovey is particularly passionate about brain and prostate cancers, holds lead positions in a number of important glioma brain trials, has had numerous research articles published, and is the Deputy Chair of the Cooperative Trials Group of Australia.

An extremely engaging and vivacious presenter - she will be kept busy with four public lectures held throughout the Wellington Division. All those interested in brain tumour support and education are warmly invited.

Dates:Monday 12 May - Kapiti - Kapiti Community Centre, 12-1.30pm.Tuesday 13 May - Nelson - Nelson Suburban Club, 168 Tahunanui Drive, Nelson 6-7pmThursday 15 May - Masterton - Masterton Town Hall 64 Chapel St, 12-1.30pm

Thursday 15 May - Wellington - Old Government Buildings (Law School), Bunny St, 5.30pm-7pmPlease contact Cancer Society Wellington: phone - 04 389 8421, your local branch or email: [email protected] for any queries.

Out of NowhereI was visiting my daughter last night when I asked if I could borrow a newspaper.

‘Dad this is the 21st century,’ she said.‘We don’t waste money on newspapers. Here, use my iPad.’

I can tell you this...That fly never knew what hit him.

Online Brain Tumour Presentations A Brain Tumour Support and Education Forum is held annually at the Cancer Institute NSW in Sydney. The presentations are avaiilable online in video format and make very interesting viewing on many issues that those with brain tumours have to cope with.

Check them out: http://www.cancerinstitute.org.au/events/i/brain-tumour-support-and-education-forum-2012

Flu Vaccine TimeThe Flu vaccine is recommended for most people with cancer or cancer survivors and is free for people who are most at risk. Talk to your doctor about being protected with the flu vaccine.

Understanding Brain CancerCancer Council Australia has published a DVD

entitled: ‘Understanding Brain Cancer - We’re with you’. It offers information on all aspects of coping with brain cancer. Available from our library or online at: http://www.cancercouncil.com.au/50913/cancer-information/general-information-cancer-information/more-information-

resources/online-resources/understanding-brain-cancer-support-videos/


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Library Update with Julie Holt The Ultimate Guide to Ovarian Cancer by Dr Benedict B Benigno, Sherryben Publishing House, USA, 2013. Written by a gynaecological oncologist this book is a comprehensive and informative guide to ovarian cancer, interwoven with patient stories.

Be a Survivor: Lung Cancer Treatment Guide by Vladimir Lange, Revised Edition, Lange Productions, USA, 2012. A very helpful resource for people with lung cancer, explaining tests and treatments clearly with excellent illustrations.

QuickFACTS Lung Cancer, 2nd edition, American Cancer Society, USA, 2012. A brief but comprehensive guide to lung cancer, including treatments for the different types, as well as latest research.

Navigating Life with a Brain Tumour by Lynne P Taylor and Alyx B Porter Umphrey, Oxford University Press, USA, 2012. This book covers the basics of the brain, diagnosis of a brain tumour, treatment and symptom management. There is an excellent section for carers. Written by two neuro-oncologists

Emotional Support Through Breast Cancer by Cordelia Galgut, Radcliffe Publishing Ltd, UK, 2013. Written by a psychologist and breast cancer survivor, this book describes how normal it can be to feel angry or afraid when diagnosed with breast cancer, and has helpful ideas for dealing with these feelings.

Laughter, Tears and Braids: A father’s journey through losing his wife to cancer by Bruce Ham, PublishingUnleashed.com, USA, 2013. Bruce Ham describes life after the death of his wife from cancer aged 39, and his struggle to parent their three girls by himself. His poignant story is a unique blend of humour, honesty and courage.

Things I Wish I’d Known – Cancer caregivers speak out by Deborah J Cornwall, 2nd edition, Bardolf & Company, USA, 2013. The author describes caregiving as ‘playing many different roles including coach, sounding-board, mediator, information gatherer or a shoulder to cry on’. Her book acknowledges the uncertainty, worry and stress that caregivers face and guides them through the journey with encouragement from others who have had this experience.

Dreaming a Lighthouse. A creative partnership – a teenager, her doctor and cancer by Dr Hetty Rodenburg, Steele Roberts, NZ, 2010. Hetty Rodenburg is a former GP who now works in grief counselling and supporting people diagnosed with a life-threatening illness, as well as providing professional supervision for health-related practitioners. This is the story of a young woman named Wendy who she worked with for several years following her diagnosis of cancer aged 16.

Nourish: The Cancer Care Cookbook by Penny Brohn Cancer Care and Christine Bailey, Watkins Publishing Ltd, UK 2013. This book is divided into four chapters - Shakes, Juices, Smoothies & Breakfasts, Soups & Light Dishes, Main Meals, Desserts and Baked Treats. Described as a book which ‘enables the entire family to eat great, interesting, inspiring and healthy food’.

Chemo Cookery Club by Penny Ericson and Simon Furullo, John Blake Publishers, Canada, 2013. When Penny Ericson’s husband Simon Firullo was diagnosed with colon cancer she developed this collection of recipes to encourage his recovery from chemotherapy. With nutritional information from cancer research dieticians, this book describes delicious ways to prepare food and get practical help while going through treatment.


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Menopause and Cancer Menopause is the natural drop in women’s hormone levels (oestrogen and progesterone), signalling the end of the ovaries ability to produce eggs. This generally occurs between the ages of 45 and 55 – with the average age being 51 years). Early menopause occurs between the ages of 40 and 45 years.

Early menopause can be triggered as a result of treatments (surgery, radiotherapy, chemotherapy and hormonal treatment) for a number of cancers and can be a distressing time for many young women. Chemotherapy and hormonal therapies may cause temporary or permanent menopause, but are more likely to induce permanent menopause for those who begin their treatment after the age of 40 years. Surgery that removes the ovaries will cause permanent menopause, as does any direct radiation to the ovaries.

The drop in the female hormones of oestrogen and progesterone result in a number of immediate changes for a women. These include loss of fertility, loss of menstrual periods, hot flushes, mood changes, disrupted sleep, joint aches, bladder problems, dry vagina and lack of libido. These occur whether menopause is early or not, and can be very difficult for women to cope with.

In a recent publication in Menopause, the researchers found that the breast cancer survivors had hot flushes that were much more severe and frequent and lasted longer than the participants without cancer (http://www.menopause.org/docs/default-source/2013/cancer-survivor-menopause-symptoms-draft-mg-km-mg-pafinal.pdf).

Women shouldn’t feel that they ‘just need to put up’ with these side-effects. Now that hormone replacement therapy (HRT) is generally not recommended for most women with breast or ovarian cancer, many women feel that there is nothing that can be offered. However, it is important to discuss your situation with your doctor, as there are many different medications and lifestyle changes that can improve symptoms. Menopause clinics are also helpful in giving women support and information about how best to cope with their menopausal symptoms and ongoing health. Talking through your situation with a counsellor or Cancer Society nurse may also be helpful.

Sue Corkill

Nutrition and MenopauseMenopause is a time to eat fewer foods high in energy so as to lessen the risk of weight gain, and to concentrate on highly nutritious foods (vegetables, fruit, grains and nuts) and exercise .

However some foods may be especially useful as suggested from Jean Hailes - www.jeanhailes.org.auLinseeds (Flaxseeds): - two dessertspoons daily may improve vaginal dryness.

Sardines: a rich source of omega-3 fatty acids, protein and calcium - to help bone health.

Prunes: also rich in antioxidants and fibre and may also help maintain bone density.

Yoghurt: low fat cultures with live cultures help gut health and oestrogen metabolism.

Helpful ResourcesAustralian Menopause Society - www.menopause.org.au - has a number of very good information sheets on early menopause, vaginal atrophy, HRT and cancer.

Jean Hailes for Women’s Health - www.jeanhailes.org.au - also has a number of very useful information sheets on early menopause, nutrition and other issues to do with menopause.

Breast Cancer Network Australia - has two booklets: Menopause and Breast Cancer, and Hormone Therapy and Breast Cancer - which are very informative and easy to read - https://www.bcna.org.au/fact-sheets-and-booklets

Cancer Australia - Breast Cancer and early menopause: a guide for younger women - http://canceraustralia.gov.au/publications-and-resources/cancer-australia-publications/breast-cancer-and-early-menopause-guide-younger-women

Cancer Society Information Sheet - Early Menopause and Cancer - http://www.cancernz.org.nz/information/treatment-symptoms-side-effects/

NZ Early Menopause Support Group - http://www.earlymenopause.org.nz/

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Living with Cancer ‘I’m sorry you have a tumour - a large tumour’.

I still recall these words vividly after first being told in April 2011.

My life suddenly became filled with many medical appointments which I accepted. I thought I had to get on with it and recover as quickly as possible. My journey began with a course of chemotherapy to reduce the tumour, followed by surgery.

It was a very difficult time for my family and me. We were told that, although surgery went well, I would be living with cancer (as they couldn’t get it all), and I was advised to go out and live each day.

From that day, I decided with the help of my family not to dwell on what will be, but to get up each day and make the most of it (concentrating on and engaging in my family’s activities). Luckily for me, my friends and my six little grandchildrenare all positive people to have about. I enjoy the kindergarten, school and sports excursions that the latter are involved in. Birthday parties have become a big must, lots of cake and candles are now a family norm.

I also take the opportunities to see shows and visit places I haven’t already been to. South Australia, Abel Tasman National Park, Coastal Pacific Train trip, Golden Bay, Wicked, and ASB Tennis, and usually with some of my grandchildren. These have all been goals I have set and managed to do. Of course always at a cost......usually a couple of full days resting after.

It was during my first course of chemotherapy that I was introduced to the Cancer Society and what it has to offer. The support of Home help, meals, baking, and transport are all very much appreciated.

Personally the support of the Gynaecological Support Group is outstanding. I value hearing the speakers who attend the meetings and I find it is a great place to learn about and understand (issues to do with) my cancer. Also it is wonderful to discuss things in a group or just have a one-to-one talk with someone who knows what I am going through. I always arrive home feeling very positive after attending these groups.

My family, and in particular, my husband have benefitted from the wider support of the Cancer Society. Alastair (my husband) regularly attends the monthly Carers Support Group hosted by the Cancer Society. He comments: ‘When I was first asked to attend The Carers Support Group my thoughts were: I don’t need it. Now I look forward to the regular meetings. The co-ordinators have made me feel most welcome and I would recommend this group to others who are sharing this journey’.Living with Cancer is not easy, but with the wonderful friends and family who are constantly writing, phoning or visiting, offering their support and knowing that we are not alone helps a lot on this journey.

Iona Morice

Ovarian Cancer Detection

Women who are diagnosed with ovarian cancer report four types of symptoms most frequently:

• Abdominal or pelvic pain.• Increased abdominal size or persistent

abdominal bloating.• Needing to urinate often or urgently.• Feeling full after eating a small amount. If you have any of these symptoms, they are new for you and you have experienced them multiple times during a 4-week period, you should seek medical advice.

From Cancer Council Australia


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The GST Situation on Non-Funded Cancer DrugsIn 2008 I was diagnosed with breast cancer, at which time I had a mastectomy, followed by chemotherapy and radiation therapy. In 2012 I was diagnosed with secondary breast cancer which had spread to my lungs, liver and bones. This is inoperable and incurable and my only chance of survival is ongoing treatment with drugs that can slow the development of the cancer.

In July 2012 I was advised by my private oncologist, that I needed further chemotherapy treatment and Abraxane (Nab-Paclitaxel) was considered to be the best drug for me at this stage. As it was not a drug funded by PHARMAC (Pharmaceutical Management Agency of New Zealand) I had to be able to fund it myself, along with all the associated costs.

I had previously received Docetaxel and Paclitaxel which belong to the same family of drugs as Abraxane (Nab-Paclitaxel). Unfortunately, both of these drugs caused me to go into anaphylactic shock. The cause of the anaphylactic shock was not the drugs themselves but the carrier drug attached to them which was different for each drug. Abraxane (Nab-Paclitaxel) is less toxic than Docetaxel and Paclitaxel, has a different carrier from both, and takes less time to administer with fewer side-effects, but is not funded in NZ.

I feel a very unfair situation has arisen with the GST charges associated with the cost of Abraxane.

My husband and I feel very strongly that if the Government does not fund a medication, it should not gain financially by charging GST on it - especially from people who have absolutely no control over the situation they find themselves in through no fault of their own. We understand that PHARMAC can only fund so much, but it appears that if you fall into a minority category, and your medications are not funded, you are additionally penalised with the GST charge.

Although we are in the very fortunate position of being able to fund Abraxane, we feel that the GST portion charged on medication could mean the difference between being able to afford the medication or not for many others. We also believe that this should apply to all medications - not just cancer medication.

I have written to and received a reply from Hon Tony Ryall, Minister of Health, and Hon Todd McClay, Minister of Revenue, asking them to consider funding Abraxane and removing GST from all non- funded medications.

They have advised that funding for Abraxane would only be considered if the cost is the same or less than currently funded treatments. With regard to GST they believe that we have a fair system in New Zealand and, if exceptions were made to one area, they would have to consider requests for exemptions in other areas and this would create too complex a system to administer.

Larissa

The Cancer Society advocates for people affected by cancer, and their family/whānau, at both a local and national level.

We want to provide and see responsive, inclusive, equitable, effective, respectful and ethical service delivery for all New Zealanders.

If you have concerns about cancer treatment or cancer services access, please feel free to contact us.

NZ Testicular ResearchDr Jason Gurney is a research scientist in the Department of Public Health, Otago University, who has recently been awarded a top Māori and Pacific health research award from the Health Research Council (HRC) to further his research on testicular cancer. He comments:

‘Testicular cancer is the most common cancer among young men, and rates of this disease are increasing rapidly around the world. The causes of testicular cancer are still not well understood. According to recent research, New Zealand has the highest rates of this cancer in the world – and Māori men suffer the highest rates in New Zealand. This is completely at-odds with other countries, where it is white men who suffer by far the highest rates of testicular cancer. Our research is trying to understand what is driving these high rates among Māori – since by understanding the factors that are causing this ethnic difference, we may be able to better understand the factors that cause testicular cancer in general.’

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neuropathy would become permanent unless I did something about it. So to trigger an improvement I started doing short spells of weeding in the garden, attempting to pick up and move something fiddly, or simply attempting to write the letters of a word with a pen.

‘Goal Setting’I set myself a target of doing Challenge Wanaka again (a full distance ironman race) consisting of a long swim, bike and run; but essentially aspirational rather than terribly realistic. This obviously wasn’t going to happen overnight, but I felt that with a lot of gym-based sessions doing low-impact stuff, such as aqua jogging (low-impact exercise), brisk walking and short swims, my strength and fitness would slowly return. I worked with trainers to develop my personal training programme.

As my body adapted and the exercise became easier and sometimes even comfortable to perform, I was able to further improve (i.e. adjusting the fitness programme) and increase my exercise volume, duration and intensity. Thus, over time it was possible to get on a bike, re-establish some core strength and balance, and then increase the time on the bike to six hours at a time.

‘Get Inspired’I was holding onto the goal of doing Challenge Wanaka again during treatment, but it was only watching the video clip of Clayton Treska doing Hawaii Ironman that I dreamed it was going to be possible.

And that day came on Saturday 18 January 2014 - race day for Challenge Wanaka. I was doing the race with my wife, Nikki, who was doing the half ironman distance race - Lake Wanaka Half. It was a long day out on the course and I crossed the finish line at about 12.20am Sunday morning. That’s with 17 hours 33 minutes on the race clock - and it wasn’t pretty!

Completing the course at Challenge Wanaka marks a massive milestone for me in my recovery both physically, emotionally and mentally, and it’s another step forward to regaining the fitness I had before being diagnosed.

Jonathan Holmes

Photo shows Jonathan and his wife, Nikki, at Challenge Wanaka.

Embracing ChallengeSome of you may remember a previous article in CanTalk 60 Spring 2011 when Jonathan Holmes shared how the lessons he learned in preparing and participating in triathlons became valuable tools in his cancer recovery. Here he continues his story.

Life changed and my journey with cancer started in June 2010 with the diagnosis of testicular cancer (stage 2). I had surgery to remove the primary tumour, five months of chemo to start attacking the large tumour in my back, followed by a further six months of increasingly toxic chemo, two stem cell transplant operations, followed by two post-treatment surgeries of 12+ hours and 18 hours, respectively. The second of these set quite a record at the Wakefield Hospital and for my surgeon, Andrew Kennedy-Smith.

‘Grief, Anger, Acceptance, then Action’ This is a model that is used in Change Management and is a cycle that people go through when faced with change. I adapted to this model to fit my own personal circumstances. I’d allow myself time to feel fed-up or sad with what I was facing, followed by a period of anger. But, I knew on a logical level rather than emotional one, that I needed to get myself through these phases quickly to accept what was happening before I could take control and decide on what I was going to do about it.By the end of all this treatment, I was incredibly weak, had very poor balance, considerable peripheral neuropathy in my hands and legs with little ability to do day-to-day tasks without lots of help.

‘Use it or Loose it’I realized that I’d need to start with very gentle exercise and put together a plan of routine exercise (‘get a fitness programme’) to steadily build my fitness back step-by-step. I considered my


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CarcinogensThere are 50 known (Group 1) human carcinogens commonly present in New Zealand workplaces. The National Occupational Health and Safety Advisory Committee estimates that 237 to 425 people die each year from occupational cancer in New Zealand

The most common of these are: asbestos; benzene; chromium VI compounds; formaldehyde; involuntary smoking and occupational exposures to paint; silica; solar radiation; and wood dust.

The industries for which an increased cancer risk has been observed repeatedly in epidemiological studies and which have the highest number of potentially exposed workers include: agriculture, construction, health services, machinery and equipment manufacturing, and metal product manufacturing.

From Dr Andrea ‘t Mannetje’s presentation on ‘Carcinogens in the NZ Workplace: an overview’

Forum on Workplace Carcinogens

As the first event of its kind in the country the Forum on Carcinogens in the Workplace attracted a large audience and created a great deal of national media interest.

The Cancer Society of New Zealand (CSNZ) and Massey University Centre for Public Health Research organised the forum to raise awareness about the neglected area of management and monitoring of workplace carcinogens. Both organisations recognise that with the recent shake-up of New Zealand’s health and safety workplace practices as a result of the Pike River mining disaster, the time is right to work together to get the issue firmly on the Government’s agenda.

The Forum’s programme reflected the obvious carcinogens coming to the fore with the Christchurch rebuild, such as asbestos, wood dust, silica dust and the sun’s ultraviolet radiation. Reducing exposure to these carcinogens at their source makes sense, both at an economic and individual level.

Academics were joined by several front-line doctors to share their stories about skin damage and asbestos, complemented by two international speakers. The first was the keynote speaker, Dr Aaron Blair from the United States National Cancer Institute and Terry Slevin, Chair of Cancer Council Australia’s Occupational and Environmental Cancer Committee. Aaron talked from a global perspective and Terry focused on current Australian issues including asbestos management.

The forum brought together a range of policy makers, academics, union and business leaders, and occupational health professionals. This is the beginning of a conversation which ultimately should result in a reduction in untimely death and injury in our workplaces from unnecessary exposure to workplace carcinogens.

We continue to rely on a 2004 estimate that between 237 to 425 people die from exposure to workplace carcinogens.

Barbara Hegan & Lynne St.Clair-Chapman National Office

Carcinogen ClassificationThe International Agency for Research on Cancer (IARC) is part of the World Health Organisation (WHO). Its major goal is to identify causes of cancer. The most widely used system for classifying carcinogens comes from the IARC.

In the past 30 years, the IARC has evaluated the cancer-causing potential of more than 900 likely candidates, placing them into one of the following groups:

• Group 1: Carcinogenic to humans (there are only about 100 carcinogens in this group)

• Group 2A: Probably carcinogenic to humans• Group 2B: Possibly carcinogenic to humans• Group 3: Unclassifiable as to carcinogenicity

in humans• Group 4: Probably not carcinogenic to

humans

Presentation Links for the CSNZ/CPHR Forum on Carcinogens in the Workplace can be found at: http://publichealth.massey.ac.nz/home/events/symposia-conferences/workplace-carcinogens-forum/showPresentations

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Solar RadiationSun exposure is a workplace carcinogen.

Employees who work outdoors for all or part of the day are at an increased risk of skin cancer. This is because solar ultraviolet radiation or UVR is a known carcinogen (something that causes cancer).

New Zealand is a challenging environment for sun protection because even on cool or cloudy days, the UVR levels are strong enough to damage the skin and/or eyes.

Who is at risk?

• Every outdoor worker - but especially those with fair skin, and those who do not practice sun protection (about 15% percent of our workforce work outdoors).

• Potentially every indoor worker depending on their behaviour as intermittent sun exposure also increases risk.

• Risk is not just during our working life - it increases as we age - so the elderly also need protection.

The Health and Safety Reform Bill proposes a new health and safety at work regime in New Zealand. It is intended to replace the Health and Safety in Employment Act 1992 and the Machinery Act 1950. The new regime is based on the Australian Model Work Health and Safety Act, although it contains New Zealand specific modifications. As solar UVR is a Group 1 carcinogen, outdoor workers should be protected from this hazard. Read more about the reform at:http://www.mbie.govt.nz/what-we-do/workplace-health-and-safety-reform

The Cancer Society of New Zealand (CSNZ) recommends workplaces adopt a sun protection programme. This would include an assessment of exposure to solar UVR and the use of sun protection control measures including wearing personal protective equipment such as broad brimmed hats, close fitting sunglasses, collared long-sleeved shirts and longer shorts (ideally full-length work pants).

Other control measures include increasing the amount of shade provided, taking scheduled breaks in the shade, rescheduling work to avoid peak UVR times, rotation of work patterns to reduce the time a person may be in the sun and sun safety training to explain why it makes sense to protect skin.

Cancer Society Health Promotion staff are happy to work with organisations to assist them in protecting their staff from UVR. Resources offered include our sample workplace sun protection policy - http://www.cancernz.org.nz/assets/files/info/SunSmart/Outdoorworker-Policyform_30April2012.pdf

Skin CancersCommon types of skin cancer are split into two broad groups - melanoma and non-melanoma skin cancers (NMSC).

• Melanoma is the most serious of all the skin cancers. It is rare under the age of 14 years but dramatically increases in the 50s onwards. It can be caused by intermittent sun exposure and can be found on any area of the body - even those areas that are protected.

• Basal Cell Carcinoma (BCC), a NMSC, is due to intermittent sun exposure and is commonly found on sun-exposed places such as the head, neck and trunk. It is commonly found in those under 35 years of age but increases dramatically after 35 years.

• Squamous Cell Carcinoma (SCC), another NMSC, is a result of chronic sun exposure. It is uncommon under the age of 40, but increases dramatically in the 50s onwards. It is found on sun-exposed sites. Chronic sun exposure can also cause ‘sun spots’ - (solar keratosis or actinic keratosis). Both of these are considered pre-cancerous and have the potential to become cancers.

See your doctor if you notice any spot, freckle or mole changing in size, shape, colour, height or texture.


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Wood Dust

Wood dust is a Group 1 human carcinogen.

Those in occupations that expose them to wood dust, and in particular, sawmillers, wood panel and related wood-processing plant operators, carpenters and joiners, have been shown to have a significant risk of lung cancer and nasopharyngeal cancer as a result of wood dust affecting their sinuses and nasal cavaties. Two New Zealand studies support this.

Soft wood contains chemicals such as anti-sap resins, moulds and fungi, resins and fine particles, but the research currently suggests that certain species of hard wood may be the main culprits - i.e. oak, beech, mahogany, teak and walnut. However, some workers are exposed to both soft and hard wood dust.

One study, ‘Exposures to hazardous airborne substances in the wood conversion industry’ by K Cheung, D McLean, N Pearce, J Douwes (2010), was principally funded by ACC, and showed that the majority of New Zealand joinery and furniture workers (87% and 63% respectively) are exposed to inhalable wood dust levels in excess of international standards of 1 mg/m3. This research showed that good work practice and education is not enough, and employers need to protect their workers with better conditions. A study investigating better workplace strategies for handling wood dust is currently ongoing.

Further reading:

Workplace exposure to carcinogens in New Zealand http://publichealth.massey.ac.nz/home/research/research-projects/workplace-exposure-to-carcinogens-in-new-zealand/Report on Carcinogens, Twelfth Edition (2011) - http://ntp.niehs.nih.gov/ntp/roc/twelfth/profiles/WoodDust.pdf

Managing exposure to wood dustAs with any type of hazard, you can apply the ‘eliminate, isolate, minimise’ rule:

• Eliminate the hazard. Ask yourself if you really need to do the dust-creating job, i.e. would a rough finish be just as acceptable as a smooth one?

• Isolate the hazard. Use an extraction fan in your work area, or a dust-collecting device on the equipment you’re using. Make sure that any dust-collecting device you use is working properly.

• Minimise the effect of the hazard. Use protective gear such as a respirator.

From: http://www.acc.co.nz/about-acc/media-centre/media-releases-and-articles/articles/MDC_00024

What to Look For The symptoms below may indicate lung cancer but can also be caused by other conditions. If you have any of these however, you should be checked by a doctor.• a cough that doesn’t go away or change to a• chronic cough• repeated chest infections• shortness of breath• noisy breathing• pain in the chest area• coughing up blood.

The symptoms for nasal and sinus cancers are quite varied. They include:• Blockages causing stuffiness in one side of

your nose that will not go away• Nosebleeds• Decreased sense of smell• Mucus coming from the nose or draining into

the back of your nose and throat• Problems with one of your eyes, e.g. bulging,

vision problems• A lump or growth anywhere on the face, nose

or roof of the mouth that does not go away• Pain or numbness in parts of your face• Loose teeth or difficulty opening your mouth

See a doctor if you have any of these symptoms. Don’t ignore them.

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SilicaSilica is a component of soil, sand, granite and other minerals but is commonly found as quartz.

When chipped, cut, drilled or ground silica can be inhaled. These tiny particles of silica contain free radicals which can cause a number of lung conditions - including silicosis, chronic obstructive respiratory disease (CORD) and lung cancer.

High-risk occupations include abrasive blasting, foundary work, stonecutting, rock drilling, quarry work and tunnelling. Those in the construction business are also vulnerable in rebuilding and demolition whenever they are crushing, drilling, cutting, hammering or grinding any silica-containing matter such as concrete, tiles, rock or masonry.

The American Cancer Society states that: ‘The most effective measures for the control of occupational silica exposures include banning sandblasting, substituting metal grits for abrasive blasting, modifying processes and equipment, and controlling dust transmission by using enclosures, air curtains, water spray, and ventilation techniques, and the use of personal protective equipment.’

In her presentation at the recent CSNZ funded Forum on Workplace Carcinogens, Dr Andrea ’t Mannetje, a scientist, Centre for Public Health Research at Massey University (CPHR), found that awareness of the presence of silica and its risks in New Zealand were low, and the current exposure standards are based on very old data. Although the emerging data is giving a much better picture of the risks involved with silica exposure - more data is needed.

AsbestosAsbestos is the name for a group of naturally-occurring minerals made up of many small fibres. It was a popular building material because of its exceptional insulating, fire-resistant and reinforcing properties, but because of its health risks, import and use of it stopped in NZ in the 1980s.

The tiny sharp fibres of asbestos are invisible to the eye, but if inhaled or ingested they can cause serious lung problems and a number of cancers - including lung cancer, mesothelioma (cancer of the pleural lining of the lung), ovarian, bladder, bowel and oesphageal cancers. Any disturbance of friable or loose asbestos fibres can cause them to become airborne.

Exposure does not automatically mean these diseases will occur - the level of risk depends on the number and size of the fibres breathed in. Unfortunately though, once lodged, the fibres cannot be removed and many people do not know they have a serious disease until years after the intial exposure.

Many old buildings contain asbestos. Left undisturbed, asbestos is safe – but if the asbestos is exposed or damaged, it can be harmful.

All About Asbestos and Removing Asbestos from the Home are two booklets available from the Ministry of Health - http://www.health.govt.nz/your-health/healthy-living/environmental-health/hazardous-substances/asbestosWorksafe NZ Guidance for Asbestos: http://www.business.govt.nz/worksafe/information-guidance/all-guidance-items/new-zealand-guidelines-for-the-management-and-removal-of-asbestos-3rd-edition

Presentation Links for the CSNZ/CPHR Forum on Carcinogens in the Workplace on, solar UVR, wood dust, asbestos, and silica can be found at: http://publichealth.massey.ac.nz/home/events/symposia-conferences/workplace-carcinogens-forum/showPresentations

Handle Asbestos SafelyIf you have asbestos in your home, talk to a health protection officer about what to do. You can find one at your local public health unit. It may be best to leave the asbestos undisturbed, to seal or enclose it.


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Support Groups

The Cancer Society runs a variety of monthly support groups which are held in different parts of the Wellington area.

Some groups will be for only for those who have been diagnosed with a cancer and some welcome family and whānau as well.

Please email Margaret Alve: [email protected] or Virginia Lee: [email protected] or phone 04 389 8421 to enquire if there is a group which will suit you.

Our Centres

All our centres offer programmes and support groups. Don’t miss out!

Contact them for their local newsletter and information about current events.

Wairarapa

Contact: Cancer Society Wairarapa Fiona Flis - 06 378 8039 Email: [email protected].

Blenheim / Marlborough

Contact Cancer Society Marlborough Margot Wilson - 03 579 4379 Email: [email protected]

Nelson

Contact Cancer Society Nelson Linda Lucre or Sue: 03 539 3662

Email: [email protected]

Newsletter available at: http://www.cancernz.org.nz/divisions/nelson-centre/about/

Other Supportive Services Offered

Look Good ....Feel Better

Learn through hands-on experience techniques to restore your appearance and self-image during cancer treatment. A free programme.

Massage with Bobbie-Joe Wilson

Subsidised massages offered on Tuesdays to relax, soothe and help both mind and body (Wellington).

Silky Pillows

Made by volunteers to provide comfort and support.

Lymphoedema information

Lymphoedema awareness and management classes offered regularly. Written information freely available.

Contact us at the Cancer Society - 04 389 8421 or email [email protected] for further information.

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After Cancer Treatment: CanNow – Moving Forward

Finishing treatment is often viewed with a huge sense of relief and you can’t wait for life to get back to normal. For many people it isn’t that simple – there are many adjustments to be made and it may be hard to know how to resume your usual life. It can feel scary coping on your own without the regular hospital contact you had during treatment.

If this is your situation, the information nurses at the Cancer Society invite you to a one-to-one appointment at the CanNow Clinic. At this appointment we can help you reflect on what you have been through and look at ways to promote well-being after treatment.

We initially offered this clinic to women after breast cancer treatment, and are now able to extend this to people after treatment for any cancer.

To discuss your concerns, regain direction and energy after cancer, contact the nurses about the CanNow Clinic, ph 04 389 8421 or [email protected]

Apology We apologise to Fiona Flis, who is the new Support and Volunteer Coordinator, Wairarapa.

We inadvertently misspelt her name and gave her an incorrect title in the last issue.

Leaving a bequest – easy and fulfilling

‘The high incidence of cancer does make people stop and think’. I had three friends who had cancer - one was a very good friend of mine. I spent a lot of time visiting in hospital and thought I’d better do something about it. My friend had terrific support from the Cancer Society - they went to her house and took her to appointments. I saw her benefit from what the Cancer Society does. I found it easy – I set up my bequest when I tidied up my Will. I think people should seriously think about making a bequest. It doesn’t have to be a massive donation. If they’ve got a favourite charity, then that’s who they could give it to. To find out more about making a bequest to us, please contact Judith Langridge on [email protected] 04 389 8421 http://www.cancernz.org.nz/help-us/your-good-will-will-make-a-difference-bequests/ Lymphoedema

Support GroupA new support group for anyone with primary or secondary lymphoedema has just begun.

The group meets on the 3rd Tuesday of each month 7.00pm-8.30pm in Johnsonville.

There will be a small charge (negotiable) to cover the cost of the room hire. The aim of the group is to share information and experiences, encourage and enjoy each other, and gain knowledge through the occasional speaker.

To enrol: Contact Di Graham 04 934 3083 or email: [email protected]

Di Graham, is a registered nurse, lymphoedema nurse therapist and Healthy-Steps Instructor

What am I entitled to?This informative session is offered as an individual appointment. The 50-minute session will cover your questions around entitlements and how to access and navigate health and social services.

To enrol: Contact Virginia Lee 04 389 0084 or email: [email protected]

Virginia has over 20 years’ health social work experience and works for the Cancer Society in Newtown


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In order to support those with cancer, the Cancer Society runs classes and courses for anyone currently in treatment, or for those who have received treatment. Any whānau/families affected by cancer are also welcome. Our courses are held in Kapiti, Porirua, Hutt Valley and Newtown.

Most sessions are FREE but occasionally costs apply. Koha or donations appreciated.

You need to book for all programmes you wish to attend. Each workshop has a minimum and maximum limit. Please contact Virginia Lee on 04 389 0084 or email: [email protected] for any booking.

CanSupport Programme: What’s on May, June & July 2014

Drop-in Tuesdays - before, during or after treatment with Cancer Society staff

• In Wellington:Date: Each Tuesday Time: 11.30am-1pm Venue: Cancer Society, 52 Riddiford St, Newtown

and

Monthly Drop-in Tuesdays- before, during or after treatment• In Kapiti: Date: First Tuesday of each month Time: 11.30am-1pm Venue: Meeting Room 2, Kapiti Health Centre, Te Tari Hauora, Warrimoo Street, Paraparaumu

• In Lower Hutt:Date: Third Tuesday of each month Time: 11.30am-1pm Venue: Small meeting room, Dowse Art Gallery, Laings Road, Lower Hutt

The weekly drop-in sessions offer informative talks giving you the chance to learn how to manage the challenges of treatment and the after-treatment period. Topics such as relaxation, better sleep, improving communication, tips for getting through treatment and beyond, as well as practical matters will be discussed.

Wellington sessions (only,) begin with ½ hour of gentle yoga or breathing exercises which can be done sitting on a chair or the floor - just wear comfortable clothing. To enrol: Contact Virginia Lee 04 389 0084 or email: [email protected] or just turn up!

In Porirua - Cancer Focus Talk: ‘What is Cancer?’ - understanding cancer in plain language with Dr Patries Herst

Date: Thursday 12 June, 2014Time: 6.30-8.30pm Venue: Helen Smith Room, Pataka Museum, Norrie St, Porirua.To enrol: Contact Virginia Lee 04 389 0084 or email: [email protected]

This 2-hour information session will tell how cancer and cancer treatment works in plain language. The talk is open to anyone who wants to know more about cancer. It is an interactive talk, and your questions are very welcome.

In Wellington: Workshop for those with gynaecological cancer - with a panel of health professionals

Date: Saturday 24 May 2014Time: 12.30pm-4.00pmVenue: Cancer Society, 52 Riddiford St, Newtown, WellingtonTo enrol: Contact Virginia Lee 04 389 0084 or [email protected]

This workshop is for any woman with any gynaecological cancer who wants to find out more about cancer, treatment and after treatment. A light lunch will be provided followed by speakers on a range of gynaecology cancer-related topics.

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Healthy-Steps:

- weekly excercise classes in 3 regions

Date: Weekly on Mondays with Naena Time: 6pm-7pm, Venue: Cancer Society, 52 Riddiford St, NEWTOWN

Date: Weekly on Thursdays (during school term time) with Kathy Time: 10.00-11.30amVenue: DanzPort Studio, UPPER HUTT

Date: Weekly on Saturdays (during school term time) with Di Time: 9.15am - 10.15am,

Venue: St John’s Church Hall, JOHNSONVILLE Healthy Steps is a therapeutic exercise and movement class designed to stimulate your lymphatic system and boost your energy. Highly recommended during and following any cancer treatment. Family also welcome. There is a charge of $5 per class.To enrol or enquire about any class: Contact Virginia Lee 04 389 0084 or email: [email protected]

In Kapiti: Lymphoedema Education and Management with Marion Sherley Date: Tuesday 1 July, 2014 Time: 6.30pm-8.00pm Venue: Kapiti Health Centre, Warrimoo St, ParaparumuTo enrol: Contact Virginia Lee 04 389 0084 or email: [email protected].

This 1½ hour information session is offered to those whose cancer or cancer treatments have affected the lymph nodes (sometimes called glands). Those living with, or at risk of lymphoedema, are welcome, along with any whānau/family.

Marion Sherley is a registered nurse and is a lymphoedema therapist.

Living Well CoursesLiving Well is a free course designed to help you with any issues or questions about cancer. Living Well offers education and practical strategies for managing cancer, treatment and its aftermath. It is suitable for those with a primary cancer diagnosis to attend. We suggest the best time is towards the end of treatment or any time after it has finished. We encourage those with any type of cancer, along with their family, partners, whānau or supporters to book into a course. Bookings are essential. The courses are held in Kapiti, Porirua, Hutt Valley and Wellington.

Kia ora e te iwi (Living Well by Māori for Māori) is run in conjunction with Māori health providers.

In Wellington: Living Well for those with blood cancers

with Justin Gulliver, social worker, and Claire Laurenson

Date: Beginning Wednesday 7 May 2014 for 6 weeks. (Last class Wednesday 11 June)Time: 10am-12noon Venue: Wellington Blood and Cancer Centre, Wellington Hospital - room to be advised.To enrol: Contact Virginia Lee or Justin Gulliver, Social Worker at Wellington Blood and Cancer Centre

In Wellington: Living Well for those with cancer of the mouth, nose or throat with Virginia Lee and Hazel NeserDate: Beginning Monday 9 June 2014 for 4 weeks. (Last class Monday 30 June 2014)Time: 6.00pm-8.00pm - a suitable meal will be provided Venue: Cancer Society, 52 Riddiford St, Newtown.

To enrol: Contact Virginia Lee 04 389 0084 or email: [email protected]


24

CANCER SOCIETY OF NEW ZEALAND Te Kāhui Matepukupuku o Aotearoa

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Send to Cancer Society – Wellington, PO Box 7125, Wellington 6242; Visit 52 Riddiford Street, Newtown, Wellington 6021;

phone 04 389 8421 or email Sue Corkill – [email protected] or go to: http://cancernz.org.nz/divisions/wellington/about/

Newsletters with local content are available in Nelson, Wairarapa and BlenheimPlease contact your local Cancer Society office or email: [email protected]

Nelson: 03 539 3662Blenheim: 03 579 4379Wairarapa: 06 378 8039

For Cancer Information and Support phone 0800 CANCER (226 237)or go to: www.cancernz.org.nz

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0800 CANCER (226 237)

Cancer Information Helpline

The Cancer Society’s free support services can help you or someone you care about

• understand cancer• talk with others• understand treatment• find support

Wellington (04) 389 8421

Kapiti (04) 298 8514

Nelson (03) 539 3662

Marlborough (03) 579 4379

Wairarapa (06) 378 8039

Visit the Wellington Division at 52 Riddiford St, Newtown Wellington 6021

Email: [email protected] www.cancernz.org.nz

cantalk 70 autumn 2014 online wellington · cancer society of new zealand te kāhui matepukupuku o...

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