Cancer Outcomes and Services Dataset

Linda WintersgillInformation & Audit Manager, NECN

– The new national cancer dataset– Cancer Outcomes and Services– Aligned with patient management– Proposed and supported by clinicians– Incorporates previous cancer registration dataset– Updated and aligned with other datasets – Clarified definitions of data items, codes and

values– Specifies Provider submissions– Compiled by registries from Providers and other

sources

What is COSD?

Cancer Outcomes and Services Dataset

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CORE - CANCER REGISTRATIONDemographics/Referral/Diagnostics/Diagnosis/Care Plan/Treatment

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CANCER WAITS

Site specific Clinical and Path

Patient pathway referral to treatment

• Complete patient pathway– Referral details for all cases, all treatments, Includes palliative

and supportive care• Additional core data items including

– Involvement of Clinical Nurse Specialist, Duration of symptoms (Mandatory for Children,Teenagers,Young Adults (CTYA), Optional for others)

• All registerable conditions– including in situ bladder, in situ melanoma, benign brain

tumours• Site specific data

– Key site specific clinical items – patient management, site specific stage , stage components of RCPath datasets

• Includes recurrences – Breast cancers to start with

What is different about COSD?

• Site specific data – Key site specific clinical items – patient

management– Site specific stage– Stage components of RCPath datasets

• Includes recurrences – Breast cancers to start with

What’s different about COSD? (2)

– Monthly submission • Current cancer registry feeds expanded to include COSD items• 25 working days after diagnosis or treatment• Send updates as applicable

– Aim for three months to complete initial record (to first treatment)– Final updates to first treatment within 6 months – Further treatments - submit 25 working days after treatment

– How to collect in “real time” ?– Clinical ownership/sign off for

• MDT extract• PAS extract• Path extract• RIS extract

What does this mean for Trusts?

• MDT Systems• Pathology Systems• Radiology Systems• PAS/HIS Systems

• Work ongoing with Trusts on Gap Analysis

Key sources

• Many site specific items are in the National Audit • Site Specific coding is required for the first phase of

implementation – how complete is this likely to be for Head & Neck Patients (does audit dataset help)?

• Dataset will be circulated for consideration - looking for volunteers to take forward

• NECN Minimum Dataset Policy developed to clearly outline responsibilities for collection of mandated datasets

• NSSGs to be asked to incorporate specific staging or coding protocols detailed in the dataset into clinical guidelines to ensure a consistent approach across the network

What does this mean for this group?

Thank You