bereavement care subgroup (presentation from acute hospital network, march 2015) [ahn35]
TRANSCRIPT
BEREAVEMENT CARE SUB-GROUP
(NATIONAL IMPLEMENTATION GROUP
HSE/HIQA MATERNITY SERVICES INVESTIGATIONS)
HSE National Incident Management Team
(NIMT) 50278 (2013)
“ensure that the psychological impact of inevitable
miscarriage is appropriately considered and that a member of
staff is available to offer immediate support and information
at diagnosis. Members of staff should also advise of the
availability of counselling services for women and partners at
diagnosis. Care given, including counselling and support,
should be documented. The availability of counselling
services for women, partners and families who have
suffered any incident or bereavement in childbirth should
be reviewed, considered and developed as appropriate at
each maternity site”.
set up February 2014 to develop guidelines for bereavement
care in maternity hospitals/units
multidisciplinary sub-group with national representation
Leader Ciarán Browne (National Lead Acute Hospitals)
Project Manager Anne Bergin
Bereavement Care Sub-group
Surname First Name Professional Role Place of Employment
Bergin Anne Project Manager Health Service Executive
Browne Ciarán National Lead Acute Hospital Services Health Service Executive
Byrnes Helen CNM University Hospital Galway
Bolger June National Lead for Service User Involvement, Patient Advocacy Unit Health Service Executive
Coughlan Barbara Psychologist and Midwifery Lecturer University College Dublin
Fenton Joanne Perinatal Psychiatrist Coombe Women and Infants University Hospital
Hunt Marie Bereavement Counselling Clinical Midwife Manager University Maternity Hospital Limerick
Keegan Orla Head of Education, Research and Bereavement Services Irish Hospice Foundation
Kennelly Máiread Fetal Medicine Specialist Coombe Women and Infants University Hospital
McKeown Anne Bereavement Liaison Officer University Hospital Galway
Moran Mary Ultrasound Lecturer University College Dublin
Mulligan Fiona Bereavement Support Midwife Our Lady of Lourdes Hospital, Drogheda
Mulvihill Aileen Senior Social Worker Palliative Care Longford / Westmeath
Nuzum Daniel Chaplain Cork University Maternity Hospital
O’Donoghue Keelin Consultant and Senior Lecturer, Obstetrics & Gynaecology Cork University Maternity Hospital
O’Sullivan Grace National Development Coordinator, Acute Hospitals. Hospice Friendly
Hospitals Programme Irish Hospice Foundation
Rock Sara CNM2 Neonatology National Maternity Hospital, Holles Street
Rooney-Ferris Laura Information and Library Manager Irish Hospice Foundation
Shine Bríd Clinical Midwife Specialist, Bereavement & Perinatal Mental Health Coombe Women and Infants University Hospital
White Martin Consultant Neonatologist Coombe Women and Infants University Hospital & Our Lady’s
Children’s Hospital, Crumlin
Woods Kathryn Midwife Midland Regional Hospital Mullingar
Bereavement Sub-group Members
examine current bereavement services in maternity hospitals /
units
explore the needs of bereaved spouses/partners following a
maternal death
develop a national guideline for bereavement care following a
maternal death
develop standards for bereavement care following
pregnancy loss and perinatal death
Tasks
1. Bereavement Care
Bereavement care is central to the mission of the
hospital and is offered in accordance with the religious,
ethnic, social and cultural values of the parents who
have experienced a pregnancy or perinatal loss.
2. The Hospital
The hospital has systems in place to ensure that
bereavement care and end-of-life care for babies
is central to the mission of the hospital and is
organised around the needs of babies and their
families.
3. The Baby and Parents
Each baby receives high quality end-of-life care that is
appropriate to his/her needs and to the wishes of
his/her parents.
4. The Staff
All hospital staff have access to education and
training opportunities in the delivery of
compassionate bereavement and end-of-life care
in accordance with their roles and responsibilities
The 4 Standards
All hospital staff are trained to sensitively communicate bad news to parents in a quiet and private environment and with special consideration of individual needs and preparedness for the emotional and physical management of their diagnosis
Standard 1: Bereavement Care
Staff are responsible for:
• providing bereavement care at time of diagnosis
• discussing treatment options
• assisting parents to prepare for the birth
• sensitively following the parents preferences for the birth
• providing holistic post natal care
• offering preparation for discharge from hospital
• providing follow-up bereavement Care after Discharge
Standard 1: Bereavement Care
The hospital has systems in place to ensure that bereavement care and end-of-life care for babies is central to the mission of the hospital and is organized around the needs of babies and their families.
Standard 2: The Hospital
a culture of compassionate bereavement care
good governance policies, clear guidelines and care pathways for staff to follow
effective communication with parents
maintain transparent healthcare records
a safe hospice-hospital friendly environment
continuous monitoring and evaluating of bereavement care
for all of baby’s end-of-life care needs
for the allocation of clinical responsibility and multidisciplinary working
pain and symptom management in accordance with the baby’s needs
clinical ethics support
best practice when caring for the deceased baby
post-mortem examination in accordance with HSE and RCPI guidelines
anticipatory and follow-up bereavement care
Standard 2: The Hospital The Hospital is committed to provide
Each baby receives high quality end-of-life care that is appropriate to his/her needs and to the wishes of his/her parents.
Standard 3: The Baby and Parents
provide clear and accurate information
explore parental preferences
pay due attention to pain and symptom management
provide holistic care to the dying baby
accommodate discharge home/out of hospital
in the event of a sudden decline in the baby’s health staff communicate sensitively with the family about the sudden or unexpected decline in their baby’s health leading to death
Standard 3: The Baby and Parents When communicating a diagnosis of a need for end-of-life care staff
All hospital staff have access to education and training opportunities in the delivery of compassionate bereavement and end-of-life care in accordance with their roles and responsibilities. Staff are supported through training and development to ensure they are competent and compassionate in carrying out their roles in bereavement care.
Standards 4: The Staff
Hospital Management commits to:
cultivating a culture of compassionate bereavement care among all staff
providing staff induction in bereavement care at commencement of employment
providing for staff education and development needs
introducing staff education and training programmes
providing staff support in a timely fashion
Standards 4: The Staff
Where are we now?
Launch of Draft Standards for Public consultation
Consultation process / Circulation of Standards
Forums (Voluntary Support Groups, Sligo, Cork,
Dublin, Mullingar, Limerick and Galway)
Web feedback
Feedback analysis
Finalising of the standards
Bereavement Care Standards following
Pregnancy Loss and Perinatal Death
1. Implementation Strategy
2. Research in to the impact of maternal death on partners
3. National Guideline for Bereavement Care Following
Maternal Death within a Hospital Setting
On-going Activities
Thank you for your time
Anne Bergin Project Manager, Bereavement Care Sub-group