PROJECT LEADERSHIP: CHAPTER1

PROJECT LEADERSHIP: CHAPTER1 Knowing the Past to Change the

Future: History and Purpose of Advocacy

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PURPOSE

To learn about:

Key legislation and policies

The Disability Rights Movement

What advocacy means

Current issues

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WHAT DO WE LEARN FROM HISTORY?

We gain an understanding of the history of disability and how that

history affects people’s lives today.

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WHAT DO WE LEARN FROM HISTORY?

Individuals and groups of individuals have the power to change systems and attitudes.

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KEY LEGISLATION AND POLICIES

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THE DISABILITY RIGHTS MOVEMENT

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HOW CHANGE HAPPENS

“Power concedes nothing without a demand. It never did and it never will.”

-Frederick Douglas

Public Policy Advocacy:: A Grassroots Guide, The Statewide Parent Advocacy Network, span@spannj.org

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THE DISABILITY RIGHTS MOVEMENT AIMS TO:

Improve the quality of life of individuals with disabilities through increased civil and legal rights.

Decrease the pathologized view of disability, replacing it with the view that disabled individuals comprise a cultural or social minority group.

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SOCIAL PREJUDICES HAVE:

Excluded children with disabilities from public schools.

Confined people in state institutions and nursing homes.

Sanctioned discrimination in housing employment and public accommodations.

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DISABILITY RIGHTS MOVEMENT

1960s

Civil Rights Movement Women’s Rights Movement

1970s

Independent Living Movement

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BLANK SLIDE (HIDDEN)

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INDEPENDENT LIVING MOVEMENT ACHIEVED:

Choice to live in the community

Personal service assistance

Removal of barriers to full participation

http://www.pbs.org/independentlens/lives-worth-living/

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HIGHLIGHTS OF THE DISABILITY RIGHTS MOVEMENT

Jeopardy

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3 KEY PIECES OF LEGISLATION

Rehabilitation Act of 1973

Education for All Handicapped Children of 1975

Americans with Disabilities Act of 1990

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LANTERMAN ACT 1969

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Rights for individuals with developmental disabilities and their families to access the supports and services they need to live like people who are without disabilities.

FAMILY VOICES – ROLE OF PARENTS

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Bringing our children home Helping other families Improving hospital policies Advocating for inclusive education Involving fathers Seeking cultural competence Conducting research Assuring family-centered care Improving state and federal policies Encouraging youth to speak out Partnering with government agencies Training leaders

http://www.familyvoices.org/about?id=0002

MORE ON DISABILITY RIGHTS http://isc.temple.edu/neighbor/ds/disabilityrightstimelin

e.htmA timeline

http://www.pbs.org/independentlens/lives-worth-living/disability-rights-timeline.htmlA PBS interactive timeline

http://americanhistory.si.edu/disabilityrights/welcome.htmlSmithsonian Exhibition

http://bancroft.berkeley.edu/collections/drilm/History of Disability Rights and Independent Living Movement

What Does It Mean To

Advocate?24

PUBLIC POLICY ADVOCACY FOR SOCIAL CHANGE

“Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has.”

Margaret MeadPublic Policy Advocacy:: A Grassroots Guide, The Statewide Parent

Advocacy Network, span@spannj.org

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HAVE YOU EVER: Gone to bat when there was a problem at school?

Helped a relative or neighbor get care when they were sick?

Asked friends to support a favorite project?

Then you have been an ADVOCATE!

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WHAT IS ADVOCACY?

Advocacy is speaking, writing, or acting in

support of a cause. It is something

most of us do routinely on behalf of ourselves, our families,

our neighbors, and our friends.

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ISSUE-BASED ADVOCACY Citizens advocate every day to remedy social

problems pertaining to:GenderThe EnvironmentHealth CareRaceDisability

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TYPES OF ADVOCACY

Self AdvocacyPeer AdvocacyPublic Policy AdvocacySocial Justice AdvocacyInterest-Group AdvocacyBureaucratic Advocacy

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SERVICE VS. ADVOCACY

Identifying the difference

Public Policy Advocacy: A Grassroots Guide, The Statewide Parent Advocacy Network,

span@spannj.org

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ADVOCACY

Change tactics over time

Go up the “Chain of Command”

Demand change

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LEVELS OF ADVOCACY LEADERSHIP: WORKING YOUR WAY UP

Public Policy Advocacy

Peer Advocacy

Individual Advocacy 33

CHECKLIST FOR PUBLIC POLICY ADVOCACY

History and Purpose of Advocacy Laws, Regulations & Systems Working with Decision Makers Working & Communicating with

Others Telling Your Story Forms of Participation Local Allies & Change Makers

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CURRENT ISSUES

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DEVELOPING AN ACTION PLAN

Focusing on: Identifying the issue/problem to be

solvedSetting goals Identifying core constituencies

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MY ISSUES

What issues are important to me? Why are they important? Who do these issues affect? What can be done to change or improve

these issues? How would I like to get involved?

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SUGGESTED RESEARCH TOOLS

Family Voices of CA Website Family Voices National Website Lucile Packard Foundation for Children’s Health

Website Genetic Alliance Website CA Healthline Centers for Independent Living Websites Major Newspapers (i.e., New York Times) Local Newspapers (i.e., SF Chronicle, Contra Costa

Times) Local Libraries Family Resource Centers

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Chapter 1 Review

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HOMEWORK

Beginning Your Personal Action PlanArticulate an issue or problem you

would like to solve.Formulate four clear goals. Identify the core constituencies

affected by the issue.

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EVALUATION

PurposeoTo get feedback on the effectiveness of this training

oTo identify what participants are learning

oTo find areas that can be improved

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