autism in utah: our pieces of the puzzle rebecca giles, mph, ches utah department of health autism...
TRANSCRIPT
Autism in Utah: Our Pieces of the Puzzle
Rebecca Giles, MPH, CHESUtah Department of HealthAutism Project Coordinator
December 8, 2008
Autism Spectrum Disorder (ASD) Activities in Utah
Combating Autism Act Initiative FundingLeadership Education in Neurodevelopmental
DisabilitiesRegional Planning SummitASD Systems Development Project
Overview
Utah
Autism Activities in Utah
Coordination and advocacy activities Utah Family Voices Autism Council of Utah Utah Autism Initiative Utah Framework – state plan Utah Registry of Autism and
Developmental Disabilities
Services Health: Baby Watch Early
Intervention (Part C) Schools (Part B) Utah State University: Center
for Persons with Disabilities Human Services: Division of
Services for People with Disabilities
Special schools and programs Private Providers
Lots of gaps!!
State Framework InfrastructureEarly Identification and DiagnosisServicesAdult TransitionResearch
Autism Activities in Utah
Combating Autism Act Initiative
Utah Regional Leadership Education in Neurodevelopmental Disabilities (URLEND) – Autism EnhancementFunding In–state collaborationsRegional partnershipAdds 10 additional trainees per yearFamily involvement
“Act Early” Regional SummitSpring 2009Forum for enhancing state-wide ASD service
provision and coordination for familiesState teams: UT, WY, CO, MT, ND, SD
Combating Autism Act Initiative
Utah ASD Systems Development ProjectMedical Home Training Information ResourcesEarly DiagnosisFamily Support
Combating Autism Act Initiative
Utah ASD Systems Development Project
Medical Home TrainingLearning Collaboratives for Medical Teams
Central learning session approach In-office approach Distance learning approach
Learning Collaborative for Dental
Teams
Utah ASD Systems Development Project
Information Resourceswww.medhomeportal.orgExpand informationMarket
Utah ASD Systems Development Project
Early DiagnosisChild find projectPreschool special education teachers
Utah ASD Systems Development Project
Family Support“Autism ABCs: Education Program for
Caregivers of Children with Newly Diagnosed ASD”
Family NavigatorsFamily Conference
Utah ASD Systems Development Project
The (medical) professionals of the future will work with members of the public, empowering them to make choices through high-quality information, open discussion and genuine partnership.”
Julia Neuberger—King’s Fund (UK)
