New Action Groups for Auckland

TULIP TALKSParkinson's Auckland's Local

Newsletter

I S S U E 4 - S E P T E M B E R 2 0 1 9

Parkinson's Action Groups have been extended across the Auckland region in recent months with newgroups forming to cover the ever growing demand for Parkinson's services in New Zealand's largestcity. In this issue of Tulip Talks, we introduce you to some of our Action Group members and extend aninvitation to anyone interested in joining them to step forward. Action Groups meet once a month andwork with the Community Engagement Advisor Northern and the Community Educators to enhanceParkinson's services around the Auckland region.  With Action Groups now functioning in the central,east, west and north shore areas, we also hope to form a group for South Auckland from 2020.Parkinson's Action Group members may be people living with Parkinson's, be a carer of someone livingwith Parkinson's or simply have an interest to help. A diverse range of skills in AG members mean thegroups are equipped to represent our members and help deliver a variety of activities to theirParkinson's communities. Action Groups will have 4-8 members and a commitment of at least a year isideal. Action Group members may assist with fundraising and awareness activities, be asked to speak atevents and will be a representative of Parkinson's New Zealand in their community. There is space onall Action Groups for anyone interested in helping in this way. Please contact Karen our CommunityEngagement Advisor karen.schade@parkinsons.org.nz or 021 302 850 should you wish to find out moreabout joining a local Action Group.

“After being diagnosed with early onsetPD, I’ve become determined to fight theprogression of the disease and tomaintain my positive attitude. The AGprovides a forum to support andencourage others.” Robyn Cotton, NorthShore & Rodney Action Group

Introducing AG members from the region

"When my partner Mark was diagnosedwith Parkinson's, joining the AG was away for me to do something to help himand others through their journey.” Jovan Kan, West Auckland Action Group

"Too often the task of organisingfundraising  and other activities is left to thesame weary group of people. By being amember of a Parkinson's Action Group, Ican help where it is really needed". PeterCoulson, West Auckland Action Group

Over the past year Auckland Council Leisure has beenpiloting a project that involves upskilling some of itsexercise professionals around how to prescribe exercisefor people living with Parkinson’s. And now it haslaunched Parkinson’s exercise programmes in six of itsleisure centres: Stanmore Bay, Otara, Papatoetoe (AllanBrewster), Manurewa, Pakuranga (Lloyd Elsmore) andMangere (Moana Moana-Nui-a Kiwa Leisure Centre). Tofind out more talk to Yvonne Glassborow in the East orRhonda Thorn in the South.

New Parkinson's Exercise Classes Launch in South and East Auckland

Golf Day Fundraiser Success

UpBeat July 2019 - Mark van Kan, West Auckland

Tulip Cream Tea Events - Members invited

Awareness Week VolunteersParkinson's Awareness Week runs from the 1st to the 7th November this year. We are currently fillingcollection rosters across Auckland. If you can spare 2 hours then please let your Community Educatorknow. Paddy, Caroline, Rachel, Rhonda and Yvonne will then allocate you to a site roster. AwarenessWeek is a key fundraising and awareness time for Parkinson's so your help is very much appreciated.

Ryman Retirement Villages and Summerset Retirement Villages have generously agreed to host Tulip Cream Tea events withproceeds coming back to helping fund Parkinson's services in their local areas. Members are invited to attend, howeverRSVPs are essential. Afternoon tea is provided along with a guest speaker. Please let your Community Educator know if youwould like to attend any of these upcoming events. Please do not just turn up without speaking to your educator first.

Grace Joel Retirement Village St Heliers 2-3.30pm Friday 4th October - Koha entryBruce McLaren Retirement Village Howick 2-3.30pm Wednesday 16th October - Koha entryEvelyn Page Retirement Village Orewa 2-3.30pm Friday 27th September - Koha entryEdmund Hillary Retirement Village Remuera 2-3.30pm Wednesday 9th October - Koha entryBert Sutcliffe Retirement Village Birkenhead 2-3.30pm Wednesday 9th October - Koha entry

Exercise is the key to  living our best life. We invite you and your families, friends and work colleagues tojoin Team Parkinson's Auckland 2020 to walk or run Round the Bays and fundraise for our cause. Thecourse promises entertainment to cheer you on along the way - whether you're walking, jogging orrunning the 8.4km journey from the city along the waterfront to St Heliers Bay. Your Auckland Wideaction groups hope to have a team of 100 people participating this year, together as one strongdetermined team. Register and enter via the Round the Bays website and let us know you are joining theteam. We will be launching a give a little page for individuals and teams to fundraise and team t-shirtswill be available for purchase. All funds will contribute to helping people living with Parkinson's in theAuckland wide area. Get off the couch and start training - a great goal for us all. Enquiries tokaren.schade@parkinsons.org.nz or 021 302 580 - register at www.roundthebays.co.nz

Team Parkinson's Auckland Round the Bays 2020

In your home, at your workplace orwith your club, hosting a TulipCream Tea this September orOctober will help raise vital fundsfor Parkinson's services in yourarea. For a host pack contact:karen.schade@parkinsons.org.nzor 021-302-580

Host a TulipCream Tea

Having recently been diagnosed with Parkinson's being able to meet other people in my situation who hadknowledge, and openly shared their experiences,  was awesome on many levels.  It was great to listen to a widerange of inspirational speakers and be involved in exercise classes, socialise with people with Parkinson's andtheir partners, and discuss and share problems that may be facing us in our every day lives. I left with an upbeatfeeling – an attitude that life is not over with this diagnosis, to live the best life possible and not to let Parkinson'sdefine me. I would like to thank the Parkinson's New Zealand for a well organised event and a great weekend.

Summerset Falls Retirement Village Warkworth, Summerset by the Park Flatbush,Summerset at Heritage Park Ellerslie and Summerset at Monteray Park Hobsonville arehosting events and dates will be available via your Community Educator. These events aretea tastings, with a $10 entry fee with $5.00 coming to Parkinson's.

Community Educators

Margaret McNab, Central AucklandPhone: 09 827 1447 or email:margaret.mcnab@parkinsons.org.nz

Rachel Turner, West AucklandPhone: 027 520 6260 or email:rachel.turner@parkinsons.org.nz

Yvonne Glassborow, East AucklandPhone: 09 533 1105 or email:yvonne.glassborow@parkinsons.org.nz

Rhonda Thorn, South Auckland &FranklinPhone: 09 299 6607 or email:rhonda.thorn@parkinsons.org.nz

Paddy Sullivan, RodneyPhone: 09 422 2540 or email:paddy.sullivan@parkinsons.org.nz

Caroline Yandall, North ShorePhone: 09 818 2793 or email:caroline.yandall@parkinsons.org.nz

There is presently a ‘women with Parkinson’s’support group that runs once a month. Numbersattending are low but the few women who do attendare very keen for it to continue. They would like otherwomen with Parkinson’s to join them so they cansupport each other.Venue: Bruce McLaren Retirement Village, 795 ChapelRoad Dannemora.On Thursday 5 September and Thursday 3 October10.30am – 11.30am East Auckland are launching a new exercise group.This exercise Programme is a seated class for thosewho have difficulties keeping up in a regular exerciseclass.Venue: Active Physio, 3/15 Cook St, Howick.Exercise Programme (a seated class)Max – 6 people in the classWednesdays at 1pmStarting date: 11 September$15 a session (payment in 6-week blocks)Call Amanda at Active Physio on 535 9160

Parkinson's Groups

Determination and GutsIt was the last class of exercise group for the term. Theweather was blowing a gale, horizontal rain and cold. Butstill the members of the class came for group. Though wet,cold and windy they came to join together in fighting backagainst the foe Parkinson’s. To challenge themselves ineach of their own way, whether it be balance, strength orjust not staying at home hiding from the world. By the endof class the weather was still grey, the wind was blowingand the rain was threatening to fall. But the class knewthey had done their all again to fight back at the foe thatwished to bring them low.I look forward to seeing you all soon, and thank you toPeter, Jo and Deb for stepping forward and forming ournew West Auckland Action Group. We are still looking formore members, so please get in touch with me if you areinterested. Already we have some exciting activitiesplanned. Support Group Speakers 24th July - SW Waitakere DHB28th August - Janet Thackeray24th September - Massey University Dietician Students23rd October - Speech Therapist Waitakere DHBBoxing GroupMonday 10.45-11.45 - New LynnWednesday 9.45 - HendersonFriday 11.00am - KumeuSaturday - North ShoreContact Lisa Gombinsky 021 028 78470Physio Led Exercise GroupThursday 10.30-12noon RM10, West Wave RecreationCentre, 20 Alderman Drive 

A good number of North Shore membersattended The Science of Parkinson’s event in May, withfantastic overall numbers attending from acrossAuckland, Northland and Waikato; feedback is that it wasan interesting and worthwhile the event. North Shore wasalso well represented at Shining the light on Parkinson’sDisease and Dementia’ presentations put on by AucklandMedical Research Foundation in July andthe UpBeat weekend in Whangarei.  Thanks to the new North Shore & Rodney ActionGroup who are moving forward in leaps and bounds witha variety of activitirs organised. Thank you to thisfantastic team of volunteers who are so generous withoffering their skills and experience to enrich ourcommunity.  I look forward to meeting with many of youin the months ahead.

Fill up at Z EnergyBrowns Bay duringSeptember and give yourtoken to Parkinson'sNorth Shore to show yoursupport.

Parkinson's GroupsWest Support Group: 4th WEDNESDAY OF EACH MONTHat 1pm, Pinesong Village, 66 Avonleigh Road, Green BayWest Men’s Coffee Group: 1st TUESDAY OF EACHMONTH at 10am, Kreme Cafe, 231 Universal DriveWest Women’s Coffee Group: 4th TUESDAY OF EACHMONTH at 10.00am, Kreem Café, 231 Universal Drive,HendersonNorth Rodney: 1st TUESDAY OF EACH MONTH at 10am,Totara Park Retirement Village, 5 Melwood Drive,WarkworthSouth Rodney: 2nd MONDAY OF EACH MONTH at 10am,Maygrove Retirement Village, 65 Tauranga Place, OrewaRodney Early onset/young person’s group: 3rdWEDNESDAY OF EACH MONTH at 10:30, Pine House Café,244 Hibiscus Coast Highway, Orewa. North Shore Young Persons: 3rd TUESDAY OF EACHMONTH AT 11.30am, Northcote Tavern, 37 Queen Street,NorthcoteNorth Shore Group: 2nd THURSDAY OF EACH MONTH at10am, Windsor Park Baptist ChurchCentral Auckland: 2ND FRIDAY OF EACH MONTH at10am, St Barnabas Church Hall, Cnr Bellevue & Mt EdenRoads, Mt EdenKohimarama: 1st FRIDAY OF EACH MONTH at 10am, StThomas’ Church Hall, cnr Kohimarama & St Heliers BayRoads, KohimaramaHowick: 4th WEDNESDAY OF EACH MONTH at 10am, StAndrews Church Hall, Cnr Vincent & Ridge Roads,HowickFranklin: 1st THURSDAY OF EACH MONTH at 10am,Baptist Church lounge, 128 Victoria Street West,PukekoheManukau: 2nd WEDNESDAY OF EACH MONTH at 10am,Manurewa Cosmopolitan Club, ManurewaWaiuku: 2nd MONDAY OF EACH MONTH, 10am-12pm, StAndrews Centre, 85 Queen Street, Waiuku

South Rodney: 4th MONDAY OF EACH MONTH at 10am,Kings Plant Barn, Cnr East Coast Road & Hibiscus Highway,SilverdaleNorth Rodney: 3rd THURSDAY OF EACH MONTH at 10amvenue confirmed each monthNorth Shore: 1st THURSDAY OF THE MONTH at 10am,Altura Café, 25 Anzac Road, Browns BayNorth Shore: 2nd TUESDAY OF EACH MONTH at 10am,Settlers Retirement Village, 550 Albany Highway, AlbanyWest Auckland: 3rd TUESDAY OF EACH MONTH at 10am,Dawn Kitchen, Kelston Mall, main entrance (South/Central)Central Auckland: 4th THURSDAY OF EACH MONTH at1:30pm, Circus Café, 447 Mt Eden Road, Mt Eden VillageWaiuku: 2nd TUESDAY OF EACH MONTH at 10am, PorterBrothers Café, Kitchener Road, WaiukuSouth Auckland: 3rd WEDNESDAY OF EACH MONTH at10am, Café Miko, Botanic Gardens, 102 Hill Road,ManurewaEast Auckland: 3rd TUESDAY OF EACH MONTH at 10am,Hawthorn Dene Café, 280 Botany Rd, Botany Downs.Franklin: 4th THURSDAY OF EACH MONTH at 10am, Petals‘n’ Pots Café, 25 Paerata Road, PukekoheNorth West Auckland: 2nd WEDNESDAY OF EACH MONTH,at 1:30PM, Cafe Botannix, Palmer's, Westgate, NorthsideDrive

Carers Groups

Thanks to our recent sponsors!

Blake Watch 651, Upbeat Outward Bound 2019

Matthew Maingay for contributing photographyand video editing skills to our Science ofParkinson's event in May. Also hugs to EmmaPoppelwell for her admin skills helping secureAwareness week sites around Auckland.

Hosted by the North Shore & Rodney Action Group, Sunday 8th September 2019, 3pm to5pm, Pupuke Golf Club, 231 E Coast Road, Campbells Bay.  Guest speaker.Robyn Cotton was diagnosed with early onset Parkinson's in 2016. Her philosophy is thatParkinson's wont define her. She currently serves on the Parkinson's New Zealand boardand the North Shore Action Group. Robyn is a wife, mother and business consultant. Shebelieves her book - A Skylark Flies, written after experiencing personal trauma, providessome great insights into living positively - something that she now applies to living life withParkinson's. Robyn will provide an inspirational talk in a safe, friendly and informalenvironment. Entry by Koha, cash bar and food available. Everyone is welcome.

Living Postively With Parkinson's Social Event

The Science of Parkinson's Video and slidepresentations are now available on our websitefor public viewing - head to the resources page.

A friendly reminder that if you have not paidyour fees, to please do so asap. Yourmembership helps sustain us.