annual report 2014-15strengthening connections in the ... · this report provides exciting news and...

Annual Report 2014-15Strengthening

Connections in the Guideline World.

01Guidelines International Network Annual Report 2015

Contents Our mission is to lead, strengthen and support collaboration in guideline development, adaptation and implementation.

Guidelines International Network is a Scottish Guarantee Company, established under Company Number SC243691 and is also a Scottish Charity, recognised under Scottish Charity Number SC034047.

Registered Office: J. & H. Mitchell W.S., 51 Atholl Road, Pitlochry, Perthshire PH16 5BU, Scotland

As a link to last year’s cover theme, this year our graphic refers to the classic strategic game Tetris. Individual blocks represent our members within the wider Guidelines International Network community. Each gap filled in between the blocks creates a more secure infrastructure, a key message throughout this year’s report.

Chair’s Foreword 02

G-I-N Mission and Aims 03

Members 04

Partnerships and Collaborations 08

Organisation and Management 10

Achievements 2015 15

Financial Report 2015 21


Chair’s Foreword

Dear friends and colleagues,I am very pleased to present the 13th annual report of the Guidelines International Network (G-I-N). For various reasons, people tend to believe that 13 is an unlucky number. However, we as the guideline community would rather rely on the best available evidence and also consider the opposite. As you will see, this report provides exciting news and a solid body of evidence that the 13th year of our network was indeed extremely successful – even if analysed from a numerological perspective.

In 13, we first recognise the presence of number one. The symbolic meaning of number one deals with initiation. This is represented by the establishment of the new African Regional Community and the new Working Groups addressing Low and Middle Income Countries, Accelerated Guideline Development, Overdiagnosis and Updating Guidelines. Number one also stands for unity, which is reflected by our strategic goal to be the connector in the international guideline and knowledge management community. This implies continuous engagement from members for members that is realised via surveys, discussion forums on the website and social media, as well as by leveraging our partnerships – e.g. in the form of the joint evolvement of a Guideline Development Checklist with McMaster University and by the provision of free access to the Cochrane Library.

Number three stands for completion and advancement. In this context, we can state that the financial situation of the network is stable and so is the secretariat, managed by our Executive Officer. I wish to expressly state that last year ́s achievements would not have been possible without the untiring commitment of our staff. The networking character of G-I-N is also well represented in our Board of Trustees engaging to improve support for the 13 (sic!) Working Groups, 4 Regional Communities (1+3=4) and for networking activities of all G-I-N members. This year, two trustees, Jorma Komulainen and Rich Rosenfeld completed their term in the Board of Trustees and we welcomed two new members, Per Vandvik and Stephanie Chang. I would like to send a big thank

you to Jorma and Rich who gave us great support in improving the G-I-N branding, usability of the website and engagement of us all – the members representing the substance of G-I-N. Per and Stephanie took over the baton, bringing in fresh ideas. One of our strategic goals is to increase G-I-N ́s output in terms of position papers. I am happy to announce that the Performance Measures Working Group has recently completed a paper compiling reporting standards that has been approved by the board and is on its way for publication. Specific achievements may seem small but contribute to the whole- like the implementation of a small grant fund for Working Group activities, the implementation of the MeSH tree to facilitate guideline searches in the library, the new face of our newsletter enGINe and improvements in the website presence of the Working Groups. The annual conference in Melbourne was a huge success with a large proportion of delegates attending for the first time. It was a pleasure to see how contacts were made and collaborative projects were actively discussed – not only during the dedicated times for group meetings but also during breaks and in every corner of the venue. Don ́t miss the opportunities to attend the 2015 conference in Amsterdam and the 2016 conference in Philadelphia!

Number thirteen is also a prime number, only divisibly by itself. This is symbolic of incorruptible nature and integrity. This is what G-I-N stands for and has dealt with, now providing guidance for guideline developers to manage Conflicts of Interest in a position paper.

I hope you will enjoy this report like I did and keep on networking to provide better health care!

Kind Regards

Ina Kopp, prof. Dr. meD.

Ina Kopp Chair

‘ The 13th year of our network was indeed extremely successful.’


G-I-N Mission and Aims

our mIssIon Is to leaD, strengthen anD support collaboratIon In guIDelIne Development, aDaptatIon anD ImplementatIon.

The main purpose of the Network is to:> foster and support collaboration among all relevant stakeholders:

guideline developers, implementers, researchers, students, users in all health disciplines, policy makers, health technology assessment agencies, administrators and patients.

> promote awareness of the value of guidelines in facilitating high quality, evidence-based health care

> disseminate, improve access to and reduce duplication by promoting awareness of existing guidelines and methodological resources

> improve guideline development and application in clinical and public health practice

> grow the science of knowledge translation, particularly guideline development, adaptation and implementation.

G-I-N supports evidence-based health care and improved health outcomes by supporting work to reduce inappropriate variation in practice throughout the world. It does this by addressing the following three aims:

1. to provide a network and partnerships for guideline-developing organisations, implementers, users (such as healthcare providers, healthcare policy makers and consumers), researchers, students and other stakeholders

2. to assist members reduce the duplication of effort and improve the efficiency and effectiveness of evidence-based guideline development, adaptation, dissemination and implementation appropriate to the healthcare settings within which members work

3. to promote best practice through the development of opportunities for learning and building capacity and the establishment of high quality standards of guideline development, adaptation, dissemination and implementation.

G-I-N is an international not-for-profit association of organisations and individuals involved in clinical practice guidelines.


Organisational Members 2015argentIna > National Coordination Unit of Health

Technology Assessment and Implementation

australIa > Adelaide Health Technology

Assessment> Australian Commission on Safety and

Quality in Health Care> Cancer Australia (formerly National

Breast and Ovarian Cancer Centre)> Cancer Council Australia> Diagnostic Imaging Pathways,

Department of Health, Western Australia

> The Joanna Briggs Institute> National Health and Medical Research

Council> National Heart Foundation of Australia> National Stroke Foundation> Therapeutic Guidelines Ltd.> NSW Kids & Families> Ambulance Victoria> Remedy Healthcare

austrIa > Health Austria, Federal Institute for

Quality in Health Care> Austrian Medical Chamber

belgIum> Belgian Centre for Evidence-Based

Medicine> Belgian Healthcare Knowledge Centre> Domus Medica vzw; Flemish College of

General Practitioners > European Region of the World

Confederation for Physical Therapy

brazIl> Amil Assistência Médica Internacional

S/A> Brazilian Medical Association> National Committee for Technology

Incorporation

canaDa> Alberta Health Services> Institut National d’excellence en Santé

et en Services Sociaux > McMaster University> Registered Nurses’ Association

of Ontario

colombIa> Institute of Technology Assessment

in Health> National Institute of Cancer from

Colombia> Universidad Nacional de Colombia

DenmarK> Danish Health and Medicines Authority

fInlanD> Current Care / Duodecim - Finnish

Medical Society > Duodecim Medical Publications Ltd> FinnishOfficeforHealthTechnology

Assessment (Finohta), part of National Institute of Health and Welfare

france> European Society of Cardiology> French National Health Authority

germany> Agency for Quality in Dentistry within

the Institute of German Dentists (IDZ)> Agency for Quality in Medicine>AssociationofScientificMedical

Societies > Berlin Chamber of Physicians > CGS Usergroup - Med.

Leitlinienentwicklung e.V.> German Cancer Society e.V.

hungary> National Institute for Quality- and

Organizational Development in Healthcare and Medicines

Iran> Iranian Center for Evidence-based

Medicine

IrelanD> Department of Health

Italy> GIMBE Foundation> Emilia Romagna Region Agency for

Health and Social Care

Japan> Medical Information Network

Distribution Service Center, Japan Council for Quality Health Care

KazaKhstan> Republican Centre for Healthcare

Development

luxembourg> Cellule d’expertise médical

malaysIa> HTA Unit, Ministry of Health, Malaysia

mexIco> National Center for Health Technology

Excellence

netherlanDs> Comprehensive Cancer Centre, the

Netherlands (former: Dutch Association of Comprehensive Cancer Centres)

> Dutch Association of Medical Specialists> Dutch College of General Practitioners> Dutch Institute for Healthcare

Improvement> Royal Dutch Society for Physical

Therapy> Trimbos Institute - Netherlands Institute

of Mental Health & Addiction > Zorginstituut Nederland

norway> Norwegian Directorate for Health> Norwegian Electronic Health Library> Making Grade the Irresistible Choice

(MAGIC)

portugal> Center for Evidence-based Medicine,

Univ. of Lisbon School of Medicine

republIc of Korea> Korean Academy of Medical Sciences> Korea Institute of Oriental Medicine

republIc of molDova> Association of Perinatal Medicine of the

Republic of Moldova

romanIa> CRED Foundation - Romanian-Swiss

Centre for Health Sector Development> National Center for Studies in Family

Medicine

sauDI arabIa > King Saud bin Abdulaziz University for

Health Sciences> Chair of Evidence-based Healthcare

and Knowledge Translation, College of Medicine, King Saud University, Riyadh, Kingdom of Saudi Arabia

spaIn >BasqueOfficeforHealthTechnology

Assessment> GuíaSalud - Health Sciences Institute

of Aragón> Spanish Network for Research

on Guidelines

sweDen > National Board of Health and Welfare

uKraIne > The State Expert Center, Ministry of

Health, Ukraine

unIteD KIngDom > BMJ Group> National Institute for Health and

Care Excellence> Scottish Intercollegiate Guidelines

Network

usa > Academy of Nutrition and Dietetics> Agency for Healthcare Research

and Quality > American Academy of Family Physicians> American Academy of Neurology> American Academy of Orthopaedic

Surgeons> American Academy of Otolaryngology> American Association for Clinical

Chemistry> American College of Cardiology> American College of Chest Physicians> American College of Occupational and

Environmental Medicine> American College of Physicians> American Gastroenterological

Association> American Optometric Association> American Physical Therapy Association> American Psychological Association> American Society for Radiation

Oncology> American Society of Clinical Oncology > Care Management Institute, Kaiser

Permanente> College of American Pathologists> Council of Medical Specialty Societies> Doctor Evidence> EBSCO Health (DynaMed)> ECRI Institute> Infectious Diseases Society of America> Institute for Clinical Systems

Improvement > Penn Medicine Center for Evidence-

based Practice

Members G-I-N facilitates international networking and collaboration through our conference and working groups.


Individual Members 2015argentIna > Dr Maria Esandi

australIa > Ms Noella Sheerin (Student)> Mr Philip Brittain> Ms Susan Huckson> Professor Rebecca Kimble> Ms Sue Lukersmith> Mr Matthew Stanhope> Ms Rosie Forster> Ms Shirley Warren> Professor Danielle Mazza> Mr Cameron Phillips> Dr Samantha Chakraborty

austrIa >MrRolandSchaffler> Dr Irmgard Schiller-Frühwirth

brazIl > Ms Marisa Santos> Professor Airton Stein

cameroon > Mr Ndibmun Carl Nwana> Dr Patrick Mbah Okwen> Mr Ndong Ignatius Cheng

canaDa > Dr Pierre Cote> Professor Anna Gagliardi> Mr Ian Graham> Dr Patrice Lindsay> Ms Josephine Muxlow> Mr John Pilla> Dr Martin Reed> Dr Ann Scott> Mr Jerry Tan> Dr Maude St-Onge

chIle Dr Cesar Carcamo Quezada

chIna Mr Hao Chen

colombIa > Dr Henry Garcia Lozada

czech republIc > Dr Radim Licenik

DenmarK > Dr Thomas Drivsholm> Professor Jette Kristensen> Ms Tina Olsen> Dr Julie Pildal

egypt > Professor Zeinab Elsayed

georgIa > Professor Irma Manjavidze

germany > Mr Thomas Kellner> Dr Monika Klinkhammer-Schalke> Dr Jörg Meerpohl> Professor Martin Scherer

> Professor Joachin Szecsenyi> Dr Henning Thole> Dr Martin Waibel> Dr Tobias Weberschock> Dr Kia Parsannedjad

InDIa > Dr Joseph Mathew> Professor Jatinder Singh> Dr Nishant Jaiswal> Dr Gouri Shankar Bhattacharyya

IrelanD > Ms Dolores Keating> Ms Irene Hartigan

Italy > Dr Marco Marchetti> Dr Jacopo Oliviero> Mrs Cristina Morciano

Japan > Dr Kikuko Miyazaki> Dr Takeo Nakayama> Dr Koichi Miyakoshi

Kenya > Ms Irene Maweu

Kyrgyzstan > Dr Baktygul Kambaralieva

lIthuanIa > Mr Ramunas Leisys

netherlanDs > Mr Flip Dronkers> Ms Elsemiek Stehouwer> Mrs Trudy Dunnink> Dr Margot Fleuren> Dr Mirrian Hilbink> Professor Carel Hulshof> Dr Mascha Kamphuis> Dr Miranda Langendam> Ms Hanneke Lurvink> Dr Loes Meijer> Dr Willianne Nelen> Dr Karin Plass> Ms Mariska Tuut> Dr Rob van der Sande> Ms Trudy van der Weijden> drs. Meike van halm Walters> Ms Dunja Dressens> Mrs Rikie Durenberg

new zealanD > Dr Tim Stokes

nIgerIa > DrEmmanuelEffa

peru > Dr Carlos Canelo-Aybar> Dr Graciela Balbin

Qatar > Dr Samar Aboulsoud

republIc of Korea> Ms Miyoung Choi> Ms Seon Mi Ji

Our members benefit from access to a worldwide network of experts through the G-I-N website and LinkedIn forum.

members contInueD

sauDI arabIa > Dr Samia Alhabib> Dr Noha Dashash> Dr Zulfa Alrayess

south afrIca > Dr Tamara Kredo

spaIn > Mr Gerardo Atienza Merino> Ms Linda Cassis

srI lanKa > Professor Chrishantha Abeysena

swItzerlanD > Dr Bernard Burnand> Dr Susan Norris> Mr Thomy Tonia

uganDa > Mr Mwebaze Kanaahe Brian Bilal

unIteD KIngDom > Professor Janet Clarkson> Dr Robert Cook> Dr Jos Kleijnen> Dr Douglas Stirling> Ms Sally Welham> Professor Bruce Guthrie> Ms Zipporah Iheozor-ejiofor> Dr Karla Soares-Weiser

usa > Dr Michael Cantor> Ms Margaret Mullen-Fortino> Ms Cynthia Allen> Ms Reva Bhushan> Professor Cynthia Boyd> Dr Linda Bradley> Dr Philip Dahm> Professor Dave Davis> Dr David Goldman> Dr Timothy Hegmann> Dr Norman Kato> Dr Valerie King>DrThomasKosloff> Ms Sandra Zelman Lewis> Dr Karen Robinson> Dr Paul Shekelle>DrRickShiffman> Ms Wendy Smith Begolka> Ms Iris Tam> Ms Sheila Tynes> Dr Jose Moyano> Mr Kevin Boyer> Dr Kerri Vanderbom> Associate Professor Yaunlin Zhang> Dr Tian Hu> Professor Frank Detterbeck> Mrs Kymika Okechukwu> Mrs Mary Beth Hansen> Ms Zoe Rush> Dr Eric Rodgers

G-I-N Honorary Patronsgermany> Günter Ollenschläger

new zealanD> Catherine Marshall

usa> Jean Slutsky


Founder members 2003

104organisational members spanning 33 countries

138 individual members spanning 35 countries

50 total number of countries where G-I-N members can be found

Regional communities

37 organisations (including 2 international organisations)

19 countries

Overview of membership 2015

Membership growth

140

120

100

80

60

40

20

020042002 20052003 2006 2007 2008 2009 2010 2011 2012 2013 2014 2015

Key

Organisational Members

north amerIca(Canada, USA and Mexico)

norDIc(Denmark, Norway, Sweden and Finland)

anz(Australia and New Zealand)

Allfigurescorrectat30June2015

Individual Members

members contInueD

afrIca


104By June 2015 the Guidelines International Network had 104 Organisational Members.

18 organisations joined the Network in the period.

138By June 2015 G-I-N had 138 individual members from 35 countries.

36 individuals joined the Network in the period.

australIa> NSW Kids & Families> Ambulance Victoria> Remedy Healthcare

austrIa> Austrian Medical Chamber

brazIl> National Committee for Technology

Incorporation

canaDa> McMaster University

IrelanD> Department of Health

norway> Making Grade the Irresistible Choice (MAGIC)

republIc of Korea> Korea Institute of Oriental Medicine

republIc of molDova> Association of Perinatal Medicine of the

Republic of Moldova

romanIa> National Center for Studies in Family

Medicine

usa> ECRI Institute> American Academy of Family Physicians> American Optometric Association> HIV Clinical Guidelines Program> Council of Medical Specialty Societies> American Association for Clinical Chemistry> American College of Occupational and

Environmental Medicine

australIa > Professor Danielle Mazza> Mr Cameron Phillips> Ms Noella Sheerin

cameroon > Mr Ndibmun Carl Nwana> Mr Ndong Ignatius Cheng

canaDa > Dr Maude St-Onge

germany > Dr Kia Parssanedjad

InDIa > Dr Nishant Jaiswal

IrelanD > Ms Dolores Keating> Ms Irene Hartigan

Italy > Dr Jacopo Olivieri> Mrs Cristina Morciano

Japan > Dr Koichi Miyakoshi

Kenya > Ms Irene Maweu

netherlanDs > drs. Meike Van Halm-Walters> Ms Elsemiek Stehouwer> Mrs Rikie Deurenberg

peru > Dr Graciela Balbin> Dr Carlos Canelo-Aybar

republIc of Korea> Ms Miyoung Choi> Ms Seon Mi Ji

sauDI arabIa > Dr Zulfa Alrayess

south afrIca > Dr Tamara Kredo

spaIn > Ms Linda Cassis

uganDa > Mr Mwebaze Kanaahe Brian Bilal

unIteD KIngDom > Professor Bruce Guthrie> Ms Zipporah Iheozor-ejiofor> Dr Karla Soares-Weiser

usa > Dr Tian Hu> Professor Frank Detterbeck> Dr Eric Rodgers> Mrs Kymika Okechukwu> Dr Michael Cantor> Ms Margaret Mullen-Fortino> Ms Mary Beth Hansen> Ms Zoe Rush

organIsatIons that JoIneD g-I-n In 2014-2015

InDIvIDuals who JoIneD g-I-n In 2014-2015

Organisational Members

Individual Members

members contInueD


The AGREE Research Trust is an informal international collaboration of researchers and policy makers who seek to improve the quality and effectivenessofclinicalpracticeguidelines.

> www.g-i-n.net/membership/partners#AGREE

DynaMed™ is a clinical reference tool created by physicians for physicians and other health care professionals for use at the point-of-care.

> www.g-i-n.net/membership/partners#dynamed

The International Federation for Emergency Medicine (IFEM) is an international association composed of national emergency medicine organizations.

> www.g-i-n.net/membership/partners#IFEM

The GRADE Working Group began in the year 2000 as an informal collaboration of people with an interest in addressing the shortcomings of present grading systems in health care.

> www.g-i-n.net/membership/partners#GRADE

The International Network of Agencies for Health Technologies Assessment (INAHTA) mission is toprovideaforumfortheidentificationandpursuit of interests common to health technology assessment agencies.

> www.g-i-n.net/membership/partners#INAHTA

The New York Academy of Medicine addresses the health challenges facing the world’s urban populations through interdisciplinary approaches to policy leadership, innovative research, evaluation, education, and community engagement.

> www.g-i-n.net/membership/partners#nyam

The World Medical Association (WMA) serve humanity by endeavoring to achieve the highest international standards in Medical Education, Medical Science, Medical Art and Medical Ethics, and Health Care for all people in the world.

> www.g-i-n.net/membership/partners#WMA

McMaster University is one of only four Canadian universities ranked among the top 100 in the world (August 2014) and its purpose is the discovery, communication and preservation of knowledge. In teaching, research and scholarship, McMaster is committed to creativity, innovation and excellence.

> www.g-i-n.net/membership/partners#McMaster

G-I-N works with partners to further connect key stakeholders.

The Cochrane Collaboration is a global independent network of health practitioners, researchers, patient advocates and others, responding to the challenge of making the vast amounts of evidence generated through research useful for informing decisions about health.

> www.g-i-n.net/membership/partners#cochrane

G-I-N encourages multilateral collaboration and works in partnership with the following groups/organisations:

Partnerships and Collaborations


new yorK acaDemy of meDIcIne/sectIon on evIDence-baseD health care (nyam/sebhc)

Through the outstanding leadership and tireless efforts of Dr Peter Wyer, as well as Dr Michael Cantor, NYAM/SEBHC has provided substantial support for G-I-N/NA efforts. > Infrastructure Support and Coordination of G-I-N/

NA’s E-GAPPS conferences: – Guiding the E-GAPPS programme themes

and content – Writing proposals to obtain large conference

grantsoBudgeting and forecasting conference fees and projected attendance

– Coordinating all promotional efforts via NYAM/SEBHC networks and a dedicated G-I-N/NA E-GAPPS conference website

–Served as conference secretariat – Providing significant discounts for use of the

NYAM conference venue – Coordinating consumer involvement with

Consumers United for Evidence-Based Healthcare (CUE)

> General Promotion of G-I-N/NA: NYAM/SEHBC routinely promotes awareness of GIN/NA and NYAM’s role as Secretariat through all of the networks the SEHBC has created in the six years since it was founded

> Ongoing Involvement of NYAM/SEBHC in G-I-N/NA activities: Dr. Peter Wyer is a member of the G-I-N/NA Steering Group. In this role, he provides guidance on G-I-N/NA strategy, goals and objectives.

collaboratIon wIth DynameD

Since 2014, DynaMed has offered our members up to five free accesses to their database per organisation and a single access to individual members. A new App was launched in March 2015, access to which was then included for our members. Approximately 12% of our member organisations have taken up this offer so far.

We have invested a considerable effort in securing and strengthening our key strategic partnerships with some excellent results for our network this year.

cochrane

Our partnership with the Cochrane Collaboration has grown this year with significant benefits now available to our members. In particular, the Cochrane Library has been made freely available to all full members of G-I-N, including individual members, who do not otherwise have access through their organisations. This has been achieved by building a portal on the G-I-N website (on the members’ dashboard), though which members have direct access to the full Cochrane Library. In addition, work is underway on a joint project to share a platform whereby new or ongoing work can be posted from each side in order to stimulate collaboration and minimise duplication of efforts. This will help to promote the use of Cochrane reviews in guideline development, with the potential outcome of increasing quality.

Inahta

This year, the two organisations have worked more closely together in order to identify and establish opportunities for some joint work. We each sent a questionnaire to our members regarding joint working and crossover in our areas of work and this resulted in an overwhelming majority stating that they would like to work collaboratively with each other. These results were used to formulate abstracts for the 2015 conference in Amsterdam and the work has been accepted for presentation there by a GINAHTA working group.

mcmaster unIversIty

In September 2014, G-I-N and McMaster University entered into a partnership to jointly evolve a guideline development checklist, which is a freely available resource for guideline developers. Over the past few months, translations have been published in Chinese, Italian and Portuguese journals. The Chinese translation is available on the website, with the other two translations following soon.

partnershIps anD collaboratIons contInueD We collaborate with some commercial organisations to provide access to products through membership.

http://cebgrade.mcmaster.ca/guidelinechecklistonline.html


All members of the Board of Trustees signed a declaration of interest.

Organisation and Management

Stephanie Chang (US))> Agency for Healthcare

Research and Quality

Sue Huckson (AU)> Australian and New Zealand

Intensive Care Society> Individual Member, nominated

by Organisations

Sonja Kersten (NL)> IKNL: Comprehensive

Cancer Care, the Netherlands

Amir Qaseem (US)> American College

of Physicians

Ina Kopp (DE)> Association of Scientific

Medical Societies, Germany> chair and member of the

executive committee

Sue Phillips (AU)> Therapeutic Guidelines Ltd > vice chair and member of

the executive committee

Duncan Service (UK)> Scottish Intercollegiate

Guidelines Network> treasurer and member of

the executive committee

Lubna Al-Ansary (SA)> King Saud University,

Riyadh, Saudi Arabia

Craig Robbins (US)> Kaiser Permanente (KP)

Care Management Institute

Holger Schünemann (CA)> McMaster University> Individual Trustee

Per Vandvik (NO)> University of Oslo and

Norwegian Knowledge Centre for Health Services

Joan Vlayen (BE)> Belgian Healthcare

Knowledge Centre (KCE)

Board of Trustees


organIsatIon anD management contInueD

Board Members Activity 2014-2015

June 2014 Brussels, Belgium

Presentation at the First Conference on European Reference Networks and promotion of G-I-N and G-I-N McMaster Guideline Development Checklist.Ina Kopp

august 2014 Duesseldorf, Germany

Presentation at the WHO Collaborating Centre for Quality Assurance and Empowerment in Mental Health Inaugural Symposium. Promotion of G-I-N Guideline Reporting Standards and G-I-N McMaster Guideline Development Checklist.

september 2014

Cologne, Germany

Presentation at the European Cardiology Section Foundation Cologne Consensus Conference and promotion of the 2015 G-I-N Conference.Ina Kopp

september 2014

Berlin, Germany

Forum of the German-Chinese Technology Transfer Foundation and promotion of G-I-N.Ina Kopp

november 2014

Frankfurt, Germany

Report of G-I-N 2014 Conference highlights and promotion of the 2015 Conference at the AWMF Annual Conference on Clinical Practice Guidelines.Ina Kopp

21 november 2014

Copenhagen, Denmark

Met Cochrane ITKM team on behalf of G-I-N.Holger Schünemann

23 february 15

Rome, Italy

A two day course focused on the use of the AGREE II instrument for rare diseases.Sonja Kersten

march 2015

Hamburg, Germany

Presentation at the Conference of Health Ministers of Germany's federal states and promotion of the G-I-N McMaster Guideline Development Checklist and G-I-N Conference.Ina Kopp

13-14 June 15

Oslo, Norway

Global Evidence Synthesis Summit.Linn Brandt on behalf of the G-I-N Board

march 2015

Ankara, Turkey

Presentation at the 4th National Health Technology Assessment Forum and 2nd Evidence Based Medicine Symposium with the main theme of ‘Clinical Practice Guidelines and Health Technology Assessment’. Promotion of the 2015 G-I-N Conference.Ina Kopp Alric Rüther (IQWiG),

19-20 march 15

Rome, Italy

RARE-Bestpractices annual meeting on guidelines for rare diseases.Sonja Kersten

17 aprIl 15

Diemen, Netherlands

Dutch guideline developers consortium on different (methodology) topics. Sonja Kersten

The G-I-N Trustees and representatives have taken many opportunities to promote the network.



regIonal communItIesG-I-N Africa G-I-N ANZ G-I-N Nordic G-I-N North America

websIte Development tasK force

boarD of trustees worKIng groups*

fInances anD rIsKs

membershIpconference

*worKIng groups

+

engIne

Mid-term Board meetingThe 2 day mid-term board meeting took place in March 2015 in Rome, supported by the RARE-Bestpractices team, led by Domenica Taruscio.

There was significant progress in the area of supporting the Working Groups and Regional Communities, both in terms of governance and funding, as well as having the final discussions on the Conflicts of Interest paper and G-I-N policy.

Rome 2015: Strategy and governance were the backbone of the G-I-N Board meeting.

chaIr

Chair Treasurer Vice Chair

Executive Officer

Admin & Comms Support

WebmasterSecretary

executIve commIttee



G-I-N Sub-CommitteesMany of the decisions taken by the Board are proposed by the relevant sub-committee, which has previously carried out the detailed work or scrutiny on the subject. Each sub-committee is chaired by a Trustee. Reports and updates are provided by chairs of the various sub-committees throughout the year in our newsletter.

This year, the following sub-committees have provided immeasurable support to the board.

fInance & rIsKs

During 2014 – 15, the Finance & Risks committee has been chaired by Sue Phillips. Committee members are Ina Kopp, Sue Huckson, Duncan Service and Elaine Harrow. Some of the key work that has been undertaken over a series of 6 teleconferences by this sub-committee during 2014 - 15 is as follows:> Monitoring of overall budget on an ongoing basis> Scrutiny of budget for 15 – 16, as prepared by the

Executive Officer, prior to Board approval> Scrutiny and feedback on all conference budgets > Review of the G-I-N risk register and assessment of risks

associated with new or proposed initiatives> Review and ratification of proposed infrastructure improvements

(financial, data security and staffing) > Review and modelling of future fees> Policy updates> Review and allocation of G-I-N grants for conference attendance

for members from low income countries

conference

The Conference Sub-Committee for 2014-15 is chaired by Duncan Service with the support of Ina Kopp, Joan Vlayen, Sonja Kersten, Elaine Harrow, Amir Qaseem and Holger Schünemann. The purpose is to have an oversight on all conferences in their various stages of planning as well as to review and approve all policies relating to the conferences as required.

Some significant pieces of work that have been undertaken by the conference sub-committee since the Melbourne conference have been:> Review of the G-I-N 2014 conference evaluation in order to

implement improvements for the next conference > Review and approval of pre-conference course policy and process> Review of the sponsorship policy> Ongoing monitoring of 2015 conference preparation; – feedback and approval of plenary speakers – review and approval of pre-conference courses> Consideration of conference management model for 2016> Planning for 2017 conference> Review and updating of Scientific Committee responsibilities> Review of proposed members of Philadelphia 2016 Scientific

Committee

492

Key

Countries Delegates German language symposium only

Melbourne 14San Fran 13

Berlin 12 Seoul 11

Chicago 10Lisbon 09

Helsinki 08Toronto 07

Vien / Bud 06Lyon 05

Wellington 04Edinburgh 03

(Berlin CPG02)

34

39

450

352

49245

36 324

31 450

42

27

380

380

19 123

32 415

38 310

24

30

193

192

46 148

70

Conference attendance

membershIp

Chaired by Sue Huckson, vice chair Sonja Kersten with the support of Rodrigo Pardo Turriago, Ian Nathanson, Airton Stein, Javier Gracia, Joseph Mathews, Kristof Nekam, Noha Dashash and Corinna Schaefer.

The sub-committee review every membership application and provide support to new regional groups as well as advising the board in the area of membership.

websIte Development tasK force

In addition to the sub-committees of the board, there was also a Website Development Task Force (WDTF). The task force is chaired by Craig Robbins and supported by Ina Kopp, Sue Huckson, Holger Schünemann, Joan Vlayen, Per Vandvik and Elaine Harrow.

The purpose of the task force is to review, develop and evolve G-I-N’s web based and social media strategy in order for G-I-N to be solidly established as “the connector” in the international guideline development and implementation community.

Key activities have included: > Streamlining communication via enhanced social media activity

and the creation of designated member forums on various social media platforms

> Conducting a website user survey to gather feedback from the members on how we can improve and develop this service to better meet their needs



G-I-N SecretariatThis past year has been a year of stability and consolidation for the secretariat. We have continued to be supported on a part time basis by Anne Docherty, Secretary and Richard Howe, Webmaster. As planned, we recruited an Admin and Communications Assistant, Jenna McEwan, in July 2014, whose main role has been to support the Working Groups, particularly in developing their individual areas on the website. Jenna has quickly become the first point of contact for all of the Working Groups, helping to set up meetings, providing template documents and working with them to gain information for the website, in order to continually refresh and update these key areas.

Financially, G-I-N has been significantly more secure this year, in part due to the Melbourne conference being highly successful. Although fewer delegates travelled to Australia than to previous conferences in the USA and Europe, it resulted in a surplus, which has consolidated G-I-N’s financial position. I had reported last year that it was planned to move our bank accounts to Scotland, but to date this has been a goal that has proved beyond our reach, due to the very international nature of our business and strict banking regulations in the UK. Last year’s initiative to provide the option of paying membership fees via PayPal has proved highly popular with our members, so will be continued.

Although the sub-committees of the board were streamlined and reduced this year, there were still almost thirty board and sub-committee meetings throughout the year, including 1.5 days in Melbourne and a 2 day mid-term meeting in Rome. Some key outcomes of the mid-term meeting were the finalising of a G-I-N board collaborative paper on Conflicts of Interest, which has been accepted for publication by Annals of Internal Medicine. More support for the Working Groups and Regional Communities was established in the form of a new grants policy, as well as policies for establishing the respective groups and communities. This will ensure consistency in governance and structure and ensure that there is a rigorous process involved prior to a new group being set up. A key objective has also been to ensure that any potential conflicts of interest are managed. Almost all of the new groups and many of the established groups now have board approved Terms of Reference in place to help guide and focus them. These are published on the website. At the mid-term meeting, It was also decided to open up the library for a one year pilot, to non-members from low and lower middle income countries.

The reach of the network has continued to expand and we now have members in 50 countries. We are continuing to look for additional ways to encourage engagement and foster collaboration and have established G-I-N on LinkedIn and set up various groups, including a members-only forum. Our members now have the option of linking their LinkedIn profile to the G-I-N website – this can be used to login and the functionality will be further enhanced in the future with the aim of making networking easier.

In summary, it has been a year, where we have put a focussed effort into supporting our myriad groups and communities in order to both firmly establish them and also raise their profiles throughout the G-I-N community.

We are looking forward to continued growth during the year ahead and opportunities to facilitate and enhance networking both within our guideline community and as we broaden our reach in the Knowledge Management arena.

elaIne harrow, executIve offIcer

Company Secretary The Network has a Company Secretary in Scotland: Colin Liddell, J. & H. Mitchell W.S., 51 Atholl Road, Pitlochry, Perthshire, PH16 5BU, UK.

Financial ExaminerDuring the 2014 AGM, the members gave their approval for Milne Craig, Chartered Accountants, Abercorn House, 79 Renfrew Road, Paisley PA3 4DA, UK to be reappointed as G-I-N’s Financial Examiner.

Elaine Harrow Executive Officer

Stability, financial security, building support and focusing on strategic partnerships.


6447

5400

Achievements 2015

G-I-N Website and Guideline LibraryDuring the past year, we have continued to focus on the website and the guideline library to bring about further improvements.

Our aim is to make the website as user-friendly and informative as possible, while continuing to facilitate engagement and collaboration between our members, at the same time as attracting new members to join the network.

We took the decision to update the MeSH terms for the guidelines for the first time since the library was established. We are now using MeSH2015 and will continue to update this annually, so that the library indexing is in step with the rest of the guideline world. Over time, this should also improve the search function, as guidelines are better indexed. As members update their guidelines or enter a review date, they will re-index them.

At the end of 2014, a significant project was also approved to effectively cleanse the library and reach out to all of our member organisations to ensure that they are supported in bringing their own content up to date. This has been led by our webmaster, Richard Howe, who has been contacting each organisational member to support them. Our members are undertaking a one-off audit to ensure that the G-I-N library contains the links to all of the guidelines that it should and that no guidelines are included that should no longer be there. He has supported the organisations with training to ensure that each organisation is able to look after their own content in the future. We had expected see the number of guidelines in the library significantly reduce as a result of this exercise, however, this has not proved to be the case, as a number of newer organisations had many guidelines still to be added.

Networking and the ability to collaborate on work taking place around the globe is at the centre of our purpose.

8000

7000

6000

5000

4000

3000

2000

1000

0 2003

Number of documents in the International Guideline Library 2003 - 15 *

2006

2009

2004

2007

2010

2005

2008

2011

2012

2013

2014

2015

3600

4440

6450

7228 6519

6896

1300

2500

2850

6893 6388


achIevements 2015 contInueD English remains the dominant language within our library, followed by German, French, then Dutch.

With the recruitment of our Admin and Communications Assistant, Jenna McEwan, we have been able to give real focus and drive to the Working Group and Regional Community areas on the G-I-N website. Jenna has worked with the various chairs of our ever increasing number of groups and communities to help them establish a real web presence and to obtain all of their important information so that their key projects and work can be showcased on the website. These areas are vital for attracting new members, both to the groups and the wider network.

We are also increasing our social media presence and members of LinkedIn can use their credentials to login to the website. Information on many pages can then be shared with the wider LinkedIn network, as well as Twitter and other networks. Future developments will see further use of LinkedIn data, with the potential of being able to connect to people via the website.

An important piece of development work this year was the creation of online voting for the next Trustees. The proposal to move to online voting came from a member at last years’ AGM and it has been a rewarding piece of work to complete, as we can see how much easier the whole process is for our members.

Finally, recently completed, thanks to our partnership with Cochrane, the Cochrane library is now available on dashboards for all full members. From the dashboard, our members can gain full access to all the documents and guidance to be found in the Cochrane Library, which is a significant step forward in bringing reviewers and guideline developers closer together.

2013 2014 2015Arabic 2 2 21Basque 1 1 1Bosnian 1 1 1 Cambodian/Khmer 1 1 NA Catalan 86 86 86 Chinese 3 5 4 Danish 7 7 7 Dutch 496 473 369English 4368 4428 4265Finnish 103 104 105French 380 419 419German 655 751 855Greek 4 3 2Hungarian 2 2 1Indonesian 1 1 0Italian 13 28 27Japanese 1 1 NAKorean 3 3 2Macedonian 1 1 NAMalay 10 10 NANorwegian 62 14 2Persian 10 10 10Polish 1 1 1Portuguese 277 282 281Romanian 0 0 0Russian 6 6 5Serbian 1 1 NASpanish 193 222 200Swedish 2 2 2Thai 2 2 2Turkish 3 3 2Ukrainian 15 25 45Vietnamese 1 1 NA

6711 6896 6720

Table title: Number of items of information in the G-I-N International Guideline Library by language (June 2015) *

6720*


Following the conference theme, many hi-tech solutions to guideline challenges were presented – while acknowledging that there will always be aspects of guideline development that require clinical judgement. We were reminded of the immense barriers faced by those working in low and middle income countries, and despite this the incredible achievements that have been made.

We thank Professor Paul Glasziou, Chair of the Scientific Committee, and his Committee members for putting together a stimulating and inspiring program.

As the host, TGL was delighted to offer conference scholarships to 10 delegates from developing countries. All reported benefitting greatly from the conference program and making many useful contacts within and outside of their regions.

Working groups and regional communities are part of G-I-N’s core business and this year the conference included dedicated time for group

The conference was attended by over 350 delegates from 39 countries covering all regions of the world.

meetings. A total of 13 groups met during the conference, allowing them to focus on their goals and activities for the coming year. In particular, the Australia and New Zealand regional community was launched at the conference and, despite the early morning start, the inaugural meeting was well attended and generated many new ideas for collaboration in the region.

As always the conference dinner was a highlight! In the serene surrounds of the Melbourne Aquarium, the singing waiters took everyone by surprise, but it wasn’t long before everyone was waving red napkins in the air and shaking it up on the dance floor!

TGL wishes to thank all those involved in making G-I-N 2014 such a success, including members of G-I-N staff and Board, the conference organisers, scientific committee, presenters, delegates and sponsors.

sue phIllIps, therapeutIc guIDelInes lImIteD,co-presIDent g-I-n, 2014

achIevements 2015 contInueD

G-I-N 2014 Conference report Therapeutic Guidelines Ltd was honoured to host the 11th G-I-N conference on 20–23 August 2014 at the Melbourne Convention and Exhibition Centre in Melbourne.

The conference was attended by over 350 delegates from 39 countries covering all regions of the world, ensuring a truly international event.

The conference theme ‘Creation and Innovation: Guidelines in the Digital Age’ was explored through plenary presentations, workshops, oral presentations and poster sessions.

The panel debates generated vigorous discussion about the critical role that technology plays in both the development and implementation of leading edge guidelines. The final plenary highlighted innovative ways of engaging patients in guiding clinical decision making - and reinforced the importance of keeping patients at the centre of all we do.



45 46 21 15 15

GRADE and Guideline Development

Information technology in the development, dissemination and implementation of guidelines

Translating research findings and evidence-based guidelines into clinical practice

Contextualizing international guidelines: A practical approach in guideline construction

Adding to evidence – the role of clinical and lay members and health economics in developing clinical guidelines

A total of 258 abstracts were submitted.

136 were selected for oral presentations,

4 were selected for workshops

1 was selected for a panel session

61 were selected for poster presentations

Due to the financial success of the conference, monies were put aside to specifically fully fund three participants from LMICs to attend G-I-N 2015.

Number of courses and attendees

Programme included

Abstract submission

Plenary Sessions

5 23Parallel Sessions

Working Group Meetings

13 4Workshops

5Lunchtime Sponsored Sessions

Lunchtime Poster sessions

2Plenary Speakers

24

attendees attendees attendees attendees attendees

258

Abstracts were submitted online via the meeting website.

136 4 1 61


Regional Community Overview

g-I-n norDIc

Over the past 12 months the G-I-N Nordic Working Group has been very active with several productive meetings taking place.

28 members met during the G-I-N 2014 conference. During this meeting Piia Vuorela was elected as the steering group chair along with all other members of the steering group being established.

A further 2 meetings throughout the year resulted in a joint project progressing with Nordic Ecosystem for Clinical Practice Guidelines along with a successful grant application from Nordic Innovation. A further update on this will be presented at G-I-N 2015 in Amsterdam.

anz regIonal communIty

The ANZ Regional Group inaugural meeting took place at G-I-N 2014 in Melbourne and the group was promoted at the Cochrane Symposium. The meeting was well attended with approximately 75 people present in support of the establishment of the ANZ Regional Group.

The group has an open membership with G-I-N members making up the steering group. The process is in place to establish a formal steering group to lead the Regional Community for the next two years. A meeting is planned to be held at the Amsterdam conference for ANZ Regional delegates.

g-I-n north amerIca

The G-I-N North America steering group has met twice since the Melbourne 2014 conference. The meetings resulted in key actions being established including changing the G-I-N NA Terms of Reference for the Chair, Chair-Elect, Chair-Emeritus and Steering Group and electing Thomas Getchius from the American Academy of Neurology and the next Chair-Elect and Sandra Zelman Lewis as the next Chair with effective from 1 August 2015.

Networking within the group has been significant with 7 webinars taking place over a 6 month period. The G-I-N NA Secretariat has also been active with projects such as the support and development of the E-GAPPS conferences, ongoing involvement of NYAM/SEBHC in G-I-N/NA activities and general promotion activities.

afrIcan regIonal communIty

A steering committee for the G-I-N Africa community is in the process of being set up.

Activities have focused on the establishment and promotion of the group by building governance structures and setting objectives for the next 12 months. Updates have featured in enGINe and the content of the web page is being developed. The group will meet for the first time at G-I-N 2015 in Amsterdam.

The new G-I-N Africa Regional Community will have its inaugural meeting in Amsterdam.



achIevements 2015 contInueD Four new Working Groups were established this year.

During 2014 - 2015, four robust proposals for new working groups were received and approved by the Board. The additional Working Groups were then created: Accelerated Guideline Development, Low and Middle Income Countries (LMIC), Overdiagnosis and Updating Guidelines. The former Evidence Tables Working Group also refreshed and broadened its remit to acknowledge the increasing use of technology in guideline development and the role this can play in sharing evidence. This widening of focus was accompanied by a name change to G-I-N Tech.

Over a dozen teleconferences have taken place since the meetings in Melbourne and twelve of the thirteen Working Groups have taken advantage of the opportunity to bring their members together at the conference in Amsterdam and will be meeting during the lunch breaks which have been extended for the second year in order to give them this protected meeting time.

There has been a significant focus on the individual website areas this year, in order to keep the information current and the pages visually consistent to enable members to better find information.

There are too many achievements to fully cover, but some of the real highlights coming out of the working groups this year are:

Accelerated Guideline Development – two surveys created and distributed to G-I-N members, the results of which will be used to develop the framework for a manual for producing rapid guidelines

G-I-N PUBLIC – updated several chapters in the toolkit – ready for launch at G-I-N 2015

Implementation – collaboration with G-I-N Public, pilot has been run on implementation coaching, primary care project underway,

Low & Middle Income Countries (LMIC) - undertook a survey of the status of Guideline development, implementation and research in 8 developing countries across 3 continents. The rich data gathered will be presented at the Amsterdam Meeting by the WG.

Overdiagnosis - First paper “Guide for when and how to modify the definitions of diseases” completed and accepted for presentation at G-I-N 2015

Performance Measures – Paper on reporting standards ready for publication

Updating Guidelines – reporting checklist has been developed and will be presented at G-I-N 2015

The most current information can be found on our website.

Our new Working Groups


Financial Report 2015

total funds 2015

€

total funds 2014

€Incoming resourcesIncoming resources from generating funds Voluntary income 286,730 253,065 Investment income 320 270 Incoming resources from charitable activities 16,927 39,710total incoming resources 303,977 293,045

resources expendedCharitable activities 174,632 162,210Governance and other costs 44,447 75,504total resources expended 219,079 237,714

net incoming/(outgoing) resources for the year/net income/(expenditure) for the year 84,898 55,331

reconciliation of fundsTotal funds brought forward 88,595 33,264total funds carried forward 173,493 88,595

Statement of Financial Activities Year ended 31 March 2015.

The following is an extract of the Financial Statements by the independent financial examiner Milne Craig. The complete report is available to members via the G-I-N Website and can be sent to others upon request.

Information about the Guidelines International Network (G-I-N) can be obtained by emailing our Secretariat [email protected]. Visit our website www. g-i-n.net.

Contact us

Designed by nataliecowx.com

mailto:office%40g-i-n.net?subject=General%20Information

http://www.g-i-n.net

annual report 2014-15strengthening connections in the ... · this report provides exciting news and...

Documents