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Page 1: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

ANNUAL REPORT 2012

Page 2: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

About the Foundation

Founded in 1957, the National Parkinson Foundation (NPF) is a leading, national

organization with an extensive network of chapters, support groups and Centers

of Excellence in the United States, Canada and internationally. Unique among

the Parkinson’s organizations, NPF has a singular focus: our mission is to improve

the quality of Parkinson’s care through research, education and outreach. NPF has

funded more than $172 million in research, education and support services.

We have created a global network serving the

needs of the Parkinson’s community including:

· 39 Centers of Excellence at top medical centers

around the world, including 24 in the United

States and 15 internationally

· Chapters and support groups across the

United States, serving more than 100,000

people with Parkinson’s and their families

· Parkinson.org and educational materials that

reach more than one million people each year.

The mission of the

National Parkinson

Foundation (NPF) is

to improve the quality of

Parkinson’s care through

research, education and

outreach.

Cover photograph from 2012 Moving Day Miami

Page 3: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

Chairman’s Message

2012 was a landmark year for the National Parkinson Foundation.

Not only did we continue to deliver our full array of research and

programs to improve the lives of everyone living with Parkinson’s

today, we also launched brand new programs and exciting

campaigns specifically designed to improve the lives of people

with Parkinson’s, their families and healthcare professionals.

Let me highlight a few of these for you: The Parkinson’s

Outcomes Project, the largest study of Parkinson’s ever

conducted, is still in its infancy, but this year we showed

how different approaches to care and, specifically, managing

depression has the potential to slow the impact of this disease.

Through the Parkinson’s Outcomes Project, we are setting the

standard for quality care. Moving Day® continues to gain momentum and soon enough will be

in many major cities. Finally, the Aware in Care hospitalization kits are flying off the shelves and

reaching people across America; we are empowering thousands of people with Parkinson’s

to take control of their own health while in the hospital.

The pages within this report detail the amazing work that has happened across the NPF network

over the past year. I commend the hard work of NPF’s vast network of doctors, nurses, social workers,

volunteers and staff for turning our mission into a reality on a daily basis.

From east coast to west, north to south and all the way around the world, NPF has become the leader

in the Parkinson’s community focused on families and patient care. None of this would be possible

without the support of donors such as you and those around the country. Simply put, we could not

have done any of this without you. It’s true – People Who Move Actually Do Change the World!

Warm wishes,

Bernard J. Fogel, MD Chairman of the Board

2PeoPle who move change the world.

AnnuAl RepoRt 2012

Dr. Bernard J. Fogel

Page 4: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

KrystleMoving Day Pittsburgh walker

“ The most memorable moment

for myself, and my mother as well,

was definitely meeting some very

wonderful and amazing people who

share the same goal as us: raising

awareness, education, and funds

to improve the treatment for those

suffering from Parkinson’s. ”

NPF’s Moving Day®,

Walk for Parkinson’s, is a

national, grassroots campaign

that raises awareness as well

as funds for local programs

and services. What started in

three pilot locations in 2011

expanded to 17 Moving Day

walks in 2012.

With this national event, we are beginning to

change the world for people with Parkinson’s;

the slogan of Moving Day is “People Who Move

Change the World.” Moving Day highlights

movement and exercise as a symbol of hope

and progress because of its essential role in

treating Parkinson’s disease.

NPF could not have accomplished this without

the generous support of our Honorary National

Chair, Katie Couric, and our National Corporate

Partners: UCB, Teva/CNS, Right at Home,

Medtronic, and thousands of families nationwide.

3 PeoPle who move change the world. by the numbersN P F M O V I N G D A Y

:

Learn more about Moving Day at www.npfmovingday.org.

MOvINg TOgETHER: MOVING DAY

AnnuAl RepoRt 2012

Page 5: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

15,000 participants

17 Moving Day Events across the US and in the Bahamas

900 teams

20 Moving Day Events slated for 2013

by the numbers

Page 6: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

People with Parkinson’s are admitted

to the hospital 50 percent more than

their peers, and have longer hospital

stays. Once admitted, three out of four

do not receive their medications on

time – some with disastrous results. After funding research

to understand this problem, NPF launched a national

Aware in Care campaign to empower people with

Parkinson’s disease to advocate for the care they need.

Aware in Care includes a free kit and educational materials

to help people engage with their support network—family,

friends, and support groups—to ensure the right care.

Everything you need to manage a hospital stay and materials

to share with hospital staff are together in one place.

The Aware in Care kit includes: a Hospital Action Plan,

an ID Bracelet, a Medical Alert Card, Medication Forms,

a Parkinson’s Disease Fact Sheet, “I Have Parkinson’s”

Reminder Slips, a Thank You card, and a magnet for

a hospital bed.

generous support for the Aware in Care campaign has

been provided by the leading sponsor, The Edmond J. Safra

Phil anthropic Foundation, Teva Neuroscience, Abbott,

UCB, Novartis, The Eleanor M. and Herbert D. Katz Family

Foundation, and The Thompkins-Broll Family Foundation.

Marty, 71Aware in Care kit recipient

“ Having the Aware in Care kit has

made a world of difference in the

treatment I received. As a result,

I didn’t have any trouble getting

my medications on time while in the

emergency room. Everyone with

Parkinson’s should have one. ”

by the numbersA W A R E I N C A R E

:

MOvINg BEYOND BARRIERS: AWARE IN CARE

Learn more about Aware in Care at www.awareincare.org.

AnnuAl RepoRt 2012

5 PeoPle who move change the world.

Page 7: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

20,000 kits distributed to date

51,000 website visitors

2,000 Webinar and video viewers

94% of kit recipients said it helped during a hospital stay

by the numbers

Page 8: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

MOvINg BEYOND LIMITATIONS: PARkINSON’SOUtCOMES PROjECtAt the end of 2012, NPF released the “Parkinson’s Outcomes

Project: Report to the Community” which identified depres sion

as the most important factor influencing health status. The

Parkinson’s Outcomes Project seeks to identify factors that

can slow the course of the disease and help people live longer,

better, and more active lives. This largest clinical study of

Parkinson’s ever conducted, represents data from more than

6,000 people living with Parkinson’s in four countries.

For the first time, the Parkinson’s Outcomes Project is

showing that different centers achieve different results in

their patients. Focusing on the entire spectrum of Parkinson’s

care, the project will determine best treatments and paths

toward better outcomes.

The project was funded by thousands of families

affected by Parkinson’s disease and generous support

from the following foundations and corporations: Abbott,

Braman Family Foundation, Inc., Major League Baseball

Players Trust, NPF Minnesota, Parkinson’s Unity Walk,

NPF South Palm Beach County Chapter, St. Jude Medical,

Teva Neuroscience, The greenberg-May Foundation, Inc.,

The Kinetics Foundation, The Leir Charitable Foundation,

and The Thompkins-Broll Family Foundation.

Matthew Stern, MDUniversity of Pennsylvania, President-Elect

of the Movement Disorder Society

“ Routine aspects of care are

rarely studied, so this research is

invaluable in proving that there

are vast disparities in Parkinson’s

treatment and showing which

aspects of care really work. This

latest data demonstrates how

important it is to quality care to

refer patients for multi-faceted

treatment of depression. ”

Read the full report at www.parkinson.org/outcomes.

by the numbersPARkINSON’S OUtCOMES PROjECt

:

AnnuAl RepoRt 2012

7 PeoPle who move change the world.

Page 9: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

6,000 patients tracked

85% in the US / 15% international

1,000+ within 2 years of diagnosis

350+ have had PD for more than 20 years

20 NPF Centers of Excellence participating

by the numbers

Page 10: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

Gifts of $250,000 to $1,000,000Estate of Grace Becker

teva Neuroscience

Gifts of $100,000 to $249,999Anonymous

Estate of Everett Hill

trust of Marilyn L. Lindsay

Medtronic Foundation

Estate of Robert E. Neeley

Parkinson’s Unity Walk

Parkinson Foundation of the National Capital Area

trust of Ruth Putney

Estate of Elaine taft

Estate of Rose Vosbigian

Gifts of $50,000 to $99,999

Abbott

the Batchelor Foundation, Inc.

Lynn Diamond

Estate of Margaret DiDonato

Robert B. Friedman

Rollin M. Gerstacker Foundation

Estate of Pauline M. Gormley

William Litt Charitable Remainder trust

Estate of Florence H. McLaughlin

Estate of Doris M. Meehan

Estate of Lloyd O. Nielson

Estate of Lee G. Roach

trust of Harold j. & Phyllis A. Schwend

Solomon Family Foundation

South Palm Beach County Chapter of NPF

Estate of Norman Wexler

Gifts of $20,000 to $49,999

Mildred and Leo M. Amoroso

the Applebaum Foundation, Inc.

Estate of Douglas C. Beaton

the jane H. Berktold Parkinson Fund

the Bloomfield Family Foundation

Estate of Elaine D. Bohanon

Estate of Hildegard Butler

Dew Foundation

the Diller-von Furstenberg Family Foundation

Edelman USA

trust of Evelyn M. Ehart

Ross S. Evans

Linda and Robert P. Fetch

Estate of Richard G. Hanson

the Don A. Hunziker Memorial Foundation, Inc.

the Eleanor M. and Herbert D. katz Family Foundation, Inc.

the kinetics Foundation

trust of Sidney konigsberg

Lucrezia and Vito La Forgia

Estate of Philip j. Lundin

the Oreffice Foundation

trust of Clara Rosen

Estate of jack Roth

Estate of Ruby Stevens

the thompkins-Broll Family Foundation

The National Parkinson Foundation gratefully acknowledges the following individuals, corporations, foundations and organizations who have contributed $1,000 or more between July 1, 2011 and June 30, 2012. Their giving assists research, education and outreach initiatives. Thank you for your support.

9 PeoPle who move change the world.

NATIONAL PARKINSON FOUNDATION

HONOR ROLL 2012

Page 11: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

Gifts of $10,000 to $19,999

Anonymous (2)

karl Albert

Andrew B. and Mona Albert

Margaret M. Bloomfield

Catch the Cure

W. G. Christianson Foundation

kate and Lynn A. Christianson

john P. Clulow Fund

Community Health Charities of the National Capital Area

Robert and joanne Crown Income Charitable Fund

Donate for a Cause

Mr. and Mrs. Charles M. Eldridge

EMD Serono, Inc.

the Five Millers Family Foundation, Inc.

Dr. and Mrs. Bernard j. Fogel

IBM Employee Services Center

Stephen joyce

Rita A. Lehnert

Lettuce Entertain You Enterprises, Inc.

jerry M. Lindzon

trust of Dennis j. & Orita M. Liska

Marian S. & Frederic t. McAuslan Endowment Fund

the McCamish Family Charitable Fund

Gail and Robert Milhous

MtV Networks

the New York Community trust World-Wide Holdings, Inc. Fund

NPF Western New York

NPF Western Pennsylvania

Office Depot Foundation

the Parkinson Council

Peachtree House Foundation

Amy Rantala

Ryder Charitable Foundation

Irene and Enrique Sosa

Otto C. Winzen Memorial Advised Fund

Gifts of $1,000 to $9,999

Anonymous (11)

joanne M. and Charles S. Ackerman

George j. Albertelli

jean M. Allen

Altria Group, Inc.

Amazon Hose & Rubber Co.

the Ame Foundation, Inc.

Melba and Eric Anderson

kathleen and Harold Anderson

H. M. Andries

Atlantic City Electric

Catherine Auman

Avenger Aircraft & Services, LLC

Isabel L. Bader

Michael Bain

Ed Baker

james j. Baker

Dorothy M. Ball

Eugene M. Bane Charitable trust

Clay H. Barr

Sidney Barth

john E. and Nellie j. Bastien Memorial Foundation

Elly B. Beard

j. Gordon Beckham, jr.

Beito Foundation

Patricia and Gardner Bemis Fund

Mr. and Mrs. Michael Beriss

Lisa D. Bertani

Estate of Ed Bethurum

Blank Charitable Foundation, Inc.

BMO Harris Bank

Bohemian Foundation

William F. Broll

Estate of Gary S. Brooks

Lewis D. Brounell Charitable trust

Linda Brown

Liam Brown

Bruce H. Bryant

john N. Buckley

Donald Burns

Harryette Campbell

Mr. and Mrs. Michael Cannizzo

Paula Carano

Gary O. Caris

Harry W. Casey

CBS Radio

Charles j. Cella

the Chalfont Foundation

Harvey R. Chaplin

Chemalloy Co.,Inc.

Chicago White Sox Charities

Chinowth Charitable Lead trust

Choice Hotels International

Chopper trading, LLC

Christine Clarke

Douglas R. Clovis

joel Cohen

Michelle L. Collins

Community Health Charities of Florida

Community Health Charities of Minnesota

Community Health Charities of New York

Community Health Charities of Ohio

Community Health Charities of texas

Concord Hospitality Enterprises Company

ConocoPhillips Company

Robert A. M. Coppenrath

Robert Cornfeld

Gordon Crawford

Robin E. Crum

AnnuAl RepoRt 2012

Page 12: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

Candace Cummings

Michael Curry

Daluge Family Fund

the Daus Family Foundation

Al Davis

David O. Davis

DEARS Foundation, Inc.

DeFreitas Family Charitable Gift Fund

Delouri Farms, Inc.

Charles H. Denny, III Charitable trust

Willa and Charles Deveny

Evelyn Diament

Ron Doggett

Estate of David Dorau

Mark Duffy

Lois W. Dyk

Eagan Family Foundation, Inc.

Clark A. Eaton

joseph E. Edell

Ralph and Barbara Edwards Family Foundation

Enterprise Holdings Foundation

Robert Ettleman

Frank E. Evarone

Erin Fauber

Helen and Charles Fedalen, jr.

Donald A. Feimer

P. Feinstein & Sons Foundation

jody Feldman

Estate of Robert Ferguson

jan and Guy Ferris

jane Feldman Fields

Michael A. Fisher

the Fisher Family Foundation

kathleen Fones

Rudolph and Hilda U. Forchheimer Foundation, Inc.

Fortune Brands Home & Security

karel and George Foti

the Foundation for Maryland’s Future

Leslie Frankel

the Freeman Family

todd Fruen

Robert Gathman

GE Foundation

Bob and Laurie Gervis Charitable Foundation

judith S. Gillies

james Gillis

Lowell & Harriet Glazer Family Foundation

Gleason Family Foundation Inc.

Carol Glickenhaus

the Glickenhaus Foundation

Patricia and Barry Goldstein

Richard A. Goldstein

Rhoda Goodman

Dr. Moses & Beatrice Goodman Fund

H. Gail Gordon

Nancy Gordon

May Gossett

Homer E. Graham

Douglas t. Granat

Green Cohan Foundation

james H. Grew

Emily and Peter Gross

the Robert and Lynne Grossman Family Foundation

jerry Haar

Donna M. Hansen

Harriet Ford Dickenson Foundation

Mr. and Mrs. jack Harter

Hawaii Community Foundation

Hearst Magazines

Mark Heimer

the Henderson Family Fund

troy Henry

Herbert kay Parkinson Chapter

Ric Hersh

Estate of Robert P. Herzog

Marilyn and Donald Hibbert

Hollis Hines

Patrick Ho

Hoffman Charitable Fund

Lisa M. Hoggatt

H. Randolph Holder

trust of joanne j. Holm

Robert W. Holmes

Nancy Hopkins Reilly

Peggy j. Hoy

Estate of Gary Hudson

Carol R. Hurley

Estate of kathleen C. Ingham

International Franchise Association

Interpublic Group

Denise and Barry R. jackson

Fern I. jewell

Estate of john D. joyce

Gabriel kain

kaplan Family Charitable Fund

karaffa Family Foundation

john kaupp

kathy kawczynski

keenan Antiques

Eugene and Lois kessler

Arnold S. kling

Michael A. kolodny

W.R. konneker

john W. kozyak, Esq.

Harold P. kravitz, Esq.

Alfred kuehlewind

john C. kupetz

Barbara C. kyse

Indu Ladd

William and jean Lake

Esther Lam

Robert L. Lambert

Amy and Michael Landa

Susan and Robert Larson

William R. Leighton

11 PeoPle who move change the world.

NATIONAL PARKINSON FOUNDATION

HONOR ROLL 2012

Page 13: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

Lucille Lerman

Francis And Gertrude Levett Foundation

Phyllis Levin

joyce and Sidney Levine

Gail and john Liebes

Litchfield Donor Advised Fund at Yale Law School

john t. Loftus

james L. Long

jane P. Long Fund

Charles Longfield

Darlene Lowe

Mr. and Mrs. Hugh Lowenstein

the Louise D. and Morton j. Macks Family Foundation, Inc.

Madigan Family Foundation

Magnet Schools of texas Inc.

Matthew M. Maguire

Bernard Malberg

Ann S. & Albert L. Maltz Foundation

john F. Manning

Marriott International, Inc.

Donna and Craig Martin

Heather M. Martin

Mr. and Mrs. Alex Martins

Mr. and Mrs. Stuart j. Mason

Lynnor and Mike Matheney

Max Gruber Foundation

Betty jo May

joan D. May

todd McAloon

Sylvia and Gene McCreary

the McCutcheon Foundation

Reba McEntire Fund

Pollie McFarland

keri McGinness

Elsie P. & Lucius B. McGowan Private Charitable Fund

Gustaf Westfeldt McIlhenny Family Foundation

tim Mckay

Charles H. McPherson, Sr.

Medtronic, Inc.

jerrod W. Melman

Merriman Family Foundation

Sharron G. Reiss and Mike Miller

Wayne Miller

Leonard Miller

Miller Realty Family Philanthropic Fund

Susan Mingolla

Nurose Mohamed

Montebello Realty Corporation

jerry Moore

todd Moore

Lillian & Harold Moose, jr. Philanthropic Fund

Mr. and Mrs. james E. Morgan, III

Brian D. Morrison

judith Moss

Adrienne Muslin

Estate of Helene E. Nagode

National Retail Federation

Neal, Gerber & Eisenberg LLP

Newco Development LLC

Robert Nolan

Frank M. Norfleet

North American Properties

NPF Georgia

NPF Greater Rochester

NPF North Florida

Novartis Pharmaceuticals Corporation

Suzanne Nowers

Dr. and Mrs. Michael and Leslie Okun

Dr. Charles and joAnn Onstead Fund

Lisa Orberg

Randy Pack

toni and Grier Page

Christine G. Phill and Sotirios A. Parashos

Parkinson Voice Project

Estate of Helen A. Pasquini

Estate of janice L. Pattberg

the Peninsula Charities Foundation II

Reyes A. Perez

Edward P. Petrosky

Phyllis I. Wormwood Fund

Lincoln N. Pinsky

Cynthia and Charles Plante

Robert j. Pilska

Polaris Logistics

Carla Poole

john D. Pope

Lawrence Puckett

Rocco V. Pugliese

Amer Quraishi

Edward L. and Sheila Rabb Weidenfeld

kenneth L. Rall

Rascal Flatts touring, Inc.

the Neil and Anna Rasmussen Foundation

Faye and Leonard Redlich

Patricia M. Reeg

Mardell L. Remick

Cheryl Remmert

trust of Cyril F. & Margaret E. Richards

Richard Family Foundation, Inc.

Virginia M. Richert

Richard Riddell

RLj Development

teresa k. Rogers

Michael P. Rose

Ada R. Rosentreter

the Rosie’s Charitable Fund

thomas Rothrauff

Regina M. Rubenstein

the Martha and Max Rubinstein Family Foundation

M. jacki and jim Rupert

Annie Rye

Lynda Ryley

Estate of Irving N. Sadoff

thomas Safran

AnnuAl RepoRt 2012

Page 14: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

Ina and Delmar Sample

janice Samuel

Balvinder Sangha

W. S. Scharff Family Foundation

Barbara and Martin Schechter

Mr. and Mrs. Don Schneider

Schwab Fund For Charitable Giving

Barry k. Schwartz Family Foundation

Gloria M. Scott

Elizabeth Scrivner

Lynette M. Sessa

Lance Shaner

Barbara and Michael Sherman

S. Irving and Anne Sherr

Dennis Sidler

Margaret and Andrew Silton

Alan M. Slewett

Sheila Slewett

Edward W. Smith jr. Foundation

Martin H. Snitzer

Rita and Hal Leeds

Carol and Nelson Soggs

Iris Sokol

Sony Music

jim Soong

Sue Sperger

Mr. and Mrs. john Sprague

Sylvia M. Stafford

Simon Stanaway

james & janice Stanton Foundation, Inc.

Stearns Weaver Miller Weissler Alhadeff and Sitterson, P.A.

Shirley and Harvey P. Stein

Norman Y. Stein

jerry N. Steinbaum

Chere Steiner

Mark S. Stephenoff

jennifer Stettner

joyce S. Stockley

StOMP Parkinson’s

judy and Michael Strand

Ryan Strayhorn

Nancy and james Stricker

Sugar Creek Scrap, Inc.

Summit County Parkinson Support Group

Franklin Surnamer

Rebecca C. Swan

Evie M. Swan

james Syltie

Hope F. Syverson

Catherine and john R. taylor

Garland and Agnes taylor Gray Foundation

Nina N. thayer

the Community Foundation for the National Capital Region

janet and Richard thompson

the james and Patricia tolley Charitable Gift Fund

transco Inc. Charitable Foundation

trigran Investments, Inc.

Harley and Sherry tropin Fund

julia trotter

trukenbrod Family Foundation

trustmark National Bank

Betty and john W. turner

tyler Family Charitable Gift Fund

University of Miami Miller School of Medicine, Medical Development

United Way of Greater Los Angeles

United Way Of Larimer County, Inc.

US WorldMeds, LLC

Whitney and Russell Van Nuis

Vanderbilt University Medical Center

Richard Vaughan

Nancy Vermeer

Milton and Miriam Waldbaum Family Foundation

james D. Ward

Corynn and Ira D. Warner

Gary Warren

Elaine and Oscar A. Wasserman

Estate of Ailyer Waters

Steven D. Watts

Isaac Weaver

jean B. Weiner Foundation, Inc.

F. Helmut Weymar

Dr. jessica and Mr. Michael White

Mary White

Estate of Mabel R. White

the Bruce and Beth White Family Foundation

Estate of Paul D. Whitney

the Dr. jack Widrich Foundation, Inc.

William Morris Endeavor Entertainment

Anthony L. Wilner

Danette B. and Stephen B. Wineberg

Marilyn and Richard Wurzburger

Steve Yonker

Zissu Family Foundation

Eleanor and Leo Zucker Family Foundation

Lynn and Donald Zucker

thAnk You

13 PeoPle who move change the world.

NATIONAL PARKINSON FOUNDATION

HONOR ROLL 2012

Page 15: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

AnnuAl RepoRt 2012

E. Richard and Meme Alhadeff

Leo M. Amoroso

Helen C. Avchin

Eugene M. Bane Charitable Trust

A. Jeffrey Barash

virginia C. Barrett

Ben Berkowitz

Leonard Bielski

Connie Bierlein

Deborah L. Boyer

Jean Bressler

Maida Burka

Tom Campbell

Richard and Susan Comeau

Robert A. M. Coppenrath

Deloris T. Crews

Thomas Curtis

Burke and Rena Dambly

Esther Danielson

Mary Dexter

Mary Jean Elioff

James A. Enloe, Sr.

Alvin gardner

Dr. Moses and Beatrice goodman Fund

genie B. Hollen

Ida Hutzler Charitable Trust

Edward Jervey

Rachel K. Johnson

Yetta Kaemmer

Barry Kaye

Heinrich Kolbel

Marjorie Korach

Hanes Lassiter

Dorothy Marienau

Erna Mayer

John McConeghy

James & Marie McCurdy Family Charitable Trust

Karen A. Moschetto

Anna Nalbandian

Kimrey and Beverly Newlin

Ruth Orfield

Margaret Paul

Anne Romanello

Kim and Susan Schrotenboer

Alan Slewett

Sheila Slewett

Centre Unversaw

Miguel vargas

Dorothy vaughn

Michael L. & Antoinette H. Wilkerson

$20 For 20,000Ft on Mt. Everest for NPF!

Devin M. Albert

Anne Joyce Memorial Foundation

Kelly Arney

Louis Baduini

Karen Blake

Elena Buccino

Emily N. Cameron

Carthage Township

Linda M. Cibula

Jerry Cooper

Ramiro Curry-Andalla

Seth Dunn

EventNext, Inc.

Angela Floyd

Daniel Fruik

Sheldon Hearst

Teresa Henderson

The Johnson Chamber of Commerce

Robert Jones

Eric Kaplan

Keenan Antiques

Mike Kelly

Mary Ann Kelly MacDonald

Alexandra Marsek

Wes Matheney

Mer Rouge Community Chest

Michael J. Mezrah

Monro Muffler/Brake & Service

Douglas J. Norris

Donna Peterson

Meredith Poggie

Pura vida Bracelets

Lauren Quackenbush

gilda Romano

Ana Rusness-Petersen

Schochor, Federico & Staton, P.A.

Singer Lewak LLP

Sole Sistahs

Tiana N. Tallant

Neil Tetkowski

Thurmont Middle School

Kenneth Walden

Legacy Society members are a select group of donors who have recognized the National Parkinson Foundation in their wills, trusts, estates and other planned gifts. Their generosity and forethought will help thousands of people with Parkinson’s live better lives in the years to come. We would like to recognize the following Legacy Society members:

Every year, thousands of people participate in com munity fundraisers to increase awareness of Parkinson’s disease and raise funds for the National Parkinson Foundation. We would like to extend our sincerest gratitude for their creativity, energy and commitment:

NATIONAL PARKINSON FOUNDATION

LEGACY SOCIETY

NATIONAL PARKINSON FOUNDATION

TEAM HOPE FUNDRAISERS

Page 16: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

Interest Income

Special Events

Legacies and bequests

Private and Corporate

Legacies & Bequests

27% | $ 2,486,795

Private &Corporate

55% | $ 5,078,203

Special Events 2% | $ 243,088

Interest Income & Realized Gain

16% | $ 1,451,589

Legacies & Bequests

27% | $ 2,486,795 Private &Corporate

55% | $ 5,078,203

Special Events 2% | $ 243,088

Interest Income & Realized Gain

16% | $ 1,451,589

CHAAPTER SERVICES

PUBLIC EDUCATION

RESEARCH

PATIENT CARE SERVICES

Patient Care Services

40% | $ 3,140,172

Research19% | $ 1,513,628

Public Education28% | $ 2,195,597

Chapter Services13% | $ 1,029,431

Interest income & Realized Gain

Revenues by Category | 2011-2012

total Year-End Assets $ 18,193,144

total Operating Expenses 100.0% | $ 10,474,594

Subtotal Mission-Related75.2% | $ 7,878,828

Fundraising 18.7% | $ 1,954,395

General & Administration6.1% | $ 641,371

total Revenue$ 9,259,675

FINANCIAL HIgHLIgHTS

Expenses by Category | 2011-2012

As illustrated below, the National Parkinson Foundation directed 75% of its 2011–2012 spending on mission-related activities and 25% on fundraising and management combined.

15 PeoPle who move change the world.

Page 17: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

BOARD OF DIRECTORS

The National Parkinson Foundation is privleged to have an outstanding and dedicated group of volunteers who generously donate their time and talents by serving on the NPF Board of Directors. Without their selfless efforts, the work of the Foundation would not be possible.

AnnuAl RepoRt 2012

Bernard J. Fogel, M.D.* Chairman

E. Richard Alhadeff, Esq.* vice Chairman

Harold P. Kravitz, Esq.* President Emeritus

Martin L. Solomon* Treasurer

John W. Kozyak, Esq.* Secretary

Andrew B. Albert*

Daniel Arty, CPA*

A. jeffrey Barash, Esq.

j. Gordon Beckham, jr.

Marshall R. Burack, Esq.

Carmen Y. Cartaya, Esq.*

Edythe kay-Marsa

Honorable Shelley j. kravitz

Gail Milhous

Paul F. Oreffice*

jo Ann Pepper Oreffice

Donna Schena

Alan M. Slewett

Enrique j. Sosa*

Senator Paul B. Steinberg, Esq.

Robert H. traurig, Esq.

Bruce Wisnicki*

* Member of the Executive Committee

Page 18: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

AnnuAl RepoRt 2012

17 PeoPle who move change the world.

joyce A. OberdorfPresident and Chief Executive Officer

Michael S. Okun, MD National Medical Director

Ariel Y. Deutch, PhD

Chair, Clinical & Scientific Advisory Board

Amy Grayvice President, Chapter Relations and Community Partnerships

Leilani PearlDirector of Communications

Peter Schmidt, PhDvice President, Programs, Chief Information Officer

Robert ShawNational Director of Signature Events

Darcy taylorvice President, Constituent Relations

jill Wisthvice President, Finance & Administration

SENIOR PROFESSIONALS These are the people who work daily to carry out NPF’s mission:

Page 19: ANNU AL REPORT 2012 - Parkinson's Foundationjames j. Baker Dorothy M. Ball Eugene M. Bane Charitable trust Clay H. Barr Sidney Barth john E. and Nellie j. Bastien Memorial Foundation

AnnuAl RepoRt 2012

1501 N.W. 9th Avenue • Bob Hope Road Miami, FL 33136-1494

1.800.4PD.INFO (473-4636)

www.parkinson.org

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