An outline of data processing at the UKRR

Fran Benoy-DeeneyData Manager Lead

UK Renal Registry 2015 Informatics Meeting: Data Matters

This is who we are

• 4 Data Managers

• Jo Wilson

• Jacqueline Stokes

• Sarika Dahiya

https://www.renalreg.org/about-us/contact/

• Different backgrounds– Electricity Industry– Banking– Accountancy/Finance

• All with an interest in data……

UK Renal Registry 2015 Informatics Meeting: Data Matters

This is what we do• We collect data from 62 centres

• 248 files annually

• We compare data with other information

• We resolve the problems we can ourselves

• We liaise with renal units and others associated with data collection

UK Renal Registry 2015 Informatics Meeting: Data Matters

This is the quarterly process

UK Renal Registry 2015 Informatics Meeting: Data Matters

UKRR numbers issued to Site

UKRR numbers loaded at Site, extract run and

submitted to UKRRUKRR validate and

process file

UKRR error report returned to Site

Site return response to UKRR

File updated and prepared for loading to

UKRR database

File loaded and UKRR numbers produced

You see part of the output

Errors graded by severity

UK Renal Registry 2015 Informatics Meeting: Data Matters

Severity File Field Error

1 QUA10 Field Type Mismatch2 IDN00 Missing Quarterly Treatment Block2 PAT00 Sex set to unknown2 PAT23 Invalid Postcode2 IDN03 DATE_BIRTH must have a value3 ERFAJ Missing 2014 EDTA code3 PAT13 File Value is Different to DB Value3 PAT25 Missing Ethnicity (Existing Patient)

This is why it’s important

• Accuracy

• Validity

• Completeness

UK Renal Registry 2015 Informatics Meeting: Data Matters

How you can help us (and help yourselves)

• Before submitting your file utilise the UKRR Site Validation Routines(https://www.renalreg.org/datasets/the-uk-renal-registry-dataset/)

• Use the ERA-EDTA PRD Coding System and related PRD search tool(http://www.era-edta-reg.org/prd.jsp)

• Keep in touchUK Renal Registry 2015 Informatics

Meeting: Data Matters

How can we help you?

• Ideas please……

UK Renal Registry 2015 Informatics Meeting: Data Matters

Conclusion

• Working together is vital for the production of high quality information

• Thank you to everyone involved in supplying the data from the UKRR Data Team

fran.benoy-deeney@nhs.netfran.benoy-deeney@renalregistry.nhs.ukT: 0117 414 8166

UK Renal Registry 2015 Informatics Meeting: Data Matters