saratoga springs december 1, 2010. kimberly e. hoagwood, columbia u serene olin, nyspi mary...

Saratoga SpringsDecember 1, 2010

Kimberly E. Hoagwood, Columbia U Serene Olin, NYSPI Mary McHugh, OMH Geraldine Burton, NYSPI Nancy Craig, OMH Anne Kuppinger, Families Together of NYS

Project Director: ◦Mary A. Cavaleri, NYSPI

Research Assistant: Jennifer Ball, NYSPI Additional Collaborators:◦Jennifer P. Wisdom, NYSPI◦Naihua Duan, NYSPI◦Charles Glisson, U of TN◦Sue Marcus, NYSPI◦Mary M. McKay, Mt. Sinai School of Medicine

◦*Funded by: National Institute of Mental Health

Overview of study: Kimberly Hoagwood OMH initiatives in family support: Mary McHugh

Credentialing and training in family support: Anne Kuppinger

Perspectives on the value of research partnerships from family advocates: Nancy Craig and Geraldine Burton

Family-to-family (i.e., peer-delivered) services in children’s mental health are gaining national attention◦ National Federation of Families credentialing project

◦ 137 chapters◦ NAMI Basics curriculum: 12,000 parents have participated in year 1

◦ ½ dozen states making it a billable service Important service model with little research data to document its content and impact on families and systems (Hoagwood et al., 2010 review)

Reduces stigma and distrust by improving communication (Linhorst & Eckert, 2003)

Improves activation in seeking care (Alegria et al., 2008)

Improves self-efficacy– i.e., active participation in decision-making (Heflinger & Bickman, 1997; Bickman et al., 1998)

Improves knowledge and beliefs about children’s mental health and this is associated with use of higher quality services for children (Fristad et al., 2003; 2008)

Almost no rigorous studies thus jeopardizing long term viability

5

What is the content and structure of family-to-family services: components, staff models, attitudes/beliefs of staff.

Is it effective—Does it have a positive impact on parents, youth, and on systems (e.g., costs, efficiencies).

What are the best models for integrating family peer advocates into service programs.

How can family support services be used to further the OMH goal of clinic restructuring

OMH Perspectives: Reshaping OMH Perspectives: Reshaping Policy—Mary McHugh, OMHPolicy—Mary McHugh, OMH From an emphasis on ‘family engagement’ to ‘family-driven services’.

A focus on developments in both the family support movement and research regarding the delivery of high quality, effective family support services.

To guide these policies, the Division of Children and Families includes Parent Advisors who are intricately involved in our planning and program operations.

Investing in Family Support Investing in Family Support ServicesServices We invest over $14 million state and federal dollars in the delivery of family support services.

We support Family-run and provider-operated family support programs that deliver individual and group peer support, referrals and linkages, advocacy, skill development, care coordination, respite, family recreation and basic supports.

We support strategies to improve partnerships between mental health programs and family run family support programs

Three Level Approach to Three Level Approach to Improving Family Support in Improving Family Support in Mental Health SystemMental Health System

Systems not ServicesSystems not Services

“You can’t expect an individual service provider to transform their practice on their own; it is much too expensive and complex. It is easier to transform practices when they are part of a system and achieve economies of scale”.

Ed Schor M.D., The Commonwealth Fund

FTNYS Perspective: FTNYS Perspective: Training/Credentialing of Family Training/Credentialing of Family Peer Advocates: Anne KuppingerPeer Advocates: Anne Kuppinger

Family Advocates Perspective: Geraldine Burton What is research?

◦ The right question

◦ The right time

◦ Gathering of information

Who can do research?Why is research important? Parents/caregivers

Scientist

Scholars

Students

Teachers

Helps to inform, educate and enhance what we already do.

What is it like to work in research as a Family Advocate?

Opportunity to work in collaboration and partnership with the community and other researchers

Opportunity to learn from each other

Opportunity to share your experience

Continue to work with families

To examine the process and content of services provided by family peer advocates within 25 Waiver programs

To examine the social organizational context within which family support is delivered

To understand how best to enhance the quality of family support services

Primary purposes of the Primary purposes of the studystudy

Examine the structure, process and content of family support services

25 waiver programs within 6 to 10 mental health service agencies.

3 to 5 staff per waiver program (e.g., supervisors, ICCs, family peer advocates, skill building staff, others).

Participants

Measures Time point

Duration Method of Data Collection

Agency Director

a. Interview 1 time 30 minutes a. In person/phone call

Waiver Program Staff

a. Organizational Social Context questionnaire

*b. Walkthrough of Services with focus on Family Support

c. Interviews with staff about Family Support Services

1 time a. + c. = 1 hour

*2 hours

a. Staff meeting

b. In personc. In person

or phone interview

Standardized Parent (SP) will participate in first meeting with relevant Waiver staff

SP will participate in a face-to-face appointment with FPA

At the end of the Walkthrough, the family peer advocate will complete an interview

Standardized Parent Standardized Parent WalkthroughWalkthrough

Describe variations in process and content of family support services across Waiver programs◦ Identify what family peer advocates do

Describe how the social-organizational context of Waiver programs relate to indicators of service quality

Identify how agencies can support what family peer advocates do

What will we do with the What will we do with the information collected in information collected in Phase 1?Phase 1?

Examine organizational strategies to improve the integration of family

support within agencies

Complete the application or contact us:

◦Kimberly E. Hoagwood (Principal Investigator)

hoagwood@childpsych.columbia.edu

◦Mary Cavaleri (Project Director)cavaleri@pi.cpmc.columbia.edu

◦Jennifer Ball (Research Assistant)balljenn@childpsych.columbia.edu