one small candle: creating an sbs advocacy group

One Small Candle:Creating an SBS Advocacy Group

October 5, 2008Greg Williams, MEd

Marsha Williams, LPN

As one small candle may light a thousand, so the light here kindled hath shone unto many.

--William Bradford

Of Plymouth Plantation

Reagan Emery Williams1/5/04-7/2/06

When someone you love becomes a memory, that memory becomes your priceless treasure. It also drives your passion, becomes your cause, and leads you to action.

--The Shaken Baby Alliance

action

Taking Action

GatheringInformation

RaisingFunds

Raising Awareness

Taking Action

GatheringInformation

RaisingFunds

Raising Awareness

GatheringInformation

Internet Literature Professionals

GatheringInformation

Internet Literature Professionals

Internet

• National Center on Shaken Baby Syndrome• National Shaken Baby Coalition• Shaken Baby Task Force• Don’t Shake a Baby.com• The Shaken Baby Alliance• SBS Prevention Plus• Prevent Child Abuse Illinois• National Center for the Prosecution of Child

Abuse

GatheringInformation

Internet Literature Professionals

Literature

• After Death CommunicationHello from Heaven! by Bill & Judy GuggenheimWe Are Their Heaven by Allison DuBois

After Life by John Edward

• GriefA Grief Observed by C. S. LewisThe Year of Magical Thinking by Joan DidionWhen the Bough Breaks by Judith R. BernsteinThe Bereaved Parent by Harriet Schiff

Literature, cont.

• Faith

God Will Make a Way by Terry Rush

Life After the Death of My Son by Dennis L. Apple

A Decembered Grief by Harold Ivan Smith

The Gift of Grief by Matthew D. Gewirtz

GatheringInformation

Internet Literature Professionals

Professionals

• Grief Counselors• Pastors• Psychologists• Doctors• Nurses• Investigators• Attorneys• Educators• Social Workers• CPAs

Professionals, cont.

• WorkshopsTrain-the-Trainer WorkshopSpringfield, IL 9/18/07 Prevent Child Abuse Illinois

Children Living in Danger: The Risksof Paramours and Domestic Violence

Bloomington, IL 6/11/08Prevent Child Abuse Illinois

Taking Action

GatheringInformation

RaisingFunds

Raising Awareness

Raising Funds

• Seed Money

• Memorial Fund

• Wristbands

Raising Funds, cont.

• Business PartnershipsProvena United Samaritans Medical CenterLamar Outdoor AdvertisingRadio Stations

WDNL WRHKWDAN WKZS

Central Christian Church

Danville District #118

Raising Funds, cont.

• Business Partnerships, cont.

Community Theatre GroupsLocal Merchants

Chart RecordsNextelBerbaum InsuranceCustard CupEducation Personnel Federal Credit Union

Taking Action

GatheringInformation

RaisingFunds

Raising Awareness

Raising Awareness

• Website

www.reagansrescuefund.com

• Radio Programs

WDAN Community Connection

WITY Provena Healthy Living

Raising Awareness, cont.

• Presentations

YFRC Child Awareness Workshop

DACC Early Childhood Education Conference

Kiwanis and Lions

Church groups

Raising Awareness, cont.

• Candlelight Vigil

Raising Awareness, cont.

• Billboard

Raising Awareness, cont.

• Logo

Raising Awareness, cont.

• Business Card

Raising Awareness, cont.

• Radio Public Service Announcements

Raising Awareness, cont.

• Magazine Articles“Partners in Prevention”One LifeWinter/Spring 08

“Beary Good News”Teddy Bear ReviewJune 2008

Raising Awareness, cont.

• Boyd’s Bears

Raising Awareness, cont.

• School District

Raising Awareness, cont.

• School District, cont.

Illinois House Resolution 228—adopted 6/13/07

~SBS curriculum implemented in Illinois middle and high school health classes

~Reagan’s Rescue pushed for immediate implementation in Vermilion and

Champaign County schools

Raising Awareness, cont.

Raising Awareness, cont.

• School District, cont.

Reagan Williams Memorial Track InvitationalBuilder’s Club at North Ridge Middle SchoolKey Club at Danville High SchoolChannel One PSAs

Raising Awareness, cont.

• School District, cont.

Reagan’s Rescue Scholarship

Raising Awareness, cont.

• School District, cont.

Library Donations

Danville High School

~Silenced Angels: The Medical, Legal, and Social Aspects of Shaken Baby Syndrome

by James R. Peinkofer

~Grandma’s Baby: A True Story of One Family’s Struggle with Shaken Baby Syndrome by Karen Wise, R.N.

Raising Awareness, cont.

• School District, cont.

Library Donations

Edison Elementary School

~The Fall of Freddie the Leaf

by Leo Buscaglia

Legal Responsibilities

• Incorporation

• NFP Status

• Taxes

• Bookkeeping

Blessings

• Festival of Trees

David S. Palmer Arena

Nov. 2007

“Angels on Earth”

Blessings, cont.

• Reagan Williams Playroom

Your Family Resource Connection

Danville, IL

Dedicated 1/29/08

Blessings, cont.

Blessings, cont.

Blessings, cont

Blessings, cont.

Blessings, cont.

Illinois State Proclamation

SBS Awareness Week

Signed 3/1/08

Gov. Rod Blagojevich

It matters not how long the star did shine but the brightness with which it shown.